At CamRARE's RAREsummit23 on 12 Oct, Chair of the Trustees, Dr Gemma Chandratillake, presented a visual slideshow of CamRARE's highlights, achievements and impact since our last in person RAREsummit in 2019.
Green Man Festival is an independent
music and arts festival held annually in
mid-August in the Brecon Beacons, Wales
since 2003.
It is the largest contemporary music and
arts festival in Wales and has been given
major event status by Welsh Government
due to the festival's positive impact and
wealth creation. Einsteins’s Garden is the first UK festival
science engagement and is now the
playground of some of the world's top
research organisations, including
Swansea University. AIMS: To disseminate SMARTAQUA and
research collaborations with Welsh
companies to a wider audience
2. To promote gender equality
3. To promote sustainability
Creative Bedfordshire - Creating Relationships - Networking October 2016Creative Bedfordshire
Creative Bedfordshire October networking has a focus on Creating Relationships.
We will hear short 5 Minute talks on the subject from 3 viewpoints. The evening also includes a chance to shout-out about your own work and needs, and to chat informally.
If you work in the arts, run a creative business, are a freelance artist, actor, producer, maker or musician (or commission them), or are just curious, this network is for you. Creative Bedfordshire monthly events take place across Bedfordshire. Creative Networking is delivered by Bedford Creative Arts and is free of charge to attend thanks to the support of Central Bedfordshire Council and Bedford Borough Council.
Dr Penny Fidler: Discussing Climate Science at Science and Discovery CentresCommunicate
Presentation from the Communicate 2011 Delegate Showcase, 3rd November 2011. Communicate is hosted by the Bristol Natural History Consortium. www.communicatenow.org
Green Man Festival is an independent
music and arts festival held annually in
mid-August in the Brecon Beacons, Wales
since 2003.
It is the largest contemporary music and
arts festival in Wales and has been given
major event status by Welsh Government
due to the festival's positive impact and
wealth creation. Einsteins’s Garden is the first UK festival
science engagement and is now the
playground of some of the world's top
research organisations, including
Swansea University. AIMS: To disseminate SMARTAQUA and
research collaborations with Welsh
companies to a wider audience
2. To promote gender equality
3. To promote sustainability
Creative Bedfordshire - Creating Relationships - Networking October 2016Creative Bedfordshire
Creative Bedfordshire October networking has a focus on Creating Relationships.
We will hear short 5 Minute talks on the subject from 3 viewpoints. The evening also includes a chance to shout-out about your own work and needs, and to chat informally.
If you work in the arts, run a creative business, are a freelance artist, actor, producer, maker or musician (or commission them), or are just curious, this network is for you. Creative Bedfordshire monthly events take place across Bedfordshire. Creative Networking is delivered by Bedford Creative Arts and is free of charge to attend thanks to the support of Central Bedfordshire Council and Bedford Borough Council.
Dr Penny Fidler: Discussing Climate Science at Science and Discovery CentresCommunicate
Presentation from the Communicate 2011 Delegate Showcase, 3rd November 2011. Communicate is hosted by the Bristol Natural History Consortium. www.communicatenow.org
mFUSION Case Study - Samaritans Purse (txtNation)mFUSION
When txtNation was asked to help in uniting people across the UK to help in the fight against a devastating worldwide epidemic there was no hesitation in txtNation agreeing.
By Rosario Toril Moreno
Presented at IFLA World Library and Information Congress 2022, Dublin, Ireland.
Session 152, 28 July 2022:
"Climate Action in Libraries: Creating a More Sustainable Future by Engaging and Inspiring Youth"
Organizers:
Environment, Sustainability and Libraries Section (ENSULIB) with Libraries for Children and Young Adults Section
Party at the Palace | 2016 Project Pitch Day, Global Shapers San Franciscosfglobalshapers
Every year, the Global Shapers Hub of San Francisco tackle one or more projects to make a positive impact on San Francisco. On October 2, 2016, the Hub hosted Project Pitch Day to pitch the projects that are currently underway to our community as a call to action to contribute time, resources, and ideas to the projects.
Last year, we hosted a fundraiser gala called Party at the Palace that raises $70k+ for 7 San Francisco education non-profits. This year, we are hosting another Party at the Palace, but with an even larger vision and fundraising goals.
If you would like to get involved with a project, you can do so at http://bit.ly/contact-shaper-projects-2016
Talk UX: Designers Guilty By Association Lauren Currie
Designers: Guilty By Association
We are known for our stylistic gestures and whimsical, indulgent ideas, often created whilst wearing black polo necks. Taxi drivers think I design shoes for living. Most designers do. They design apps to help up find pizza faster and design sexy products that help us wake up on time.
We deserve better.
I’m one of many designers who are trying to reformulate the role design can play in the world. Using the design process to tackle many of the complex and serious problems facing our society. Some call it social design, service design or design activism. BUT the labels don’t matter. What does matter is the HOW.
How does this kind of design actually work and what does this mean for our future? Judging by the speed and enthusiasm with which design students are signing up for newly created courses on experience design, social and humanitarian design, more design activists and provocateurs will emerge in the future. It’s time to get responsible.
Watch this talk here:
https://www.youtube.com/watch?v=TBSnVMDKC0g
Read the audience reaction here:
https://storify.com/Redjotter/guilty-by-association-talk-ux
This summary report is part of a set of communication materials created to sharing the experiences, learnings and actions from our ‘Working With Not To’ North Wales Dementia Meet-up 1. A citizen-designed and led event, with 95 people over 2 days in North Wales. Created to listen to the people who use and deliver services' voices. You can view our meet-up video here: https://youtu.be/YYksqxrnmKw For more information email us at WorkingWithNotTo@gmail.com visit our website www.WorkingWithNotTo.com, or follow us on twitter @WorkingWithNot2 and #DementiaNWales. Please join our mailing list to find out about our work and future events.
Vræyda Media Inc functions under a corporate culture of innovation, transparency, integrity, equality & flexibility. Read up on what makes us fantastic, and what makes our products phenomenal to read, hear, see & touch.
Youth Driven Waste Disposal/Recycling Campaign: San Estanislao, ParaguayBrienne Thomson
As a Peace Corps Paraguay volunteer, I ignited the idea for the waste/recycling awareness campaign with the local youth group I work with, Rotaract, a subsidiary of Rotary International for 18 to 30-year-olds. It began with an Asunción-based NGO, Ita Enramada, coming out to San Estanislao to speak about the importance of minding our environment and the tragic impact that the lack of information or recycling programs has had on it. The culmination of the campaign was two-fold. First, we held a competition between the high-schools to design a trashcan to be installed in a popular community park with a message about proper waste disposal or caring for our environment. Second, of the seven local high-schools competing, each was assigned a material from plastic to rubber to cloth, etcetera, to design saleable recycled crafts at a “Feria de Tesoros Reciclados” for a public street fair. Overall, I have never seen such creativity and assertiveness among the youth of my community. I was sincerely proud of everyone involved in organizing and participating in this campaign that I left wondering how I’ll ship all of my new handicrafts back to the States!
Top five winners of Invent Your World 2009, a partnership between Ashoka's Youth Venture and the Lemelson Foundation to support young inventors and social change.
mFUSION Case Study - Samaritans Purse (txtNation)mFUSION
When txtNation was asked to help in uniting people across the UK to help in the fight against a devastating worldwide epidemic there was no hesitation in txtNation agreeing.
By Rosario Toril Moreno
Presented at IFLA World Library and Information Congress 2022, Dublin, Ireland.
Session 152, 28 July 2022:
"Climate Action in Libraries: Creating a More Sustainable Future by Engaging and Inspiring Youth"
Organizers:
Environment, Sustainability and Libraries Section (ENSULIB) with Libraries for Children and Young Adults Section
Party at the Palace | 2016 Project Pitch Day, Global Shapers San Franciscosfglobalshapers
Every year, the Global Shapers Hub of San Francisco tackle one or more projects to make a positive impact on San Francisco. On October 2, 2016, the Hub hosted Project Pitch Day to pitch the projects that are currently underway to our community as a call to action to contribute time, resources, and ideas to the projects.
Last year, we hosted a fundraiser gala called Party at the Palace that raises $70k+ for 7 San Francisco education non-profits. This year, we are hosting another Party at the Palace, but with an even larger vision and fundraising goals.
If you would like to get involved with a project, you can do so at http://bit.ly/contact-shaper-projects-2016
Talk UX: Designers Guilty By Association Lauren Currie
Designers: Guilty By Association
We are known for our stylistic gestures and whimsical, indulgent ideas, often created whilst wearing black polo necks. Taxi drivers think I design shoes for living. Most designers do. They design apps to help up find pizza faster and design sexy products that help us wake up on time.
We deserve better.
I’m one of many designers who are trying to reformulate the role design can play in the world. Using the design process to tackle many of the complex and serious problems facing our society. Some call it social design, service design or design activism. BUT the labels don’t matter. What does matter is the HOW.
How does this kind of design actually work and what does this mean for our future? Judging by the speed and enthusiasm with which design students are signing up for newly created courses on experience design, social and humanitarian design, more design activists and provocateurs will emerge in the future. It’s time to get responsible.
Watch this talk here:
https://www.youtube.com/watch?v=TBSnVMDKC0g
Read the audience reaction here:
https://storify.com/Redjotter/guilty-by-association-talk-ux
This summary report is part of a set of communication materials created to sharing the experiences, learnings and actions from our ‘Working With Not To’ North Wales Dementia Meet-up 1. A citizen-designed and led event, with 95 people over 2 days in North Wales. Created to listen to the people who use and deliver services' voices. You can view our meet-up video here: https://youtu.be/YYksqxrnmKw For more information email us at WorkingWithNotTo@gmail.com visit our website www.WorkingWithNotTo.com, or follow us on twitter @WorkingWithNot2 and #DementiaNWales. Please join our mailing list to find out about our work and future events.
Vræyda Media Inc functions under a corporate culture of innovation, transparency, integrity, equality & flexibility. Read up on what makes us fantastic, and what makes our products phenomenal to read, hear, see & touch.
Youth Driven Waste Disposal/Recycling Campaign: San Estanislao, ParaguayBrienne Thomson
As a Peace Corps Paraguay volunteer, I ignited the idea for the waste/recycling awareness campaign with the local youth group I work with, Rotaract, a subsidiary of Rotary International for 18 to 30-year-olds. It began with an Asunción-based NGO, Ita Enramada, coming out to San Estanislao to speak about the importance of minding our environment and the tragic impact that the lack of information or recycling programs has had on it. The culmination of the campaign was two-fold. First, we held a competition between the high-schools to design a trashcan to be installed in a popular community park with a message about proper waste disposal or caring for our environment. Second, of the seven local high-schools competing, each was assigned a material from plastic to rubber to cloth, etcetera, to design saleable recycled crafts at a “Feria de Tesoros Reciclados” for a public street fair. Overall, I have never seen such creativity and assertiveness among the youth of my community. I was sincerely proud of everyone involved in organizing and participating in this campaign that I left wondering how I’ll ship all of my new handicrafts back to the States!
Top five winners of Invent Your World 2009, a partnership between Ashoka's Youth Venture and the Lemelson Foundation to support young inventors and social change.
Similar to RS23_WelcomeAddress_CamRARE Highlights 2019 - 2023.pptx (20)
Title: Sense of Taste
Presenter: Dr. Faiza, Assistant Professor of Physiology
Qualifications:
MBBS (Best Graduate, AIMC Lahore)
FCPS Physiology
ICMT, CHPE, DHPE (STMU)
MPH (GC University, Faisalabad)
MBA (Virtual University of Pakistan)
Learning Objectives:
Describe the structure and function of taste buds.
Describe the relationship between the taste threshold and taste index of common substances.
Explain the chemical basis and signal transduction of taste perception for each type of primary taste sensation.
Recognize different abnormalities of taste perception and their causes.
Key Topics:
Significance of Taste Sensation:
Differentiation between pleasant and harmful food
Influence on behavior
Selection of food based on metabolic needs
Receptors of Taste:
Taste buds on the tongue
Influence of sense of smell, texture of food, and pain stimulation (e.g., by pepper)
Primary and Secondary Taste Sensations:
Primary taste sensations: Sweet, Sour, Salty, Bitter, Umami
Chemical basis and signal transduction mechanisms for each taste
Taste Threshold and Index:
Taste threshold values for Sweet (sucrose), Salty (NaCl), Sour (HCl), and Bitter (Quinine)
Taste index relationship: Inversely proportional to taste threshold
Taste Blindness:
Inability to taste certain substances, particularly thiourea compounds
Example: Phenylthiocarbamide
Structure and Function of Taste Buds:
Composition: Epithelial cells, Sustentacular/Supporting cells, Taste cells, Basal cells
Features: Taste pores, Taste hairs/microvilli, and Taste nerve fibers
Location of Taste Buds:
Found in papillae of the tongue (Fungiform, Circumvallate, Foliate)
Also present on the palate, tonsillar pillars, epiglottis, and proximal esophagus
Mechanism of Taste Stimulation:
Interaction of taste substances with receptors on microvilli
Signal transduction pathways for Umami, Sweet, Bitter, Sour, and Salty tastes
Taste Sensitivity and Adaptation:
Decrease in sensitivity with age
Rapid adaptation of taste sensation
Role of Saliva in Taste:
Dissolution of tastants to reach receptors
Washing away the stimulus
Taste Preferences and Aversions:
Mechanisms behind taste preference and aversion
Influence of receptors and neural pathways
Impact of Sensory Nerve Damage:
Degeneration of taste buds if the sensory nerve fiber is cut
Abnormalities of Taste Detection:
Conditions: Ageusia, Hypogeusia, Dysgeusia (parageusia)
Causes: Nerve damage, neurological disorders, infections, poor oral hygiene, adverse drug effects, deficiencies, aging, tobacco use, altered neurotransmitter levels
Neurotransmitters and Taste Threshold:
Effects of serotonin (5-HT) and norepinephrine (NE) on taste sensitivity
Supertasters:
25% of the population with heightened sensitivity to taste, especially bitterness
Increased number of fungiform papillae
New Directions in Targeted Therapeutic Approaches for Older Adults With Mantl...i3 Health
i3 Health is pleased to make the speaker slides from this activity available for use as a non-accredited self-study or teaching resource.
This slide deck presented by Dr. Kami Maddocks, Professor-Clinical in the Division of Hematology and
Associate Division Director for Ambulatory Operations
The Ohio State University Comprehensive Cancer Center, will provide insight into new directions in targeted therapeutic approaches for older adults with mantle cell lymphoma.
STATEMENT OF NEED
Mantle cell lymphoma (MCL) is a rare, aggressive B-cell non-Hodgkin lymphoma (NHL) accounting for 5% to 7% of all lymphomas. Its prognosis ranges from indolent disease that does not require treatment for years to very aggressive disease, which is associated with poor survival (Silkenstedt et al, 2021). Typically, MCL is diagnosed at advanced stage and in older patients who cannot tolerate intensive therapy (NCCN, 2022). Although recent advances have slightly increased remission rates, recurrence and relapse remain very common, leading to a median overall survival between 3 and 6 years (LLS, 2021). Though there are several effective options, progress is still needed towards establishing an accepted frontline approach for MCL (Castellino et al, 2022). Treatment selection and management of MCL are complicated by the heterogeneity of prognosis, advanced age and comorbidities of patients, and lack of an established standard approach for treatment, making it vital that clinicians be familiar with the latest research and advances in this area. In this activity chaired by Michael Wang, MD, Professor in the Department of Lymphoma & Myeloma at MD Anderson Cancer Center, expert faculty will discuss prognostic factors informing treatment, the promising results of recent trials in new therapeutic approaches, and the implications of treatment resistance in therapeutic selection for MCL.
Target Audience
Hematology/oncology fellows, attending faculty, and other health care professionals involved in the treatment of patients with mantle cell lymphoma (MCL).
Learning Objectives
1.) Identify clinical and biological prognostic factors that can guide treatment decision making for older adults with MCL
2.) Evaluate emerging data on targeted therapeutic approaches for treatment-naive and relapsed/refractory MCL and their applicability to older adults
3.) Assess mechanisms of resistance to targeted therapies for MCL and their implications for treatment selection
Knee anatomy and clinical tests 2024.pdfvimalpl1234
This includes all relevant anatomy and clinical tests compiled from standard textbooks, Campbell,netter etc..It is comprehensive and best suited for orthopaedicians and orthopaedic residents.
Acute scrotum is a general term referring to an emergency condition affecting the contents or the wall of the scrotum.
There are a number of conditions that present acutely, predominantly with pain and/or swelling
A careful and detailed history and examination, and in some cases, investigations allow differentiation between these diagnoses. A prompt diagnosis is essential as the patient may require urgent surgical intervention
Testicular torsion refers to twisting of the spermatic cord, causing ischaemia of the testicle.
Testicular torsion results from inadequate fixation of the testis to the tunica vaginalis producing ischemia from reduced arterial inflow and venous outflow obstruction.
The prevalence of testicular torsion in adult patients hospitalized with acute scrotal pain is approximately 25 to 50 percent
The prostate is an exocrine gland of the male mammalian reproductive system
It is a walnut-sized gland that forms part of the male reproductive system and is located in front of the rectum and just below the urinary bladder
Function is to store and secrete a clear, slightly alkaline fluid that constitutes 10-30% of the volume of the seminal fluid that along with the spermatozoa, constitutes semen
A healthy human prostate measures (4cm-vertical, by 3cm-horizontal, 2cm ant-post ).
It surrounds the urethra just below the urinary bladder. It has anterior, median, posterior and two lateral lobes
It’s work is regulated by androgens which are responsible for male sex characteristics
Generalised disease of the prostate due to hormonal derangement which leads to non malignant enlargement of the gland (increase in the number of epithelial cells and stromal tissue)to cause compression of the urethra leading to symptoms (LUTS
Recomendações da OMS sobre cuidados maternos e neonatais para uma experiência pós-natal positiva.
Em consonância com os ODS – Objetivos do Desenvolvimento Sustentável e a Estratégia Global para a Saúde das Mulheres, Crianças e Adolescentes, e aplicando uma abordagem baseada nos direitos humanos, os esforços de cuidados pós-natais devem expandir-se para além da cobertura e da simples sobrevivência, de modo a incluir cuidados de qualidade.
Estas diretrizes visam melhorar a qualidade dos cuidados pós-natais essenciais e de rotina prestados às mulheres e aos recém-nascidos, com o objetivo final de melhorar a saúde e o bem-estar materno e neonatal.
Uma “experiência pós-natal positiva” é um resultado importante para todas as mulheres que dão à luz e para os seus recém-nascidos, estabelecendo as bases para a melhoria da saúde e do bem-estar a curto e longo prazo. Uma experiência pós-natal positiva é definida como aquela em que as mulheres, pessoas que gestam, os recém-nascidos, os casais, os pais, os cuidadores e as famílias recebem informação consistente, garantia e apoio de profissionais de saúde motivados; e onde um sistema de saúde flexível e com recursos reconheça as necessidades das mulheres e dos bebês e respeite o seu contexto cultural.
Estas diretrizes consolidadas apresentam algumas recomendações novas e já bem fundamentadas sobre cuidados pós-natais de rotina para mulheres e neonatos que recebem cuidados no pós-parto em unidades de saúde ou na comunidade, independentemente dos recursos disponíveis.
É fornecido um conjunto abrangente de recomendações para cuidados durante o período puerperal, com ênfase nos cuidados essenciais que todas as mulheres e recém-nascidos devem receber, e com a devida atenção à qualidade dos cuidados; isto é, a entrega e a experiência do cuidado recebido. Estas diretrizes atualizam e ampliam as recomendações da OMS de 2014 sobre cuidados pós-natais da mãe e do recém-nascido e complementam as atuais diretrizes da OMS sobre a gestão de complicações pós-natais.
O estabelecimento da amamentação e o manejo das principais intercorrências é contemplada.
Recomendamos muito.
Vamos discutir essas recomendações no nosso curso de pós-graduação em Aleitamento no Instituto Ciclos.
Esta publicação só está disponível em inglês até o momento.
Prof. Marcus Renato de Carvalho
www.agostodourado.com
HOT NEW PRODUCT! BIG SALES FAST SHIPPING NOW FROM CHINA!! EU KU DB BK substit...GL Anaacs
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TEST BANK for Operations Management, 14th Edition by William J. Stevenson, Ve...kevinkariuki227
TEST BANK for Operations Management, 14th Edition by William J. Stevenson, Verified Chapters 1 - 19, Complete Newest Version.pdf
TEST BANK for Operations Management, 14th Edition by William J. Stevenson, Verified Chapters 1 - 19, Complete Newest Version.pdf
Lung Cancer: Artificial Intelligence, Synergetics, Complex System Analysis, S...Oleg Kshivets
RESULTS: Overall life span (LS) was 2252.1±1742.5 days and cumulative 5-year survival (5YS) reached 73.2%, 10 years – 64.8%, 20 years – 42.5%. 513 LCP lived more than 5 years (LS=3124.6±1525.6 days), 148 LCP – more than 10 years (LS=5054.4±1504.1 days).199 LCP died because of LC (LS=562.7±374.5 days). 5YS of LCP after bi/lobectomies was significantly superior in comparison with LCP after pneumonectomies (78.1% vs.63.7%, P=0.00001 by log-rank test). AT significantly improved 5YS (66.3% vs. 34.8%) (P=0.00000 by log-rank test) only for LCP with N1-2. Cox modeling displayed that 5YS of LCP significantly depended on: phase transition (PT) early-invasive LC in terms of synergetics, PT N0—N12, cell ratio factors (ratio between cancer cells- CC and blood cells subpopulations), G1-3, histology, glucose, AT, blood cell circuit, prothrombin index, heparin tolerance, recalcification time (P=0.000-0.038). Neural networks, genetic algorithm selection and bootstrap simulation revealed relationships between 5YS and PT early-invasive LC (rank=1), PT N0—N12 (rank=2), thrombocytes/CC (3), erythrocytes/CC (4), eosinophils/CC (5), healthy cells/CC (6), lymphocytes/CC (7), segmented neutrophils/CC (8), stick neutrophils/CC (9), monocytes/CC (10); leucocytes/CC (11). Correct prediction of 5YS was 100% by neural networks computing (area under ROC curve=1.0; error=0.0).
CONCLUSIONS: 5YS of LCP after radical procedures significantly depended on: 1) PT early-invasive cancer; 2) PT N0--N12; 3) cell ratio factors; 4) blood cell circuit; 5) biochemical factors; 6) hemostasis system; 7) AT; 8) LC characteristics; 9) LC cell dynamics; 10) surgery type: lobectomy/pneumonectomy; 11) anthropometric data. Optimal diagnosis and treatment strategies for LC are: 1) screening and early detection of LC; 2) availability of experienced thoracic surgeons because of complexity of radical procedures; 3) aggressive en block surgery and adequate lymph node dissection for completeness; 4) precise prediction; 5) adjuvant chemoimmunoradiotherapy for LCP with unfavorable prognosis.
Pulmonary Thromboembolism - etilogy, types, medical- Surgical and nursing man...VarunMahajani
Disruption of blood supply to lung alveoli due to blockage of one or more pulmonary blood vessels is called as Pulmonary thromboembolism. In this presentation we will discuss its causes, types and its management in depth.
1. RAREsummit23 Welcome Address
Cambridge Rare Disease Network: 2019 to today
Dr Gemma Chandratillake
Chair of Trustees, CamRARE
MAKING RARE DISEASE VISIBLE
AND VOCAL, SEEN AND HEARD
#RAREsummit23 @CamRareDisease
2. Improving outcomes for
those living with and
affected by rare conditions
Supporting
people &
families
affected
Raising
awareness
& educating
Creating
multi-stakeholder
networks &
facilitating
collaboration
Identifying gaps
& facilitating a
voice for those
affected to
enable
solutions
RAREsummit
RAREfest
Unique Feet
Companies Forum
RD Research Network
Research projects
5. e
It was such an amazing event. So well
organised, with so much varied content. Really
gripping, moving, exciting, inspiring, colourful,
insightful and a million other thoughts and
feelings.
Anna Todd, Cambridge Children’s Hospital