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Supporting Families of
Children with Autism
Spectrum Disorder and
Challenging Behavior
V. Mark Durand, Ph.D.
University of South Florida St. Petersburg
Behavioral Philosophy
• If a program doesn’t work for a child we
do not blame the child.
• We change aspects of the program.
• If family members do not implement our
plans – who is to blame?
Treating Challenging Behavior
• Effective behavioral assessments and
functional treatments
• Why don’t some families carry out these
plans?
Prevention Project
• Prospective longitudinal study
Developmental Progression
Prevention Project
• Prospective longitudinal study
• Parental Pessimism
• Self-Efficacy
• Child Efficacy
Pessimistic Themes
• Control
• How you think
others see you as a
parent
• Child’s ability to
control his/her
behavior
• Catastrophizing
• Stability of behavior
• Responsibility
Pessimistic Themes
• Control
• How you think
others see you as a
parent
• Child’s ability to
control his/her
behavior
• Catastrophizing
• Stability of behavior
• Responsibility
Positive Family Intervention
Project
• Can we make pessimistic families
more optimistic?
• Integrating cognitive-behavioral
intervention with positive behavioral
support
Durand, V. M., Hieneman, M., Clarke, S., Wang, M., & Rinaldi, M. (2013).
Positive family intervention for severe challenging behavior I: A multi-site
randomized clinical trial. Journal of Positive Behavior Interventions, 15(3), 133-
143.
Positive Family Intervention
• Standard protocol
• 8 weeks
• 1 ½ hours per individual session
• Standardized measures
Self-Talk Journal
Situation
What happened?
(success or difficulty)
Beliefs
What did you think and
feel?
Consequences
What happened as a
result? (actions)
When my son sat down
for dinner, he started
whining and crying.
(difficulty)
I thought “We will never
have a normal dinner”
and felt defeated, thinking
that meals will always be
a problem.
I gave him cookies so he
would stop crying.
Situations & Beliefs
• Identify situations that provide triggers to
negative thinking (e.g., What was exactly
happening? Where were you? What did
your child and others do?)
• Identify beliefs associated with the event
(e.g., What were you feeling and thinking
while this was going on? What did you
say to yourself?)
Consequences
• Identify the consequences or results of
the negative (and positive) thinking
(e.g., When you were thinking _____,
how did that affect what you did? What
were the results of your actions – both
immediate and long-term?)
Recognizing Consequences
• Parenting “in the moment”
Distraction
• Strategy to help with pessimistic beliefs
• Distracting oneself from the pessimistic
thoughts
Disputation - A strategy for
challenging beliefs
• Step 1: Identify the negative belief
• Step 2: List evidence that supports the
belief.
• Step 3: Find alternative explanations for
the problem
• Step 4: Evaluate the usefulness of
maintaining the belief.
Substitution
• Replace the pessimistic ideas with
positive thoughts or affirmations (e.g..,
“This is a difficult situation and I am
handling it well. I am a committed,
loving parent. If I can follow through
with my plan, things will get better.”)
Post-Treatment Results
Quality of Life
• The PFI group reported
improvement on these questions;
• My child will be limited in the kind of
work he/she can do to make a living.
• I get almost too tired to enjoy myself.
• There is a lot of anger and
resentment in our family.
• I am worried much of the time.
Self-Efficacy
• The PFI group responded more
positively than mothers in the PBS
group on these qestions;
• I feel less tense when I take my child
out in public.
• I am less likely to avoid taking my
child out in public.
• Members of our family get to do the
same kinds of things other families
do.
Standardized Behavior Change Data
SIB-R GMI (N=34)
PBS PFI
SIB-R-GeneralMaladaptiveBehaviorIndex
-40
-30
-20
-10
0
Serious
Moderately
Serious
Marginally
Serious
Normal
Pre
Post
Pre
Post
Observational Data
Intervention Condition
PBS PFI
%ofIntervals
0
10
20
30
40
50
Pre
Post
Parental Reactions to
Challenging Behaviors
PFI
PFI
PBS
PBS
0
10
20
30
40
50
60
70
80
90
100
PROACTIVE PASSIVE
PercentageofIntervals
Post Intervention - Group Parent Data
PFI
PFI
PBS
PBS
0
10
20
30
40
50
60
70
80
90
100
PROACTIVE PASSIVE
PercentageofIntervals
One Year Follow-Up - Group Parent Data
Pre-Intervention
Follow-Up PBS
Pre-Intervention
Follow-Up PFI
Summary of Results
• Both PBS and PFI result in significant
improvements in child behavior
• These improvements continue after one
year
• Parents report overall improvements on
QoL
Summary of Results
• PBS families tend to use avoidance
strategies to improve child behavior
• PFI families tend to use more active
strategies
• PFI families report more community
involvement with their children and less
anxiety
The Concession Process
• The tendency to change
environments and approaches to
avoid problem behavior
Why ASD?
• Blame disorder (child efficacy)
• Self Efficacy
• Failure to back down in the face of
discipline escalation
Why ASD?
• Blame disorder (child efficacy)
• Self Efficacy
• Failure to back down in the face of
discipline escalation
• Subjective reaction to distress
Esposito, G., Nakazawa, J., Venuti, P., & Bornstein, M. H. (2012).
Perceptions of distress in young children with autism compared to
typically developing children: A cultural comparison between Japan and
Italy. Research in Developmental Disabilities, 33(4), 1059-1067.
Positive Family Intervention
• Addresses the needs of children with
challenging behavior
• Addresses the need of family members
who carry out the plans
• Better outcomes when we address both
Positive Family Intervention
• Durand, V.M. & Hieneman, M.
(2008). Helping parents with
challenging children: Positive family
intervention, Facilitator’s guide.
New York: Oxford University Press.
• Durand, V.M. & Hieneman, M.
(2008). Helping parents with
challenging children: Positive family
intervention, Workbook. New York:
Oxford University Press.
Optimistic Parenting
• Durand, V.M. (2011).
Optimistic parenting: Help
and hope for you and your
challenging child. Baltimore,
MD: Paul H. Brookes.

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Supporting Families of Children with Autism

  • 1. Supporting Families of Children with Autism Spectrum Disorder and Challenging Behavior V. Mark Durand, Ph.D. University of South Florida St. Petersburg
  • 2. Behavioral Philosophy • If a program doesn’t work for a child we do not blame the child. • We change aspects of the program. • If family members do not implement our plans – who is to blame?
  • 3. Treating Challenging Behavior • Effective behavioral assessments and functional treatments • Why don’t some families carry out these plans?
  • 6. Prevention Project • Prospective longitudinal study • Parental Pessimism • Self-Efficacy • Child Efficacy
  • 7.
  • 8. Pessimistic Themes • Control • How you think others see you as a parent • Child’s ability to control his/her behavior • Catastrophizing • Stability of behavior • Responsibility
  • 9. Pessimistic Themes • Control • How you think others see you as a parent • Child’s ability to control his/her behavior • Catastrophizing • Stability of behavior • Responsibility
  • 10. Positive Family Intervention Project • Can we make pessimistic families more optimistic? • Integrating cognitive-behavioral intervention with positive behavioral support Durand, V. M., Hieneman, M., Clarke, S., Wang, M., & Rinaldi, M. (2013). Positive family intervention for severe challenging behavior I: A multi-site randomized clinical trial. Journal of Positive Behavior Interventions, 15(3), 133- 143.
  • 11. Positive Family Intervention • Standard protocol • 8 weeks • 1 ½ hours per individual session • Standardized measures
  • 12. Self-Talk Journal Situation What happened? (success or difficulty) Beliefs What did you think and feel? Consequences What happened as a result? (actions) When my son sat down for dinner, he started whining and crying. (difficulty) I thought “We will never have a normal dinner” and felt defeated, thinking that meals will always be a problem. I gave him cookies so he would stop crying.
  • 13. Situations & Beliefs • Identify situations that provide triggers to negative thinking (e.g., What was exactly happening? Where were you? What did your child and others do?) • Identify beliefs associated with the event (e.g., What were you feeling and thinking while this was going on? What did you say to yourself?)
  • 14. Consequences • Identify the consequences or results of the negative (and positive) thinking (e.g., When you were thinking _____, how did that affect what you did? What were the results of your actions – both immediate and long-term?)
  • 16. Distraction • Strategy to help with pessimistic beliefs • Distracting oneself from the pessimistic thoughts
  • 17. Disputation - A strategy for challenging beliefs • Step 1: Identify the negative belief • Step 2: List evidence that supports the belief. • Step 3: Find alternative explanations for the problem • Step 4: Evaluate the usefulness of maintaining the belief.
  • 18. Substitution • Replace the pessimistic ideas with positive thoughts or affirmations (e.g.., “This is a difficult situation and I am handling it well. I am a committed, loving parent. If I can follow through with my plan, things will get better.”)
  • 20. Quality of Life • The PFI group reported improvement on these questions; • My child will be limited in the kind of work he/she can do to make a living. • I get almost too tired to enjoy myself. • There is a lot of anger and resentment in our family. • I am worried much of the time.
  • 21. Self-Efficacy • The PFI group responded more positively than mothers in the PBS group on these qestions; • I feel less tense when I take my child out in public. • I am less likely to avoid taking my child out in public. • Members of our family get to do the same kinds of things other families do.
  • 22. Standardized Behavior Change Data SIB-R GMI (N=34) PBS PFI SIB-R-GeneralMaladaptiveBehaviorIndex -40 -30 -20 -10 0 Serious Moderately Serious Marginally Serious Normal Pre Post Pre Post
  • 23. Observational Data Intervention Condition PBS PFI %ofIntervals 0 10 20 30 40 50 Pre Post
  • 31. Summary of Results • Both PBS and PFI result in significant improvements in child behavior • These improvements continue after one year • Parents report overall improvements on QoL
  • 32. Summary of Results • PBS families tend to use avoidance strategies to improve child behavior • PFI families tend to use more active strategies • PFI families report more community involvement with their children and less anxiety
  • 33. The Concession Process • The tendency to change environments and approaches to avoid problem behavior
  • 34. Why ASD? • Blame disorder (child efficacy) • Self Efficacy • Failure to back down in the face of discipline escalation
  • 35.
  • 36. Why ASD? • Blame disorder (child efficacy) • Self Efficacy • Failure to back down in the face of discipline escalation • Subjective reaction to distress Esposito, G., Nakazawa, J., Venuti, P., & Bornstein, M. H. (2012). Perceptions of distress in young children with autism compared to typically developing children: A cultural comparison between Japan and Italy. Research in Developmental Disabilities, 33(4), 1059-1067.
  • 37. Positive Family Intervention • Addresses the needs of children with challenging behavior • Addresses the need of family members who carry out the plans • Better outcomes when we address both
  • 38. Positive Family Intervention • Durand, V.M. & Hieneman, M. (2008). Helping parents with challenging children: Positive family intervention, Facilitator’s guide. New York: Oxford University Press. • Durand, V.M. & Hieneman, M. (2008). Helping parents with challenging children: Positive family intervention, Workbook. New York: Oxford University Press.
  • 39. Optimistic Parenting • Durand, V.M. (2011). Optimistic parenting: Help and hope for you and your challenging child. Baltimore, MD: Paul H. Brookes.