Derick mitchell, IPPOSI, Rare Disease Day 2016 Presentation
•
0 likes•92 views
This document discusses Rare Disease Day 2016 and issues surrounding access to orphan drugs (ODs) in Ireland. It notes that the Irish health system requires its own solution for ODs and decisions often take a long time due to high budget impacts. It is unknown how ODs are assessed, prescribed, and monitored in Ireland. The document advocates for a separate Irish assessment system that incorporates patient perspectives and costs of not treating. It acknowledges active partnerships between patient groups and agencies to improve health technology assessments and access to ODs in Ireland.
Report
Share
Report
Share
Download to read offline
Recommended
HISI 2015
This document summarizes Derick Mitchell's presentation on the Irish Patient Partnership for Science, Industry and Society (IPPOSI). The key points are:
1. IPPOSI brings together patient groups, industry, and science to expedite development and patient access to innovative therapies in Ireland. They aim to bring a patient perspective to clinical research and policy development.
2. Preliminary results from a Northern Ireland electronic clinical records program showed an 80% reduction in medical report requests and improved quality of doctor-patient interactions.
3. Ensuring good communication, privacy, access and accountability will be important considerations for Ireland's planned National Register of Individual Health Identifiers.
4. Training "expert patients"
Healthwatch Leicester and Healthwatch Leicestershire Update
This presentation was given at our health and social care forum.
Learn more online at www.valonline.org.uk
Decision Assist Palliative Care and Advance Care Planning for Aged Care by As...
Decision Assist Palliative Care and Advance Care Planning for Aged Care by As...Decision Assist Palliative Care and Advance Care Planning for Aged Care
Presented at the 3rd International Conference on Ageing in a Foreign Land. Flinders University Tonsley Campus, 24-26 June 2015.Cheshire west and cheshire pt1
RIX Research and Media has over 15 years of experience developing inclusive technologies through co-production with people with disabilities. They have created RIX Wikis, a password protected and secure multimedia wiki for sharing information about individuals with learning disabilities. The wikis allow for selective sharing to involve everyone in a person's support circle and enable a multi-agency collaboration approach to education, health, and care planning centered around the individual.
Heike von Lutzau-Hohlbein
1) The document discusses Alzheimer Europe's Glasgow Declaration which calls on European countries to adopt national dementia strategies and a European dementia strategy to increase funding for dementia research and exchange good practices.
2) It provides statistics showing support for the Glasgow Declaration from 195 organizations in 32 countries, 150 policymakers from 25 European countries, and over 11,600 European citizens.
3) It summarizes achievements including European funding for dementia research under FP7 and other initiatives, and calls in the 2015 Luxembourg Presidency Conclusions to recognize dementia and intensify research.
Acute Network Meeting HFH Updates 29 May 2018 - M Lynch
This document provides an overview and updates from a meeting of the HFH Acute Hospital Network. It discusses the HFH programme which supports end of life care in hospitals. It outlines the staff and structure of the HFH programme. It provides an update on activities including outreach, oversight with the HSE, and a feasibility study on enhancing bereavement care in Ireland. It discusses identifying priorities around developing standards, services mapping, and advocacy. The next steps include presenting findings at a bereavement care forum.
Clinical Leadership: At the Heart of IT Tansformational Change
This document discusses clinical leadership in IT transformational change. It outlines an eHealth vision of greater information sharing and accessibility to promote self-care, interoperability, and multi-disciplinary teamwork. Key principles include quality improvement through evidence-based practices and clinical change management. It describes achievements in eMedicines, shared care programs, and national solutions. Clinical leadership is needed to ensure investment supports sustainable delivery, evidence-based practices, and that IT enables good clinical processes and outcomes.
Health & well-being in a connected world
Health & Well-being in a Connected World - Presentation from BaseN 13th Anniversary Seminar | Ville Koiste, Sitra
Recommended
HISI 2015
This document summarizes Derick Mitchell's presentation on the Irish Patient Partnership for Science, Industry and Society (IPPOSI). The key points are:
1. IPPOSI brings together patient groups, industry, and science to expedite development and patient access to innovative therapies in Ireland. They aim to bring a patient perspective to clinical research and policy development.
2. Preliminary results from a Northern Ireland electronic clinical records program showed an 80% reduction in medical report requests and improved quality of doctor-patient interactions.
3. Ensuring good communication, privacy, access and accountability will be important considerations for Ireland's planned National Register of Individual Health Identifiers.
4. Training "expert patients"
Healthwatch Leicester and Healthwatch Leicestershire Update
This presentation was given at our health and social care forum.
Learn more online at www.valonline.org.uk
Decision Assist Palliative Care and Advance Care Planning for Aged Care by As...
Decision Assist Palliative Care and Advance Care Planning for Aged Care by As...Decision Assist Palliative Care and Advance Care Planning for Aged Care
Presented at the 3rd International Conference on Ageing in a Foreign Land. Flinders University Tonsley Campus, 24-26 June 2015.Cheshire west and cheshire pt1
RIX Research and Media has over 15 years of experience developing inclusive technologies through co-production with people with disabilities. They have created RIX Wikis, a password protected and secure multimedia wiki for sharing information about individuals with learning disabilities. The wikis allow for selective sharing to involve everyone in a person's support circle and enable a multi-agency collaboration approach to education, health, and care planning centered around the individual.
Heike von Lutzau-Hohlbein
1) The document discusses Alzheimer Europe's Glasgow Declaration which calls on European countries to adopt national dementia strategies and a European dementia strategy to increase funding for dementia research and exchange good practices.
2) It provides statistics showing support for the Glasgow Declaration from 195 organizations in 32 countries, 150 policymakers from 25 European countries, and over 11,600 European citizens.
3) It summarizes achievements including European funding for dementia research under FP7 and other initiatives, and calls in the 2015 Luxembourg Presidency Conclusions to recognize dementia and intensify research.
Acute Network Meeting HFH Updates 29 May 2018 - M Lynch
This document provides an overview and updates from a meeting of the HFH Acute Hospital Network. It discusses the HFH programme which supports end of life care in hospitals. It outlines the staff and structure of the HFH programme. It provides an update on activities including outreach, oversight with the HSE, and a feasibility study on enhancing bereavement care in Ireland. It discusses identifying priorities around developing standards, services mapping, and advocacy. The next steps include presenting findings at a bereavement care forum.
Clinical Leadership: At the Heart of IT Tansformational Change
This document discusses clinical leadership in IT transformational change. It outlines an eHealth vision of greater information sharing and accessibility to promote self-care, interoperability, and multi-disciplinary teamwork. Key principles include quality improvement through evidence-based practices and clinical change management. It describes achievements in eMedicines, shared care programs, and national solutions. Clinical leadership is needed to ensure investment supports sustainable delivery, evidence-based practices, and that IT enables good clinical processes and outcomes.
Health & well-being in a connected world
Health & Well-being in a Connected World - Presentation from BaseN 13th Anniversary Seminar | Ville Koiste, Sitra
Joyce Kenkre & Carolyn Wallace _LTC Consensus Meeting 10-Nov-2015
PRIME Centre Wales
Long Term Conditions Consensus Meeting
Tuesday 10th November 2015, St Mary's Priory, Abergavenny, NP7 5ND
http://www.primecentre.wales/ltc-consensus-meeting.php
Striving for Excellence, Seeking Value, Sparking a Revolution
Some insights from the 19th Annual IHI/BMJ International Forum on Quality and Safety in Healthcare, Paris, 08-11 April 2014:
The theme of this year’s Forum was “Strive for Excellence, Seek Value, [and] Spark a Revolution!” in healthcare. The meeting attracted over 3000 delegates from over 75 countries – and so it was a great opportunity to cross-fertilise ideas and share cutting-edge practices across international boundaries.
Our work from across NHS Education for Scotland attracted much interest and discussion – not only at the NHS Scotland exhibition stand, but also at the workshop presentations and poster sessions.
Internationally, over 200 sessions were presented by leading thinkers in the field; and covered the following streams:
• Patient and family centred care
• Leading effective change
• Improving population and community health
• Improving clinical performance
• Technology and innovation
• Safe and reliable care
One core theme however, appeared to be patient safety stories, and staff & patient experiences.
The ethos was on reflecting on person centred care – really listening to patients and service users, and understanding what really matters to them. In addition, there were deliberations on taking healthcare completely outside the formal healthcare system and in engaging in health every day. Whilst this concept is not new, it resonates with the notion that “prevention is better than cure”.
One keynote in particular presented the power of narrative in compelling action and transformational positive change.
Another presentation focussed on shadowing the patient journey – to review process maps, the voice of patients, family members and staff, and transitions in care. Using this real-time collection of data and narrative, the organisation was able to review the team effort around the patient, to improve services, interactions and processes. The emphasis was on co-designing services with patients through engagement, partnership and in closing any identified gaps to ideal care delivery.
In summary, a key message emanating is how the complementary nature of data and narrative/story will compel action, catalyse improvements, and drive transformative change for excellence in service delivery.
Maureen Taggart
The document summarizes key findings from a review of NHS specialist dementia care. It discusses background information on the review including notifying NHS Boards and contacting operational leads. The review involved visiting 9 Health Boards, engaging with 57 specialist dementia care environments and stakeholders. Next steps discussed include finalizing a transition model, committing to investment, and developing specialist advanced dementia units.
Keynote address - Secretary of State for Health Jeremy Hunt
The document discusses the NHS Digital Academy, which will be responsible for ensuring international excellence in training and education for clinical information officers and other digital health leaders. The Academy will support leaders from exemplar NHS trusts and complement existing workforce development programs. It will include distance learning, partnerships with international organizations, and experiential learning through digital health projects at exemplar sites. The document also briefly mentions the MyNHS data visualization and customization tool, as well as new domains for conditions like dementia and diabetes. Finally, it outlines plans to launch an online triage service for NHS 111.
Think kidneys for care homes somerset
The document discusses the Think Kidneys program which aims to improve prevention, detection, and management of acute kidney injury (AKI) in care homes. It provides background on AKI, noting that it is common and preventable. It then describes the Think Kidneys program objectives and initiatives targeted at care homes, including developing an educational guide and slides for care home staff. It invites care homes to volunteer to trial these materials and provide feedback to shape the final publications.
Connected Health – The New Age Formula for Care Delivery
Connected care through technology-enabled solutions can help healthcare organizations struggling during the COVID-19 pandemic by providing remote patient access, higher quality care at lower costs, and an improved experience for better outcomes. Adopting telehealth, digital health, internet of things, and integrated models represents the future of connected healthcare delivery for unprecedented efficiency and empowered patients.
Detention Assessment Instrument and DMC Impact
Chris Thomas explores the Detention Assessment Instrument used by the Georgia Department of Juvenile Justice and how revisions are being implemented to improve the accuracy and consistency in identifying youth who should be detained and those who can be safely released.
What is a clinical commissioning group
Clinical Commissioning Groups (CCGs) are clinically-led groups that are responsible for designing local health care services in England. They were established in 2013 to replace Primary Care Trusts and are overseen by the National Commissioning Board. CCGs are membered by general practitioner practices to commission services for their local area. They are responsible for planning, designing, implementing and monitoring health services while ensuring value for money. CCGs must ensure providers are fit for purpose, address poor performance, and deliver services within their financial framework to meet local population needs.
KQUIP Presentation BRS 2017
Kidney Quality Improvement Partnership (KQuIP) Update
Graham Lipkin, Co-chair of KQuIP and Louise Wells, Co-Chair KQuIP
RSM AKI September 2015
The document discusses the Think Kidneys National Programme, which aims to reduce harm related to acute kidney injury (AKI) through improved detection, management, and recovery. The programme has created levers within the healthcare system like a national safety alert and CQUIN. It will lead improvement efforts through education, awareness campaigns, and collaborating with patient safety organizations. The future goals are to expand primary and community care of AKI and establish Think Kidneys as a brand that continues tackling this common and costly health problem through a strategic, system-wide approach.
Team A - Business Case
The proposal aims to improve medication management for elderly patients living at home through a new "talkback" system. It would systematically check patient understanding of medications at every healthcare interaction. Key activities include developing guidance, testing in a pilot, training staff across community pharmacy, GP, hospital pharmacy, nursing, and social care. Successful outcomes include increased patient self-management skills, independence, and reduced waste and errors. Risks include not identifying cognitive impairment, poor communication between organizations, and costs being uncertain.
Achieving innovation at scale in the NHS
This document summarizes a presentation on achieving innovation at scale in the NHS. It was chaired by leaders in the NHS and medical fields. One presentation discussed the EPISCISSORS-60, a patented episiotomy scissors that provides a more accurate cut and has led to reductions in childbirth injuries across several UK hospitals. Another presentation discussed implementing the i-THRIVE model of care for child and adolescent mental health services, which focuses on a needs-based pathway with multi-agency involvement, community support, and shared decision making. A third presentation was about the digital health company AliveCor and its wireless electrocardiogram devices.
GAIHN: Greater Auckland Integrated HealthCare Networks
The document discusses initiatives of the Greater Auckland Integrated HealthCare Networks (GAIHN) which includes 3 DHBs, 10 PHOs, over 300 general practices, and 1.25 million enrolled patients. GAIHN is working on several projects including access to diagnostics, optimizing prescribing, clinical pathways, a regional after hours solution, and more. They are also establishing clinical alliance teams to address acute demand, long term conditions, and reducing inequalities. GAIHN supports national health IT strategies and focuses on sharing resources and information between partners through regional e-referrals, e-shared care plans, and population health repositories to improve outcomes, efficiency and patient experiences across the healthcare system.
RDD Conf Day 2: From building networks to collaboration Dev Menon/Tania Stafi...
RDD Conf Day 2: From building networks to collaboration Dev Menon/Tania Stafi...Canadian Organization for Rare Disorders
Rare Disease Day 2017 March 30 - 31, 2017 Day 2: From building networks to collaboration Dev Menon/Tania Stafinski (PRISM, University of Alberta)Compliance, Adherence, or Participation? Creating a Framework for Patient-Cli...
Compliance, Adherence, or Participation? Creating a Framework for Patient-Cli...Mighty Casey Media Inc.
The document discusses creating a framework for patient-clinician collaboration. It describes how patients are taking more active roles in their healthcare through crowdsourcing treatment options and participating in "citizen science" projects. However, the current model is still paternalistic, focusing on compliance and adherence rather than partnership. True participation requires listening to patients and engaging them as partners through shared decision making tools and access to their own health data. When clinicians form collaborative relationships with patients, it can drive improved health outcomes.Bridging the evidence-practice gap in nursing
This document discusses bridging the gap between evidence and nursing practice. It explains that evidence-based practice is important for nursing to ensure best practices. Various reasons are given for why opinion and experience alone are not sufficient for clinical decision making. The document then outlines some key aspects of evidence-based practice, including using control groups in interventions and ensuring practices are supported by evidence rather than happening by accident. Finally, it provides details on the Evidence Based Council in the UK, including its history and achievements in establishing nursing guidelines and resources to promote evidence-based care.
CNO Summit 2015 - New Care Models, Sam jones
The document summarizes the NHS Five Year Forward View and the new care models program, which aims to address challenges facing the NHS through five new care models: multispecialty community providers, integrated primary and acute care systems, acute care collaboration, enhanced health in care homes, and urgent and emergency care. It outlines the 50 vanguards selected to pioneer these new care models and the support provided to help them implement changes.
RDD Conf Day 2: Results that matter to patients and parents Lori Tucker (Brit...
RDD Conf Day 2: Results that matter to patients and parents Lori Tucker (Brit...Canadian Organization for Rare Disorders
Rare Disease Day 2017 March 30 - 31, 2017 Day 2: Research Rare Disease Day 2017 March 30 - 31, 2017 Day 2:
Results that matter to patients and parents Lori Tucker (British Columbia Children’s Hospital)
Open Education Policy for NorthEast Leadership Day
This document provides an overview of open education policy. It defines open policies as laws, rules, and actions that support openly licensed educational content. Different types of open policies discussed include funding policies, resource policies, and framework policies. The importance of open policies is explained in terms of public spending and information, efficiency, affordability, access, equity, and innovation. Examples of open education policies in higher education are presented. The document outlines actions individuals can take to advance open policies, such as raising awareness, supporting college adoption of open licensing, and reviewing promotion and tenure guidelines. Interactive activities are also described to identify policy components and barriers relevant to participants' institutions.
New Models of Care Strategy for Vanguards and Pioneers
This document summarizes a presentation on new care models in the NHS. It discusses the integrated care pioneers program involving 25 sites integrating health and social care. It also discusses the 50 vanguards developing new models of care across 5 categories. Finally, it provides an overview of the technology support offered to vanguards and pioneers in 2016/17, focusing on 7 core themes like digital strategy and information sharing.
An Economics Perspective on Drug Prices: Audrey Laporte (University of Toronto)
An Economics Perspective on Drug Prices: Audrey Laporte (University of Toronto)Canadian Organization for Rare Disorders
This document discusses an economics perspective on drug prices. It notes that drug development is an investment that will only occur if the revenue stream justifies costs. For small market drugs, designing a payment structure is challenging to make research attractive for companies. It provides an example of a small biopharma company developing a rare cancer drug that needs funding for later trial phases in order to continue research.Swedish National Board of Health and Welfare Mona Heurgren
Sweden uses national quality registries and national health data registries to drive quality improvement in health and social care. The registries provide data that is used at national, regional, and local levels for improvement work, monitoring, and research. Public reporting of registry data promotes transparency and encourages providers to enhance performance. While registries have helped improve outcomes, ensuring sustainable registry organizations, patient privacy, and efficient data collection remain ongoing challenges.
More Related Content
What's hot
Joyce Kenkre & Carolyn Wallace _LTC Consensus Meeting 10-Nov-2015
PRIME Centre Wales
Long Term Conditions Consensus Meeting
Tuesday 10th November 2015, St Mary's Priory, Abergavenny, NP7 5ND
http://www.primecentre.wales/ltc-consensus-meeting.php
Striving for Excellence, Seeking Value, Sparking a Revolution
Some insights from the 19th Annual IHI/BMJ International Forum on Quality and Safety in Healthcare, Paris, 08-11 April 2014:
The theme of this year’s Forum was “Strive for Excellence, Seek Value, [and] Spark a Revolution!” in healthcare. The meeting attracted over 3000 delegates from over 75 countries – and so it was a great opportunity to cross-fertilise ideas and share cutting-edge practices across international boundaries.
Our work from across NHS Education for Scotland attracted much interest and discussion – not only at the NHS Scotland exhibition stand, but also at the workshop presentations and poster sessions.
Internationally, over 200 sessions were presented by leading thinkers in the field; and covered the following streams:
• Patient and family centred care
• Leading effective change
• Improving population and community health
• Improving clinical performance
• Technology and innovation
• Safe and reliable care
One core theme however, appeared to be patient safety stories, and staff & patient experiences.
The ethos was on reflecting on person centred care – really listening to patients and service users, and understanding what really matters to them. In addition, there were deliberations on taking healthcare completely outside the formal healthcare system and in engaging in health every day. Whilst this concept is not new, it resonates with the notion that “prevention is better than cure”.
One keynote in particular presented the power of narrative in compelling action and transformational positive change.
Another presentation focussed on shadowing the patient journey – to review process maps, the voice of patients, family members and staff, and transitions in care. Using this real-time collection of data and narrative, the organisation was able to review the team effort around the patient, to improve services, interactions and processes. The emphasis was on co-designing services with patients through engagement, partnership and in closing any identified gaps to ideal care delivery.
In summary, a key message emanating is how the complementary nature of data and narrative/story will compel action, catalyse improvements, and drive transformative change for excellence in service delivery.
Maureen Taggart
The document summarizes key findings from a review of NHS specialist dementia care. It discusses background information on the review including notifying NHS Boards and contacting operational leads. The review involved visiting 9 Health Boards, engaging with 57 specialist dementia care environments and stakeholders. Next steps discussed include finalizing a transition model, committing to investment, and developing specialist advanced dementia units.
Keynote address - Secretary of State for Health Jeremy Hunt
The document discusses the NHS Digital Academy, which will be responsible for ensuring international excellence in training and education for clinical information officers and other digital health leaders. The Academy will support leaders from exemplar NHS trusts and complement existing workforce development programs. It will include distance learning, partnerships with international organizations, and experiential learning through digital health projects at exemplar sites. The document also briefly mentions the MyNHS data visualization and customization tool, as well as new domains for conditions like dementia and diabetes. Finally, it outlines plans to launch an online triage service for NHS 111.
Think kidneys for care homes somerset
The document discusses the Think Kidneys program which aims to improve prevention, detection, and management of acute kidney injury (AKI) in care homes. It provides background on AKI, noting that it is common and preventable. It then describes the Think Kidneys program objectives and initiatives targeted at care homes, including developing an educational guide and slides for care home staff. It invites care homes to volunteer to trial these materials and provide feedback to shape the final publications.
Connected Health – The New Age Formula for Care Delivery
Connected care through technology-enabled solutions can help healthcare organizations struggling during the COVID-19 pandemic by providing remote patient access, higher quality care at lower costs, and an improved experience for better outcomes. Adopting telehealth, digital health, internet of things, and integrated models represents the future of connected healthcare delivery for unprecedented efficiency and empowered patients.
Detention Assessment Instrument and DMC Impact
Chris Thomas explores the Detention Assessment Instrument used by the Georgia Department of Juvenile Justice and how revisions are being implemented to improve the accuracy and consistency in identifying youth who should be detained and those who can be safely released.
What is a clinical commissioning group
Clinical Commissioning Groups (CCGs) are clinically-led groups that are responsible for designing local health care services in England. They were established in 2013 to replace Primary Care Trusts and are overseen by the National Commissioning Board. CCGs are membered by general practitioner practices to commission services for their local area. They are responsible for planning, designing, implementing and monitoring health services while ensuring value for money. CCGs must ensure providers are fit for purpose, address poor performance, and deliver services within their financial framework to meet local population needs.
KQUIP Presentation BRS 2017
Kidney Quality Improvement Partnership (KQuIP) Update
Graham Lipkin, Co-chair of KQuIP and Louise Wells, Co-Chair KQuIP
RSM AKI September 2015
The document discusses the Think Kidneys National Programme, which aims to reduce harm related to acute kidney injury (AKI) through improved detection, management, and recovery. The programme has created levers within the healthcare system like a national safety alert and CQUIN. It will lead improvement efforts through education, awareness campaigns, and collaborating with patient safety organizations. The future goals are to expand primary and community care of AKI and establish Think Kidneys as a brand that continues tackling this common and costly health problem through a strategic, system-wide approach.
Team A - Business Case
The proposal aims to improve medication management for elderly patients living at home through a new "talkback" system. It would systematically check patient understanding of medications at every healthcare interaction. Key activities include developing guidance, testing in a pilot, training staff across community pharmacy, GP, hospital pharmacy, nursing, and social care. Successful outcomes include increased patient self-management skills, independence, and reduced waste and errors. Risks include not identifying cognitive impairment, poor communication between organizations, and costs being uncertain.
Achieving innovation at scale in the NHS
This document summarizes a presentation on achieving innovation at scale in the NHS. It was chaired by leaders in the NHS and medical fields. One presentation discussed the EPISCISSORS-60, a patented episiotomy scissors that provides a more accurate cut and has led to reductions in childbirth injuries across several UK hospitals. Another presentation discussed implementing the i-THRIVE model of care for child and adolescent mental health services, which focuses on a needs-based pathway with multi-agency involvement, community support, and shared decision making. A third presentation was about the digital health company AliveCor and its wireless electrocardiogram devices.
GAIHN: Greater Auckland Integrated HealthCare Networks
The document discusses initiatives of the Greater Auckland Integrated HealthCare Networks (GAIHN) which includes 3 DHBs, 10 PHOs, over 300 general practices, and 1.25 million enrolled patients. GAIHN is working on several projects including access to diagnostics, optimizing prescribing, clinical pathways, a regional after hours solution, and more. They are also establishing clinical alliance teams to address acute demand, long term conditions, and reducing inequalities. GAIHN supports national health IT strategies and focuses on sharing resources and information between partners through regional e-referrals, e-shared care plans, and population health repositories to improve outcomes, efficiency and patient experiences across the healthcare system.
RDD Conf Day 2: From building networks to collaboration Dev Menon/Tania Stafi...
RDD Conf Day 2: From building networks to collaboration Dev Menon/Tania Stafi...Canadian Organization for Rare Disorders
Rare Disease Day 2017 March 30 - 31, 2017 Day 2: From building networks to collaboration Dev Menon/Tania Stafinski (PRISM, University of Alberta)Compliance, Adherence, or Participation? Creating a Framework for Patient-Cli...
Compliance, Adherence, or Participation? Creating a Framework for Patient-Cli...Mighty Casey Media Inc.
The document discusses creating a framework for patient-clinician collaboration. It describes how patients are taking more active roles in their healthcare through crowdsourcing treatment options and participating in "citizen science" projects. However, the current model is still paternalistic, focusing on compliance and adherence rather than partnership. True participation requires listening to patients and engaging them as partners through shared decision making tools and access to their own health data. When clinicians form collaborative relationships with patients, it can drive improved health outcomes.Bridging the evidence-practice gap in nursing
This document discusses bridging the gap between evidence and nursing practice. It explains that evidence-based practice is important for nursing to ensure best practices. Various reasons are given for why opinion and experience alone are not sufficient for clinical decision making. The document then outlines some key aspects of evidence-based practice, including using control groups in interventions and ensuring practices are supported by evidence rather than happening by accident. Finally, it provides details on the Evidence Based Council in the UK, including its history and achievements in establishing nursing guidelines and resources to promote evidence-based care.
CNO Summit 2015 - New Care Models, Sam jones
The document summarizes the NHS Five Year Forward View and the new care models program, which aims to address challenges facing the NHS through five new care models: multispecialty community providers, integrated primary and acute care systems, acute care collaboration, enhanced health in care homes, and urgent and emergency care. It outlines the 50 vanguards selected to pioneer these new care models and the support provided to help them implement changes.
RDD Conf Day 2: Results that matter to patients and parents Lori Tucker (Brit...
RDD Conf Day 2: Results that matter to patients and parents Lori Tucker (Brit...Canadian Organization for Rare Disorders
Rare Disease Day 2017 March 30 - 31, 2017 Day 2: Research Rare Disease Day 2017 March 30 - 31, 2017 Day 2:
Results that matter to patients and parents Lori Tucker (British Columbia Children’s Hospital)
Open Education Policy for NorthEast Leadership Day
This document provides an overview of open education policy. It defines open policies as laws, rules, and actions that support openly licensed educational content. Different types of open policies discussed include funding policies, resource policies, and framework policies. The importance of open policies is explained in terms of public spending and information, efficiency, affordability, access, equity, and innovation. Examples of open education policies in higher education are presented. The document outlines actions individuals can take to advance open policies, such as raising awareness, supporting college adoption of open licensing, and reviewing promotion and tenure guidelines. Interactive activities are also described to identify policy components and barriers relevant to participants' institutions.
New Models of Care Strategy for Vanguards and Pioneers
This document summarizes a presentation on new care models in the NHS. It discusses the integrated care pioneers program involving 25 sites integrating health and social care. It also discusses the 50 vanguards developing new models of care across 5 categories. Finally, it provides an overview of the technology support offered to vanguards and pioneers in 2016/17, focusing on 7 core themes like digital strategy and information sharing.
What's hot (20)
Joyce Kenkre & Carolyn Wallace _LTC Consensus Meeting 10-Nov-2015
Joyce Kenkre & Carolyn Wallace _LTC Consensus Meeting 10-Nov-2015
Striving for Excellence, Seeking Value, Sparking a Revolution
Striving for Excellence, Seeking Value, Sparking a Revolution
Keynote address - Secretary of State for Health Jeremy Hunt
Keynote address - Secretary of State for Health Jeremy Hunt
Connected Health – The New Age Formula for Care Delivery
Connected Health – The New Age Formula for Care Delivery
GAIHN: Greater Auckland Integrated HealthCare Networks
GAIHN: Greater Auckland Integrated HealthCare Networks
RDD Conf Day 2: From building networks to collaboration Dev Menon/Tania Stafi...
RDD Conf Day 2: From building networks to collaboration Dev Menon/Tania Stafi...
Compliance, Adherence, or Participation? Creating a Framework for Patient-Cli...
Compliance, Adherence, or Participation? Creating a Framework for Patient-Cli...
RDD Conf Day 2: Results that matter to patients and parents Lori Tucker (Brit...
RDD Conf Day 2: Results that matter to patients and parents Lori Tucker (Brit...
Open Education Policy for NorthEast Leadership Day
Open Education Policy for NorthEast Leadership Day
New Models of Care Strategy for Vanguards and Pioneers
New Models of Care Strategy for Vanguards and Pioneers
Viewers also liked
An Economics Perspective on Drug Prices: Audrey Laporte (University of Toronto)
An Economics Perspective on Drug Prices: Audrey Laporte (University of Toronto)Canadian Organization for Rare Disorders
This document discusses an economics perspective on drug prices. It notes that drug development is an investment that will only occur if the revenue stream justifies costs. For small market drugs, designing a payment structure is challenging to make research attractive for companies. It provides an example of a small biopharma company developing a rare cancer drug that needs funding for later trial phases in order to continue research.Swedish National Board of Health and Welfare Mona Heurgren
Sweden uses national quality registries and national health data registries to drive quality improvement in health and social care. The registries provide data that is used at national, regional, and local levels for improvement work, monitoring, and research. Public reporting of registry data promotes transparency and encourages providers to enhance performance. While registries have helped improve outcomes, ensuring sustainable registry organizations, patient privacy, and efficient data collection remain ongoing challenges.
NOCA Marina Cronin
This document summarizes the work of the National Office of Clinical Audit (NOCA) in Ireland. NOCA establishes governance standards and manages several national clinical audits to systematically review and improve patient care. It works with hospitals and collaborators to collect reliable audit data according to HIQA standards. NOCA aims to provide accurate, timely reports to drive quality improvement decisions through its work on governance, information management, workforce training, and resource allocation.
HIQA Barbara Foley
This document discusses information management standards for national health and social care data collections in Ireland. It outlines the role of HIQA in setting health information standards and driving improvements in data quality. It also describes the current complex health information landscape in Ireland. The document proposes 10 information management standards and 5 quality improvement tools, with a focus on data quality. It details HIQA's plans for a phased review programme to assess how national data collections meet the new standards starting in 2017. The overall aim is to advance health information and ultimately improve patient safety and care.
HRB Sarah Craig
The document discusses quality in health information and data. It summarizes that quality is not just an act but a habit, as Aristotle said. It then introduces the Health Research Board (HRB) and its work with the Health Information and Quality Authority (HIQA) on various advisory groups. The rest of the document focuses on the seven dimensions of data quality according to HIQA and how HRB implements data quality practices like standardized databases, data checks, accuracy improvements, and audits. It emphasizes that data quality is important for research, evidence, action, decision-making, and ultimately better health outcomes.
NCRI Kerri Clough Gorr
The document discusses the National Cancer Registry of Ireland (NCRI), which collects cancer data on all diagnosed cases in Ireland to improve cancer outcomes. The NCRI collects individual patient experiences and combines them to determine the overall population-level cancer experience in Ireland. This data informs medical practice and health policy to improve cancer treatment and outcomes. The NCRI aims to provide comprehensive cancer data and intelligence through collecting detailed information on incidence, treatment, and survival from multiple sources to accurately tell the story of cancer in Ireland.
Viewers also liked (6)
An Economics Perspective on Drug Prices: Audrey Laporte (University of Toronto)
An Economics Perspective on Drug Prices: Audrey Laporte (University of Toronto)
Swedish National Board of Health and Welfare Mona Heurgren
Swedish National Board of Health and Welfare Mona Heurgren
Similar to Derick mitchell, IPPOSI, Rare Disease Day 2016 Presentation
NCPE Annual Training Day - March 10th 2016 - Derick Mitchell
This document summarizes a training course on patient involvement in healthcare decision-making hosted by IPPOSI, a partnership between patient groups, industry, and science in Ireland. It discusses IPPOSI's mission to bring the patient perspective to research and policy. It outlines IPPOSI's goals for patient involvement in health technology assessment, their partnership with HIQA and NCPE, and an annual HTA training for patients. It also provides examples of patient involvement in other jurisdictions and values for patient and public involvement.
Medicines Management Programme - Dr Derick Mitchell - May 16th 2016
This document provides an overview of IPPOSI, a partnership between patient groups, industry, and science that aims to bring the patient perspective to clinical research, health economics, and policy influencing medicines development and access. It discusses IPPOSI's goals of actively involving patients in decision making through regulatory bodies, health technology assessments, and adherence programs. The document also outlines IPPOSI's current partnerships and educational activities to encourage open dialogue and train stakeholders on incorporating the patient voice.
Standardising best practice and supporting clinical decision making for nurses
The document summarizes RCNi Decision Support, a clinical decision making tool created by RCNi exclusively for nurses in the UK. It provides nurses with fast access to up-to-date evidence-based guidance to support decision making when assessing and treating patients. The tool includes over 100 peer-reviewed topics across various specialties. It guides nurses through the decision making process by asking questions based on patient assessments and providing guidance on next steps. The goal is to enhance confident, competent clinical decision making within evidence-based frameworks.
Insight 2016 cork
This document discusses biobanking from the patient perspective. It provides information about IPPOSI, a partnership between patient groups, industry, and science that aims to expedite development and patient access to innovative therapies. IPPOSI receives funding from the Irish Department of Health and industry membership fees. It also discusses the role of "patient experts" who are trained by IPPOSI and EUPATI on clinical research, health technology assessment, and other topics to disseminate information. The document outlines IPPOSI's involvement with BBMRI to include the patient perspective in biobanking initiatives and form research partnerships. It notes challenges with patient consent, data management, and costs for patient registries and the potential for legislation to mandate
The IPPOSI-HRCI Drug Iceberg Report
On 14 November 2019, our Research and Advocacy Manager, Laura Kavanagh delivered this presentation on ‘the Drug Iceberg report’ to participants at the Retina Roundtable. The Roundtable kicked off a three-day conference around the topic of ‘Evidence Generation for Access to Innovative Therapies’. IPPOSI was asked to outline the access to medicine challenges faced by patients in Ireland, including the health technology assessment (HTA) and post-HTA processes.
Patient safety collaboratives
Improving quality, safety and lives - the Patient Safety Collaborative Programme 2014-2019
Presentation from Chief Nursing Officer for England's Summit 2014
26 November 2014
PPPI - the involvement of patients or people in the design and development o...
Dr Jean Saunders, University of Limerick, and IPPOSI Board Member (Science) presents at the 5th World Congress on Advanced Clinical Trials and Clinical Research on public and patient involvement in clinical trials.
UCD Rare Disease Module 2017 - Dr Derick Mitchell - March 28th 2017
Medical students taking the elective course in rare diseases are provided a number of patient perspectives throughout the module. This is what IPPOSI presented in 2017.
Derick mitchell
This document summarizes discussions from an IPPOSI (Influencing Policy, Activating Patients, Harnessing Industry) event on patient involvement in health innovation.
IPPOSI works to put patients at the heart of health innovation by advocating for improved patient access to innovation, promoting meaningful patient involvement in research and policy, and providing resources to inform, engage, and empower patients. The EUPATI program trains patients to become experts in medicines research and development. National platforms in 18 countries disseminate EUPATI's training materials. As a result of EUPATI training, patients increasingly take on leadership roles advising industry, regulators, and other groups.
The document discusses frameworks for patient involvement throughout the
Health information Seminar - Dr Derick Mitchell - Oct 2017
This document summarizes discussions from an IPPOSI (Influencing Policy, Activating Patients, Harnessing Industry) event on patient involvement in health innovation.
IPPOSI is a patient-led organization that advocates for improved patient access to health innovation by promoting meaningful patient involvement in health research and policy. The event discussed how patient voices are changing health innovation through surveys and the EUPATI program which trains patients as experts in medical research. National platforms in many European countries have been established through EUPATI to address educational needs and disseminate training. Patient roles and leadership have increased as a result of the EUPATI course. A roadmap was presented on how patients can be involved at different stages of the
PPI Conference Galway April 2017 - Dr Derick Mitchell
This document summarizes the work of IPPOSI, a patient-led organization in Ireland that advocates for meaningful patient involvement in health research and policy. It discusses IPPOSI's priorities such as advocating for improved patient access to health innovation and promoting patient involvement in research and policy. It also outlines IPPOSI's activities like workshops and conferences. The document notes IPPOSI's role in several national initiatives in Ireland relating to mental health, clinical research, and health policy. It discusses the impact of the EUPATI training course in building patient leadership capacity in Ireland and other European countries.
Cathy Seguin, Vice President, International Affairs, SickKids Toronto
The document discusses Canada's integrated healthcare system and SickKids' role within it.
- Canada has a publicly funded healthcare system composed of 13 provincial plans that share common features like universal coverage. The federal government provides funding to provinces who are responsible for delivering services.
- SickKids is a specialized children's hospital in Toronto that provides tertiary care, research, and education. It aims to improve children's health through an integrated model across these areas.
AHSN NENC Stakeholder Engagement Event, 11th February 2014: Presentation slides
‘Collaborating for Better Care’ – Regional Stakeholder Conference, 11th February 2014
Presentation slides from morning plenary session
Improving mental health through patient and professional partnership
Slides from the session at the International Forum on Quality and Safety in Healthcare 2016 (Gothenburg) - Improving mental health through patient and professional partnerships
1455 ed marsden slides 050315
This document discusses independent investigations into healthcare incidents and the benefits they provide. It notes that independent investigations gather evidence from a wide range of impartial sources to produce objective findings without pressure from those who commissioned the investigation. The triggers for an independent investigation include the severity of the outcome, public interest, an organization's capacity for self-investigation, and views of families. Benefits include a thorough fact-finding, recommendations to support improvement, and giving families an unbiased account. However, risks include an unconvincing report or unexpected outcomes. Parallel investigations with law enforcement are allowed in the UK and can benefit patient safety and families.
IPPOSI Patient Education Programme - 2017/2018 pilot
A presentation delivered by IPPOSI CEO, Derick Mitchell at a conference organised by the Clinical Research Facility, St. James's Hospital, Dublin, May 2018
November 2023 Industry Round Table - Sessions 1 and 2
The document summarizes an industry roundtable event hosted by Janssen Ireland on November 29, 2023. The half-day event included presentations on advanced therapeutic medicines, medical devices, and combination medicines from various speakers. It also included a discussion on reforming Ireland's medicines assessment and reimbursement process led by David McMahon and a review of IPPOSI's draft training program led by Derick Mitchell and Laura Kavanagh. IPPOSI is an organization that works to put patients at the heart of health innovation through various education, advocacy, and partnership activities. The roundtable brought together representatives from industry, government, and patient organizations to discuss innovations in treatments and reforms needed to Ireland's process for assessing and reimbursing new
CHESS Connected Health training network - Derick Mitchell - August 2016
Patient-led organizations can play an important role in health research by providing the patient perspective. Training programs help develop "expert patients" who understand the research process and can actively partner with researchers. The EUPATI program has trained over 100 patient experts across Europe to collaborate in academic research, industry research, and regulatory committees. Their involvement aims to make research more relevant to patients' real needs and lives.
Clinical Trials Event , Mansion House, Dublin, 10052018
A presentation delivered by Derick Mitchell, IPPOSI CEO at the event to celebrate International Clinical Trials Day on May 10th, 2018 in the Mansion House, Dublin, organised by HRB-CRCI.
Integration Pioneers workshop 3 December 2013
This workshop brought together, for the first time, the pioneers and the partner organisations of the Integrated Care and Support programme. It focused on building a learning community that will help develop, share and spread knowledge and solutions at scale and pace across the country.
More information: http://www.nhsiq.nhs.uk/news-events/events/integrated-care-and-support-pioneers-inaugural-workshop.aspx
More about the integrated care and support pioneers programme: http://www.nhsiq.nhs.uk/7862.aspx
Similar to Derick mitchell, IPPOSI, Rare Disease Day 2016 Presentation (20)
NCPE Annual Training Day - March 10th 2016 - Derick Mitchell
NCPE Annual Training Day - March 10th 2016 - Derick Mitchell
Medicines Management Programme - Dr Derick Mitchell - May 16th 2016
Medicines Management Programme - Dr Derick Mitchell - May 16th 2016
Standardising best practice and supporting clinical decision making for nurses
Standardising best practice and supporting clinical decision making for nurses
PPPI - the involvement of patients or people in the design and development o...
PPPI - the involvement of patients or people in the design and development o...
UCD Rare Disease Module 2017 - Dr Derick Mitchell - March 28th 2017
UCD Rare Disease Module 2017 - Dr Derick Mitchell - March 28th 2017
Health information Seminar - Dr Derick Mitchell - Oct 2017
Health information Seminar - Dr Derick Mitchell - Oct 2017
PPI Conference Galway April 2017 - Dr Derick Mitchell
PPI Conference Galway April 2017 - Dr Derick Mitchell
Cathy Seguin, Vice President, International Affairs, SickKids Toronto
Cathy Seguin, Vice President, International Affairs, SickKids Toronto
AHSN NENC Stakeholder Engagement Event, 11th February 2014: Presentation slides
AHSN NENC Stakeholder Engagement Event, 11th February 2014: Presentation slides
Improving mental health through patient and professional partnership
Improving mental health through patient and professional partnership
IPPOSI Patient Education Programme - 2017/2018 pilot
IPPOSI Patient Education Programme - 2017/2018 pilot
November 2023 Industry Round Table - Sessions 1 and 2
November 2023 Industry Round Table - Sessions 1 and 2
CHESS Connected Health training network - Derick Mitchell - August 2016
CHESS Connected Health training network - Derick Mitchell - August 2016
Clinical Trials Event , Mansion House, Dublin, 10052018
Clinical Trials Event , Mansion House, Dublin, 10052018
Recently uploaded
8 Surprising Reasons To Meditate 40 Minutes A Day That Can Change Your Life.pptx
8 Surprising Reasons To Meditate 40 Minutes A Day That Can Change Your Life.pptxHolistified Wellness
We’re talking about Vedic Meditation, a form of meditation that has been around for at least 5,000 years. Back then, the people who lived in the Indus Valley, now known as India and Pakistan, practised meditation as a fundamental part of daily life. This knowledge that has given us yoga and Ayurveda, was known as Veda, hence the name Vedic. And though there are some written records, the practice has been passed down verbally from generation to generation.Clinic ^%[+27633867063*Abortion Pills For Sale In Tembisa Central
Clinic ^%[+27633867063*Abortion Pills For Sale In Tembisa Central Clinic ^%[+27633867063*Abortion Pills For Sale In Tembisa CentralClinic ^%[+27633867063*Abortion Pills For Sale In Tembisa CentralClinic ^%[+27633867063*Abortion Pills For Sale In Tembisa CentralClinic ^%[+27633867063*Abortion Pills For Sale In Tembisa Central
Artificial Intelligence Symposium (THAIS)
Artificial Intelligence Symposium (THAIS). Parc Taulí. Sabadell
The Nervous and Chemical Regulation of Respiration
These lecture slides, by Dr Sidra Arshad, offer a simplified look into the mechanisms involved in the regulation of respiration:
Learning objectives:
1. Describe the organisation of respiratory center
2. Describe the nervous control of inspiration and respiratory rhythm
3. Describe the functions of the dorsal and respiratory groups of neurons
4. Describe the influences of the Pneumotaxic and Apneustic centers
5. Explain the role of Hering-Breur inflation reflex in regulation of inspiration
6. Explain the role of central chemoreceptors in regulation of respiration
7. Explain the role of peripheral chemoreceptors in regulation of respiration
8. Explain the regulation of respiration during exercise
9. Integrate the respiratory regulatory mechanisms
10. Describe the Cheyne-Stokes breathing
Study Resources:
1. Chapter 42, Guyton and Hall Textbook of Medical Physiology, 14th edition
2. Chapter 36, Ganong’s Review of Medical Physiology, 26th edition
3. Chapter 13, Human Physiology by Lauralee Sherwood, 9th edition
Histopathology of Rheumatoid Arthritis: Visual treat
Histopathology of Rheumatoid Arthritis: Visual treat
Local Advanced Lung Cancer: Artificial Intelligence, Synergetics, Complex Sys...
Overall life span (LS) was 1671.7±1721.6 days and cumulative 5YS reached 62.4%, 10 years – 50.4%, 20 years – 44.6%. 94 LCP lived more than 5 years without cancer (LS=2958.6±1723.6 days), 22 – more than 10 years (LS=5571±1841.8 days). 67 LCP died because of LC (LS=471.9±344 days). AT significantly improved 5YS (68% vs. 53.7%) (P=0.028 by log-rank test). Cox modeling displayed that 5YS of LCP significantly depended on: N0-N12, T3-4, blood cell circuit, cell ratio factors (ratio between cancer cells-CC and blood cells subpopulations), LC cell dynamics, recalcification time, heparin tolerance, prothrombin index, protein, AT, procedure type (P=0.000-0.031). Neural networks, genetic algorithm selection and bootstrap simulation revealed relationships between 5YS and N0-12 (rank=1), thrombocytes/CC (rank=2), segmented neutrophils/CC (3), eosinophils/CC (4), erythrocytes/CC (5), healthy cells/CC (6), lymphocytes/CC (7), stick neutrophils/CC (8), leucocytes/CC (9), monocytes/CC (10). Correct prediction of 5YS was 100% by neural networks computing (error=0.000; area under ROC curve=1.0).
Top Travel Vaccinations in Manchester
Travel vaccination in Manchester offers comprehensive immunization services for individuals planning international trips. Expert healthcare providers administer vaccines tailored to your destination, ensuring you stay protected against various diseases. Conveniently located clinics and flexible appointment options make it easy to get the necessary shots before your journey. Stay healthy and travel with confidence by getting vaccinated in Manchester. Visit us: www.nxhealthcare.co.uk
Osteoporosis - Definition , Evaluation and Management .pdf
Osteoporosis is an increasing cause of morbidity among the elderly.
In this document , a brief outline of osteoporosis is given , including the risk factors of osteoporosis fractures , the indications for testing bone mineral density and the management of osteoporosis
All info about Diabetes and how to control it.
One health condition that is becoming more common day by day is diabetes.
According to research conducted by the National Family Health Survey of India, diabetic cases show a projection which might increase to 10.4% by 2030.
Recently uploaded (20)
8 Surprising Reasons To Meditate 40 Minutes A Day That Can Change Your Life.pptx
8 Surprising Reasons To Meditate 40 Minutes A Day That Can Change Your Life.pptx
Tests for analysis of different pharmaceutical.pptx
Tests for analysis of different pharmaceutical.pptx
Clinic ^%[+27633867063*Abortion Pills For Sale In Tembisa Central
Clinic ^%[+27633867063*Abortion Pills For Sale In Tembisa Central
The Nervous and Chemical Regulation of Respiration
The Nervous and Chemical Regulation of Respiration
Ear and its clinical correlations By Dr. Rabia Inam Gandapore.pptx
Ear and its clinical correlations By Dr. Rabia Inam Gandapore.pptx
Histopathology of Rheumatoid Arthritis: Visual treat
Histopathology of Rheumatoid Arthritis: Visual treat
Local Advanced Lung Cancer: Artificial Intelligence, Synergetics, Complex Sys...
Local Advanced Lung Cancer: Artificial Intelligence, Synergetics, Complex Sys...
Osteoporosis - Definition , Evaluation and Management .pdf
Osteoporosis - Definition , Evaluation and Management .pdf
CHEMOTHERAPY_RDP_CHAPTER 6_Anti Malarial Drugs.pdf
CHEMOTHERAPY_RDP_CHAPTER 6_Anti Malarial Drugs.pdf
Derick mitchell, IPPOSI, Rare Disease Day 2016 Presentation
- 1. February 29th, 2016 Rare Disease Day 2016 Derick Mitchell
- 2. I #rarediseaseday “It’s rare when you have everything going perfectly all at the same time” Sigourney Weaver
- 3. What we know…. • Irish health system is unique + requires an Irish solution • 2014: 9 ODs assessed, majority eventually approved • High budget impact = decisions take longer • No funding process in place
- 4. What we don’t know….. • What the final decisions are based on? • How many ODs are currently available in Ireland? • What reimbursement of ODs actually costs? • How ODs are being prescribed/monitored?
- 5. IPPOSI views • Separate assessment system with different criteria for assessing OD in Ireland • Criteria should consider • where patient perspective can be incorporated • the cost to the state of not treating someone • Transparency and Communication
- 7. Active Partnership with HIQA + NCPE • HIQA have patient involvement on the advisory board of individual HTAs • Annual HTA Training for patients through IPPOSI • Acknowledgement that data provided by patient organisations is invaluable to NCPE assessments • Irish patient groups exploring measuring patient outcomes with the NCPE
- 8. Irish National Platform • John Dowling, Men Against Cancer • Caitriona Dunne, Fighting Blindness • Joan Jordan, MS Ireland • Katie Murphy, CF Ireland • Rachel Lynch, FibroIreland • Damien Peelo, COPD Support Ireland • Julie Power, Vasculitis Ireland Awareness • Sharon Thompson, Rare Dis. + Palliative care 8 Irish Trainees The project is receiving support from the Innovative Medicines Initiative Joint Undertaking under grant agreement n° 115334, resources of which are composed of financial contribution from the European Union's Seventh Framework Programme (FP7/2007-2013) and EFPIA companies.
- 9. I #rarediseaseday “May you live in interesting times”