Conference Agenda

1. PFIC
Network
Family
Conference
2021
Tentative Agenda
Friday July 16
Welcome & Introduction
Introduction to PFIC Network &
Global Ambassador Team
Basics of Genetics
Presenting PFIC as a set of
genetic diseases of cholestasis
Discussion of Symptoms
Pruritus & Nutrition
For PFIC Patients
A presentation for children,
teens, and young adults.
Peer Support
Kids take over the lounge! Led
by PFIC PALS
Research Update
Clinical trial updates and what’s
new in the research
Scientific Discussions &
Research Roundtable
Ambassador Training
Western Europe, Africa, Asia,
South Pacific
Ambassador Training
North America, South America,
Eastern Europe
Considerations Today
COVID concerns for PFIC &
Transplant patients
Genetics of PFIC
A deepdive into the
individual mutations
Emotional Support
Emotional support for children,
siblings and families of PFIC
Patient Engagement
Parent & Patient Advisory
Board Panel
Peer Support
Patient/Caregiver
lounge takeover!
Presenter Panel
Open Q&A with all presenters
and Medical Advisory Board
members
Saturday July 17