Anne Cody
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Understanding what works - Participation and public involvement
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Anne Cody
- 1. Understanding what works - Participation and public involvement Anne Cody IPH Conference 15 November 2017
- 2. Develop and promote PPI within the HRB and in HRB-supported projects and programmes HRB strategy 2016-2020: Research Evidence Action
- 3. In a research context… Participation • Data collected Engagement • Public outreach • One- way dissemination Involvement • Impact on research question and/or conduct
- 4. HRB supports for PPI • All grant schemes: PPI costs are eligible • PPI Ignite awards
- 5. HRB - IRC PPI Ignite awards PPI Ignite awards NUI G UL UCDTCD DCU
- 6. PPI question in application 2014 Dedicated feedback to researcher only 2017 Dedicated feedback to panel for information 2019 Integration into scoring criteria and expert panels where appropriate to scheme 2020 Public review
Editor's Notes
- HRB is main funder of health research in Ireland
- HRB is a research funder. Very high level because we didn’t know what to do. Also refer to it in core values Core group we reach are researchers Conducted survey of researchers how HRB could support PPI. Top ranked from researchers: practical support. 2nd: awareness raising
- Infrastructure funding, Support a variety of health researchers 5 awards starting recently
- IPPOSI: hosting EUPATI Platform, EUPATI toolbox, training and public events MRCG shared learning group PPI: Understanding the variety of ways that patients and the public can be involved in a charity’s research activities, Discussing the challenges and barriers to involvement and how to overcome them, potentially agreeing approach to PPI for MRCG-HRB Joint Funding Scheme Clinical Research PPI Working Group: Initiated jointly by HRB-CRCI and IPPOSI, new Chair Edel Murphy, Mostly CRF/CRC staff, some others (HRB clinical trials networks, pharma, HRB, …), Mostly people directly delivering PPI. Support sharing of knowledge and resources, Identify training needs of members and identify/share knowledge about suitable training opportunities PPI Ignite-led community: Initiated by HRB on backbone of PPI Ignite awards, To be open to people from all institutions working in PPI, irrespective of HRB award. Tackle common issues, Gain further insights into shaping future institutional PPI interventions. To be run by members, not HRB Training/events: UL summer school, 3U workshop in RCSI, NUI G PPI conference, WT-HRB Clinical Research Facility at SJH National Patient Forum: members are organisations NCEC: Develop national guidelines. Recent public consultation on best ways of involving members of public into guideline development
- Can we speed up development of PPI significantly if we make it mandatory, e.g. in funding applications?