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LEGAL AND ETHICAL
ISSUES
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 2
INTRODUCTION
 Physician and other health care providers
use medical and scientific knowledge
along with clinical judgment and expertise
to provide quality healthcare to keep you
functioning and independent for as long as
possible. However, in some situations,
providing the best care requires choosing
among conflicting responsibilities, values,
and principles
LEGAL AND ETHICAL ISSUES
Respecting Your Choices
 Informed consent
 Decision-making capability
Judging the Capacity to
Make Decisions
Advance directives
 Living wills
 Durable power of attorney for
health care
 Problems with advance directives
 The importance of communication
Choosing a surrogate decision
maker
Acting in your best intertest
Preventing harm
 Placement issues
 Abuse of elderly
 Guardianship
Decision of people in
nursing home
Life-sutaining treatment
DNR orders
Withdrawing treatment
Tube feeding
Active euthanasia
Assisted suicide
LEGAL AND ETHICAL ISSUES
Respecting Your Choices
Informed consent
Decision-making capability
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 5
Informed consent
 Informed consent is a legal doctrine
stating that you have the power to choose
among medically reasonable plans for
your care.
 Informed consent for research
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 6
Cont..
Informed consent requires effective communication
between you and your doctor, and to be able to make
informed choices, you need to discuss many things (as
often as needed), including the following:
 your diagnosis
 the overall outlook
 the nature of the recommended test or treatments
 the various alternatives
 the risks and benefits of each alternative
 likely outcomes of each alternative
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 7
Decision-making capability
The process of informed consent makes sense
only for people who have the ability to make
informed decisions.
This does not change unless the individual is
determined to be "incompetent or incapacitated"
by a court of law.
The terms "incompetent or incapacitated" are
legal terms and apply specifically to legal cases
in court
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 8
Judging the Capacity to Make
Decisions
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 9
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 10
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 11
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 12
Advance directives
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 13
Living wills
Laws or legal opinions that authorize living wills.
These are often called natural death, death with
dignity, or right-to-die laws.
Generally, these laws allow you to direct health
care providers to withhold or withdraw treatment
that is keeping you alive if you become
terminally ill and are no longer capable of
making decisions.
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 14
Durable power of attorney for
health care
The durable power of attorney for health care is
more flexible and comprehensive than a living
will.
It allows you to designate a surrogate decision
maker, presumably a friend or relative, to make
the medical decisions if you lose the ability to
make them yourself.
You give the surrogate your informed consent (or
refusal) while you are still capable.
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 15
Problems with advance
directives
Advance directives have limitations. For example,
an older adult may not fully understand
treatment options or appreciate the
consequences of certain choices.
Sometimes, people change their minds after
expressing advance directives and forget to
inform others. Many times, advance directives
are too vague to guide clinical decisions.
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 16
The importance of
communication
Good communication can resolve many problems
posed by advance directives. You and your
health care provider should routinely share
information on advance directives.
A straightforward question you can ask to open the
topic is: "Can we talk about how decisions will be
made for my medical care in case I become too
sick to talk to you directly?"
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 17
Choosing a surrogate decision maker
Traditionally, family members act as surrogate decision
makers (or stand-ins) for incapacitated individuals,
because most probably they best know the person’s
preferences and will act in their best interests.
Family members are also normally consulted by the health
care provider. However, the health care provider may
sometimes decide that decisions by family members are
questionable because of conflicting personalities, values,
or interests.
In addition, some family members may be estranged or
unwilling to make decisions, or they may disagree
among themselves. In other cases, older adults have no
surviving relatives.
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 18
Acting in Your Best Interests
If you have not given advance directives or
appointed a surrogate decision maker, health
care providers may have to base decisions on
what is in your "best interest," by weighing the
benefits and possible problems of treatment.
This is a complicated and often controversial
process that requires dealing with such personal
factors as pain and suffering, safety, and loss of
independence, privacy, and dignity
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 19
Preventing Harm
Health care providers have a duty to use
their expertise for the benefit of the people
in their care.
However, you retain the right to refuse
treatments that your health care provider
considers to be in your best interest.
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 20
Placement issues
Preventing harm to an individual is often
raised in decisions to place someone in a
nursing home.
An older adult may wish to remain at home,
but family member or caregivers may
override this decision if they believe that
living independently is not safe.
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 21
Abuse of older adults
Family members or other caregivers can
sometimes become abusive for a variety
of reasons.
These may include feeling overwhelmed
and burnt out by caregiving
responsibilities, lacking appropriate
caregiving skills, or having no break from
caregiving.
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 22
Guardianship
Some older people cannot manage their finances
or provide themselves with food and shelter.
Sometimes, relatives or friends make informal
arrangements to help these individuals.
In other cases, it is necessary to ask the courts to
appoint a guardian, as when property must be
managed or sold to pay for long-term care.
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 23
Decisions for people in nursing homes
Nursing-home residents may need additional
safeguards when decisions about life-sustaining
treatments are made.
These people may not have close relatives to act
on their behalf, and their relationships with
health care providers may be superficial.
There are also fewer caregivers involved in
decisions at nursing homes compared with
hospitals.
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 24
Life-Sustaining Treatments
Advances in medical technology have often
created medical dilemmas.
For example, health care providers may be able to
successfully treat a sudden complication in a
seriously ill person, but restoring function and
improving the underlying disease may be
impossible.
In such a situation, treatment that only prolongs life
may be appropriately withheld.
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 25
Cont..
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 26
Do-Not-Resuscitate Orders
 Cardiopulmonary resuscitation (CPR) may be an
effective treatment for unexpected sudden
death, but it is not effective for people whose
death is expected.
 Older adults generally do poorly after CPR
because of serious illnesses and decreased
functional status.
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 27
Withdrawing Treatment
Strange emotional feelings are a natural part of
decisions to stop, withdraw, or withhold care.
We are torn between the impending sense of loss
of our loved ones and our desire that their
suffering be relieved and their dignity
maintained.
Tube Feeding
Tube feedings clearly benefit people who
want or agree to this treatment.
In addition, feeding provides more time to
diagnose and treat underlying conditions.
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 29
Active Euthanasia
Active euthanasia (also called mercy killing)
is illegal.
Requests for it generally arise because
individuals suffer uncontrolled pain,
demand more control over their care, or
fear abandonment
Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 30
Assisted Suicide
Statistically, older white men are at a greatly
increased risk for suicide.
Most suicides are impulsive acts that are not well
thought out.
Also, people who seriously consider suicide
usually suffer from depression.
Because individuals who are incapacitated by
depression cannot make informed decisions,
family and friends are quite likely to get involved
and seek medical advice.

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  • 2. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 2 INTRODUCTION  Physician and other health care providers use medical and scientific knowledge along with clinical judgment and expertise to provide quality healthcare to keep you functioning and independent for as long as possible. However, in some situations, providing the best care requires choosing among conflicting responsibilities, values, and principles
  • 3. LEGAL AND ETHICAL ISSUES Respecting Your Choices  Informed consent  Decision-making capability Judging the Capacity to Make Decisions Advance directives  Living wills  Durable power of attorney for health care  Problems with advance directives  The importance of communication Choosing a surrogate decision maker Acting in your best intertest Preventing harm  Placement issues  Abuse of elderly  Guardianship Decision of people in nursing home Life-sutaining treatment DNR orders Withdrawing treatment Tube feeding Active euthanasia Assisted suicide
  • 4. LEGAL AND ETHICAL ISSUES Respecting Your Choices Informed consent Decision-making capability
  • 5. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 5 Informed consent  Informed consent is a legal doctrine stating that you have the power to choose among medically reasonable plans for your care.  Informed consent for research
  • 6. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 6 Cont.. Informed consent requires effective communication between you and your doctor, and to be able to make informed choices, you need to discuss many things (as often as needed), including the following:  your diagnosis  the overall outlook  the nature of the recommended test or treatments  the various alternatives  the risks and benefits of each alternative  likely outcomes of each alternative
  • 7. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 7 Decision-making capability The process of informed consent makes sense only for people who have the ability to make informed decisions. This does not change unless the individual is determined to be "incompetent or incapacitated" by a court of law. The terms "incompetent or incapacitated" are legal terms and apply specifically to legal cases in court
  • 8. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 8 Judging the Capacity to Make Decisions
  • 9. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 9
  • 10. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 10
  • 11. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 11
  • 12. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 12 Advance directives
  • 13. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 13 Living wills Laws or legal opinions that authorize living wills. These are often called natural death, death with dignity, or right-to-die laws. Generally, these laws allow you to direct health care providers to withhold or withdraw treatment that is keeping you alive if you become terminally ill and are no longer capable of making decisions.
  • 14. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 14 Durable power of attorney for health care The durable power of attorney for health care is more flexible and comprehensive than a living will. It allows you to designate a surrogate decision maker, presumably a friend or relative, to make the medical decisions if you lose the ability to make them yourself. You give the surrogate your informed consent (or refusal) while you are still capable.
  • 15. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 15 Problems with advance directives Advance directives have limitations. For example, an older adult may not fully understand treatment options or appreciate the consequences of certain choices. Sometimes, people change their minds after expressing advance directives and forget to inform others. Many times, advance directives are too vague to guide clinical decisions.
  • 16. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 16 The importance of communication Good communication can resolve many problems posed by advance directives. You and your health care provider should routinely share information on advance directives. A straightforward question you can ask to open the topic is: "Can we talk about how decisions will be made for my medical care in case I become too sick to talk to you directly?"
  • 17. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 17 Choosing a surrogate decision maker Traditionally, family members act as surrogate decision makers (or stand-ins) for incapacitated individuals, because most probably they best know the person’s preferences and will act in their best interests. Family members are also normally consulted by the health care provider. However, the health care provider may sometimes decide that decisions by family members are questionable because of conflicting personalities, values, or interests. In addition, some family members may be estranged or unwilling to make decisions, or they may disagree among themselves. In other cases, older adults have no surviving relatives.
  • 18. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 18 Acting in Your Best Interests If you have not given advance directives or appointed a surrogate decision maker, health care providers may have to base decisions on what is in your "best interest," by weighing the benefits and possible problems of treatment. This is a complicated and often controversial process that requires dealing with such personal factors as pain and suffering, safety, and loss of independence, privacy, and dignity
  • 19. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 19 Preventing Harm Health care providers have a duty to use their expertise for the benefit of the people in their care. However, you retain the right to refuse treatments that your health care provider considers to be in your best interest.
  • 20. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 20 Placement issues Preventing harm to an individual is often raised in decisions to place someone in a nursing home. An older adult may wish to remain at home, but family member or caregivers may override this decision if they believe that living independently is not safe.
  • 21. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 21 Abuse of older adults Family members or other caregivers can sometimes become abusive for a variety of reasons. These may include feeling overwhelmed and burnt out by caregiving responsibilities, lacking appropriate caregiving skills, or having no break from caregiving.
  • 22. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 22 Guardianship Some older people cannot manage their finances or provide themselves with food and shelter. Sometimes, relatives or friends make informal arrangements to help these individuals. In other cases, it is necessary to ask the courts to appoint a guardian, as when property must be managed or sold to pay for long-term care.
  • 23. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 23 Decisions for people in nursing homes Nursing-home residents may need additional safeguards when decisions about life-sustaining treatments are made. These people may not have close relatives to act on their behalf, and their relationships with health care providers may be superficial. There are also fewer caregivers involved in decisions at nursing homes compared with hospitals.
  • 24. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 24 Life-Sustaining Treatments Advances in medical technology have often created medical dilemmas. For example, health care providers may be able to successfully treat a sudden complication in a seriously ill person, but restoring function and improving the underlying disease may be impossible. In such a situation, treatment that only prolongs life may be appropriately withheld.
  • 25. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 25 Cont..
  • 26. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 26 Do-Not-Resuscitate Orders  Cardiopulmonary resuscitation (CPR) may be an effective treatment for unexpected sudden death, but it is not effective for people whose death is expected.  Older adults generally do poorly after CPR because of serious illnesses and decreased functional status.
  • 27. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 27 Withdrawing Treatment Strange emotional feelings are a natural part of decisions to stop, withdraw, or withhold care. We are torn between the impending sense of loss of our loved ones and our desire that their suffering be relieved and their dignity maintained.
  • 28. Tube Feeding Tube feedings clearly benefit people who want or agree to this treatment. In addition, feeding provides more time to diagnose and treat underlying conditions.
  • 29. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 29 Active Euthanasia Active euthanasia (also called mercy killing) is illegal. Requests for it generally arise because individuals suffer uncontrolled pain, demand more control over their care, or fear abandonment
  • 30. Copyright © 2004 by Thomson Delmar Learning. ALL RIGHTS RESERVED. 30 Assisted Suicide Statistically, older white men are at a greatly increased risk for suicide. Most suicides are impulsive acts that are not well thought out. Also, people who seriously consider suicide usually suffer from depression. Because individuals who are incapacitated by depression cannot make informed decisions, family and friends are quite likely to get involved and seek medical advice.