The Isaacus -Digital Health HUB closing event 1.11.2018 HISTORY OF THE PROJECT, OUTCOME AND LESSONS LEARNED Jaana Sinipuro, Project Director, Sitra

1. HISTORY OF THE PROJECT, OUTCOME AND
LESSONS LEARNED
Jaana Sinipuro, Project Director, Sitra

2. 5 key facts about Sitra
1. A gift from Parliament to the 50-year-old
Finland.
2. An independent foresight agency:
futurologist, researcher, visionary,
developer, experimentalist, partner, trainer,
networker.
3. Funded by returns on endowment capital
and capital investments.
4. Envisages Finland as a successful pioneer in
sustainable well-being.
5. Its vision is supported by three themes, six
focus areas and dozens of projects.
+1
Building our future
together

3. Glossary
The Isaacus project (2015–2018) by Sitra
- Prepared the basic principles and operating plan for “Digital Health Hub” that works
together with the new national permit authority ensuring safe and fast access to Finnish
data reserves for R&D. Sometimes referred as “Service Operator”.
- Funded pre-production projects as pilots for different technical platforms and
developed national research service infrastructure
- Named after Isaacus Rothovius born 1st of November 1572.
The act concerning the secondary use of social and healthcare data
- Backbone for new government agency and streamlined researcher services. Under
parliamentary work (since October 2017).
Temporary Steering Group
- Working committee of Digital Health Hub stakeholders working since January 2018 to
plan for future operations. Led by ministry, Project Management Office funded by Sitra

4. History
2018 -2017 - 2019 -2016 -
Working Committee starts preparations for the new act on
the secondary use of social and healthcare data.
Working term 04’2015 - 12’ 2017
Government proposal
submitted for first
hearing
08 – 09’2016
Parliamentary work.
Expert hearings and debates.
Constitutional law committee
and Social affairs and health
committee suggests
amendments.
04’2018
Government
proposes a
new act on
the
secondary
use of health
and social
data
10’2017
Adjusted
proposal
returned to
social
affairs and
health
committee
10’2018
Further preparations by
government, register holders
and politicians.
Adjusted proposal prepared
10’2016 - 10’2017
?
The Government draft budget
1,8 million eur (2018)
3,3 million eur (2019)
PROJECT ISAACUS
Project starts
11’2015
First funding
applications
03 ’2016
Additional funding
decisions (total 7 M)
Pre-pilots started
with support of
Sitras funding
(30–70 %)
Isaacus phase 1 completed in
09’2017. Pre-production pilots
give insight on future ICT services.
No readiness for handover since
stakeholders have no budget
without new legislation.
Temporary Steering
Group prepares start
of operations
(total 35 MDs)
Sitra lengthens project to
ensure the impact of the
work. Project Management
Office funded to support
temporary Steering Group
assigned by Ministry
REGULATION

5. Improving Research Infrastructure and Researcher Services
Our partners
New technologies and platforms for innovations
Evaluations and Reports

6. Numbers
7 000 000 € / 14 000 000 €
Projects (8 pre-production pilots)
Local events, mostly organized by Sitra
International meetings and study tours
End-user interviews
International round-table meeting guests
33
25
50
70
30

7. Learnings
-Sense of urgency missing… or just too many
reforms simultaneously?
-Mindset change needed: from production-
driven to customer-driven
-More innovative ways for public-private
partnerships needed – shortage of skills
-Pooling of different funding sources to national
programmes. Strategy is about choices
-Focus on trust

8. Highlights
-Cross-sector dialogues
-Grassroots level collaboration
-Amazing individuals
-Hype for datalake solutions and personalised medicine

9. More insight from
our Report:
www.sitra.fi/isaacus

10. Finnish moonshot initiative?
Finns don’t overtell…
we just do.
Thank you!

11. sitra.fi | seuraavaerä.fi
@sitrafund