A Bicycle Built for Two10 Lessons Learned on Integrating SocialMedia and Health                                Jodi Sperbe...
Photo	  credit:	  boston.com.	  h8p://bo.st/prPD7h	                                                 1.	  let’s	  face	  it...
8 in 10 adults in the U.S.              use the Internet.              18-29 year olds online: 95%              Adults 65+...
What are the top 5 things    people in the U.S. do    online?4
What are people doing when          they are online?          92%              Send or read an email          87%         ...
Health is social      §  59% turn to Internet when they need info and          assistance in dealing with health or medic...
Decisions & actions impacted      §  53% - led them to ask a doctor new questions, or          to get a second opinion fr...
Clinical support    + Non-clinical support             Better health8
2.	  if	  all	  you	  see	  are	  the	  potholes,	                you’re	  in	  for	  a	  bumpy	  ride.	  
Adults living with 2+ chronic conditions 2x likely to report “major help”Social Life of Health Information, 2011. Pew Rese...
3.	  if	  you	  dont	  have	  the	  basics	        down	  it’s	          harder.	  
It’s social mediaPhoto	  credit:	  Evgeniy	  Zotov.	  h8p://bit.ly/qArGrv	           14
Listen and observe first.                                                 It’s not (just) about you.Photo credit: Kyle Rok...
4.	  things	  evolve	  over	  Zme,	  but	  the	  basics	  are	  the	  same.	  
Photo	  Credit:	  adwriter.	  h8p://bit.ly/oIei5Q	  5.	  it	  takes	  pracZce.	  and	  it’s	  ok	  to	  have	  help.	  
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6.	  its	  not	  about	  owning	  a	  bike;	                                                                            it...
Sharing:       Ideas     Experience      Support21
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#hcsm:	  Every	  Sunday,	  6pm	  Pacific,	  9pm	  Eastern	  23
Independent              Organizational 24
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7.	  ok,	  its	  a	  li8le	  bit	  about	  the	  bike.	  
Planning is essential27
Goal:	  	   Make                                     SDM part of routine care                             Who	  is	  your	...
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Photo	  credit:	  SCA	  Svenska	  Cellulosa	  AkZebolaget.	  h8p://bit.ly/owZjca	                            8.	  it’s	  e...
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9.	  without	  you	  it’s	  less	  useful.	  
Case Study     2010 Research and Policy Forum            Washington, DC33
2010 Research and Policy Forum•  Combination of tools     –  Eventbrite (invite), Twitter (messaging),        Watershed/US...
From	  Auckland,	  NZ	  to	  Yaphank,	  NY	   •    Australia	             •    Great	  Britain	   •    Austria	           ...
Those	  with	  interest	  and	  influence	  may	  not	  be	  in	  the	  room,	                      but	  they	  can	  s;ll...
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A	  few	  weeks	  later…	  …the	  conversaZon	  conZnued	    41
Case Study: #rpforum•    Leveraged network built over time•    Expanded reach globally for very little cost•    Brought vi...
Day 1 of SIIPC43
Day 1 of SIIPC44
Salzburg statement on shared                   decision making	     Clinicians: 	     SZmulate	  a	  two	  way	  flow	  of	...
Salzburg statement on shared                   decision making	     Clinicians: 	     SZmulate	  a	  two	  way	  flow	  of	...
10.	  everyone	                                                                                                          h...
Your next step, in a tweet     #siipc	  48
A Bicycle Built for Two10 Lessons Learned on Integrating SocialMedia and Health                                Jodi Sperbe...
A Bicycle Built for Two: 10 Lessons Learned on Integrating Social Media and Health
A Bicycle Built for Two: 10 Lessons Learned on Integrating Social Media and Health
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A Bicycle Built for Two: 10 Lessons Learned on Integrating Social Media and Health

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Ten lessons learned about integrating social media into health, with an eye towards shared decision making (SDM). Presented at the 2011 Dartmouth Summer Institute on Shared Decision Making.

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A Bicycle Built for Two: 10 Lessons Learned on Integrating Social Media and Health

  1. 1. A Bicycle Built for Two10 Lessons Learned on Integrating SocialMedia and Health Jodi Sperber, MSW, MPH8/29/11
  2. 2. Photo  credit:  boston.com.  h8p://bo.st/prPD7h   1.  let’s  face  it:   lots  of  people  are  out  for  a  ride.  
  3. 3. 8 in 10 adults in the U.S. use the Internet. 18-29 year olds online: 95% Adults 65+ years: 42% Latinos: 78% African Americans: 67%Whos  Online:  Internet  User  Demographics  |  Pew  Research  Centers  Internet  &  American  Life  Project  h8p://bit.ly/ra8nCd   3
  4. 4. What are the top 5 things people in the U.S. do online?4
  5. 5. What are people doing when they are online? 92% Send or read an email 87% Use search to find information 83% Look for health/medical information 83% Look for info about a hobby or interest 82% Search for a map or driving directionsWhat Internet Users Do Online | Pew Research Centers Internet & AmericanLife Project http://bit.ly/r4Duh1 5
  6. 6. Health is social §  59% turn to Internet when they need info and assistance in dealing with health or medical issues. §  60% say information found online affected a decision about how to treat an illness or condition. §  56% say it changed their overall approach to maintaining their health or the health of someone they help take care of.Social Life of Health Information, Pew Internet and American Life, June 11,2009. By Susannah Fox and Sydney Jones. 6
  7. 7. Decisions & actions impacted §  53% - led them to ask a doctor new questions, or to get a second opinion from another doctor. §  49% - changed the way they think about diet, exercise, or stress management. §  38% - affected decision about whether to see a doctor. §  38% - changed the way they cope with a chronic condition or manage pain.Social Life of Health Information, Pew Internet and American Life, June 11,2009. By Susannah Fox and Sydney Jones. 7
  8. 8. Clinical support + Non-clinical support Better health8
  9. 9. 2.  if  all  you  see  are  the  potholes,   you’re  in  for  a  bumpy  ride.  
  10. 10. Adults living with 2+ chronic conditions 2x likely to report “major help”Social Life of Health Information, 2011. Pew Research Center’s Internet andAmerican Life Project, August 9 – September 13, 2010 Survey. http://bit.ly/nbTvPr 12
  11. 11. 3.  if  you  dont  have  the  basics   down  it’s   harder.  
  12. 12. It’s social mediaPhoto  credit:  Evgeniy  Zotov.  h8p://bit.ly/qArGrv   14
  13. 13. Listen and observe first. It’s not (just) about you.Photo credit: Kyle Rokos. http://bit.ly/qOlYpU 15
  14. 14. 4.  things  evolve  over  Zme,  but  the  basics  are  the  same.  
  15. 15. Photo  Credit:  adwriter.  h8p://bit.ly/oIei5Q  5.  it  takes  pracZce.  and  it’s  ok  to  have  help.  
  16. 16. 18
  17. 17. 19
  18. 18. 6.  its  not  about  owning  a  bike;   its  that  you  ride  it.  Photo  credit:  earth2marsh.  h8p://bit.ly/oF3u0b  
  19. 19. Sharing: Ideas Experience Support21
  20. 20. 22
  21. 21. #hcsm:  Every  Sunday,  6pm  Pacific,  9pm  Eastern  23
  22. 22. Independent Organizational 24
  23. 23. 25
  24. 24. 7.  ok,  its  a  li8le  bit  about  the  bike.  
  25. 25. Planning is essential27
  26. 26. Goal:     Make SDM part of routine care Who  is  your  primary  audience?    Where  can  they   P   be  found?   O   What  are  you  trying  to  accomplish?   What  will  change  if  you  are  successful?    How  will   S   you  respond?   T   Based  on  the  above,  what  tools  make  sense?   Adapted  from  Forrester  Research.  More  at  h8p://bit.ly/pTp4R2     28
  27. 27. 29
  28. 28. Photo  credit:  SCA  Svenska  Cellulosa  AkZebolaget.  h8p://bit.ly/owZjca   8.  it’s  exercise,  but  and  it’s  fun!  
  29. 29. 31
  30. 30. 9.  without  you  it’s  less  useful.  
  31. 31. Case Study 2010 Research and Policy Forum Washington, DC33
  32. 32. 2010 Research and Policy Forum•  Combination of tools –  Eventbrite (invite), Twitter (messaging), Watershed/UStream (webcast)•  Promoted hashtag: #rpforum•  Requested (free) signup prior to event•  Goal: 25-50 participants34
  33. 33. From  Auckland,  NZ  to  Yaphank,  NY   •  Australia   •  Great  Britain   •  Austria   •  Greece   •  Belgium   •  Israel   •  Brazil   •  Netherlands   •  Bulgaria   •  New  Zealand   •  Canada   •  Spain   •  Germany   •  United  States  35
  34. 34. Those  with  interest  and  influence  may  not  be  in  the  room,   but  they  can  s;ll  be  an  asset.   36
  35. 35. 37
  36. 36. 38
  37. 37. 39
  38. 38. 40
  39. 39. A  few  weeks  later…  …the  conversaZon  conZnued   41
  40. 40. Case Study: #rpforum•  Leveraged network built over time•  Expanded reach globally for very little cost•  Brought virtual audience into the room•  Kept the conversation going•  Mutually beneficial42
  41. 41. Day 1 of SIIPC43
  42. 42. Day 1 of SIIPC44
  43. 43. Salzburg statement on shared decision making Clinicians: SZmulate  a  two  way  flow  of  informaZon  and   encourage  paZents  to  ask  quesZons,  explain   their  circumstances,  and  express  their  personal   preferences   Patients: Speak  up  about  their  concerns,  quesZons,   and  what’s  important  to  them  45
  44. 44. Salzburg statement on shared decision making Clinicians: SZmulate  a  two  way  flow  of  informaZon  and   encourage  paZents  to  ask  quesZons,  explain   it’s social their  circumstances,  and  express  their  personal   preferences   Patients: Speak  up  about  their  concerns,  quesZons,   and  what’s  important  to  them  46
  45. 45. 10.  everyone   has  their   own  style...    Photo  credit:  faster  panda  kill  kill.  h8p://bit.ly/pvrLgM   but  its  sZll  a  bike.   Photo  credit:  Dmitry  Gudkov.  h8p://bit.ly/qR1Gvb  
  46. 46. Your next step, in a tweet #siipc  48
  47. 47. A Bicycle Built for Two10 Lessons Learned on Integrating SocialMedia and Health Jodi Sperber, MSW, MPH8/29/11

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