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Disability in
schizophrenia
Dr Sandeep Raj K
Disability
Inability to perform as expected in the
socio-economic and cultural context
A limitation of function secondary to a
disorder of a specific organ or body
system.
Disability
Disordered or deficient functioning in the social
roles and domains (work, family, social group,
etc) regarded as normal in that society, the
family or social group or by the person affected
[WHO 1988]
Eg. Poor self care, social role , family role,
vocational competence, interpersonal
relationships
Impairment
Loss of structure or function
Any loss or abnormality of psychological,
physiological, or anatomical structure or
function [WHO]
Symptoms of mental illness
Eg. Delusions, hallucinations, negative
symptoms
Handicap
Disadvantage in competitions along with
others
Reflects the interaction between the
disability on one hand and both the
disabled person and his or her
architectural, attitudinal, social and legal
environment on the other
Eg. Job interviews, transport, money
management etc
Disability in schizophrenia
Disability due to psychiatric disorders
began to receive widespread attention
after the report of “global burden of
diseases” (Murray et al 1996)
Schizophrenia along with major
depression, alchol use, bipolar affective
disorders, OCD is one of the 10 major
causes of disability. (Andrew et al 1998)
Disability in schizophrenia
The last two decades has seen major
research in this field.
Schizophrenia starts usually at young age
and frequently associated with
deterioration
Have multiple psychological and physical
disability.
Disability in schizophrenia
More in patients with continues and
deteriorating course.
High prevalence of unemployment, social
isolation, homelessness and dependency
Stigma
Disability in schizophrenia
Disability in developed countries→ 41%
developing countries→ 15%
India → 18% (varghese et al 1989)
Rural and urban have same behavior and
social role disability (Murthy et al 1992)
Early age of onset, poor premorbid
functioning indicate greater disability
(Thara, Joseph 1995)
Disability in schizophrenia
Dynamic
Difficult to quantify
Invisible
Problem in convincing others
Causes of disability
Positive symptom
- Hallucinations
- Delusions
- Thought interference
- Agitation
Negative symptoms
- Amotivation
- Apathy
Causes of disability
Cognitive impairments
- Attention and concentration
- Impairment of judgment
- Concrete thinking
Co-morbidities
- Anxiety disorders→ OCD,
- Substance abuse
Causes of disability
Side effects of antipsychotics
- Weight gain
- Drowsiness
- Neurological
- Metabolic
Lack of community based rehabilitation
- Revolving door phenomena
- Institutionalization
Stigma
Disabilities
Poor socialization
Poor communication
Not able to do any job
Poor role performance
Poor personal hygiene
Poor interpersonal relationships.
Handicaps
Unemployment
Poor housing
Lack of leisure activity
Loss of social support
Management
Assessment
Prioritization
Program planning
Short term goals
Long term goals
Implementation
Follow-up
Assessment
Road map of journey from acute exacerbation to
recovery
Pinpoints the areas of intervention and provides
a baseline its monitoring
Helps in certifying
Numerous scales available
No single scale is complete
Eg: symptomatology→ PANSS, BPRS
disability→ DAS, IDEAS
Disability Assessment Scale
Released by WHO
Has 6 domains namely→
- Understanding & communicating
- Getting around
- Self care
- Getting along with people
- Life activities (Household and work)
- Participation in Society
IDEAS
Indian Disability EvaluationAssessment
Schedule
Adapted from WHO-DAS
Brief
No need for training
Accepted by Ministry GOI
Modified version of IDEAS based on PWDAct
1995
Has four domains
- Self care,
- Interpersonal activities ( social relationships),
- Communication and understanding,
- Work ( Employment, Housework, Education)
Scores
0- No disability (none, absent, negligible)
1- Mild disability (slight, low)
2- Moderate disability (medium, fair)
3- Severe disability (high, extreme)
4- Profound disability (totally cannot do)
Total score:
Add scores of the 4 items and obtain a total score
Duration of Illness (DOI)
DOI < 2 years: scores to be added is 1
DOI 2-5 years: add 2
DOI 6-10 years: add 3
DOI >10 years: add 4
Global disability
Total disability score + DOI score =
Global disability
Percentages:
0- No disability = 0%
1-6 Mild disability = <40%
7-13 Moderate disability = 40-70%
14-19 Severe disability = 71-99%
20 Profound disability = 100%
Cut off for welfare measures = 40%
Prioritization
Needs of patient
Needs of the Family
Felt needs
Expressed needs
Assessed needs
Short term goals
Cast in daily, weekly or monthly time frames.
Work as stepping stones or subgoals
Better if endorsed by patient or family members
or care givers
Eg :
Disruptive behavior Work behavior
Active symptoms Medication management
Negative symptoms Interpersonal
relationships
Long term goals
Cast in monthly or yearly time frame
Should be comprehensive
Should facilitate→
social, interpersonal, familial, financial,
recreational, medical or psychiatric,ADL’s,
independent living skills, vocational,
educational, spiritual, and housing or
residential.
Pharmacological
Medicines never teach new skills but it
helps by removing the barrier for the
learning process
Significantly improve the symptomatology
Double edged sword
Pharmacological
Side effects itself can cause disability
Newer antipsychotics are better
Dose to be adjusted according to the
clinical condition
Psychosocial
Behavioral techniques for teaching skills-
- Shaping
- Modeling
- Coaching
- Prompting
- Over correction
Contingency Management
- Token economy
Psychosocial
Attention enhancing skills
- Grain sorting
- Color cancellation etc
Activity scheduling
- patient and family should prepare
Follow up
Ensure regular follow ups
Assessment to be done to assess
progress
Medication dose adjustment to be done
Booster sessions involving psychosocial
rehabilitation
Role of family
Family plays an important role
Expressed emotion influences disability
Expectations have to be assessed
Psycho education to be done
Crisis intervention
Family support systems to be assessed
and established
Role of community
Acceptance by the community influences
disability
Awareness will reduce stigma
Use of community resources is helpful
Community based rehabilitation helps in
deinstitutionalization
Its cost effective
To be educated about early warning signs
and side effect profile
Conclusion
The past few decades has seen
tremendous improvement in health care
reducing mortality which in turn has
increased disability burden
An integrated multidisciplinary, tailor made
intervention strategy is the need of the day
Community participation, use of
community resources is necessary for
better outcome
Thank you

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Disability in schizohrenia ppt.ppt · version 1.pdf

  • 2. Disability Inability to perform as expected in the socio-economic and cultural context A limitation of function secondary to a disorder of a specific organ or body system.
  • 3. Disability Disordered or deficient functioning in the social roles and domains (work, family, social group, etc) regarded as normal in that society, the family or social group or by the person affected [WHO 1988] Eg. Poor self care, social role , family role, vocational competence, interpersonal relationships
  • 4. Impairment Loss of structure or function Any loss or abnormality of psychological, physiological, or anatomical structure or function [WHO] Symptoms of mental illness Eg. Delusions, hallucinations, negative symptoms
  • 5. Handicap Disadvantage in competitions along with others Reflects the interaction between the disability on one hand and both the disabled person and his or her architectural, attitudinal, social and legal environment on the other Eg. Job interviews, transport, money management etc
  • 6. Disability in schizophrenia Disability due to psychiatric disorders began to receive widespread attention after the report of “global burden of diseases” (Murray et al 1996) Schizophrenia along with major depression, alchol use, bipolar affective disorders, OCD is one of the 10 major causes of disability. (Andrew et al 1998)
  • 7. Disability in schizophrenia The last two decades has seen major research in this field. Schizophrenia starts usually at young age and frequently associated with deterioration Have multiple psychological and physical disability.
  • 8. Disability in schizophrenia More in patients with continues and deteriorating course. High prevalence of unemployment, social isolation, homelessness and dependency Stigma
  • 9. Disability in schizophrenia Disability in developed countries→ 41% developing countries→ 15% India → 18% (varghese et al 1989) Rural and urban have same behavior and social role disability (Murthy et al 1992) Early age of onset, poor premorbid functioning indicate greater disability (Thara, Joseph 1995)
  • 10. Disability in schizophrenia Dynamic Difficult to quantify Invisible Problem in convincing others
  • 11. Causes of disability Positive symptom - Hallucinations - Delusions - Thought interference - Agitation Negative symptoms - Amotivation - Apathy
  • 12. Causes of disability Cognitive impairments - Attention and concentration - Impairment of judgment - Concrete thinking Co-morbidities - Anxiety disorders→ OCD, - Substance abuse
  • 13. Causes of disability Side effects of antipsychotics - Weight gain - Drowsiness - Neurological - Metabolic Lack of community based rehabilitation - Revolving door phenomena - Institutionalization Stigma
  • 14. Disabilities Poor socialization Poor communication Not able to do any job Poor role performance Poor personal hygiene Poor interpersonal relationships.
  • 15. Handicaps Unemployment Poor housing Lack of leisure activity Loss of social support
  • 16. Management Assessment Prioritization Program planning Short term goals Long term goals Implementation Follow-up
  • 17. Assessment Road map of journey from acute exacerbation to recovery Pinpoints the areas of intervention and provides a baseline its monitoring Helps in certifying Numerous scales available No single scale is complete Eg: symptomatology→ PANSS, BPRS disability→ DAS, IDEAS
  • 18. Disability Assessment Scale Released by WHO Has 6 domains namely→ - Understanding & communicating - Getting around - Self care - Getting along with people - Life activities (Household and work) - Participation in Society
  • 19. IDEAS Indian Disability EvaluationAssessment Schedule Adapted from WHO-DAS Brief No need for training Accepted by Ministry GOI
  • 20. Modified version of IDEAS based on PWDAct 1995 Has four domains - Self care, - Interpersonal activities ( social relationships), - Communication and understanding, - Work ( Employment, Housework, Education)
  • 21. Scores 0- No disability (none, absent, negligible) 1- Mild disability (slight, low) 2- Moderate disability (medium, fair) 3- Severe disability (high, extreme) 4- Profound disability (totally cannot do) Total score: Add scores of the 4 items and obtain a total score
  • 22. Duration of Illness (DOI) DOI < 2 years: scores to be added is 1 DOI 2-5 years: add 2 DOI 6-10 years: add 3 DOI >10 years: add 4
  • 23. Global disability Total disability score + DOI score = Global disability Percentages: 0- No disability = 0% 1-6 Mild disability = <40% 7-13 Moderate disability = 40-70% 14-19 Severe disability = 71-99% 20 Profound disability = 100% Cut off for welfare measures = 40%
  • 24. Prioritization Needs of patient Needs of the Family Felt needs Expressed needs Assessed needs
  • 25. Short term goals Cast in daily, weekly or monthly time frames. Work as stepping stones or subgoals Better if endorsed by patient or family members or care givers Eg : Disruptive behavior Work behavior Active symptoms Medication management Negative symptoms Interpersonal relationships
  • 26. Long term goals Cast in monthly or yearly time frame Should be comprehensive Should facilitate→ social, interpersonal, familial, financial, recreational, medical or psychiatric,ADL’s, independent living skills, vocational, educational, spiritual, and housing or residential.
  • 27. Pharmacological Medicines never teach new skills but it helps by removing the barrier for the learning process Significantly improve the symptomatology Double edged sword
  • 28. Pharmacological Side effects itself can cause disability Newer antipsychotics are better Dose to be adjusted according to the clinical condition
  • 29. Psychosocial Behavioral techniques for teaching skills- - Shaping - Modeling - Coaching - Prompting - Over correction Contingency Management - Token economy
  • 30. Psychosocial Attention enhancing skills - Grain sorting - Color cancellation etc Activity scheduling - patient and family should prepare
  • 31. Follow up Ensure regular follow ups Assessment to be done to assess progress Medication dose adjustment to be done Booster sessions involving psychosocial rehabilitation
  • 32. Role of family Family plays an important role Expressed emotion influences disability Expectations have to be assessed Psycho education to be done Crisis intervention Family support systems to be assessed and established
  • 33. Role of community Acceptance by the community influences disability Awareness will reduce stigma Use of community resources is helpful Community based rehabilitation helps in deinstitutionalization Its cost effective To be educated about early warning signs and side effect profile
  • 34. Conclusion The past few decades has seen tremendous improvement in health care reducing mortality which in turn has increased disability burden An integrated multidisciplinary, tailor made intervention strategy is the need of the day Community participation, use of community resources is necessary for better outcome