#iAOD13 Consumer Participation
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#iAOD13 presentation on our work to improve our capacity for effective and sustainable consumer participation.
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#iAOD13 Consumer Participation
- 1. Service User Participation: A whole of organisation approach #iAOD13 http://www.facebook.com/ReGenUC @regenuc
- 2. Acknowledgements Donna Ribton–Turner James Beckford Saunders Venetia Brissenden Brandon Jones Paul Aiken Shannon Bell Laurence Alvis UnitingCare ReGen Board
- 4. Rationale • Human Rights • Improving treatment outcomes • Organisational & strategic drivers
- 5. What’s it all about? ‘… Involving the community in decision making about their own health, as well as the planning and management of health services is integral to effective health promotion and illness prevention…’ Australian Commonwealth Department of Human Services and Health 1994 cited in AIVL 2008
- 8. Key Resources AIVL - Treatment Service Users Project Phases 1 and 2 http://bit.ly/ZANfKe APSU – Straight from the source: A practical guide to consumer participation in the Victorian AOD sector http://bit.ly/YNvQ1I
- 9. Level & Scope of Participation Control Consumers Partnership Service Users Consultation Clients Information Clarke and Brindle (2010)
- 10. Into the future… Structures Approach Consumer Participation All of organisation Leadership Group Consumer Participation Capacity building Facilitator Consumer Representatives Mentorship Evaluated & disseminated
- 11. Consumer Participation Facilitator • Guidance • Mentoring • Support • Advocacy Consumers • Capacity Building CP • Guidance • Guidance Leadership Staff • Mentoring • Advocacy • Support Group • Capacity Building
- 12. Position Paper Advocacy in Action Consumer Participation Position Paper & Supporting Evidence http://bit.ly/YWJTQf www.regen.org.au/advocacy
- 13. References Clarke, M . & Brindle, R. (2010) ‘Straight from the Source: A practical Guide to Consumer Participation in the Victorian AOD sector’ Association of Participating Service Users, Carnegie, Australia Treatment Service Users Project – Phases One & Two: (AIVL, 2011) http://www.healthinfonet.ecu.edu.au/key-resources/programs- projects?pid=1012
Editor's Notes
- ReGen has made a substantial commitment to engaging with our stakeholders as evidenced by a range of activities including our Advocacy in Action activities, partnered approaches and consultative approach to change management e.g. RebrandingAs a part of this commitment we formed a working group to examine how we engage consumers in participation activities across the organisation and how we could potentially enhance this capacity.
- Human Right: It has been well documented and agreed upon that consumer participation in the planning of health services is a basic human right. This has been identified both internationally and nationallyImproved treatment outcomes Strategic Drivers – Quality Assurance, Corresponding mental health positions, AOD reforms
- Or in other words…
- The idea of consumer participation is on the surface quite simple- enabling consumers to have a greater voice and more power in directing the organisations that provide treatment services. The working group’s exploration of the issue found that the more we explored the issue the more unanswered questions we unearthed. One issue that consistently recurred was the identification that a sustainable and meaningful commitment to consumer participation required strong foundations. (SUSTAINABILITY, TOKENISM)We needed to ensure that we had policies and procedures in place that adequately support consumers in the workplace and ensure that the conditions and purpose of consumer participation are clearly articulated and understood by both staff and consumer representatives.It’s a bit of a chicken and egg scenario… set up structures without consumer input or ask consumers to input about structures without any support for sustainability
- Level of ParticipationIn considering the level of participation APSU’s Clarke and Brindle (2010) identify four levels of participation/inclusiveness:Information: This is not consumer participation but it increases power, enables service users to make decisions about their own treatment and supports consumer participation.Consultation (Low level participation): Consumers are presented with a plan or directive designed by the service provider and invited to give feedback. Control lies firmly with service providers.Partnership (Medium level participation): Consumers and providers are joint decision makers.Control High (High level participation): All decisions are made by consumers and consumers have control of resources.In defining the scope of participation the working group has examined the work of Clarke and Brindle (2010) which asserts that there are a range of categories from which participants can be drawn as is outlined below:Consumers – Anybody that uses drugs and has the potential to be a service user or otherwise be potentially effected by our operations (e.g. Family members)Service Users – People engaged with AOD services but not limited to ReGen clientsClients – People who access (or who have previously accessed) ReGen’s services.