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Counseling Individuals with
Asperger’s
Who Changes?
Goals of Class
• Review therapeutic techniques
• (more importantly) raise critical issues regarding
  use of these techniques
• Who decides? Who changes?
• Social vs. Individual Change
Today’s Agenda
•   Who are you? Why are you here?
•   Neurodiversity as the new multiculturalism?
•   AS/HFA Described
•   Behavioral and Cognitive Approaches
•   Language
•   Peer Mentoring
•   Sex and Dating
Big Points
• A few good ideas about how to help
• Pathologize vs. Normalize (Consequences)
• Reciprocal Benefits (Does AS help Typicals?)
• Hear the point of view of persons with A.S.
  (News from WrongPlanet)   http://www.wrongplanet.net/article432.html

• Contribute our Ideas both locally and globally on
  Asperger’s
• Neuroplasticity
Politics of Autism
• Cure Autism Now PSA
  http://www.youtube.com/watch?v=j_cJp714jXQ
• E.g. Response to Cure Autism Now
  http://www.youtube.com/watch?v=JFmi1o0JEaM&

• Comparing Autism Speaks to Women Speaks
 http://www.dailykos.com/story/2007/05/19/336513/-An-Au
Politics of Autism
• Leave us alone
• Diagnose and treat! (Autism speaks) http://bit.ly/UMeVrS
• Aspergian Culture http://www.aspergianpride.com/
• Asperger’s as a advantage
  http://autism-culture.com/parents/dont-mourn-for-us/
   (“I urge parentsto make radical changes in their
  perceptions of what autism means”)
• Eliminate Asperger’s?
  http://www.npr.org/templates/story/story.php?storyId=
More Politics
• Does Neurodiversity precede Biodiversity?
  http://www.youtube.com/watch?v=4wc8dYYxmos

• *A new kind of multiculturalism? (from the
  Pumpkin Festival)
  http://www.youtube.com/watch?v=NZS_1MogtQk
Local and Global Ideas
• Consider blogging
• Tweeting (Behavior Babe); ABA Chat
• Mainstream Literature vs. Tribe of Interested
  Counselors, Educators, Parents
• Post-Modern Point: Your ideas just as important
Blogs seem old-fashion
Personal Advantages of blogs
• Blogs as Personal Lab Notebooks (ethnography,
  Anthropology & half-baked ideas)
• Writing helps you think
• Blogs have impact
• Blogs as Resume
Autism, AS, Blog Impact
• Kathleen Seidel http://www.neurodiversity.com
• Kachina 17 yr. old with Autism
  http://kla.typepad.com
• Andy Sylvia Keene State College Student and
  politician with AS
  https://secure.actblue.com/page/andrewsylvia
• Jenn Macintosh
  http://www.cerebralpalsychatgirl.blogspot.com/
  & on video: http://bit.ly/uvMBUd
Antioch ASD Student Blogs
• Hanako Jones
  http://hanashimonaka.blogspot.com/2009/11/
  introductions.html
Gina Colby’s Blog!
• http://ginacolby.blogspot.com/
Creating Online Communities/using
tech
• Virtual vs. Real Conferencing (Accomodating
  social deficits?) http://blip.tv/file/88852
• *Kinect http://vimeo.com/27257317
• *Recent 60 minutes on Autism Apps
  http://www.youtube.com/watch?v=F_8b7PgnNQQ
Asperger’s/HFA
• Who are these kids?
• Who are these adults?
DSM 5 Proposed Criteria ASD
1) social interaction and communication (e.g.,
  maintaining eye-to-eye gaze, ability to sustain a
  conversation and peer-relations) and 2) the
  presence of repetitive behaviors and fixated
  interests and behaviors. Additionally, in
  recognition of the neurodevelopmental nature of
  the disorder, the criteria require that symptoms
  begin in early childhood.
DSM IV Diagnostic Criteria for
Asperger's
• (I) impairment in social interaction, as manifested by at
  least two of the following:

(A)marked impairments in the use of multiple nonverbal
  behaviors such as eye-to-eye gaze, facial expression, body
  posture, and gestures to regulate social interaction

(B) failure to develop peer relationships appropriate to
  developmental level

(C) a lack of spontaneous seeking to share enjoyment,
  interest or achievements with other people, (e.g.. by a lack
  of showing, bringing, or pointing out objects of interest to
  other people

(D) lack of social or emotional reciprocity
DSM (cont.)
•  (II) Restricted repetitive & stereotyped patterns
   of behavior, interests and activities; by at least
   one of the following:
(A) preoccupation with one or more stereotyped
   and restricted patterns of interest that is
   abnormal either in intensity or focus
(B) inflexible adherence to specific, nonfunctional
   routines or rituals
(C) stereotyped and repetitive motor mannerisms
   (e.g. hand or finger flapping or twisting, or
   complex whole-body movements)
(D) persistent preoccupation with parts of objects
Controversies in Diagnosis: Should
Asperger’s Disappear?
• Will The AS diagnosis disappear from NY Times
• Simon Baron-Cohen’s plea to save AS diagnosis
Changing DSM Criteria Graphic
• http://www.nytimes.com/interactive/2012/01/20/u
Changing Autism Criteria: Volkmar
Comments
• http://www.nytimes.com/2012/01/20/health/resear
What’s the difference?
Under the current criteria, a person can qualify for
 the diagnosis by exhibiting 6 or more of 12
 behaviors; under the proposed definition, the
 person would have to exhibit 3 deficits in social
 interaction and communication and at least 2
 repetitive behaviors, a much narrower menu.
Comments from GRASP
• http://welkowitz.typepad.com/aspergers_conversati
Arguments for DSM Change
For:
1.ASD reflects continuum
Against:
1.Don’t know yet if AS is distinct from Autism
  genetically/biologically
2.Parents/Families have organized around AS
  label
Challenge Question
• Your thoughts on changes in diagnostic criteria.
• Do changes simply serve the needs of
  psychiatry?
Billy The Kid


• Video clips
If I could say it in words
• http://www.youtube.com/watch?v=NhzgNMTcioM&
Galen Clip I: Breaking down by
symptoms http://bit.ly/bdfwjv
• Halting speech- odd patterning of pauses
• Vocal Intensity- a bit loud…but little variability
  (prosody)
• Content- no problem with saying he’s working
  on social skills, “etiquette”
• Rocking-
• Closing-doesn’t say anything
Galen Clip II: break down
• Halting speech
• Odd content
• Some odd attempts at prosody (we’re working on
  that)
• Clipped responses: “Food Court, Candy store,
  arcade”
• Closing-walks out of my room
Galen’s Deficits: Comments
• 1. Blink- People make fast judgements (so much
  of our story is about OTHER PEOPLE)…15-30
  secs…people rely on intuition…but their
  intuition is sometimes right and sometimes
  wrong
BIG Point: We need to coach both the person with
  AS and their conversational partners.
• Good social skills are a strong predictor of
  success (e.g., children on playground: questions
  vs. statements.
Perspectives
• Doubling a penny
• Power of 10
  http://www.youtube.com/watch?v=0fKBhvDjuy0

• Bill Gates & Malaria http://bit.ly/TKomXu
Levels of Intervention

                     Therapist Intervenes




Person with AS/HFA       Community          Family
Know Your Role!
•   hub of the wheel for information (a good case mgr)
•   consultant on all aspects of a program:
    educational, ancillary services/ot/pt/adaptive
    p.e./medical/recreational
•   Advocate: Promote ASSETS vs. DEFICITS (e.g.,
    Galen at work---works hard…not good at down
    time…I play up the “good at work” part);
    Educational Opportunities!
•   Family Therapist- Support, problem solving,
    consultant, more support
•   Contributors to larger discussion about AS/HFA
    through blogging, community talks, conferences
Therapy Orientations: CBT vs.
Traditional Orientations
• Rogerian Methods: Unconditional Regard;
  Reflection; Transparent Self (helps AS know
  they are understood).
• Insight oriented approach limited but ASers had
  difficult early childhoods which need to be put in
  perspective; Use the “time tunnel” technique:
  “What was this like when you were younger?”
  Billy: Now I understand that many problems
  were due to AS
Therapy Orientations (cont)
•   Behavioral theory/techniques- Both
    typical and non-typical individuals benefit
    from “setting goals” and “building new
    repertoires of skills” in pragmatic ways.
(e.g., building dating skills involve step-by-step
    increases in social activites…asking someone
    out for coffee  asking 2 people out for coffee
     asking one of them out to a movie 
    gradually increasing intimate behaviors…etc.
Therapy Orientations (cont)
•   Cognitive theory- focusing on the details of
    positive or negative thoughts, pursuing ideas
    that interfere with progress (e.g., “I can’t do
    that” or “That’s not me to say things like that.”)
Orientations Summary
•   Cognitive-thinking
•   Behavioral-behavior
•   Rogerian-affect/feelings
•   Psychodynamic-unconcious
Challenge Question
• What is your orientation or style in counseling
  individuals with ASD?
Direct vs. Indirect Treatments
• In therapy with AS we do both
• E.g., social communication:
 ▫   Direct speech training (speechmatch)
 ▫   Social skills training
 ▫   Social networking via mentoring
 ▫   Scripts and Social Stories
Parameters of Speech
•   Vocal intensity (Volume)
•   Lengths of pauses
•   Lengths of switching pauses
•   Lengths of vocalizations
•   Pitch
•   Rhythm
Matching Speech Patterns
•   Vocal Congruence
•   Visual Display
•   Talking like others do
•   Empathy, warmth, understanding (Rogers!)
Teaching Conversational
Reciprocity
Biofeedback for Arrythmias
Using Audacity
• Free download: http://audacity.sourceforge.net/
• Audacity Clip
  http://www.youtube.com/watch?v=k88peetnAp8

• Speechmatch Pilot
  http://www.youtube.com/watch?v=TAYOhi7uxqM

• Demonstrate Audacity
D. Githmark & L. Welkowitz, Mensa Rsch.
Journal, Fall, ‘09
iPad App Demo
• Volume, Rhythm, Pitch, Overall % Match
• Neuroplasticity
• Tuning in
iPad Trial: Normal Control
Current iPad Study at KSC
•   10 subject with Autism
•   20 hours training
•   Experimenters work in teams
•   Pre/post conversation recordings
What an iPad speechmatch trial
looks like…
• http://www.youtube.com/watch?v=JLW9MWT8fzg
Preliminary Findings
•   Happy, Sad vs. Unpleasant/Pleasant Surprise
•   Volume vs. Pitch vs. Rhythm
•   Child studies (coming up)
•   Generalization to real life
•   Component of social skills program (awareness
    of talk)
iPad Collaboration with MuseAmi, Inc.
• Demo iPad APP
• Preliminary Results:
• fMri Studies at Dartmouth Medical Center with
  Karen Jennings, Ph.D. (KSC) & Laura Flashman,
  Ph.D. (Dartmouth):
Plan A: Resting fMri with Autism
Plan B: Pre-Post fMri with Speechmatch training
Speechmatch as therapy and as
outcome measure
• Does Speechmatch improve Prosody?
• Does Speechmatch measure changes in Prosody?
Point Light Pilot
• Screencast on PointLight
• Pilot study- biomotions lab
KSC student Katey Wichland
Catalogs Observations
Male:
•   Arms swing outward while they walk. Elbows pointing away from the body, and wrists pointing towards the hips.
•   Broader shoulders
•   Torso makes the shape of a goblet where the shoulders curve inward towards the hips.
•   Hips are narrow
•   Men’s hips don’t swing with each step like a woman’s does, causing men to use more force in the calves and knees when walking.
•   When trying to picture a man walk, think of a male gorilla and how the shoulders are hunched over, father from the body.
•   When nervous, shoulders will move up towards the ears. The more relaxed, the further the shoulders are from the ears.
•   Pace is quickened when stressed. Pace slows when relaxed. Longer swing in the arms when relaxed.
•   When happy, males tend to have a bounce when they walk, radiating from each footstep.
•   When sad, pace is slowed, shoulders are hunched, and the arms do not swing as wide.
•   Larger men tend to move slower, elbows are further from the body, and more pressure is put on the knees when walking. Lighter men tend to walk
    a little faster and have more bounce in their step.
Wichland Observations Cont.
• When trying to picture a man walk, think of a male gorilla and
  how the shoulders are hunched over, father from the body.
• When nervous, shoulders will move up towards the ears. The
  more relaxed, the further the shoulders are from the ears.
• Pace is quickened when stressed. Pace slows when relaxed.
  Longer swing in the arms when relaxed.
• When happy, males tend to have a bounce when they walk,
  radiating from each footstep.
• When sad, pace is slowed, shoulders are hunched, and the
  arms do not swing as wide.
• Larger men tend to move slower, elbows are further from the
  body, and more pressure is put on the knees when walking.
  Lighter men tend to walk a little faster and have more bounce
  in their step.
Wichland Observations Cont.
• When sad, pace is slowed, shoulders are
  hunched, and the arms do not swing as wide.
• Larger men tend to move slower, elbows are
  further from the body, and more pressure is put
  on the knees when walking. Lighter men tend to
  walk a little faster and have more bounce in their
  step.
Observations by KSC student with
diagnosed A.S.
 Male:
 • Arms wider, legs closer
 Male Heavy:
 • Slower, less movement from side to side
 Male Light:
 • Arms closer to the body, walks a lot faster
 Male Nervous:
 • Faster movement, elbows way up, hands in front
   of body, “ready to defend himself”, looks nervous
   in the general gate and how he holds himself
Katie Wichland Catalogs observations
of AS student
• Point_Light_Research.doc
Challenge Question
• How important is speech style to you in getting
  along with others? Do certain styles turn you
  off?
iPad Apps for Autism
• More on iPads and ASD:
  http://www.youtube.com/watch?v=F_8b7PgnNQQ
  (60 minutes broadcast) Comment: But no data!
Need to UNPLUG
• YELP (with apologies to Allen Ginsburg)
  http://www.youtube.com/watch?v=UowVsL3dXjM
Social Communication II: Errorless
Modeling
• Conversation with prompts
• Conversation without Prompts
 http://welkowitz.typepad.com/aspergers_conversations/2006/02/errorle


• Behavioral Test (BAT)
 http://www.youtube.com/watch?v=fBj-QGxdGTI
Social Communication III: Scripts
               Initial Contact Script
Instructions: This is a suggested script for the
  student’s initial contact with a potential site
  supervisor. Feel free to use all our part of this
  script as a guide for this initial conversation.

Student: Hello, my name is
 _________________. I am a student in the
 Department of Psychology at Keene State
 College and I’m calling to speak with you about
 the possibility of doing a practicum/internship
 at your agency.
Pros and Cons of Scripts
• Helpful in inserting new behaviors in social
  repertoires
• Creates “sameness” to conversations (not
  natural)
• Are overused or used inappropriately
Social Communication: Children
•     poor social reciprocity
    - games for increasing back and forth in
      conversation:
    ▫   collaborative story telling
    ▫   using a magic stick (exchange during floor
        shifts)
    ▫   eye contact as punctuation (fun to do!)
    ▫   Skillstreaming-
Skillstreaming: Having a
Conversation
1. The Greeting
2. small talk
3. big point
4. closing
5. Autopsy
Reading Faces

•   watch videos (stop and chat)
•   practice making faces in the office
•   Brattleboro face project (KLA)
•   Ekman Faces
More on Decoding others’ emotions
•   Use Cartoons!
•   Bubbles over characters to infer thoughts and
    feelings
Empirically Validated approaches
to empathy
• http://www.parentingscience.com/teaching-empathy
Other Social Conversation
Interventions
•       CBT for SP
    •     ID difficult social situations
    •     ID neg cognitions
    •     Challenge neg cognitions and develop coping
          responses
    •     Design exposure/role play
    •     Set Goal
    •     Begin Role-play
    •     Monitor anxiety at 1 min intervals
    •     End Role-play
    •     Review Goal
    •     Cognitive Autopsy
Challenge Question
• Is there a continuum of ability in decoding
  emotion in speech and language?
• What common understandings of “how to
  decode” can we offer others?
Anthropology
• Ethnography
• Student Center to study college student
  greetings
• Playgrounds for younger children
Anthropology II:
We study them
• Education is Key (British Video Clip)
Constructional Approach
• Current Accomplishments
• Weekly Goals
• Program Notes
Constructional Approach (cont)
•   Antidote to Pathological Approach
•   What’s wrong vs. What needs to be added
•   How will you be different
•   How will others see you as different
•   (for little kids)…people come from outer space,
    what changes in you will they report?
Managing Emotional Problems:
Anger
•   Using Visual Guides (e.g., scaling anger)
•   Novaco: Cognitive, physiological, behavioral
•   2 Big Cognitive errors
•   I’m going to kill Jeremy (interpreting anger)
•   Self-monitoring
CBT
• Depression: Cognitive Therapy
• Depression: Frequency of Pleasant Activities
• Self-Reinforcement
More of Today’s Agenda
•   Newtown and AS
•   Your work
•   Trends in Neuroscience
•   Special Interests
•   Peer mentoring
•   Co-morbidity deconstructed
•   Sexuality
•   Turnaround
Asperger’s and Newtown
• From the NY Times:
 http://www.nytimes.com/2012/12/15/nyregion/adam-lanza-an-enigma-who-is-now-identif
Response
• MJ Carley Adult Asperger’s Group
• Asperger’s Conversations
 http://welkowitz.typepad.com/aspergers_conversations/2012/12/aspergers-mentioned-in-n
Always concerned with distinguishing
subjective vs. Objective Reality
• Ben-X
 http://welkowitz.typepad.com/aspergers_conversations/2009/06/benx-fantasy-v
From Hilde’s paper
• I loved the tone ’I don’t care about who and what
  you are. Please, come up with constructive ideas,
  and I’ll listen to you. After due consideration, I’ll
  put your idea into practice in my own
  environment.’
• Blogging is a form of thinking aloud and having
  a good conversation that doesn’t require spewing
  out reams of paper with very wordy messages.
Jillian’s reflection on Doidge
• While this child did not have the intensive CI
  therapy discussed in this book chapter, she did
  have a lot of demanding therapies that required
  her to work a lot with her weak left side. Without
  the interventions and working to make her left
  side of her body stronger and teach her brain to
  make changes, she definitely would not be where
  she is today.
Sharon Shirley-Bailey
“Understanding (and truly embracing) the concept
  of neurodiversity was inspiring to me. I feel this
  way because of the work that I do with
  emotionally disturbed deaf adolescents and
  children. Not only because of that, but because
  my parents were deaf so I had to endure both
  surprise and ignorance from the general
  population about deafness.”
-From Shirley’s paper
Carolyn Sprague
“Because of the many advantages of a
  constructional approach, I’ve begun to think
  about how I could apply it to building my
  thirteen year old son’s conversation skills.”
-Carolyn
Tammy Massengill
“. What a brain buzz! I thought that I returned to
  higher education to learn what I was missing,
  forgot that I am an inventor, also. Thanks Dr. W
  for breaking me out of my shell and causing me
  to participate in the Big Picture, once again.”
-Tammy
Important Trends
• Mirror Neurons: Positive Support
  http://news.sciencemag.org/sciencenow/2005/12/0

• Mirror Neurons/Autism conflicting evidence
  http://news.sciencemag.org/sciencenow/2010/05/a
• Unanswered question: Do mirror neuron deficits
  explain empathy deficits?
Mirror neurons
http://www.youtube.com/watch?
 v=BOd3N20XNC4
Trends (cont): Oxytocin
• http://www.sciencedaily.com/releases/2010/02
  /100216221350.htm
• Largest Study 13 subjects
• Looked more at upper face vs. lower face
• Discriminated types of games children were
  playing
Did Disney rip off Welkowitz?
• Speechmatch:
http://www.youtube.com/watch?v=k88peetnAp8
• Wall-E
  http://adisney.go.com/disneyvideos/animatedfi
  lms/wall-e/games/sayit/
AS and Oppositional Behavior
• Behavior Chains
• Meeting Special Interests (Hunter Clip
  http://www.youtube.com/watch?v=D1T-
  zY1DXQk )
• Going With rather than against re: special
  interests
Going with Special Interests
• e.g.2 Ben- The Cloud Room…Hey Now Now
• e.g. 3 Billy- sports statistics…
and began a blog about the LA Dodgers this
  summer
Death Metal in Norway and Asperger
Academic Success
• http://www.npr.org/templates/story/story.php?
  storyId=90126955
• Clip of Norwegian Black Metal Band
  http://www.youtube.com/watch?
  v=i4U33U_UyzQ (ability to view disturbing info
  differently; objectively)
Perspective Taking
• Are neurotypicals MORE RIGID in thinking due
  to cultural restraints?
• Are we more likely to “go with the majority” and
  spurn unusual ideas?
• E.g., medical students and interest in
  preventative medicine
• E.g., A.S. member of religious family declares his
  atheism
Social Networking: Mentoring as
Intervention
• The Insider-Outsider Problem
• Challenging the notion that ALL INSIDERS are
  enemies
• Challenging the notion that ALL INSIDER
  activities are unethical
• Work to Move AS person to Insider status
Gaining Insider Status
• Quirky Groups (Drama, Band, Geography, Math)
• Quirky skills (magic; knife throwing)
  http://bit.ly/gHXWEH
• Hit Your Connectors
• Ask Your Mavens to ID Connectors
• Peer Mentoring
Peer Mentoring
• Doug Flutie Jr. Grant
• Up to 12 peer mentors at KSC
• ID AS individuals (close connections to
  Counseling and Disability office)
• Peer Mentors provide support, advice giving,
  friendship
• Meet regularly; introduce to friends; Networks
  Expand
Peer Mentoring: Social Network
Development
• Networks serve as buffers against stress
• Networks serve as buffers against depression
• Networks serve as important source of
  information
• Networks serve as important source of activities
Peer Mentoring Issues
•   Mentors meet regularly to discuss problems
•   Confidentiality (Inner vs. Outer Circle)
•   Relationship Boundaries
•   Handling Difficult Problems
•   Ethical Dilemmas
Reinforcing the Reinforcer
• Volunteers vs. Salaried Workers
• Use of Practicum or Independent Study
• Regular contact (fielding calls; dealing with
  emergencies)
Peer Mentoring: Outcome
•   Anecdotal Reports: Benefits are clear
•   Quality of Life Increases
•   Parent testimonials
•   School Retention
•   Interest in Program
•   Service Learning (new!)
•   Dana Githmark Clip
•   Mike Hayes Clip
Peer Mentoring: Outcome II
• Seth Clip http://www.youtube.com/watch?
  v=PRwCHp1on-E
AS and Comorbidity
•   People like simple answers: With one
    diagnosis we can “put people in a box” and we
    feel better that we have a grasp on the problem
    and ideas for
•   Leads to Prescriptive Approach: Matching
    Problem with Solution
•   Topography vs. Function (Goldiamond)
•   Makes Outcome Studies Manageable
OCD and Comorbidity
• Data from the National Anxiety Screening Day
  Study:
Obsessive-Compulsive Disorder & Co-
  Morbid Anxiety in A National Screening
  Sample
  Lawrence A. Welkowitz, Ph.D., Keene State
  College; Elmer Streuning, Ph.D., Columbia
  University; John Pittman, M.A., Columbia
  University; Mary Guardino, Freedom From Fear,
  Staten Island, NY
Request for More Details on Co-
Morbidity
AS and OCD
A                 B            C
Antecedent    Behavior     Consequence

Tension UP        Ritual       Tension
 DOWN

(exposed to   Washes       (Reinforces
  Ritual)                  Contaminant)
AS and OCD: Eg. 2
A                  B             C

Exposed       Ritual        Decreased
 Tension
To oven

Tension UP    Checks Oven   Decreased

 Tension/Anxiety
AS and OCD: Treatment
• Exposure with Response Prevention
• Extinction that leads to elimination of ritual
  behaviors. This is good since:
  If not stopped…AS/HFA individuals will fail to
  resist OCD behaviors in public since they are less
  tuned in to SOCIAL CONSEQUENCES.
Issues in treating co-morbid OCD
•   May need “coach” to increase motivation
•   need to make social consequences of “odd”
    public behaviors clear
•   Reassure pt by discussing difference between
    OCD and Psychosis
AS and ADHD
• Lots of overlap…but also lots of differential dx
  errors due to similar “topography” of behavior:
• e.g. impulsiveness- As pts may “seem”
  impulsive because they are less likely to respond
  to social cues/consequences
• inattention- may be due to lack of interest
  rather than inability to focus…or lack of eye
  contact may be due to sensory aversion.
• Hyperactivity- may be linked to not
  understanding the “social demands” in a
  particular situation.
What to do about Disorganization?
• Systems that child can relate to…
• Spread sheets, graphs of progress, digital sticky
  notes, digital checklists, Power School
• Key is RULE GOVERNED BEHAVIOR (math
  papers go in math folder, etc)
• Algorithms for writing e.g., “Main Idea”
  http://www.youtube.com/watch?feature=player_embedded&v=vwKa1mWU98Y#!
• (start at min. 2:00 above)
• But what is main idea?
Inattention?
• AS students must have relevant motivation (e.g.,
  letting student do Holocaust Essay using
  cartoons; letting student do math using baseball
  statistics)
• Hint: Go “with” rather than “against” special
  motivators
AS & Depression
• due to chronic outsider status
• Pts get worse as their AS improves…recognize
  their social failings; desire insider status but realize
  how tough it is…may even miss their “splendid
  isolation.”
• lack of social reinforcement (just think of how
  much reinforcement a typical person receives
  throughout the day)…
• lack of social networks which serve as a
  BUFFER against stress and anxiety
• bullying and teasing (Seligman’s Learned
  Helplessness…dogs unable to escape shock)
• assaults on self-esteem- low rates of praise
Treatment Issues: Depression
•   Cognitive Therapy helpful
•   Lewinshon’s Freq. of Pleasant Events
•   Low Rates of Behavior
•   Physical Activity
•   Help shift AS/HFA individuals from “outsider”
    to “insider” status (e.g., mentoring, circle of
    friends, teaching them special skills that other
    like…such as magic or knife throwing)
Treatment of Depression cont.
 •   Err on the side of “reinforcing gains” rather than
     “focusing on deficits”…heap lots of positives on kids
     and adults
 •   encourage friends, spouses, teachers to focus on
     positives and ignore minor negative behaviors (e.g.,
     “catch me when I’m good”)
 •   Provide “outs” for kids to escape aversive
     environments (e.g., escape from crowded hallways
     where kids get shoved against lockers or bullied)
 •   SSRI’s or MAOI’s for socially avoidant individuals
     with high interpersonal sensitivity
Validation
• Validation Clip
Clinical Exercise: Break in to Pods
• Pick any problem or disorder that you have seen
  (or heard of) that co-occurred with Autism or
  Asperger’s. How did the two mix? What ideas
  do you have for therapy?
Depression and Bullying at College
Level
• E.g.s. of college level bullying (dorms, gym,
  class)
• Team Approach (counseling staff, profs,
  residential life staff)
• Identify Save Havens
• High Status Mentors as “Protectors” and
  “Promoters”
• Teaching Assertive Behavior
AS and psychotic disorders
• “Hallucinations”/”Delusions” may be due to
  chronic outsider status rather than
  schizophrenia (Attwood)
• Relentless CBT to treat irrational ideas (e.g.,
  “The FBI told me to ignore what my parent’s
  say”; “My father is out to get me”)
CBT for Irrational Thoughts
• Are you sure your father is out to get you?
• Have you ever felt this way before and it turned
  out that he was not out to get you?
• When did the FBI contact you?
• What were the names of the FBI agents?
• “Is this a highly irrational idea you are
  experiencing…or is it grounded in reality?”
• Dogged Pursual leads to “revised cognition”
Schizophrenia Symptoms vs. AS
 ▫   Delusions vs. radical thinking (recent story by
     professor about her brother)
 ▫   Paranoid thinking- due to chronic attacks by
     NT’s?
 ▫   Hallucinations vs. “Visions” or highly valued
     ideas
 ▫   negative symptoms: anhedonia, alogia (lack of
     initiating speech, action, pleasure). Are these
     due to lack of social connection or does it have
     “an organic feel”??
Hallucinations as Reinforced Behavior
• Burns, et al Hallucinations controlled by
  contingencies and mishearing of ambient noise
  http://www.ncbi.nlm.nih.gov/pmc/articles/PM
  C2741969/
• Layng, Andronis practical contingencies control
  hallucinations
  http://www.ncbi.nlm.nih.gov/pmc/articles/PM
  C2741750/ (e.g., seeing electricity in winter)
Concrete to Abstract Leap: AS vs.
Schizophrenia
• Both groups can not decipher “sayings” or
  metaphors:
      “A rolling stone gathers no moss”
      “A stitch in time saves nine”
      “Don’t put the cart before the horse”
      “I was pouring on the coals on the highway
  this morning”
      “That’s icing on the cake”
Egs. Of Psychotic-Like Behavior
• e.g. 2 KLA (age 18) “The Easter Bunny will visit my
  home and scare me)…solved by explaining that the
  easter bunny is “not real.”
(different from psychotic delusions…can’t explain
  them away!)
• e.g. 3 Jacob (age 10) and 9/11: The end of MLB!!
  Me: No, MLB will continue. School staff feared an
  anxiety/trauma response to 9/11…simply due to
  misperception (i.e., not a delusion)
• Comment: If reality testing is grossly impaired and
  doesn’t respond to CBT, then co-morbid psychotic
  disorder is possibility and anti-psychotic meds
  should be considered.
AS and Humour
• Can only understand very obvious humour: e.g.,
  Monty Python
• Counseling Tip: Make communications clear
  (surface vs. deep structure of language)
AS and Social Phobia
• SP: Hallmark feature is “Fear of Negative
  Evaluation”
      AS: Often immune to Negative Evaluation
• SP: Social skills can be intact
      AS: Poor Social Skills
• SP: Over focusing on social cues and events…
  e.g., notices people frowning, rolling eyes, etc
      AS: Doesn’t look at faces; don’t understand
  faces
Social Phobia vs. AS
• Many ASers call themselves “shy” but are they
  really?
• Misinterpret social inadequacy for social
  anxiety?
• Become anxious as a result of poor social
  abilities?
Treatment for Social Phobia
•       SP: focus on certain cognitive errors:
    ▫     Mind reading
    ▫     Fortune telling error
    ▫     overgeneralization
AS and social problems
•       AS: Focus on constructing social behaviors:
    ▫     Constructional Approach
    ▫     Exposure to social activities
    ▫     Basic friendship skills
    ▫     Some CBT around misconceptions of other
          peoples’ intentions
AS and Oppositional Behavior
• e.g., 1. Colin Age 10 refusing to do math that he
  feels is “insulting” “repetitive” “too easy”
• e.g., 2 Hunter age 11 with “genius IQ”, slipping
  on homework compliance
• e.g. 3 Seth (age 20) taking “Gen Ed” classes that
  are “too easy.”]
• e.g. 3 Annika’s classmate with obsessive interest
  in spiders
Prevent ODD with Accomodation
• Must LISTEN and MAKE ARRANGEMENTS for
  more challenging educational experiences…But
  schools not geared this way!
• Having kids take advanced courses…
• Make rules clear (rule governed behavior)
Going with Special Interests
• e.g.2 Room…Hey Now Now
• e.g. 3 Billy- sports statistics…
and began a blog about the LA Dodgers this
  summer
Very ODD: When all else fails
• Contingency management
• The List
• The Hook (Contingent access to special
  interests/activities)
• Computer Addiction
AS and PTSD
• Effects of Pervasive Bullying and Teasing
• Model for Understanding PTSD:
 ▫ Classical Conditioning (Associated Stimuli such as
   kids, classes, teachers Anxiety)
 ▫ Operant Conditioning (Escape is reinforced)
 ▫ Stimulus Generalization (high school college)
 ▫ Subjective Meaning of trauma stimuli (AS kid told
   that high school kids will follow to college)
PTSD Treatment: CBT and
Exposure to trauma stimuli
•   Challenge notions that “all kids are dangerous”
•   gradual exposure to non-dangerous kids and
    school situations
•   Safe and secure environments
•   on-going monitoring
AS/HFA and Dichotomous Thinking
• e.g., Collegues complaint about her brother rejecting
  Church (“Religon is the source of All hatred and
  violence”)
• e.g. G.’s absolute thinking “My father hates me
  because he won’t take me to a mall this weekend…
  and he must be punished”
• e.g., “Joe Lieberman is a Nazi”
• e.g., Andy: “Republicans deserve to die”
• e.g., Patrick Henry: “Give me Liberty, or Give me
  Death”
• e.g., Luke Skywalker “We must risk our lives to fight
  Darth Vader and all Evil”
Treating AS plus PTSD
• Obsessive nature of AS probably makes
  treatment more difficult
• But argument can be made for effective
  treatment
Arguments for treating AS plus
PTSD
•   Many AS kids have elements of PTSD (90% report
    some form of bullying or assault…many report
    sexual assault as well)
•   Foa and colleagues rsch. (Annenberg Found.
    Consensus Reports): CBT for PTSD in Kids
    effective
•   Recent studies by Sofronoff & Attwood: CBT
    directed toward Anx. Disorders effective, espec.
    With strong parental involvement!
•   Anger MGT helpful because AS kids “lash out”
    when confronted with trauma-related stimuli…
    unable to manage emotional stimuli effectively
    (Amygdala abnormalities?; executive functioning
    deficits?)- See Attwood Program:
Clinical Exercise
• Think of a problem you have seen (or heard of)
  in Autism/Asperger’s that might be helped if the
  person with autism can “take a different
  perspective”…think about things differently.
  How would you go about encouraging a new way
  of thinking?
Clinical Exercise
• Think of a problem that you have seen in
  Autism/Asperger’s that might lend itself to
  straightforward EXPOSURE therapy (ie., just
  doing it).
Behavior Chain
  Antecedent




               Crisis
Key to Intervention
• Break chain as early as possible
• Break chain at weakest link
Behavior Chain II: Meltdown
 Wakes up late
                 Favorite Clothes
                  Not available
                                    Teased on Bus


                                               Loses Homework

             Given Instruction Misinterprets
              To do “boring” Reprimand
MELTDOWN           task
Meltdown Interventions
• Wakes up late               • Scheduling control
• Favorite clothes not        • Deal with sensory issues;
  available                     use gradual exposure
• Teased on bus               • Anti-bullying programs
• Loses homework              • Organizational training
• Misinterprets reprimand     • Be Clear; avoid sarcasm
• Instructions to do boring   • Assess interest in task; go
  task                          with special interests
• MELTDOWN                    • Stay calm; Contain child
Common Stressors
1. Going Against vs. Going With Special
   Interests
2. Stimulus Overload
3. Using facial expressions as instructions
4. Physical Proximity
5. Olfactory stimulation
More Stressors…
6. Ambiguous social situations
7. Intense eye contact (“look at me”)
8. Disrupting pleasant activities
9. Strong criticism
10. Unpleasant Physical Activities
Clinical Exercise
• Pair off, select a behavior problem, do a
  Behavior Chain Analysis
Stigma
• Negative “halo effect”
• Wahl (2002) concluded: Negative attitudes
  toward persons with SMI evident by 3rd grade.
• Perceptions of Violence
Reducing Stigma
•   Promote Contact (Racism literature: “contact
    hypothesis”…contact effects strongest when the
    individuals:
        meet as equals
        work cooperatively
        target person moderately disconfirms a
         stereotype (someone who greatly disconfirms a
         stereotyped is dismissed as “an exception”)
AS and Sexuality
• Disconnect between AS skills and complexity of
  sexual activities
• Adolescence and hormonal change
• Lack of social influence leads to “what feels
  good” versus “what is acceptable”
• Lack of information
Sexuality: Problems that Arise
•   Inappropriate advances
•   Stalking like behaviors
•   Compulsive masturbation
•   Gender identity problems
•   Sensory difficulties (light touch vs. moderate
    touch; soft music vs. loud)
Sexuality Interventions
• Education
• Problem solving
• Friendship
• Obtaining Consent at Every Level of Intimate
  Advancement (Antioch Rules for Sexual Activity)
• Monitoring conversations
Monitoring Conversations/moods
Conversation Monitoring
What I Said  What they said   What I said


Monitoring Moods
Time        Situation         0-10 Mood
 Rating
Deep Survival
• Laurence Gonzales on Key Elements of Survival:
  Link to AS?
Them vs. Us
• Extending these ideas to “typical” individuals
• Changing our own ways of thinking and Culture
  to “fit the person with AS” versus “changing the
  person with AS to fit the culture”
AS and Culture
• Dominant Culture Forces its views
• Perceived Racism
• How we treat AS individuals reflects the kind of
  world we want to live in
• How we treat AS individuals reflects our own
  feelings about our own “inner geek”
Other Counseling Issues
• Physical Activity
• Being clear
• Assessing Readiness (e.g., to hear about
  diagnosis; to advance to next step in treatment)
• Teaching how to ask questions
• Using alternative methods of communication
• Meeting out of office
Challenge Question
• How do you feel about using non-traditional
  counseling methods?
Case Study
• Present Your Cases
• How would you incorporate elements of today’s
  class to these people’s lives?
Getting Funding
•   Changemakers
•   Doug Flutie Jr. Foundation
•   N.I.H.
•   Autism Speaks
•   Ben and Jerry’s
•   Local Developmental Services (MDS)
Turnaround
• Anything you would like to say?
• Questions?

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Antioch i'12rev

  • 2. Goals of Class • Review therapeutic techniques • (more importantly) raise critical issues regarding use of these techniques • Who decides? Who changes? • Social vs. Individual Change
  • 3. Today’s Agenda • Who are you? Why are you here? • Neurodiversity as the new multiculturalism? • AS/HFA Described • Behavioral and Cognitive Approaches • Language • Peer Mentoring • Sex and Dating
  • 4. Big Points • A few good ideas about how to help • Pathologize vs. Normalize (Consequences) • Reciprocal Benefits (Does AS help Typicals?) • Hear the point of view of persons with A.S. (News from WrongPlanet) http://www.wrongplanet.net/article432.html • Contribute our Ideas both locally and globally on Asperger’s • Neuroplasticity
  • 5. Politics of Autism • Cure Autism Now PSA http://www.youtube.com/watch?v=j_cJp714jXQ • E.g. Response to Cure Autism Now http://www.youtube.com/watch?v=JFmi1o0JEaM& • Comparing Autism Speaks to Women Speaks http://www.dailykos.com/story/2007/05/19/336513/-An-Au
  • 6. Politics of Autism • Leave us alone • Diagnose and treat! (Autism speaks) http://bit.ly/UMeVrS • Aspergian Culture http://www.aspergianpride.com/ • Asperger’s as a advantage http://autism-culture.com/parents/dont-mourn-for-us/ (“I urge parentsto make radical changes in their perceptions of what autism means”) • Eliminate Asperger’s? http://www.npr.org/templates/story/story.php?storyId=
  • 7. More Politics • Does Neurodiversity precede Biodiversity? http://www.youtube.com/watch?v=4wc8dYYxmos • *A new kind of multiculturalism? (from the Pumpkin Festival) http://www.youtube.com/watch?v=NZS_1MogtQk
  • 8. Local and Global Ideas • Consider blogging • Tweeting (Behavior Babe); ABA Chat • Mainstream Literature vs. Tribe of Interested Counselors, Educators, Parents • Post-Modern Point: Your ideas just as important
  • 10. Personal Advantages of blogs • Blogs as Personal Lab Notebooks (ethnography, Anthropology & half-baked ideas) • Writing helps you think • Blogs have impact • Blogs as Resume
  • 11. Autism, AS, Blog Impact • Kathleen Seidel http://www.neurodiversity.com • Kachina 17 yr. old with Autism http://kla.typepad.com • Andy Sylvia Keene State College Student and politician with AS https://secure.actblue.com/page/andrewsylvia • Jenn Macintosh http://www.cerebralpalsychatgirl.blogspot.com/ & on video: http://bit.ly/uvMBUd
  • 12. Antioch ASD Student Blogs • Hanako Jones http://hanashimonaka.blogspot.com/2009/11/ introductions.html
  • 13. Gina Colby’s Blog! • http://ginacolby.blogspot.com/
  • 14. Creating Online Communities/using tech • Virtual vs. Real Conferencing (Accomodating social deficits?) http://blip.tv/file/88852 • *Kinect http://vimeo.com/27257317 • *Recent 60 minutes on Autism Apps http://www.youtube.com/watch?v=F_8b7PgnNQQ
  • 15. Asperger’s/HFA • Who are these kids? • Who are these adults?
  • 16. DSM 5 Proposed Criteria ASD 1) social interaction and communication (e.g., maintaining eye-to-eye gaze, ability to sustain a conversation and peer-relations) and 2) the presence of repetitive behaviors and fixated interests and behaviors. Additionally, in recognition of the neurodevelopmental nature of the disorder, the criteria require that symptoms begin in early childhood.
  • 17. DSM IV Diagnostic Criteria for Asperger's • (I) impairment in social interaction, as manifested by at least two of the following: (A)marked impairments in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body posture, and gestures to regulate social interaction (B) failure to develop peer relationships appropriate to developmental level (C) a lack of spontaneous seeking to share enjoyment, interest or achievements with other people, (e.g.. by a lack of showing, bringing, or pointing out objects of interest to other people (D) lack of social or emotional reciprocity
  • 18. DSM (cont.) • (II) Restricted repetitive & stereotyped patterns of behavior, interests and activities; by at least one of the following: (A) preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus (B) inflexible adherence to specific, nonfunctional routines or rituals (C) stereotyped and repetitive motor mannerisms (e.g. hand or finger flapping or twisting, or complex whole-body movements) (D) persistent preoccupation with parts of objects
  • 19. Controversies in Diagnosis: Should Asperger’s Disappear? • Will The AS diagnosis disappear from NY Times • Simon Baron-Cohen’s plea to save AS diagnosis
  • 20. Changing DSM Criteria Graphic • http://www.nytimes.com/interactive/2012/01/20/u
  • 21. Changing Autism Criteria: Volkmar Comments • http://www.nytimes.com/2012/01/20/health/resear
  • 22. What’s the difference? Under the current criteria, a person can qualify for the diagnosis by exhibiting 6 or more of 12 behaviors; under the proposed definition, the person would have to exhibit 3 deficits in social interaction and communication and at least 2 repetitive behaviors, a much narrower menu.
  • 23. Comments from GRASP • http://welkowitz.typepad.com/aspergers_conversati
  • 24. Arguments for DSM Change For: 1.ASD reflects continuum Against: 1.Don’t know yet if AS is distinct from Autism genetically/biologically 2.Parents/Families have organized around AS label
  • 25. Challenge Question • Your thoughts on changes in diagnostic criteria. • Do changes simply serve the needs of psychiatry?
  • 26. Billy The Kid • Video clips
  • 27. If I could say it in words • http://www.youtube.com/watch?v=NhzgNMTcioM&
  • 28. Galen Clip I: Breaking down by symptoms http://bit.ly/bdfwjv • Halting speech- odd patterning of pauses • Vocal Intensity- a bit loud…but little variability (prosody) • Content- no problem with saying he’s working on social skills, “etiquette” • Rocking- • Closing-doesn’t say anything
  • 29. Galen Clip II: break down • Halting speech • Odd content • Some odd attempts at prosody (we’re working on that) • Clipped responses: “Food Court, Candy store, arcade” • Closing-walks out of my room
  • 30. Galen’s Deficits: Comments • 1. Blink- People make fast judgements (so much of our story is about OTHER PEOPLE)…15-30 secs…people rely on intuition…but their intuition is sometimes right and sometimes wrong BIG Point: We need to coach both the person with AS and their conversational partners. • Good social skills are a strong predictor of success (e.g., children on playground: questions vs. statements.
  • 31. Perspectives • Doubling a penny • Power of 10 http://www.youtube.com/watch?v=0fKBhvDjuy0 • Bill Gates & Malaria http://bit.ly/TKomXu
  • 32. Levels of Intervention Therapist Intervenes Person with AS/HFA Community Family
  • 33. Know Your Role! • hub of the wheel for information (a good case mgr) • consultant on all aspects of a program: educational, ancillary services/ot/pt/adaptive p.e./medical/recreational • Advocate: Promote ASSETS vs. DEFICITS (e.g., Galen at work---works hard…not good at down time…I play up the “good at work” part); Educational Opportunities! • Family Therapist- Support, problem solving, consultant, more support • Contributors to larger discussion about AS/HFA through blogging, community talks, conferences
  • 34. Therapy Orientations: CBT vs. Traditional Orientations • Rogerian Methods: Unconditional Regard; Reflection; Transparent Self (helps AS know they are understood). • Insight oriented approach limited but ASers had difficult early childhoods which need to be put in perspective; Use the “time tunnel” technique: “What was this like when you were younger?” Billy: Now I understand that many problems were due to AS
  • 35. Therapy Orientations (cont) • Behavioral theory/techniques- Both typical and non-typical individuals benefit from “setting goals” and “building new repertoires of skills” in pragmatic ways. (e.g., building dating skills involve step-by-step increases in social activites…asking someone out for coffee  asking 2 people out for coffee  asking one of them out to a movie  gradually increasing intimate behaviors…etc.
  • 36. Therapy Orientations (cont) • Cognitive theory- focusing on the details of positive or negative thoughts, pursuing ideas that interfere with progress (e.g., “I can’t do that” or “That’s not me to say things like that.”)
  • 37. Orientations Summary • Cognitive-thinking • Behavioral-behavior • Rogerian-affect/feelings • Psychodynamic-unconcious
  • 38. Challenge Question • What is your orientation or style in counseling individuals with ASD?
  • 39. Direct vs. Indirect Treatments • In therapy with AS we do both • E.g., social communication: ▫ Direct speech training (speechmatch) ▫ Social skills training ▫ Social networking via mentoring ▫ Scripts and Social Stories
  • 40. Parameters of Speech • Vocal intensity (Volume) • Lengths of pauses • Lengths of switching pauses • Lengths of vocalizations • Pitch • Rhythm
  • 41. Matching Speech Patterns • Vocal Congruence • Visual Display • Talking like others do • Empathy, warmth, understanding (Rogers!)
  • 44. Using Audacity • Free download: http://audacity.sourceforge.net/ • Audacity Clip http://www.youtube.com/watch?v=k88peetnAp8 • Speechmatch Pilot http://www.youtube.com/watch?v=TAYOhi7uxqM • Demonstrate Audacity
  • 45. D. Githmark & L. Welkowitz, Mensa Rsch. Journal, Fall, ‘09
  • 46. iPad App Demo • Volume, Rhythm, Pitch, Overall % Match • Neuroplasticity • Tuning in
  • 48. Current iPad Study at KSC • 10 subject with Autism • 20 hours training • Experimenters work in teams • Pre/post conversation recordings
  • 49. What an iPad speechmatch trial looks like… • http://www.youtube.com/watch?v=JLW9MWT8fzg
  • 50. Preliminary Findings • Happy, Sad vs. Unpleasant/Pleasant Surprise • Volume vs. Pitch vs. Rhythm • Child studies (coming up) • Generalization to real life • Component of social skills program (awareness of talk)
  • 51. iPad Collaboration with MuseAmi, Inc. • Demo iPad APP • Preliminary Results: • fMri Studies at Dartmouth Medical Center with Karen Jennings, Ph.D. (KSC) & Laura Flashman, Ph.D. (Dartmouth): Plan A: Resting fMri with Autism Plan B: Pre-Post fMri with Speechmatch training
  • 52. Speechmatch as therapy and as outcome measure • Does Speechmatch improve Prosody? • Does Speechmatch measure changes in Prosody?
  • 53. Point Light Pilot • Screencast on PointLight • Pilot study- biomotions lab
  • 54. KSC student Katey Wichland Catalogs Observations Male: • Arms swing outward while they walk. Elbows pointing away from the body, and wrists pointing towards the hips. • Broader shoulders • Torso makes the shape of a goblet where the shoulders curve inward towards the hips. • Hips are narrow • Men’s hips don’t swing with each step like a woman’s does, causing men to use more force in the calves and knees when walking. • When trying to picture a man walk, think of a male gorilla and how the shoulders are hunched over, father from the body. • When nervous, shoulders will move up towards the ears. The more relaxed, the further the shoulders are from the ears. • Pace is quickened when stressed. Pace slows when relaxed. Longer swing in the arms when relaxed. • When happy, males tend to have a bounce when they walk, radiating from each footstep. • When sad, pace is slowed, shoulders are hunched, and the arms do not swing as wide. • Larger men tend to move slower, elbows are further from the body, and more pressure is put on the knees when walking. Lighter men tend to walk a little faster and have more bounce in their step.
  • 55. Wichland Observations Cont. • When trying to picture a man walk, think of a male gorilla and how the shoulders are hunched over, father from the body. • When nervous, shoulders will move up towards the ears. The more relaxed, the further the shoulders are from the ears. • Pace is quickened when stressed. Pace slows when relaxed. Longer swing in the arms when relaxed. • When happy, males tend to have a bounce when they walk, radiating from each footstep. • When sad, pace is slowed, shoulders are hunched, and the arms do not swing as wide. • Larger men tend to move slower, elbows are further from the body, and more pressure is put on the knees when walking. Lighter men tend to walk a little faster and have more bounce in their step.
  • 56. Wichland Observations Cont. • When sad, pace is slowed, shoulders are hunched, and the arms do not swing as wide. • Larger men tend to move slower, elbows are further from the body, and more pressure is put on the knees when walking. Lighter men tend to walk a little faster and have more bounce in their step.
  • 57. Observations by KSC student with diagnosed A.S. Male: • Arms wider, legs closer Male Heavy: • Slower, less movement from side to side Male Light: • Arms closer to the body, walks a lot faster Male Nervous: • Faster movement, elbows way up, hands in front of body, “ready to defend himself”, looks nervous in the general gate and how he holds himself
  • 58. Katie Wichland Catalogs observations of AS student • Point_Light_Research.doc
  • 59. Challenge Question • How important is speech style to you in getting along with others? Do certain styles turn you off?
  • 60. iPad Apps for Autism • More on iPads and ASD: http://www.youtube.com/watch?v=F_8b7PgnNQQ (60 minutes broadcast) Comment: But no data!
  • 61. Need to UNPLUG • YELP (with apologies to Allen Ginsburg) http://www.youtube.com/watch?v=UowVsL3dXjM
  • 62. Social Communication II: Errorless Modeling • Conversation with prompts • Conversation without Prompts http://welkowitz.typepad.com/aspergers_conversations/2006/02/errorle • Behavioral Test (BAT) http://www.youtube.com/watch?v=fBj-QGxdGTI
  • 63. Social Communication III: Scripts Initial Contact Script Instructions: This is a suggested script for the student’s initial contact with a potential site supervisor. Feel free to use all our part of this script as a guide for this initial conversation. Student: Hello, my name is _________________. I am a student in the Department of Psychology at Keene State College and I’m calling to speak with you about the possibility of doing a practicum/internship at your agency.
  • 64. Pros and Cons of Scripts • Helpful in inserting new behaviors in social repertoires • Creates “sameness” to conversations (not natural) • Are overused or used inappropriately
  • 65. Social Communication: Children • poor social reciprocity - games for increasing back and forth in conversation: ▫ collaborative story telling ▫ using a magic stick (exchange during floor shifts) ▫ eye contact as punctuation (fun to do!) ▫ Skillstreaming-
  • 66. Skillstreaming: Having a Conversation 1. The Greeting 2. small talk 3. big point 4. closing 5. Autopsy
  • 67. Reading Faces • watch videos (stop and chat) • practice making faces in the office • Brattleboro face project (KLA) • Ekman Faces
  • 68. More on Decoding others’ emotions • Use Cartoons! • Bubbles over characters to infer thoughts and feelings
  • 69. Empirically Validated approaches to empathy • http://www.parentingscience.com/teaching-empathy
  • 70. Other Social Conversation Interventions • CBT for SP • ID difficult social situations • ID neg cognitions • Challenge neg cognitions and develop coping responses • Design exposure/role play • Set Goal • Begin Role-play • Monitor anxiety at 1 min intervals • End Role-play • Review Goal • Cognitive Autopsy
  • 71. Challenge Question • Is there a continuum of ability in decoding emotion in speech and language? • What common understandings of “how to decode” can we offer others?
  • 72. Anthropology • Ethnography • Student Center to study college student greetings • Playgrounds for younger children
  • 73. Anthropology II: We study them • Education is Key (British Video Clip)
  • 74. Constructional Approach • Current Accomplishments • Weekly Goals • Program Notes
  • 75. Constructional Approach (cont) • Antidote to Pathological Approach • What’s wrong vs. What needs to be added • How will you be different • How will others see you as different • (for little kids)…people come from outer space, what changes in you will they report?
  • 76. Managing Emotional Problems: Anger • Using Visual Guides (e.g., scaling anger) • Novaco: Cognitive, physiological, behavioral • 2 Big Cognitive errors • I’m going to kill Jeremy (interpreting anger) • Self-monitoring
  • 77. CBT • Depression: Cognitive Therapy • Depression: Frequency of Pleasant Activities • Self-Reinforcement
  • 78. More of Today’s Agenda • Newtown and AS • Your work • Trends in Neuroscience • Special Interests • Peer mentoring • Co-morbidity deconstructed • Sexuality • Turnaround
  • 79. Asperger’s and Newtown • From the NY Times: http://www.nytimes.com/2012/12/15/nyregion/adam-lanza-an-enigma-who-is-now-identif
  • 80. Response • MJ Carley Adult Asperger’s Group • Asperger’s Conversations http://welkowitz.typepad.com/aspergers_conversations/2012/12/aspergers-mentioned-in-n
  • 81. Always concerned with distinguishing subjective vs. Objective Reality • Ben-X http://welkowitz.typepad.com/aspergers_conversations/2009/06/benx-fantasy-v
  • 82. From Hilde’s paper • I loved the tone ’I don’t care about who and what you are. Please, come up with constructive ideas, and I’ll listen to you. After due consideration, I’ll put your idea into practice in my own environment.’ • Blogging is a form of thinking aloud and having a good conversation that doesn’t require spewing out reams of paper with very wordy messages.
  • 83. Jillian’s reflection on Doidge • While this child did not have the intensive CI therapy discussed in this book chapter, she did have a lot of demanding therapies that required her to work a lot with her weak left side. Without the interventions and working to make her left side of her body stronger and teach her brain to make changes, she definitely would not be where she is today.
  • 84. Sharon Shirley-Bailey “Understanding (and truly embracing) the concept of neurodiversity was inspiring to me. I feel this way because of the work that I do with emotionally disturbed deaf adolescents and children. Not only because of that, but because my parents were deaf so I had to endure both surprise and ignorance from the general population about deafness.” -From Shirley’s paper
  • 85. Carolyn Sprague “Because of the many advantages of a constructional approach, I’ve begun to think about how I could apply it to building my thirteen year old son’s conversation skills.” -Carolyn
  • 86. Tammy Massengill “. What a brain buzz! I thought that I returned to higher education to learn what I was missing, forgot that I am an inventor, also. Thanks Dr. W for breaking me out of my shell and causing me to participate in the Big Picture, once again.” -Tammy
  • 87. Important Trends • Mirror Neurons: Positive Support http://news.sciencemag.org/sciencenow/2005/12/0 • Mirror Neurons/Autism conflicting evidence http://news.sciencemag.org/sciencenow/2010/05/a • Unanswered question: Do mirror neuron deficits explain empathy deficits?
  • 89. Trends (cont): Oxytocin • http://www.sciencedaily.com/releases/2010/02 /100216221350.htm • Largest Study 13 subjects • Looked more at upper face vs. lower face • Discriminated types of games children were playing
  • 90. Did Disney rip off Welkowitz? • Speechmatch: http://www.youtube.com/watch?v=k88peetnAp8 • Wall-E http://adisney.go.com/disneyvideos/animatedfi lms/wall-e/games/sayit/
  • 91. AS and Oppositional Behavior • Behavior Chains • Meeting Special Interests (Hunter Clip http://www.youtube.com/watch?v=D1T- zY1DXQk ) • Going With rather than against re: special interests
  • 92. Going with Special Interests • e.g.2 Ben- The Cloud Room…Hey Now Now • e.g. 3 Billy- sports statistics… and began a blog about the LA Dodgers this summer
  • 93. Death Metal in Norway and Asperger Academic Success • http://www.npr.org/templates/story/story.php? storyId=90126955 • Clip of Norwegian Black Metal Band http://www.youtube.com/watch? v=i4U33U_UyzQ (ability to view disturbing info differently; objectively)
  • 94. Perspective Taking • Are neurotypicals MORE RIGID in thinking due to cultural restraints? • Are we more likely to “go with the majority” and spurn unusual ideas? • E.g., medical students and interest in preventative medicine • E.g., A.S. member of religious family declares his atheism
  • 95. Social Networking: Mentoring as Intervention • The Insider-Outsider Problem • Challenging the notion that ALL INSIDERS are enemies • Challenging the notion that ALL INSIDER activities are unethical • Work to Move AS person to Insider status
  • 96. Gaining Insider Status • Quirky Groups (Drama, Band, Geography, Math) • Quirky skills (magic; knife throwing) http://bit.ly/gHXWEH • Hit Your Connectors • Ask Your Mavens to ID Connectors • Peer Mentoring
  • 97. Peer Mentoring • Doug Flutie Jr. Grant • Up to 12 peer mentors at KSC • ID AS individuals (close connections to Counseling and Disability office) • Peer Mentors provide support, advice giving, friendship • Meet regularly; introduce to friends; Networks Expand
  • 98. Peer Mentoring: Social Network Development • Networks serve as buffers against stress • Networks serve as buffers against depression • Networks serve as important source of information • Networks serve as important source of activities
  • 99. Peer Mentoring Issues • Mentors meet regularly to discuss problems • Confidentiality (Inner vs. Outer Circle) • Relationship Boundaries • Handling Difficult Problems • Ethical Dilemmas
  • 100. Reinforcing the Reinforcer • Volunteers vs. Salaried Workers • Use of Practicum or Independent Study • Regular contact (fielding calls; dealing with emergencies)
  • 101. Peer Mentoring: Outcome • Anecdotal Reports: Benefits are clear • Quality of Life Increases • Parent testimonials • School Retention • Interest in Program • Service Learning (new!) • Dana Githmark Clip • Mike Hayes Clip
  • 102. Peer Mentoring: Outcome II • Seth Clip http://www.youtube.com/watch? v=PRwCHp1on-E
  • 103. AS and Comorbidity • People like simple answers: With one diagnosis we can “put people in a box” and we feel better that we have a grasp on the problem and ideas for • Leads to Prescriptive Approach: Matching Problem with Solution • Topography vs. Function (Goldiamond) • Makes Outcome Studies Manageable
  • 104. OCD and Comorbidity • Data from the National Anxiety Screening Day Study: Obsessive-Compulsive Disorder & Co- Morbid Anxiety in A National Screening Sample Lawrence A. Welkowitz, Ph.D., Keene State College; Elmer Streuning, Ph.D., Columbia University; John Pittman, M.A., Columbia University; Mary Guardino, Freedom From Fear, Staten Island, NY
  • 105. Request for More Details on Co- Morbidity
  • 106. AS and OCD A B C Antecedent Behavior Consequence Tension UP Ritual Tension DOWN (exposed to Washes (Reinforces Ritual) Contaminant)
  • 107. AS and OCD: Eg. 2 A B C Exposed Ritual Decreased Tension To oven Tension UP Checks Oven Decreased Tension/Anxiety
  • 108. AS and OCD: Treatment • Exposure with Response Prevention • Extinction that leads to elimination of ritual behaviors. This is good since: If not stopped…AS/HFA individuals will fail to resist OCD behaviors in public since they are less tuned in to SOCIAL CONSEQUENCES.
  • 109. Issues in treating co-morbid OCD • May need “coach” to increase motivation • need to make social consequences of “odd” public behaviors clear • Reassure pt by discussing difference between OCD and Psychosis
  • 110. AS and ADHD • Lots of overlap…but also lots of differential dx errors due to similar “topography” of behavior: • e.g. impulsiveness- As pts may “seem” impulsive because they are less likely to respond to social cues/consequences • inattention- may be due to lack of interest rather than inability to focus…or lack of eye contact may be due to sensory aversion. • Hyperactivity- may be linked to not understanding the “social demands” in a particular situation.
  • 111. What to do about Disorganization? • Systems that child can relate to… • Spread sheets, graphs of progress, digital sticky notes, digital checklists, Power School • Key is RULE GOVERNED BEHAVIOR (math papers go in math folder, etc) • Algorithms for writing e.g., “Main Idea” http://www.youtube.com/watch?feature=player_embedded&v=vwKa1mWU98Y#! • (start at min. 2:00 above) • But what is main idea?
  • 112. Inattention? • AS students must have relevant motivation (e.g., letting student do Holocaust Essay using cartoons; letting student do math using baseball statistics) • Hint: Go “with” rather than “against” special motivators
  • 113. AS & Depression • due to chronic outsider status • Pts get worse as their AS improves…recognize their social failings; desire insider status but realize how tough it is…may even miss their “splendid isolation.” • lack of social reinforcement (just think of how much reinforcement a typical person receives throughout the day)… • lack of social networks which serve as a BUFFER against stress and anxiety • bullying and teasing (Seligman’s Learned Helplessness…dogs unable to escape shock) • assaults on self-esteem- low rates of praise
  • 114. Treatment Issues: Depression • Cognitive Therapy helpful • Lewinshon’s Freq. of Pleasant Events • Low Rates of Behavior • Physical Activity • Help shift AS/HFA individuals from “outsider” to “insider” status (e.g., mentoring, circle of friends, teaching them special skills that other like…such as magic or knife throwing)
  • 115. Treatment of Depression cont. • Err on the side of “reinforcing gains” rather than “focusing on deficits”…heap lots of positives on kids and adults • encourage friends, spouses, teachers to focus on positives and ignore minor negative behaviors (e.g., “catch me when I’m good”) • Provide “outs” for kids to escape aversive environments (e.g., escape from crowded hallways where kids get shoved against lockers or bullied) • SSRI’s or MAOI’s for socially avoidant individuals with high interpersonal sensitivity
  • 117. Clinical Exercise: Break in to Pods • Pick any problem or disorder that you have seen (or heard of) that co-occurred with Autism or Asperger’s. How did the two mix? What ideas do you have for therapy?
  • 118. Depression and Bullying at College Level • E.g.s. of college level bullying (dorms, gym, class) • Team Approach (counseling staff, profs, residential life staff) • Identify Save Havens • High Status Mentors as “Protectors” and “Promoters” • Teaching Assertive Behavior
  • 119. AS and psychotic disorders • “Hallucinations”/”Delusions” may be due to chronic outsider status rather than schizophrenia (Attwood) • Relentless CBT to treat irrational ideas (e.g., “The FBI told me to ignore what my parent’s say”; “My father is out to get me”)
  • 120. CBT for Irrational Thoughts • Are you sure your father is out to get you? • Have you ever felt this way before and it turned out that he was not out to get you? • When did the FBI contact you? • What were the names of the FBI agents? • “Is this a highly irrational idea you are experiencing…or is it grounded in reality?” • Dogged Pursual leads to “revised cognition”
  • 121. Schizophrenia Symptoms vs. AS ▫ Delusions vs. radical thinking (recent story by professor about her brother) ▫ Paranoid thinking- due to chronic attacks by NT’s? ▫ Hallucinations vs. “Visions” or highly valued ideas ▫ negative symptoms: anhedonia, alogia (lack of initiating speech, action, pleasure). Are these due to lack of social connection or does it have “an organic feel”??
  • 122. Hallucinations as Reinforced Behavior • Burns, et al Hallucinations controlled by contingencies and mishearing of ambient noise http://www.ncbi.nlm.nih.gov/pmc/articles/PM C2741969/ • Layng, Andronis practical contingencies control hallucinations http://www.ncbi.nlm.nih.gov/pmc/articles/PM C2741750/ (e.g., seeing electricity in winter)
  • 123. Concrete to Abstract Leap: AS vs. Schizophrenia • Both groups can not decipher “sayings” or metaphors: “A rolling stone gathers no moss” “A stitch in time saves nine” “Don’t put the cart before the horse” “I was pouring on the coals on the highway this morning” “That’s icing on the cake”
  • 124. Egs. Of Psychotic-Like Behavior • e.g. 2 KLA (age 18) “The Easter Bunny will visit my home and scare me)…solved by explaining that the easter bunny is “not real.” (different from psychotic delusions…can’t explain them away!) • e.g. 3 Jacob (age 10) and 9/11: The end of MLB!! Me: No, MLB will continue. School staff feared an anxiety/trauma response to 9/11…simply due to misperception (i.e., not a delusion) • Comment: If reality testing is grossly impaired and doesn’t respond to CBT, then co-morbid psychotic disorder is possibility and anti-psychotic meds should be considered.
  • 125. AS and Humour • Can only understand very obvious humour: e.g., Monty Python • Counseling Tip: Make communications clear (surface vs. deep structure of language)
  • 126. AS and Social Phobia • SP: Hallmark feature is “Fear of Negative Evaluation” AS: Often immune to Negative Evaluation • SP: Social skills can be intact AS: Poor Social Skills • SP: Over focusing on social cues and events… e.g., notices people frowning, rolling eyes, etc AS: Doesn’t look at faces; don’t understand faces
  • 127. Social Phobia vs. AS • Many ASers call themselves “shy” but are they really? • Misinterpret social inadequacy for social anxiety? • Become anxious as a result of poor social abilities?
  • 128. Treatment for Social Phobia • SP: focus on certain cognitive errors: ▫ Mind reading ▫ Fortune telling error ▫ overgeneralization
  • 129. AS and social problems • AS: Focus on constructing social behaviors: ▫ Constructional Approach ▫ Exposure to social activities ▫ Basic friendship skills ▫ Some CBT around misconceptions of other peoples’ intentions
  • 130. AS and Oppositional Behavior • e.g., 1. Colin Age 10 refusing to do math that he feels is “insulting” “repetitive” “too easy” • e.g., 2 Hunter age 11 with “genius IQ”, slipping on homework compliance • e.g. 3 Seth (age 20) taking “Gen Ed” classes that are “too easy.”] • e.g. 3 Annika’s classmate with obsessive interest in spiders
  • 131. Prevent ODD with Accomodation • Must LISTEN and MAKE ARRANGEMENTS for more challenging educational experiences…But schools not geared this way! • Having kids take advanced courses… • Make rules clear (rule governed behavior)
  • 132. Going with Special Interests • e.g.2 Room…Hey Now Now • e.g. 3 Billy- sports statistics… and began a blog about the LA Dodgers this summer
  • 133. Very ODD: When all else fails • Contingency management • The List • The Hook (Contingent access to special interests/activities) • Computer Addiction
  • 134. AS and PTSD • Effects of Pervasive Bullying and Teasing • Model for Understanding PTSD: ▫ Classical Conditioning (Associated Stimuli such as kids, classes, teachers Anxiety) ▫ Operant Conditioning (Escape is reinforced) ▫ Stimulus Generalization (high school college) ▫ Subjective Meaning of trauma stimuli (AS kid told that high school kids will follow to college)
  • 135. PTSD Treatment: CBT and Exposure to trauma stimuli • Challenge notions that “all kids are dangerous” • gradual exposure to non-dangerous kids and school situations • Safe and secure environments • on-going monitoring
  • 136. AS/HFA and Dichotomous Thinking • e.g., Collegues complaint about her brother rejecting Church (“Religon is the source of All hatred and violence”) • e.g. G.’s absolute thinking “My father hates me because he won’t take me to a mall this weekend… and he must be punished” • e.g., “Joe Lieberman is a Nazi” • e.g., Andy: “Republicans deserve to die” • e.g., Patrick Henry: “Give me Liberty, or Give me Death” • e.g., Luke Skywalker “We must risk our lives to fight Darth Vader and all Evil”
  • 137. Treating AS plus PTSD • Obsessive nature of AS probably makes treatment more difficult • But argument can be made for effective treatment
  • 138. Arguments for treating AS plus PTSD • Many AS kids have elements of PTSD (90% report some form of bullying or assault…many report sexual assault as well) • Foa and colleagues rsch. (Annenberg Found. Consensus Reports): CBT for PTSD in Kids effective • Recent studies by Sofronoff & Attwood: CBT directed toward Anx. Disorders effective, espec. With strong parental involvement! • Anger MGT helpful because AS kids “lash out” when confronted with trauma-related stimuli… unable to manage emotional stimuli effectively (Amygdala abnormalities?; executive functioning deficits?)- See Attwood Program:
  • 139. Clinical Exercise • Think of a problem you have seen (or heard of) in Autism/Asperger’s that might be helped if the person with autism can “take a different perspective”…think about things differently. How would you go about encouraging a new way of thinking?
  • 140. Clinical Exercise • Think of a problem that you have seen in Autism/Asperger’s that might lend itself to straightforward EXPOSURE therapy (ie., just doing it).
  • 141. Behavior Chain Antecedent Crisis
  • 142. Key to Intervention • Break chain as early as possible • Break chain at weakest link
  • 143. Behavior Chain II: Meltdown Wakes up late Favorite Clothes Not available Teased on Bus Loses Homework Given Instruction Misinterprets To do “boring” Reprimand MELTDOWN task
  • 144. Meltdown Interventions • Wakes up late • Scheduling control • Favorite clothes not • Deal with sensory issues; available use gradual exposure • Teased on bus • Anti-bullying programs • Loses homework • Organizational training • Misinterprets reprimand • Be Clear; avoid sarcasm • Instructions to do boring • Assess interest in task; go task with special interests • MELTDOWN • Stay calm; Contain child
  • 145. Common Stressors 1. Going Against vs. Going With Special Interests 2. Stimulus Overload 3. Using facial expressions as instructions 4. Physical Proximity 5. Olfactory stimulation
  • 146. More Stressors… 6. Ambiguous social situations 7. Intense eye contact (“look at me”) 8. Disrupting pleasant activities 9. Strong criticism 10. Unpleasant Physical Activities
  • 147. Clinical Exercise • Pair off, select a behavior problem, do a Behavior Chain Analysis
  • 148. Stigma • Negative “halo effect” • Wahl (2002) concluded: Negative attitudes toward persons with SMI evident by 3rd grade. • Perceptions of Violence
  • 149. Reducing Stigma • Promote Contact (Racism literature: “contact hypothesis”…contact effects strongest when the individuals:  meet as equals  work cooperatively  target person moderately disconfirms a stereotype (someone who greatly disconfirms a stereotyped is dismissed as “an exception”)
  • 150. AS and Sexuality • Disconnect between AS skills and complexity of sexual activities • Adolescence and hormonal change • Lack of social influence leads to “what feels good” versus “what is acceptable” • Lack of information
  • 151. Sexuality: Problems that Arise • Inappropriate advances • Stalking like behaviors • Compulsive masturbation • Gender identity problems • Sensory difficulties (light touch vs. moderate touch; soft music vs. loud)
  • 152. Sexuality Interventions • Education • Problem solving • Friendship • Obtaining Consent at Every Level of Intimate Advancement (Antioch Rules for Sexual Activity) • Monitoring conversations
  • 153. Monitoring Conversations/moods Conversation Monitoring What I Said What they said What I said Monitoring Moods Time Situation 0-10 Mood Rating
  • 154. Deep Survival • Laurence Gonzales on Key Elements of Survival: Link to AS?
  • 155. Them vs. Us • Extending these ideas to “typical” individuals • Changing our own ways of thinking and Culture to “fit the person with AS” versus “changing the person with AS to fit the culture”
  • 156. AS and Culture • Dominant Culture Forces its views • Perceived Racism • How we treat AS individuals reflects the kind of world we want to live in • How we treat AS individuals reflects our own feelings about our own “inner geek”
  • 157. Other Counseling Issues • Physical Activity • Being clear • Assessing Readiness (e.g., to hear about diagnosis; to advance to next step in treatment) • Teaching how to ask questions • Using alternative methods of communication • Meeting out of office
  • 158. Challenge Question • How do you feel about using non-traditional counseling methods?
  • 159. Case Study • Present Your Cases • How would you incorporate elements of today’s class to these people’s lives?
  • 160. Getting Funding • Changemakers • Doug Flutie Jr. Foundation • N.I.H. • Autism Speaks • Ben and Jerry’s • Local Developmental Services (MDS)
  • 161. Turnaround • Anything you would like to say? • Questions?