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Life Experiences of Individuals
Living with Dyslexia in Malaysia:
A Phenomenological Study




  Chan Oga & Fatimah Haron
  World Conference on Educational Sciences
  2012, 2 -5 February, 2012
  Barcelona, Spain
Outline

What is dyslexia?
 Past Research
The Current Study
   Research Question
     Methodology
         Analysis
         Results
      Implications
       Limitations
       Conclusion
What is DYSLEXIA?


   Dys                   lexis               Dyslexia



Definition today:
A specific learning disability that is neurobiological
in origin, characterized by difficulties in accurate
or fluent word recognition, spelling and decoding
abilities despite higher cognitive abilities and
effective classroom experience, where comorbidity
in other academic or cognitive areas such as
attention, arithematic and self-expression is
common (Reid, Shaywitz & Shaywitz, 2003)
A specific learning disability…


                  Listening

     Attention
                               Speaking


                  Learning
                  disability


     arithmetic
                               Reading

                  Writing
… neurobiological in origin
…characterized by difficulties in accurate
  or fluent word recognition, spelling and
  decoding abilities


                                                   Fluent
Quickly      Accurately       Comprehend          reading/
                                                  spelling



   *Research indicates dyslexic readers can improve as
   they mature but continue to lack fluency
…despite higher cognitive abilities
and effective classroom experience




*A classroom experience effective for others may
not be effective for dyslexic individuals
…comorbidity in other academic or
cognitive areas such as
attention, mathematics and self-
expression is common
Is dyslexia really a disability or a
difference?
Disability or difference?

                                         Research showed
4% tertiary students
                                           that dyslexic
are dyslexic and fail         VS
                                          individuals are
exam or were on the
                                        significantly more
   verge of being
                                        creative than non-
kicked out of varsity
                                             dyslexics


    Abilities of dyslexics can be fostered with the right
    support.
Dyslexia in Context

 5-10% of the world’s population
  That’s 1 or 2 out of every 20
              persons
   314,000 Malaysian students
 Highly unrecognized in Malaysia
Literature review of life experiences
of Individuals Living with Dyslexia

                    Feeling
                   different

                                  Reacting
   Finding a
                                    to the
     niche
                                  diagnosis

                  Experiences



                                A mass of
     Contending
                                emotions
Current Research
 Problem
   Abilities of dyslexics can be fostered with the right
    support. However, how would we know what is the right
    support for dyslexics in Malaysia if we do not know what
    they have been experiencing in Malaysia?
 Research Question
   What are the life experiences of individuals living with
    dyslexia in Malaysia?
 Research Methodology
   A phenomenological approach was adopted
   Individual semi-structured interview
   5 participants
Salient Experience in Malaysia:
Subjected to the watchful eyes of others and
their negative reactions

                         Watchful
                         eyes of
                          others
                                       Punishment/
                                       skepticism, n
         People’s
                                          egative
        ignorance
                                       comments &
                                       name calling
                        Subjected
                           to


        Misconception
            of the                      Being
          condition                 misunderstood
Implications

 1) increase efforts of instilling awareness
  of dyslexia in Malaysia
 2) educate the public about the
  nature, limitation as well as the potential
  of individuals with dyslexia
 3) rectify the education system that
  marginalizes the educational opportunities
  of dyslexics.
Conclusion


 This research has only uncovered the
tip of the iceberg of experiences faced
        by dyslexics in Malaysia.
 More research needs to be done to
  understand their life experiences
              better.

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Life Experience of Individuals Living with Dyslexia in Malaysia

  • 1. Life Experiences of Individuals Living with Dyslexia in Malaysia: A Phenomenological Study Chan Oga & Fatimah Haron World Conference on Educational Sciences 2012, 2 -5 February, 2012 Barcelona, Spain
  • 2. Outline What is dyslexia? Past Research The Current Study Research Question Methodology Analysis Results Implications Limitations Conclusion
  • 3. What is DYSLEXIA? Dys lexis Dyslexia Definition today: A specific learning disability that is neurobiological in origin, characterized by difficulties in accurate or fluent word recognition, spelling and decoding abilities despite higher cognitive abilities and effective classroom experience, where comorbidity in other academic or cognitive areas such as attention, arithematic and self-expression is common (Reid, Shaywitz & Shaywitz, 2003)
  • 4. A specific learning disability… Listening Attention Speaking Learning disability arithmetic Reading Writing
  • 6. …characterized by difficulties in accurate or fluent word recognition, spelling and decoding abilities Fluent Quickly Accurately Comprehend reading/ spelling *Research indicates dyslexic readers can improve as they mature but continue to lack fluency
  • 7. …despite higher cognitive abilities and effective classroom experience *A classroom experience effective for others may not be effective for dyslexic individuals
  • 8. …comorbidity in other academic or cognitive areas such as attention, mathematics and self- expression is common
  • 9. Is dyslexia really a disability or a difference?
  • 10. Disability or difference? Research showed 4% tertiary students that dyslexic are dyslexic and fail VS individuals are exam or were on the significantly more verge of being creative than non- kicked out of varsity dyslexics Abilities of dyslexics can be fostered with the right support.
  • 11. Dyslexia in Context 5-10% of the world’s population That’s 1 or 2 out of every 20 persons 314,000 Malaysian students Highly unrecognized in Malaysia
  • 12. Literature review of life experiences of Individuals Living with Dyslexia Feeling different Reacting Finding a to the niche diagnosis Experiences A mass of Contending emotions
  • 13. Current Research  Problem  Abilities of dyslexics can be fostered with the right support. However, how would we know what is the right support for dyslexics in Malaysia if we do not know what they have been experiencing in Malaysia?  Research Question  What are the life experiences of individuals living with dyslexia in Malaysia?  Research Methodology  A phenomenological approach was adopted  Individual semi-structured interview  5 participants
  • 14. Salient Experience in Malaysia: Subjected to the watchful eyes of others and their negative reactions Watchful eyes of others Punishment/ skepticism, n People’s egative ignorance comments & name calling Subjected to Misconception of the Being condition misunderstood
  • 15. Implications  1) increase efforts of instilling awareness of dyslexia in Malaysia  2) educate the public about the nature, limitation as well as the potential of individuals with dyslexia  3) rectify the education system that marginalizes the educational opportunities of dyslexics.
  • 16. Conclusion This research has only uncovered the tip of the iceberg of experiences faced by dyslexics in Malaysia. More research needs to be done to understand their life experiences better.

Editor's Notes

  1. Across language and culturesPosterior left hemisphere lack functioningFront (inferior frontal gyrus): sound (broca’s area)Next (parieto-temporal system): word analysis (meaning)Last (occipito-temporal system): word form (graphics)
  2. Note: spelling together because spelling use the same 3 systems; form, graphic and sounds
  3. Children in poverty who did not attend class earlier have slower language development and cannot be attricuted to dyslexia (non-effective classroom exp)
  4. Memory and organization ability too
  5. Lack fluency in reading