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INDEPENDENT LIVING ALTERNATIVES 
promoting independence since 1989 
Tracey Jannaway 
Director 
www.ILAnet.co.uk 
PAServices@ILAnet.co.uk
BACKGROUND AND MOTIVATION 
• ILA was established in 1989 
• ILA promotes the right of disabled people 
to live independently by providing a 
comprehensive range of personal 
assistance services 
• Service provision is designed to meet 
individual need 
• ILA generates income from fees to cover 
all overheads and only uses grant funding 
to start self-financing projects or research
• User control is not a tick box 
• User control is not a token gesture of letting 
disabled people choice the biscuits 
• User control is not a sub-group of the board 
of directors at social services or a national 
impairment body 
• User control is about people having direct and 
complete control over everything
PERSONAL ASSISTANCE 
Personal assistance in its purest form is 
following the instruction of the disabled 
person in the support that they require. It is 
not about following a care plan or a 
predetermined list of tasks. It is not about 
deciding what does or doesn’t need doing, 
what is safe or not safe, in its purest form 
personal assistance is doing only what you 
are told to do by the PA User
STRUCTURE 
• ILA is a charity and company limited by 
guarantee 
• The majority of members must be 
disabled people 
• The committee is elected annually and 
users can opt to join at any time 
• There is a good skillset on the committee 
which is essential to running the 
organisation
ORGANISATIONAL STRUCTURE 
MANAGEMENT OF ILA 
Chair – Vice Chair – Secretary - Treasurer 
Management Committee Members (Trustees/Directors) 
DAY TO DAY MANAGEMENT OF ILA 
Director 
PA Services Co-ordinator 
Administrators 
PA Users 
Volunteers Personal Assistants

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Tracey Jannaway presentation, Doing Different Things conference, December 4th 2014

  • 1. INDEPENDENT LIVING ALTERNATIVES promoting independence since 1989 Tracey Jannaway Director www.ILAnet.co.uk PAServices@ILAnet.co.uk
  • 2. BACKGROUND AND MOTIVATION • ILA was established in 1989 • ILA promotes the right of disabled people to live independently by providing a comprehensive range of personal assistance services • Service provision is designed to meet individual need • ILA generates income from fees to cover all overheads and only uses grant funding to start self-financing projects or research
  • 3. • User control is not a tick box • User control is not a token gesture of letting disabled people choice the biscuits • User control is not a sub-group of the board of directors at social services or a national impairment body • User control is about people having direct and complete control over everything
  • 4. PERSONAL ASSISTANCE Personal assistance in its purest form is following the instruction of the disabled person in the support that they require. It is not about following a care plan or a predetermined list of tasks. It is not about deciding what does or doesn’t need doing, what is safe or not safe, in its purest form personal assistance is doing only what you are told to do by the PA User
  • 5. STRUCTURE • ILA is a charity and company limited by guarantee • The majority of members must be disabled people • The committee is elected annually and users can opt to join at any time • There is a good skillset on the committee which is essential to running the organisation
  • 6. ORGANISATIONAL STRUCTURE MANAGEMENT OF ILA Chair – Vice Chair – Secretary - Treasurer Management Committee Members (Trustees/Directors) DAY TO DAY MANAGEMENT OF ILA Director PA Services Co-ordinator Administrators PA Users Volunteers Personal Assistants