PRIME Centre Wales
Long Term Conditions Consensus Meeting
Tuesday 10th November 2015, St Mary's Priory, Abergavenny, NP7 5ND
http://www.primecentre.wales/ltc-consensus-meeting.php
Dan Venables_LTC Consensus Meeting 10-Nov-2015angewatkins
PRIME Centre Wales
Long Term Conditions Consensus Meeting
Tuesday 10th November 2015, St Mary's Priory, Abergavenny, NP7 5ND
http://www.primecentre.wales/ltc-consensus-meeting.php
12:30pm Murrumbidgee Room presentation on the work of the Icon group, Icon Cancer Foundation, and Epic Good Foundation, presented by Mark Middleton, Fiona Jonker, and Anita Heiss.
Age Alliances Wales_LTC Consensus Meeting 10-Nov-2015angewatkins
PRIME Centre Wales
Long Term Conditions Consensus Meeting
Tuesday 10th November 2015, St Mary's Priory, Abergavenny, NP7 5ND
http://www.primecentre.wales/ltc-consensus-meeting.php
PRIME Centre Wales
Long Term Conditions Consensus Meeting
Tuesday 10th November 2015, St Mary's Priory, Abergavenny, NP7 5ND
http://www.primecentre.wales/ltc-consensus-meeting.php
Dan Venables_LTC Consensus Meeting 10-Nov-2015angewatkins
PRIME Centre Wales
Long Term Conditions Consensus Meeting
Tuesday 10th November 2015, St Mary's Priory, Abergavenny, NP7 5ND
http://www.primecentre.wales/ltc-consensus-meeting.php
12:30pm Murrumbidgee Room presentation on the work of the Icon group, Icon Cancer Foundation, and Epic Good Foundation, presented by Mark Middleton, Fiona Jonker, and Anita Heiss.
Age Alliances Wales_LTC Consensus Meeting 10-Nov-2015angewatkins
PRIME Centre Wales
Long Term Conditions Consensus Meeting
Tuesday 10th November 2015, St Mary's Priory, Abergavenny, NP7 5ND
http://www.primecentre.wales/ltc-consensus-meeting.php
Prof David Oliver: older people and acute care. Nuffield Trust
In this slideshow, Prof David Oliver, Consultant Geriatrician, Royal Berkshire NHS Foundation Trust, presents on how we can shorten and improve hospital care for older people with complex needs.
Dr Thompson spoke at the Nuffield Trust ‘Reducing the length of stay’ event in September2014.
PRIME Centre Wales
Long Term Conditions Consensus Meeting
Tuesday 10th November 2015, St Mary's Priory, Abergavenny, NP7 5ND
http://www.primecentre.wales/ltc-consensus-meeting.php
Establishing a new service with a dispersed user baseCILIP
CILIP’s Skills for Leadership - Manage, Motivate and Influence event.
Presentation by Tanya Williamson as part of Leading through Change panel discussion.
Respiratory Futures webinar: Creative commissioning, the future is local (wit...Respiratory Futures
Many people in England have yet to grasp that there has been a major shift in how and where decisions about their healthcare are made. NHS reforms have resulted in a wholesale transfer of responsibility for commissioning decisions from the Department of Health (DH) to individual Clinical Commissioning Groups (CCGs) via NHS England.
Accountability for the majority of commissioning decisions that relate to respiratory disease now sits with CCGs and is not directed by either DH or NHS England.
The NHS in England is therefore a federation of over two hundred local commissioners who have effective autonomy over their commissioning priorities. In some areas, such as dementia or cancer, there are clear directives from NHS England, and a supporting structure in the form of strategic networks, to deliver standard service improvement.
For disease areas where these do not exist, CCGs have much greater choice in the nature and scale of service that they should provide. This has already led to variations in provision according to local need or simply by interest.
It is fast becoming clear that, unless there is a major political shift in emphasis, respiratory disease will not be prioritised specifically by NHS England, and CCGs will need to be influenced more explicitly by local need.
To a limited extent this is already happening where local stakeholder groups are interacting with CCGs in the form of an informal network and some individuals or groups of CCGs have already identified COPD as a priority in their five-year strategic plans. This is good news and likely to be successful, particularly if their proposed intentions fit in with the models suggested in the recently published Five Year Forward View which favours vertical integration and specialist interaction with primary care – see http://www.england.nhs.uk/ourwork/futurenhs/ for more details.
Whilst there is likely to be sufficient intrinsic justification for CCGs to develop sustained interest in respiratory conditions, this won’t happen automatically. There is still much to be done by us, as specialist healthcare professionals, to communicate consistently the importance of developing clinically led, patient-centred quality respiratory care to the 200 or so CCGs in England.
Health and Wellbeing Boards and local networks are an obvious conduit for influence. And around the country there are examples of patient organisations and stakeholder groups already having a positive influence on local commissioning policy, such as in Leeds and the South East Coast region.
Read more and continue the debate at http://www.respiratoryfutures.org.uk.
Improvement Story session at the 2013 Saskatchewan Health Care Quality Summit. For more information about the summit, visit www.qualitysummit.ca. Follow @QualitySummit on Twitter.
Better Care
Germain Bukassa Kazadi
Prof David Oliver: older people and acute care. Nuffield Trust
In this slideshow, Prof David Oliver, Consultant Geriatrician, Royal Berkshire NHS Foundation Trust, presents on how we can shorten and improve hospital care for older people with complex needs.
Dr Thompson spoke at the Nuffield Trust ‘Reducing the length of stay’ event in September2014.
PRIME Centre Wales
Long Term Conditions Consensus Meeting
Tuesday 10th November 2015, St Mary's Priory, Abergavenny, NP7 5ND
http://www.primecentre.wales/ltc-consensus-meeting.php
Establishing a new service with a dispersed user baseCILIP
CILIP’s Skills for Leadership - Manage, Motivate and Influence event.
Presentation by Tanya Williamson as part of Leading through Change panel discussion.
Respiratory Futures webinar: Creative commissioning, the future is local (wit...Respiratory Futures
Many people in England have yet to grasp that there has been a major shift in how and where decisions about their healthcare are made. NHS reforms have resulted in a wholesale transfer of responsibility for commissioning decisions from the Department of Health (DH) to individual Clinical Commissioning Groups (CCGs) via NHS England.
Accountability for the majority of commissioning decisions that relate to respiratory disease now sits with CCGs and is not directed by either DH or NHS England.
The NHS in England is therefore a federation of over two hundred local commissioners who have effective autonomy over their commissioning priorities. In some areas, such as dementia or cancer, there are clear directives from NHS England, and a supporting structure in the form of strategic networks, to deliver standard service improvement.
For disease areas where these do not exist, CCGs have much greater choice in the nature and scale of service that they should provide. This has already led to variations in provision according to local need or simply by interest.
It is fast becoming clear that, unless there is a major political shift in emphasis, respiratory disease will not be prioritised specifically by NHS England, and CCGs will need to be influenced more explicitly by local need.
To a limited extent this is already happening where local stakeholder groups are interacting with CCGs in the form of an informal network and some individuals or groups of CCGs have already identified COPD as a priority in their five-year strategic plans. This is good news and likely to be successful, particularly if their proposed intentions fit in with the models suggested in the recently published Five Year Forward View which favours vertical integration and specialist interaction with primary care – see http://www.england.nhs.uk/ourwork/futurenhs/ for more details.
Whilst there is likely to be sufficient intrinsic justification for CCGs to develop sustained interest in respiratory conditions, this won’t happen automatically. There is still much to be done by us, as specialist healthcare professionals, to communicate consistently the importance of developing clinically led, patient-centred quality respiratory care to the 200 or so CCGs in England.
Health and Wellbeing Boards and local networks are an obvious conduit for influence. And around the country there are examples of patient organisations and stakeholder groups already having a positive influence on local commissioning policy, such as in Leeds and the South East Coast region.
Read more and continue the debate at http://www.respiratoryfutures.org.uk.
Improvement Story session at the 2013 Saskatchewan Health Care Quality Summit. For more information about the summit, visit www.qualitysummit.ca. Follow @QualitySummit on Twitter.
Better Care
Germain Bukassa Kazadi
Presentation by Dr Martin Myers MBE, PhD, FRCPath, Consultant Clinical Biochemist, Lancashire Teaching Hospitals NHS Foundation Trust at ECO 19: Care closer to home on Tuesday 9 July at Deepdale Stadium.
Dr Michael Sullivan
Associate Professor of Paediatric Oncology, University of Otago; Consultant Paediatric Haematologist/Oncologist in the Children’s Haematology Oncology Centre, Christchurch Hospital
Julie Henderson (Acting Head of Clinical Services) discusses the Clinical Audit Service:
- Clinical Leadership and Engagement
- Inclusive Approach
- Audit Measurement
This presentation includes two case studies:
1) National Diabetes Audit
2) National Lung Cancer Audit
By Marc Newell, MD. A discussion about the rapidly evolving TeleHealth program at Minneapolis Heart Institute that promises to increase access to and timeliness of specialty care in communities across the region. “This is an innovative strategy that allows more patients to be seen closer to home, and have more access to subspecialty care. We need to transform how and where we deliver care so we can focus on prevention and chronic disease management.”
Developing and implementing clinical standards for seven day servicesNHS Improving Quality
Celia Ingham Clark National Director: Reducing Premature Mortality. Slides from Celia's presentation from the 7 Day Services events West Midlands 11th June and East Midlands 12th June 2014
Jennifer Schaus and Associates hosts a complimentary webinar series on The FAR in 2024. Join the webinars on Wednesdays and Fridays at noon, eastern.
Recordings are on YouTube and the company website.
https://www.youtube.com/@jenniferschaus/videos
This session provides a comprehensive overview of the latest updates to the Uniform Administrative Requirements, Cost Principles, and Audit Requirements for Federal Awards (commonly known as the Uniform Guidance) outlined in the 2 CFR 200.
With a focus on the 2024 revisions issued by the Office of Management and Budget (OMB), participants will gain insight into the key changes affecting federal grant recipients. The session will delve into critical regulatory updates, providing attendees with the knowledge and tools necessary to navigate and comply with the evolving landscape of federal grant management.
Learning Objectives:
- Understand the rationale behind the 2024 updates to the Uniform Guidance outlined in 2 CFR 200, and their implications for federal grant recipients.
- Identify the key changes and revisions introduced by the Office of Management and Budget (OMB) in the 2024 edition of 2 CFR 200.
- Gain proficiency in applying the updated regulations to ensure compliance with federal grant requirements and avoid potential audit findings.
- Develop strategies for effectively implementing the new guidelines within the grant management processes of their respective organizations, fostering efficiency and accountability in federal grant administration.
Donate to charity during this holiday seasonSERUDS INDIA
For people who have money and are philanthropic, there are infinite opportunities to gift a needy person or child a Merry Christmas. Even if you are living on a shoestring budget, you will be surprised at how much you can do.
Donate Us
https://serudsindia.org/how-to-donate-to-charity-during-this-holiday-season/
#charityforchildren, #donateforchildren, #donateclothesforchildren, #donatebooksforchildren, #donatetoysforchildren, #sponsorforchildren, #sponsorclothesforchildren, #sponsorbooksforchildren, #sponsortoysforchildren, #seruds, #kurnool
Presentation by Jared Jageler, David Adler, Noelia Duchovny, and Evan Herrnstadt, analysts in CBO’s Microeconomic Studies and Health Analysis Divisions, at the Association of Environmental and Resource Economists Summer Conference.
ZGB - The Role of Generative AI in Government transformation.pdfSaeed Al Dhaheri
This keynote was presented during the the 7th edition of the UAE Hackathon 2024. It highlights the role of AI and Generative AI in addressing government transformation to achieve zero government bureaucracy
A process server is a authorized person for delivering legal documents, such as summons, complaints, subpoenas, and other court papers, to peoples involved in legal proceedings.
Russian anarchist and anti-war movement in the third year of full-scale warAntti Rautiainen
Anarchist group ANA Regensburg hosted my online-presentation on 16th of May 2024, in which I discussed tactics of anti-war activism in Russia, and reasons why the anti-war movement has not been able to make an impact to change the course of events yet. Cases of anarchists repressed for anti-war activities are presented, as well as strategies of support for political prisoners, and modest successes in supporting their struggles.
Thumbnail picture is by MediaZona, you may read their report on anti-war arson attacks in Russia here: https://en.zona.media/article/2022/10/13/burn-map
Links:
Autonomous Action
http://Avtonom.org
Anarchist Black Cross Moscow
http://Avtonom.org/abc
Solidarity Zone
https://t.me/solidarity_zone
Memorial
https://memopzk.org/, https://t.me/pzk_memorial
OVD-Info
https://en.ovdinfo.org/antiwar-ovd-info-guide
RosUznik
https://rosuznik.org/
Uznik Online
http://uznikonline.tilda.ws/
Russian Reader
https://therussianreader.com/
ABC Irkutsk
https://abc38.noblogs.org/
Send mail to prisoners from abroad:
http://Prisonmail.online
YouTube: https://youtu.be/c5nSOdU48O8
Spotify: https://podcasters.spotify.com/pod/show/libertarianlifecoach/episodes/Russian-anarchist-and-anti-war-movement-in-the-third-year-of-full-scale-war-e2k8ai4
Jennifer Schaus and Associates hosts a complimentary webinar series on The FAR in 2024. Join the webinars on Wednesdays and Fridays at noon, eastern.
Recordings are on YouTube and the company website.
https://www.youtube.com/@jenniferschaus/videos
Understanding the Challenges of Street ChildrenSERUDS INDIA
By raising awareness, providing support, advocating for change, and offering assistance to children in need, individuals can play a crucial role in improving the lives of street children and helping them realize their full potential
Donate Us
https://serudsindia.org/how-individuals-can-support-street-children-in-india/
#donatefororphan, #donateforhomelesschildren, #childeducation, #ngochildeducation, #donateforeducation, #donationforchildeducation, #sponsorforpoorchild, #sponsororphanage #sponsororphanchild, #donation, #education, #charity, #educationforchild, #seruds, #kurnool, #joyhome
Jennifer Schaus and Associates hosts a complimentary webinar series on The FAR in 2024. Join the webinars on Wednesdays and Fridays at noon, eastern.
Recordings are on YouTube and the company website.
https://www.youtube.com/@jenniferschaus/videos
2024: The FAR - Federal Acquisition Regulations, Part 37
Ciliopathy Alliance 5th Anniversary Mtg - 19 Oct 2015 - National Ciliopathies Service proposal
1. A Proposal for A National
Ciliopathy Diagnosis and
Management Service
Dr Richard Scott
Prof Phil Beales
Great Ormond Street Hospital for Children
2. Background
There are existing Nationally commissioned services for:
• Primary Ciliary Dyskinesia
• Alstrom syndrome
• Bardet-Biedel syndrome
In 2011, NHS England suggested there was room to develop a service to
cover other rare ciliopathies to result in cohesive Nationally commissioned
services across all ciliopathies.
This proposal has been in gestation since then.
3.
4.
5. Core Ciliopathy Service team
• To support existing services as required (not replace)
• To provide a shared genetic testing facility
• To add a shared database / patient registry
• To add (and keep up to date) disease-specific management guidelines
and patient information
• To add a web portal – to access guidelines, patient information,
information for referrers, a means of referral, a point of contact
10. The new Rare Ciliopathies Service
• Based on the successful models developed in the existing services
• Involvement of patient support groups in service provision
• Both children and adults will be cared for
• A ‘tiered’ structure of care depending on the complexity of needs
• Favouring local care where possible (with support from the Ciliopathy
Service)
11. A ‘tiered’ structure of care in the new service
• Tier 1
oGenetic diagnostic service only
• Tier 2
oGenetic diagnostic service and disease-specific care plans
• Tier 3
oGenetic diagnostic service and assessment at central MDT
oPredominantly local follow-up and patient-tailored care plan from MDT
• Tier 4
oGenetic diagnostic service and assessment at central MDT
oOngoing follow-up at central MDT and patient-tailored care plant from MDT
12. A ‘tiered’ structure of care in the new service
• Tier 1
oGenetic diagnostic service only
• Tier 2
oGenetic diagnostic service and disease-specific care plans
• Tier 3
oGenetic diagnostic service and assessment at central MDT
oPredominantly local follow-up and patient-tailored care plant from MDT
• Tier 4
oGenetic diagnostic service and assessment at central MDT
oOngoing follow-up at central MDT and patient-tailored care plant from MDT
Local care only
13.
14. A ‘tiered’ structure of care in the new service
• Tier 1
oGenetic diagnostic service only
• Tier 2
oGenetic diagnostic service and disease-specific care plans
• Tier 3
oGenetic diagnostic service and assessment at central MDT
oPredominantly local follow-up and patient-tailored care plant from MDT
• Tier 4
oGenetic diagnostic service and assessment at central MDT
oOngoing follow-up at central MDT and patient-tailored care plant from MDT
Attend central MDT
15.
16. New ‘Rare Ciliopathy’ service
Tier 1 or Tier 2
• Meckel syndrome
• Short rib polydactyly syndromes
• Leber’s congenital amaurosis
• Nephronophthisis
• Usher syndrome
• Senior-Loken syndrome
Tier 3 or Tier 4
• Autosomal recessive polycystic kidney disease
• Joubert and Joubert-like syndromes
• Renal-hepatic-pancreatic dysplasia
• Mainzer-Saldino syndrome
• Jeune syndrome
• Oral-facial-digital syndromes
• Cranioectodermal dysplasia
• Acromelic frontonasal dysplasia
• Ellis-van Creveld syndrome
• Biemond syndrome II
17. New ‘Rare Ciliopathy’ service – MDT clinic
• Genetics consultant
• Endocrine consultant
• Renal consultant
• Ophthalmology consultant
• Neurology consultant
• Respiratory consultant
• Orthopaedics consultant
• Cardiology consultant
• Gastroenterology consultant
• Cardiothoracics consultant
• Specialist nurse
• Genetic counsellor
• Patient liaison officer (support group)
• Clinical psychologist
• Dietician
• Speech and language therapist
• Social Work/Child Protection
• Pharmacy
• Available for advice:
• Radiology consultants
• Fetal medicine consultant
• Pathology consultant
18. New ‘Rare Ciliopathy’ service – MDT clinic
• A similar size service to the existing BBS service
• ~500 patients
• Two sites
• Paediatric and adult services at each site
• 10 Paediatric all day clinics each year at each site
• 15 Adult all day clinics each year at each site
• Efficiency in terms of the need for specialists’ time through clustering
of patients with similar needs together
19. Genetic testing
• For many ciliopathies genetic testing has been
very limited until recently:
• Often 1 gene can cause >1 disorder
• Each disorder can be caused by many genes
• Next generation sequencing makes it feasible
now to test all known ciliopathy genes at
reasonable cost.
• This will improve diagnosis
• And with time, and the assistance of a detailed
patient registry, this will allow greater
delineation of the medical problems related to
each gene
• Perhaps we will even have gene-specific
management guidelines
20. Overview
• A new service for rare ciliopathies
• With a ‘tiered’ structure of care
• To complement existing services
• Time/cost savings
• A shared central service for
• genetic testing
• a web portal
• patient registries
• a source of disease-specific care plans and patient information