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2018 AzLA Annual Conference
Oct. 26, 2018
Dementia Friendly Libraries
Presented by:
Jan Dougherty, Special Projects Consultant, Banner Alzheimer’s Institute
Mary Beth Riedner, Membership Chair, Alzheimer’s & Related
Dementias Interest Group (IGARD), American Library Association
Session Objectives
• Describe the impact of dementia and the role of libraries in
supporting affected individuals and family members.
• Provide an overview of existing library programs and services for
persons living with dementia, with a special emphasis on the Tales
and Travels program.
• Identify necessary steps and community partnerships that are vital to
creating Dementia Friendly Libraries
• Seek out Dementia Friends education for library staff.
Impact of Alzheimer’s disease/Dementia
• 5.4 million Americans are currently affected
• About 10% of people 65+ and nearly 50% of those 85+ are affected
• Age is the greatest risk factor for developing Alzheimer’s
• ~50% will never receive a diagnosis
• By 2050, 16 million Americans may be affected
• Now a leading cause of death among older Americans
• 7/10 persons with dementia live at home with the help of
approximately 44 million family/friends
• Average lifetime cost per individual is $341,840
• Caregivers experience high levels of stress, grief, loss, and depression
www.alz.org
A Bit about Dementia
• Dementia is a syndrome/ (umbrella) term, not a diagnosis
• Like saying “cancer”
• Does not say what lies ahead or how to treat
• Always characterized by progressive loss of thinking and memory
• Results in inability to function on a daily basis
• Almost always results in changes in emotions and personality
• There are many causes of this syndrome
• Alzheimer’s is the most common cause
6
Hypothetical Course of Memory and Thinking Ability
in a Person Who Develops Alzheimer’s/Dementia
Normal Thinking
and
Memory
Dementia
8-10 years
Mild
Cognitive
Impairment
(MCI)*
Time (years)
Thinkingability
*pre-dementia
1 in 10 Seniors 65 & Over Has Dementia
Alzheimer’s Association Statistics - Arizona
Projected Increases 2018-2025
10
Steve Riedner
Resources for Professional Librarians
Guidelines for Library Services
to Persons with Dementia
International Federation of Library
Associations
Alzheimer’s & Related Dementias Interest Group
American Library Association
Dementia Friendly America (DFA)
Dementia Friendly America
Library Sector Guide
Educational Programs at Libraries
Special Collections for Caregivers
Provide Meeting Space for Caregiver
Support Groups
Advisory Board
Woodson Regional Library
First Dementia Friendly Library in Chicago
Let’s go one step further…
Mission Statements
The stigma
of
dementia
persists…
Person Centered Care
•The whole person
•Physical
•Social/Cultural
•Environmental
•Occupational
•Spiritual
•Emotional
•Intellectual
http://www.penpergwmhouse.org.uk/residential-care-home/our-promise-of-care
Non-pharmacological
Interventions
Music Therapy Art Therapy
Research Indicates that
People with Dementia Can Still Read
What are libraries already doing to directly serve
persons living with dementia?
•Some case studies
•Tales and Travel
•Stories for Life
•Technology
•Circulating kits
•Memory cafes
Tales & Travel Memories Program
Gail Borden Public Library District – Elgin, IL
Tales & Travel in Action
Read aloud story
Folktales, myths, legends, historical/biographical stories
FIVE FACTS ABOUT MEXICO
1. El Popocatépetl volcano has erupted 14 times in the last 500
years. Its name means “smoking mountain” in the Aztec language,
Nahuatl.
2. Mexico is the world’s largest producer of silver. In 2000, Mexico
produced over 5 million pounds of silver!
3. Descendants of the Aztec people still live in Mexico today, and
continue to speak Nahuatl.
4. The Azteca soccer stadium is the largest in the world. It seats
over 100,000 fans.
5. Mexico is home to many beautiful and exotic animals, including
monarch butterflies, jaguars, iguanas, and hummingbirds.
Adult Collection
Example of
Middle/Primary
books read
during a program
Supplementary
Materials
• Souvenirs /Artifacts
• Food
• Coloring pages
• Music CDs
Library Staff and Volunteers
Interact with Participants
NNLM Target Grant
Overall Success Rate
Tales & Travel Memories
selected by the Library of Congress as
a 2017 Best Practice Honoree
Tales and Travel
http://talesandtravelmemories.com/
Springfield-Greene County Library
Springfield, MO
We Reminisce & Learn About a Range of Topics
ChocolateGardening/Flowers
Favorites & Most Requested Topics Revolve
Around Local History
Rural MedicineFrisco Railroad
Memory Care and Technology Program
Worthington Libraries - Worthington, OH
● Goal of the program is to expose
residents to new technology and
stimulate their minds and memory
by playing games on library iPads.
● Unique program is a great way to
interact with this wonderful segment
of our community so deserving of fun
and engagement while they live with
memory loss and Alzheimer’s.
● For more information go to
http://www.ala.org/pla/onlinelearni
ng/webinars/ondemand/memory.
• While some of the participants in
this adult day care program can still
read, many others prefer to listen to
the “Library Lady” read to them.
• They participate through nods and
smiles and enjoy hearing short
stories from the past that they can
identify with, which are often found
in magazines such as Good Old Days
and Reminiscing.
• Storytelling will soon be added to
the program which has become a
permanent part of the Hopkins
ElderPlus monthly programming.
ElderPlus Reading Program
Johns Hopkins Bayview Medical Center - Baltimore, MD
Reminiscence/Circulating Kits
• Libraries are beginning to create these kits
• Designed for individuals living at home or for activity directors to
borrow for programming at their organizations
• Can be tailored to the needs and interests of each community
• Can be put together rather inexpensively
Tales and Travel Circulating check out kits
• Ideal for Caregivers
to Check Out
• Extra
Supplemental
Materials
Stories for Life Kits
Springfield-Greene County Library - Springfield, MO
• Promote memory stimulation, inspire meaningful
conversation, and encourage continuing education
for individuals who have Alzheimer’s disease and
dementia
• For outreach programming to facilities & individual
check out
• Locally grant funded to create 25 thematic kits
• Many of the popular programs were translated into
a kit
• Animals, Rural Medicine, Grandma Moses,
Space Race, History of Springfield Baseball,
Cowboys and Outlaws
• Designed by following the principles of person-
centered care
• Content driven by theme & available resources
Library Memory Project
Bridges Library System - Waukesha, WI
Angela Meyers - ameyers@bridgeslibrarysystem.org
● Memory Cafes are social gatherings for
those who are experiencing early stage
dementia, mild memory loss or mild
cognitive impairment, and a family
member or care partner
● Cafes serve as places to have fun, find
support, and share experiences.
● Partnership between 8 public libraries in
the Milwaukee and Waukesha counties
of Wisconsin.
● Partner libraries take turns hosting
monthly Memory Cafes
● Find more information at
www.librarymemoryproject.org.
Dementia Friendly Tempe (DFT)
• One of 5 “early adopter” communities
• Initiated an Action Team that was led by the Mayor and included all sectors
within the city
• Created a website www.tempe.gov/dft
• Initiated assessment of city service managers using the DFA assessment
tool
• Held a community-wide DFT summit on March 19, 2016
• Saw an immediate demand for resources/services
• Cry for immediate help
• Launched a weekly Memory Café at the Tempe Public Library on
September 14, 2017
• Began a monthly lecture series called, “DFT Presents”
DFT Memory Café
• Weekly gathering of people living with
dementia (PLWD) and care partners that
provides time for socialization followed by
parallel programming
• Arts, movement & cognitive engagement for
PWD
• Education/support for care partners
• Coordinated by part-time BAI Outreach
Program Manager
• Organizes volunteers (3-4/week)
• Greeter/assistant during PWD engagement session
• Support group facilitator
• Engagement program facilitator
Why a Memory Café in the Library?
• Socially acceptable and accessible – no stigma!
• Libraries understand their customers
• Hub of the community
Memory Café Lessons
• Inform and educate staff
• Dementia Friendly Library (www.dfamerica.org/sector-guides)
• Dementia Friends (www.dementiafriendsusa.org)
• Consistency and connection
• Let PLWD and care partners be your guide
• Success is about partnerships
• Use your Public Information Officers to promote your program(s)
• Create a strong volunteer base
• Use programs already developed
Contact Information
• Jan Dougherty - Jan.Dougherty@bannerhealth.com
• Mary Beth Riedner – mbried@comcast.net

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Dementia friendly libraries az la presentation - revised 10-10-18

  • 1. 2018 AzLA Annual Conference Oct. 26, 2018 Dementia Friendly Libraries Presented by: Jan Dougherty, Special Projects Consultant, Banner Alzheimer’s Institute Mary Beth Riedner, Membership Chair, Alzheimer’s & Related Dementias Interest Group (IGARD), American Library Association
  • 2. Session Objectives • Describe the impact of dementia and the role of libraries in supporting affected individuals and family members. • Provide an overview of existing library programs and services for persons living with dementia, with a special emphasis on the Tales and Travels program. • Identify necessary steps and community partnerships that are vital to creating Dementia Friendly Libraries • Seek out Dementia Friends education for library staff.
  • 3. Impact of Alzheimer’s disease/Dementia • 5.4 million Americans are currently affected • About 10% of people 65+ and nearly 50% of those 85+ are affected • Age is the greatest risk factor for developing Alzheimer’s • ~50% will never receive a diagnosis • By 2050, 16 million Americans may be affected • Now a leading cause of death among older Americans • 7/10 persons with dementia live at home with the help of approximately 44 million family/friends • Average lifetime cost per individual is $341,840 • Caregivers experience high levels of stress, grief, loss, and depression www.alz.org
  • 4. A Bit about Dementia • Dementia is a syndrome/ (umbrella) term, not a diagnosis • Like saying “cancer” • Does not say what lies ahead or how to treat • Always characterized by progressive loss of thinking and memory • Results in inability to function on a daily basis • Almost always results in changes in emotions and personality • There are many causes of this syndrome • Alzheimer’s is the most common cause
  • 5.
  • 6. 6 Hypothetical Course of Memory and Thinking Ability in a Person Who Develops Alzheimer’s/Dementia Normal Thinking and Memory Dementia 8-10 years Mild Cognitive Impairment (MCI)* Time (years) Thinkingability *pre-dementia
  • 7.
  • 8. 1 in 10 Seniors 65 & Over Has Dementia
  • 12. Resources for Professional Librarians Guidelines for Library Services to Persons with Dementia International Federation of Library Associations Alzheimer’s & Related Dementias Interest Group American Library Association
  • 17. Provide Meeting Space for Caregiver Support Groups
  • 18. Advisory Board Woodson Regional Library First Dementia Friendly Library in Chicago
  • 19. Let’s go one step further… Mission Statements
  • 21. Person Centered Care •The whole person •Physical •Social/Cultural •Environmental •Occupational •Spiritual •Emotional •Intellectual http://www.penpergwmhouse.org.uk/residential-care-home/our-promise-of-care
  • 22.
  • 24. Research Indicates that People with Dementia Can Still Read
  • 25. What are libraries already doing to directly serve persons living with dementia? •Some case studies •Tales and Travel •Stories for Life •Technology •Circulating kits •Memory cafes
  • 26. Tales & Travel Memories Program Gail Borden Public Library District – Elgin, IL
  • 27. Tales & Travel in Action
  • 28. Read aloud story Folktales, myths, legends, historical/biographical stories
  • 29. FIVE FACTS ABOUT MEXICO 1. El Popocatépetl volcano has erupted 14 times in the last 500 years. Its name means “smoking mountain” in the Aztec language, Nahuatl. 2. Mexico is the world’s largest producer of silver. In 2000, Mexico produced over 5 million pounds of silver! 3. Descendants of the Aztec people still live in Mexico today, and continue to speak Nahuatl. 4. The Azteca soccer stadium is the largest in the world. It seats over 100,000 fans. 5. Mexico is home to many beautiful and exotic animals, including monarch butterflies, jaguars, iguanas, and hummingbirds.
  • 32. Supplementary Materials • Souvenirs /Artifacts • Food • Coloring pages • Music CDs
  • 33. Library Staff and Volunteers Interact with Participants
  • 35. Tales & Travel Memories selected by the Library of Congress as a 2017 Best Practice Honoree
  • 38. We Reminisce & Learn About a Range of Topics ChocolateGardening/Flowers
  • 39. Favorites & Most Requested Topics Revolve Around Local History Rural MedicineFrisco Railroad
  • 40. Memory Care and Technology Program Worthington Libraries - Worthington, OH ● Goal of the program is to expose residents to new technology and stimulate their minds and memory by playing games on library iPads. ● Unique program is a great way to interact with this wonderful segment of our community so deserving of fun and engagement while they live with memory loss and Alzheimer’s. ● For more information go to http://www.ala.org/pla/onlinelearni ng/webinars/ondemand/memory.
  • 41. • While some of the participants in this adult day care program can still read, many others prefer to listen to the “Library Lady” read to them. • They participate through nods and smiles and enjoy hearing short stories from the past that they can identify with, which are often found in magazines such as Good Old Days and Reminiscing. • Storytelling will soon be added to the program which has become a permanent part of the Hopkins ElderPlus monthly programming. ElderPlus Reading Program Johns Hopkins Bayview Medical Center - Baltimore, MD
  • 42. Reminiscence/Circulating Kits • Libraries are beginning to create these kits • Designed for individuals living at home or for activity directors to borrow for programming at their organizations • Can be tailored to the needs and interests of each community • Can be put together rather inexpensively
  • 43. Tales and Travel Circulating check out kits • Ideal for Caregivers to Check Out • Extra Supplemental Materials
  • 44. Stories for Life Kits Springfield-Greene County Library - Springfield, MO • Promote memory stimulation, inspire meaningful conversation, and encourage continuing education for individuals who have Alzheimer’s disease and dementia • For outreach programming to facilities & individual check out • Locally grant funded to create 25 thematic kits • Many of the popular programs were translated into a kit • Animals, Rural Medicine, Grandma Moses, Space Race, History of Springfield Baseball, Cowboys and Outlaws • Designed by following the principles of person- centered care • Content driven by theme & available resources
  • 45. Library Memory Project Bridges Library System - Waukesha, WI Angela Meyers - ameyers@bridgeslibrarysystem.org ● Memory Cafes are social gatherings for those who are experiencing early stage dementia, mild memory loss or mild cognitive impairment, and a family member or care partner ● Cafes serve as places to have fun, find support, and share experiences. ● Partnership between 8 public libraries in the Milwaukee and Waukesha counties of Wisconsin. ● Partner libraries take turns hosting monthly Memory Cafes ● Find more information at www.librarymemoryproject.org.
  • 46. Dementia Friendly Tempe (DFT) • One of 5 “early adopter” communities • Initiated an Action Team that was led by the Mayor and included all sectors within the city • Created a website www.tempe.gov/dft • Initiated assessment of city service managers using the DFA assessment tool • Held a community-wide DFT summit on March 19, 2016 • Saw an immediate demand for resources/services • Cry for immediate help • Launched a weekly Memory Café at the Tempe Public Library on September 14, 2017 • Began a monthly lecture series called, “DFT Presents”
  • 47. DFT Memory Café • Weekly gathering of people living with dementia (PLWD) and care partners that provides time for socialization followed by parallel programming • Arts, movement & cognitive engagement for PWD • Education/support for care partners • Coordinated by part-time BAI Outreach Program Manager • Organizes volunteers (3-4/week) • Greeter/assistant during PWD engagement session • Support group facilitator • Engagement program facilitator
  • 48. Why a Memory Café in the Library? • Socially acceptable and accessible – no stigma! • Libraries understand their customers • Hub of the community
  • 49. Memory Café Lessons • Inform and educate staff • Dementia Friendly Library (www.dfamerica.org/sector-guides) • Dementia Friends (www.dementiafriendsusa.org) • Consistency and connection • Let PLWD and care partners be your guide • Success is about partnerships • Use your Public Information Officers to promote your program(s) • Create a strong volunteer base • Use programs already developed
  • 50. Contact Information • Jan Dougherty - Jan.Dougherty@bannerhealth.com • Mary Beth Riedner – mbried@comcast.net