The goal of the American Cancer society is to create a portal to educate cancer patients, caregivers, family and friends of cancer patients. This application seeks to remove the burden on the user by serving as a one stop solution for all the information the user needs to educate themselves about a family member’s diagnosis. Most importantly, the application will deliver personalized content to the user about the patient’s disease based on the patient’s diagnosis, treatment options for the diagnosis, drugs for treatment and the side effects associated with each drug. Users will also get tips on dealing with cancer patients and receive stories of hope.
Case Study: Cancer.Net Mobile: Helping Patients Take an Active Role in Their Cancer Care
Cancer and cancer care have become increasingly complex. For patients, navigating these complexities can be overwhelming. Learn how one major cancer organization addresses these needs with an award-winning mobile application, allowing patients to take a more active role in their care.
Presented by: Brendan Kelly, Manager, Cancer.Net Operations, American Society of Clinical Oncology
www.bdionline.com
Case Study: Cancer.Net Mobile: Helping Patients Take an Active Role in Their Cancer Care
Cancer and cancer care have become increasingly complex. For patients, navigating these complexities can be overwhelming. Learn how one major cancer organization addresses these needs with an award-winning mobile application, allowing patients to take a more active role in their care.
Presented by: Brendan Kelly, Manager, Cancer.Net Operations, American Society of Clinical Oncology
www.bdionline.com
This Presentation VMSA is all about the software technology to bring about various functionality for patients and other caretakers through the mobile application using Android and Cloud databases.
Advancing Quality of Care for Tuberous Sclerosis Complex Patients: A Case St...Inspire
"Advancing Quality of Care for Tuberous Sclerosis Complex Patients" was a session at the iPharma conference (May 2014) in which officials from Inspire, Tuberous Sclerosis Alliance and Novartis discussed the power of patient engagement and online patient communities.
The Evolution of the Online Physician Profile@chrisboyer LLC
Over the past few years, there has been a landslide of new opportunities for physicians to promote themselves online. But with all of these new websites, new tools and new methods, one thing remains true: it’s tremendously important for doctors practicing medicine today to be found online. But how can your organization make sense of this all? This presentation will help hospitals and doctors understand the most important things physicians practicing today need to address, and provide some tested and true ways to build alignment between healthcare organizations and physicians, to ensure they are winning the battle of online reputation.
This Presentation VMSA is all about the software technology to bring about various functionality for patients and other caretakers through the mobile application using Android and Cloud databases.
Advancing Quality of Care for Tuberous Sclerosis Complex Patients: A Case St...Inspire
"Advancing Quality of Care for Tuberous Sclerosis Complex Patients" was a session at the iPharma conference (May 2014) in which officials from Inspire, Tuberous Sclerosis Alliance and Novartis discussed the power of patient engagement and online patient communities.
The Evolution of the Online Physician Profile@chrisboyer LLC
Over the past few years, there has been a landslide of new opportunities for physicians to promote themselves online. But with all of these new websites, new tools and new methods, one thing remains true: it’s tremendously important for doctors practicing medicine today to be found online. But how can your organization make sense of this all? This presentation will help hospitals and doctors understand the most important things physicians practicing today need to address, and provide some tested and true ways to build alignment between healthcare organizations and physicians, to ensure they are winning the battle of online reputation.
Running head CHRONIC ILLNESS1CHRONIC ILLNESS7.docxtodd271
Running head: CHRONIC ILLNESS 1
CHRONIC ILLNESS 7
Locating Resources for Alzheimer’s disease
Locating Resources for Alzheimer’s disease
Coping with chronic illness is always a challenge for both the patients and their caregivers. There are many online resources that can help people with various chronic illnesses to make their life easier by providing advice, support, and other forms of help that patients may need (Anderson, Nikzad-Terhune & Gaugler, 2009). Alzheimer’s disease is a chronic illness that affects millions of people in America. There are numerous online resources that patients of Alzheimer’s, their caregivers, and loved ones can access assistance on various issues related to the illness.
Resources for Alzheimer’s disease
Caregiver Resource Center
The Caregiver Resource Center is a community organization that provides professional caregiving services and consultation on the same. This is a national organization but it has been divided into smaller community branches that are easily reachable from almost anywhere within the United States (Caregiver Resource Center, nd). This organization mainly provides information on caregiving and long term care for people who may need to adjust to caring for any person who needs it such as chronically ill patient. The organization also conducts education and training programs for families and loved ones to adjust to the life of caring for a dependent person such as a patient with Alzheimer’s disease. Additionally, they offer professional caregiving services where a family can hire a, employee assistant to provide care to the patient in need.
There is no complicated criterion for eligibility for getting the services of the Caregiver Resource Center. Basically any person in need of caregiving services can get help from this organization. The most common calls for assistance directed at this organization are those of the loved ones of chronically ill patients and elderly people who are in need of help to conduct the day-to-day activities and effectively take their medications.
The costs of services offered by this organization are not uniform across the country. The costs vary depending on the community that the patient is in. In California the costs of services can be free or chargeable depending on the types of services required by the client. However, the organization accepts Medicare payments for the patients who require professional caregiving services. The services can be offered within the patient’s home or in a care center.
The Family Care Navigator by Caregiver.Org
The Family Care Navigator is an online locator service that assists family caregivers to find any non-profit, private, and public caregiving services that are closest to them when they need services for their loved ones. Patients with Alzheimer’s have a very high demand for caregiving services especially for the patients in the progressed stages of the illness. Therefore, families with a loved one with Alzheimer’s .
Throughout the research on Breast Cancer I realized that technology can bring hope for a breast cancer free world in future and its important to be a part of spreading awareness, education, and early detection in remote and urban regions globally.
I have taken my knowledge of the uninsured and put together an informal slide deck to bring awareness to providers and patients on how to find resources to assist. I will also be posting a reimbursement based slide deck pertaining to navigating the payer system to gain optimal outcomes.
Bridging Clinical Gaps and Disparities in Care in TNBCbkling
This webinar will focuses on racial, ethnic, and socioeconomic disparities with the clinical gaps in treatment for women with triple-negative breast cancer (TNBC). Our guest speaker Shonta Chambers, MSW, is the EVP of Health Equity and Community Engagement at the Patient Advocate Foundation and Principal Investigator for SelfMade Health Network. Come and learn about this complex subtype, barriers to care, address the myths and fears around clinical trials in specific racial and ethnic communities, and help bridge the clinical gaps to improve survival outcomes for patients with TNBC.
Curia - Cancer App Empowering Cancer Patientsjackmethyu
Every patient should feel empowered to be the decision-maker in their cancer journey. CURIATM seeks to empower patients with their doctors throughout their treatment journey providing the most critical accurate, unbiased, and comprehensive information. It offers patients several ways to be involved with the cancer community by engaging with others who have cancer and allowing them to get involved directly in research.
New Technologies Close the Recruitment GapJohn Reites
Applied Clinical Trials (15Sep2014)
Optimizing Patient Enrollment in Global Clinical Trials
Overcoming enrollment issues due to changes in country requirements, how to create less burdensome global protocols with the patient in mind, how to decrease the cost of medicines and care, how to incorporate local assessments/reduce travel, mobile technologies used in global enrollment procedures and the potential of registries to enhance recruitmentless
Health Promotion Campaign presentationNational UniversityCJeanmarieColbert3
Health Promotion Campaign presentation
National University
COH 430
Introduction
Approximately 1 in 8 women will be diagnosed with breast cancer during her life, making breast cancer the most common cancer in women within the U.S. (CDC)
Although very rare, women below the age of 45 can be diagnosed.
Many young women are not aware of the risks they may run in having breast cancer and therefore also don’t know the ways to manage their risks.
Thus the CDC launched the Bring Your Brave campaign in 2015, to be able to bring awareness and adequate information to women specifically those that are 45 and younger.
Introduction continued
The campaign has a target audience of women ages 18 to 44 focusing on those who are predisposed by having a family history of breast cancer.
In addition, the campaign also helps educate health care providers on how to help their patients who are high risk on how to manage and deal with these risk factors.
Interpersonal Channel
This channel is how the relationship can affect how receptive someone is to health messages being provided to them.
This channel is far more likely to be trusted than a media source.
For example, having a patient hear something related to her health from her doctor would help her more than if she read about it on social media.
Continued
A good way to envision this type of channel would be this example of Cara.
Being able to seek help through professionals one is comfortable is extremely helpful.
Having a connection to a health provider or counselor allows patients to feel more connected and receptive of information compared to hearing it from someone they don’t trust.
It can help patients come to term with their diagnoses and how to move forward after it.
Cara: Making Decisions with a Genetic Counselor
Group Channel
Intended audience:women ages 18-45
Poster
Intended message:
-importance of heredity
- affects all races
Bensley & Brookins -Fisher (2009), CDC,2019, Community Tool Box (2020)
A group channel include small number of people who are receiving the same educational message that are going through the same health issue. Some methods include; Support groups, seminars, and a class. In regards to Bring your Brave campaign I believe the best way to disseminate the message or material to a group is first to identify the intended audience, in this health promotion the intended audience will be women age 18- 45. The method in which I would reach the intended audience is a printed material. More specifically a poster. Posters are “good at raising awareness and communicating limited amounts of health information” (Bensley & Brookins -Fisher 2009). Posters are more expensive but are important as they can be placed in multiple locations : community centers, medical offices, on the bus, etc. Posters typically possess bold colors, Big or bolded font for important messages, and many pictures. According to Community Tool Box website, “ 70% ...
Steward Health Care built a provider and patient portal that integrates patient data from provider practices and hospitals using several different Electronic Health Records systems that provides ease of use while meeting Meaningful Use Stage 2 Requirements.
Steward Health Care built a provider and patient portal that integrates patient data from provider practices and hospitals using several different Electronic Health Records systems that provides ease of use while meeting Meaningful Use Stage 2 Requirements.
University Hospital Southampton Phase I & II Case StudyGet Real Health
Get Real Health was engaged to provide a customized version of InstantPHR in conjunction with Microsoft HealthVault, with specific pathways for gastroenterology and maternity.
For an expanded rollout of the portal, Get Real Health provided UHS’ “My Health Record” with a website design refresh, a mobile patient portal activated and configured in the existing InstantPHR, and an upgrade to InstantPHR 3.2. Through a web and mobile web-based interface, InstantPHR will collaboratively enable UHS to improve patient outcomes and enhance health.
Get Real Health developed “myhealthlocker” built on the InstantPHRTM platform which works with Microsoft HealhVault and allows SLaM’s service users to gather, store and share their own health information.
Softrim Corporation, a premier provider of data, networking, computer consulting and telephony services in Southwest Florida, collaborated with Get Real Health to develop a patient portal solution. This solution used InstantPHR along with the Microsoft® HealthVault® platform serving as the primary data store. Patients have access to a full complement of patient engagement and care management widgets within the Moorings Park-branded portal
The new version includes a mobile interface for patients to access and monitor care more effectively and efficiently. They added disease centers to include a general wellness center, diabetes/diabetes prevention center,
heart failure center and kidney center. Each of the disease centers incorporates personal health information, care plans and educational material specific to the intended cohort of patients
Get Real developed a mental health provider application that aids clinicians in detection, diagnosis and treatment of mental health disorders. As a companion to the MyM3 mental health survey, the clinician portal is currently being integrated into several provider platforms leading to wider availability and provides clinical monitoring and longitudinal information on patients.
Get Real Health joined forces with Microsoft to help the partner organizations develop a multi-faceted Community Center-based program that combined opportunity for increased physical activity, socialization, self- monitoring of chronic conditions, and health education.
Get Real worked with the AHA to design, develop and deploy a completely online product, www.Heart360.org. Built to take advantage of Microsoft’s HealthVaultTM capabilities, Heart360 is a fully realized online cardiovascular wellness center where users can record health information such as blood pressure, blood glucose, weight, cholesterol, and more, either through the web or from a device directly connected to their computer.
In this instance, InstantPHR™ was skinned and branded to the look and feel of the ADA and configured using the InstantPHR™ toolset of widgets. This application also stores patient data directly into Microsoft HealthVault with InstantPHR™ as the data visualization layer for ADA.
Get Real Health branded and customized our InstantPHR™ product to reflect the look and feel of the TELUS Health brand which would be instantly recognizable to its citizens. The portal, the TELUS Personal Health Record (PHR), features widgets for both chronic disease management and preventative health, as well as tools for educating its population on a range of medical topics.
1. Challenge
To further their mission, The American
Cancer Society wanted to design and
develop an intuitive online application
to remove the often frustrating search
involved when family and friends
of cancer patients need to educate
themselves about the disease of a loved
one. Often times these people spend a
lot of time browsing numerous internet
sites and public libraries researching
the disease, treatment options, drugs,
etc. Because this information comes
from multiple sources, the information is
sometimes disjointed and repetitive. This
jumble of information tends to confuse
the user more than educate them.
Solution
The goal of the American Cancer society
is to create a portal to educate cancer
patients, caregivers, family and friends
of cancer patients. This application
seeks to remove the burden on the
user by serving as a one stop solution
for all the information the user needs
to educate themselves about a family
member’s diagnosis. Most importantly,
the application will deliver personalized
content to the user about the patient’s
disease based on the patient’s diagnosis,
treatment options for the diagnosis,
drugs for treatment and the side effects
associated with each drug. Users will also
get tips on dealing with cancer patients
and receive stories of hope.
Benefits
The application provides the cancer
patient and family and friends with an
online tool that is designed to remove the
laborious work involved in researching a
particular type of cancer. By providing
the user (patient, caregiver or family
member) with personalized content
based on the diagnosis, the patient
is able to make a quick and informed
decision about their treatment options
and improve their chances of beating
the disease. The application also allows
cancer patients to store information
about their medical data in a secure
location built on Microsoft HealthVault.
Relevance
This demonstrates Get Real’s expertise
in delivering powerful and easy to use
online tools that help end users make
informed decisions.
Circle of Sharing for American Cancer Society https://circleofsharing.cancer.org
Case Studies
The American Cancer Society is a nationwide, community-based voluntary health organization dedicated to
eliminating cancer as a major health problem.
For more information and to discover more, contact us:
Email: info@getrealhealth.com Office: +1 301 309 0058 Web: www.getrealhealth.com
“This application is
designed to remove
the frustrating search
involved when family
and friends of cancer
patients seek to
educate themselves
about the disease.”
This case study is for informational purposes only. GET REAL HEALTH MAKES NO WARRANTIES, EXPRESS OR IMPLIED, IN THIS SUMMARY. Publish Date: April 2013.