The document provides information about an upcoming international patient summary workshop. It discusses the history and mission of HL7, an organization that develops standards for health information technology, including growing exponentially since 1987. It also outlines HL7's use and development of CDA (Clinical Document Architecture) standards in various countries, including Finland, Germany, and Austria. The document shares examples of how CDA has been implemented for different use cases like ePrescriptions, electronic health records, and discharge summaries.
This document summarizes a presentation on FHIR terminology given by Lloyd McKenzie at the FHIR Developer Days on November 25, 2014. The presentation covered how coded data is shared in FHIR using bindings and value sets, the process for creating and using value sets, and the future of FHIR terminology. The objectives of the tutorial were to explain how coded data is shared in FHIR, understand bindings and profiling vocabulary, learn the process for creating and using value sets, and discuss the future of FHIR terminology.
This document provides an overview of a 1 hour and 10 minute training on digital health and HL7 FHIR presented by Janaka Peiris. The training covers topics such as electronic health records, interoperability challenges, healthcare data standards including FHIR, application programming interfaces, cloud computing models like IaaS, PaaS and SaaS, and the future of digital health according to a 2022 report. The document outlines the training agenda, introduces the presenter Janaka Peiris and his background, and provides examples to illustrate key concepts in less than 3 sentences.
The document provides an introduction to FHIR (Fast Healthcare Interoperability Resources). It outlines some of the limitations of previous HL7 standards like V3 being too complex and documents (CDA) not being sufficient. It notes the need for a transition path from V2 and something to address new markets. FHIR is presented as a new approach that is focused on implementers and uses resources as the basic building block. Each resource has its own model and unique ID. The goal is to make implementation easier compared to previous standards.
The document discusses the Trillium-II initiative to scale up use of patient summaries in Europe and globally. It aims to progress the International Patient Summary Standard and leverage existing work on patient summaries and interoperability assets from previous projects like Trillium Bridge. The initiative will focus on unlocking patient data through patient summaries, developing educational materials, and involving stakeholders to identify needs and enablers for successful implementation. The overall goal is to empower individuals and enhance health systems through use of interoperable patient summaries.
The document provides an update on the Trillium Bridge Project, which aims to build a bridge for the exchange of patient summaries across the Atlantic. It summarizes that the project is conducting a feasibility study comparing US and EU patient summary standards to identify gaps and barriers to exchange. It also outlines the technical architecture and pilot use cases being developed to test cross-border exchange of patient summaries between the US and EU.
IHE / RSNA Image Sharing Project - IHE Colombia Workshop (12/2014) Module 5aIHE Brasil
This document provides an overview of IHE (Integrating the Healthcare Enterprise), including:
- IHE is an international initiative that provides frameworks for standards-based interoperability between healthcare systems.
- It involves participation from various professional organizations and vendors to address real-world clinical needs.
- IHE defines integration profiles that specify how multiple standards can be coordinated to address specific use cases. Products are tested and can publish integration statements about supported profiles.
1st eStandards conference: next steps for standardization in large scale eHea...chronaki
The document discusses international standards for patient summaries. It provides an overview of existing initiatives to standardize patient summaries and the potential benefits these could provide. It describes the Joint Initiative Council's (JIC) work developing an international standard for patient summaries, including establishing working groups to define use cases, identify relevant standards, and provide implementation guidance. The JIC aims to deliver a standardized patient summary within one year by leveraging existing work from other standards development organizations.
IHE provides a framework for implementing multiple healthcare IT standards to address specific clinical needs. It has grown from a project launched in 1998 involving healthcare providers, vendors, and standards groups. IHE defines integration profiles that specify how standards should be implemented together to enable interoperability. Examples include profiles for image and report sharing within and between healthcare enterprises using standards like DICOM and HL7.
This document summarizes a presentation on FHIR terminology given by Lloyd McKenzie at the FHIR Developer Days on November 25, 2014. The presentation covered how coded data is shared in FHIR using bindings and value sets, the process for creating and using value sets, and the future of FHIR terminology. The objectives of the tutorial were to explain how coded data is shared in FHIR, understand bindings and profiling vocabulary, learn the process for creating and using value sets, and discuss the future of FHIR terminology.
This document provides an overview of a 1 hour and 10 minute training on digital health and HL7 FHIR presented by Janaka Peiris. The training covers topics such as electronic health records, interoperability challenges, healthcare data standards including FHIR, application programming interfaces, cloud computing models like IaaS, PaaS and SaaS, and the future of digital health according to a 2022 report. The document outlines the training agenda, introduces the presenter Janaka Peiris and his background, and provides examples to illustrate key concepts in less than 3 sentences.
The document provides an introduction to FHIR (Fast Healthcare Interoperability Resources). It outlines some of the limitations of previous HL7 standards like V3 being too complex and documents (CDA) not being sufficient. It notes the need for a transition path from V2 and something to address new markets. FHIR is presented as a new approach that is focused on implementers and uses resources as the basic building block. Each resource has its own model and unique ID. The goal is to make implementation easier compared to previous standards.
The document discusses the Trillium-II initiative to scale up use of patient summaries in Europe and globally. It aims to progress the International Patient Summary Standard and leverage existing work on patient summaries and interoperability assets from previous projects like Trillium Bridge. The initiative will focus on unlocking patient data through patient summaries, developing educational materials, and involving stakeholders to identify needs and enablers for successful implementation. The overall goal is to empower individuals and enhance health systems through use of interoperable patient summaries.
The document provides an update on the Trillium Bridge Project, which aims to build a bridge for the exchange of patient summaries across the Atlantic. It summarizes that the project is conducting a feasibility study comparing US and EU patient summary standards to identify gaps and barriers to exchange. It also outlines the technical architecture and pilot use cases being developed to test cross-border exchange of patient summaries between the US and EU.
IHE / RSNA Image Sharing Project - IHE Colombia Workshop (12/2014) Module 5aIHE Brasil
This document provides an overview of IHE (Integrating the Healthcare Enterprise), including:
- IHE is an international initiative that provides frameworks for standards-based interoperability between healthcare systems.
- It involves participation from various professional organizations and vendors to address real-world clinical needs.
- IHE defines integration profiles that specify how multiple standards can be coordinated to address specific use cases. Products are tested and can publish integration statements about supported profiles.
1st eStandards conference: next steps for standardization in large scale eHea...chronaki
The document discusses international standards for patient summaries. It provides an overview of existing initiatives to standardize patient summaries and the potential benefits these could provide. It describes the Joint Initiative Council's (JIC) work developing an international standard for patient summaries, including establishing working groups to define use cases, identify relevant standards, and provide implementation guidance. The JIC aims to deliver a standardized patient summary within one year by leveraging existing work from other standards development organizations.
IHE provides a framework for implementing multiple healthcare IT standards to address specific clinical needs. It has grown from a project launched in 1998 involving healthcare providers, vendors, and standards groups. IHE defines integration profiles that specify how standards should be implemented together to enable interoperability. Examples include profiles for image and report sharing within and between healthcare enterprises using standards like DICOM and HL7.
Digital Enlightment Forum: Towards a European ecosystem for health care data
Presentation of eStandards/Trillium II at the workshop of the Digital Enlightment Forum
The document discusses uploading personal health device data to a FHIR server. It describes:
1) Mapping device data models like 11073 to FHIR resources like Observation, DeviceComponent, and Patient to represent the information in a standardized way.
2) Methods for the personal health gateway to securely upload the device data using FHIR over HTTPS with OAuth authorization and ensuring no loss of information.
3) Considerations for managing patient identity and properly associating observations with the correct patient resource on the server.
This document provides an overview of interoperability challenges in healthcare and standards used to address those challenges, with a focus on HL7 standards and FHIR. It discusses the need for standardized data exchange to ensure clinical data is available where and when needed. It summarizes key HL7 standards like V2, CDA, C-CDA and introduces FHIR as the latest standard, combining features of previous standards. The document compares features of different standards and provides examples of FHIR resources and operations. It concludes with a demo of FHIR capabilities.
Multi-parameter Vital Signs Monitors - Interoperability and Communication Sta...everton.berz
This document discusses standards for interoperability and communication for multi-parameter vital signs monitors. It describes organizations like HL7 and IHE that establish standards, as well as integration profiles defined by IHE like DEC and POI. HL7 provides basic integration standards, while IHE defines technical frameworks and profiles to organize these standards and decrease ambiguity. Examples of commercial vital signs monitors that implement IHE PCD profiles are also given.
PanCareSurPass @SIOP Europe/CCI Europe Meeting 2021, Riccardo HauptKylieOBrien10
Research Manager Dr. Riccardo Haupt presented the PanCareSurPass project at the ‘PanCare and ELTEC – Late effects’ session of the SIOP Europe/CCI Europe Meeting 2021 on 28th April 2021.
PanCareSurPass has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 89999. The material presented and views expressed here are the responsibilities of the author(s) only. The EU Commission takes no responsibility for any use made of the information set out.
Introduction to Digital Health Standards with HL7 FHIRJanaka Peiris
This document provides an introduction and overview of digital health standards with a focus on FHIR (Fast Healthcare Interoperability Resources). It discusses why data exchange is needed in healthcare and defines interoperability. It then gives practical examples of FHIR implementation and its use in apps. The document also provides a brief history of other standards like HL7 v2, v3, CDA, IPS and compares them to FHIR. It defines medical terminologies like SNOMED, LOINC and ICD and how they work together with standards.
HIS purchase projects in public hospitals of StyriaMiroslav Mađarić
This document summarizes the project to select and purchase a new hospital information system (HIS) for the KAGes public hospitals in Styria, Austria. It describes the multi-step evaluation process including requesting vendor information, product presentations, establishing test sites to evaluate the systems, visiting reference sites, and selecting finalists. Four vendors were selected for the final evaluation phase. Over 60 teams with 400 users and IT experts assessed the products over multiple sessions. Based on their recommendations, two vendors were selected for negotiations, and EDVg was ultimately chosen to implement their IS-H/IS-H*MED product in a new project called MEDOCS, with pilot installations beginning in 2000.
Connected health data meets the people: Diversity, Standards, and Trustchronaki
Using health data in a connected world requires new competencies, a personal digital health compass calibrated to individual personalities and needs. Patients and clinicians able to collect and manage data, data-operational informatics professionals able to analyze data, and cutting-edge researchers, innovators, and educators able to apply knowledge, will take learning health systems to the next level.
In this EFMI-HL7 event using innovative technology and surprises to engage the audience, we will discuss strategies for empowering and activating people to engage, share and use their health data. We will point to diversity, trust and open standards like HL7 FHIR to open up access and capacities to manage data safely for patients, care-givers, and the health system.
The Maturing Telemedicine Infrastructure in Denmark: Building the Human Capital, Morten Bruun-Rasmussen, CEO MEDIQ
Health Professional Education in Biomedical & Health Informatics: the EFMI AC2 approach, Professor John Mantas, University of Athens, Greece, EFMI Past President
Digital health literacy: a necessity for Activating Citizens, Professor Anne Moen, University of Oslo, Norway, VP for IMIA, European Federation for Medical Informatics
“Internet of People”: Elements of Trust and Risk, Eva Turk, DNVGL.
Workforce meets volumes of electronic information: Why and how HL7 FHIR creates value for stakeholders in learning health systems. Doug Fridsma, President and CEO, American Medical Informatics Association, US
The document discusses health information exchange and HL7 standards. It provides an overview of the importance of health information exchange and standards. It then describes HL7, including what HL7 is, its mission to enable interoperability and sharing of health data, the versions and products of HL7 standards, and examples of HL7 standard adoption.
Bioinformatics and sequencing tools used in research and development - OECD B...OECD Environment
24 June 2019: This OECD seminar presented and discussed the potential use of genome sequence, bioinformatic tools and databases in a regulatory decision process for microbial pesticides.
First eStandards conference Panel of the European SDO Platformchronaki
Introduction to panel where Standards Developing Organization and National Competence Centers discuss the scope of the European SDO platform reflecting on earlier presentations.
Why ICT Fails in Healthcare: Software Maintenance and MaintainabilityKoray Atalag
This presentation was for a SERG seminar at the University of Auckland Department of Computer Science. I present why software maintenance is a barrier for adoption of IT in healthcare and the maintainability aspects based on ISO/IEC 9126 software quality standard quality model. I then present the preliminary results of my research here.
The document provides an update on the Trillium Bridge Project, which aims to study the feasibility of exchanging patient summaries across the Atlantic by comparing and mapping patient summaries from the EU and US. It discusses the project objectives, use cases, technical architecture, achievements so far including a gap analysis, and future work such as providing interoperability assets and informing standardization efforts. The project aims to help lower costs of transatlantic healthcare engagement and accelerate global standards convergence for patient summaries.
The health crisis due to COVID-19 is shaping a new reality in which the exchange and access to health data in a secure way will be more and more necessary. In this complex challenge converge both the respect for the individual rights as well as the interests of the patients and the need to promote the research in pursuit of the public interest. To face this challenge, we can find different approaches across Europe. In this webinar, we will present the experiences of three EU-funded projects (BigMedilytics, BodyPass, and DeepHealth), besides an overview of the legal framework and recommendations to enforce both national regulations and GDPR by an expert in data privacy and security.
The MARC-HI EHR Project aims to build a reference implementation of Canada's national Electronic Health Record (EHR) system using open source tools. The project brings together academic researchers and industry partners to develop interoperable EHR systems based on standards. Initial demonstrations showed the ability to share patient discharge summaries and referrals between different healthcare providers. Ongoing work includes integrating laboratory data and evaluating system performance. Challenges include integrating legacy systems and developing tools to simplify working with complex EHR specifications and messages.
This document discusses digital health policies for children's immunization in Greece. It provides an overview of Greece's national immunization program, including that most children are vaccinated by private pediatricians through free vaccines provided via e-prescription. Vaccination records are primarily kept by parents, though some healthcare workers keep records in their offices. Vaccination coverage is generally satisfactory according to national studies, though some vaccines like MMR II and rotavirus have lower coverage. An immunization registry has not yet been implemented in Greece due to lack of legislation and challenges connecting existing electronic healthcare data.
Digital Enlightment Forum: Towards a European ecosystem for health care data
Presentation of eStandards/Trillium II at the workshop of the Digital Enlightment Forum
The document discusses uploading personal health device data to a FHIR server. It describes:
1) Mapping device data models like 11073 to FHIR resources like Observation, DeviceComponent, and Patient to represent the information in a standardized way.
2) Methods for the personal health gateway to securely upload the device data using FHIR over HTTPS with OAuth authorization and ensuring no loss of information.
3) Considerations for managing patient identity and properly associating observations with the correct patient resource on the server.
This document provides an overview of interoperability challenges in healthcare and standards used to address those challenges, with a focus on HL7 standards and FHIR. It discusses the need for standardized data exchange to ensure clinical data is available where and when needed. It summarizes key HL7 standards like V2, CDA, C-CDA and introduces FHIR as the latest standard, combining features of previous standards. The document compares features of different standards and provides examples of FHIR resources and operations. It concludes with a demo of FHIR capabilities.
Multi-parameter Vital Signs Monitors - Interoperability and Communication Sta...everton.berz
This document discusses standards for interoperability and communication for multi-parameter vital signs monitors. It describes organizations like HL7 and IHE that establish standards, as well as integration profiles defined by IHE like DEC and POI. HL7 provides basic integration standards, while IHE defines technical frameworks and profiles to organize these standards and decrease ambiguity. Examples of commercial vital signs monitors that implement IHE PCD profiles are also given.
PanCareSurPass @SIOP Europe/CCI Europe Meeting 2021, Riccardo HauptKylieOBrien10
Research Manager Dr. Riccardo Haupt presented the PanCareSurPass project at the ‘PanCare and ELTEC – Late effects’ session of the SIOP Europe/CCI Europe Meeting 2021 on 28th April 2021.
PanCareSurPass has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 89999. The material presented and views expressed here are the responsibilities of the author(s) only. The EU Commission takes no responsibility for any use made of the information set out.
Introduction to Digital Health Standards with HL7 FHIRJanaka Peiris
This document provides an introduction and overview of digital health standards with a focus on FHIR (Fast Healthcare Interoperability Resources). It discusses why data exchange is needed in healthcare and defines interoperability. It then gives practical examples of FHIR implementation and its use in apps. The document also provides a brief history of other standards like HL7 v2, v3, CDA, IPS and compares them to FHIR. It defines medical terminologies like SNOMED, LOINC and ICD and how they work together with standards.
HIS purchase projects in public hospitals of StyriaMiroslav Mađarić
This document summarizes the project to select and purchase a new hospital information system (HIS) for the KAGes public hospitals in Styria, Austria. It describes the multi-step evaluation process including requesting vendor information, product presentations, establishing test sites to evaluate the systems, visiting reference sites, and selecting finalists. Four vendors were selected for the final evaluation phase. Over 60 teams with 400 users and IT experts assessed the products over multiple sessions. Based on their recommendations, two vendors were selected for negotiations, and EDVg was ultimately chosen to implement their IS-H/IS-H*MED product in a new project called MEDOCS, with pilot installations beginning in 2000.
Connected health data meets the people: Diversity, Standards, and Trustchronaki
Using health data in a connected world requires new competencies, a personal digital health compass calibrated to individual personalities and needs. Patients and clinicians able to collect and manage data, data-operational informatics professionals able to analyze data, and cutting-edge researchers, innovators, and educators able to apply knowledge, will take learning health systems to the next level.
In this EFMI-HL7 event using innovative technology and surprises to engage the audience, we will discuss strategies for empowering and activating people to engage, share and use their health data. We will point to diversity, trust and open standards like HL7 FHIR to open up access and capacities to manage data safely for patients, care-givers, and the health system.
The Maturing Telemedicine Infrastructure in Denmark: Building the Human Capital, Morten Bruun-Rasmussen, CEO MEDIQ
Health Professional Education in Biomedical & Health Informatics: the EFMI AC2 approach, Professor John Mantas, University of Athens, Greece, EFMI Past President
Digital health literacy: a necessity for Activating Citizens, Professor Anne Moen, University of Oslo, Norway, VP for IMIA, European Federation for Medical Informatics
“Internet of People”: Elements of Trust and Risk, Eva Turk, DNVGL.
Workforce meets volumes of electronic information: Why and how HL7 FHIR creates value for stakeholders in learning health systems. Doug Fridsma, President and CEO, American Medical Informatics Association, US
The document discusses health information exchange and HL7 standards. It provides an overview of the importance of health information exchange and standards. It then describes HL7, including what HL7 is, its mission to enable interoperability and sharing of health data, the versions and products of HL7 standards, and examples of HL7 standard adoption.
Bioinformatics and sequencing tools used in research and development - OECD B...OECD Environment
24 June 2019: This OECD seminar presented and discussed the potential use of genome sequence, bioinformatic tools and databases in a regulatory decision process for microbial pesticides.
First eStandards conference Panel of the European SDO Platformchronaki
Introduction to panel where Standards Developing Organization and National Competence Centers discuss the scope of the European SDO platform reflecting on earlier presentations.
Why ICT Fails in Healthcare: Software Maintenance and MaintainabilityKoray Atalag
This presentation was for a SERG seminar at the University of Auckland Department of Computer Science. I present why software maintenance is a barrier for adoption of IT in healthcare and the maintainability aspects based on ISO/IEC 9126 software quality standard quality model. I then present the preliminary results of my research here.
The document provides an update on the Trillium Bridge Project, which aims to study the feasibility of exchanging patient summaries across the Atlantic by comparing and mapping patient summaries from the EU and US. It discusses the project objectives, use cases, technical architecture, achievements so far including a gap analysis, and future work such as providing interoperability assets and informing standardization efforts. The project aims to help lower costs of transatlantic healthcare engagement and accelerate global standards convergence for patient summaries.
The health crisis due to COVID-19 is shaping a new reality in which the exchange and access to health data in a secure way will be more and more necessary. In this complex challenge converge both the respect for the individual rights as well as the interests of the patients and the need to promote the research in pursuit of the public interest. To face this challenge, we can find different approaches across Europe. In this webinar, we will present the experiences of three EU-funded projects (BigMedilytics, BodyPass, and DeepHealth), besides an overview of the legal framework and recommendations to enforce both national regulations and GDPR by an expert in data privacy and security.
The MARC-HI EHR Project aims to build a reference implementation of Canada's national Electronic Health Record (EHR) system using open source tools. The project brings together academic researchers and industry partners to develop interoperable EHR systems based on standards. Initial demonstrations showed the ability to share patient discharge summaries and referrals between different healthcare providers. Ongoing work includes integrating laboratory data and evaluating system performance. Challenges include integrating legacy systems and developing tools to simplify working with complex EHR specifications and messages.
Similar to International Patient Summary Workshop (20)
This document discusses digital health policies for children's immunization in Greece. It provides an overview of Greece's national immunization program, including that most children are vaccinated by private pediatricians through free vaccines provided via e-prescription. Vaccination records are primarily kept by parents, though some healthcare workers keep records in their offices. Vaccination coverage is generally satisfactory according to national studies, though some vaccines like MMR II and rotavirus have lower coverage. An immunization registry has not yet been implemented in Greece due to lack of legislation and challenges connecting existing electronic healthcare data.
The document discusses health data and patient summaries for children with complex care needs. It notes that these children have multidimensional health and social care needs due to medical conditions. The document then provides statistics on children who require long-term ventilation, have intractable epilepsy, or have traumatic brain injuries and their caregivers' ability to identify all of their healthcare providers. It also shows consultation rates for care plans for adolescents with traumatic brain injuries. The document outlines key data issues and discusses autonomy issues in child primary care, including a child's ability to access their health record or restrict parental access. It also examines consent issues for HPV vaccination between parents and children in different countries. Finally, it discusses concepts of vulnerability and capacity to engage from
The document discusses findings from a stakeholder meeting on issues with access, education, data quality, and communication. It presented findings to stakeholders and identified additional factors. The findings will be reviewed in the context of relevant literature.
This document discusses the development of an International Patient Summary (IPS) specification to enable sharing of patient health information across borders for unscheduled care. It outlines the vision, scope, and principles for the IPS, which aims to provide a standardized yet minimal collection of clinically relevant information. The document also describes collaboration between the HL7 and CEN standards organizations to produce four IPS specifications, and plans to refine and extend the IPS to support additional use cases beyond emergency care.
The document summarizes the objectives and activities of the EU-Joint Action on Vaccination (EU-JAV) work package 5 (WP5), which aims to strengthen interaction between immunization information systems (IIS) in Europe. WP5 will assess IIS interoperability, test estimating measles-mumps-rubella vaccine coverage across Europe using IIS data, and evaluate vaccine reminder systems. The goals are to increase vaccine surveillance capabilities, coverage, and support research using combined European vaccine data. WP5 involves 20 EU countries and is led by Denmark and Croatia over 3 years with a €5.8 million budget.
This document proposes a Council Recommendation on strengthened cooperation against vaccine-preventable diseases. It notes that vaccination programs are the responsibility of Member States but could benefit from more coordinated EU action given the cross-border nature of diseases. It recommends actions like improving public dialogue on vaccines, ensuring adequate training for healthcare workers, reducing barriers to vaccination when moving between countries, and strengthening vaccine supply and research. The recommendation is based on existing EU policies and calls to address vaccine-preventable diseases jointly.
The document discusses the benefits of exercise for mental health. Regular physical activity can help reduce anxiety and depression and improve mood and cognitive function. Exercise causes chemical changes in the brain that may help protect against mental illness and improve symptoms.
The document summarizes responses to a survey about vaccination priorities and challenges in the EU. 13 individuals responded to questions about ranking vaccination priorities for children and considering adults, with the highest rankings going to European vaccination guidelines and information websites. 12 respondents also ranked implementation feasibility of the priorities, again ranking guidelines and information websites as most feasible. 6 respondents identified the biggest cross-border health threat as lack of standardized procedures, data collection and vaccination schedules within and between countries.
The document discusses how GS1 standards will require barcodes on vaccines to uniquely identify individual packages under the EU Falsified Medicines Directive. Barcodes will need to be added to vaccines by February 9th, 2019, and scanning the barcodes will allow verification of the correct vaccine, batch traceability, expiration checks, and authentication of the vaccine to improve patient safety.
The European Academy of Paediatrics Research in Ambulatory Settings network (EAPRASnet) was launched in 2008 to conduct research using primary care data from European countries. The network involves primary care pediatricians who collect patient data through surveys and electronic health records. EAPRASnet aims to study topics like quality of care, child health inequalities, vaccination attitudes and antibiotic use across Europe. It has published several studies on issues like managing urinary tract infections, pneumonia treatment preferences, and use of electronic health records. Current projects examine health issues for migrant children and oral health practices among European pediatricians.
The European Academy of Paediatrics (EAP) is the official political voice for children and paediatricians throughout Europe. As the paediatric section of the UEMS European Union Medical Specialists, the EAP represents over 32 European countries and advocates for children's rights and quality paediatric care. The EAP works to improve paediatric education, training, research, and care across Europe through various councils and committees focused on primary, secondary, and tertiary care as well as rare diseases, vaccination, and other issues.
The European Academy of Paediatrics (EAP) is the pediatric section of the UEMS that represents pediatric societies and organizations from over 40 European countries. EAP promotes the health and well-being of children by improving pediatric standards, developing best practices, and harmonizing pediatric training programs across Europe. Some of EAP's focus areas include vaccination, migrant health, antimicrobial resistance, chronic diseases, and training for young pediatricians.
This document summarizes a workshop on patient summaries in pediatric emergencies. The workshop aims to identify challenges and recommendations for digital health policies related to standards. Several speakers will present on topics including disparities in national policies on emergency clinical information availability for school children based on a MOCHA project survey. The Trillium-II project extending patient summaries beyond cross-border settings will also be discussed. Case studies on complex pediatric patients and mobile apps to assist families during emergencies will likewise be presented. The expected outcome is a workshop report to guide follow-up child health activities.
The document discusses patient summaries in emergency departments and their potential to improve care. It describes how patient summaries can provide key medical information to clinicians in emergency situations. However, effective use of patient summaries faces challenges around standards, access to data across organizations, and clinician trust in external medical records. Overcoming these challenges could help unlock the power of health data to support clinical decision making in emergency care.
This document discusses patient summaries in emergency departments. It describes the high cognitive demands placed on emergency department staff and high diagnostic error rates. International and European guidelines for patient summaries are outlined, defining them as a minimum set of clinical data for healthcare coordination. The document argues that patient summaries could help navigate health systems and unlock health data, but challenges include data sharing between different health record systems and ensuring privacy and trust.
The document discusses the Trillium Bridge II project, which aims to reinforce and scale up EU-US cooperation on patient summaries. It will do this by (1) developing and testing interoperability assets for patient summary components, (2) extending the scope of patient summaries beyond emergency care to include new use cases, and (3) creating an EU-US interoperability roadmap and governance for international patient summary standards. The project brings together stakeholders from standards development organizations, health systems, and industry to support global digital health innovation through cooperation on patient summaries.
HL7 FHIR (Fast Healthcare Interoperability Resources) is a standard that defines data formats and elements to promote interoperability of electronic health records. It uses a RESTful API and modular components called resources that can be combined into profiles to solve clinical problems. FHIR addresses issues like making standards simpler, faster to design and implement, interoperable, and driven by reusable components. Patient summaries are highlighted as a key use case that could leverage FHIR to unlock health data and facilitate clinical decision making. The presentation argues that while FHIR is part of the solution, fully realizing its benefits will require broader adoption and collaboration across the health ecosystem.
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Cell Therapy Expansion and Challenges in Autoimmune DiseaseHealth Advances
There is increasing confidence that cell therapies will soon play a role in the treatment of autoimmune disorders, but the extent of this impact remains to be seen. Early readouts on autologous CAR-Ts in lupus are encouraging, but manufacturing and cost limitations are likely to restrict access to highly refractory patients. Allogeneic CAR-Ts have the potential to broaden access to earlier lines of treatment due to their inherent cost benefits, however they will need to demonstrate comparable or improved efficacy to established modalities.
In addition to infrastructure and capacity constraints, CAR-Ts face a very different risk-benefit dynamic in autoimmune compared to oncology, highlighting the need for tolerable therapies with low adverse event risk. CAR-NK and Treg-based therapies are also being developed in certain autoimmune disorders and may demonstrate favorable safety profiles. Several novel non-cell therapies such as bispecific antibodies, nanobodies, and RNAi drugs, may also offer future alternative competitive solutions with variable value propositions.
Widespread adoption of cell therapies will not only require strong efficacy and safety data, but also adapted pricing and access strategies. At oncology-based price points, CAR-Ts are unlikely to achieve broad market access in autoimmune disorders, with eligible patient populations that are potentially orders of magnitude greater than the number of currently addressable cancer patients. Developers have made strides towards reducing cell therapy COGS while improving manufacturing efficiency, but payors will inevitably restrict access until more sustainable pricing is achieved.
Despite these headwinds, industry leaders and investors remain confident that cell therapies are poised to address significant unmet need in patients suffering from autoimmune disorders. However, the extent of this impact on the treatment landscape remains to be seen, as the industry rapidly approaches an inflection point.
TEST BANK For Community Health Nursing A Canadian Perspective, 5th Edition by...Donc Test
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These lecture slides, by Dr Sidra Arshad, offer a simplified look into the mechanisms involved in the regulation of respiration:
Learning objectives:
1. Describe the organisation of respiratory center
2. Describe the nervous control of inspiration and respiratory rhythm
3. Describe the functions of the dorsal and respiratory groups of neurons
4. Describe the influences of the Pneumotaxic and Apneustic centers
5. Explain the role of Hering-Breur inflation reflex in regulation of inspiration
6. Explain the role of central chemoreceptors in regulation of respiration
7. Explain the role of peripheral chemoreceptors in regulation of respiration
8. Explain the regulation of respiration during exercise
9. Integrate the respiratory regulatory mechanisms
10. Describe the Cheyne-Stokes breathing
Study Resources:
1. Chapter 42, Guyton and Hall Textbook of Medical Physiology, 14th edition
2. Chapter 36, Ganong’s Review of Medical Physiology, 26th edition
3. Chapter 13, Human Physiology by Lauralee Sherwood, 9th edition
TEST BANK For Community and Public Health Nursing: Evidence for Practice, 3rd...Donc Test
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share - Lions, tigers, AI and health misinformation, oh my!.pptxTina Purnat
• Pitfalls and pivots needed to use AI effectively in public health
• Evidence-based strategies to address health misinformation effectively
• Building trust with communities online and offline
• Equipping health professionals to address questions, concerns and health misinformation
• Assessing risk and mitigating harm from adverse health narratives in communities, health workforce and health system
One health condition that is becoming more common day by day is diabetes.
According to research conducted by the National Family Health Survey of India, diabetic cases show a projection which might increase to 10.4% by 2030.
Muktapishti is a traditional Ayurvedic preparation made from Shoditha Mukta (Purified Pearl), is believed to help regulate thyroid function and reduce symptoms of hyperthyroidism due to its cooling and balancing properties. Clinical evidence on its efficacy remains limited, necessitating further research to validate its therapeutic benefits.
Ear and its clinical correlations By Dr. Rabia Inam Gandapore.pptx
International Patient Summary Workshop
1. International Patient Summary Worshop
HL7 Asia Meeting
Catherine Chronaki
Secretary General, HL7 Foundation
euoffice@HL7.org
Funded under
H2020-72745
2. 2
Mission: build the best most widely used HIT standards
History:
Since 1987 HL7 grows exponentially - demand outstrips capacity, HL7 v3, HL7
CDA, 40+ WGs, 50+ standards products in use; HL7 is supported by over 35
national/regional Affiliates and members in over 55 countries
1997: first national affiliate on board/ IHIC conference
2004: HL7 CDA is adopted
2009: HL7 International, USA on the International Council
2010: HL7 International Foundation in Europe established
2012: 25 years youth celebration with FHIR, HL7 Asia
2013: HL7 makes standards available under free license
HL7 Leads HIT Standards development since 1987
1987 1997 2004 2009 2010 2012 2013
3. 3
HL7 CDA in Finland
CDA R1 was used in regional information systems for information sharing
CDA R2 was selected for national eHealth infrastructure (~2005)
Kanta services: National EPR archive, ePrescription centre, national code server, etc.
Transport using HL7 v3 Medical Records Messages (in future: also IHE infrastructure)
CDA R2 localized implementation guides in Finland for:
ePrescription (prescriptions, dispensations)
EPR
core dataset = patient summary, providers, diagnoses and concerns, procedures, examinations,
results, service events, aids, blood group, functional status, medical certificates, queuing, follow-ups,
goals, risks, nursing core dataset including summaries
lab, medication, imaging reference and report, referral and discharge, scanned documents, dental
records
Use of CDA in national ePrescription IGs made it easier to study, understand and comply
with the international ePrescription specifications
According to epSOS experience from the National Insurance Institute (Kela)
4. HL7 CDA legacy in ELGA:
patient summaries in Austria
Information Curtesy of Dr
Stefan Sabutsch, Chair HL7
Austria
5. 5
HL7 CDA in ELGA
The ELGA GmbH is responsible for defining nation-wide HL7 CDA
Implementation Guides in Austria.
The process of creating HL7 CDA Implementation Guides was intense:
3 years of harmonization work in working groups
Inclusive process including Austrian stakeholders
Resulted in nation-wide harmonized and detailed technical
specifications and Implementation Guides
Discharge Summary (Physician)
Discharge Summary (Nurse)
Laboratory report
Radiology report
All documents are available
from http://www.elga.gv.at/index.php?id=28
(German language only).
6. 6
Global IHE Implementation Guides in
the Austrian context
Use of International standards is a fundamental
requirement for ELGA
IHE profiles are adapted to Austrian demands
Why was it impossible to adopt as is the IHE
specifications?
Austrian constraints demanded changing parts of templates
working group experts considered better alternatives.
What type of changes?
stricter or relaxed options of CDA Level 3 entries based on
value-sets for code-lists
New content template that matched perfectly
the Austrian needs.
7. 7
ELGA discharge summaries
Physician and Nursing discharge summary parts
separate CDA documents and Implementation Guides (IGs)
relevant information is responsibity of Physician or Nurse
both accessible in ELGA by both parties.
Austrian Health Record (ELGA) includes documents that follow
the ELGA Implementation Guides.
Organizations must upgrade the information systems to
conform to ELGA IGs to connect to ELGA
Three ELGA Interoperability Levels (EIS)
to enable quick & easy connection of providers, min data quality
The ELGA legislation act mention that in the future the Austrian
MoH will enforce interoperability levels through ordinances.
8. 8
ELGA Interoperability levels (EIS)
EIS “Basic” / “Structured” minimum requirement
coded information for document registry, access control system.
medical content may be unstructured data, e.g. embedded PDF object.
CDA documents conform to the Common Implementation Guide (IG) and
CDA Header-constraints in Specialized IGs
EIS “STRUCTURED” indicates that the human readable content of
an embedded PDF meets the requirements of Specialized IGs
EIS “Enhanced” further to EIS “Basic/Stractured”
documents have to additionally follow the CDA Body constraints of
Specialized IG
Unstructured content is not allowed in this level.
CDA Body is generally structured in CDA 2 sections, may contain CDA L3
elements
EIS “Full support” further to EIS “Enhanced”
CDA documents conform to CDA Body constraints of Specialized IGs
Additional CDA Level 3 entries are required in most of the sections.
9. 9
Patient summaries in ELGA
ELGA to serve as platform for Patient summary
Patient Summary could be automatically created out of
existing documents in ELGA
discharge summary
lab+radiology report
Requirements for ELGA patient summaries
all ELGA documents in EIS “full support”
more documents types to a complete patient summary.
If these basic prerequisites are not fulfilled, an
automatically generated patient summary remains wishful
thinking…
10. HL7 CDA in Germany
Slides Curtesy of: Kai Heitmann
Past Chair HL7 Germany
11. Sciphox (sky-fox) Project (DE)
• Introduction of CDA in the year 2000+ in
Germany, as a cooperation between general
practitioners and hospitals
• Lead later in 2005 to the first CDA R2
Discharge Letter definition
– With ~ 15 vendors involved
– Large show case, implementations
• Was input to similar definitions in Austria
(national infrastructure ELGA) and Switzerland
around 2008-2010
12. German Discharge Letter
Genesis, influence, cooperation
Courtesy of Alexander
Mense, Stefan Sabutsch,
Bernd Blobel, modified
2005 2014
13. ART-DECOR Tool
• DECOR
– Data Elements, Codes, OIDs and Rules
• ART
– Advanced Requirement Tooling
Internet: art-decor.org
15. Patient Summaries in Japan
• HL7 CDA has been adopted in Japan
• HL7 Japan work on summary standard using CDA.
• no paper base summary standard in Japan.
• Many researchers have tried to develop the
standard but they are not yet success.
• Current approach is that the standard is using
narrative part and automatically generated
contents.
18. CEF eHealth DSI (eHDSI)
eHealth DSI
Deploying Countries
PS eP
Austria
Croatia
Cyprus
Czech Republic
Estonia
Finland
France
Germany
Greece
Hungary
Ireland
Italy
Luxembourg
Malta
Portugal
Sweden
Switzerland
What is the eHealth DSI?
• Services and Infrastructure using ICTs that
enable cross border Healthcare services. Tools
and services using ICTs that can improve cross
border Healthcare services.
• Tools and services using HL7 and other
standards that can improve interoperability
cross border Healthcare services.
• Use Cases:
• Patient Summary, provides access to health
professional to verified key health data of a patient
during an unplanned care encounter while abroad
• ePrescription, enables patients to receive
equivalent medication treatment while abroad to
what they would receive in their home country
19. eHDSI
Communities
OPERATIONS
Audit Framework TF
Test Framework TF
SEMANTIC
Coordination WG
Organisation WG
Architecture WG
Semantics WG
TECHNICAL
STEERING
COMMITTEE
TECHNICAL
COMMITTEE
SMP/SML TF
Non-Repudiation
DEVELOPERS
eHDSI Operation Communities
Legend:
TF: Task Force
WG: Work Group
21. The IPS Project: the HL7 Int. CEN/TC
251 agreement (April, 2017)
August 18, 2017HL7 Asia 2017
HL7 Int. CEN/TC 251 agreement (April, 2017)
Implementabl
e
Applicable for
global use
Extensible and
open
Sustainable
Vision
•“In order to further the care for citizens across the globe,
we agree to collaborate on a single, common
International Patient Summary (IPS) specification that
is readily usable by all clinicians for the (cross-border)
unscheduled care of a patient.”
Scope
•“The IPS specification shall focus on a minimal and non-
exhaustive Patient Summary, which is specialty-agnostic
and condition-independent, but still clinically relevant.”
IPSPrinciples
22. August 18, 2017HL7 Asia 2017
class Products Initiatives_fund
EUPS
Guidelines
eHDSI PS IGIPS CDA IG
EN European PSOrganization::
CEN/TC 251
Organization::
HL7
Internatonal
Organization::EC
Project::CEN IPS Project::eHDSI
Project::JAseHN
Issue: Potential Gap.
Undefined process
Issue: Potential Gap.
Undefined process
isResponsibleFor
provideInputs
Funds
isResponsibleFor
«trace»
Funds
isResponsibleFor
refine
useAsInput
implement
isProgressivelyHarmonizedWith
Funds
contributeTo
«trace»
Source: Giorgio Cangioli
23. Compliance / Traceability
August 18, 2017HL7 Asia 2017
Requirements Design Implementation
CEN prEN
Conformance
Products
ART DECOR®; Forge; ..
HL7 CDA IG
HL7 FHIR IG
EU PS Guidelines
The Patient Summary for
Unscheduled, Cross-
border Care
IPS: Guidance for European
Implementation Technical Specification
CEN prTS
25. US Meaningful Use: Consolidated-CDA/CCD
170.205(a)3 Consolidated CDA (C-CDA): Standardized
representation of the Consult Note,
Diagnostic Imaging Report, Discharge
Summary, History and Physical,
Operative Note, Procedure Note,
Progress Note, and Continuity of Care
Document (CCD).
170.205(h) CDA Guide for Quality Reporting
Document Architecture, Category I
170.205(i) CDA Guide for Reporting to Central
Cancer Registries
170.205(k) CDA Guide for Quality Reporting
Document Architecture, Category III
(QRDA-III)
§ 170.205 Content exchange standards and
implementation specifications for exchanging
electronic health information.
27. Kaiser Permanente overview
August 24, 2017 Hangzhou,
China
Building a global community for digital
health innovation: the role of patient
summaries
27
28. 28
Patient summaries: our navigator in the
health and social care ecosystem
Think of the Patient summary as a window to a person’s health or personal
dashboard:
Medications, allergies, vaccinations
problems and procedures, labs, diagnostic imaging
recent or planned Encounters, implantable devices
advance directives
“Bring the Power of Platforms to Health Care” using data to drive:
[Bush & Fox, HBR November 2016]
administrative automation
networked knowledge
resource orchestration
Think of appointments, technology, and productivity
virtual and f2f just-in-time appointments
HL7 Asia 2017
eStandards need to
• help build trust
• unlock the power of health data
• facilitate decision support
• navigate the health system
August 18, 2017
29. Achievements of Trillium Bridge 2013-2015
• Gap Analysis
- Compared patient summary specifications in EU/US
- Shared clinical elements: problems, medications,
allergies
• Interoperability Assets
- Established a terminology prototype CTS-2 service:
http://extension.phast.fr/STS_UI
- Developed Patient summaries Transformer:
http://informatics.mayo.edu/trillium-bridge
- Identified Gaps in EU/US IHE profiles Patient Identity & Document
Query/Retrieve
• Validation activities: 4 EU countries/ Kaiser Permanente
- EU/US Marketplace; HIMSS 2015; IHE Connectathon 2015, eHealthWeek14,15
• Feasibility study:
- Reflected upon standards, cross-vendor integration, incentives,
clinical research, security and privacy, innovative business models,
education
Recommendation:
“Advance an International Patient Summary (IPS) standard to
enable people to access and share their health information for
emergency or unplanned care anywhere and as needed. At
minimum the IPS should include immunizations, allergies,
medications, clinical problems, past operations and implants.”
30. 30
IPS is out for ballot!
August 18, 2017HL7 Asia 2017