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Cancer and Work
Maureen Parkinson, MEd, CCRC,
Provincial Vocational and Rehabilitation Counsellor, BC Cancer and Co-lead Cancer and Work / www.cancerandwork.ca
Acknowledgement: Christine Maheu RN PhD Associate Professor, Ingram School of Nursing, McGill University and
Co-lead Cancer and Work / www.cancerandwork.ca
Overview
• Introduction to Cancer and Work
(www.cancerandwork.ca)
• 10 steps to return to work
• Job search ideas
Relevance of Cancer and Work
www.cancerandwork.ca
CPAC projects that, by 2031, there will be
2.2 million Canadians living with cancer
About 40% will be between the age
range of 20 to 65, falling within the
age range of the working population
(de Boer et al 2015; Parry et al 2011)
63% of working age individuals will return
to work within the first year post-
diagnosis.
(Mehnert, 2011)
Between 26% to 53% of cancer
survivors will lose their job or quit
working during or after treatment
(Mehnert, 2011)
57% of individuals returning to work
after cancer will experience reduced
work hours by at least 4 hours/week
(Steiner et al 2008)
Importance of assessment and
addressing concerns about return
to work early
• The longer someone is off work, the harder it
can be to return to work
• Time limitations on insurance, services and or
being able to return to the former job (human
rights)
• Economic loss
• Health risks to unemployment
www.cancerandwork.ca
500 pages of content
9 videos
8 online tools
27 expert writers
cancer survivor advisory group
Designed for health care providers, cancer
survivors and employers
First Canadian website resource that links to
resources within Canada and the globe
Available in English and French
2018-2020: Awarded Leading Practice Award by
Health Standards Organization
Recognized as one of the top cancer survivorship
websites in the world (Bourdache, 2023)1
Bourdache, L.R., Ould Brahim, L., Wasserman, S. et al. Evaluation of quality, readability, suitability, and usefulness of online resources available to cancer
survivors. J Cancer Surviv 17, 544–555 (2023). https://doi.org/10.1007/s11764-022-01318-5
www.cancerandwork.ca
Understand Current
Abilities
Strategies and Work
Accommodations
Readiness to RTW
Reducing Stress at
work
Employment and
Vocational
Rehabilitation
Programs
Cancer and Work Interactive Tools
www.cancerandwork.ca
A comprehensive return
to work (RTW) program
for cancer survivors
➔ Navigation guide for all stakeholders involved in
the return to work of cancer survivors
➔ A multidisciplinary approach for all to
encourage collaboration between:
◆ Family physicians, oncologist, vocational
rehabilitation counselor, occupational and
physiotherapist, neuropsychologist, psychologist,
nurses, social worker, and more.
➔ Empowers survivors to self-manage
➔ Facilitates effective stakeholder communication
➔ Encourages strong survivor-workplace
connections
➔ Suggests resolution to unexpected challenges
that may arise during the RTW process
Cancer Survivors
Healthcare Provider Employers
iCanWork
iCanWork: Primary care provider course
eCourse: Supporting
Cancer Survivors
with Return to Work
https://elearning.ubccpd.ca/enrol/index.p
hp?id=411
Parkinson, Maureen. Maheu, Christine. Dolgoy, Naomi. Bernstein, Lori J. Hawley, Philippa. Cathy Clelland, Cathy. Shuel, Sian. Bates, Alan. Riley,
Colleen. Brown-Johnson, Anita Marie. Ginty, Alexandra. Hayward, Lauren. Simpson, John Steven A. (2022). Supporting cancer survivors' return to work.
Retrieved August, 2022, from https://elearning.ubccpd.ca/enrol/index.php?id=411
https://www.cano-
acio.ca/page/survivorship
manual
www.bloodcancercontin
uingeducation.ca
iCanWork module
Nurse Version
Step 1: Understand Factors that
Impact Work
Use the vocational rehabilitation model for
cancer survivors to assess the factors that can
impact work
(Parkinson & Maheu, 2016)
Step 2: Assess Function
Evaluated physical, psychological, cognitive
abilities that could affect work ability.
Utilize self report forms, medical assessments
obtain or advocate for professional
assessments.
Survivors
www.cancerandwork.ca
Physician’s guide to navigating
insurance forms and the
insurance process
Faith Hayman video
Available at: www.cancer
andwork.ca search: Faith
Hayman
https://www.cancerandwork.ca/healthcare-providers/returning-to-work-is-
communication-and-teamwork/communicating-with-insurance-providers/
Or from the e-course, google:
Supporting Cancer Survivors
with Return to Work:
https://ubccpd.ca/learn/learning-activities/course?eventtemplate=261-
supporting-cancer-survivors-return-to-work
https://youtu.be/IHcKUTnFEKM
Step 1: Say Yes or No to 21 potential cognitive
challenges at work.
Step 2: Rate level of Concern for each
questions answered yes
1 = Very low
2 = Low
3 = Moderate
4 = High
5 = Very high
www.cancerandwork.ca
Example of a cognitive challenge question
Assess cancer-related fatigue
levels and time period using
the Cancer and Work Fatigue
Tracking tool
Assess Function
www.cancerandwork.ca
Step 3: Understand job
demands
● Ask for a job analysis or job description from your
employer (if available) to determine the employer’s
expectations and share with your primary health care
provider
● Complete the job analysis on the Cancer and Work
website (see the tool section of www.cancerandwork.ca)
and share with your primary healthcare provider
• to assist in making informed decisions about when and how to
RTW and what accommodations may be necessary to ensure a
safe and successful RTW.
www.cancerandwork.ca
Areas assessed:
1.Physical Strength
2.Physical Demands
3.Temperaments
4.Psychological and
Cognitive Demands
5.Environmental
Conditions
Step 4: Identify and ask for
support
• Ask about medical, psychological and rehabilitation
treatment to improve your abilities and address your
challenges.
• Ask healthcare providers to refer to resources or
advocate for services in-house, within the
healthcare system, in the community or offered
privately.
Step 5: Take Control
• Seek out services for rehabilitation and
psychological support.
• Utilize online resources, written materials, and group
programs.
• Educate yourself on long-term disability.
• Advocate for yourself with healthcare and insurance
providers to access necessary support services for
returning to work.
Cancer Survivor Section
Each of the 23 symptoms
contain:
1. Description of the
symptom
2. Vocational
implications
3. What can you do
(self-management
options)
4. Job
accommodations
Survivors
Cancer’s impact on
work and strategies:
Survivors Section
Workplace Wellbeing Topics Include:
• Changing your job situation
• Change your unhelpful thoughts and feelings
• Unhelpful thought patterns
• Change unhelpful thoughts worksheet
• Change your reactions to work stress: Situation/
thought and feelings/Behavior.
Your Unhelpful Thoughts Summary
https://www.cancerandwork.ca
www.cancerandwork.ca
https://www.cancerandwork.ca/survivors/workplace-
wellbeing/
Long-term disability
• Qualification definitions vary (Any occupation/Own
occupation, Partial Disability)
• Rehabilitation plans vary by insurer and are not
standardized
• Work focused rehabilitation is more likely offered
earlier in the claims process
• Doctor's opinion is key, but specialist opinions may
be required
• Employees may need to fully participate in medical
treatments, rehab, and RTW planning
• Employment may continue for the duration of
disability insurance
Step 6: Identify and Foster
Workplace Support
• Request that medical professionals provide advance
notice of your return-to-work start date and necessary job
accommodations, if possible.
• Research the types of support, such as job
accommodations, that may be available at your
workplace.
• Maintain positive relationships with colleagues by staying
in contact with them and seeking their support.
• If you feel uncomfortable speaking to your employer or
colleagues, address your concerns in counseling or with
a trusted advisor.
Law, policy, and practice
information
Legal resources on human rights
CLAS: BC Human Rights clinic
Step 7: Assist in
Developing a RTW Plan
Seek guidance from your primary health care
provider on a graduated return-to-work plan,
which may include:
● a start and an end date for the RTW plan
● Re-assessment dates to evaluate progress
● Any medical restrictions or limitations
● Job accommodations that may be helpful
● Label it return-to-work “trial”
Step 8: Prepare for an
Imminent RTW
• Discuss symptom management strategies with your
healthcare provider, including ways to manage anxiety,
fatigue, sleep, pain, and nutrition to ensure you are
physically and mentally prepared for the return to work.
• Consider participating in work simulation activities (if
deemed safe by your healthcare provider) to help you
prepare for the physical and mental demands of your
job.
• Try out different job accommodation ideas to determine
what works best for you, and discuss these ideas with
your employer to ensure a smooth transition back to
work
Author: Kyla Johnson, Occupational Therapist, Segal Cancer Centre, Jewish General Hospital
Fatigue
Sleep problems •Set up resting room, flexible hours
Pain
•Flexible hours to accommodate pain levels, schedule extra
breaks, allow working from home, modify tasks and reduce
physically demanding tasks
Nerve damage • Seek alternative tasks to reduce risk of injury
Lymphedema
• Seek mobility aid options, reduce heavy lifting tasks, stretch
2 mins every hour to encourage lymphatic flow
Hot flashes
• Ensure comfortable temperature using fans, provide access
to refrigerator to store cold packs
• Graduated RTW, modify work schedule, break demanding
tasks in smaller steps, switch tasks before becoming fatigue,
speech-recognition software, stand-lean chair.
•Flexible hours to accommodate pain levels, schedule extra
breaks, allow working from home, modify tasks and reduce
physically demanding tasks
•Set up resting room, flexible hours
• Seek alternative tasks to reduce risk of injury
• Seek mobility aid options, reduce heavy lifting tasks, stretch
2 mins every hour to encourage lymphatic flow
Accommodation ideas specific to common cancer
symptoms and treatment side effects
Step 9: Manage Work
Expectations
• Refer to medical guidance at work
• Seek counseling or learn about boundaries,
assertiveness, and conflict resolution if
needed
• Communicate with family members about
potential need for additional help at home
during your return to work
Step 10: Monitor the Work
Situation
• Schedule check-ins with primary care provider to
discuss progress
• Discuss symptom management and improving work
function
• Ask for rehabilitation support if needed
• Obtain updated medical notes for
employer/insurance if needed
• Schedule medical appointments at non-work hours
if possible
www.cancerandwork.ca
Changing Jobs and
Looking for Work
Job Search
● Improve job search skills
● Continue searching for
job opportunities even
after an interview
● Set aside dedicated time
for job searching and
reward yourself
afterwards
Career Exploration
● Take career assessments to understand
interests, aptitudes, strengths, and values.
● Consider past experiences, hobbies, and
passions for potential careers.
● Use online resources to research industries and
job opportunities.
● Network about jobs and industries
(informational interviews, events, career fairs
and social media)
● Gain experience through volunteering or
internships.
Networking
• 80% of jobs are not posted
• Get to the job first
• Determine if this job is a
match
• Foster job search mentors
• Develop a network
Questions:
1. Tell me about how your got
into the field?
2. Tell me about a typical day?
3. What do you like/dislike?
4. Given my skills and
experience what jobs do
you think I can do?
5. Who hires for such jobs?
6. Can your recommend
anyone I can contact?
Interview Preparation
● Embrace your strengths and unique skills
● Prepare an explanation for any gaps in
your work history and practice delivering
it
● Be truthful, but focus on positive aspects
● Disclose your disability only necessary for
accommodations
● Spin any disclosure in a positive light
● Remember that the work history question
is just one small part of the interview.
Thank you!
Maureen Parkinson, Vocational
Rehabilitation Counsellor, BC
Cancer mparkins@bccancer.bc.ca
Christine Maheu, RN, Ph.D. Nurse
Scientist, McGill University
christine.maheu@mcgill.ca
www.cancerandwork.ca
linkedin.com/company/cancer-and-work-
cancer-et-travail
facebook.com/cancerandwork
Twitter: @cancerandwork
Maureen Parkinson,
Provincial Vocational
Rehabilitation Counsellor
Co-director
Content Lead
Dr. Christine
Maheu, RN, Ph.D.
Associate
Professor
Co-director
Research Lead
christine.maheu@m
cgill.ca
linkedin.com/in/chris
Simon-Pierre
Dupuis
IT Director
Web Dev |
Strategies
Canadian Cancer Survivor Network
Contact Info
1750 Courtwood Crescent, Suite 210
Ottawa, ON K2C 2B5
Telephone / Téléphone : 613-898-1871
E-mail: jmanthorne@survivornet.ca or info@survivornet.ca
Website: www.survivornet.ca
Twitter: @survivornetca
Facebook: www.facebook.com/CanadianSurvivorNet
Instagram: @survivornet_ca
Pinterest: http://pinterest.com/survivornetwork/

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survivornettalkCancerandWorkP.pdf

  • 1. Cancer and Work Maureen Parkinson, MEd, CCRC, Provincial Vocational and Rehabilitation Counsellor, BC Cancer and Co-lead Cancer and Work / www.cancerandwork.ca Acknowledgement: Christine Maheu RN PhD Associate Professor, Ingram School of Nursing, McGill University and Co-lead Cancer and Work / www.cancerandwork.ca
  • 2. Overview • Introduction to Cancer and Work (www.cancerandwork.ca) • 10 steps to return to work • Job search ideas
  • 3. Relevance of Cancer and Work www.cancerandwork.ca CPAC projects that, by 2031, there will be 2.2 million Canadians living with cancer About 40% will be between the age range of 20 to 65, falling within the age range of the working population (de Boer et al 2015; Parry et al 2011) 63% of working age individuals will return to work within the first year post- diagnosis. (Mehnert, 2011) Between 26% to 53% of cancer survivors will lose their job or quit working during or after treatment (Mehnert, 2011) 57% of individuals returning to work after cancer will experience reduced work hours by at least 4 hours/week (Steiner et al 2008)
  • 4. Importance of assessment and addressing concerns about return to work early • The longer someone is off work, the harder it can be to return to work • Time limitations on insurance, services and or being able to return to the former job (human rights) • Economic loss • Health risks to unemployment
  • 5. www.cancerandwork.ca 500 pages of content 9 videos 8 online tools 27 expert writers cancer survivor advisory group Designed for health care providers, cancer survivors and employers First Canadian website resource that links to resources within Canada and the globe Available in English and French 2018-2020: Awarded Leading Practice Award by Health Standards Organization Recognized as one of the top cancer survivorship websites in the world (Bourdache, 2023)1 Bourdache, L.R., Ould Brahim, L., Wasserman, S. et al. Evaluation of quality, readability, suitability, and usefulness of online resources available to cancer survivors. J Cancer Surviv 17, 544–555 (2023). https://doi.org/10.1007/s11764-022-01318-5
  • 6. www.cancerandwork.ca Understand Current Abilities Strategies and Work Accommodations Readiness to RTW Reducing Stress at work Employment and Vocational Rehabilitation Programs
  • 7. Cancer and Work Interactive Tools www.cancerandwork.ca
  • 8.
  • 9.
  • 10. A comprehensive return to work (RTW) program for cancer survivors ➔ Navigation guide for all stakeholders involved in the return to work of cancer survivors ➔ A multidisciplinary approach for all to encourage collaboration between: ◆ Family physicians, oncologist, vocational rehabilitation counselor, occupational and physiotherapist, neuropsychologist, psychologist, nurses, social worker, and more. ➔ Empowers survivors to self-manage ➔ Facilitates effective stakeholder communication ➔ Encourages strong survivor-workplace connections ➔ Suggests resolution to unexpected challenges that may arise during the RTW process
  • 12. iCanWork: Primary care provider course eCourse: Supporting Cancer Survivors with Return to Work https://elearning.ubccpd.ca/enrol/index.p hp?id=411 Parkinson, Maureen. Maheu, Christine. Dolgoy, Naomi. Bernstein, Lori J. Hawley, Philippa. Cathy Clelland, Cathy. Shuel, Sian. Bates, Alan. Riley, Colleen. Brown-Johnson, Anita Marie. Ginty, Alexandra. Hayward, Lauren. Simpson, John Steven A. (2022). Supporting cancer survivors' return to work. Retrieved August, 2022, from https://elearning.ubccpd.ca/enrol/index.php?id=411
  • 14. Step 1: Understand Factors that Impact Work Use the vocational rehabilitation model for cancer survivors to assess the factors that can impact work (Parkinson & Maheu, 2016)
  • 15. Step 2: Assess Function Evaluated physical, psychological, cognitive abilities that could affect work ability. Utilize self report forms, medical assessments obtain or advocate for professional assessments.
  • 17. Physician’s guide to navigating insurance forms and the insurance process Faith Hayman video Available at: www.cancer andwork.ca search: Faith Hayman https://www.cancerandwork.ca/healthcare-providers/returning-to-work-is- communication-and-teamwork/communicating-with-insurance-providers/ Or from the e-course, google: Supporting Cancer Survivors with Return to Work: https://ubccpd.ca/learn/learning-activities/course?eventtemplate=261- supporting-cancer-survivors-return-to-work https://youtu.be/IHcKUTnFEKM
  • 18. Step 1: Say Yes or No to 21 potential cognitive challenges at work. Step 2: Rate level of Concern for each questions answered yes 1 = Very low 2 = Low 3 = Moderate 4 = High 5 = Very high www.cancerandwork.ca Example of a cognitive challenge question
  • 19. Assess cancer-related fatigue levels and time period using the Cancer and Work Fatigue Tracking tool
  • 20.
  • 22. Step 3: Understand job demands ● Ask for a job analysis or job description from your employer (if available) to determine the employer’s expectations and share with your primary health care provider ● Complete the job analysis on the Cancer and Work website (see the tool section of www.cancerandwork.ca) and share with your primary healthcare provider • to assist in making informed decisions about when and how to RTW and what accommodations may be necessary to ensure a safe and successful RTW.
  • 23. www.cancerandwork.ca Areas assessed: 1.Physical Strength 2.Physical Demands 3.Temperaments 4.Psychological and Cognitive Demands 5.Environmental Conditions
  • 24. Step 4: Identify and ask for support • Ask about medical, psychological and rehabilitation treatment to improve your abilities and address your challenges. • Ask healthcare providers to refer to resources or advocate for services in-house, within the healthcare system, in the community or offered privately.
  • 25. Step 5: Take Control • Seek out services for rehabilitation and psychological support. • Utilize online resources, written materials, and group programs. • Educate yourself on long-term disability. • Advocate for yourself with healthcare and insurance providers to access necessary support services for returning to work.
  • 26. Cancer Survivor Section Each of the 23 symptoms contain: 1. Description of the symptom 2. Vocational implications 3. What can you do (self-management options) 4. Job accommodations Survivors
  • 27. Cancer’s impact on work and strategies: Survivors Section
  • 28. Workplace Wellbeing Topics Include: • Changing your job situation • Change your unhelpful thoughts and feelings • Unhelpful thought patterns • Change unhelpful thoughts worksheet • Change your reactions to work stress: Situation/ thought and feelings/Behavior. Your Unhelpful Thoughts Summary https://www.cancerandwork.ca www.cancerandwork.ca https://www.cancerandwork.ca/survivors/workplace- wellbeing/
  • 29.
  • 30.
  • 31. Long-term disability • Qualification definitions vary (Any occupation/Own occupation, Partial Disability) • Rehabilitation plans vary by insurer and are not standardized • Work focused rehabilitation is more likely offered earlier in the claims process • Doctor's opinion is key, but specialist opinions may be required • Employees may need to fully participate in medical treatments, rehab, and RTW planning • Employment may continue for the duration of disability insurance
  • 32. Step 6: Identify and Foster Workplace Support • Request that medical professionals provide advance notice of your return-to-work start date and necessary job accommodations, if possible. • Research the types of support, such as job accommodations, that may be available at your workplace. • Maintain positive relationships with colleagues by staying in contact with them and seeking their support. • If you feel uncomfortable speaking to your employer or colleagues, address your concerns in counseling or with a trusted advisor.
  • 33.
  • 34. Law, policy, and practice information Legal resources on human rights CLAS: BC Human Rights clinic
  • 35. Step 7: Assist in Developing a RTW Plan Seek guidance from your primary health care provider on a graduated return-to-work plan, which may include: ● a start and an end date for the RTW plan ● Re-assessment dates to evaluate progress ● Any medical restrictions or limitations ● Job accommodations that may be helpful ● Label it return-to-work “trial”
  • 36.
  • 37. Step 8: Prepare for an Imminent RTW • Discuss symptom management strategies with your healthcare provider, including ways to manage anxiety, fatigue, sleep, pain, and nutrition to ensure you are physically and mentally prepared for the return to work. • Consider participating in work simulation activities (if deemed safe by your healthcare provider) to help you prepare for the physical and mental demands of your job. • Try out different job accommodation ideas to determine what works best for you, and discuss these ideas with your employer to ensure a smooth transition back to work
  • 38. Author: Kyla Johnson, Occupational Therapist, Segal Cancer Centre, Jewish General Hospital Fatigue Sleep problems •Set up resting room, flexible hours Pain •Flexible hours to accommodate pain levels, schedule extra breaks, allow working from home, modify tasks and reduce physically demanding tasks Nerve damage • Seek alternative tasks to reduce risk of injury Lymphedema • Seek mobility aid options, reduce heavy lifting tasks, stretch 2 mins every hour to encourage lymphatic flow Hot flashes • Ensure comfortable temperature using fans, provide access to refrigerator to store cold packs • Graduated RTW, modify work schedule, break demanding tasks in smaller steps, switch tasks before becoming fatigue, speech-recognition software, stand-lean chair. •Flexible hours to accommodate pain levels, schedule extra breaks, allow working from home, modify tasks and reduce physically demanding tasks •Set up resting room, flexible hours • Seek alternative tasks to reduce risk of injury • Seek mobility aid options, reduce heavy lifting tasks, stretch 2 mins every hour to encourage lymphatic flow Accommodation ideas specific to common cancer symptoms and treatment side effects
  • 39.
  • 40.
  • 41. Step 9: Manage Work Expectations • Refer to medical guidance at work • Seek counseling or learn about boundaries, assertiveness, and conflict resolution if needed • Communicate with family members about potential need for additional help at home during your return to work
  • 42. Step 10: Monitor the Work Situation • Schedule check-ins with primary care provider to discuss progress • Discuss symptom management and improving work function • Ask for rehabilitation support if needed • Obtain updated medical notes for employer/insurance if needed • Schedule medical appointments at non-work hours if possible
  • 44. Job Search ● Improve job search skills ● Continue searching for job opportunities even after an interview ● Set aside dedicated time for job searching and reward yourself afterwards
  • 45. Career Exploration ● Take career assessments to understand interests, aptitudes, strengths, and values. ● Consider past experiences, hobbies, and passions for potential careers. ● Use online resources to research industries and job opportunities. ● Network about jobs and industries (informational interviews, events, career fairs and social media) ● Gain experience through volunteering or internships.
  • 46. Networking • 80% of jobs are not posted • Get to the job first • Determine if this job is a match • Foster job search mentors • Develop a network Questions: 1. Tell me about how your got into the field? 2. Tell me about a typical day? 3. What do you like/dislike? 4. Given my skills and experience what jobs do you think I can do? 5. Who hires for such jobs? 6. Can your recommend anyone I can contact?
  • 47. Interview Preparation ● Embrace your strengths and unique skills ● Prepare an explanation for any gaps in your work history and practice delivering it ● Be truthful, but focus on positive aspects ● Disclose your disability only necessary for accommodations ● Spin any disclosure in a positive light ● Remember that the work history question is just one small part of the interview.
  • 48. Thank you! Maureen Parkinson, Vocational Rehabilitation Counsellor, BC Cancer mparkins@bccancer.bc.ca Christine Maheu, RN, Ph.D. Nurse Scientist, McGill University christine.maheu@mcgill.ca
  • 49. www.cancerandwork.ca linkedin.com/company/cancer-and-work- cancer-et-travail facebook.com/cancerandwork Twitter: @cancerandwork Maureen Parkinson, Provincial Vocational Rehabilitation Counsellor Co-director Content Lead Dr. Christine Maheu, RN, Ph.D. Associate Professor Co-director Research Lead christine.maheu@m cgill.ca linkedin.com/in/chris Simon-Pierre Dupuis IT Director Web Dev | Strategies
  • 50. Canadian Cancer Survivor Network Contact Info 1750 Courtwood Crescent, Suite 210 Ottawa, ON K2C 2B5 Telephone / Téléphone : 613-898-1871 E-mail: jmanthorne@survivornet.ca or info@survivornet.ca Website: www.survivornet.ca Twitter: @survivornetca Facebook: www.facebook.com/CanadianSurvivorNet Instagram: @survivornet_ca Pinterest: http://pinterest.com/survivornetwork/