This document discusses issues related to mental illness and the treatment of those living with mental illness. It begins by comparing modern expectations of being a "superhero" to living with a mental illness, noting that daily tasks can be courageous acts for those with mental illnesses. It then discusses how people with mental illnesses have questions about their treatment but may be discouraged from asking or labeled as difficult. Finally, it advocates for more humane, community-based approaches to mental healthcare that incorporate creativity, spirituality and humanity.
Review of the research, literature and expert advice on reducing discrimination and enhancing social inclusion in mental health / illness. Written by Neasa Martin, funded by Queensland Alliance, Australia 2009
Review of the research, literature and expert advice on reducing discrimination and enhancing social inclusion in mental health / illness. Written by Neasa Martin, funded by Queensland Alliance, Australia 2009
The Social Construction of Stigma & Problem Drug UseJulian Buchanan
This paper was a Keynote presentation at the Scottish Drug Forum Conference on Stigma.
The paper examines the social construction of stigma looking at the way in which drug use and notions of abuse are culturally bound and determined. The role of the media shapes and firms up these boundaries.
For more resources see: https://julianbuchanan.wordpress.com/publications/
Feel free to email me: julianbuchanan@gmail.com
Logically personalisation and mental health are in perfect harmony - the fact that progress is so slow reflects deep imbalances of power, control and perception.
UK Child bereavement - presentation for Scottish Transitions Forum 2014scottread
Gabrielle discussed the need to be aware of bereavement within and around transition services for children and young people and to support young people who may be experiencing this.
Gabrielle discussed the vision of the UK Child Bereavement “Child Bereavement UK believes all families should have the support they need to rebuild their lives when a child grieves or when a child dies. Our mission is to ensure the accessibility of high quality child bereavement support and information to all families an professionals, by increasing our reach, plugging the gaps that exist in bereavement support and training, and embedding standards in the sector.”
Gabrielle went on to discuss some of the theory behind the process of bereavement and what professionals might need to be aware of in this process. Gabrielle left us with some key messages, which were:
• Understanding, love and sensitivity
• To be involved
• Honesty
• Information
• Opportunity to express feelings
• To revisit their grief as they become older
The psychological impact of living with and beyond cancer - reportAlex King
Earlier diagnosis and advances in treatment mean that more people are living with and beyond cancer,1 with approximately half of those diagnosed today living for ten years or more.2 Alongside positive clinical outcomes is the need to identify the key psychological challenges faced by individuals experiencing longterm cancer survival, and whether current provision of psychological support and services meet the needs of this relatively new group of patients. It is important to note that the psychological challenges faced during long-term survivorship are often not independent of those experienced at other points in a patient’s journey, including diagnosis, during or at completion of treatment, remission or at no evidence of disease (NED). As such, a broader view is necessary to ensure that psychological challenges faced in long-term survivorship are not addressed in isolation and individual impact is acknowledged.
Many European countries include referral pathways to psychological support in cancer care guidelines however, this is not always the case in the UK. For example, lung cancer guidelines do not include psychological assessment, referral pathways to psychological support or mention psychological burden.3 Existing guidance relating to the supportive and palliative care for adults with cancer was published by the National Institute for Health and Care Excellence (NICE) in 2004.4 Since then, the cancer treatment landscape has seen significant advances with earlier diagnosis and improved survival rates alongside changes within the wider environment including the advent of social media and other digital resources.
The ‘Psychological Support for Patients Living with Cancer - Patient Workshop’ aimed to identify the uniting, unmet psychological needs of people living with and beyond cancer. The workshop found the following key themes: • Prioritising quality of life (QoL) • Challenge of re-introduction to the community following treatment • The impact of cancer on families and carers
When addressing the provision of psychological support and ways in which current services could be improved, the following areas were discussed: • Integrating psychological support into the treatment pathway • Improving timing and communication • Securing timely support • Acknowledging differences • Getting support for families and carers
The wider environment, existing initiatives and the resulting workshop learnings will help inform MSD’s wider understanding of this topic and help to shape future planning regarding MSD’s contribution to support the psychological well-being of patients living with and beyond cancer.
I know why the caged bird sings: Human rights issues in mental health systemsVMIAC
Outlines consumer / survivor perspectives on common human rights issues in mental health systems, and outlines opportunities for change.
Presentation by Indigo Daya, VMIAC Human Rights Advisor, at The Mental Health Services (TheMHS) conference 2018.
The Social Construction of Stigma & Problem Drug UseJulian Buchanan
This paper was a Keynote presentation at the Scottish Drug Forum Conference on Stigma.
The paper examines the social construction of stigma looking at the way in which drug use and notions of abuse are culturally bound and determined. The role of the media shapes and firms up these boundaries.
For more resources see: https://julianbuchanan.wordpress.com/publications/
Feel free to email me: julianbuchanan@gmail.com
Logically personalisation and mental health are in perfect harmony - the fact that progress is so slow reflects deep imbalances of power, control and perception.
UK Child bereavement - presentation for Scottish Transitions Forum 2014scottread
Gabrielle discussed the need to be aware of bereavement within and around transition services for children and young people and to support young people who may be experiencing this.
Gabrielle discussed the vision of the UK Child Bereavement “Child Bereavement UK believes all families should have the support they need to rebuild their lives when a child grieves or when a child dies. Our mission is to ensure the accessibility of high quality child bereavement support and information to all families an professionals, by increasing our reach, plugging the gaps that exist in bereavement support and training, and embedding standards in the sector.”
Gabrielle went on to discuss some of the theory behind the process of bereavement and what professionals might need to be aware of in this process. Gabrielle left us with some key messages, which were:
• Understanding, love and sensitivity
• To be involved
• Honesty
• Information
• Opportunity to express feelings
• To revisit their grief as they become older
The psychological impact of living with and beyond cancer - reportAlex King
Earlier diagnosis and advances in treatment mean that more people are living with and beyond cancer,1 with approximately half of those diagnosed today living for ten years or more.2 Alongside positive clinical outcomes is the need to identify the key psychological challenges faced by individuals experiencing longterm cancer survival, and whether current provision of psychological support and services meet the needs of this relatively new group of patients. It is important to note that the psychological challenges faced during long-term survivorship are often not independent of those experienced at other points in a patient’s journey, including diagnosis, during or at completion of treatment, remission or at no evidence of disease (NED). As such, a broader view is necessary to ensure that psychological challenges faced in long-term survivorship are not addressed in isolation and individual impact is acknowledged.
Many European countries include referral pathways to psychological support in cancer care guidelines however, this is not always the case in the UK. For example, lung cancer guidelines do not include psychological assessment, referral pathways to psychological support or mention psychological burden.3 Existing guidance relating to the supportive and palliative care for adults with cancer was published by the National Institute for Health and Care Excellence (NICE) in 2004.4 Since then, the cancer treatment landscape has seen significant advances with earlier diagnosis and improved survival rates alongside changes within the wider environment including the advent of social media and other digital resources.
The ‘Psychological Support for Patients Living with Cancer - Patient Workshop’ aimed to identify the uniting, unmet psychological needs of people living with and beyond cancer. The workshop found the following key themes: • Prioritising quality of life (QoL) • Challenge of re-introduction to the community following treatment • The impact of cancer on families and carers
When addressing the provision of psychological support and ways in which current services could be improved, the following areas were discussed: • Integrating psychological support into the treatment pathway • Improving timing and communication • Securing timely support • Acknowledging differences • Getting support for families and carers
The wider environment, existing initiatives and the resulting workshop learnings will help inform MSD’s wider understanding of this topic and help to shape future planning regarding MSD’s contribution to support the psychological well-being of patients living with and beyond cancer.
I know why the caged bird sings: Human rights issues in mental health systemsVMIAC
Outlines consumer / survivor perspectives on common human rights issues in mental health systems, and outlines opportunities for change.
Presentation by Indigo Daya, VMIAC Human Rights Advisor, at The Mental Health Services (TheMHS) conference 2018.
Proyecto, que tiene como Objetivo General: Fabricar y comercializar calzado artesanal elaborado a mano, para satisfacer una necesidad social y garantizar un nivel económico a las familias integradoras del proyecto.
May 3, Wernersville talk on Mental Illness Recovery and Resiliency, Word versionRichard Gardner
This is the Word version of a talk at Wernersville State Hospital on my experience with mental illness Recovery and Resiliency. I am bipolar 2 and diabetic 2. It is a call for change on how we view "mental illness" and how we move forward.
i have written this article to share my thoughts over psychological disorders and their alarming prevalence universally and i have added the possible pros and cons of mental illness in this article.another motive is to spread awareness over this issue.
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1. Superman has a Mental Illness
In modern life the message we receive from many individuals, the media, companies etcetera,
is that we are expected to be nothing short of a superhero. We are expected to cover up our
insecurities and weaknesses, whether they be real or merely perceived by others. Our version
of a superhero is a person who accepts and is accepted for all their humanity, warts and all.
Anyone can be affected by a mental illness. People living with a mental illness have and need
extreme resilience, strength and courage to face daily life, probably more so than your average
person. Just getting out of bed can be a courageous act when you live with a mental illness.
Do you know somebody who is a superhero?
Prickly Questions
So many characters down through history have asked ‘prickly’ questions about the nature
of things, from Gallileo to Mandela. The subjects of mental illness and psychiatry are no
different eliciting much debate and challenge. As a society we are at a point were many
questions need to be asked about these things. When you are unwell it is incredibly hard to
ask questions or even know what questions you want to ask. Often professionals don’t like
you to ask questions, this can have you labeled as a difficult or uncooperative patient. When
people are physically ill they get the chance to ask many questions regarding their treatment,
medication or even get a second opinion. People with a mental illness have questions too,
we need to have an environment were we are free to question and not be straight jacketed by
an oppressive dogma. There will always be different thoughts and opinions, but the answers
should be right for everyone.
How can we effectively question what is the right treatment for us?
What can we do to develop a culture of receptive and responsive listening within mental health
services?
The Ripple Effect
The traditionally sterile and antiseptic style of hospitals is insensitive to our natural way of
being. The clinical attitude treating mental illness needs to be broadened and sympathetic to
our aesthetic natures. A vision of mental health services for the future needs to take a closer
look at creativity, spirituality and humanness. The negative features of the present system
should be relegated to the past - nature, family, community need to play a much bigger role
in mental health care. It is easy to see people with a mental illness as “the other” or perhaps
we can see mental illness as a symptom of our society. Wouldn’t it be wonderful if there were
alternatives to hospital – creative arts programs, farm stays, little cottages by the beach, and
cabins in the mountains? What would recovery look like then?
When you are feeling down what helps you move through it?
If someone you loved developed a mental illness how would you like them to be treated?
It is easy to ignore the ripples once they have stopped, what can you do to be part of the ongoing
ripple effect?
Facilitating Artists: Suzon Fuks & Karleen Gwinner
Consumer facilitator: Alee Lee
Core Artists: Damian, Hoa, Michael, Peter (The REMIX Collective)
Collaborating Artists: Andy, Bronwyn, Cecilia, Christine, Damien, Dean, Danielle, Frances,
Geoff, Ian, Jamie, Josh, Maya, Michael, Mick, Nick, Paul, Sandra, Seppo, Shane, Susan,
Suzanna, Tammy, Victor
Project Management: Scotia Monkivitch, Helicon cpr
A special thankyou to Neal Price who has worked tirelessly to bring this project to fruition and
to support and encourage all in the engagement of art and creativity.
For further information please contact
Scotia Monkivitch, Helicon cpr scotia@heliconcpr.com.au or 0423 987 207.
2. Catalogue Forward
transforming effect on people’s lives and that the
and shares a vision of the resources needed for
The Queensland 150 birthday celebrations
arts can empower individuals and communities
a productive and healthy recovery.
in 2009 provided an opportunity to celebrate
in dynamic ways. Cultural celebrations need to
The Queensland Arts and Health Consortium has
the achievements of Queensland’s diverse
reflect our values, beliefs and visions for the
focused energy and resources into The Ripple
communities. It also enabled us to bring to public
future and we all need to see our experiences
Effect project as it has the capacity to engage with
attention the ‘lived’ history of people with mental
elevated and respected as a valued part of our
not only the mental health sector but also the arts
illness and the contribution that this section of
cultural landscape.
and cultural sector and the broader community.
our community makes to our local and national
The images from The Ripple Effect appear
Participation in a project such as this can support
identity through music, dance, literature, theatre
like they are advertising images but have a
participants to experience connectedness to their
and the visual arts.
deeper social message. They are deliberately
community and control over their own lives. Like
The Ripple Effect exhibition deals with issues of
confronting, humorous, and thought provoking to
the exhibition title, the Consortium hopes that the
mental health care and recovery and ensures
create debate on true-life experiences of hospital
influence of this project will be felt in many other
that Queenslanders living with a mental illness
treatments, recovery and support available in our
spheres.
have a presence in the Q150 celebrations in a
community. The works in this exhibition carry
culturally appropriate way. Experience has taught
the hopes and aspirations of a community that
Neal Price,
us that engagement with the arts can have a
is bonded together by its collective experiences,
Chair – Queensland Arts and Health Consortium.
Notes to Self
Whether we have a mental illness or not we all have shared experiences, we all live with
common actions and routines no matter our living circumstances - be it shopping, cooking,
fear, anger etc. Bottom line people are people; we are all responsible for our own lives.
Just because I have a mental illness does not mean my feelings are not real or important
– ‘normal’ people can do crazy things. Attitudinal change begins with your own behaviour.
Don’t forget me and who I was before I became ill. It is sometimes easy to blame everything
on my mental illness – remember me
How can you help to change attitudes toward people who live with a mental illness?
Don’t Lobotomize Me
The “lobotomy’ we are talking about is not necessarily an actual one. The emptiness that is left
for many people after having their rights violated is every bit as real as a lobotomy. For some
people who have experience of this destructive treatment, the ordeal seems insurmountable.
Whilst lobotomy is no longer considered an acceptable form of treatment there are many
current responses to mental illness that are just as unacceptable. Some people in the system
have no say in their health care – they are not seen or heard. The system can still be brutal.
It is important that support offers an open, accessible and transparent accountability. When
will this change?
How would you feel if you had cancer and you could not choose how it was to be treated?
How can I be engaged in the decisions that impact my life?
Liberated
This image is a statement particularly about the positive roles families can play in the liberating
of members with mental illness from suffering and from unjust treatment from society and the
system. Supporting and standing up for people without fear of more unjust repercussions is
what is needed on a personal, individual to a group societal, family and institutional level. The
mental health system can be a big scary and overwhelming place, it is hard to be heard and
easy to find yourself stuck. Having family, friends and community in your corner can make all
the difference.
How can we support someone living with mental illness to remain living in their community?
How can I get involved in supporting my friend who is living with a mental illness?
Breaking the Frame
The framing text gives a stark impression of what many people go through living with a mental
illness, what they feel they need and prompts us to think about what possible changes can be
made to improve conditions for people living with a mental illness. When the mind becomes
shattered it takes time to put the pieces back together again. It is not all black and white.
The effects of mental illness can be profound – reframing our experiences takes a whole of
community approach. As a person with a mental illness I do not have to play the part society/
media pushes onto me. We see things through the prism of our own experience. People
often see us differently then we see ourselves. I will break free of the frame and be my own
person.
Are you able to see what this experience is like for me?
If I was your loved one how could you walk with me through the winter of my life?