This briefing on family needs for home health care and potential workforce and policy solutions featuring the perspectives of a parent advocate, a home health care administrator, a pediatrician, and a state official.
This video is part of the Adolescent Health: Think, Act, Grow℠ (TAG) webinar series on successful strategies for improving adolescent health. Sue Catchings discusses the strategy of using school-based health centers to support youth and engage them in health.
Speaker presentation from U.S. News Healthcare of Tomorrow leadership summit, Nov. 17-19, 2019 in Washington, DC. Find out more about this forum at www.usnewshot.com.
Speaker presentation from U.S. News Healthcare of Tomorrow leadership summit, Nov. 17-19, 2019 in Washington, DC. Find out more about this forum at www.usnewshot.com.
This video is part of the Adolescent Health: Think, Act, Grow℠ (TAG) webinar series on successful strategies for improving adolescent health. Sue Catchings discusses the strategy of using school-based health centers to support youth and engage them in health.
Speaker presentation from U.S. News Healthcare of Tomorrow leadership summit, Nov. 17-19, 2019 in Washington, DC. Find out more about this forum at www.usnewshot.com.
Speaker presentation from U.S. News Healthcare of Tomorrow leadership summit, Nov. 17-19, 2019 in Washington, DC. Find out more about this forum at www.usnewshot.com.
Elena Reyes, PhD, Associate Professor & Director of Behavioral Medicine, Florida State University College of Medicine, Regional Director Southwest Florida
Latino Health Forum 2014
The purpose of this Health Policy Study is to better understand adolescents’ views on what are considered core components of the medical home and identify barriers to promoting adolescent health in relation to the medical home.
In addition, this study sought to better understand the needs and challenges in providing adolescents with access to medical homes—from the perspective of both adolescents and experts in adolescent health and medical home policy. To accomplish these goals, researchers conducted focus groups with adolescents, presented these findings to experts, and gathered experts’ reactions to the adolescents’ perspectives. This report includes a detailed description of the methods used for this study, followed by a summary of key focus group findings and the expert reactions to these findings.
A brief presentation that outlines major trends affecting how to market continuing education to today's health care professionals, as well as some effective content marketing examples.
This video is part of the Adolescent Health: Think, Act, Grow℠ (TAG) webinar series on successful strategies for improving adolescent health. Suzanne Elder shares information about Chicago's youth-focused agenda.
In Search of What Works: Re-Defining Post Acute Partnerships to Reduce Readmissions, Using the Integrated Chronic Disease Care at Home Model
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Mano y Corazón Binational Conference of Multicultural Health Care Solutions, El Paso, Texas, September 27-28, 2013
Customizing End of Life Care: Believing the Bereaved
Antigone Kithas
Rachel Jaggi
Lisa Howell
Anna Beck
Presented at the 11th Annual HSR/ PCOR Conference: Partnering for Better Health: Bringing Utah's Patient Voices to Research 2016
Increased attention to children with medical complexity has occurred because these children are growing in number, consume a disproportionate share of health-system costs, and require policy and programmatic interventions that differ in many ways from the broader group of children with special health care needs. But will this focus on complex care lead to meaningful changes in systems of care and outcomes for children with serious chronic diseases?
Elena Reyes, PhD, Associate Professor & Director of Behavioral Medicine, Florida State University College of Medicine, Regional Director Southwest Florida
Latino Health Forum 2014
The purpose of this Health Policy Study is to better understand adolescents’ views on what are considered core components of the medical home and identify barriers to promoting adolescent health in relation to the medical home.
In addition, this study sought to better understand the needs and challenges in providing adolescents with access to medical homes—from the perspective of both adolescents and experts in adolescent health and medical home policy. To accomplish these goals, researchers conducted focus groups with adolescents, presented these findings to experts, and gathered experts’ reactions to the adolescents’ perspectives. This report includes a detailed description of the methods used for this study, followed by a summary of key focus group findings and the expert reactions to these findings.
A brief presentation that outlines major trends affecting how to market continuing education to today's health care professionals, as well as some effective content marketing examples.
This video is part of the Adolescent Health: Think, Act, Grow℠ (TAG) webinar series on successful strategies for improving adolescent health. Suzanne Elder shares information about Chicago's youth-focused agenda.
In Search of What Works: Re-Defining Post Acute Partnerships to Reduce Readmissions, Using the Integrated Chronic Disease Care at Home Model
Ms. Ann Rodriguez-McConnell, R.N.
Mano y Corazón Binational Conference of Multicultural Health Care Solutions, El Paso, Texas, September 27-28, 2013
Customizing End of Life Care: Believing the Bereaved
Antigone Kithas
Rachel Jaggi
Lisa Howell
Anna Beck
Presented at the 11th Annual HSR/ PCOR Conference: Partnering for Better Health: Bringing Utah's Patient Voices to Research 2016
Increased attention to children with medical complexity has occurred because these children are growing in number, consume a disproportionate share of health-system costs, and require policy and programmatic interventions that differ in many ways from the broader group of children with special health care needs. But will this focus on complex care lead to meaningful changes in systems of care and outcomes for children with serious chronic diseases?
Going Where the Kids Are: Starting, Growing, and Expanding School Based Healt...CHC Connecticut
Webinar broadcast on: June 28 | 3 P.M. EST
This webinar will address the benefits, challenges, and strategic advantages of a school based health center program from a clinical, data, quality, operational viewpoint, communications, and community engagement perspective. Experts will share the strategy for integrating oral health and behavioral health to ensure the best outcomes for patients.
A Conversation on Models of Care Delivery for Children with Medical ComplexityLucilePackardFoundation
Improvements in care delivery for children with medical complexity are becoming a major focus of national and local health care and policy initiatives. A number of new models have been developed, with promising examples of enhanced care coordination and family engagement. The lead author and experts in the field discussed the article, Models of Care Delivery for Children with Medical Complexity.
Beyond Checklists: Care Planning for Children with Special Health Care Needs ...LucilePackardFoundation
What does it take to create and implement an effective, family-centered plan of care for a child with special health care needs? In this webinar, two expert speakers discussed their approaches to the process of care planning in two very different settings—Children's Hospital of Philadelphia and a small private practice in Vermont.
A Conversation on Ethical Considerations for a Fair and Effective Health Care...LucilePackardFoundation
What ethical considerations should guide the design and evaluation of systems of care for children with medical complexity? There are inevitable tradeoffs that any complex health care system must confront when attempting to achieve multiple worthy goals, from benefitting individual patients and families and securing fair distribution of benefits across populations, to operating in a manner that is transparent and free from conflicts of interest.
Proposed changes in health care payment, from fee-for-service to alternative, risk-sharing payment models, can have a substantial impact on health services for children, especially those with complex care needs. In addition, tying payment to value can increase use of ambulatory and preventive services and encourage creative outreach. However, abrupt changes can interrupt continuity and reduce access to care.
Maximizing System-Level Data to Address Health and Social Complexity in ChildrenLucilePackardFoundation
An innovative methodology using system-level data to identify children with health complexity, that is based on medical and social complexity, is transforming how they consider improving quality of care in Oregon. Learn about this new standardized approach, developed by the Oregon Pediatric Improvement Partnership and Oregon Health Authority, and how it has helped inform priority areas, potential policy improvements, investments and partnerships in support of children with health complexity.
A Conversation on Care Coordination for Children with Medical Complexity: Who...LucilePackardFoundation
Care coordination is an important approach to addressing the fragmented care that children with medical complexity often encounter. What are optimal care coordination services? How does care coordination intersect with care integration and case management? Learn best practices and how to implement a process that will achieve improved outcomes and value for children with special health care needs and their families.
AcademyHealth Engagement, Empowerment, Enhancement: The Role of Consumers in ...Whitney Bowman-Zatzkin
2:45pm-4:15pm
Engagement, Empowerment, Enhancement: The Role of Consumers in Health Care and Advocacy
Moderator: Whitney Bowman-Zatzkin, Flip the Clinic
Strategies and Tactics for Achieving Meaningful Consumer Engagement
Claire Brindis, Director, Institute for Health Policy Studies
Speakers:
Tom Workman, American Institutes for Research (AIR)
Amanda Otero, Health Care Organizer, TakeAction Minnesota
A Conversation on Supporting Self-Management in Children and Adolescents with...LucilePackardFoundation
While self-management support has been a component of adult chronic care for decades, it is just emerging as a critical need for children, especially those with complex conditions. Self-management is a shared undertaking between the child, their parents and care providers, and must take into account the child’s developmental status and the family’s capacities. Clinicians need routine, standardized approaches and tools to address the unique needs of children and their families including assessing self-management skills, collaboratively setting goals, and promoting competence and autonomy in youth.
Improving Discharge Care for Children with Special Health Care Needs through...LucilePackardFoundation
Being discharged from the hospital is a vulnerable time for families and caregivers of children with special health care needs (CSHCN). Appropriate resources and support are essential for care at home and can prevent complications or readmission. The California-based Nurse-led Discharge Learning (CANDLE) Collaborative brings together interdisciplinary clinicians to improve discharge care delivery for CSHCN. Learn about two new discharge practices: closed-loop medication reconciliation and tailored medication teaching, and multidisciplinary discharge rounds with early discharge notification. Speakers share how these innovative practices can be integrated into existing clinical workflows.
Kidsdata.org recently compiled data on Safeguards for Youth to highlight important protective factors and supportive services for California children. Learn about the Safeguards for Youth framework and where to easily access these data. Also, hear from a specialist at the Child Abuse Prevention Center about adopting a prevention mind-set and using trauma-informed practices to address adversity among children. Speakers will be available for questions immediately after the 30-minute briefing.
Stories from the Field: Building a Transformative Partnership with Families a...LucilePackardFoundation
Family-professional partnerships help ensure health care programs and policies are appropriate and well-utilized. While including parents as equal members of their child’s care team is an accepted standard for pediatric care, the core principles of family engagement have not been widely adopted as drivers of health care systems improvement. Hear from two statewide projects – a parent leadership training program and a hospital learning collaborative – that are integrating families as equal partners in addressing system issues. They discuss what it really takes to foster an effective and sustainable collaboration.
Mental Health Policy Briefing: Raising the Priority of California Children wi...LucilePackardFoundation
Mental health services and supports for children with special health care needs (CSHCN) must be a priority for California. This briefing will provide an overview of the mental health services to which CSHCN are entitled, highlight current state policy priorities, and share ways to engage in advocacy efforts. Speakers will be available after the briefing for questions.
Identifying and Serving Children with Health Complexity: Spotlight on Pediatr...LucilePackardFoundation
Children with health complexity face unique medical and social factors that impact their health and engagement of health care services. Health systems play an important role in addressing both factors to build health and resilience. Speakers will share their approach to using system and practice-level data to better identify appropriate care coordination and health management supports for these children. We will also spotlight how this approach was implemented in Kaiser Permanente Northwest through the Pediatric Care Together complex health management program.
A Conversation on Protecting Rights of Children with Medical Complexity in an...LucilePackardFoundation
Sufficient access to services for children with medical complexity varies considerably by state, geographic region, and payer. Families, advocates, and health care professionals need to understand children’s rights. Policymakers and payers must help support reliable and appropriate coverage and benefits. Learn how medical-legal partnerships and other forms of advocacy can protect the rights of children and support families in an era of cost containment.
A Conversation on Meaningful Family Engagement, from Clinical Care to Health ...LucilePackardFoundation
Engaging with families is vital to transforming the health care system and positively impacting the life course of vulnerable populations. Families have extensive experience in partnering with professionals to improve systems of care, are organized and connected across the country, and stand ready to assist at every level of next efforts for improvement. Learn how to meaningfully involve families at every level of health care systems and engage them as critical partners in designing policies that will improve care for all children.
As health care and financing systems become more sophisticated, health care systems are increasingly using a process known as "risk tiering" to group patients with similar degrees of need for health care and care coordination services. Families and care providers of children with chronic and complex conditions should understand the risk tiering process, as it may affect access to services these children need.
Measuring Family Experience of Care Integration to Improve Care Delivery LucilePackardFoundation
The family perception of care integration is essential in identifying opportunities to improve processes of care coordination and care management. This June 15 webinar introduced the Pediatric Integrated Care Survey (PICS), a validated instrument developed by Richard Antonelli, MD, MS, Medical Director of Integrated Care at Boston Children's Hospital, and his team. The instrument assesses family experience of care integration. It asks family respondents to identify the members of their child's/youth's care team and report on their experiences with integration across disciplines, institutions, and communities.
Childhood adversity, such as child abuse and exposure to violence and poverty, can have negative long-term impacts on health and well being. In this webinar, our panelists discussed how to describe the burden of childhood adversity in your community, how to frame your message most effectively, and how to engage and mobilize your community to address the roots and effects of childhood adversity. Panelists also lead participants on a virtual tour of Kidsdata’s Childhood Adversity and Resilience data, research, and policy recommendations.
Effective care coordination ranks high on the priority list of families of children with special health care needs, yet it remains an elusive goal for most. This webinar featured a parent's perspective, along with real-life examples from a provider and a payer on how to develop effective local care coordination systems. The webinar, which drew close to 400 registrants from across the US, was designed as a first step in building a national movement to promote care coordination policies and payment options that better serve children, families, and care providers.
CA Senate Select Committee on CSHCN Presentation: Systems Overview 12/1/15LucilePackardFoundation
Physical, mental, and developmental health, along with education, were the topics at the December 1 inaugural hearing of a newly established Senate Select Committee on Children with Special Needs. The purpose of the committee is to increase legislators' understanding of how programs and services for children with special needs are organized and delivered, and to identify ways to improve and strengthen the systems. The initial meeting presented an overview of the various systems and how they interact. Representatives from each field, as well as parents and government officials, provided testimony.
This presentation provides an overview of the systems that serve children with special health care needs in California.
Student Homelessness Webinar - National Association for the Education of Home...LucilePackardFoundation
The story of California’s homeless students is largely a hidden one—many are doubled up with family and friends, while others live in shelters.
New data, however, show the extent of homelessness of California’s pre-K-12 students enrolled in public schools. Nearly 270,000 public school students in the state were homeless at some point in the 2012-2013 school year. That equates to about 4% of all California’s public school students, double the national average. The data, from the California Homeless Youth Project and available only on kidsdata.org, are sorted by county, school district and legislative district. The data include information by grade level and nighttime residence.
Presenter: Patricia Julianelle, JD, Director of State Projects and Legal Affairs, National Association for the Education of Homeless Children and Youth
California Community Care Coordination Collaborative - September 2014LucilePackardFoundation
The California Community Care Coordination Collaborative (5Cs) is a learning collaborative made up of six regional coalitions serving children with special health care needs (CSHCN) launched in April of 2013. The first phase ended in September 2014, but the coalitions continue to meet. A second phase will begin in January 2015. View this slideshow to learn about the progress, products and recommendations from each coalition.
The California Community Care Coordination Collaborative (5Cs) is a learning collaborative made up of six regional coalitions serving children with special health care needs (CSHCN) launched in April of 2013.
The Orange County Care Coordination Collaborative for Kids, led by Help Me Grow Orange County, is assessing CSHCN needs in the county and pilot testing a process to identify, track and review cases of families of CSHCN to help connect them to services and increase communication between providers.
The San Mateo County Care Coordination Learning Community, led by Community Gatepath, is developing care coordination policy and practice recommendations and working with First 5 San Mateo to expand care coordination services for a San Mateo County Health System Clinic.
The Seven Cs Project, under the direction of the Public Health Division of Contra Costa Health Services, is developing a proposed care coordination system for the county based on a needs assessment and analysis of current resources, as well as piloting a case review process.
The Rural Children’s Health Care Coalition, led by Rowell Family Empowerment of Northern California, is bringing together stakeholders in Shasta, Siskiyou and Trinity counties, to promote shared problem-solving and developing interagency agreements for dealing with shared clients.
Representatives from the Medically Vulnerable Care Coordination Project of Kern County and the Central California Care Coordination Project of Fresno County, led by Exceptional Parents Unlimited, are providing insights and lessons learned from their care coordination projects with the Learning Collaborative.
The 5Cs provides a structured opportunity for coalitions to learn from one another, identify areas of shared need, discuss emerging challenges and connect with others engaged in improving the quality of services for CSHCN. The collaborative has had an introductory webinar and recently came together at the Foundation for our first full-day meeting to discuss project progress and evaluation strategies.
The Importance of Community Nursing Care.pdfAD Healthcare
NDIS and Community 24/7 Nursing Care is a specific type of support that may be provided under the NDIS for individuals with complex medical needs who require ongoing nursing care in a community setting, such as their home or a supported accommodation facility.
Deep Leg Vein Thrombosis (DVT): Meaning, Causes, Symptoms, Treatment, and Mor...The Lifesciences Magazine
Deep Leg Vein Thrombosis occurs when a blood clot forms in one or more of the deep veins in the legs. These clots can impede blood flow, leading to severe complications.
Telehealth Psychology Building Trust with Clients.pptxThe Harvest Clinic
Telehealth psychology is a digital approach that offers psychological services and mental health care to clients remotely, using technologies like video conferencing, phone calls, text messaging, and mobile apps for communication.
ICH Guidelines for Pharmacovigilance.pdfNEHA GUPTA
The "ICH Guidelines for Pharmacovigilance" PDF provides a comprehensive overview of the International Council for Harmonisation of Technical Requirements for Pharmaceuticals for Human Use (ICH) guidelines related to pharmacovigilance. These guidelines aim to ensure that drugs are safe and effective for patients by monitoring and assessing adverse effects, ensuring proper reporting systems, and improving risk management practices. The document is essential for professionals in the pharmaceutical industry, regulatory authorities, and healthcare providers, offering detailed procedures and standards for pharmacovigilance activities to enhance drug safety and protect public health.
Empowering ACOs: Leveraging Quality Management Tools for MIPS and BeyondHealth Catalyst
Join us as we delve into the crucial realm of quality reporting for MSSP (Medicare Shared Savings Program) Accountable Care Organizations (ACOs).
In this session, we will explore how a robust quality management solution can empower your organization to meet regulatory requirements and improve processes for MIPS reporting and internal quality programs. Learn how our MeasureAble application enables compliance and fosters continuous improvement.
Leading the Way in Nephrology: Dr. David Greene's Work with Stem Cells for Ki...Dr. David Greene Arizona
As we watch Dr. Greene's continued efforts and research in Arizona, it's clear that stem cell therapy holds a promising key to unlocking new doors in the treatment of kidney disease. With each study and trial, we step closer to a world where kidney disease is no longer a life sentence but a treatable condition, thanks to pioneers like Dr. David Greene.
Medical Technology Tackles New Health Care Demand - Research Report - March 2...pchutichetpong
M Capital Group (“MCG”) predicts that with, against, despite, and even without the global pandemic, the medical technology (MedTech) industry shows signs of continuous healthy growth, driven by smaller, faster, and cheaper devices, growing demand for home-based applications, technological innovation, strategic acquisitions, investments, and SPAC listings. MCG predicts that this should reflects itself in annual growth of over 6%, well beyond 2028.
According to Chris Mouchabhani, Managing Partner at M Capital Group, “Despite all economic scenarios that one may consider, beyond overall economic shocks, medical technology should remain one of the most promising and robust sectors over the short to medium term and well beyond 2028.”
There is a movement towards home-based care for the elderly, next generation scanning and MRI devices, wearable technology, artificial intelligence incorporation, and online connectivity. Experts also see a focus on predictive, preventive, personalized, participatory, and precision medicine, with rising levels of integration of home care and technological innovation.
The average cost of treatment has been rising across the board, creating additional financial burdens to governments, healthcare providers and insurance companies. According to MCG, cost-per-inpatient-stay in the United States alone rose on average annually by over 13% between 2014 to 2021, leading MedTech to focus research efforts on optimized medical equipment at lower price points, whilst emphasizing portability and ease of use. Namely, 46% of the 1,008 medical technology companies in the 2021 MedTech Innovator (“MTI”) database are focusing on prevention, wellness, detection, or diagnosis, signaling a clear push for preventive care to also tackle costs.
In addition, there has also been a lasting impact on consumer and medical demand for home care, supported by the pandemic. Lockdowns, closure of care facilities, and healthcare systems subjected to capacity pressure, accelerated demand away from traditional inpatient care. Now, outpatient care solutions are driving industry production, with nearly 70% of recent diagnostics start-up companies producing products in areas such as ambulatory clinics, at-home care, and self-administered diagnostics.
The dimensions of healthcare quality refer to various attributes or aspects that define the standard of healthcare services. These dimensions are used to evaluate, measure, and improve the quality of care provided to patients. A comprehensive understanding of these dimensions ensures that healthcare systems can address various aspects of patient care effectively and holistically. Dimensions of Healthcare Quality and Performance of care include the following; Appropriateness, Availability, Competence, Continuity, Effectiveness, Efficiency, Efficacy, Prevention, Respect and Care, Safety as well as Timeliness.
Explore our infographic on 'Essential Metrics for Palliative Care Management' which highlights key performance indicators crucial for enhancing the quality and efficiency of palliative care services.
This visual guide breaks down important metrics across four categories: Patient-Centered Metrics, Care Efficiency Metrics, Quality of Life Metrics, and Staff Metrics. Each section is designed to help healthcare professionals monitor and improve care delivery for patients facing serious illnesses. Understand how to implement these metrics in your palliative care practices for better outcomes and higher satisfaction levels.
CHAPTER 1 SEMESTER V - ROLE OF PEADIATRIC NURSE.pdfSachin Sharma
Pediatric nurses play a vital role in the health and well-being of children. Their responsibilities are wide-ranging, and their objectives can be categorized into several key areas:
1. Direct Patient Care:
Objective: Provide comprehensive and compassionate care to infants, children, and adolescents in various healthcare settings (hospitals, clinics, etc.).
This includes tasks like:
Monitoring vital signs and physical condition.
Administering medications and treatments.
Performing procedures as directed by doctors.
Assisting with daily living activities (bathing, feeding).
Providing emotional support and pain management.
2. Health Promotion and Education:
Objective: Promote healthy behaviors and educate children, families, and communities about preventive healthcare.
This includes tasks like:
Administering vaccinations.
Providing education on nutrition, hygiene, and development.
Offering breastfeeding and childbirth support.
Counseling families on safety and injury prevention.
3. Collaboration and Advocacy:
Objective: Collaborate effectively with doctors, social workers, therapists, and other healthcare professionals to ensure coordinated care for children.
Objective: Advocate for the rights and best interests of their patients, especially when children cannot speak for themselves.
This includes tasks like:
Communicating effectively with healthcare teams.
Identifying and addressing potential risks to child welfare.
Educating families about their child's condition and treatment options.
4. Professional Development and Research:
Objective: Stay up-to-date on the latest advancements in pediatric healthcare through continuing education and research.
Objective: Contribute to improving the quality of care for children by participating in research initiatives.
This includes tasks like:
Attending workshops and conferences on pediatric nursing.
Participating in clinical trials related to child health.
Implementing evidence-based practices into their daily routines.
By fulfilling these objectives, pediatric nurses play a crucial role in ensuring the optimal health and well-being of children throughout all stages of their development.
Artificial Intelligence to Optimize Cardiovascular Therapy
The Next Steps to Improving Home Health Care for Children with Medical Complexity
1. The Next Steps to Improving
Home Health Care for Children
with Medical Complexity
October 23, 2019
2. Today’s Moderator
Carolyn C. Foster, MD, MSHS
Assistant Professor, Division of Academic General Pediatrics and Primary Care
Department of Pediatrics, Feinberg School of Medicine, Northwestern University
Attending Physician, Ann & Robert H. Lurie Children’s Hospital of Chicago
3. Home Health Care For Children With
Medical Complexity: Workforce Gaps,
Policy, And Future Directions
Carolyn C. Foster, Rishi K. Agrawal, and Matthew M. Davis
HEALTH AFFAIRS
JUNE 2019 VOL. 38, NO. 6: Community Care for High-Need Patients
Access the Article
4. Meet Today’s Speakers
Consultant, Family Voices
Instructor of Pediatrics, Virginia
Commonwealth University Medical School
Associate Director of Care Coordination,
University of Illinois at Chicago-Specialized
Care for Children
Medical Director, Pediatric Home Service,
American Academy of Pediatrics Representative
Cara Coleman
JD, MPH
Molly Hofmann
MSN, PCNS-BC, AFN-BC
Roy Maynard
MD
5. Ask Questions!
We look forward to a lively discussion with our audience.
Enter questions in the GoToWebinar question box.
6. “Sarah’s” Story
A 15 month old diagnosed with an unexpected genetic disorder,
Sarah needs a portable breathing machine and monitoring to live
at home safely
• Parents were both working with employer-based insurance,
but it does not cover home care nursing
• Sarah is eligible for Medicaid waiver, but even with it the
parents cannot reliably identify qualified home nurses to care
for her
• Sarah’s mother had to drop out of work-force and the family
moved homes to accommodate
7. When faced with patient
stories like Sarah’s:
Conduct research to understand how home
health care is serving children by examining:
• Current evidence base
• Measurement of current access and quality
• Identify key driving policy concerns
8. Current State of Home Health Care for Children
Summary of Home Health Care For Children With Medical Complexity: Workforce Gaps, Policy, And Future Directions
1. Growing population with diverse set of conditions
Uniquely reliant on adult caregivers for health care tasks
2. Legally entitled services
Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) Medicaid Provision
3. Inadequate home health care workforce pool to care for them
Non-competitive wages for highly skilled work
Few training opportunities
4. Current lack of evidence and quality measures incentivizes states to institute high-
thresholds for service eligibility
5. Leads to preventable hospital spending, hard on families and patients
9. Policy Recommendations to Address Gaps and Areas of Improvement
Summary of Home Health Care For Children With Medical Complexity: Workforce Gaps, Policy, And Future Directions
1. Enhance access and readjust spending via payment reform
• Introduce increase in wages better matched to clinical needs, comparable to other skilled nursing
labor
2. Improve quality through partnerships with child-focused care systems (e.g. trainings,
telemedicine)
• Trainings: Children’s hospitals are a source of clinical and technical expertise
• Real-time extension, telemedicine to support families and home nursing staff
3. Align with adult care to improve evidence base and inform quality measurement
• National data collection efforts
• Support quality measures to hold care accountable and track quality efforts
10. Cara Coleman, JD, MPH
Consultant, Family Voices and Instructor of Pediatrics, Virginia Commonwealth University Medical School
Key Thoughts
• Gaps, policy and future directions spot on for families
• Measure it for kids!
Can’t (and actually do not) have quality care (incl. accountable,
accessible, continuous, helpful) without measures
• Integration of home health within child-focused health care
systems
Utilize family workforce expertise-as providers, coordinators, teachers,
quality improvement specialists, advocates, etc.
• Families and family-led organizations MUST be partners in
care AND systems change
We are the engine- don’t try to drive future directions without us!
One thing to change about the discussion
11. Molly Hofmann, MSN, PCNS-BC, AFN-BC
Associate Director of Care Coordination, University of Illinois at Chicago-Specialized Care for Children
Key Thoughts
• Caregiver support
• Education & training of home health care professionals
• Single points of entry for services
12. Roy Maynard, MD
Medical Director, Pediatric Home Service and American Academy of Pediatrics Representative
Key Thoughts
• Factors that affect access to home health care
• Access to home health contributes to healthcare disparities
• Reimbursement and home health care
• Recommendations to expand access to home health care
13. Submit your questions
Consultant, Family Voices
Instructor of Pediatrics, Virginia
Commonwealth University Medical School
Associate Director of Care Coordination,
University of Illinois at Chicago-Specialized
Care for Children
Medical Director, Pediatric Home Service,
American Academy of Pediatrics Representative
Cara Coleman
JD, MPH
Molly Hofmann
MSN, PCNS-BC, AFN-BC
Roy Maynard
MD
14. Additional Resources
Access more research and publications:
lpfch.org/CSHCN
HEALTH AFFAIRS BLOG—Workforce in the Community
Not Just Along For The Ride: Families Are
The Engine That Drives Pediatric Home
Health Care Cara L. Coleman (April 18, 2019)
AAP Section on Home Care (SOHCa)
Visit: services.aap.org/en/community/aap-
sections/home-care/
Editor's Notes
Welcome to, “The Next Steps to Improving Home Health Care for Children with Medical Complexity”
Today’s conversation is hosted by the Lucile Packard Foundation for Children’s Health. The Foundation works to improve the health care system for children with special health care needs and their families.
My name is…
Today’s discussion features one of the articles from the June 2019 issue of Health Affairs…
-Summarizes current state of home care for children
-Gives policy recommendations to address identified gaps and areas of needed improvement based on that evidence
Now I’d like to introduce our panelists for today’s conversation. We have asked each invited speaker to prepare short remarks regarding their response to the piece to fuel discussion
We are pleased to welcome Cara Coleman from Family Voices…
Please also welcome Molly Hofmann…
Also with us is Dr. Roy Maynard…
Welcome to you all! We will start off the conversation with a brief overview of home health care and summary of the paper findings.
A few housekeeping items before we begin:
We want this to be a lively discussion and encourage attendees to ask questions. You can submit questions in the GoToWebinar chat box. We will try to get to as many as we can.
All attendees will be muted for the duration of the webinar.
A recording of the webinar and the slides will be posted on the Foundation website and shared with all registrants via email.
Suggested layout for Sarah’s story
Great, thank you Roy.
At this point, we’d like to hear from you, the listeners. We’ve already gotten some questions, but feel free to continue adding your questions.
Thank you for attending today’s conversation on pediatric home health care
I wanted to highlight some additional resources on this topic including a blog in Health Affairs by Cara. You can also visit lpfch.org/CSHCN for a library of publications on children with medical complexity
A recording of this conversation and slides will be sent to all attendees and posted on the Foundation website. We are always looking for ways to make these conversations more engaging, and welcome your feedback. Please be sure to complete the survey that pops up at the end of the session.
Thank you!
