Over half of cancer patients surveyed developed COVID-19, with about one in six experiencing long COVID. Nearly half were infected over a year ago. Fatigue, cough, body aches and headaches were common initial symptoms. While most confirmed their infection, nearly half are not receiving help for long COVID symptoms. Two-thirds remain concerned about long COVID due to potential long-term issues and reduced quality of life. Better access to doctors and treatment are needs to help overcome long COVID.
Don’t miss our upcoming webinars. Subscribe today!
About this webinar:
In this webinar, presented by Marjut Huotari, Vice President of Healthcare Insights at Leger, you will learn about cancer patient and caregiver concerns as society opens. How do cancer patients feel? What risks are they willing to take?
About the presenter:
Marjut Huotari has a Bachelor and a Master of Business Administration from the Schulich School of Business, York University. She is a marketing professional with over 20 years of experience working with the pharmaceutical industry, including 14 years working in the pharmaceutical industry on the client side. With Leger, Marjut manages both qualitative and quantitative market research, conducting research with a variety of healthcare practitioners and patients. With her team, she aims to help her clients to understand the issues and help develop solutions.
View the Video: https://bit.ly/youtubeCancerCantWaitCCSNFourthLegersurveyonCOVID19andcancercare
Follow CCSN on social media:
Twitter - https://twitter.com/survivornetca
Facebook - https://www.facebook.com/CanadianSurvivorNet
Instagram: https://www.instagram.com/survivornet_ca/
Pinterest - https://www.pinterest.com/survivornetwork
Don’t miss our upcoming webinars: Subscribe today!
In this webinar:
Join CCSN and Marjut Huotari, VP-Healthcare Insights at Leger, as we present the results of the COVID-19 and Cancer Care Disruption in Canada Survey and hear from members of the cancer community about how the pandemic has directly impacted them.
View the video:
https://youtu.be/6ub1ot806-A
To learn more about CCSN, visit us at survivornet.ca
Follow CCSN on social media:
Twitter - https://twitter.com/survivornetca
Facebook - https://www.facebook.com/CanadianSurvivorNet
Instagram: https://www.instagram.com/survivornet_ca/
Pinterest - https://www.pinterest.com/survivornetwork
Don't miss our upcoming webinars. Subscribe today!
Presented by: Marjut Huotari - Vice President, Healthcare Insights at Leger
In this webinar:
The Canadian Cancer Survivor Network commissioned Leger, a Canadian-owned polling and market research firm, to discover how the disruption of cancer care has affected Canadian cancer patients, survivors, and caregivers. This third survey Leger conducted for CCSN took place from June 10 to July 4, 2021.
Join CCSN and Leger as we present the results of the survey on COVID-19 and Cancer Care Disruption in Canada - Wave 3, and hear from members of the cancer community about how the pandemic has directly impacted them.
Watch the YouTube video: https://www.youtube.com/watch?v=CTomgU3AUSQ
To learn more about CCSN, visit us at survivornet.ca
Follow CCSN on social media:
Twitter - https://twitter.com/survivornetca
Facebook - https://www.facebook.com/CanadianSurvivorNet
Instagram: https://www.instagram.com/survivornet_ca/
Pinterest - https://www.pinterest.com/survivornetwork
The "Pulmonary Fibrosis Patient/Caregiver Experience Survey" explored the experiences of people affected by pulmonary fibrosis. Inspire conducted the survey in cooperation with its partner, the Pulmonary Fibrosis Foundation (PFF). Inspire CEO Brian Loew presented the findings during the PFF Summit in Nov. 2015 in Washington, DC.
GR AFHS COPD.7.8.2020 -FINAL wo CE for ho.pptxAFHSResources
The learning outcome for this activity: Participants will have increased knowledge and ability to apply the Age-Friendly 4Ms Framework to older adult patients presenting with COPD in a convenient care setting.
Don't miss our upcoming webinars! Subscribe today!
In this webinar:
In May-June, 2020, the Canadian Cancer Survivor Network (CCSN) commissioned Leger to conduct a national survey to evaluate the impact that COVID-19 has had on cancer patients, survivors, pre-diagnosis patients, and caregivers. The results of our first survey revealed that the pandemic response has triggered another public health crisis - the postponement and cancellation of essential cancer tests, procedures, and treatments.
CCSN commissioned Leger for a second survey in December, 2020 to evaluate the impact that the suspension of cancer services during the first wave is currently having on those who have been affected by cancer.
Join CCSN and Leger as we present the results of the COVID-19 and Cancer Care Disruption in Canada Survey - Wave 2 and hear from members of the cancer community about how the pandemic has directly impacted them.
View the YouTube video: https://youtu.be/qN4Hq7OtBys
Follow CCSN on social media:
Twitter - https://twitter.com/survivornetca
Facebook - https://www.facebook.com/CanadianSurvivorNet
Instagram: https://www.instagram.com/survivornet_ca/
Pinterest - https://www.pinterest.com/survivornetwork
Don’t miss our upcoming webinars. Subscribe today!
About this webinar:
In this webinar, presented by Marjut Huotari, Vice President of Healthcare Insights at Leger, you will learn about cancer patient and caregiver concerns as society opens. How do cancer patients feel? What risks are they willing to take?
About the presenter:
Marjut Huotari has a Bachelor and a Master of Business Administration from the Schulich School of Business, York University. She is a marketing professional with over 20 years of experience working with the pharmaceutical industry, including 14 years working in the pharmaceutical industry on the client side. With Leger, Marjut manages both qualitative and quantitative market research, conducting research with a variety of healthcare practitioners and patients. With her team, she aims to help her clients to understand the issues and help develop solutions.
View the Video: https://bit.ly/youtubeCancerCantWaitCCSNFourthLegersurveyonCOVID19andcancercare
Follow CCSN on social media:
Twitter - https://twitter.com/survivornetca
Facebook - https://www.facebook.com/CanadianSurvivorNet
Instagram: https://www.instagram.com/survivornet_ca/
Pinterest - https://www.pinterest.com/survivornetwork
Don’t miss our upcoming webinars: Subscribe today!
In this webinar:
Join CCSN and Marjut Huotari, VP-Healthcare Insights at Leger, as we present the results of the COVID-19 and Cancer Care Disruption in Canada Survey and hear from members of the cancer community about how the pandemic has directly impacted them.
View the video:
https://youtu.be/6ub1ot806-A
To learn more about CCSN, visit us at survivornet.ca
Follow CCSN on social media:
Twitter - https://twitter.com/survivornetca
Facebook - https://www.facebook.com/CanadianSurvivorNet
Instagram: https://www.instagram.com/survivornet_ca/
Pinterest - https://www.pinterest.com/survivornetwork
Don't miss our upcoming webinars. Subscribe today!
Presented by: Marjut Huotari - Vice President, Healthcare Insights at Leger
In this webinar:
The Canadian Cancer Survivor Network commissioned Leger, a Canadian-owned polling and market research firm, to discover how the disruption of cancer care has affected Canadian cancer patients, survivors, and caregivers. This third survey Leger conducted for CCSN took place from June 10 to July 4, 2021.
Join CCSN and Leger as we present the results of the survey on COVID-19 and Cancer Care Disruption in Canada - Wave 3, and hear from members of the cancer community about how the pandemic has directly impacted them.
Watch the YouTube video: https://www.youtube.com/watch?v=CTomgU3AUSQ
To learn more about CCSN, visit us at survivornet.ca
Follow CCSN on social media:
Twitter - https://twitter.com/survivornetca
Facebook - https://www.facebook.com/CanadianSurvivorNet
Instagram: https://www.instagram.com/survivornet_ca/
Pinterest - https://www.pinterest.com/survivornetwork
The "Pulmonary Fibrosis Patient/Caregiver Experience Survey" explored the experiences of people affected by pulmonary fibrosis. Inspire conducted the survey in cooperation with its partner, the Pulmonary Fibrosis Foundation (PFF). Inspire CEO Brian Loew presented the findings during the PFF Summit in Nov. 2015 in Washington, DC.
GR AFHS COPD.7.8.2020 -FINAL wo CE for ho.pptxAFHSResources
The learning outcome for this activity: Participants will have increased knowledge and ability to apply the Age-Friendly 4Ms Framework to older adult patients presenting with COPD in a convenient care setting.
Don't miss our upcoming webinars! Subscribe today!
In this webinar:
In May-June, 2020, the Canadian Cancer Survivor Network (CCSN) commissioned Leger to conduct a national survey to evaluate the impact that COVID-19 has had on cancer patients, survivors, pre-diagnosis patients, and caregivers. The results of our first survey revealed that the pandemic response has triggered another public health crisis - the postponement and cancellation of essential cancer tests, procedures, and treatments.
CCSN commissioned Leger for a second survey in December, 2020 to evaluate the impact that the suspension of cancer services during the first wave is currently having on those who have been affected by cancer.
Join CCSN and Leger as we present the results of the COVID-19 and Cancer Care Disruption in Canada Survey - Wave 2 and hear from members of the cancer community about how the pandemic has directly impacted them.
View the YouTube video: https://youtu.be/qN4Hq7OtBys
Follow CCSN on social media:
Twitter - https://twitter.com/survivornetca
Facebook - https://www.facebook.com/CanadianSurvivorNet
Instagram: https://www.instagram.com/survivornet_ca/
Pinterest - https://www.pinterest.com/survivornetwork
Webinar Series on COVID-19 vaccine: Jointly organized by Malaysian Society of Infection Control and Infectious Diseases (MyICID) & Institute for Clinical Research (ICR), NIH
Speaker: Dr. Richard Lim Boon Leong is a Consultant Palliative Medicine Physician and Head of Palliative Care Unit, Selayang Hospital, Ministry of Health Malaysia.
'Living Well' Conference 2013: 'Service Evaluation of Living Well with the Im...PennyBrohnComms
Key findings from a longitudinal service evaluation of Penny Brohn Cancer Care's 'Living Well with the Impact of Cancer' courses.
Dr Helen Seers, Research and Information Manager, Penny Brohn Cancer Care
Dr Marie Polley, Senior Lecturer in Health Sciences and Research, University of Westminster
In this global pandemic, IBD patients and their healthcare providers from around the world share similar fears and concerns. SECURE-IBD is an international database to monitor and report on COVID-19 in IBD patients. By working across borders, we are learning how factors like age, other conditions, and IBD treatments impact COVID-19 outcomes. This slide deck also shares information about other research efforts that are ongoing to better understand the impact of COVID-19 on IBD patients.
The Foundation would like to thank AbbVie Inc., Genentech, Inc., Gilead Sciences, Inc., Janssen Biotech, Inc., Shire, and Takeda Pharmaceuticals U.S.A., Inc., sponsors of our COVID-19 materials. Additional support is provided through the Foundation’s annual giving program and individual donors.
How is the Coronavirus Impacting Healthcare Perceptions and Behaviors? (Wave ...Ed Bennett
Research from Klein & Partners and The DRG
This year’s Omnibus is a bit different from past years. We focus the entire survey on consumer reactions to the Coronavirus and we will conduct three waves of this survey to track how these reactions change as we get past the ‘peak’ and move into our ‘new’ normal.
This presentation summarizes findings from the first wave conducted in early April. Wave II will field in late April/early May after the peak and the third wave will field sometime in late May/early June as we emerge in our new normal. Field times are fluid as we monitor the progress of this pandemic.
Also, this year, we are pleased that our long-time research partner and friends – The DRG – have partnered on this research with us.
Klein & Partners and The DRG would like to thank you for your extraordinary efforts during these unprecedented times in recent history to help our local communities keep safe and informed about the latest developments and the support available on the Coronavirus.
--Rob Klein, Founder & CEO, Klein & Partners
MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today unveiled new research conducted among the more than 170,000 registered members of MyLupusTeam, the social network for people facing lupus. Key findings included insights into the prevalence of anxiety and depression, patients’ dissatisfaction with current lupus treatments, and common quality-of-life impacts of the disease.
Katherine Promer Flores, MD (she/her)
Staff Physician
Division of Infectious Diseases and Global Public Health
Department of Medicine
University of California San Diego
MyLupusTeam Members' Attitudes Towards Telehealth During the COVID-19 PandemicJ. Michelle Cox
New research among members of MyLupusTeam, the social network for people diagnosed with lupus, reveals perceptions of, experiences with, and preferences for telehealth during COVID-19.
Define and understand the types of advanced lung disease (ALD)
Discuss the impact of ALD on patients, family, and the health system
Describe the symptom burden of ALD
Appreciate factors associated with a poorer prognosis in ALD
Identify guidelines for referral to Hospice
Review the medical management of ALD
MyCOPDTeam Members' Attitudes Towards Telehealth During the COVID-19 PandemicJ. Michelle Cox
New research among members of MyCOPDTeam, the social network for people diagnosed with COPD, reveals perceptions of, experiences with, and preferences for telehealth during COVID-19.
The learning outcome for this activity: Participants will have increased knowledge and ability to apply the Age-Friendly 4Ms Framework to older adult patients presenting with community-acquired pneumonia in a convenient care setting.
The goal of this webinar is to educate physicians and healthcare professionals about the medical management of advanced lung disease (ALD) and the value of advance care planning for end-of-life patients.
Advanced Lung Disease: Prognostication and Role of HospiceVITAS Healthcare
The goal of this webinar was to educate physicians and healthcare professionals about the medical management of advanced lung disease (ALD) and the value of advance care planning (ACP) for end-of-life patients.
Why screeing cancer patients for distress will increase disparities in psycho...James Coyne
Keynote address
Implementing screening of cancer patients for distress will not improve patient outcomes and may aggravate existing biases in who get psychosocial services.
Συχνότερα χρόνια νοσήματα, καταστάσεις υγείας, συχνότερα συμπτώματα στην κοιν...Evangelos Fragkoulis
Σεμινάριο εισαγωγής στην ΠΦΥ- Εκπαιδευτικό πρόγραμμα ειδικευόμενων Γενικών Οικογενειακών Ιατρών σε συνεργασία με το Τμήμα Πολιτικών Δημόσιας Υγείας του Πανεπιστημίου Δυτικής Αττικής
About the Webinar: Michelle Colero, Executive Director of Bladder Cancer Canada, will cover the essentials of bladder cancer facts and symptoms while also outlining the support and educational resources provided by Bladder Cancer Canada for those dealing with a diagnosis. Additionally, she’ll share ways individuals can contribute to raising awareness and supporting our community.
About the Webinar: Alcohol is classified as a Group one carcinogen and is estimated to be one of the top three causes of cancer deaths worldwide. Yet, over 40 per cent of people in Canada remain unaware that alcohol consumption increases the risk of developing at least nine cancers. In this presentation, we’ll look at what is and isn’t known about the relationship between alcohol and cancer. We’ll explore what the Canadian Cancer Society is doing to raise awareness of alcohol as a modifiable cancer risk factor, its commitment to funding world-leading research on this subject, and its advocacy for stronger policies that reduce, and increase awareness about the risk of cancer related to, alcohol consumption. Attendees will be invited to seek more information and/or take action on this important topic. We hope you’ll join us in learning more about cancer risk and alcohol — the most commonly used psychoactive substance in Canada.
Webinar Series on COVID-19 vaccine: Jointly organized by Malaysian Society of Infection Control and Infectious Diseases (MyICID) & Institute for Clinical Research (ICR), NIH
Speaker: Dr. Richard Lim Boon Leong is a Consultant Palliative Medicine Physician and Head of Palliative Care Unit, Selayang Hospital, Ministry of Health Malaysia.
'Living Well' Conference 2013: 'Service Evaluation of Living Well with the Im...PennyBrohnComms
Key findings from a longitudinal service evaluation of Penny Brohn Cancer Care's 'Living Well with the Impact of Cancer' courses.
Dr Helen Seers, Research and Information Manager, Penny Brohn Cancer Care
Dr Marie Polley, Senior Lecturer in Health Sciences and Research, University of Westminster
In this global pandemic, IBD patients and their healthcare providers from around the world share similar fears and concerns. SECURE-IBD is an international database to monitor and report on COVID-19 in IBD patients. By working across borders, we are learning how factors like age, other conditions, and IBD treatments impact COVID-19 outcomes. This slide deck also shares information about other research efforts that are ongoing to better understand the impact of COVID-19 on IBD patients.
The Foundation would like to thank AbbVie Inc., Genentech, Inc., Gilead Sciences, Inc., Janssen Biotech, Inc., Shire, and Takeda Pharmaceuticals U.S.A., Inc., sponsors of our COVID-19 materials. Additional support is provided through the Foundation’s annual giving program and individual donors.
How is the Coronavirus Impacting Healthcare Perceptions and Behaviors? (Wave ...Ed Bennett
Research from Klein & Partners and The DRG
This year’s Omnibus is a bit different from past years. We focus the entire survey on consumer reactions to the Coronavirus and we will conduct three waves of this survey to track how these reactions change as we get past the ‘peak’ and move into our ‘new’ normal.
This presentation summarizes findings from the first wave conducted in early April. Wave II will field in late April/early May after the peak and the third wave will field sometime in late May/early June as we emerge in our new normal. Field times are fluid as we monitor the progress of this pandemic.
Also, this year, we are pleased that our long-time research partner and friends – The DRG – have partnered on this research with us.
Klein & Partners and The DRG would like to thank you for your extraordinary efforts during these unprecedented times in recent history to help our local communities keep safe and informed about the latest developments and the support available on the Coronavirus.
--Rob Klein, Founder & CEO, Klein & Partners
MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today unveiled new research conducted among the more than 170,000 registered members of MyLupusTeam, the social network for people facing lupus. Key findings included insights into the prevalence of anxiety and depression, patients’ dissatisfaction with current lupus treatments, and common quality-of-life impacts of the disease.
Katherine Promer Flores, MD (she/her)
Staff Physician
Division of Infectious Diseases and Global Public Health
Department of Medicine
University of California San Diego
MyLupusTeam Members' Attitudes Towards Telehealth During the COVID-19 PandemicJ. Michelle Cox
New research among members of MyLupusTeam, the social network for people diagnosed with lupus, reveals perceptions of, experiences with, and preferences for telehealth during COVID-19.
Define and understand the types of advanced lung disease (ALD)
Discuss the impact of ALD on patients, family, and the health system
Describe the symptom burden of ALD
Appreciate factors associated with a poorer prognosis in ALD
Identify guidelines for referral to Hospice
Review the medical management of ALD
MyCOPDTeam Members' Attitudes Towards Telehealth During the COVID-19 PandemicJ. Michelle Cox
New research among members of MyCOPDTeam, the social network for people diagnosed with COPD, reveals perceptions of, experiences with, and preferences for telehealth during COVID-19.
The learning outcome for this activity: Participants will have increased knowledge and ability to apply the Age-Friendly 4Ms Framework to older adult patients presenting with community-acquired pneumonia in a convenient care setting.
The goal of this webinar is to educate physicians and healthcare professionals about the medical management of advanced lung disease (ALD) and the value of advance care planning for end-of-life patients.
Advanced Lung Disease: Prognostication and Role of HospiceVITAS Healthcare
The goal of this webinar was to educate physicians and healthcare professionals about the medical management of advanced lung disease (ALD) and the value of advance care planning (ACP) for end-of-life patients.
Why screeing cancer patients for distress will increase disparities in psycho...James Coyne
Keynote address
Implementing screening of cancer patients for distress will not improve patient outcomes and may aggravate existing biases in who get psychosocial services.
Συχνότερα χρόνια νοσήματα, καταστάσεις υγείας, συχνότερα συμπτώματα στην κοιν...Evangelos Fragkoulis
Σεμινάριο εισαγωγής στην ΠΦΥ- Εκπαιδευτικό πρόγραμμα ειδικευόμενων Γενικών Οικογενειακών Ιατρών σε συνεργασία με το Τμήμα Πολιτικών Δημόσιας Υγείας του Πανεπιστημίου Δυτικής Αττικής
About the Webinar: Michelle Colero, Executive Director of Bladder Cancer Canada, will cover the essentials of bladder cancer facts and symptoms while also outlining the support and educational resources provided by Bladder Cancer Canada for those dealing with a diagnosis. Additionally, she’ll share ways individuals can contribute to raising awareness and supporting our community.
About the Webinar: Alcohol is classified as a Group one carcinogen and is estimated to be one of the top three causes of cancer deaths worldwide. Yet, over 40 per cent of people in Canada remain unaware that alcohol consumption increases the risk of developing at least nine cancers. In this presentation, we’ll look at what is and isn’t known about the relationship between alcohol and cancer. We’ll explore what the Canadian Cancer Society is doing to raise awareness of alcohol as a modifiable cancer risk factor, its commitment to funding world-leading research on this subject, and its advocacy for stronger policies that reduce, and increase awareness about the risk of cancer related to, alcohol consumption. Attendees will be invited to seek more information and/or take action on this important topic. We hope you’ll join us in learning more about cancer risk and alcohol — the most commonly used psychoactive substance in Canada.
Dr. Rob Rutledge returns for his first webinar of 2024 to discuss the basics behind emotional intelligence. Learn how to develop greater emotional awareness, and learn how to settle fear and frustration. Dr. Rutledge will also share tips on how to live in a more peaceful and connected way as you navigate through your cancer journey.
About the Webinar: Health technology assessment (HTA), the approval process for drugs and healthcare technology, the processes and organizations that support them, such as Canadian Agency for Drugs and Technologies in Health (CADTH), have evolved over the years in response to changing healthcare system priorities and the need to establish their legitimacy. Don Husereau will provide an overview of current processes in Canada, and highlight their perceived (and real) shortcomings and what can be done to overcome these. He will highlight that some perceived weaknesses (such as review times) are not as bad as they appear while perceived strengths (such as stakeholder involvement) need considerable improvement. He will also discuss other opportunities for HTA to innovate and whether there are current plans to address these.
About this Webinar: The time between regulatory approval for new drugs and when drugs became publicly available to patients averaged 736 days (25 months) in 2022. This is double the average time reported in comparable Organisation for Economic Development (OECD) countries. This webinar will highlight variations in drug listing time for new drugs across time, provinces, and type of drugs (oncology vs. non-oncology). It will also present the specific phases involved in moving a drug from approval stage to listing, and the time spent in each. This Conference Board of Canada analysis uses IQVIA’s Market Access Metrics Database (2012 to 2023), which tracks all new products and their indications through the Canadian access journey.
About the Webinar: Learn about pancreatic cancer symptoms, diagnosis, treatment options, statistics, supports and barriers. The presentation will also include some helpful tools that can improve quality of life for those with pancreatic cancer, including the Craig's Cause's PERT (Pancreatic Enzyme Replacement Therapy) calculator and available patient support programs.
As referenced by John Adams in his 2024 CCSN Webinar on the US importing drugs from Canada, this is a slide deck from Health Canada which outlines the timetable and actions taken by the government on this particular issue.
About this Webinar: John Adams takes a dive behind the headlines, news stories and media releases to better understand any real threats to Canadian patients getting the prescription drugs they need.
About this Webinar: We know that methods of eating and diet are a large part of cancer care, but how can you make your diet work for you in your cancer journey? Dr. Rob Rutelege is back to present the latest science around healthy eating and cancer care. In addition, Dr. Rutledge will share the benefits of time-restricted eating, and how you can incorporate it into your daily routine.
Colorectal cancer is the second leading cause of cancer death in Canada, with approximately 24,100 Canadians diagnosed with the disease in 2023. The incidence of colorectal cancer has been declining in Canadians over 50 years of age, largely due to population-based screening programs. Recent evidence has shown, however, that rates have been increasing in adults younger than 50 years. Given that younger adults are typically classified as at low risk for colorectal cancer, this epidemiologic shift is cause for concern.
Individuals under the age of 50 now represent a significant number of colorectal cancer cases. The disease is often being diagnosed at a later stage, and tumour characteristics tend to be more lethal. As for what is accounting for the increasing trend, ongoing research efforts focus on environmental toxicities, lifestyle patterns, and the gut microbiome.
In this webinar, we will present an overview of the current evidence surrounding the rising rates of colorectal cancer in young adults and discuss the unique needs of this patient population, through screening, diagnosis, treatment, and survivorship. A young colorectal cancer patient will share his lived experience in managing this disease and the impact that cancer has had on himself and his family.
About this Talk: This talk will provide a nutritional perspective on the role of diet in cancer focusing on healthy fats known as omega-3 fatty acids. Sources, amounts and types of omega-3 fatty acids will be highlighted. Clinical and experimental evidence in support of a role for omega-3 fatty acids in the prevention and treatment of breast cancer will be presented. Lastly, some practical strategies to support a healthy diet will be shared.
About the Webinar: Genomic testing has already become commonplace in oncology, but exponential growth in more comprehensive genomic tests, other innovative tests and testing approaches in oncology, as well as a number of other therapeutic areas is expected in the coming years. With the emergence of more complex, more expensive, and more promising tests, policymakers and healthcare providers may be challenged to provide these to patients at the pace of innovation. Don Husereau will describe what conditions are necessary for equitable access to advanced innovative testing, how major Canadian provinces are doing, and what more needs to be done in the coming years to benefit all patients.
About this Webinar: This talk will explore breast screening for women 40-49. The benefits and harms for screening will be discussed, as well as what is unique about breast cancer in women in their 40s. In order to understand the controversy around current guidelines recommending against screening women 40-49, we will review the evidence upon which these guidelines are based, and their impact on breast cancer outcomes for these women.
About this Webinar: This presentation will discuss the pathway to pharmaceutical treatments in Canada that involve health technology assessment reviews and decision making. Observations on the current challenges and the importance of patient input to inform decision making will also be discussed. Finally, the key elements that can be critical to successful outcomes will be presented.
About this Webinar: When Canadians turn on the tap for a drink of water or a shower, we take for granted that the water is safe. Few are aware that old asbestos cement water pipes still deliver water to millions of people. As these pipes age and deteriorate, asbestos erodes into the water and poses health concerns, including cancer.
Dr. Meg Sears, Chair of the Board of Prevent Cancer Now, and board member Julian Branch will talk about the history of asbestos in water, the science behind ingested asbestos, and recent developments.
André Deschamps will show the results of the Europa UOMO Euproms studies. These are the first studies ever from patients for patients, measuring the burden of treatment. More than 5000 patients have shared with us their experiences after treatment. The data has been analyzed by the university of Rotterdam in the Netherlands and has been published in peer reviewed scientific papers.
This webinar will serve as an introduction to Cancer and Work, a website that “was designed to address the unique needs of cancer survivors with returning, remaining, changing work or looking for work after a diagnosis of cancer. The website provides newly created information, resources, and interactive tools for cancer survivors, healthcare providers, employers, and highlights helpful information from across the globe.” The talk will include 10 steps to return to work, and job search ideas for cancer survivors
This webinar will have two perspectives.
Jasveen will be presenting about the impact of cancer and treatment on a person’s physical, cognitive & mental health and how an Occupational therapist can work with the person to gradually overcome these challenges to return to work with or without modifications. The presentation will cover some case studies of past success with the opportunity to answer questions at the end.
Then we will hear from Jen who has experienced her own journey with breast cancer and how she advocated for herself and occupational therapy to help her return to full time employment.
Various cancer treatments can impact one’s gut health and digestive system. This presentation will discuss why a healthy gut is important to overall health. We will talk about the roles the gut is involved in beyond just digestion. We will also discuss nutrition strategies that will support our gut health and promote a healthy microbiome.
In this Webinar, participants will learn about:
– Balancing rising costs and a limited budget
– Eating healthily, food banks, other resources in your community
– Budget formats that work for cancer patients
– Money management
– Debit and credit management
– Credit counselling
– Consumer protection
Title: Sense of Taste
Presenter: Dr. Faiza, Assistant Professor of Physiology
Qualifications:
MBBS (Best Graduate, AIMC Lahore)
FCPS Physiology
ICMT, CHPE, DHPE (STMU)
MPH (GC University, Faisalabad)
MBA (Virtual University of Pakistan)
Learning Objectives:
Describe the structure and function of taste buds.
Describe the relationship between the taste threshold and taste index of common substances.
Explain the chemical basis and signal transduction of taste perception for each type of primary taste sensation.
Recognize different abnormalities of taste perception and their causes.
Key Topics:
Significance of Taste Sensation:
Differentiation between pleasant and harmful food
Influence on behavior
Selection of food based on metabolic needs
Receptors of Taste:
Taste buds on the tongue
Influence of sense of smell, texture of food, and pain stimulation (e.g., by pepper)
Primary and Secondary Taste Sensations:
Primary taste sensations: Sweet, Sour, Salty, Bitter, Umami
Chemical basis and signal transduction mechanisms for each taste
Taste Threshold and Index:
Taste threshold values for Sweet (sucrose), Salty (NaCl), Sour (HCl), and Bitter (Quinine)
Taste index relationship: Inversely proportional to taste threshold
Taste Blindness:
Inability to taste certain substances, particularly thiourea compounds
Example: Phenylthiocarbamide
Structure and Function of Taste Buds:
Composition: Epithelial cells, Sustentacular/Supporting cells, Taste cells, Basal cells
Features: Taste pores, Taste hairs/microvilli, and Taste nerve fibers
Location of Taste Buds:
Found in papillae of the tongue (Fungiform, Circumvallate, Foliate)
Also present on the palate, tonsillar pillars, epiglottis, and proximal esophagus
Mechanism of Taste Stimulation:
Interaction of taste substances with receptors on microvilli
Signal transduction pathways for Umami, Sweet, Bitter, Sour, and Salty tastes
Taste Sensitivity and Adaptation:
Decrease in sensitivity with age
Rapid adaptation of taste sensation
Role of Saliva in Taste:
Dissolution of tastants to reach receptors
Washing away the stimulus
Taste Preferences and Aversions:
Mechanisms behind taste preference and aversion
Influence of receptors and neural pathways
Impact of Sensory Nerve Damage:
Degeneration of taste buds if the sensory nerve fiber is cut
Abnormalities of Taste Detection:
Conditions: Ageusia, Hypogeusia, Dysgeusia (parageusia)
Causes: Nerve damage, neurological disorders, infections, poor oral hygiene, adverse drug effects, deficiencies, aging, tobacco use, altered neurotransmitter levels
Neurotransmitters and Taste Threshold:
Effects of serotonin (5-HT) and norepinephrine (NE) on taste sensitivity
Supertasters:
25% of the population with heightened sensitivity to taste, especially bitterness
Increased number of fungiform papillae
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Tom Selleck, an enduring figure in Hollywood. has captivated audiences for decades with his rugged charm, iconic moustache. and memorable roles in television and film. From his breakout role as Thomas Magnum in Magnum P.I. to his current portrayal of Frank Reagan in Blue Bloods. Selleck's career has spanned over 50 years. But beyond his professional achievements. fans have often been curious about Tom Selleck Health. especially as he has aged in the public eye.
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Introduction
Many have been interested in Tom Selleck health. not only because of his enduring presence on screen but also because of the challenges. and lifestyle choices he has faced and made over the years. This article delves into the various aspects of Tom Selleck health. exploring his fitness regimen, diet, mental health. and the challenges he has encountered as he ages. We'll look at how he maintains his well-being. the health issues he has faced, and his approach to ageing .
Early Life and Career
Childhood and Athletic Beginnings
Tom Selleck was born on January 29, 1945, in Detroit, Michigan, and grew up in Sherman Oaks, California. From an early age, he was involved in sports, particularly basketball. which played a significant role in his physical development. His athletic pursuits continued into college. where he attended the University of Southern California (USC) on a basketball scholarship. This early involvement in sports laid a strong foundation for his physical health and disciplined lifestyle.
Transition to Acting
Selleck's transition from an athlete to an actor came with its physical demands. His first significant role in "Magnum P.I." required him to perform various stunts and maintain a fit appearance. This role, which he played from 1980 to 1988. necessitated a rigorous fitness routine to meet the show's demands. setting the stage for his long-term commitment to health and wellness.
Fitness Regimen
Workout Routine
Tom Selleck health and fitness regimen has evolved. adapting to his changing roles and age. During his "Magnum, P.I." days. Selleck's workouts were intense and focused on building and maintaining muscle mass. His routine included weightlifting, cardiovascular exercises. and specific training for the stunts he performed on the show.
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In recent years, Selleck has emphasized the importance of flexibility and mobility in his fitness regimen. Understanding the natural decline in muscle mass and joint flexibility with age. he includes stretching and yoga in his routine. These practices help prevent injuries, improve posture, and maintain mobilit
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2. RESEARCH CONTEXT AND OBJECTIVES
Leger, on behalf of the Canadian Cancer Survivor Network (CCSN), conducted an online study
to assess the long-term impact of COVID-19 on cancer patients.
Specifically, how long COVID impacts cancer patients and their ability to receive treatment.
• Are cancer patients and caregivers concerned about long COVID?
• Do cancer patients & caregivers get mild/severe COVID or COVID more than once?
• COVID-19 vaccination status
• How long have they experienced long COVID? Was it diagnosed by an HCP?
• Symptoms caused by long COVID? Are symptoms improving or much the same?
• Do cancer patients with long COVID have other comorbidities/chronic diseases?
• Impact of long COVID on lifestyle, ability to go back to work or to contribute to society in
other ways, other activities (sports, hobbies, etc.)?
• What financial impact, if any, is long COVID causing?
• Are they getting any help (medical, counselling, etc.) for long COVID symptoms?
• What is “normal” now to cancer patients and caregivers?
Key topics addressed
in the survey
2
3. RESEARCH METHODOLOGY – SAMPLE SIZE
Data collection took place from March 2nd to May
3rd, 2023.
Web survey of 119 Canadians with cancer
The survey was made available in both
English and French
REGIONAL ACHIEVEMENTS
QUE 31%
(37)
ON 38%
(45)
AB 10%
(12)
BC 11%
(13)
SK 3%
(4)
ATL 3%
(3)
MB 3%
(4)
3
4. RESEARCH METHODOLOGY – RECRUITMENT
SCREENING CRITERIA:
• 18 years or older and currently living in Canada
• Respondents qualification criteria:
Diagnosed with cancer within the past 10 years
They, or their caretaker, have had long covid
RECRUITMENT:
• N=86 respondents were recruited via our LEO PANEL – Leger’s proprietary consumer panel
with nearly 500,000 members (largest in Canada)
• N=33 respondents were recruited via open links sent out to CCSN members and CCSN partner
organization members
4
6. Nearly half of
respondents were
first infected with
COVID-19 more
than 1 year ago.
Half rate the
severity of their
infection as
Moderate.
Cough, Fatigue,
Body ache / pain,
Headache, and
Fever were the
most common
symptoms
experienced
Nearly nine in ten
respondents
confirmed their
infection, mostly
through rapid or
PCR tests
Only 4% of
respondents say
they are not
vaccinated against
COVID-19 and do
not intend to
receive any
vaccinations
7
FIRST INFECTED
WITH COVID-19
Within the past 3 months
From 3 to 6 months ago
From 6 months to 1 year ago
More than 1 year ago
11%
18%
25%
46%
1% do not recall
SEVERITY OF COVID-19
INFECTION
Mild
Moderate
Severe
I don’t know
25%
50%
22%
3%
SYMPTOMS EXPERIENCED
Cough
Fatigue
Body ache / pain
Headache
Fever
Breathing problems
Loss of taste
Difficulty concentrating
Loss of smell
Sleep problems
Digestive symptoms
Inability to exercise
Dizziness when you stand
Heart symptoms / conditions
Pins-and-needles feeling
Nausea / vomiting
Anxiety / depression
Other
73%
70%
67%
61%
59%
49%
37%
33%
32%
25%
25%
25%
24%
21%
19%
17%
16%
9%
8%
HOSPITALIZED FOR
TREATMENT OF
COVID-19
87%
CONFIRMED
INFECTION
VACCINATION
STATUS
96%
Vaccinated
3% One dose
12% Two doses
81% One or more boosters
4% Not
vaccinated
<55: 73%
Female: 68%
<55: 75%
Female: 56%
ROC: 50%
Male: 35%
QC: 56%
QC: 6%
QC: 95%
PR: 95%
COVID DEVELOPMENT DETAILS AND VACCINATION STATUS
7. SEVEN IN TEN experience FATIGUE as a symptom of LONG COVID, with about ONE-QUARTER of
respondents reporting experiencing symptoms for MORE THAN ONE YEAR since initial infection.
NEARLY NINE IN TEN report still feeling the impact of COVID-19.
8
LONG COVID
SYMPTOMS
Fatigue
Difficulty breathing
Memory, concentration or
sleep problems
Muscle aches
Persistent cough
Depression or anxiety
Loss of smell or taste
Chest pain
Trouble speaking
Fever
Digestive symptoms
Other
72%
57%
53%
47%
43%
36%
29%
19%
15%
10%
5%
11%
LENGTH OF TIME EXPERIENCED
LONG COVID SYMPTOMS
Less than 6 months
7 months – 1 year
Between a year and a year
and a half
More than a year and a half
I don't know
38%
21%
10%
14%
17%
LENGTH OF TIME TO RECOVER
FROM LONG COVID
Less than 3 months
3 – 4 months
5 – 6 months
7 months – 2 years
Still feeling the impact
of COVID-19
SYMPTOMS EXPERIENCING
Fatigue
Memory, concentration or
sleep problems
Difficulty breathing
Muscle aches
Persistent cough
Depression or anxiety
Loss of smell or taste
Trouble speaking
Chest pain
Digestive symptoms
Fever
Other
77%
52%
50%
45%
34%
33%
24%
17%
14%
6%
3%
14%
Self-diagnosed based on
symptoms
A healthcare professional
diagnosed me / my caregiver
A friend / family made me
realize I may have long COVID
My caregiver made me realized I
had / have long COVID
Other
56%
30%
11%
5%
10%
ROC: 62%
QC: 22%
ROC: 62%
Stage 4*: 57%
*Caution: Low base (<20)
Remission: 47%
<55: 19%
QC: 37%
Stage 4*: 67%
*Caution: Low
base (<20)
n=98
5%
3%
3%
3%
86%
Of those who feel
they have
recovered, it took
an average of
5 months to
feel that they had
completely
recovered
DIAGNOSING LONG COVID
8. MORE THAN HALF (57%) of respondents have consulted a HEALTHCARE PRACTITIONER to manage
their LONG COVID. However, when it comes to treatment, nearly HALF say they’re NOT GETTING
ANY HELP and ONE IN FIVE say they DON’T NEED ANY HELP.
9
HEALTHCARE PRACTITIONERS
CONSULTED TO MANAGE
LONG COVID
Consulted Healthcare
Practitioner (Net)
I don't know who to consult
I haven't consulted any
healthcare practitioner
57%
9%
34%
GETTING HELP NEEDED TO OVERCOME
LONG COVID / ACCESS TO LONG COVID
TREATMENT PROGRAMS
Getting help (Net)
I'm / they're not getting
any help
I / they don't need any
help
I / they don't know where
to seek help
26%
47%
18%
9%
BARRIERS IN GETTING HELP TO
OVERCOME LONG COVID / ACCESS
LONG COVID TREATMENT PROGRAMS -
Unaided
Difficulty discussing subject with
doctor
Difficulty to obtain diagnosis
Access to a (family) doctor
Lack of information regarding Long
COVID treatment programs
Lack of proper treatment
Other
I don't know
20%
13%
11%
11%
9%
29%
15%
<55: 15%
55+: 41%
Male: 29%
ON: 29%
<55: 25%
55+: 19%
(Among those who indicated they are not getting any help to overcome
their long COVID / access long COVID treatment programs n=55)
Healthcare Practitioners Consulted:
• Family doctor / general practitioner (50%)
• Another physician (11%)
• Oncologist (10%)
• Long COVID clinic (6%)
• Pharmacist (5%)
• Mental health counsellor (4%)
• Nurse (3%)
• Other (4%)
Getting Help Needed:
• Medical treatment (17%)
• Counselling (6%)
• Rehabilitation (4%)
• Long COVID clinic (3%)
• Other (11%)
55+: 22%
9. 10
7%
6%
19%
39%
29%
68% Very
or
Somewhat
Concerned
Very Concerned (n=31): (Unaided)
•Worried about long term issues / persistence of symptoms
(11 mentions)
•Lack of knowledge / uncertainty of effects (7 mentions)
•Symptoms / conditions are worsening (7 mentions)
•Reduced quality of life / wellbeing (6 mentions)
•Lack of medical support (5 mentions)
Somewhat Concerned (n=39): (Unaided)
•Worried about long term issues / persistence of symptoms
(14 mentions)
•Reduced quality of life / wellbeing (9 mentions)
•It can worsen other medical conditions (5 mentions)
Being able to see the doctor managing cancer in-person for regular follow-up appts
Being able to get help if I experience side effects related to treatment or new symptoms
Ability to be cared for in emergency room at hospital if needed
Being able to receive post-treatment rehabilitative care
Ability to receive hospital care (other than emergency room) if needed
Being able to get tests related to my cancer
Ability to receive adequate care / support from family / friends
Being able to receive cancer treatment in a timely fashion
Ability to receive adequate care / support from caregiver
Top 2
Box**
37%
37%
36%
35%
34%
34%
31%
27%
25%
IMPACT OF HAVING LONG COVID ON
ABILITY TO RECEIVE CANCER CARE
CONCERN ABOUT LONG COVID
IMPACT OF HAVING COVID ON
OTHER ASPECTS OF LIFE
Overall state of health and wellbeing
Ability to exercise
Ability to participate in social engagements
Ability to participate in hobbies, sports, volunteering or other such activities
Mental health
Diet/ nutrition
Time to care for others in family
Ability to go back to work (inside or outside the home)
Financial wellbeing
Top 2
Box**
82%
74%
70%
67%
66%
60%
59%
52%
43%
VERY
CONCERNED
SOMEWHAT
CONCERNED
NOT VERY
CONCERNED
NOT AT ALL
CONCERNED
I DON’T
KNOW
Stage 4*: 100%
Female: 77%
QC: 51%
*Caution: Low base (<20)
Stage 4*: 57%
QC: 41%
<55: 47%
<55: 51%
ROC: 16%
<55: 49%
ROC: 24%
<55: 84%
Female: 79%
55+: 79%
55+: 84%
QC: 49%
55+: 72%
Female: 67%
<55: 58%
Female: 52%
TWO IN THREE are VERY OR SOMEWHAT CONCERNED about their LONG COVID – mainly due to the potential LONG TERM
ISSUES, REDUCED QOL, and UNCERTAINTY OF EFFECTS. ONE-QUARTER to nearly TWO IN FIVE report COVID having an IMPACT
ON THEIR ABILITY TO RECEIVE CANCER CARE. However, respondents report a LARGER IMPACT on OTHER ASPECTS OF LIFE.
<55: 44%
Female: 41%
should we sa
Significant + So
Impact instea
Added footno
**On a 4-point scale: Significant impact, some impact, not
much impact, or no impact at all. Top 2 box is a net of
respondents who chose significant impact or some impact
10. Of those who report experiencing LONG COVID impacts their FINANCIAL WELLBEING, half say this is
due to the INABILITY TO WORK full-time or as usual. Respondents feel BETTER ACCESS TO AND
SUPPORT FROM A DOCTOR would help them overcome LONG COVID.
11
Inability to work as usual
(full time)
Increase in expenses
Inability to work / loss of
income
Difficulty to pay the rent /
bills
Indebted
Other
49%
26%
23%
9%
4%
17%
FINANCIAL IMPACT OF
LONG COVID - Unaided
Better access / support from a
(family) doctor
Treatment / medication / cure
Information / counselling
Better access to a long covid
clinic / specialist
Psychotherapy
Physiotherapy
Housekeeping service (free)
Financial support
Diagnosis / test
More research / studies
Specialist
Others
None / nothing in particular / I
don't know
13%
13%
11%
8%
4%
4%
4%
4%
3%
3%
3%
10%
34%
SUPPORT / SERVICES NEEDED TO
OVERCOME SYMPTOMS OF LONG
COVID - Unaided
Fatigue / lack of energy
Anxiety / depression
Reduced quality of life /
wellbeing
Being more careful / follow
health measures
Isolation
Weakness / reduced physical
capacity
Accept and learn to live
differently
Shortness of breath or difficulty
breathing
Frustration of struggling
Other
Nothing has changed
18%
15%
11%
11%
10%
9%
8%
7%
6%
24%
14%
NEW “NORMAL” LIVING WITH CANCER
AND EXPERIENCING / HAVING
EXPERIENCED LONG COVID - Unaided
55+: 18%
Female: 17%
Female only
Male only
55+ only
<55: 28%
ON: 2%
(Among those who indicated having long COVID had a
significant or some impact on their life n=47)
12. KEY STUDY FINDINGS
Among those surveyed, HALF of patients diagnosed with cancer within the past 10 years, or their caregivers, DEVELOPED COVID-19. Of those,
about ONE IN SIX have experienced or are EXPERIENCING LONG COVID.
Nearly half of patients were FIRST INFECTED with COVID-19 MORE THAN ONE YEAR AGO. Half rate the severity of their infection as MODERATE.
The most common symptoms experienced were cough (73%), fatigue (70%), body aches / pains (67%), headaches (61%), and fever (59%).
• Nearly nine in ten were able to CONFIRM THEIR COVID-19 INFECTION. Two-thirds confirmed their infection via Rapid test, and one-
quarter via PCR test
• Fewer than one in ten (8%) were HOSPITALIZED for treatment of COVID-19
Respondents most often continued to experience fatigue, shortness of breath or difficulty breathing, memory, concentration or sleep problems,
and other COVID symptoms. THREE IN TEN WERE FORMALLY DIAGNOSED WITH LONG COVID by a healthcare professional, but the largest
proportion (56%) SELF-DIAGNOSED long COVID based on symptoms.
• Of those diagnosed by a healthcare professional, three in four (78%) were DIAGNOSED BY A GP and 11% were diagnosed by a specialist
Nearly TWO IN FIVE respondents (37%) reported DIFFICULTIES BEING DIAGNOSED with long covid. Nearly one-quarter consulted a healthcare
professional regarding their symptoms, but they did not receive a formal diagnosis. However, 38% DID NOT CONSULT A HEALTHCARE
PROFESSIONAL for their long COVID symptoms.
One-quarter of respondents experienced or have been experiencing long COVID symptoms for MORE THAN ONE YEAR at the time of survey.
86% report that they are STILL FEELING THE EFFECTS of long COVID. Of those who feel fully recovered, it took them an average of 5 months to
feel completely recovered.
1
2
4
5
3
13
13. KEY STUDY FINDINGS
Those who are still feeling the effects of long COVID are most likely experiencing FATIGUE (77%), memory, concentration or sleep problems
(52%), or shortness of breath or difficulty breathing (50%).
Of the symptoms they are still experiencing, the majority say the SYMPTOMS ARE UNCHANGING, they are not improving or getting worse.
However, more than two in five who are experiencing DEPRESSION OR ANXIETY report their symptoms are GETTING WORSE.
When it comes to treating and managing long COVID, MORE THAN HALF OF PATIENTS have CONSULTED A HEALTHCARE PRACTITIONER. Some
have consulted specialists like neurologists and lung specialists. One-third have not consulted any healthcare practitioner.
• Nearly half DID NOT or ARE NOT GETTING ANY HELP to overcome long COVID or access long COVID treatment programs. Of those not
receiving help, one in five say it’s a difficult subject to discuss with their doctor – some feel there is a LACK OF KNOWLEDGE or receptivity
to their having long COVID on the doctor’s part.
TWO-THIRDS are VERY or SOMEWHAT CONCERNED about long COVID, mainly due to the unknown of long-term issues, unchanging symptoms,
the reduced quality of life, and the lack of medical support or treatment
• FEMALES are MORE LIKELY TO BE CONCERNED about their long COVID than males
• Those in QUEBEC are LESS LIKELY TO BE CONCERNED about their long COVID than other provinces
1
2
4
3
14
14. KEY STUDY FINDINGS
Nearly two in five patients say their ABILITY TO SEE THEIR DOCTOR IN-PERSON FOR REGULAR FOLLOW-UP APPOINTMENTS and ABILITY TO GET
HELP RELATED TO SIDE EFFECTS OR NEW SYMPTOMS from a treatment was impacted in some or a significant way due to their or their caregiver’s
long COVID.
• Those YOUNGER THAN 55 report their long COVID having MORE OF AN IMPACT ON THEIR CANCER CARE than those 55 years of age or older.
Specifically, being able to get help if they experience side effects related to treatment, ability to be cared of in emergency room if needed, and
being able to receive post-treatment rehabilitative care
Additionally, OVERALL STATE OF HEALTH AND WELLBEING was reported to have been impacted the most due to their or their caregiver’s long
COVID.
• As with impact on cancer care, those YOUNGER THAN 55 report MORE OF AN IMPACT on other aspects of their life such as exercise, hobbies,
mental health, diet / nutrition, and financial wellbeing.
• FEMALES also report MORE OF AN IMPACT on other aspects of their life.
The FINANCIAL IMPACT of long COVID on respondent’s lives is mostly due to an INABILITY TO WORK AS USUAL (full time). Additionally, an increase
in expenses due to needing to arrange for things to be delivered or pay for other services has put a strain on some with long COVID.
Patients feel that BETTER ACCESS TO AND SUPPORT FROM THEIR FAMILY DOCTORS, access to treatments and medication, and additional
information or counselling would help them to overcome their long COVID
Nearly one in five respondents feel that their new “normal” is LIVING WITH FATIGUE or a lack of energy along with INCREASED ANXIETY OR
DEPRESSION and REDUCED QUALITY OF LIFE.
1
2
4
5
3
15
15. KEY TAKEAWAYS
Of Cancer patients who were infected with COVID-19, one in six may experience long COVID
While three in ten cancer patients showing symptoms of long COVID were formally diagnosed by a healthcare professional, about one in five consulted a
healthcare practitioner but did not receive a formal diagnosis. 37% in total reported having difficulties being diagnosed. In some cases, this was later
problematic as to access long COVID treatment clinics, patients needed a referral. This was additionally problematic for those without a GP.
Nearly three in five respondents have looked to a healthcare practitioner for assistance with managing long COVID and treatment options, while one-third
have not discussed their long-COVID with any healthcare practitioner.
About one-quarter are getting help to manage or treat their long COVID, but half say they’re not getting any help. Of those not getting any help, they feel
their doctor has a lack of knowledge of long COVID or a lack of receptivity to their having long COVID.
Patients feel that better access / support from a (family) doctor, a treatment or medication for long COVID, and more information and counselling
about long COVID would help them to better manage their long COVID.
The two biggest areas of impact that having long COVID had on receiving cancer treatment were related to being able to see the doctor who is managing
cancer in-person for regular follow-up appts and being able to get help if the patient experiences side effects related to treatment or new symptoms.
Being able to receive cancer treatment in a timely fashion and receiving support from a caregiver were less impacted.
In other areas of their life, cancer patients who experienced or are experiencing long COVID felt that long COVID had an impact on their overall health
and wellbeing, as well as their ability to exercise, participate in social activities, or other hobbies and activities. 43% said long COVID had a significant or
some impact on their financial wellbeing, with more than half of females (52%) and those less than 55 years old (58%) reporting some or significant
impact on their financial wellbeing.
While some patients have fully recovered others think the new “normal” is adjusting to life with an ongoing sense of fatigue or lack of energy, along with
anxiety, depression, and a reduced quality of life.
16
17. Of 1,505 respondents diagnosed with cancer in the past 10 years, half have had, or their
caregiver has had, COVID-19. Of those who have had COVID-19, 16% have experienced or are
experiencing long COVID
1,505 respondents
diagnosed with cancer in the
past 10 years
760 have either had COVID-19 or
their caregiver has had COVID-19
124 have experienced or are
experiencing long COVID
100%
50%
8%
16% of cancer patients surveyed who
developed COVID-19 experienced or
are experiencing long COVID
Patient or caregiver
has had COVID-19
Patient or caregiver has
had long COVID-19
18
18. Nearly half of patients were first infected with COVID-19 more than one year ago and about the
same proportion rated the severity of their infection as moderate
Q2. When were you first infected with COVID-19? / Q3. How would you rate the severity of your / your cargiver’s COVID-19 infection?
FIRST INFECTED WITH COVID-19
Within the past 3 months
From 3 to 6 months ago
From 6 months to 1 year ago
More than 1 year ago
11%
18%
25%
46%
Base: Total Patients (n=114) / Total Respondents (n=119)
1% do not recall
SEVERITY OF COVID-19 INFECTION
Mild
Moderate
Severe
I don’t know
25%
50%
22%
3%
Stage 2*: 44%
*Caution: Low base (<20)
QC: 22%
<55: 58%
19
19. The most common symptoms experienced that led respondents to believe that they had COVID were
cough, fatigue, body ache / pain, headache, and fever
Q4. What symptoms did you experience that led you to believe you had COVID?
SYMPTOMS EXPERIENCED
Cough
Fatigue
Body ache / pain
Headache
Fever
Shortness of breath / breathing problems
Loss of taste
Difficulty thinking or concentrating
Loss of smell
Sleep problems
Digestive symptoms, including diarrhea and stomach pain
Inability to exercise
Dizziness when you stand
Heart symptoms or conditions
Pins-and-needles feeling
Nausea / vomiting
Anxiety / depression
Other
Other mentions (<10%):
Rash, Sore throat, Cold symptoms, Blood clots and
blood vessel (vascular) issues, Changes in menstrual
cycle, High sensitivity of smell, Sneezing, Runny
nose, Fast aging
Base: Total Patients (n=114)
73%
70%
67%
61%
59%
49%
37%
33%
32%
25%
25%
25%
24%
21%
19%
17%
16%
9%
Dr. dx LC: 85%
Dr. dx LC: 85%
Dr. dx LC: 65%
Stage 2*: 57%
*Caution: Low base (<20)
20
20. Symptoms experienced – in detail
Q4. What symptoms did you experience that led you to believe you had COVID?
SYMPTOMS EXPERIENCED
Base: Total Patients (n=114)
TOTAL ON QC ROC MALE FEMALE 18-54 55+
n=114 n=44 n=36 n=34 n=37 n=77 n=40 n=74
Cough 73% 77% 56% 85% 81% 69% 78% 70%
Fatigue 70% 70% 64% 76% 70% 70% 78% 66%
Body ache / pain 67% 73% 58% 68% 70% 65% 70% 65%
Headache 61% 52% 64% 71% 49% 68% 73% 55%
Fever 59% 61% 61% 53% 51% 62% 75% 50%
Shortness of breath / breathing problems 49% 52% 42% 53% 35% 56% 53% 47%
Loss of taste 37% 39% 31% 41% 32% 39% 38% 36%
Difficulty thinking or concentrating 33% 30% 22% 50% 35% 32% 30% 35%
Loss of smell 32% 30% 31% 35% 32% 31% 40% 27%
Sleep problems 25% 25% 31% 21% 35% 21% 23% 27%
Digestive symptoms, diarrhea and stomach pain 25% 34% 14% 26% 24% 26% 28% 24%
Inability to exercise 25% 30% 19% 24% 24% 25% 33% 20%
Dizziness when you stand 24% 23% 19% 29% 22% 25% 25% 23%
Heart symptoms or conditions 21% 20% 14% 29% 16% 23% 28% 18%
Pins-and-needles feeling 19% 27% 6% 24% 14% 22% 28% 15%
Nausea / vomiting 17% 20% 14% 15% 11% 19% 23% 14%
Anxiety / depression 16% 23% 6% 18% 14% 17% 15% 16%
Other 9% 14% 3% 9% 8% 9% 8% 9%
Mentions <10% not shown
21
21. Six in seven respondents were able to confirm their COVID-19 infection – majority via rapid test
Q5. How did you confirm that you were infected with COVID-19?
Base: Total Respondents (n=119)
CONFIRMED INFECTION
Confirmed (Net)
Confirmed through a Rapid test
Confirmed through a PCR test
Tested positive when went to hospital for treatment for another condition
Confirmed through blood serum test
Consulted doctor who suggested COVID-19 but did not take a COVID test to confirm
Did not take COVID-19 test but believe it to be COVID-19 infection because of
symptoms
87%
68%
24%
8%
3%
7%
6%
QC: 95%
PR: 95%
Remission: 79%
*Caution: Low base (<20)
Female: 28%
22
22. 8% of respondents were hospitalized for treatment of their COVID-19 infection.
Of all cancer patients, 96% are vaccinated, with most having received at least one booster.
Q6. Were you hospitalized for the treatment of COVID-19? / Q7. Have you been vaccinated against COVID-19? / Q9. As far as you know, have you / your caregiver been infected with
COVID-19 once or more than once?
Base: Total Patients (n=114) / Total Patients (n=114) / Total Respondents (n=119)
8%
VACCINATION STATUS
Vaccinated (Net)
One dose
Two doses
One or more booster doses (in
addition to two doses)
Not vaccinated, and do not
intend to
96%
3%
12%
81%
4%
66%
28%
6%
Once More than
once
Don't
know
NUMBER OF TIMES INFECTED
WITH COVID-19
HOSPITALIZED FOR TREATMENT
OF COVID-19
ROC: 65%
<55: 70%
55+: 74%
Those hospitalized are all
vaccinated to some extent
(unknown if they were vaccinated
at the time of hospitalization)
ROC: 24%
23
23. Fatigue is the most common long COVID symptom respondents experienced or are still experiencing,
by nearly three-quarters. More than half also experience(d) shortness of breath or difficulty breathing
and memory, concentration or sleep problems
S12. Which of the following long COVID symptoms did you or do you experience? / As far as you know, which of the following long COVID symptoms did your caregiver experience or are
currently experiencing?
Base: Total respondents (n=119)
SYMPTOMS
EXPERIENCED/EXPERIENCING
Fatigue
Shortness of breath or difficulty breathing
Memory, concentration or sleep problems
Muscle aches
Persistent cough
Depression or anxiety
Loss of smell or taste
Chest pain
Trouble speaking
Fever
Digestive symptoms
Other
72%
57%
53%
47%
43%
36%
29%
19%
15%
10%
5%
11%
Other mentions (<5%):
Ear issues (painful, blocked), dizziness, weakened
immune system, throat issues, phantosmia,
phlegm, shakes
QC: 22%
ROC: 62%
Dr. dx LC: 61%
ROC: 62%
Stage 2*: 69%
Stage 4*: 57%
*Caution: Low base (<20)
Dr. dx LC: 19%
24
24. One-quarter of respondents experienced or have been experiencing long COVID symptoms for more than one
year. On average, respondents or their caregivers experienced symptoms for 11 months
Q10. Earlier you mentioned that you have experienced / are experiencing long COVID. For how long did you experience / have you been experiencing long COVID symptoms?
Base: Total respondents (n=119)
LENGTH OF TIME EXPERIENCED
LONG COVID SYMPTOMS
Less than 3 months
4 - 6 months
7 - 9 months
10 months - 1 year
Between a year and a year and a half
More than a year and a half
I don't know
22%
16%
8%
13%
10%
14%
17%
On average, respondents or their
caregivers experienced, or have been
experiencing, long COVID symptoms for
11 months
Stage 4*:
19 months
*Caution: Low base (<20)
Dr. dx LC: 25%
Remission: 11%
25
25. Nearly nine in ten respondents who reported having experienced long COVID report that they are
still feeling the impact of COVID-19
Q14. How long did it take for you to feel that you had completely recovered from long COVID?
Base: Total respondents (n=118)
LENGTH OF TIME TO RECOVER
FROM LONG COVID
Less than 3 months
3 – 4 months
5 – 6 months
7 months – 2 years
Still feeling the impact of COVID-19
5%
3%
3%
3%
86%
Of those who feel as though they have recovered
from long COVID, it took an average of
5 months to feel that they had completely
recovered
26
26. Three in ten respondents were diagnosed by a healthcare professional with long COVID, while the
remainder are self-diagnosed based on symptoms. Of those diagnosed by a healthcare professional,
three in four were diagnosed by their GP
Q11. How did you / your caregiver find out that you are / were experiencing long COVID? / Q13. Which healthcare professional diagnosed you with long COVID?
Base: Total Respondents (n=119)
CONFIRMING LONG COVID
Self-diagnosed based on symptoms, did not receive a formal diagnosis
A healthcare professional diagnosed me / my caregiver with long COVID
A friend / family member made me / my caregiver realized I / they may
have long COVID, but did not receive a formal diagnosis
My caregiver made me realized I had / have long COVID but did not
receive a formal diagnosis
Other
56%
30%
11%
5%
10%
<55: 19%
Remission: 47%
<55: 40%
Of the 27 respondents formally
diagnosed with long COVID, three-
quarters (78%) were diagnosed by their
GP and 11% were diagnosed by another
specialist physician
27
27. Nearly two in five respondents experienced difficulties being diagnosed with long COVID, mainly that
they consulted a healthcare professional but they did not receive a formal diagnosis. An additional
two in five did not consult a healthcare professional for their long COVID symptoms
Q12. Did you / your caregiver or do you face any difficulty being formally diagnosed with long COVID by a healthcare professional?
Base: Total Respondents (n=119)
DIFFICULTIES BEING DIAGNOSED WITH LONG COVID
Difficulties being diagnosed (Net)
YES – I consulted a healthcare professional for my symptoms, but they did not
formally diagnose with long COVID
YES – because I was diagnosed with COVID-19 through a rapid test at home and did
not have proof of COVID-19 when started experiencing long COVID symptoms
YES – because I did not take any tests to confirm COVID-19
YES – because I did not have a confirmation of COVID-19 through a positive PCR /
blood test
YES – other reason
No difficulty - I consulted a healthcare professional for my symptoms and they
formally diagnosed me with long COVID
I did not consult a healthcare professional for long COVID symptoms
37%
22%
3%
3%
2%
8%
25%
38%
Female: 45%
<55: 33%
28
28. Three in four respondents who are still feeling the impact of long COVID are experiencing fatigue and
half are experiencing memory, concentration or sleep problems
Q15. What symptoms do you continue to experience since your initial COVID-19 diagnosis?
Base: Those still feeling impact of long COVID (n=98)
SYMPTOMS EXPERIENCING
Fatigue
Memory, concentration or sleep problems
Shortness of breath or difficulty breathing
Muscle aches
Persistent cough
Depression or anxiety
Loss of smell or taste
Trouble speaking
Chest pain
Digestive symptoms
Fever
Other
77%
52%
50%
45%
34%
33%
24%
17%
14%
6%
3%
14%
Other mentions (<3%):
Ear issues (painful, blocked), throat issues,
insomnia, phantosmia, GERD, hives, headaches
QC: 37%
55+: 22%
Stage 4*: 67%
*Caution: Low base (<20)
29
29. Of the symptoms they are still experiencing, the majority report they are unchanging, not improving
or getting worse. However, more than two in five who are experiencing depression or anxiety report
their symptoms are getting worse
Q16. Are you seeing any change in the long COVID symptoms you continue to experience?
Base: Those still feeling impact of long COVID (n=98)
CHANGE IN CONTINUED LONG COVID SYMPTOMS
Chest pain (n=14*)
Shortness of breath or difficulty breathing (n=49)
Fatigue (n=75)
Memory, concentration or sleep problems (n=51)
Depression or anxiety (n=32)
Persistent cough (n=33)
Muscle aches (n=44)
Trouble speaking (n=17*)
Loss of smell or taste (n=24)
Other (n=14*)
36%
31%
28%
25%
25%
21%
20%
18%
17%
43%
50%
57%
61%
57%
31%
58%
59%
71%
79%
43%
14%
12%
11%
18%
44%
21%
20%
12%
4%
14%
Improving Much the
same
Getting
worse
*Caution: Low base (<20)
Symptoms with 10 or fewer respondents experiencing them not shown
ROC: 74%
ON: 35%
Male*: 92%
<55*: 42%
ON: 0%
Remission* only
30
30. Two in five patients experienced fatigue as a new symptom after their initial COVID-19 infection.
Other commonly experienced symptoms were body aches / pain, shortness of breath / breathing
problems, and dizziness when standing
Q17. Are there any new symptoms you experienced for the first time after your initial COVID-19 infection which you did not experience before you had COVID-19?
Base: Total Patients (n=114)
NEW SYMPTOMS AFTER INITIAL COVID-19 INFECTION
Fatigue
Body ache / pain (joint or muscle pain)
Shortness of breath / breathing problems
Dizziness when you stand
Cough
Difficulty thinking or concentrating
Loss of taste
Sleep problems
Headache
Loss of smell
Pins-and-needles feeling
Inability to exercise
Digestive symptoms, including diarrhea and stomach pain
Anxiety / depression
Heart symptoms or conditions
Fever
Other
39%
33%
30%
27%
24%
24%
24%
23%
21%
19%
16%
15%
14%
13%
13%
12%
11%
Other mentions (<10%):
Rash, Nausea / vomiting, Blood clots and blood
vessel issues, Changes in menstrual cycle, Throat
issues, Skin issues
55+: 26%
*Caution: Low base (<20)
55+: 28%
55+: 32%
Female only
31
32. Half of patients consulted their family doctor to help them manage long COVID, while one-third say
they have not consulted any healthcare practitioner
Q18. Did you consult any healthcare practitioner to help you manage long COVID?
Base: Total Patients (n=114)
HEALTHCARE PRACTITIONERS
CONSULTED TO MANAGE LONG COVID
Consulted healthcare practitioner (Net)
Family doctor / General Practitioner
Another physician
Oncologist
Long COVID clinic
Pharmacist
Mental health counsellor
Nurse
Other
I don't know who to consult to for long COVID symptoms
I haven't consulted any healthcare practitioner
57%
50%
11%
10%
6%
5%
4%
3%
4%
9%
34%
“ENT, Neurologist” - ON
“Lung specialist” - BC
“Naturopath” - BC
Female only
“One of the hospitals had a
COVID outreach team” - ON
<55: 15%
55+: 41%
33
33. Nearly half of respondents did not or are not getting help to overcome long COVID or access long
COVID treatment programs
Q19. Did you / your caregiver or are you getting the help you need to overcome long COVID / access to long COVID treatment programs?
Base: Total respondents (n=119)
GETTING HELP NEEDED TO OVERCOME LONG COVID
/ ACCESS TO LONG COVID TREATMENT PROGRAMS
Getting help (Net)
Medical treatment
Counselling
Rehabilitation
Long COVID clinic
Other
I'm / they're not getting any help
I / they don't need any help
I / they don't know where to seek help
26%
17%
6%
4%
3%
11%
47%
18%
9%
“First long COVID clinic was
underwhelming. On waiting list for
Toronto Western- a year’s waiting list. I
desperately need nutritional counseling
because of competing dietary needs for
different conditions - not available
under OHIP, and a dietician only focuses
on one condition not competitors. None
of the specialists or the family doctor
will deal with or manage LC” - ON
“Inadequate help with long waitlists for
tests and specialists” - BC
<55: 9%
Male: 29%
QC: 14%
55+: 22%
34
34. Of respondents who are not getting help to manage their long COVID, one in five say it’s because the
subject is difficult to discuss with their doctor due to a lack of knowledge or receptivity, while others
say it’s difficult to obtain a diagnosis or even access the doctor
BARRIERS IN GETTING HELP TO OVERCOME LONG COVID /
ACCESS LONG COVID TREATMENT PROGRAMS - Unaided
Difficulty discussing subject with doctor (lack of knowledge, receptivity)
Difficulty to obtain diagnosis
Access to a (family) doctor
Lack of information regarding long COVID treatment programs
Lack of proper treatment
Other
I don't know
20%
13%
11%
11%
9%
29%
15%
“Wait times at clinics” - AB
“There's nothing really available with my
insurance here. You have to pay for it out
of pocket and that is impossible for me
right now.” - SK
Q19b. As far as you know, what are the barriers [for your caregiver] in getting help to overcome long COVID / access to long COVID treatment programs?
Base: Respondents not getting help to manage long COVID (n=55)
ON: 29% <55: 25%
55+ only
35
35. Respondents not getting help to manage their long COVID believe barriers to care are a lack of
knowledge on the doctor’s part or access to the doctor
Q19b. As far as you know, what are the barriers [for your caregiver] in getting help to overcome long COVID / access to long COVID treatment programs?
Base: Respondents not getting help to manage long COVID (n=55)
BARRIERS IN GETTING HELP TO OVERCOME LONG COVID /
ACCESS LONG COVID TREATMENT PROGRAMS
“Having a supportive GP
that cares, isn’t burnt out
and knows anything
about long COVID” - ON
“Having different medical issues, including
cancer tend to get doctors to concentrate on
those issues. And when they find that all Is
normal with those health issues, they
disregard the rest and it seems they don't
want to say it is long covid” - ON
“I am not aware of COVID-
long management programs
or how to access them” - QC
“Doctor does not
seem to believe or
understand my
discomfort” - QC
“There's not enough general knowledge by GPs or the
public regarding this matter. Provide access to long covid
clinics without the required physician referral.” - ON
“No family doctor so
difficult to get
referral.” - ON
“I have been told
there is nothing that
can be done to get rid
of long COVID” - BC
36
36. Two in three are very or somewhat concerned about long COVID, mainly due to any long-term
issues, reduced quality of life, and uncertainty of long-term effects
Q20. How concerned are you about your / your caregiver’s long COVID? / Q20b. Why do you say that?
Base: Total respondents (n=119)
CONCERN ABOUT LONG COVID
7%
6%
19%
39%
29%
VERY
CONCERNED
SOMEWHAT
CONCERNED
NOT VERY
CONCERNED NOT AT ALL
CONCERNED
I DON’T
KNOW
68% Very or
Somewhat
Concerned
Very Concerned (n=31): (Unaided)
• Worried about long term issues / persistence of symptoms (11 mentions)
• Lack of knowledge / uncertainty of effects (7 mentions)
• Symptoms / conditions are worsening (7 mentions)
• Reduced quality of life / wellbeing (6 mentions)
• Lack of medical support (5 mentions)
Other mentions (<5): It can worsen other medical conditions, Symptoms are concerning,
Worried about getting COVID again, Learning to live differently, Stories from others, I have
other conditions to deal with, Worried about worsening symptoms
Somewhat Concerned (n=39): (Unaided)
• Worried about long term issues / persistence of symptoms (14 mentions)
• Reduced quality of life / wellbeing (9 mentions)
• It can worsen other medical conditions (5 mentions)
Other mentions (<5): Symptoms are concerning, Vaccinated and still worried, I have other
conditions to deal with, Hope it will resolve, Worried about getting COVID again, Learning to
live differently, Stories from others, Lack of knowledge and effects, Symptoms / conditions are
worsening
QC: 8%
Male: 34%
Stage 4*: 100%
Female: 77%
QC: 51%
*Caution: Low base (<20)
37
37. Those who are ‘Very Concerned’ about long COVID mention the various areas that COVID has impacted their life
including social, physical, mental, emotional, and financial, and feeling like there is no help or treatment options
“Its impact on my life has been
devastating in all aspects.
Physical, mental, emotional,
financial ruin. And it hasn’t
stopped- just keeps appearing in
different body systems. Nor is
there any substantive support,
treatments or management of
symptoms. Specialists are not
interested in extending their
perspectives to include LC. And in
3 years I’ve had 2 new family
doctors and both have now
closed their practices. So as of
May I’ll have no family doctor
and no understanding of how to
access ongoing care for complex
comorbidities.” - ON
Q20. How concerned are you about your / your caregiver’s long COVID? / Q20b. Why do you say that?
Base: Those very concerned about long COVID (n=31)
“VERY CONCERNED” ABOUT LONG COVID
“No treatment in sight. Lack of appropriate
tests that indicate a LC condition. No
effective LC testing within individual
symptoms by specialists. Have gone into
financial free fall and am heading towards
eviction. Have gone into hoarding behaviours
with stress. Had to have my long term
roommate go into LTC because I couldn’t
support his life needs anymore. Loss of family
doctor.” - ON
“Because I am finding it hard to speak
clearly without forgetting or misplacing
words. My memory is getting worse.” - BC
“When I got COVID and long COVID, it was horrible. I
was off for 3 months and then it took an additional 6
to get back to full time work. At various points I
thought I had irreversible brain damage. I couldn’t
even make out simple words like “the”, it was that
bad. There was nothing available to help. I NEVER
want to go through anything like that again. It was
terrifying. To this day, there are times where I feel
there are glimmers of long COVID in my brain. I’m
worried that if I get COVID again, the impact on my
brain will be even worse.” - ON
“Smell of smoke is quite constant, I choke and
sensation also in the eyes. Do not feel anymore or
sense anything else. Fear of staying like that
always. I also get out of breath easily.” - QC
38
38. Those ‘Somewhat Concerned’ mention the impact that long COVID has had on their cancer
treatment or that long COVID prevents them from focusing on their cancer treatments
“Because I can not always do my
chemo and radiation treatments, they
always test me before having a
treatment and if I have a fever and
my blood tests are not good, either it
is my red or white blood cells that
have been affected, I can’t get
treatment.” - QC
Q20. How concerned are you about your / your caregiver’s long COVID? / Q20b. Why do you say that?
Base: Those somewhat concerned about long COVID (n=39)
“SOMEWHAT CONCERNED” ABOUT LONG COVID
“Because chest pain does not
go away. I passed several
exams, CT scans, cardiac echo
and I have nothing.” - QC
“Don’t like not
being able to
concentrate.” - BC
“I worry about how changes in
my lungs will affect my future
cancer outcomes.” - ON
“It's hard to tell the
difference from long
term covid to my cancer
symptoms.” - ON
“I am just hoping this is not permanent
and will eventually resolve. I do have
bigger issues of health to worry about
and would just like to go on living my
life.” - AB
“The ghost smell of
cigarette really
annoys me.” - QC
“It's scary when I can't catch my
breath. I have sleep apnea at night
- stop 60 times an hour use a CPAP
- now I have to lay in bed with
CPAP part of day to be able to
breathe comfortably” - ON
39
39. Nearly two in five patients say their ability to see their doctor in-person for regular follow-up
appointments and ability to get help related to side effects or new symptoms from a treatment was
impacted in some or a significant way
Q21. We would like to understand how long COVID / your caregiver’s long COVID has impacted you personally as a cancer patient. Please indicate the extent to which it has impacted
your ability to receive cancer care
Base: Total Respondents (n=119)
IMPACT OF HAVING COVID ON ABILITY
TO RECEIVE CANCER CARE
17%
12%
18%
19%
19%
18%
18%
14%
13%
19%
25%
18%
16%
14%
15%
13%
13%
13%
22%
16%
13%
9%
13%
17%
15%
13%
14%
36%
37%
37%
37%
36%
42%
44%
45%
46%
6%
10%
14%
18%
18%
8%
10%
15%
14%
Significant
impact
Some
impact
Not much
impact
No impact
at all
Don't
know
Being able to see the doctor managing cancer in-person for regular
follow-up appts
Being able to get help if I experience side effects related to treatment or
new symptoms
Ability to be cared for in emergency room at hospital if needed
Being able to receive post-treatment rehabilitative care
Ability to receive hospital care (other than emergency room) if needed
Being able to get tests related to my cancer
Ability to receive adequate care / support from family / friends
Being able to receive cancer treatment in a timely fashion
Ability to receive adequate care / support from caregiver
Top 2
Box
37%
37%
36%
35%
34%
34%
31%
27%
25%
QC: 27%
Stage 4*: 57%
*Caution: Low base (<20)
40
40. Top 2 Box Ratings TOTAL ON QC ROC MALE FEMALE 18-54 55+
n=119 n=45 n=37 n=37 n=38 n=81 n=43 n=76
Being able to see the doctor managing cancer in-
person for regular follow-up appts 37% 40% 38% 32% 37% 37% 44% 33%
Being able to get help if I experience side effects
related to treatment or new symptoms 37% 42% 43% 24% 34% 38% 49% 30%
Ability to be cared for in emergency room at
hospital if needed 36% 38% 41% 30% 34% 37% 47% 30%
Being able to receive post-treatment
rehabilitative care 35% 36% 35% 35% 24% 41% 51% 26%
Ability to receive hospital care (other than
emergency room) if needed 34% 29% 38% 35% 34% 33% 42% 29%
Being able to get tests related to my cancer 34% 42% 35% 22% 24% 38% 44% 28%
Ability to receive adequate care / support from
family / friends 31% 40% 35% 16% 21% 36% 33% 30%
Being able to receive cancer treatment in a timely
fashion 27% 24% 41% 16% 26% 27% 35% 22%
Ability to receive adequate care / support from
caregiver 25% 24% 30% 22% 18% 28% 30% 22%
Impact of Having COVID on Ability to Receive Cancer Care – in detail (Top 2 Box)
Base: Total Respondents (n=119)
IMPACT OF HAVING COVID ON ABILITY TO RECEIVE CANCER CARE
Q21. We would like to understand how long COVID / your caregiver’s long COVID has impacted you personally as a cancer patient. Please indicate the extent to which it has impacted
your ability to receive cancer care
41
41. Four in five respondents say long COVID has had a significant or some impact on their overall state
of health and wellbeing
Q22. We would like to understand how long COVID / your caregiver’s long COVID has impacted other aspects of your life. Please indicate the extent to which it has impacted the following
Base: Total Respondents (n=119)
IMPACT OF HAVING COVID ON OTHER ASPECTS OF LIFE
34%
41%
31%
34%
28%
20%
29%
30%
19%
48%
33%
39%
33%
38%
39%
30%
22%
24%
12%
10%
10%
11%
13%
15%
13%
8%
16%
6%
15%
19%
19%
21%
24%
25%
33%
39%
1%
1%
3%
2%
3%
7%
3%
Significant
impact
Some
impact
Not much
impact
No impact
at all
Don't
know
Overall state of health and wellbeing
Ability to exercise
Ability to participate in social engagements
Ability to participate in hobbies, sports, volunteering or other such activities
Mental health
Diet/ nutrition
Time to care for others in family
Ability to go back to work (inside or outside the home)
Financial wellbeing
Top 2
Box
82%
74%
70%
67%
66%
60%
59%
52%
43%
42
42. Top 2 Box Ratings TOTAL ON QC ROC MALE FEMALE 18-54 55+
n=119 n=45 n=37 n=37 n=38 n=81 n=43 n=76
Overall state of health and wellbeing 82% 89% 81% 76% 82% 83% 86% 80%
Ability to exercise 74% 80% 68% 73% 63% 79% 84% 68%
Ability to participate in social engagements 70% 76% 62% 70% 68% 70% 77% 66%
Ability to participate in hobbies, sports,
volunteering or other such activities
67% 73% 65% 62% 63% 69% 79% 61%
Mental health 66% 73% 49% 73% 55% 70% 84% 55%
Diet/ nutrition 60% 69% 51% 57% 53% 63% 72% 53%
Time to care for others in family 59% 62% 51% 62% 42% 67% 65% 55%
Ability to go back to work (inside or outside the
home)
52% 49% 49% 59% 45% 56% 60% 47%
Financial wellbeing 43% 44% 32% 51% 24% 52% 58% 34%
Impact of Having COVID on Other Aspects of Life – in detail (Top 2 Box)
Q22. We would like to understand how long COVID / your caregiver’s long COVID has impacted other aspects of your life. Please indicate the extent to which it has impacted the following
Base: Total Respondents (n=119)
IMPACT OF HAVING COVID ON OTHER ASPECTS OF LIFE
43
43. Of those who say long COVID has had an impact on their financial wellbeing, half say that they are
unable to work full time anymore
Inability to work as usual (full time)
Increase in expenses (delivery fees, care fees, other services)
Inability to work / loss of income
Difficulty to pay the rent / bills
Indebted
Other
49%
26%
23%
9%
4%
17%
Q23. You mentioned that long COVID had an impact on your financial wellbeing. What financial impact is long COVID causing?
Base: Those whose long COVID has had an impact on their financial wellbeing (n=47)
FINANCIAL IMPACT OF LONG COVID - Unaided
44
44. Better access to and support from a doctor and specifically a family doctor, treatment / medication,
and additional information / counselling would help cancer patients and caregivers who have had, or
have, long COVID to better overcome their symptoms
Better access / support from a (family) doctor
Treatment / medication / cure
Information / counselling
Better access to a long covid clinic / specialist
Psychotherapy
Physiotherapy
Housekeeping service (free)
Financial support
Diagnosis / test
More research / studies
Specialist
Others
None / nothing in particular / I don't know
13%
13%
11%
8%
4%
4%
4%
4%
3%
3%
3%
10%
34%
Q24. What support / services, if available to you, would help you better in overcoming symptoms of long COVID?
Base: Total Patients (n=114)
SUPPORT / SERVICES NEEDED TO OVERCOME SYMPTOMS OF
LONG COVID - Unaided
Other mentions (<3%):
Free health care services, help line, breathing
enhancer, in-home cooking service, support
programs / groups, awareness / media coverage,
more frequent treatments, work policies to take
time off
55+: 18%
Female: 17%
Female only
Male only
55+ only
45
45. Respondents feel that the support they need to overcome long COVID symptoms involved GPs
and other support / services that may require a referral from a GP
Q24. What support / services, if available to you, would help you better in overcoming symptoms of long COVID?
Base: Total Respondents (n=117)
SUPPORT / SERVICES NEEDED TO OVERCOME SYMPTOMS OF
LONG COVID
“Having a family
doctor” - QC “Having a GP would help to
get a referral for some sort of
physio or to a respiratory
treatment would help greatly.
It's next to impossible to even
get a phone appointment with
the urgent care place and we
no longer have any walk in
clinics in our city. I don't want
to and have avoided the
emergency department as it's
not the place to go to and they
are overwhelmed there as
well.” - BC
“Fewer months of waiting at the
specialized clinic. More knowledge
from GPs - I would have been referred
to it sooner instead of fighting for
months to be.” - QC
“Patient self-referral to
long covid supports for
when GPs brush your
symptoms off.” - ON
“Proper
assessment,
treatment plan and
specialized service
providers.” - SK
“Any direction on
how to support
my immune
system in
recovery.” - ON
“Free caregiver
services.” - ON
“Better and easier access to healthcare
providers who actually know about long COVID
and where you don’t have to be a patient at that
particular hospital. Having family doctors gain
knowledge about what can be done with
patients to manage/treat long COVID.” - ON
46
46. Fatigue, anxiety / depression, reduced quality of life, and feelings of having to be more careful are all
new “normal” as someone living with cancer and experiencing / having experienced long COVID
Fatigue / lack of energy
Anxiety / depression
Reduced quality of life / wellbeing
Being more careful / follow health measures
Isolation
Weakness / reduced physical capacity
Accept and learn to live differently
Shortness of breath or difficulty breathing
Frustration of struggling
Other
Nothing has changed
18%
15%
11%
11%
10%
9%
8%
7%
6%
24%
14%
Q25. According to you, what is the new “normal” as someone living with cancer and experiencing / having experienced long COVID?
Base: Total Patients (n=114)
NEW “NORMAL” LIVING WITH CANCER AND EXPERIENCING /
HAVING EXPERIENCED LONG COVID - Unaided
Other mentions (<5%):
Pain; Memory, concentration or sleep
problems; Slower pace of life; Reduced
working hours; High sensitivity of smell /
phantosmia; Considering medical assistance
in dying (MAID); Immunocompromised; Not
being understood
<55: 28%
ON: 2%
47
47. Lack of energy leading to having to leave their full-time position and decreased quality of life in
general are not uncommon reports for cancer patients who experience / experienced long COVID
Q25. According to you, what is the new “normal” as someone living with cancer and experiencing / having experienced long COVID?
Base: Total Respondents (n=117)
NEW “NORMAL” LIVING WITH CANCER AND EXPERIENCING /
HAVING EXPERIENCED LONG COVID
“Accepting that I may
never regain physical
and mental stamina I
had pre-Covid.” - ON
“Decreased quality of
life.” - ON
“Generally being fatigued in the
afternoon. If I can I will have a brief nap. I
have had to leave a full-time position and
go to part-time as my body cannot handle
so many hours of work.” - AB
“New normal life is no life at all, just a
burden on all around me. MAID is very
much on my mind.” - MB
“Having energy levels similar to levels
during cancer treatment. Inconsistent
energy, chronic pain, increased brain
fog and memory issues. Needing a lot of
extra time to complete tasks or inability
to do tasks altogether. Inability to
maintain focus. I recently caught a virus
and it took 5 weeks to recover then only
days later caught Norovirus and was
sick another week. Challenging to live a
normal life with a further compromised
immune system. Challenging to get
others to understand the severity of the
impact long COVID has had on me. The
denial in the medical field and public is
frustrating and isolating. I work hard to
not let it negatively affect me but it’s a
constant frustration.” - AB
“Things are no longer “normal”.
The side effects and symptoms
have changed my life and things
will never go back to normal.” -
ON
“Once cured
from cancer and
long covid is
gone, life is really
just normal as
before.” - BC
48
49. RESPONDENT PROFILE – PATIENTS
Tend to skew older: 58 YEARS on average
Fairly regionally representative
across Canada
QUE 31%
(37)
ON 38%
(45)
AB 10%
(12)
BC 11%
(13)
SK 3%
(4)
ATL 3%
(3)
MB 3%
(4)
BREAST (25%) and LYMPHOMA (11%) cancer
account for about one-third of cases.
Other cancers among ~1 in 11 patients include prostate,
lung, and skin cancer (excluding melanoma).
Stage 1
15%
Stage 2
13%
Stage 3
13%
Stage 4 /
Metastatic
6%
Remission
39%
1 in 9 (13%) say they are unsure of their stage of cancer.
<6 MONTHS
8%
6 MO-<2 YEARS
15%
2-5 YEARS
39%
6-10 YEARS
39%
TIME SINCE
DIAGNOSIS
varies greatly
among patients;
~1 IN 4
were diagnosed in
the PAST 2
YEARS.
32%
68%
Good mix of locations by population
RURAL: 27%
TOWN/CITY: 26%
URBAN/METRO: 47%
50
More Females
than Males
26% 11%
50. With a female leaning sample, 25% of the total respondents report being diagnosed with breast cancer
Breast cancer
Lymphoma
Lung cancer
Prostate cancer
Skin cancer (excluding Melanoma)
Colorectal cancer
Melanoma
Thyroid cancer
Bladder cancer
Leukemia
Uterine / endometrial cancer
Other cancer
26%
11%
9%
9%
8%
8%
8%
7%
6%
6%
6%
8%
S6. What type of cancer were you diagnosed with?
Base: Total Respondents (n=119)
CANCER DIAGNOSIS
Other mentions (<5%):
Brain cancer, kidney cancer,
cervical cancer, liver cancer,
bone cancer, sarcoma, ovarian
cancer, pancreatic cancer
Male: 16%
55+: 13%
<55: 14%
<55: 12%
QC: 0%
QC: 0%
ON: 0%
51
51. Three in ten respondents report having Anxiety or Hypertension / high blood pressure. Overall, 89%
of respondents report having some other chronic health condition
Anxiety
Hypertension / high blood pressure
High cholesterol
Osteoarthritis
Migraine
Skin conditions
Depression
Type 1 or Type 2 Diabetes
Thyroid disorders
Asthma
Heart / cardiovascular disease
Obesity
Insomnia
EE / GERD
Other
None
29%
28%
19%
18%
17%
17%
16%
15%
15%
13%
12%
12%
11%
10%
17%
11%
Q1. Do you currently have any chronic health condition, other than cancer? / As far as you know, does your caregiver currently have any chronic health condition?
Base: Total Respondents (n=119)
OTHER CHRONIC HEALTH CONDITIONS
Other mentions (<10%):
COPD, Irritable bowel syndrome (IBS),
Rheumatoid arthritis, Glaucoma,
Osteoporosis, Ulcerative colitis, Age-Related
Macular Degeneration (AMD),
Fibromyalgia, Psoriasis, Crohn’s disease,
Kidney diseases, Epilepsy, Lupus
52
52. TOTAL ON QC ROC MALE FEMALE 18-54 55+
n=119 n=45 n=37 n=37 n=38 n=81 n=43 n=76
Anxiety 29% 24% 38% 27% 18% 35% 51% 17%
Hypertension / high blood pressure 28% 20% 30% 35% 34% 25% 12% 37%
High cholesterol 19% 22% 19% 16% 29% 15% 9% 25%
Osteoarthritis 18% 20% 19% 16% 16% 20% 7% 25%
Migraine 17% 9% 24% 19% 5% 22% 21% 14%
Skin conditions 17% 13% 16% 22% 13% 19% 16% 17%
Depression 16% 22% 5% 19% 16% 16% 23% 12%
Type 1 or Type 2 Diabetes 15% 11% 16% 19% 18% 14% 7% 20%
Thyroid disorders 15% 16% 14% 16% 16% 15% 19% 13%
Asthma 13% 9% 14% 19% 8% 16% 16% 12%
Heart / cardiovascular disease 12% 13% 5% 16% 11% 12% 7% 14%
Obesity 12% 11% 3% 22% 11% 12% 14% 11%
Insomnia 11% 13% 14% 5% 13% 10% 7% 13%
EE / GERD 10% 9% 8% 14% 8% 11% 5% 13%
Other 17% 22% 11% 16% 8% 21% 14% 18%
None 11% 18% - 14% 11% 11% 16% 8%
Other Chronic Health Conditions – in detail
OTHER CHRONIC HEALTH CONDITIONS
Q1. Do you currently have any chronic health condition, other than cancer? / As far as you know, does your caregiver currently have any chronic health condition?
Base: Total Respondents (n=119)
53
53. S9. Do you have a caregiver or access to a caregiver when needed? / S13. What is your relationship to your caregiver?
Base: Total Respondents (n=119) / Those with a caregiver who developed long COVID (n=5)
CAREGIVERS
Have a Caregiver or Access
to a Caregiver
58%
Of the 5 patients with caregivers who have had their caregiver
develop long COVID:
4 say their caregiver is a family member – 3 of them say their family
member lives with them.
The last patient says their caregiver is a close friend, as close as family,
but not blood related
54
55. Top Box Ratings TOTAL ON QC ROC MALE FEMALE 18-54 55+
n=119 n=45 n=37 n=37 n=38 n=81 n=43 n=76
Ability to exercise 41% 38% 43% 43% 34% 44% 47% 38%
Overall state of health and wellbeing 34% 36% 32% 35% 24% 40% 42% 30%
Ability to participate in hobbies, sports,
volunteering or other such activities
34% 36% 41% 27% 18% 42% 33% 36%
Ability to participate in social engagements 31% 31% 30% 32% 26% 33% 33% 30%
Ability to go back to work (inside or outside the
home)
30% 31% 27% 32% 24% 33% 40% 25%
Time to care for others in family 29% 36% 19% 30% 21% 32% 33% 26%
Mental health 28% 31% 24% 27% 21% 31% 42% 20%
Diet/ nutrition 20% 27% 8% 24% 5% 27% 21% 20%
Financial wellbeing 19% 16% 16% 27% 8% 25% 35% 11%
Impact of Having COVID on Other Aspects of Life – in detail (Top Box)
Q22. We would like to understand how long COVID / your caregiver’s long COVID has impacted other aspects of your life. Please indicate the extent to which it has impacted the following
Base: Total Respondents (n=119)
IMPACT OF HAVING COVID ON OTHER ASPECTS OF LIFE
56