The First Tunisian Science Shop: Between Research Requirements and Service to Civil Society

•Download as PPTX, PDF•

1 like•393 views

The document summarizes the establishment of the first Tunisian Science Shop at the Tunisian Pasteur Institute. It discusses how the 2011 revolution in Tunisia led to a more active civil society and responsive research and innovation system. The Science Shop facilitates collaborative research projects between civil society organizations and students to address social issues. As an example, it describes a project studying hepatitis C virus prevalence among intravenous drug users to help increase access to diagnosis and treatment for this marginalized group. Upcoming activities for the Science Shop include diversifying partnerships and needs assessments to promote participatory innovation and equity in science. Challenges include sustaining the Science Shop beyond its initial funding period.

Health & Medicine

The First Tunisian Science Shop:
Between Research Requirements and Service
to Civil Society
InSPIRES IPT team
Inspirons
la Science!

An enabling environment for Science and Society collaboration…
• Several capacity building
programs including
Research and Innovation
• Restructure of R&I
system : More responsive
to the needs of the
society and more
inclusive
Revolution in 2011:
More transparency,
Freedom of speech..
Rise of a very active civil
society involved in the
decision making processes

Responsible research and innovation across H2020
Science with and for Society

Towards Responsible Research and innovation…
• Public Health, Research
• Training
• Vaccines and sera production
Mozilla Open Science Lab
(June 2016)
Science summer camp
(July 2017)
Personnal data protection
Confernece (March 2017)
Many RRI actions …
Several workshops on Open Science, Ethics and Research Integrity
Young
researchers’ colloquium
(April 2018)

Ingenious Science shops to promote Participatory Innovation,
Research and Equity in Science (InSPIRES)

“Science Shop (SS) model, facilitates collaborative
research projects based on concerns brought
forward by Civil Society Organizations (CSOs), and
includes students in this work, creating synergies
between social issues and scientific development”

Science Ensemble : Involving Stakeholders…

WHO :“The global health sector
strategy : elimination of viral hepatitis
as a public health threat by 2030”
Tunisia : May 2016: National plan fo elimnation of
HCV + Free treatment
Patients : Users of injected drugs :
High prevelence of HCV
Vectors of HCV to the Society
No access to the treatment : No access to diganosis
Stigmatisation of patients
Some M.D. provide care only for those who accept
weaning
Scientific objective :
knowledge about
HCV in Users of
injected drugs
Social objectieve : access
to the treatment
Technician from the laboratory taking sample
from the patient at the CSO office
Members of ATIOST with the master student

Upcoming activities ..
Diversify the answers to
the societal needs
expressed by the
associations (hackathon,
professional master, PFE)
Diversify the means of
collecting societal needs
(infoday, Science Coffee,
etc.)
Promote science shops
model (communication ,
advocacy…)
Communicate about the
social impacts
Organize or participate in
science education events

Challenges
Sustainability of the science
shop beyond InSPIRES
Increase the number
of projects per year
Answer to scientific
and practical
demand

www.inspiresproject.eu
For more information, please write to
inspires.ipt@pasteur.utm.tn
Let’s inspire science!

This document summarizes a presentation about patient involvement in research. It discusses: 1) IPPOSI, an organization that brings together patient groups, industry, and science to expedite development of innovative therapies and influence related policy in Ireland. 2) Current levels of clinical trial activity and the Irish public's attitudes toward clinical research, which show limited understanding but willingness to participate. 3) The need for more patient and researcher training to build understanding and partnership. The EUPATI program provides such training to develop "patient experts" who can meaningfully contribute to research. 4) Ireland's national platform involves several patient organizations to disseminate EUPATI training and build expertise among patients and advocates.

UK-Italy workshop, January 2018 - Martine Rossor

UKinItaly

The UK-Italy Workshop on Dementia Research discussed strategies and priorities for dementia research and international collaboration. Martin Rossor from University College London presented on the UK National Institute for Health Research (NIHR) dementia research infrastructure, which includes biomedical research centers, clinical research networks, and programs to enable research in care homes and among early career researchers. The Join Dementia Research initiative was also discussed as a way to directly connect volunteers to dementia studies.

PPI Conference Galway - Dr Derick Mitchell - April 27th 2016

ipposi

This document discusses the role of patients in science, industry, and research. It describes IPPOSI, a public-private partnership between patients, science, and industry in Ireland. IPPOSI members include patient advocacy groups and conduct various patient-led activities. The document also discusses EUPATI, a project to educate patients and the public about medicines research and development through training courses and an online toolbox. EUPATI aims to facilitate greater patient involvement in clinical research and regulatory processes.

007 -- prof. dr. david ingleby --- antalya ingleby 2015

dunyacongress

This document summarizes two European COST Actions - IS0603 and IS1103 - that aimed to study policies relating to health of migrants and ethnic minorities. COST Action IS0603 ran from 2007-2011 with a budget of €500,000 to consolidate results on this topic through conferences and publications. COST Action IS1103, called ADAPT, is ongoing from 2011-2015 with a budget of €600,000. It focuses on ways to promote positive policy changes. The document also describes the MIPEX survey which evaluates migrant integration policies across seven areas, including health, in over 30 countries. The health strand of MIPEX assesses four dimensions: entitlement to services, barriers to access, responsive services,

ISPOR Eupati meeting - Dr Derick Mitchell - November 2017

ipposi

This document discusses bringing patient education to the national level through establishing EUPATI National Platforms. It provides background on EUPATI and IPPOSI, and their role in establishing EUPATI National Platforms across Europe to address educational needs of patients and disseminate EUPATI resources at the national level. EUPATI National Platforms are intended to be patient-led, national networks that involve patients, academia, industry and other partners to identify educational opportunities at the national level using EUPATI materials and resources.

Derick mitchell, IPPOSI

Investnet

This document summarizes an organization called IPPOSI that trains patient experts on clinical research, health technology assessment, and eHealth. It discusses IPPOSI's members from science and industry backgrounds. It also describes EUPATI, a project that develops patient education on medicines research and development. EUPATI has trained over 100 patient experts and created educational materials available to over 12,000 patient advocates and 100,000 members of the public interested in health topics. The goal is to facilitate greater patient involvement in research by building competencies among patients.

OSFair2017 Workshop | Why is responsible research & innovation important?

Open Science Fair

Aliki Giannakopoulou talks about responsoble research and innovation (RRI) Responsible Research & Innovation (RRI) is a way of researching that takes a long-term perspective on the type of world in which we want to live. It can strengthen research projects by emphasising openness, transparency, diversity, inclusiveness and adaptation to changes. Essentially, RRI aims to create collaborative frameworks in which citizens engage with scientists, entrepreneurs, decisions makers and other groups to work towards sustainable, ethically acceptable and socially desirable outcomes. DAY 1 - PARALLEL SESSION 2

Croi Galway - Derick Mitchell - July 2016

ipposi

This document discusses patient involvement in science, industry, and research. It describes how the Irish Platform for Patient Organizations, Science and Industry (IPPOSI) brings together patient experts and organizations to encourage dialogue and influence decision making. IPPOSI members include patient experts in science and industry. The document also discusses the European Patients' Academy on Therapeutic Innovation (EUPATI) which provides training for patient experts through courses and educational materials. EUPATI aims to facilitate greater patient involvement in research and development.

This document discusses patient involvement in health research. It describes how patients can play key roles across various aspects of research including as public advisors, reviewers, co-researchers, and driving forces. It also outlines training programs for patients, such as those developed by IPPOSI and EUPATI, and how patients can be educated on clinical research, health technology assessment, and other areas. The goal is for patients to have objective knowledge about medical research and development processes to facilitate greater collaboration between patients and researchers.

Public and patient engagement

RaphaelaKaisler

The document discusses levels of public participation and involvement in research. It outlines Arnstein's ladder of participation from 1969, which ranges from nonparticipation to citizen power, and a 2010 German model with stages from information to self-organization and decision-making. It also discusses different levels of participation, involvement, and engagement that citizens and patients can have in research, from taking part in studies to helping identify research priorities and co-developing materials. Finally, it provides examples of how the public can be involved at various stages of the research process, such as crowdsourcing ideas, collaborative writing, disseminating results, and serving on advisory boards.

Workshop 2 - "EURORDIS Policy recommendations based on EURORDIS Declaration, ...

EURORDIS - Rare Diseases Europe

MM-CASALA-20110915-Mulvenna-Maurice.ppsx

CASALA CENTRE

This document discusses connected health and outlines some action steps. It summarizes that connected health involves technologies that allow aging in place and independent living through remote monitoring and care. It explores dimensions of connected health like technical aspects, business models, and timing of engagement. Examples discussed include providing therapeutic support to those with dementia at night using music and images on bedside devices, as well as investigating the unmet needs of older community members. The document proposes holding an electronic town meeting in the first quarter of 2012 in Ireland on connected health, involving various stakeholders to discuss open data, user-centered innovations, and interfaces for connected health.

EUPATI’s framework on Informing the “health-interested” public about medicine...

Nowgen

Destitute Roma & access to healthcare

European Economic and Social Committee - SOC Section

Cooperation agreements between prisons and local authorities to reduce homele...

FEANTSA

Amgen Teach - How to promote health by facilitating scientific reasoning, cri...

Go-Lab Initiative

Rémi quirion

IAU_Past_Conferences

Rémi Quirion, Chief Scientist of Québec, discusses social innovation and the future of higher education. As Chief Scientist, he advises the government on research strategy and chairs boards that fund intersectoral research on major societal challenges. The three Fonds de recherche du Québec support research, training, and knowledge mobilization. Examples of knowledge mobilization centers focus on social issues. The FRQ also supports innovative social practices through strategic clusters, research teams, and Actions concertées programs that foster co-creation with partners. Looking ahead, Quirion suggests increasing social innovation training and focusing research on challenges like demographic changes, the labor market, sustainability, and measuring social impact. Key will be

Open science in a world of open labs

Artur Serra

Open Science new strategies need new science structures to be developed. We call it: open labs, new research and innovation environments based on a synthesis of current structures (academic research groups, companies, civic organitzations, public bodies,...). These open labs are currently emerging as living labs, fablabs, citizen labs, xlabs.... Until now new technologies have connected old economic, social, political structures. Nevertheless new structures are emerging.

Science shop at the Institut Pasteur de Tunis (Tunisia) in the context of the...

The First Tunisian Science Shop: Between Research Requirements and Service to Civil Society

Recommended

Recommended

More Related Content

What's hot

What's hot (7)

Similar to The First Tunisian Science Shop: Between Research Requirements and Service to Civil Society

Similar to The First Tunisian Science Shop: Between Research Requirements and Service to Civil Society (20)

More from Pasteur_Tunis

More from Pasteur_Tunis (20)

Recently uploaded

Recently uploaded (20)

The First Tunisian Science Shop: Between Research Requirements and Service to Civil Society

Editor's Notes