The Butterfly Trust's bi-annual newsletter from Winter 2011.

1. Issue 14
Emma, Joy and Barnie at Ednburgh Zoo
On October 3rd Blue Peter featured Joy and I on their programme to highlight the
befriending service The Butterfly Trust offer to support those with Cystic Fibrosis and other
respiratory conditions. Filming took place over a weekend a few weeks earlier with Joy
being filmed at home with her family showing her daily routine, followed by filming at
Edinburgh Zoo with myself. Joy was surprised with a visit from Blue Peter presenter
Barney who also joined us at the Zoo. He spent time chatting and getting to know us, and
The Butterfly Trust, and interviewed Joy. We had a brilliant time filming and loved seeing
ourselves on tv too! It was great to be given the opportunity to share and promote the work
of The Butterfly Trust.
Emma, Volunteer Befriender
butterflytrust.org.uk
Registered Scottish Charity No SC 033174

2. Directors Dialogue
Dear Friends
It has been a good and very productive summer and autumn in The Butterfly Trust.
The work we have done has been more varied than ever before and the demand for
our help continues to grow with an increase of 24% in the last financial year.
We continue to monitor closely the developments regarding the planned welfare
reforms relevant to our client group and shape our response programme
accordingly. Our managers have been attending external training and we have
begun our process of up skilling our support workers. Our planned extended
recruitment programme to ensure we can respond effectively to the changed system
is in infancy stage at present and will gather momentum in 2012 in preparation for
changes to be introduced in 2013.
From the Trust's inception much emphasis has been on the value of a skilled
volunteer resource as an ideal model for delivering prompt, professional services in
response to a fluctuating and unpredictable demand. These volunteers are one of
our most valuable resources contributing in areas that range from befriending to
fundraising and from transport to massage therapy. We have appointed a new
Volunteer Co-ordinator to supervised and support our growing team over the coming
year.
Spread the word
We are looking for your help to raise awareness of The Butterfly Trust and
Cystic Fibrosis. Can you think of ways that you can let people know about who
we are and how we make a difference to the lives of people with Cystic Fibrosis
in Scotland. Please help us and spread the word!

3. Latest news
Introducing Laura
We are delighted to welcome Laura to our team. Laura will be working closely with our
outreach team of 69 volunteers throughout Scotland ensuring that we are able to
respond swiftly and effectively when we are asked for help.
Laura’s first task was to organise an induction for 16 new volunteers who are all skilled
people with experience that will be hugely beneficial to our support service.
Support Services
Enclosed is a leaflet that gives a flavour of the comprehensive range of services
available to people living with Cystic Fibrosis in Scotland. These services are free of
charge and are all strictly confidential. If you need support in anyway, even if it’s not in
our leaflet, do not hesitate to call us, we are here to help!
Why volunteer?
Volunteering is a great opportunity to learn new skills or donate skills you already have.
Volunteering can be very rewarding and maybe you or someone you know would make
a great volunteer for The Butterfly Trust. We have opportunities all over Scotland in a
wide range of roles. Visit our website and check out the 'Volunteering Opportunities'
page for more information or e-mail laura@butterflytrust.org.uk.

4. Inspiring stories
Kirsteen
Kirsteen was off doing her school work experience at the local primary school as a
classroom assistant and thoroughly enjoyed helping to educate the youngsters. She
said “My work experience as a classroom assistant was really good. I was given
different tasks and enjoyed completing them.” Kirsteen has Cystic Fibrosis but she
does not let that prevent her from leading a full and productive life. Well done Kirsteen!
Hollie
Hollie has been spending time at her local art gallery for school work experience. Hollie
is a keen photographer and the gallery has agreed to hang one of her photographs.
Here in the photo they are discussing her photograph and where to hang it in the
gallery. Well done Hollie for this great a achievement and good luck with a future career
in photography.
Esme
Esme, looking lovely in her butterfly costume, thanked us for making her family holiday
possible. Her mum said “After a long winter of hospitalisations we really needed some
time together to just have fun!” Esme loved the Owls at the World Owl Centre and
enjoyed the train ride with her brother Finlay.

5. Community Support
West Highland Way
Pauline, Scott, Mandy, Ali, Chris and John all walked the 96 miles of the West Highland
Way to raise funds. Thanks to them and support driver Paul!
Ben Ledley
George Hudson and fellow Rotarians raised funds for The Butterfly Trust with their
sponsored walk up Ben Ledley. Thank you George!
Perth Fun-day
Stacey, here with Billy, organised a fantastic fun-day for the kids of Perth to raise funds
to support people living with Cystic Fibrosis in Scotland. Great day Stacey!

6. Community Support 2
Disco
Lawrie and Keir had a fundraising disco in Musselburgh in memory of Lawrie’s sister
and Keir’s girlfriend Hayley. Well done and good luck with the next event!
Team Glasgow
Team Glasgow is made up of three ladies from the West of Scotland all with Cystic
Fibrosis and who have all had transplants. They have got together to raise money for
three CF and transplant related charities including The Butterfly Trust. They do some
wonderful work all year round, all voluntary, with their latest event being a halloween
party to raise funds for us.
10th Birthday
We would like you to help us celebrate our 10th birthday by having your own Butterfly Birthday
Bash Fundraiser. For more info contact Jamie. jamie@butterflytrust.org.uk

7. Community Support 3
Halloween Disco
Stacey, Sam and Sami organised a fantastic Halloween Disco in Edinburgh to raise
funds for The Butterfly Trust. I hear it was a great night. Well done girls!
Bands from Edinburgh and Glasgow coming together to create a fantastic night of
music at the Voodoo Rooms in Edinburgh. Saturday 17 March.
The Walk for Scotland in June was a success with over 60 people walking with our t-
shirts so why not join us for next year’s walk on Sunday 24 June 2012.

8. Standing Order Form
Your Personal Details
First Name Surname Address
Postcode Tel Number
Your Bank Details
Account No Sort Code
Bank Branch
Instructions for your Bank
Please pay to THE BUTTERFLY TRUST the sum of: £
Amount in words (pounds)
Every month with effect from / / until further notice
Account Type: Trustees Account Bankers: Halifax Bank of Scotland
Bankers Sort Code: 80-02-78 Account No: 00584054
I pay UK income tax and would like THE BUTTERFLY TRUST to reclaim the tax on my gifts
Signature Date
Please take this form to your bank and return a copy to;
Fundraising Team, The Butterfly Trust, Swanston Steading, 109/3b Swanston Road, Edinburgh, EH10 7DS
We would like to thank everyone who has made a donation or fundraised for The Butterfly Trust
in the past year. Without your support it wouldn’t be possible to provide these services
Our Vision
Our vision is that people affected by Cystic Fibrosis have the opportunity
for personal choice and access to support that enables them to fulfil
potential and realise aspirations.
0131 445 5590
Swanston Steading, 109/3 Swanston Road, Edinburgh, EH10 7DS