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Inclusion in the labour
  market of persons with
Autism Spectrum Disorders

      Donata Vivanti - Autism-Europe - Vice-president EDF




www.autismeurope.org                            www.edf-feph.org
SUMMARY
• EU context: challenges and opportunities
• The particular challenges of ASD
• Barriers to inclusion of persons with ASD
  in the workforce
• Policies for the inclusion of persons with
  ASD in the workforce
• Measures for the inclusion of persons with
  asd in the workforce
• Good practice for the inclusion of persons
  with asd in the workforce
• 10 good reasons to hire persons with ASD
EU CONTEXT:
                 THE CHALLENGES
• Economic crisis and austerity measures
• Increasing unemployment rates
• State aids to promote the inclusion of
  persons with disabilities are claimed to
  have been contributing to the economic
  crisis
• Financial restriction are invoked to deny
  rights
EU CONTEXT:
             THE OPPORTUNITIES


• Council Directive 78/2000 ?
• Ratification of the UN CRPD
• EU disability strategy 2010-2020
DIRECTIVE 2000/78/EC
• “in order to guarantee compliance with
  the principle of Equal treatment in relation
  to persons with disabilities, reasonable
  accommodation shall be provided”
                                       (Art. 5)
• "This Directive does not require the
  recruitment, promotion, maintenance in
  employment or training of an individual
  who is not competent, capable and
  available to perform the essential
  functions of the post concerned …”
UNCRPD

• Combating discrimination of persons with
  disabilities is a question of human rights
• For all persons with disabilities including
  those who need a more intense support
  (Preamble, (J))
• Art. 27 (Right to the opportunity to gain a living by work
  freely chosen or accepted in a labour market and work
  environment that is open, inclusive and accessible to
  persons with disabilities)
THE PARTICULAR CHALLENGE
          OF AUTISM


• Employment rate:
  – Non-disabled workers 65.9%
  – persons with disabilities 44%
  – persons with ASD < 10%
THE PARTICULAR CHALLENGE
           OF AUTISM

The “inner” barriers:
the core features of ASD
• Primary Social Impairment
• Primary Global Communication
  Impairment
• Secondary non-adaptive behaviours
BARRIERS TO INCLUSION AT WORK
         OF PERSONS WITH AUTISM
Barriers in society:
• Prejudice:
   – Incapability : unable to work
   – Unreliability : fear of problems in the workplace
   – Cost : fear of need for expensive accommodation
• Neglect: lack of social habilitation and vocational
  training opportunities
   – Preventing development of potential and skills
   – Leading to further disability (ID 80% vs 50% with extensive &
     intensive support programmes)
• Exclusion from society : a significant proportion of
  200.000 PwD living in institutions have autism
POLICIES FOR INCLUSION OF PWA :
        DISABILITY STRATEGY 2020

Area 3 - Equality     • Providing persons with
                        ASD equal opportunities for
• review of the
                        developing social
  Employment Equality   communication and work
  Directive             skills
                      • Defining and ensuring
                        reasonable accommodation
                        for persons with ASD in
                        vocational training &
                        workplace
POLICIES FOR INCLUSION OF PWA :
          DISABILITY STRATEGY 2020
Area 4.                   • Improving knowledge of
                            public employment
 Employment:                services in
• Improving              – Matching jobs with individual
  knowledge                strengths and interests
                         – Assessing the social
• jobs and growth          environment of workplaces
  policies to people     – Providing assistance with
                           interview skills
  with autism
                      • Defining and ensuring
• compliance of the     reasonable
  EU legislation with   accommodation of
  the UNCRPD            workplaces and labour
                            conditions
POLICIES FOR INCLUSION OF PWA :
         DISABILITY STRATEGY 2020
                    • Understanding the
Area 4.               meaning of quality of jobs
  Employment:         for persons with ASD: a
                      quality job is the most
• quality of jobs     adapted to the individual
                      skills, interests and
                      wishes
• integrating
  persons with      • Flexibility of work
  partial work        conditions in the labour
  capacity            market
POLICIES FOR INCLUSION OF PWA :
         DISABILITY STRATEGY 2020

                        •   Improving the skills of
• Area 6 - Education:
                            teachers and vocational
  inclusive & quality
                            trainers on autism
  education and             educational needs and
  training                  teaching strategies

                        •   Establishing quality
• Area 7 - Health
                            standards of habilitation
  improve quality of        services in terms of
  (re)habilitation          outcomes for users
                            (including access to
                            work opportunities)
MEASURES FOR INCLUSION AT WORK
       OF PERSONS WITH AUTISM

• Specialised guidance and counselling services for people
  with autism (job counselling and job coaching )
• Education and training programmes in the
  mainstream and in special services to persons with
  ASD in need for more intense support
• Job-placement initiatives and opportunities (supported
  apprenticeships)
• Adopting adequate methodology (IPS) for providing
  ongoing support and advice at the workplace to
  workers with ASD, employers and colleagues
GOOD PRACTICES FOR
           INCLUSION OF PEOPLE
        WITH ASD IN THE WORKFORCE

TIPS (Training on Individual Placement
  Support)
• funded by the Emilia Romagna region, Italy
• Based on IPS methodology
• Pre-service training for staff of the employment
  services/jo centres, vocational training and mental
  health services
• Regular in-service monitoring to support the staff
• Applied so far to persons with mental health
  problems but
• suitable to high functioning persons with ASD
10 GOOD REASONS
       TO HIRE PERSONS WITH ASD
A. Moral imperatives

1. Persons with ASD deserve a dignified and
   productive life as anyone else’s
2. Employment contributes to social inclusion by
   providing opportunities for social participation
   (especially important for ASD)
3. Employment enhances self-esteem and
   contributes to quality of life (in particular to
   persons with ASD, who have difficulties in
   managing free time)
10 GOOD REASONS
         TO HIRE PERSONS WITH ASD

B. Sustainable development

4. Increasing number of persons with ASD (1/80
     newborn)
5. Employment provides income (less benefits are to
     be provided)
6. Recognising and investing on potential of persons
     with ASD: no persons is so severely disabled not
     to have strengths, no context is so poor not to
     have resources
10 GOOD REASONS
        TO HIRE PERSONS WITH ASD

C. The extreme diversity and particular talents of
   persons with ASD

7. Diverse workers may develop better
   solutions to business challenges
8. Lower absenteeism
9. Accuracy, good eye for detail, reliability and
   meticulous application of routine tasks
10 GOOD REASONS
    TO HIRE PERSONS WITH ASD

D. Legal obligation under the
UNCRPD

10. No distinction or exception
is acceptable in a rights-based
perspective
FOR MORE INFORMATION

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Inclusion in the labour market of persons with Autism Spectrum Disorders

  • 1. Inclusion in the labour market of persons with Autism Spectrum Disorders Donata Vivanti - Autism-Europe - Vice-president EDF www.autismeurope.org www.edf-feph.org
  • 2. SUMMARY • EU context: challenges and opportunities • The particular challenges of ASD • Barriers to inclusion of persons with ASD in the workforce • Policies for the inclusion of persons with ASD in the workforce • Measures for the inclusion of persons with asd in the workforce • Good practice for the inclusion of persons with asd in the workforce • 10 good reasons to hire persons with ASD
  • 3. EU CONTEXT: THE CHALLENGES • Economic crisis and austerity measures • Increasing unemployment rates • State aids to promote the inclusion of persons with disabilities are claimed to have been contributing to the economic crisis • Financial restriction are invoked to deny rights
  • 4. EU CONTEXT: THE OPPORTUNITIES • Council Directive 78/2000 ? • Ratification of the UN CRPD • EU disability strategy 2010-2020
  • 5. DIRECTIVE 2000/78/EC • “in order to guarantee compliance with the principle of Equal treatment in relation to persons with disabilities, reasonable accommodation shall be provided” (Art. 5) • "This Directive does not require the recruitment, promotion, maintenance in employment or training of an individual who is not competent, capable and available to perform the essential functions of the post concerned …”
  • 6. UNCRPD • Combating discrimination of persons with disabilities is a question of human rights • For all persons with disabilities including those who need a more intense support (Preamble, (J)) • Art. 27 (Right to the opportunity to gain a living by work freely chosen or accepted in a labour market and work environment that is open, inclusive and accessible to persons with disabilities)
  • 7. THE PARTICULAR CHALLENGE OF AUTISM • Employment rate: – Non-disabled workers 65.9% – persons with disabilities 44% – persons with ASD < 10%
  • 8. THE PARTICULAR CHALLENGE OF AUTISM The “inner” barriers: the core features of ASD • Primary Social Impairment • Primary Global Communication Impairment • Secondary non-adaptive behaviours
  • 9. BARRIERS TO INCLUSION AT WORK OF PERSONS WITH AUTISM Barriers in society: • Prejudice: – Incapability : unable to work – Unreliability : fear of problems in the workplace – Cost : fear of need for expensive accommodation • Neglect: lack of social habilitation and vocational training opportunities – Preventing development of potential and skills – Leading to further disability (ID 80% vs 50% with extensive & intensive support programmes) • Exclusion from society : a significant proportion of 200.000 PwD living in institutions have autism
  • 10. POLICIES FOR INCLUSION OF PWA : DISABILITY STRATEGY 2020 Area 3 - Equality • Providing persons with ASD equal opportunities for • review of the developing social Employment Equality communication and work Directive skills • Defining and ensuring reasonable accommodation for persons with ASD in vocational training & workplace
  • 11. POLICIES FOR INCLUSION OF PWA : DISABILITY STRATEGY 2020 Area 4. • Improving knowledge of public employment Employment: services in • Improving – Matching jobs with individual knowledge strengths and interests – Assessing the social • jobs and growth environment of workplaces policies to people – Providing assistance with interview skills with autism • Defining and ensuring • compliance of the reasonable EU legislation with accommodation of the UNCRPD workplaces and labour conditions
  • 12. POLICIES FOR INCLUSION OF PWA : DISABILITY STRATEGY 2020 • Understanding the Area 4. meaning of quality of jobs Employment: for persons with ASD: a quality job is the most • quality of jobs adapted to the individual skills, interests and wishes • integrating persons with • Flexibility of work partial work conditions in the labour capacity market
  • 13. POLICIES FOR INCLUSION OF PWA : DISABILITY STRATEGY 2020 • Improving the skills of • Area 6 - Education: teachers and vocational inclusive & quality trainers on autism education and educational needs and training teaching strategies • Establishing quality • Area 7 - Health standards of habilitation improve quality of services in terms of (re)habilitation outcomes for users (including access to work opportunities)
  • 14. MEASURES FOR INCLUSION AT WORK OF PERSONS WITH AUTISM • Specialised guidance and counselling services for people with autism (job counselling and job coaching ) • Education and training programmes in the mainstream and in special services to persons with ASD in need for more intense support • Job-placement initiatives and opportunities (supported apprenticeships) • Adopting adequate methodology (IPS) for providing ongoing support and advice at the workplace to workers with ASD, employers and colleagues
  • 15. GOOD PRACTICES FOR INCLUSION OF PEOPLE WITH ASD IN THE WORKFORCE TIPS (Training on Individual Placement Support) • funded by the Emilia Romagna region, Italy • Based on IPS methodology • Pre-service training for staff of the employment services/jo centres, vocational training and mental health services • Regular in-service monitoring to support the staff • Applied so far to persons with mental health problems but • suitable to high functioning persons with ASD
  • 16. 10 GOOD REASONS TO HIRE PERSONS WITH ASD A. Moral imperatives 1. Persons with ASD deserve a dignified and productive life as anyone else’s 2. Employment contributes to social inclusion by providing opportunities for social participation (especially important for ASD) 3. Employment enhances self-esteem and contributes to quality of life (in particular to persons with ASD, who have difficulties in managing free time)
  • 17. 10 GOOD REASONS TO HIRE PERSONS WITH ASD B. Sustainable development 4. Increasing number of persons with ASD (1/80 newborn) 5. Employment provides income (less benefits are to be provided) 6. Recognising and investing on potential of persons with ASD: no persons is so severely disabled not to have strengths, no context is so poor not to have resources
  • 18. 10 GOOD REASONS TO HIRE PERSONS WITH ASD C. The extreme diversity and particular talents of persons with ASD 7. Diverse workers may develop better solutions to business challenges 8. Lower absenteeism 9. Accuracy, good eye for detail, reliability and meticulous application of routine tasks
  • 19. 10 GOOD REASONS TO HIRE PERSONS WITH ASD D. Legal obligation under the UNCRPD 10. No distinction or exception is acceptable in a rights-based perspective