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‘I thought you would all be
stuck up!’
People with dementia educating
student healthcare practitioners
through life story work.
Jane McKeown, Catherine Tattersall & Emma Yarwood
The University of Sheffield,
School of Nursing and Midwifery & Department of
Human Communication Sciences
Key Messages
• The value of life story work for developing
communications skills with student health
care practitioners
• The value of involving people with dementia
in educational programmes
• The opportunity for older people to ‘come to
University’
What is Life Story Work
• Working individually
with a person to
listen to stories
about their life.
• Memories, people,
places, hobbies,
work…
What is Life Story Work
• Negotiating if / how
the person wants to
record their life story.
• Life story books, ‘pen
picture’, memory box,
collage, photo-story
boards, web page…
Group Aims
• Improve student confidence
in communicating with
people with dementia.
• Challenge negative student
myths about working with
people with dementia.
• Provide opportunities for
people with dementia to
undertake life story work.
How the Group Operates
• Pre group training for students
• Meets every Weds afternoon during each
Semester at a University venue.
• Speech and Language Therapy & Nursing
Students.
• People with dementia and family carers.
• Project managed – multi-professional.
• 2 hours: 1st hour individual life story work; 2nd
hour social event.
Photograph by Emma Yarwood
Photograph by Emma Yarwood
Photographs by Emma Yarwood
Evaluation
• End of semester focus groups with people
with dementia & family carers and with
students
• Pre and post Dementia Attitude Scale
• Ad hoc comments / observations / reflection
People with Dementia
“Who could not
enjoy coming
here! They’re
talking my
language –
football!”
“Anybody like me whose
got brain problems, it
opens it up somehow, to
come and talk to people. I
certainly think it’ll help
other people. It’s a relief
actually to know there’s
people there to listen.”
“The nearest we’ll
get to Uni!”
Family Carers / Supporters
“It’s bought
up nice
memories we
had forgotten
about and
some we had
not heard
about”
Family carer
“Mum
is empowered when she’s here,
seeing Mum having confidence;
Mum says lots more here; she has
self-esteem and confidence”
Family Carer
“It’s great having somewhere
meaningful to refer people
with dementia to.”
3rd Sector Worker
Students
“I think one of the main benefits is
that it allows the person with
dementia to be the ‘expert’, only they
can recount the details of the
experiences that they have had
during their life, and I think it is a
really positive experience for them to
be able to talk about something
without feeling that they might not
have remembered or might be
contradicted, which might happen
when talking about the here and
now.”
“I feel more
confident
interacting with a
person with
dementia”
“It helped me put my
own life into
perspective, as with
life story work you are
experiencing someone
else’s life and what
they have achieved
through their life.”
Dementia Attitude Scale
It is rewarding to work with people living with
dementia
I feel confident around people living with
dementia
People living with dementia can enjoy life
I feel comfortable around people living with
dementia
I admire the coping skills of people living with
dementia
Considerations
• Whose story is it?
• Social element not for everyone
• Attendance
• Room space
• Funding
• Supervision
Photograph by Emma Yarwood
Thank You for Listening
Emma Yarwood: Life
story project manager
and photographer
e.yarwood@sheffield.ac.uk
Catherine Tattersall:
Speech and Language
Therapy Lecturer
c.tattersall@sheffield.ac.uk
Contact : Jane McKeown j.mckeown@sheffield.ac.uk
http://cottomcommunicationclinic.group.shef.ac.uk/dementia.html

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Life story work group presentation to dementia congress 2017

  • 1. ‘I thought you would all be stuck up!’ People with dementia educating student healthcare practitioners through life story work. Jane McKeown, Catherine Tattersall & Emma Yarwood The University of Sheffield, School of Nursing and Midwifery & Department of Human Communication Sciences
  • 2. Key Messages • The value of life story work for developing communications skills with student health care practitioners • The value of involving people with dementia in educational programmes • The opportunity for older people to ‘come to University’
  • 3. What is Life Story Work • Working individually with a person to listen to stories about their life. • Memories, people, places, hobbies, work…
  • 4. What is Life Story Work • Negotiating if / how the person wants to record their life story. • Life story books, ‘pen picture’, memory box, collage, photo-story boards, web page…
  • 5. Group Aims • Improve student confidence in communicating with people with dementia. • Challenge negative student myths about working with people with dementia. • Provide opportunities for people with dementia to undertake life story work.
  • 6. How the Group Operates • Pre group training for students • Meets every Weds afternoon during each Semester at a University venue. • Speech and Language Therapy & Nursing Students. • People with dementia and family carers. • Project managed – multi-professional. • 2 hours: 1st hour individual life story work; 2nd hour social event.
  • 10. Evaluation • End of semester focus groups with people with dementia & family carers and with students • Pre and post Dementia Attitude Scale • Ad hoc comments / observations / reflection
  • 11. People with Dementia “Who could not enjoy coming here! They’re talking my language – football!” “Anybody like me whose got brain problems, it opens it up somehow, to come and talk to people. I certainly think it’ll help other people. It’s a relief actually to know there’s people there to listen.” “The nearest we’ll get to Uni!”
  • 12. Family Carers / Supporters “It’s bought up nice memories we had forgotten about and some we had not heard about” Family carer “Mum is empowered when she’s here, seeing Mum having confidence; Mum says lots more here; she has self-esteem and confidence” Family Carer “It’s great having somewhere meaningful to refer people with dementia to.” 3rd Sector Worker
  • 13. Students “I think one of the main benefits is that it allows the person with dementia to be the ‘expert’, only they can recount the details of the experiences that they have had during their life, and I think it is a really positive experience for them to be able to talk about something without feeling that they might not have remembered or might be contradicted, which might happen when talking about the here and now.” “I feel more confident interacting with a person with dementia” “It helped me put my own life into perspective, as with life story work you are experiencing someone else’s life and what they have achieved through their life.”
  • 14. Dementia Attitude Scale It is rewarding to work with people living with dementia I feel confident around people living with dementia People living with dementia can enjoy life I feel comfortable around people living with dementia I admire the coping skills of people living with dementia
  • 15. Considerations • Whose story is it? • Social element not for everyone • Attendance • Room space • Funding • Supervision
  • 17. Thank You for Listening Emma Yarwood: Life story project manager and photographer e.yarwood@sheffield.ac.uk Catherine Tattersall: Speech and Language Therapy Lecturer c.tattersall@sheffield.ac.uk Contact : Jane McKeown j.mckeown@sheffield.ac.uk http://cottomcommunicationclinic.group.shef.ac.uk/dementia.html