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1
Orlando's first Moving Day!
National Parkinson
Foundation's Awareness
event presented by Florida
Hospital!

THANKS for
having us
2
3
MYSTERIOUS WAYS
How to actually Embrace
your Parkinson’s disease
and, for that
matter, any other lifechanging adversity.
4
IDENTITY
YOU ARE NOT
PARKINSONS
Retreat – Jimmy V

5
WHO?

6
7
LIFE BEFORE PARKINSONS

I FEEL YOUR PAIN
WE ALL HAD ONE
Doctors, lawyers, executives,
accountants, politicians, actors, athletes,
even a Pope,
….every job you can imagine.
I love being an Attorney
8
LIFE CHANGING ADVERSITY
Diagnosed with Parkinson’s disease
Your spouse/parent/child getting PD
You or family the victim of a crime
Loss of a job/ Demotion
Death of a Loved One
Other ILLNESS, DISEASE OR INJURY
BECOMING A CAREGIVER
9
10
INTRODUCING

What I like to call
The Nifty Nine
Action Plan to
Embrace Adversity
11
HOW TO LIVE LIFE TO
THE FULLEST

YOU NEED A PLAN:
THE NIFTY NINE
12
FIRST: RESEARCH
• New procedures
• New medications
• What works for others
• What has not worked
• The best doctor
• The emotional stages
SHOUT OUT
13
THE EMOTIONAL
ROLLERCOASTER OF
PARKINSON’S
14
15
SHOCK
White light

16
17
DENIAL
DISBELIEF
autopsy

18
19
ANGER
ISOLATION
FEAR
eyes

20
21
SADNESS
HOPELESSNESS
DEPRESSION
Black hole
22
23
WAKE UP CALL
TIME TO
“GET OVER IT”
Barn door – for the best

24
If you don’t
stop, I CAN’T
HELP YOU
Art of Transformation – Downloadable Book
JohnDecideSuccess@gmail.com

Pick a Day and
Commit to it in Concrete

25
SECOND: EAT HEALTHY
FOOD
•
•
•
•
•
•

VEGATABLES: Especially Green
ORGANIC
NON-ANIMAL PROTIEN
FRUIT and unsweetened juice
PURIFIED WATER
GLUTEN-FREE
FIND A FARMERS MARKET
26
HEALTHY FOOD continued

DON’T PUT UNHEALTHY
THINGS IN YOUR BODY
•
•
•
•
•

Sugar (especially Drinks/ Soda)
Artificial Sugar (especially diet Drinks)
Processed Foods/ GMOs
Fried Food
Animal Protien
27
THIRD: EXERCISE

EXERCISE
• Beyond Your Comfort Zone
• Every Day (almost)
• Sweat, Stretch, Strengthen
Davis Phinney Victory Summit
28
FOURTH: WILL
•

•
•
•
•

Find YOUR Inner Strength
You have the POWER within you
Give yourself NO CHOICE
DRIVE, DESIRE, DETERMINATION
Intestinal Fortitude
Weird kids

29
FIFTH: MENTAL HEALTH
• Stay mentally active
•
•
•
•
•

euchre - crossword

Do part-time what you used to do full-time
Write a book of what you have learned in life
Get more rest
Spend more time with family
Reduce stress – just say “no” –
DON’T Over-commit

30
31
32
33
SIXTH: YOUR TRIBE
•
•
•
•
•
•
•

IDENTIFY YOUR SUPPORT SYSTEM
YOUR TRIBE/ VILLAGE
Family and other Caregivers
Health Care Professionals
Parkinson’s Associations
Exercise Partners
Financial Planners
Attorneys (if necessary)
Employment – Benefits – SS Disability
WHO ELSE???
34
35
SEVENTH: ATTITUDE
•
•
•
•
•
•
•
•

Positive Attitude
rock – cheer – worst thing
Inspiration is Everywhere
Tori story – 30 for 30
Impossible is a Temporary thing
moon - math
Remove your Blinders
Overboard
Continually Question
Awareness
See Beyond what is Apparent
The mind is a powerful force
placebo
Simplify your life
36
37
EIGHTH: SILVER LINING
• Use our new found “abilities”
stare - poker
• Help others - new perspective on life
• Develop lasting friendships in the PD community
• Humbling Experience:
Become more loving, kind and compassionate
(I was an A…………)

• Express appreciation to our icare partner

love you

38
NINTH: PURPOSE
• WHAT is YOUR PURPOSE?
• WHY were you put on this earth?
• Do the answer to these questions have something
to do with Parkinson’s?
Maybe. Maybe not. Find yours.
•

Faith in yourself, Faith in others,
Faith in your higher power, and
Faith that your life has PURPOSE
39
The ultimate result of
enacting this plan is:
I am healthier
now, over ten years into
my PD, in body, mind and
spirit,
than I ever was before I
started exhibiting the
symptoms of PD.
- John Baumann
Parkinson’s Proud since 2002

40
iCARE Partners Experience
DISBELIEF – DENIAL
ISOLATION – SADNESS
AWKWARDNESS - ANGER
FEAR – DEPRESSION
SHOCK
41
Quality of Life
WE have the POWER to have the
HIGHEST QUALITY OF LIFE that
we can POSSIBLY HAVE.

TAP INTO THAT POWER.

42
43
Life ain’t always beautiful
Sometimes it's just plain hard
Life can knock you down,
it can break your heart….
But the struggles make you stronger
And the changes make you wise

No, life ain’t always beautiful
But it's a beautiful ride
What a beautiful ride.
- songwriter Gary Allan

44
Michael J. Fox Quote
“For everything this disease has
taken, something of greater
value has been given sometimes just a marker that
points me in a new direction
that I might not otherwise have
traveled.”
45
Michael J. Fox Quote
“So, sure, it may be one step forward
and two steps back, but, after a
time with Parkinson’s,
I’ve learned that what is important is
making that one step count, …..
always ….”

46
ALWAYS REMEMBER
"Too often we underestimate
the power of a touch, a smile,
a kind word, a listening ear,
an honest compliment,
or the smallest act of caring,
all of which have the potential
to turn a life around."
- Leo Buscaglia
47
FOR THE BEST
My mother is still not convinced
• BUT look at where I am TODAY
office
• And look at how healthy I am TODAY
• And now YOU are blessed to know what to do.

Someone certainly does work in
“MYSTERIOUS WAYS”
48
THANK YOU SO MUCH
We will be available to
talk, answer questions and sign
any books (Decide
Success, Courageous Stories of
Inspiration and Roadmap to
Success) for the rest of the event.
49

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Nifty Nine Parkinson's Keynote Powerpoint

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  • 2. Orlando's first Moving Day! National Parkinson Foundation's Awareness event presented by Florida Hospital! THANKS for having us 2
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  • 4. MYSTERIOUS WAYS How to actually Embrace your Parkinson’s disease and, for that matter, any other lifechanging adversity. 4
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  • 8. LIFE BEFORE PARKINSONS I FEEL YOUR PAIN WE ALL HAD ONE Doctors, lawyers, executives, accountants, politicians, actors, athletes, even a Pope, ….every job you can imagine. I love being an Attorney 8
  • 9. LIFE CHANGING ADVERSITY Diagnosed with Parkinson’s disease Your spouse/parent/child getting PD You or family the victim of a crime Loss of a job/ Demotion Death of a Loved One Other ILLNESS, DISEASE OR INJURY BECOMING A CAREGIVER 9
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  • 11. INTRODUCING What I like to call The Nifty Nine Action Plan to Embrace Adversity 11
  • 12. HOW TO LIVE LIFE TO THE FULLEST YOU NEED A PLAN: THE NIFTY NINE 12
  • 13. FIRST: RESEARCH • New procedures • New medications • What works for others • What has not worked • The best doctor • The emotional stages SHOUT OUT 13
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  • 24. WAKE UP CALL TIME TO “GET OVER IT” Barn door – for the best 24
  • 25. If you don’t stop, I CAN’T HELP YOU Art of Transformation – Downloadable Book JohnDecideSuccess@gmail.com Pick a Day and Commit to it in Concrete 25
  • 26. SECOND: EAT HEALTHY FOOD • • • • • • VEGATABLES: Especially Green ORGANIC NON-ANIMAL PROTIEN FRUIT and unsweetened juice PURIFIED WATER GLUTEN-FREE FIND A FARMERS MARKET 26
  • 27. HEALTHY FOOD continued DON’T PUT UNHEALTHY THINGS IN YOUR BODY • • • • • Sugar (especially Drinks/ Soda) Artificial Sugar (especially diet Drinks) Processed Foods/ GMOs Fried Food Animal Protien 27
  • 28. THIRD: EXERCISE EXERCISE • Beyond Your Comfort Zone • Every Day (almost) • Sweat, Stretch, Strengthen Davis Phinney Victory Summit 28
  • 29. FOURTH: WILL • • • • • Find YOUR Inner Strength You have the POWER within you Give yourself NO CHOICE DRIVE, DESIRE, DETERMINATION Intestinal Fortitude Weird kids 29
  • 30. FIFTH: MENTAL HEALTH • Stay mentally active • • • • • euchre - crossword Do part-time what you used to do full-time Write a book of what you have learned in life Get more rest Spend more time with family Reduce stress – just say “no” – DON’T Over-commit 30
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  • 34. SIXTH: YOUR TRIBE • • • • • • • IDENTIFY YOUR SUPPORT SYSTEM YOUR TRIBE/ VILLAGE Family and other Caregivers Health Care Professionals Parkinson’s Associations Exercise Partners Financial Planners Attorneys (if necessary) Employment – Benefits – SS Disability WHO ELSE??? 34
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  • 36. SEVENTH: ATTITUDE • • • • • • • • Positive Attitude rock – cheer – worst thing Inspiration is Everywhere Tori story – 30 for 30 Impossible is a Temporary thing moon - math Remove your Blinders Overboard Continually Question Awareness See Beyond what is Apparent The mind is a powerful force placebo Simplify your life 36
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  • 38. EIGHTH: SILVER LINING • Use our new found “abilities” stare - poker • Help others - new perspective on life • Develop lasting friendships in the PD community • Humbling Experience: Become more loving, kind and compassionate (I was an A…………) • Express appreciation to our icare partner love you 38
  • 39. NINTH: PURPOSE • WHAT is YOUR PURPOSE? • WHY were you put on this earth? • Do the answer to these questions have something to do with Parkinson’s? Maybe. Maybe not. Find yours. • Faith in yourself, Faith in others, Faith in your higher power, and Faith that your life has PURPOSE 39
  • 40. The ultimate result of enacting this plan is: I am healthier now, over ten years into my PD, in body, mind and spirit, than I ever was before I started exhibiting the symptoms of PD. - John Baumann Parkinson’s Proud since 2002 40
  • 41. iCARE Partners Experience DISBELIEF – DENIAL ISOLATION – SADNESS AWKWARDNESS - ANGER FEAR – DEPRESSION SHOCK 41
  • 42. Quality of Life WE have the POWER to have the HIGHEST QUALITY OF LIFE that we can POSSIBLY HAVE. TAP INTO THAT POWER. 42
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  • 44. Life ain’t always beautiful Sometimes it's just plain hard Life can knock you down, it can break your heart…. But the struggles make you stronger And the changes make you wise No, life ain’t always beautiful But it's a beautiful ride What a beautiful ride. - songwriter Gary Allan 44
  • 45. Michael J. Fox Quote “For everything this disease has taken, something of greater value has been given sometimes just a marker that points me in a new direction that I might not otherwise have traveled.” 45
  • 46. Michael J. Fox Quote “So, sure, it may be one step forward and two steps back, but, after a time with Parkinson’s, I’ve learned that what is important is making that one step count, ….. always ….” 46
  • 47. ALWAYS REMEMBER "Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around." - Leo Buscaglia 47
  • 48. FOR THE BEST My mother is still not convinced • BUT look at where I am TODAY office • And look at how healthy I am TODAY • And now YOU are blessed to know what to do. Someone certainly does work in “MYSTERIOUS WAYS” 48
  • 49. THANK YOU SO MUCH We will be available to talk, answer questions and sign any books (Decide Success, Courageous Stories of Inspiration and Roadmap to Success) for the rest of the event. 49