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RAREsummit23 Welcome Address
Cambridge Rare Disease Network: 2019 to today
Dr Gemma Chandratillake
Chair of Trustees, CamRARE
MAKING RARE DISEASE VISIBLE
AND VOCAL, SEEN AND HEARD
#RAREsummit23 @CamRareDisease
Improving outcomes for
those living with and
affected by rare conditions
Supporting
people &
families
affected
Raising
awareness
& educating
Creating
multi-stakeholder
networks &
facilitating
collaboration
Identifying gaps
& facilitating a
voice for those
affected to
enable
solutions
RAREsummit
RAREfest
Unique Feet
Companies Forum
RD Research Network
Research projects
RAREsummit19:
The
Hackathon
#RAREsummit23 @CamRareDisease
#RAREsummit23 @CamRareDisease
e
It was such an amazing event. So well
organised, with so much varied content. Really
gripping, moving, exciting, inspiring, colourful,
insightful and a million other thoughts and
feelings.
Anna Todd, Cambridge Children’s Hospital
...goes virtual
Rare Bears, gifted by Rare Science and
stuffed by Congenica, certainly helped...
#RAREsummit23 @CamRareDisease
RS23_WelcomeAddress_CamRARE Highlights 2019 - 2023.pptx
RS23_WelcomeAddress_CamRARE Highlights 2019 - 2023.pptx

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Editor's Notes

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