This document provides information about Parkinson's disease and the work of The Parkinson Council. It describes Parkinson's disease, including its symptoms and prevalence. It then discusses several national Parkinson's organizations and their work. The rest of the document focuses on The Parkinson Council, including its mission to improve quality of life for those with Parkinson's locally through funding research and programs. It provides details on the board members, leadership, and sources of funding for The Parkinson Council.

1. TOUCHING
A
LIFE
EVERY
DAY…

2. PARKINSON’S
DISEASE
www.theparkinsoncouncil.org

3. ABOUT
PARKINSON’S
DISEASE
Parkinson's
disease
was
first
described
in
England
in
1817
by
Dr.
James
Parkinson.
The
disease
most
oSen
develops
aSer
age
50.
It
is
the
second
most
common
nervous
system
disorder
of
the
elderly.
SomeXmes
Parkinson's
disease
occurs
in
younger
adults,
but
is
rarely
seen
in
children.
It
affects
both
men
and
women.
Parkinson’s
disease
affects
1.6
million
people
in
the
U.S.
and,
according
to
the
NaXonal
InsXtutes
of
Health,
about
50,000
new
cases
are
reported
annually.
This
number
will
rise
dramaXcally
with
the
aging
of
the
“Baby
Boomer”
generaXon.
Symptoms
of
Parkinson’s
disease
range
from
tremors,
slowness
of
movement,
rigidity,
difficulty
walking
and
poor
balance
to
difficulty
in
speech
and
swallowing,
depression
and
memory
loss.
It
is
a
chronic
neurodegeneraXve
illness
with
variable
progression
over
Xme,
usually
leading
to
disability
and
death
within
10-­‐15
years
of
diagnosis.
Each
person
diagnosed
with
Parkinson's
will
experience
symptoms
differently.
We
do
not
know
what
causes
Parkinson’s
disease
and,
as
yet,
there
is
no
known
cure.

4. IMPACT
Parkinson’s
Disease
affects
more
people
than
Leukemia,
MS,
and
ALS
combined
Disease
#
US
Pa>ents
Leukemia
&
Lymphoma
900,000
MulXple
Sclerosis
400,000
ALS
(Lou
Gehrig’s
Disease)
30,000
Parkinson’s
Disease
1.5
million

5. NATIONAL
PARKINSON
ORGANIZATIONS
Michael
J.
Fox
FoundaXon
NaXonal
Parkinson
FoundaXon
American
Parkinson
Disease
AssociaXon
Parkinson
AcXon
Network
NPF
Chapters
Davis
Phinney,
etc.
With
several
naXonal
organizaXons
dedicated
to
research
and
quality
of
life
issues
for
Parkinson’s
paXents,
this
oSen
leads
to
inefficiencies.
It
is
also
difficult
to
determine
their
impact
on
local
communiXes.
Parkinson
Disease
FoundaXon
Parkinson
Disease
FoundaXon
Na>onal
Organiza>ons
that
Focus
on
Parkinson’s
Research,
Services
and
Educa>on
The
Parkinson
Council

6. THE
PARKINSON
COUNCIL
www.theparkinsoncouncil.org

7. WHO
WE
ARE
About
The
Parkinson
Council
The
Parkinson
Council
is
the
premier
local
organizaXon
dedicated
to
improving
the
quality
of
life
for
paXents,
caregivers,
and
their
families
impacted
by
Parkinson’s
disease.
We
invest
in
research,
educaXon
and
programs
provided
by
world-­‐renowned
insXtuXons,
and
innovaXve
service
organizaXons
in
the
greater
Philadelphia
area.
We
strengthen
our
role
in
the
Parkinson’s
community
by
increasing
the
number
of
lives
we
touch
every
year.
Our
Mission
The
mission
of
The
Parkinson
Council
is
to
raise
funds
to
provide
financial
support
and
grants
to
locally
based
nonprofits
dedicated
to
improving
the
quality
of
life
for
Parkinson’s
disease
paXents,
caregivers
and
families.
The
Parkinson
Council
raises
funds
to
provide
resources
and
services
to
people
with
Parkinson’s
disease
living
within
the
Delaware
Valley
region.
Our
Values
and
Vision
www.theparkinsoncouncil.org
giving@theparkinsoncouncil.org

8. OUR
PEOPLE
Board
of
Directors
The
Council
recognizes
that
an
important
aspect
of
our
work
is
culXvaXon
of
community
advocates
and
leaders.
Our
volunteer
Board
consists
of
experts
in
law,
healthcare,
research,
nonprofit
management
and
business
development.
With
our
volunteers
and
staff,
The
Council
is
able
to
grant
financial
resources
to
local
providers
of
high
quality
services
and
resources
to
people
with
Parkinson’s
and
their
families
in
the
region.
Execu>ve
CommiMee
Jo-­‐Ann
Zoll,
President
Carol
Leiper,
Ph.D.,
Vice
President
Vito
A.
Cosmo,
Jr.,
Treasurer
Ryan
Haaz,
Esq.,
Secretary
Jeffrey
Keefer,
At-­‐Large
Erika
Aaron
Geraldine
Aaron
Jan
Albert
Stephanie
Lim
Capello
Dan
Forman
Donald
Garfinkel
Judi
Guinan
David
J.
Gutowski,
Esq.
Arlene
Halpern
Herb
Hopkins
Lorraine
Iacovim,
Ph.D.
Jim
Kay
George
C.
Pilallis
William
Quinlan
Suzanne
Reichwein
Kristen
Young
Wendy
R.
Lewis,
ExecuXve
Director
Rebecca
J.
Elias,
Development
Officer
www.theparkinsoncouncil.org
giving@theparkinsoncouncil.org

9. WHERE
OUR
DOLLARS
COME
FROM
*Contribu>ons
to
The
Parkinson
Council:
2012-­‐2014
*Includes
special
events,
memorials,
honorariums
SPRING
SWING:
Our
5nd
annual
Spring
Swing
cocktail
party
was
held
on
April
22,
2015
at
the
Pyramid
Club
to
raise
awareness
and
funds
in
celebraXon
of
Parkinson’s
Disease
Awareness
Month
in
April.
GOLF:
Since
1999,
The
Parkinson
Council
has
presented
the
Golf
Classic
tournament
at
highly
renowned
golf
courses
throughout
the
Philadelphia
region
such
as
Saucon
Valley,
Philadelphia
Cricket
Club
,
and
Philmont.
In
the
event’s
history,
the
golf
ouXng
has
raised
over
$4
million
to
benefit
local
research
and
services
associated
with
Parkinson’s
disease.
On
June
15,
2015,
our
Golf
Classic
raised
over
$350,000
at
the
Philadelphia
Cricket
Club.
PARKINSON’S
NIGHT
AT
CITIZEN’S
BANK
PARK:
2015
was
our
be
our
10th
year
parXcipaXng
in
the
Phillies
Phunraising
Program,
where
a
percentage
of
Xckets
sold
supports
the
mission
of
The
Council.
We
are
proud
of
this
partnership
with
our
local
ball
club.
WALK:
For
13
years,
walkers
of
all
ages
joined
together
during
our
annual
Stamp
Out
Parkinson’s
Walk,
the
biggest
grassroots
event
in
the
Delaware
Valley
region
devoted
to
raise
awareness
about
Parkinson’s
disease.
To
date,
our
walk
has
raised
more
than
$1.9
million
to
support
Parkinson’s
paXents
and
their
families.
In
2015,
the
Walk
will
be
held
on
October
10th
in
Philly.
#GIVINGTUESDAY:
#GivingTuesday
is
a
call
to
acXon
(globally
and
locally)
that
encourages
personal
philanthropy
through
bigger,
beter
and
smarter
charitable
giving
during
the
holiday
season.
As
a
returning
#GivingTuesday
partner,
The
Parkinson
Council
is
expanding
movement
classes
in
our
region
for
people
with
Parkinson’s
and
their
care-­‐partners.
In
2015,
our
goal
is
to
increase
the
visibility
of
our
work,
strengthen
our
partnerships,
and
diversify
our
funding
base.
Our
Events
in
2015
www.theparkinsoncouncil.org
giving@theparkinsoncouncil.org
2012
$877,202
2013
$793,905
2014
$817,293

10. OUR
WORK
AND
PRIORITIES
IN
2015
Funding
Priori>es:
2015
Grants
by
Ins>tu>on:
2010-­‐2015
From
2013
through
2015:
Ø
Grow
its
financial
resources
and
expand
our
donor
base;
Ø
Strengthen
our
board
with
specialized
experXse
that
will
enhance
our
reach
in
the
region
and
our
leadership
depth;
Ø
Touch
more
lives
within
underserved
populaXons;
Ø
Expand
our
programming
to
support
the
Parkinson’s
community
more
directly;
and
Ø
Build
awareness
of
the
disease
and
The
Council’s
brand
as
the
principal
resource
to
address
the
disease
in
the
region.
Highlight
of
Our
Work
in
2015
Summary
of
Strategic
Goals
and
Priori>es
Invested
in:
Ø Improved
access
to
physical
therapy,
social
supports
and
educaXon
for
Parkinson’s
paXents,
including
tradiXonally
underserved
populaXons,
and
their
families.
Ø
Mobility
equipment
to
help
Parkinson's
paXents
with
financial
hardships
stay
mobile
and
engaged.
Ø
InnovaXve
research
to
advance
treatment
therapies
for
Parkinson’s
paXents.
Ø
Integrated
approach
to
services,
including
expansion
of
home
visits
to
paXents
with
transportaXon
and
mobility
challenges.
Ø
Dance,
yoga
and
Pilates
classes
in
Philadelphia,
Montgomery
and
Chester
counXes.
www.theparkinsoncouncil.org
giving@theparkinsoncouncil.org
Penn,
$1,092,388
CNDR,
$128,000
GS/PP*,
$60,077
Jefferson,
$653,500
MAPS,
$23,000
Moss
Rehab,
$56,564
Arcadia,
$40,000
Bryn
Mawr,
$1,000
Philadelphia
Museum
of
Art,
$15,000
UofD,
$50,000
PaXent
and
Caregiver
Services
-­‐
$135,000
41%
Clinical
and
ScienXfic
Research
–
95,000
29%
Outreach
and
EducaXon
-­‐
$96,000
30%

11. The
Council
is
commited
to
increasing
its
support
for
People
with
Parkinson’s
by
invesXng
in
local
insXtuXons
and
nonprofits.
JOIN
US
Our
Priori>es:
2015
The
Parkinson
Council
seeks
to
be
the
leader
in
invesXng
funding
resources
for
PD
paXents,
caregivers,
researchers
and
educators
in
the
Delaware
Valley
Region.
Your
support
ensures
that
local
Parkinson’s
paXents,
their
families
and
caregivers
have
the
needed
resources
and
tools
to
promote
a
high
quality
of
life
and
excepXonal
care.
Your
support
makes
it
possible
for
local
research
insXtuXons
to
conXnue
their
efforts
to
find
the
cause
of
and
a
cure
for
Parkinson’s
disease.
Your
support
is
criXcal
in
helping
us
fulfill
our
vision
of
“touching
a
life
every
day.”
Fundraising
Messaging
&
Outreach
Programs
&
Services
Grants
&
Support
Our
Goal
What
Your
Support
Will
Do
www.theparkinsoncouncil.org
giving@theparkinsoncouncil.org