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Tobi henderson
- 1. Canadian Institute forHealth Information cihi.ca @cihi_icis Better Data. Better Decisions. Healthier Canadians. Behind the Scenes at CIHI October 4, 2017 thenderson@cihi.ca Tobi Henderson
- 2. 2 Outline • AboutCanada and the Canadian Health Care System • About CIHI • Information Quality at CIHI • Where we’re headed
- 3. 3 Canadian HealthCare System
- 4. 4 Canada Facts •10 provinces, 3 territories • 2nd largest country in the world (142 x larger than Ireland) • 35 million people • 17% 65 years or older
- 5. 5 Canada Health Act •Canada's federal legislation for publicly funded health care insurance • Outlines standards that provinces/territories must meet to receive transfer payments • 5 governing principles ‒ public administration, comprehensiveness, universality, portability and accessibility • Sets out the primary objective of Canadian health care policy, which is "to protect, promote and restore the physical and mental well-being of residents of Canada and to facilitate reasonable access to health services without financial or other barriers.“ • Does not cover all services – mainly hospital and physician services
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- 7. 7 Government roles inhealth care Federal • Upholding principles of the Canada Health Act • Regulation • Health promotion, protection, and disease prevention • Direct services for some groups • Financial support to provinces/territories via transfers Provincial/Territorial • Administration of their health insurance plans • Planning, funding and provision of care • Regulating medical professionals through self-governing colleges • Allocating resources and negotiating salaries and fees for health professionals
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- 9. 9 What is CIHI? •Canadian Institute for Health Information • Independent, not-for-profit organization that provides essential information on Canada’s health systems and the health of Canadians • Led by a 16-person Board of Directors, with representation from across the country
- 10. 10 Where did wecome from? Pre-CIHI “I was aware from the outset that Canadian health information was not in good shape. My current assessment is that it is in a deplorable state… vast amounts of health data are recorded, but reliable information is in much shorter supply”. Dr. Martin Wilk Former Chief Statistician Chair, National Task Force on Health Information (1991) 1988: Creation of NHIC 1989: Creation of task force to assess state of health information in Canada 1991: Health Information for Canada, 1991: A Report by the National Task Force on Health Information Key recommendation: Creation of an independent institute for health information
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- 13. 13 CIHI’s journey 1994 CIHI opens for business 1999 Healthinformation roadmap initiative 2003 Data quality strategy launched 1995 Privacy and security policy adopted 2004 • Prescribed entity status under Ontario PHIPA • Signed BLAs with all P/T’s 2013 Launch of yourhealthsystem.ca 2015 Employees 112 454 2005 700 Databases 3 20 28 Budget $12 million $55 million $105 million 2001 First data quality framework 2007 Stable annual funding New strategic plan 718
- 14. 14 New strategic plan(2016 to 2021)
- 15. 15 Priority themes andpopulations
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- 17. 17 Legislative landscape 11of 13 provinces and territories have health privacy laws that: • Provide detailed and comprehensive guidance on collection/use/disclosure of health information • Address specific healthcare associated privacy issues • Include use of PHI for clinical and secondary purposes (planning, billing, research) All jurisdictions have some form of written agreement with CIHI: • Bilateral agreement • Specific data sharing agreement (DSA) • Set out terms under which CIHI can collect/use/disclose PHI • May include terms specific to a jurisdiction
- 18. 1818 CIHI’s Privacy andSecurity Program • Maintains the trust and confidence of stakeholders • Protects individual privacy, the confidentiality of records and the security of information • Privacy and Security Framework
- 19. 1919 External review ofCIHI’s Privacy and Security Program • Prescribed entity under Ontario’s Personal Health Information Protection Act (PHIPA) • CIHI maintains International Organization for Standards (ISO) 27001: 2013 certification
- 20. 20 Policies, procedures andstandards Examples • Privacy Policy on the Collection, Use, Disclosure and Retention of Personal Health Information and De-Identified Data • Privacy and Security Incident Management Protocol • Privacy and Security Training Policy • Information Security Policy • Privacy Impact Assessment Policy All available at www.cihi.ca
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- 22. 22 Who uses CIHIdata? • Funders • Health ministries • Regional health authorities • Hospital administrators • Clinicians • Researchers • Journalists • Students • Public
- 23. 23 Information products Public indicators Private reports Analytical reports
- 24. 24 Our success factors Independent…but representational Focus on stakeholders’ needs Collaboration and partnerships Communication and outreach Corporate approach to quality, privacy and security
- 25. 25 Information Qualityat CIHI
- 26. 26 Fit-for-use: Information Qualityat CIHI https://youtu.be/rzl9T7647vo
- 27. 27 Data and informationquality Data Data Indicators Reporting and delivery tools Data Quality Information Quality
- 28. 28 Information Quality Plan Objectives 1. Develop and launch an information quality framework that brings together and enhances CIHI’s quality management practices 2. Improve the accuracy, comparability and coherence of CIHI’s data and information 3. Improve the information (metadata) about CIHI’s data sources and information products
- 29. 29 IQ Plan objective1 initiatives Develop and launch an information quality framework that brings together and enhances CIHI’s quality management practices 1. Create an Information Quality Framework 2. Evolve and standardize data evaluation tools and processes 3. Reinforce CIHI’s quality culture
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- 32. 32 More timely, comparableand accessible data across the health continuum What • Primary care • Home care • Community mental health • Patient experience • Patient reported outcomes How • Modernize our supply ‒ EHR and EMRs as new data sources ‒ Leverage new technology • Link and integrate data • More accessible ‒ Improve access to metadata ‒ Improve access for researchers
- 33. 33 Increase stakeholders’ abilityto use information to accelerate improvements in health care • Transform CIHI’s digital presence ‒ Social media; Digital analytic reports; Infographics ‒ More intuitive user experience • Analytical tools ‒ Health system performance indicators and case mix methodologies • Engage with users to enable better use ‒ Capacity building ‒ Customized products
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