This document discusses the increasing use of the internet for health information and the challenges of quality and reliability. It summarizes the work of the Health On the Net Foundation (HON) in establishing standards for health websites through the HONcode certification process. HON reviews websites and ensures they meet principles of transparency, attribution, justifiability, and privacy. Over 8,000 certified sites across 102 countries have been indexed by HON. The certification gives users confidence in the reliability of health information found on certified websites.
Access to oral health care services around the world is limited by a lack of universal coverage. The internet and social media can be an important source for patients to access supplementary oral health related information
Access to oral health care services around the world is limited by a lack of universal coverage. The internet and social media can be an important source for patients to access supplementary oral health related information
The Internet and Health: Controversies and OpportunitiesIgnacio Basagoiti
In the present article we tried to approach the phenomenon of the access online to the sanitary information on the part of the citizens, its importance and utility, but also the problems which one faces and the possible solutions to consider.
XX in Health Week 2013 SF Mixer at Practice FusionLauren Fifield
Exploring the concept of the expert, how newcomers have transformed other industries, the role of the newcomer in healthcare, and how we can actively engage talent to enter our industry.
Healthcare and Social Media: An overview of how leading healthcare brands are using social media.
Marketers in regulated industries are finding it challenging to leverage the full power of social media and are awaiting guidance on Internet and social media from the FDA. This report is an overview to demonstrate how leading healthcare brands are using social media marketing today.
Healthcare Social Networking: Is Pharma Ready to Join the Conversation?Len Starnes
A pragmatic assessment of the impact of social networking on pharma marketing & sales. Includes analyses of HCPs' social networks, consumer/patient social networks and the convergence of PR with SEO and SEM. Presented at conferences in Zurich, Shanghai and Boston during 2008. This version presented at EyeforPharma's
E-Communications and Online Marketing Summit, Boston, 2008.
Social Media and Medicine: Fad or Shift?Gregg Masters
A social media tutorial for client medical group, including details on physician immersion in the broadly cast "digital health channel'. Some key trends in digital health, including both primary and secondary market research are recapped to suggest certain forward implications for a 'cloud based web presence'. Is social media a fad, I don't think empirical evidence would suggest such a conclusion.
EHRs, PHRs, EMRs: Making Sense of the Alphabet SoupCHI*Atlanta
CHI*Atlanta's October program tackles health records and the potential of user experience to improve their adoption. Panelists include CDC, Kaiser Permanente, and Greenway Technologies. Hosted at Philips Design to cover public, private, and vendor perspectives.
Doctors in social media: the story so far, with Creation Pinpoint (slides)CREATION
Today we are seeing an explosion in doctors using public social media channels to talk with each other about clinical and practice matters. In this webcast, Daniel Ghinn presents some milestones in doctors' use of social media from recent years and reveals first-time insights from millions of analysed conversations between doctors online using Creation Pinpoint.
Also available as video webcast here: http://www.slideshare.net/CreationHealthcare/doctors-in-social-media-the-story-so-far
The Internet and Health: Controversies and OpportunitiesIgnacio Basagoiti
In the present article we tried to approach the phenomenon of the access online to the sanitary information on the part of the citizens, its importance and utility, but also the problems which one faces and the possible solutions to consider.
XX in Health Week 2013 SF Mixer at Practice FusionLauren Fifield
Exploring the concept of the expert, how newcomers have transformed other industries, the role of the newcomer in healthcare, and how we can actively engage talent to enter our industry.
Healthcare and Social Media: An overview of how leading healthcare brands are using social media.
Marketers in regulated industries are finding it challenging to leverage the full power of social media and are awaiting guidance on Internet and social media from the FDA. This report is an overview to demonstrate how leading healthcare brands are using social media marketing today.
Healthcare Social Networking: Is Pharma Ready to Join the Conversation?Len Starnes
A pragmatic assessment of the impact of social networking on pharma marketing & sales. Includes analyses of HCPs' social networks, consumer/patient social networks and the convergence of PR with SEO and SEM. Presented at conferences in Zurich, Shanghai and Boston during 2008. This version presented at EyeforPharma's
E-Communications and Online Marketing Summit, Boston, 2008.
Social Media and Medicine: Fad or Shift?Gregg Masters
A social media tutorial for client medical group, including details on physician immersion in the broadly cast "digital health channel'. Some key trends in digital health, including both primary and secondary market research are recapped to suggest certain forward implications for a 'cloud based web presence'. Is social media a fad, I don't think empirical evidence would suggest such a conclusion.
EHRs, PHRs, EMRs: Making Sense of the Alphabet SoupCHI*Atlanta
CHI*Atlanta's October program tackles health records and the potential of user experience to improve their adoption. Panelists include CDC, Kaiser Permanente, and Greenway Technologies. Hosted at Philips Design to cover public, private, and vendor perspectives.
Doctors in social media: the story so far, with Creation Pinpoint (slides)CREATION
Today we are seeing an explosion in doctors using public social media channels to talk with each other about clinical and practice matters. In this webcast, Daniel Ghinn presents some milestones in doctors' use of social media from recent years and reveals first-time insights from millions of analysed conversations between doctors online using Creation Pinpoint.
Also available as video webcast here: http://www.slideshare.net/CreationHealthcare/doctors-in-social-media-the-story-so-far
In the age of internet and social media, Dr. Carl Abelardo Antonio teaches us how to evaluate online health resources so we can tell which of them is gold and which of them is junk.
Chapter 12 Consumer Health InformaticsWILLIAM R. HERSHM. CH.docxbartholomeocoombs
Chapter 12: Consumer Health Informatics
WILLIAM R. HERSH
M. CHRIS GIBBONS
YAHYA SHAIHK
ROBERT E. HOYT
Learning Objectives
After reviewing the presentation, viewers should be able to:
Identify the origins of consumer health informatics (CHI)
Discuss consumer health informatics tools
Enumerate the features and format of personal health records
Identify patient to physician electronic communication tools
Outline CHI barriers and challenges
Discuss future trends of CHI
Clearly, consumers (patients) are interested in technology as a means to improve access to medical care, improve communication with physicians and others and generally streamline the healthcare process
Consumer health informatics emerged with the confluence of widespread availability of the Internet and online information resources with the consumer movement that aimed to empower those who were ill (patients) and not yet ill (consumers) with information to maintain and improve their health as well as engage in the treatment of their disease
Introduction
Origins of CHI
Creation of the Internet in 1994 opened the door to consumers searching for medical information
Chronic diseases are on the rise and the population is aging; thereby increasing the need for more information and more tools
It has been known for over a decade that consumers want access to their health information online. A study by Deloitte in 2008 found that 60% of individuals surveyed wanted physicians to provide online access to their medical records and test results as well as online appointment scheduling
e-Health Era
Consumers want to interact directly with the healthcare system online
One important consumer health application is the personal health record (PHR)
The Markle Foundation provided an early definition of PHR in 2004, defining it as “an electronic application through which individuals can access, manage, and share their health information, and that of others for whom they are authorized, in a private, secure, and confidential environment”
Tang 2006 categorized three types of PHRs:
The tethered PHR, which is an extension of the healthcare provider’s EHR
The standalone PHR, which is an isolated application. It may be on a mobile device or a website
The interconnected or integrated PHR. This is a separate application, but it has the ability to interact with one or possibly more provider EHRs.
Types of PHR
The tethered PHR
Patient Access to EHR
OpenNotes aims to provide patients with access to the entirety of their medical record, including clinical notes (Delbanco 2010). OpenNotes was initially implemented in three academic centers across the US
There is growing consensus that patients should be the owners and stewards of their personal health and healthcare data (Hersh 2017). Current systems do not facilitate this point of view, as data is for the most part stored in the siloed EHR and other systems of the places where they obtain care.
Overview of Health Informatics: survey of fundamentals of health information technology, Identify the forces behind health informatics, educational and career opportunities in health informatics.
In these slides, I briefly outline how the Internet is changing healthcare by empowering the consumer and the e-patient. We look at data and examples from the USA and Europe, and consider the impact of ratings websites, online health records, and the way in which doctors are responding to the e-patient.
Information systems for health decision making - a citizen's perspectiveErdem Yazganoglu
We make health decisions everyday. We get our information from the Internet. As a society we are investing large amounts of funding for the health information systems. In this presentation, I tried to look from the perspective of a citizen and tried bringing a different perspective.
Publicado originalmente en http://www.slideshare.net/EugeneBorukhovich/open-health-data-qualitative-overview
Extraordinaria presentación sobre la aplicación de Open Data en Salud ejemplos y casos de éxito en varios paises.
This qualitative overview of the Open Health Data initiatives is meant to showcase the importance of open health data, social as well as economic impacts across US, UK and a select set of Western European countries. This overview is not meant to be a comprehensive report on all the global initiatives, funding models and tracking of open health data. There are tremendous efforts across the globe to change our global healthcare system and we believe that open health data is one of the keys to bridge the gap between digital citizens & governments. Also, please note that if your country, initiative or product was not mentioned, it is in no way meant to diminish the impact of the efforts. Please feel free to share, discuss and contribute to the list of ongoing efforts and initiatives on one of our global communities or on openhealthdata.org.
M. Chris Gibbons - Health IT and Healthcare DisparitiesPlain Talk 2015
"Health IT and Healthcare Disparities" was presented at the Center for Health Literacy Conference 2011: Plain Talk in Complex Times by M. Chris Gibbons, MD, MPH, Associate Director, Johns Hopkins Urban Health Institute.
Description: This presenter will discuss the use of technology and consumer health information to improve healthcare disparities.
Low Functional health literacy is a problem affecting 90 million residents of the United States. Among the 90 million, 36% are adults who have “below basic” health literacy skills. Assessing health literacy is important in improving health behaviors, health outcomes, and perceived communication barriers related to health. The Patient Protection and Affordable Care Act enacted in 2010 brought about changes that demand a more coordinated approach to manage health care services. This research focused on the efforts being made to promote health literacy at Medicaid health homes such as Greater Buffalo United Accountable Healthcare Network (GBUAHN). This research consisted of observation of Patient Health Navigator interactions with patients in order to identify best practices of health literacy initiatives within GBUAHN. Results suggest best practices include promoting and establishing relationship to effectively enhance patients understanding of all their healthcare needs. This study suggests that GBUAHN should continue making use of recommendations related health literacy promotion while exploring areas of improvement as noted on scorecard. Patient Health Navigators are engaging patient in manner that will establish adherence within patients.
Patients Rising: How to Reach Empowered, Digital Health Consumerse-Patient Connections
Kru Research's white paper discussing how to reach out to empowered, digital, health consumers or e-Patients. Discussion of participatory medicine, digital health consumers, e-Patients, web 2.0, the power of social media, ROI of social media, regulatory concerns, HIPAA, FDA, adverse event reporting, and the future of social media in health marketing.
Similar to Célia Boyer pour la journée e-health 2013 (20)
New Drug Discovery and Development .....NEHA GUPTA
The "New Drug Discovery and Development" process involves the identification, design, testing, and manufacturing of novel pharmaceutical compounds with the aim of introducing new and improved treatments for various medical conditions. This comprehensive endeavor encompasses various stages, including target identification, preclinical studies, clinical trials, regulatory approval, and post-market surveillance. It involves multidisciplinary collaboration among scientists, researchers, clinicians, regulatory experts, and pharmaceutical companies to bring innovative therapies to market and address unmet medical needs.
- Video recording of this lecture in English language: https://youtu.be/lK81BzxMqdo
- Video recording of this lecture in Arabic language: https://youtu.be/Ve4P0COk9OI
- Link to download the book free: https://nephrotube.blogspot.com/p/nephrotube-nephrology-books.html
- Link to NephroTube website: www.NephroTube.com
- Link to NephroTube social media accounts: https://nephrotube.blogspot.com/p/join-nephrotube-on-social-media.html
Ozempic: Preoperative Management of Patients on GLP-1 Receptor Agonists Saeid Safari
Preoperative Management of Patients on GLP-1 Receptor Agonists like Ozempic and Semiglutide
ASA GUIDELINE
NYSORA Guideline
2 Case Reports of Gastric Ultrasound
Ethanol (CH3CH2OH), or beverage alcohol, is a two-carbon alcohol
that is rapidly distributed in the body and brain. Ethanol alters many
neurochemical systems and has rewarding and addictive properties. It
is the oldest recreational drug and likely contributes to more morbidity,
mortality, and public health costs than all illicit drugs combined. The
5th edition of the Diagnostic and Statistical Manual of Mental Disorders
(DSM-5) integrates alcohol abuse and alcohol dependence into a single
disorder called alcohol use disorder (AUD), with mild, moderate,
and severe subclassifications (American Psychiatric Association, 2013).
In the DSM-5, all types of substance abuse and dependence have been
combined into a single substance use disorder (SUD) on a continuum
from mild to severe. A diagnosis of AUD requires that at least two of
the 11 DSM-5 behaviors be present within a 12-month period (mild
AUD: 2–3 criteria; moderate AUD: 4–5 criteria; severe AUD: 6–11 criteria).
The four main behavioral effects of AUD are impaired control over
drinking, negative social consequences, risky use, and altered physiological
effects (tolerance, withdrawal). This chapter presents an overview
of the prevalence and harmful consequences of AUD in the U.S.,
the systemic nature of the disease, neurocircuitry and stages of AUD,
comorbidities, fetal alcohol spectrum disorders, genetic risk factors, and
pharmacotherapies for AUD.
Couples presenting to the infertility clinic- Do they really have infertility...Sujoy Dasgupta
Dr Sujoy Dasgupta presented the study on "Couples presenting to the infertility clinic- Do they really have infertility? – The unexplored stories of non-consummation" in the 13th Congress of the Asia Pacific Initiative on Reproduction (ASPIRE 2024) at Manila on 24 May, 2024.
New Directions in Targeted Therapeutic Approaches for Older Adults With Mantl...i3 Health
i3 Health is pleased to make the speaker slides from this activity available for use as a non-accredited self-study or teaching resource.
This slide deck presented by Dr. Kami Maddocks, Professor-Clinical in the Division of Hematology and
Associate Division Director for Ambulatory Operations
The Ohio State University Comprehensive Cancer Center, will provide insight into new directions in targeted therapeutic approaches for older adults with mantle cell lymphoma.
STATEMENT OF NEED
Mantle cell lymphoma (MCL) is a rare, aggressive B-cell non-Hodgkin lymphoma (NHL) accounting for 5% to 7% of all lymphomas. Its prognosis ranges from indolent disease that does not require treatment for years to very aggressive disease, which is associated with poor survival (Silkenstedt et al, 2021). Typically, MCL is diagnosed at advanced stage and in older patients who cannot tolerate intensive therapy (NCCN, 2022). Although recent advances have slightly increased remission rates, recurrence and relapse remain very common, leading to a median overall survival between 3 and 6 years (LLS, 2021). Though there are several effective options, progress is still needed towards establishing an accepted frontline approach for MCL (Castellino et al, 2022). Treatment selection and management of MCL are complicated by the heterogeneity of prognosis, advanced age and comorbidities of patients, and lack of an established standard approach for treatment, making it vital that clinicians be familiar with the latest research and advances in this area. In this activity chaired by Michael Wang, MD, Professor in the Department of Lymphoma & Myeloma at MD Anderson Cancer Center, expert faculty will discuss prognostic factors informing treatment, the promising results of recent trials in new therapeutic approaches, and the implications of treatment resistance in therapeutic selection for MCL.
Target Audience
Hematology/oncology fellows, attending faculty, and other health care professionals involved in the treatment of patients with mantle cell lymphoma (MCL).
Learning Objectives
1.) Identify clinical and biological prognostic factors that can guide treatment decision making for older adults with MCL
2.) Evaluate emerging data on targeted therapeutic approaches for treatment-naive and relapsed/refractory MCL and their applicability to older adults
3.) Assess mechanisms of resistance to targeted therapies for MCL and their implications for treatment selection
Knee anatomy and clinical tests 2024.pdfvimalpl1234
This includes all relevant anatomy and clinical tests compiled from standard textbooks, Campbell,netter etc..It is comprehensive and best suited for orthopaedicians and orthopaedic residents.
Prix Galien International 2024 Forum ProgramLevi Shapiro
June 20, 2024, Prix Galien International and Jerusalem Ethics Forum in ROME. Detailed agenda including panels:
- ADVANCES IN CARDIOLOGY: A NEW PARADIGM IS COMING
- WOMEN’S HEALTH: FERTILITY PRESERVATION
- WHAT’S NEW IN THE TREATMENT OF INFECTIOUS,
ONCOLOGICAL AND INFLAMMATORY SKIN DISEASES?
- ARTIFICIAL INTELLIGENCE AND ETHICS
- GENE THERAPY
- BEYOND BORDERS: GLOBAL INITIATIVES FOR DEMOCRATIZING LIFE SCIENCE TECHNOLOGIES AND PROMOTING ACCESS TO HEALTHCARE
- ETHICAL CHALLENGES IN LIFE SCIENCES
- Prix Galien International Awards Ceremony
Lung Cancer: Artificial Intelligence, Synergetics, Complex System Analysis, S...Oleg Kshivets
RESULTS: Overall life span (LS) was 2252.1±1742.5 days and cumulative 5-year survival (5YS) reached 73.2%, 10 years – 64.8%, 20 years – 42.5%. 513 LCP lived more than 5 years (LS=3124.6±1525.6 days), 148 LCP – more than 10 years (LS=5054.4±1504.1 days).199 LCP died because of LC (LS=562.7±374.5 days). 5YS of LCP after bi/lobectomies was significantly superior in comparison with LCP after pneumonectomies (78.1% vs.63.7%, P=0.00001 by log-rank test). AT significantly improved 5YS (66.3% vs. 34.8%) (P=0.00000 by log-rank test) only for LCP with N1-2. Cox modeling displayed that 5YS of LCP significantly depended on: phase transition (PT) early-invasive LC in terms of synergetics, PT N0—N12, cell ratio factors (ratio between cancer cells- CC and blood cells subpopulations), G1-3, histology, glucose, AT, blood cell circuit, prothrombin index, heparin tolerance, recalcification time (P=0.000-0.038). Neural networks, genetic algorithm selection and bootstrap simulation revealed relationships between 5YS and PT early-invasive LC (rank=1), PT N0—N12 (rank=2), thrombocytes/CC (3), erythrocytes/CC (4), eosinophils/CC (5), healthy cells/CC (6), lymphocytes/CC (7), segmented neutrophils/CC (8), stick neutrophils/CC (9), monocytes/CC (10); leucocytes/CC (11). Correct prediction of 5YS was 100% by neural networks computing (area under ROC curve=1.0; error=0.0).
CONCLUSIONS: 5YS of LCP after radical procedures significantly depended on: 1) PT early-invasive cancer; 2) PT N0--N12; 3) cell ratio factors; 4) blood cell circuit; 5) biochemical factors; 6) hemostasis system; 7) AT; 8) LC characteristics; 9) LC cell dynamics; 10) surgery type: lobectomy/pneumonectomy; 11) anthropometric data. Optimal diagnosis and treatment strategies for LC are: 1) screening and early detection of LC; 2) availability of experienced thoracic surgeons because of complexity of radical procedures; 3) aggressive en block surgery and adequate lymph node dissection for completeness; 4) precise prediction; 5) adjuvant chemoimmunoradiotherapy for LCP with unfavorable prognosis.
1. www.healthonnet.org
Célia Boyer
Executive Director
La vision d’une ONG
When the quality of health information matters:
Health on the Net is the Quality Standard for
Information You can Trust
Celia Boyer, Executive Director
Health On the Net Foundation, Geneva, Switzerland
Sierre, June the 7th, 2013
Celia.Boyer@HealthOnNet.org
2. www.healthonnet.org
Health information online : a reality or a myth
The Internet is a mainstream media? 10 years ago, 608 million
people reported using the Internet worldwide. Today, that figure is
2.4 billion people.
In 2012, 79% of the Swiss population has used the Internet
Looking for health info is the 3rd most common activity
80% American internet users have searched for at least 1 of 17
health topics.
84% of respondents in a Swiss survey always look for health
information on the Internet
Patients with chronic diseases are increasingly using the Internet
more as an aid to their choice of therapy, but only 15% said they
check
2
1 Bundesamt für Statistik
2 Swisscom 2011
3 E-patients With a Disability or Chronic Disease,
Oct. 2007, Pew internet & American Life project
4. www.healthonnet.org
World Health Assembly resolution on
eHealth standardization and Internet domain names
May 27, 2013
Delegates approved a resolution on eHealth standardization and
interoperability. Member States noted the importance of standardized,
accurate, timely data and health information to the functioning of health
systems and services, while also highlighting that the security of this
information, and privacy of personal clinical data, must be protected.
The resolution further emphasizes that health-related global top-level
domain names, including “.health”, should be operated in a way that
protects public health and is consistent with global public health
objectives, and that names and acronyms of intergovernmental
organizations, including WHO, be protected in the Internet Domain Name
System.
4
6. www.healthonnet.org
[1] Cyberchondria: Studies of the Escalation of Medical Concerns in Web Search, Microsoft, Dec
2008
What are the main problems in using the Internet for
health?
Background
Overload with information quantity
Lack of skills to judge the information quality
“Seen on Internet” seems to be a sign of quality
Outcomes
Decision based on inadequate information
Increased anxiety after consulting the Internet for health information
Growing physician mistrust
7. www.healthonnet.org
The Health On the Net
Mission: HON guides Internet users by highlighting reliable,
comprehensible, relevant and trustworthy sources of online health
and medical information, tackling the major obstacle of Web:
the overwhelming quantity of information
the uneven quality of health information available online
7
8. www.healthonnet.org
The Health On the Net Foundation: History
1996
1995
International Working Conference on
the Use of Internet and World-Wide
Web for Telematics in Healthcare
State of Geneva… European Commission… Haute Autorité de Santé …
2002
NGO status
granted by the
United Nations
2004
eEurope Award
eHealth
2007, France
Official certification
body of all French
health websites
ISO
2010
ISO TC 215
Health
Informatics
13. www.healthonnet.org
Health site of quality is possible only on
the voluntary respect of ethical rules
based on the transparency of the
information.
13
14. www.healthonnet.org
The HONcode Certification
THE PROCESS
The HONcode certification is requested by the Web publisher with
a self-evaluation step
The HONcode Review Committee conducts a thorough inspection
and provide recommendations
Transparency of the certification: excerpts of proof
Deliver the HONcode seal
16. www.healthonnet.org
Le Web n’a pas de frontière,
la certification non plus
« HONcode is the oldest and most-used ethical and
trustworthiness code for medical and
health-related information available on the Internet.»
I. Carrión, J. Fernández, A. Toval Are Personal Health Records Safe? A Review of Free Web-Accessible Personal Health Record Privacy Policies, JMIR, 2012, 14(4): e114.
17. www.healthonnet.org
The HONcode database
Compliance with the HONcode
principles
Indexed with MeSH terms and HON
labels
+8’000 sites in 102 countries
correspond à plus de 10 millions de
pages indexées dans Google
5 millions de pages avec le certificat
HONcode sont vues chaque jour
+1800 sites in France
+ 300 sites Switzerland
22. www.healthonnet.org
Healthtap.com: free medical advice
Goal: A new way to deliver information direct to the user needs
answered by trained physicians
Benefit: education and advice through ecommunication
25
24. www.healthonnet.org
The Health avatar :
Goal: organize health information
according to its relationships to the
human anatomy.
Benefits: enables patients and
clinicians to find information quickly
and intuitively (e.g. “show where it
hurts”)
27
http://healthcorpus.com
25. www.healthonnet.org
Patient-to-patient network
Health2.0
Patient-to-patient communication is gradually increasing
Allows comparison of different patient experiences, provides
support and empathy, social network of like-minded persons.
Enables patients with same medical condition to interact, share
their symptoms, track their progress and connect in multiple ways.
29
28. www.healthonnet.org
Pew Internet & American Life Project - Survey Aug-Sep 2012 – Tracking for health report Jan. 2013
Seven in ten U.S. adults track a health
indicator like weight, diet, exercise
routine, or symptom. Of those, half
track “in their heads,” one-third keep
notes on paper, and 20%use technology
to keep tabs on their health status
32
29. www.healthonnet.org
87% US adults own a cell phone.
45% of them own smart phones.
31% of cell phone owners and 52% smart phone owners have
used their phone to look up health/medical information.
30. www.healthonnet.org
mHealth offers patients easier
access to care and control over
their own health.
59% of those who use mHealth
already say it has replaced
visits to doctors or nurses.
64% worry that mHealth makes
patients too independent.
Problem: who check the
medical validity or the
transparency of these apps
35
31. www.healthonnet.org
Serious Gaming
Serious games are video games which are simulations of real-
world events with the main intention of educating or training its
user.
Goal: increase better understanding / compliance
Benefit: Through self valorisation, educate and change behavior
Used in several sectors including healthcare and education
psychotherapy, healthcare training, physical rehabilitation
37
33. www.healthonnet.org
How has the Internet is changing healthcare?
Healthcare consumer perspective:
Access to health information
Patient empowerment
Enables active participation in healthcare decision making
Improved doctor patient interaction
Access to co-sufferers (patient-to-patient communication).
Healthcare provider perspective:
Better informed patients results in improved compliance
Recognition of healthcare consumer as partner in healthcare decision making
Improved access to health information
Telemedicine and diagnostics
Training and continuing education
Minimally invasive procedures
34. www.healthonnet.org
HON Conclusion
HON active for over 17 years
Educate citizens to efficiently use the medical information
Guide the information providers
Automatic tools developed in order to support human expertise and
tackle the large number of existing Web pages
Collaboration with governmental and international organization
(OMS)
Adherence to the HONcode enhances a website’s overall quality
“Less than 1% of health websites that do not ask for HONcode
certification do actually respect the eight HONcode ethical standards”
Improving the transparency of health information found on the internet through the honcode: a
comparative study. Laversin S et al. Stud Health Technol Inform. 2011;169:654-8
35. www.healthonnet.org
Le HONcode une référence internationale
“Finally, 15 (63%) PHR systems were based on regulations or principles
such as the US Health Insurance Portability and Accountability Act
(HIPAA) and the Health on the Net Foundation Code of Conduct
(HONcode).
CONCLUSIONS: Most privacy policies of PHR systems do not provide
an in-depth description of the security measures that they use.”
Carrión, Fernández, Toval, Are Personal Health Records Safe? A Review of Free Web-
Accessible Personal Health Record Privacy Policies, JMIR, 2012, 14(4): e114
“In our experience, the HONcode provided the best overall guidance.”
“With added increased awareness of available resources, such as the HONcode,
DISCERN and LIDA tools, the quality of health information on doctors’ websites
can be improved.”
Urologists in cyberspace: A review of the quality of health information from American urologists' websites
using three validated tools.Wong LM, Yan H . et al. Can Urol Assoc J. 2013;7(3-4):100-7
42
37. www.healthonnet.org
Perspectives
Etendre le processus de certification avec l’évaluation du contenu
par les internautes (patients, médecins, associations médicales)
Notation
Recommandation d’informations santé
Création et partage de bookmarks
HONcode comme socle fondateur
Nouveaux sites certifiés par HON
Equipe spécialisée dans le contenu médical
Développement d’outils spécialisés d’accès à l’information (moteurs
de recherches spécialisés et spécifiques)
44