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1
Stigma & Discrimination;
Disclosure & Legal Issues
Update: July 2015
Stigma and Discrimination
Goal:
•To increase participants’ understanding of the impact that stigma and
discrimination have on people with HIV.
Objectives:
•To invite participants to examine their own values, attitudes and beliefs
pertaining to people living with HIV/AIDS and people who use substances.
•To examine the origins and impact of specific judgmental attitudes to
differences.
•To consider how participants and their organizations may perpetuate HIV
stigma and discrimination.
•To assist participants in learning how to manage personal values, attitudes
and beliefs in professional roles.
2
Stats on HIV Stigma
3
Stigma of People with HIV/AIDS
Mental Health
Physical Health
Social status
Sexual preference
Income
Housing
Early Child
Development
Nutrition
Violence
Incarceration
Education
Drug Use
4
Country of origin
Race
Culture
Gender
Community
Employment conditions
Quality of health care
Coping Skills
Its life
threatening
Its life
threatening
Judgment
of
behaviors
Judgment
of
behaviors
Moral /
Religion
Moral /
Religion
Inaccurate
information
Inaccurate
information
Roots of Stigma
Fear of contagion coupled with negative, value-based assumptions
about people who are infected leads to high levels of stigma
surrounding HIV/AIDS. Factors that contribute to HIV/AIDS-related
stigma:
• HIV/AIDS is a life-threatening disease.
• HIV infection is associated with behaviours (such as homosexuality, drug
addiction, sex work, or promiscuity) that are already stigmatized in many
societies.
• Most people become infected with HIV through sex. Sexually transmitted
diseases are always highly stigmatized.
• There is a lot of inaccurate information about how HIV is transmitted.
• HIV infection is often thought to be the result of personal irresponsibility.
• Religious or moral beliefs lead some people to believe that being infected
with HIV is the result of moral fault (such as promiscuity or 'deviant sex')
that deserves to be punished.
Multiple Stigmas
• Country of Origin
• Race
• Culture
• Drug Use
• Mental Health
• Poverty
• Sex Work
• Incarceration
6
Determinants of Health and Vulnerability to
Substance Use and HIV Infection
• Income and Social Status
• Social Support Networks
• Education
• Employment/Working Conditions
• Social Environments
• Physical Environments
• Personal Health Practices and Coping Skills
• Healthy Child Development
• Biology and Genetics
• Health Services
• Gender
• Culture
7
Determinants of Health and Vulnerability to
Substance Use and HIV Infection
Influences affecting self
worth/esteem:
• Grief Loss
Bereavement
• Depression
• Social Exclusion
• Stigma
• Discrimination
• Homophobia
• Racism
• Loss of Hope
8
Risk Behaviours:
• Alcohol / Drug Use
• Unprotected Sex
• Presence of STI
• Multiple and
Anonymous
Partnering
Acquisition
or
Transmission
of HIV or STI
Intimacy, pleasure and the brain’s response…What is sex for anyway?
9
Disclosure and Legal Issues
Update: July 2015
Disclosure and Legal Issues
Goal:
•To increase participants’ understanding of the implications of the Legal
and Public Health environment on people with HIV and their service
providers.
Objectives:
•To encourage participants to think about issues relating to the
disclosure of HIV status.
•To provide information regarding the criminal law and cases, while
addressing the complexity and ambiguity of the application of the law.
•To engage participants in considering the impact of the use of the
criminal law and the role of public health.
10
The Background
• Though there is no HIV specific criminal law, people
living with HIV have a duty to disclose their HIV status to
sex partners before having sex that carries a significant /
realistic risk of HIV transmission.
• People living with HIV have been charged, convicted and
sent to prison when they have not disclosed - even when
no one became infected with HIV.
11
The Background
• The criminal law also applies to other sexually
transmitted infections. But with the exception of three
cases (involving herpes, Hepatitis B and Hepatitis C),
only people living with HIV have been prosecuted.
• HIV is not easy to transmit. And HIV medications reduce
the risk of transmission and have transformed HIV for
many people into a chronic manageable illness.
12
When do people have a legal duty to disclose their
HIV-positive status to sex partners?
• Parliament did not change the Criminal Code to include
an HIV/AIDS-specific crime. Canadian courts have
created the law about HIV non-disclosure.
• The Supreme Court of Canada decided in the Cuerrier
case that the criminal law has a role to play in HIV
prevention. It ruled that:
– “People living with HIV have a legal duty to disclose their HIV
status to sex partners before engaging in sex that carries a
significant risk of HIV transmission.” (Prior to 2012. Language
then changed to “realistic risk”)
• So a person who does not disclose his or her HIV status
can be convicted of the Criminal Code offence of
aggravated sexual assault even when a sex partner
does not become infected with HIV.
13
When do people have a legal duty to disclose their
HIV-positive status to sex partners?
• But the Supreme Court did not clearly define the
most important part of the legal test: What
counts legally as a significant / realistic risk? As
a result, trial court decisions have been
confusing and often contradictory…
14
When do people have a legal duty to disclose their
HIV-positive status to sex partners?
• Some courts have ruled that sexual intercourse using a
condom does not present a legally significant risk of HIV
transmission. Others have said it can be.
• Yet another court has said that to avoid conviction an HIV-
positive person must not only wear a condom but also have
an undetectable amount of HIV in their blood (also known as
undetectable HIV viral load).
• One court convicted a person living with HIV for having oral
sex without a condom. Another court found a person not
guilty.
• Recently, one person has been convicted of murder, and
police have laid attempted murder charges in other cases.
15
2012 Court Decision
16
Low Viral Load Condom
Don’t have to
disclose
2012 Court Decision
• Language shift
• There may be a need to prove that partner
would have said NO if they know HIV
status (sexual history / testing history)
Significant Risk Realistic Risk
2012 Court Decision
• Things to think about:
– Social Determinants of Health
• Who has access to treatment and resources?
• Does this take into account power dynamics in
sexual relationships? Who gets to say who wears
a condom?
• What are the pros and cons of this ruling?
18
Canada & HIV Disclosure Law
• Canada is the world leader of prosecution
of people with HIV
• There are at least 175 cases documented
in Canada
• Charges are increasing
• This law is predominately applied to HIV
– 5 non HIV cases (3 herpes, 1 hcv, 1 hep b)
What role does public health play in
preventing HIV?
Public health:
• Provides information, counselling, testing, surveillance
and partner follow-up for HIV and other sexually
transmitted infections.
• Can order a person living with HIV to take action so that
they do not put another person’s health at risk (known as
a section 22 order). People can be charged for not
following this order.
• Can apply to a court to enforce the Section 22 order
where there is evidence that the person is not following
the order. This is called a Section 102. People can be
sentenced to jail time for this, but it is unusual.
20
Important Notes
• The “crime” is about exposing someone to a significant
risk of HIV infection when you didn’t tell that person,
before sex, that you have HIV. So you can be charged
and convicted for not disclosing even if the other person
does not get infected.
• If there is a significant risk of passing on HIV, but you lie
about your HIV infection (“I’m HIV negative.”), or you
don’t tell you’re the other person about your HIV infection
(“He didn’t ask. I didn’t tell.”), you can still be charged
and convicted.
• You can be charged and convicted even if you didn’t
know or think that you had a legal duty to disclose.
21
Reducing your risk of criminal charges
and convictions
Here are things you can do if you want to reduce the risk of passing on
HIV to other people and reduce your risk of getting in trouble with the
law:
• Don’t assume your partner knows you are HIV positive.
• If you are going to disclose, make it count. Have a witness.
• Tell your sex partners you are HIV positive. And try to get proof that you told
them.
• Use condoms and water-based lube when you have sex, to protect your sex
partners from being exposed to HIV.
• Instead of intercourse, have other types of sex and safer sex that have
lower risks of passing on HIV. Be aware of associated risks.
• See your doctor regularly and work with your doctor to get your viral load as
low as possible.
• You might consider having sex only with people you know are also HIV
positive.
22
What are the risks of Criminalization?
• People may avoid testing
• Increased stigma about HIV
• Discrimination against specific populations
• Relationships gone sour
• False sense of security (negative people
think a positive person HAS to disclose)
• Increase in HIV cases
Legal Duties of
Community Based Organizations
• Staff and volunteers have a legal duty to keep client information confidential. This
means that, as a general rule, client information cannot be released or disclosed
without client consent.
• Staff and volunteers may be forced to disclose client information to police under a
search warrant, or to a court where a judge orders someone to attend court and give
evidence (known as a subpoena).
• Faced with a police search warrant to seize client information can “assert privilege”
over the information. To do this, the organization must request that the police seal
any information they take in an envelope and not open it until a court decides whether
the police can legally use it. The organization should get legal advice, and advise
their client to do so, as soon as possible.
• Staff and volunteers do NOT have a duty under the criminal law to report to
police clients who engage in sex or injecting activities that risk HIV transmission.
Therefore, organizations cannot be charged with or convicted of a criminal offence for
failing to report a client to police.
24
Legal Duties of
Community Based Organizations
• Employees who are members of a professional body (like registered nurses and
social workers) may have an ethical duty to disclose client information to prevent
harm where a client’s behaviour places a known person at risk of HIV infection.
• Staff and their volunteers may be sued in civil court by a client and found civilly
liable if they disclose client information without consent, or without being compelled to
do so under a search warrant or court order.
• Staff and their volunteers who do not take steps to prevent harm to a third party
may be sued in civil court by anyone who suffers harm as a result of the failure
to take those steps. But since no Canadian court has decided this issue, it is not
clear whether the third party would win or lose the case.
Source: Canadian HIV/AIDS Legal Network: BRIEFING NOTE ON HIV DISCLOSURE &
CRIMINAL LAW IN CANADA
25
Tips for Frontline Workers
• Remember: it is an ORGANIZATIONAL decision to break confidentiality, not
YOUR responsibility
• Find out if HIV transmission falls under the category of “immediate harm”
• Warn HIV positive clients during intake that they may not want to disclose
having unprotected sex or other risk taking behaviours (this may limit your
ability to work with them)
• Mark all case notes with a header or watermark that reads “Private and
Confidential”. This may help you should you ever need to assert privilege
• Before reporting an HIV positive client, try to encourage their role in
disclosing to an at-risk partner.
• Offer to be a witness and document when disclosure takes place
• Report HIV non-disclosure to Public Health, not the police
• Be mindful of what you document in your case notes
26
This presentation is NOT LEGAL ADVICE
• For more information and legal advice, contact the HIV &
AIDS Legal Clinic (Ontario), a Legal Aid Ontario-funded
clinic.
Tel 416-340-7790
Toll-free 1-888-705-8889
TTY 416-922-2352
TTY toll-free 1-866-513-9883
www.halco.org
© Ontario Working Group on Criminal Law and HIV
Exposure, 2010.
27

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Stigma & Discrimination / Disclosue & Legal Issues

  • 1. 1 Stigma & Discrimination; Disclosure & Legal Issues Update: July 2015
  • 2. Stigma and Discrimination Goal: •To increase participants’ understanding of the impact that stigma and discrimination have on people with HIV. Objectives: •To invite participants to examine their own values, attitudes and beliefs pertaining to people living with HIV/AIDS and people who use substances. •To examine the origins and impact of specific judgmental attitudes to differences. •To consider how participants and their organizations may perpetuate HIV stigma and discrimination. •To assist participants in learning how to manage personal values, attitudes and beliefs in professional roles. 2
  • 3. Stats on HIV Stigma 3
  • 4. Stigma of People with HIV/AIDS Mental Health Physical Health Social status Sexual preference Income Housing Early Child Development Nutrition Violence Incarceration Education Drug Use 4 Country of origin Race Culture Gender Community Employment conditions Quality of health care Coping Skills Its life threatening Its life threatening Judgment of behaviors Judgment of behaviors Moral / Religion Moral / Religion Inaccurate information Inaccurate information
  • 5. Roots of Stigma Fear of contagion coupled with negative, value-based assumptions about people who are infected leads to high levels of stigma surrounding HIV/AIDS. Factors that contribute to HIV/AIDS-related stigma: • HIV/AIDS is a life-threatening disease. • HIV infection is associated with behaviours (such as homosexuality, drug addiction, sex work, or promiscuity) that are already stigmatized in many societies. • Most people become infected with HIV through sex. Sexually transmitted diseases are always highly stigmatized. • There is a lot of inaccurate information about how HIV is transmitted. • HIV infection is often thought to be the result of personal irresponsibility. • Religious or moral beliefs lead some people to believe that being infected with HIV is the result of moral fault (such as promiscuity or 'deviant sex') that deserves to be punished.
  • 6. Multiple Stigmas • Country of Origin • Race • Culture • Drug Use • Mental Health • Poverty • Sex Work • Incarceration 6
  • 7. Determinants of Health and Vulnerability to Substance Use and HIV Infection • Income and Social Status • Social Support Networks • Education • Employment/Working Conditions • Social Environments • Physical Environments • Personal Health Practices and Coping Skills • Healthy Child Development • Biology and Genetics • Health Services • Gender • Culture 7
  • 8. Determinants of Health and Vulnerability to Substance Use and HIV Infection Influences affecting self worth/esteem: • Grief Loss Bereavement • Depression • Social Exclusion • Stigma • Discrimination • Homophobia • Racism • Loss of Hope 8 Risk Behaviours: • Alcohol / Drug Use • Unprotected Sex • Presence of STI • Multiple and Anonymous Partnering Acquisition or Transmission of HIV or STI Intimacy, pleasure and the brain’s response…What is sex for anyway?
  • 9. 9 Disclosure and Legal Issues Update: July 2015
  • 10. Disclosure and Legal Issues Goal: •To increase participants’ understanding of the implications of the Legal and Public Health environment on people with HIV and their service providers. Objectives: •To encourage participants to think about issues relating to the disclosure of HIV status. •To provide information regarding the criminal law and cases, while addressing the complexity and ambiguity of the application of the law. •To engage participants in considering the impact of the use of the criminal law and the role of public health. 10
  • 11. The Background • Though there is no HIV specific criminal law, people living with HIV have a duty to disclose their HIV status to sex partners before having sex that carries a significant / realistic risk of HIV transmission. • People living with HIV have been charged, convicted and sent to prison when they have not disclosed - even when no one became infected with HIV. 11
  • 12. The Background • The criminal law also applies to other sexually transmitted infections. But with the exception of three cases (involving herpes, Hepatitis B and Hepatitis C), only people living with HIV have been prosecuted. • HIV is not easy to transmit. And HIV medications reduce the risk of transmission and have transformed HIV for many people into a chronic manageable illness. 12
  • 13. When do people have a legal duty to disclose their HIV-positive status to sex partners? • Parliament did not change the Criminal Code to include an HIV/AIDS-specific crime. Canadian courts have created the law about HIV non-disclosure. • The Supreme Court of Canada decided in the Cuerrier case that the criminal law has a role to play in HIV prevention. It ruled that: – “People living with HIV have a legal duty to disclose their HIV status to sex partners before engaging in sex that carries a significant risk of HIV transmission.” (Prior to 2012. Language then changed to “realistic risk”) • So a person who does not disclose his or her HIV status can be convicted of the Criminal Code offence of aggravated sexual assault even when a sex partner does not become infected with HIV. 13
  • 14. When do people have a legal duty to disclose their HIV-positive status to sex partners? • But the Supreme Court did not clearly define the most important part of the legal test: What counts legally as a significant / realistic risk? As a result, trial court decisions have been confusing and often contradictory… 14
  • 15. When do people have a legal duty to disclose their HIV-positive status to sex partners? • Some courts have ruled that sexual intercourse using a condom does not present a legally significant risk of HIV transmission. Others have said it can be. • Yet another court has said that to avoid conviction an HIV- positive person must not only wear a condom but also have an undetectable amount of HIV in their blood (also known as undetectable HIV viral load). • One court convicted a person living with HIV for having oral sex without a condom. Another court found a person not guilty. • Recently, one person has been convicted of murder, and police have laid attempted murder charges in other cases. 15
  • 16. 2012 Court Decision 16 Low Viral Load Condom Don’t have to disclose
  • 17. 2012 Court Decision • Language shift • There may be a need to prove that partner would have said NO if they know HIV status (sexual history / testing history) Significant Risk Realistic Risk
  • 18. 2012 Court Decision • Things to think about: – Social Determinants of Health • Who has access to treatment and resources? • Does this take into account power dynamics in sexual relationships? Who gets to say who wears a condom? • What are the pros and cons of this ruling? 18
  • 19. Canada & HIV Disclosure Law • Canada is the world leader of prosecution of people with HIV • There are at least 175 cases documented in Canada • Charges are increasing • This law is predominately applied to HIV – 5 non HIV cases (3 herpes, 1 hcv, 1 hep b)
  • 20. What role does public health play in preventing HIV? Public health: • Provides information, counselling, testing, surveillance and partner follow-up for HIV and other sexually transmitted infections. • Can order a person living with HIV to take action so that they do not put another person’s health at risk (known as a section 22 order). People can be charged for not following this order. • Can apply to a court to enforce the Section 22 order where there is evidence that the person is not following the order. This is called a Section 102. People can be sentenced to jail time for this, but it is unusual. 20
  • 21. Important Notes • The “crime” is about exposing someone to a significant risk of HIV infection when you didn’t tell that person, before sex, that you have HIV. So you can be charged and convicted for not disclosing even if the other person does not get infected. • If there is a significant risk of passing on HIV, but you lie about your HIV infection (“I’m HIV negative.”), or you don’t tell you’re the other person about your HIV infection (“He didn’t ask. I didn’t tell.”), you can still be charged and convicted. • You can be charged and convicted even if you didn’t know or think that you had a legal duty to disclose. 21
  • 22. Reducing your risk of criminal charges and convictions Here are things you can do if you want to reduce the risk of passing on HIV to other people and reduce your risk of getting in trouble with the law: • Don’t assume your partner knows you are HIV positive. • If you are going to disclose, make it count. Have a witness. • Tell your sex partners you are HIV positive. And try to get proof that you told them. • Use condoms and water-based lube when you have sex, to protect your sex partners from being exposed to HIV. • Instead of intercourse, have other types of sex and safer sex that have lower risks of passing on HIV. Be aware of associated risks. • See your doctor regularly and work with your doctor to get your viral load as low as possible. • You might consider having sex only with people you know are also HIV positive. 22
  • 23. What are the risks of Criminalization? • People may avoid testing • Increased stigma about HIV • Discrimination against specific populations • Relationships gone sour • False sense of security (negative people think a positive person HAS to disclose) • Increase in HIV cases
  • 24. Legal Duties of Community Based Organizations • Staff and volunteers have a legal duty to keep client information confidential. This means that, as a general rule, client information cannot be released or disclosed without client consent. • Staff and volunteers may be forced to disclose client information to police under a search warrant, or to a court where a judge orders someone to attend court and give evidence (known as a subpoena). • Faced with a police search warrant to seize client information can “assert privilege” over the information. To do this, the organization must request that the police seal any information they take in an envelope and not open it until a court decides whether the police can legally use it. The organization should get legal advice, and advise their client to do so, as soon as possible. • Staff and volunteers do NOT have a duty under the criminal law to report to police clients who engage in sex or injecting activities that risk HIV transmission. Therefore, organizations cannot be charged with or convicted of a criminal offence for failing to report a client to police. 24
  • 25. Legal Duties of Community Based Organizations • Employees who are members of a professional body (like registered nurses and social workers) may have an ethical duty to disclose client information to prevent harm where a client’s behaviour places a known person at risk of HIV infection. • Staff and their volunteers may be sued in civil court by a client and found civilly liable if they disclose client information without consent, or without being compelled to do so under a search warrant or court order. • Staff and their volunteers who do not take steps to prevent harm to a third party may be sued in civil court by anyone who suffers harm as a result of the failure to take those steps. But since no Canadian court has decided this issue, it is not clear whether the third party would win or lose the case. Source: Canadian HIV/AIDS Legal Network: BRIEFING NOTE ON HIV DISCLOSURE & CRIMINAL LAW IN CANADA 25
  • 26. Tips for Frontline Workers • Remember: it is an ORGANIZATIONAL decision to break confidentiality, not YOUR responsibility • Find out if HIV transmission falls under the category of “immediate harm” • Warn HIV positive clients during intake that they may not want to disclose having unprotected sex or other risk taking behaviours (this may limit your ability to work with them) • Mark all case notes with a header or watermark that reads “Private and Confidential”. This may help you should you ever need to assert privilege • Before reporting an HIV positive client, try to encourage their role in disclosing to an at-risk partner. • Offer to be a witness and document when disclosure takes place • Report HIV non-disclosure to Public Health, not the police • Be mindful of what you document in your case notes 26
  • 27. This presentation is NOT LEGAL ADVICE • For more information and legal advice, contact the HIV & AIDS Legal Clinic (Ontario), a Legal Aid Ontario-funded clinic. Tel 416-340-7790 Toll-free 1-888-705-8889 TTY 416-922-2352 TTY toll-free 1-866-513-9883 www.halco.org © Ontario Working Group on Criminal Law and HIV Exposure, 2010. 27

Editor's Notes

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