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The New Data Economy: Own your Data

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Take part in a journey to rebuild trust and claim data privacy when it comes to your lifestyle data.

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The New Data Economy: Own your Data

  1. 1. ONLINE MORGENBOOSTER: The New Data Economy: Own Your Data Claus F. Nielsen Pizza guy, Tisvildeleje Denmark, the red TOMATO
  2. 2. Claus F. Nielsen Co-founder, DATA for GOOD Foundation
  3. 3. @DeadpoolNet @datafgood
  4. 4. Health costs per capita Denmark $5,183 Health costs per capita US $10,209!!
  5. 5. Digital divorce >2-5 min.
  6. 6. My public health portal data registry Unique personal data back from 1970
  7. 7. National telemedicine implemented since 2013 CHF patients cost savings: 35%
  8. 8. ”…only 6% of people with diabetes are actually in good control; that’s the real battle we have to fight” Camilla Sylvest, Executive vice president, Commercial Strategy & Corporate Affairs, Novo Nordisk diatribe Foundation’s third annual gathering during ADA 2018
  9. 9. M MUNICIPALITY G GOVERNMENT H HOSPITAL
  10. 10. ”…only 6% of people with diabetes are actually in good control; that’s the real battle we have to fight” Camilla Sylvest, Executive vice president, Commercial Strategy & Corporate Affairs, Novo Nordisk diatribe Foundation’s third annual gathering during ADA 2018
  11. 11. Innovating public Health Systems N No o t th ha an nk ks s! ! W We e d do o n no ot t h ha av ve e t ti im me e
  12. 12. Interoperability – not easy
  13. 13. C55H10406 48 Hba1c 2007
  14. 14. 54 Hba1c
  15. 15. MAMIL Phase Instagram running
  16. 16. Researchers: Your way of eating can remove diabetes 2 ! So I started eating fish!
  17. 17. My Magic Pill: Ketogenic diet + exercise!
  18. 18. C55H10406 31 Hba1c 2017
  19. 19. Long term glucose out of bounce again! 54 Hba1c
  20. 20. Exercise in Hours
  21. 21. Exercise Hours Q4 /2018
  22. 22. What happened ?
  23. 23. Long term glucose out of bounce again! 78 Hba1c
  24. 24. PATIENT CENTRIC ? Highly specialised ! Also highly specialised !
  25. 25. “Personal data collection is being 'weaponized against us with military efficiency” “the business of selling ads against personal data has become a "data industrial complex”
  26. 26. “Personal data collection is being 'weaponized against us with military efficiency” “the business of selling ads against personal data has become a "data industrial complex”
  27. 27. We have lost control
  28. 28. We have lost overview of our digital lives
  29. 29. GDPR
  30. 30. Annemette Broch Founder & Chairman of the bord of DATA for GOOD Foundation
  31. 31. DATA for GOOD • Foundation structure • Technology • Citizen control • Transparency • Overview • Cooperation
  32. 32. C Cr re ea at ti in ng g T TR RU US ST T ? ?
  33. 33. C Cr re ea at ti in ng g T TR RU US ST T ? ?
  34. 34. Citizen control • Easy • Secure • Simple
  35. 35. Trust in data Citizen Companies Organisations Research Research Organisations Private companies
  36. 36. Value creation with a human centric approach
  37. 37. We can do something with GDPR We can do even more with the DfG Platform
  38. 38. We would like to share but we want to decide
  39. 39. It’s everyones interest But no ones responsibility ?
  40. 40. DfG Platform - a platform that secures • Citizen control • infrastructure • collaboration
  41. 41. Multiparty computation (MPC) Secures • Citizen Control • Secured use of data • - Gives us data insights anonymized Server 2 Server 1 Server 3
  42. 42. Privacy preserving blockchain
  43. 43. Type 1 slide • What visualisation+
  44. 44. Health Data Exchange – HedaX project 1. Connect and Collect 2. Analyze 3. Use © Copyright Data for Good Foundation 2019 2. Analyze 3. Use External storage External storage External storage External storage GDPR Consent Hub DfG Citizens Healthcare Sector Public & Private Clinical Research Analyst OUTPUT EMPOWERMENT INTEGRATED CLINICAL PATHWAYS PERSONALIZED MEDICINE PUBLICLY AVAILABLE DATA PRIVATE DATA CPR REGISTRY DATA GENOME DATA 1. Connect and Collect Secure Multiparty Computation Data Privacy preserving blockchain
  45. 45. DATA for GOOD 77 Innovation & RD Portfolio Støttet af Innovationsfonden Budget på 24 mio. kroner Partners: Alexandra Institute National Bureau of Statistics DataFair DATA for GOOD DPO Management Health360 H. Lundbeck Danish Cancer Assocation Monsenso Secata Capital Region Danish Health Portal National board of Health Data Funded by Danish Industries Fund Budget: 7 mio. DKK Partners: Alexandra Institute Data Ethics DataFair DATA for GOOD Insurance & Pension funds Assocation OpenTeleHealth SECATA Vital Beats Welfare Tech OSCAR Støttet af Innovationsfonden Budget på 70 mio. kroner Partners: A-Evidence Amgros National Bureau of Statistics Danish Regions DataFair DATA for GOOD DPO Management Enversion Medicine Council National Genome Center National hospital Copenhagen (Rigshospitalet) Roche A/S Secata National board of Health Data Trial Nation Tværspor Se næste side
  46. 46. Thanks for your time!

Take part in a journey to rebuild trust and claim data privacy when it comes to your lifestyle data.

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