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2013

IMPACT
REPORT
THE BRAINS BEHIND SAVING YOURS
THE IMPACT OF ALZHEIMER’S DISEASE
Alzheimer’s disease is unmatched in the scale of its

DEVASTATING HUMAN & ECONOMIC IMPACT,
combined with the fact that, today, ABSOLUTELY

NOTHING
is available to prevent, cure or even slow it.

Alzheimer’s is Fatal

6

IT IS THE

TH

LEADING
CAUSE OF DEATH

IN THE UNITED STATES

Deaths Have Increased

Costs Add Up
$35B
MEDICAID

Deaths from Alzheimer’s
increased 68% between
2000 and 2010, while deaths
from other major diseases
decreased.

Breast
Cancer

-2%

Prostate Heart
Cancer Disease Stroke

-8%

HIV

-16% -23% -42%

In 2013,
the direct costs
of caring for those
with Alzheimer’s to
American society
totals an estimated

Alzheimer’s

+68%

$34B
OUT-OF-POCKET

$27B
OTHER

$203 BILLION.

$107B
MEDICARE

As the world’s leading voluntary health organization in Alzheimer’s care, support and
research we will ensure that everyone is equipped to battle Alzheimer’s. This past year,
the Alzheimer’s Association St. Louis Chapter has made great strides in increasing concern
& awareness, advancing public policy, accelerating research and enhancing care & support.

Everyone is at risk. Even you. Everyone can help. Especially you.
INCREASING CONCERN & AWARENESS
The St. Louis Chapter made it a strategic priority
to increase the momentum of the Alzheimer’s
movement by increasing

awareness.

By leveraging partnerships with

mediums, we increased

140

%

2013 IMPACT REPORT

IN TWO YEARS.

ns

MORE THAN

sio

we received by

s
re

media impressions

SE
EA

the number of

FY1
2:
1
FY11:
1

and utilizing a multitude of

FY
13
:

TOP MEDIA OUTLETS

%
6 - 50 I N C R
3
EA
5,5
85
SE
5,
2
-5 %
,155 9 INC
7
19
R
7,
,3 3
770 5 i m p
0,
ENHANCING CARE & SUPPORT
With a greater

focus on reaching and serving families in rural areas,

the faith community, people in the early stages of dementia, and male caregivers,
we saw DRAMATIC

GROWTH in terms of scale and scope of services.

PROVIDED DEMENTIA TRAINING

to 5,766 PROFESSIONALS | Hospitals, Nursing Homes, Home Care, First Responders, Physicians & Clergy

MANAGED 12,000+ HELPLINE CALLS
from 4,660 CLIENTS | Equals 32 calls a day

PROVIDED 1,208 CARE CONSULTATIONS

producing a 9% INCREASE FROM FY12 | Helps families create an in-depth plan for future care

PROVIDED RESPITE CARE FINANCIAL ASSISTANCE
to 229 CLIENTS | 41% of whom were living below poverty level

INCREASED ENRICHMENT FOR PEOPLE WITH DEMENTIA

by adding NEW EARLY-STAGE PROGRAMS | Cardinals Reminiscence League & Gateway to Learning

ESTABLISHED 67 FAITH OUTREACH PARTNERS

increasing partnerships by 36% FROM FY12 | Equipping churches & synagogues to better support their congregants

EDUCATED 5,750 FAMILY & COMMUNITY MEMBERS

79% of whom were first time education attendees | Teaches the basics of Alzheimer’s & practical tips for living with the disease

SUPPORTED 63,748 TOTAL WEBSITE VISITS
2013 IMPACT REPORT

and 27,290 new visitors | Generating a 22% increase from FY12
As the number of families affected by Alzheimer’s disease continues to skyrocket, we will
maintain our relentless drive to EXPAND

OUR REACH to provide services to meet
the growing and unique needs of every person affected.
ADVANCING PUBLIC POLICY
Galvanized by the radically growing need for respite,
the St. Louis Chapter, powered by its 8000

local advocates,

was the driving force behind SECURING

NEARLY

300

for Alzheimer’s Service Grants to support respite for local

% MORE FUNDING

families

battling the Alzheimer’s epidemic AT

HOME.

FY11

$150,000

$150,000

FY12

$150,000

- can support respite for -

300 FAMILIES

$430,000

- can support respite for -

FY13

$430,000

860 FAMILIES
ACCELERATING ALZHEIMER’S RESEARCH
The Alzheimer’s Association has been involved in EVERY major advancement in Alzheimer’s research since the 1980’s and we are
proud to have awarded our largest-ever research grant — nearly

$4.2 million over four years — to the Dominantly Inherited

Alzheimer’s Network-Therapeutic Trials Unit (DIAN-TTU), based at Washington University School of Medicine in St. Louis.

$4.2 MILLION
OVER FOUR YEARS

2013 IMPACT REPORT

2012-2015

Since awarding our first grants in 1982, the Association has grown into the

largest nonprofit funder

of Alzheimer’s research. We are committed to accelerating the global effort to

ELIMINATE ALZHEIMER’S DISEASE and have awarded over

315

$

million
to more than 2,200 PROJECTS worldwide.
INVESTING IN A WORLD WITHOUT ALZHEIMER’S
In 2013,
Volunteers Donated

Revenue By Source
14% BEQUESTS
22%
INDIVIDUAL
CONTRIBUTIONS

9% UNITED WAY & OTHER
WORKPLACE PROGRAMS

16,420
HOURS

4% OTHER
3% CORPORATE
3% FOUNDATIONS
3% GOVERNMENT
GRANTS
42%
SPECIAL EVENTS
which is approximately
equivalent to

Expenses By Function
24%
FAMILY
SERVICES

13%
FUNDRAISING
7% MANAGEMENT
& GENERAL
4%
PUBLIC
POLICY

52%
EDUCATION
& OUTREACH

8.5 Full-Time Employees!
THE BRAINS BEHIND SAVING YOURS

END ALZ
CLICK, CALL, DONATE
Alzheimer’s Association St. Louis Chapter
Serving 38 counties in Missouri & Illinois
9370 Olive Blvd. | St. Louis, MO 63132

800.272.3900 | www.alz.org/stl
Mission:
To eliminate Alzheimer’s
disease through the
advancement of research; to
provide and enhance care
and support for all affected;
and to reduce the risk
of dementia through the
promotion of brain health.

EXECUTIVE COMMITTEE:
Christopher A. Iselin, Chair
Morton Brown, Treasurer
Sandy Jaffe, Secretary
John Boyle
T. Jack Challis
Michael J. Hughes
Jan Kraemer

BOARD OF DIRECTORS:
Martha Aoun
Amy E. Bollinger
Bill Brinkmeyer
David Brodsky
Jan Cerny
Michael Claiborne
Frank J. Dellaquila
Randall Graham
George Grossberg, M.D.

James Hardin
Joanne Knight
Cathy Malear
John C. Morris, M.D.
Barbara Morriss
David Payne
Douglass Petty, Ph.D.
Mark Schupp
Judy Tobben
Frank Wolff, Jr.

ADVISORY COUNCIL:
Peggy I. Lents, Chair
Mary C. Agne, M.D.
Clarence C. Barksdale
Van-Lear Black, III
Jerry L. Bryan
John Michael Clear
Steven Fischer
James Gardner
John J. Inkley, Jr.

Dale F. Kirchner
Bob Lachky
Sandy Rich
Rodger O. Riney
John Schaperkotter
Mike Schwarz
Ellen Simmons
Ann M. Steffen, Ph.D.
Ellen C. Weiss

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Alzheimer's Association St. Louis Chapter Impact Report - FY13

  • 2. THE IMPACT OF ALZHEIMER’S DISEASE Alzheimer’s disease is unmatched in the scale of its DEVASTATING HUMAN & ECONOMIC IMPACT, combined with the fact that, today, ABSOLUTELY NOTHING is available to prevent, cure or even slow it. Alzheimer’s is Fatal 6 IT IS THE TH LEADING CAUSE OF DEATH IN THE UNITED STATES Deaths Have Increased Costs Add Up $35B MEDICAID Deaths from Alzheimer’s increased 68% between 2000 and 2010, while deaths from other major diseases decreased. Breast Cancer -2% Prostate Heart Cancer Disease Stroke -8% HIV -16% -23% -42% In 2013, the direct costs of caring for those with Alzheimer’s to American society totals an estimated Alzheimer’s +68% $34B OUT-OF-POCKET $27B OTHER $203 BILLION. $107B MEDICARE As the world’s leading voluntary health organization in Alzheimer’s care, support and research we will ensure that everyone is equipped to battle Alzheimer’s. This past year, the Alzheimer’s Association St. Louis Chapter has made great strides in increasing concern & awareness, advancing public policy, accelerating research and enhancing care & support. Everyone is at risk. Even you. Everyone can help. Especially you.
  • 3. INCREASING CONCERN & AWARENESS The St. Louis Chapter made it a strategic priority to increase the momentum of the Alzheimer’s movement by increasing awareness. By leveraging partnerships with mediums, we increased 140 % 2013 IMPACT REPORT IN TWO YEARS. ns MORE THAN sio we received by s re media impressions SE EA the number of FY1 2: 1 FY11: 1 and utilizing a multitude of FY 13 : TOP MEDIA OUTLETS % 6 - 50 I N C R 3 EA 5,5 85 SE 5, 2 -5 % ,155 9 INC 7 19 R 7, ,3 3 770 5 i m p 0,
  • 4. ENHANCING CARE & SUPPORT With a greater focus on reaching and serving families in rural areas, the faith community, people in the early stages of dementia, and male caregivers, we saw DRAMATIC GROWTH in terms of scale and scope of services. PROVIDED DEMENTIA TRAINING to 5,766 PROFESSIONALS | Hospitals, Nursing Homes, Home Care, First Responders, Physicians & Clergy MANAGED 12,000+ HELPLINE CALLS from 4,660 CLIENTS | Equals 32 calls a day PROVIDED 1,208 CARE CONSULTATIONS producing a 9% INCREASE FROM FY12 | Helps families create an in-depth plan for future care PROVIDED RESPITE CARE FINANCIAL ASSISTANCE to 229 CLIENTS | 41% of whom were living below poverty level INCREASED ENRICHMENT FOR PEOPLE WITH DEMENTIA by adding NEW EARLY-STAGE PROGRAMS | Cardinals Reminiscence League & Gateway to Learning ESTABLISHED 67 FAITH OUTREACH PARTNERS increasing partnerships by 36% FROM FY12 | Equipping churches & synagogues to better support their congregants EDUCATED 5,750 FAMILY & COMMUNITY MEMBERS 79% of whom were first time education attendees | Teaches the basics of Alzheimer’s & practical tips for living with the disease SUPPORTED 63,748 TOTAL WEBSITE VISITS 2013 IMPACT REPORT and 27,290 new visitors | Generating a 22% increase from FY12 As the number of families affected by Alzheimer’s disease continues to skyrocket, we will maintain our relentless drive to EXPAND OUR REACH to provide services to meet the growing and unique needs of every person affected.
  • 5. ADVANCING PUBLIC POLICY Galvanized by the radically growing need for respite, the St. Louis Chapter, powered by its 8000 local advocates, was the driving force behind SECURING NEARLY 300 for Alzheimer’s Service Grants to support respite for local % MORE FUNDING families battling the Alzheimer’s epidemic AT HOME. FY11 $150,000 $150,000 FY12 $150,000 - can support respite for - 300 FAMILIES $430,000 - can support respite for - FY13 $430,000 860 FAMILIES
  • 6. ACCELERATING ALZHEIMER’S RESEARCH The Alzheimer’s Association has been involved in EVERY major advancement in Alzheimer’s research since the 1980’s and we are proud to have awarded our largest-ever research grant — nearly $4.2 million over four years — to the Dominantly Inherited Alzheimer’s Network-Therapeutic Trials Unit (DIAN-TTU), based at Washington University School of Medicine in St. Louis. $4.2 MILLION OVER FOUR YEARS 2013 IMPACT REPORT 2012-2015 Since awarding our first grants in 1982, the Association has grown into the largest nonprofit funder of Alzheimer’s research. We are committed to accelerating the global effort to ELIMINATE ALZHEIMER’S DISEASE and have awarded over 315 $ million to more than 2,200 PROJECTS worldwide.
  • 7. INVESTING IN A WORLD WITHOUT ALZHEIMER’S In 2013, Volunteers Donated Revenue By Source 14% BEQUESTS 22% INDIVIDUAL CONTRIBUTIONS 9% UNITED WAY & OTHER WORKPLACE PROGRAMS 16,420 HOURS 4% OTHER 3% CORPORATE 3% FOUNDATIONS 3% GOVERNMENT GRANTS 42% SPECIAL EVENTS which is approximately equivalent to Expenses By Function 24% FAMILY SERVICES 13% FUNDRAISING 7% MANAGEMENT & GENERAL 4% PUBLIC POLICY 52% EDUCATION & OUTREACH 8.5 Full-Time Employees!
  • 8. THE BRAINS BEHIND SAVING YOURS END ALZ CLICK, CALL, DONATE Alzheimer’s Association St. Louis Chapter Serving 38 counties in Missouri & Illinois 9370 Olive Blvd. | St. Louis, MO 63132 800.272.3900 | www.alz.org/stl Mission: To eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. EXECUTIVE COMMITTEE: Christopher A. Iselin, Chair Morton Brown, Treasurer Sandy Jaffe, Secretary John Boyle T. Jack Challis Michael J. Hughes Jan Kraemer BOARD OF DIRECTORS: Martha Aoun Amy E. Bollinger Bill Brinkmeyer David Brodsky Jan Cerny Michael Claiborne Frank J. Dellaquila Randall Graham George Grossberg, M.D. James Hardin Joanne Knight Cathy Malear John C. Morris, M.D. Barbara Morriss David Payne Douglass Petty, Ph.D. Mark Schupp Judy Tobben Frank Wolff, Jr. ADVISORY COUNCIL: Peggy I. Lents, Chair Mary C. Agne, M.D. Clarence C. Barksdale Van-Lear Black, III Jerry L. Bryan John Michael Clear Steven Fischer James Gardner John J. Inkley, Jr. Dale F. Kirchner Bob Lachky Sandy Rich Rodger O. Riney John Schaperkotter Mike Schwarz Ellen Simmons Ann M. Steffen, Ph.D. Ellen C. Weiss