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BrainSTEPS:
Assists students, schools & families in
         Pennsylvania following
         acquired brain injury
Brenda Eagan Brown, M.S.Ed., CBIS
BrainSTEPS Program Coordinator
Email: eaganbrown@biapa.org
Phone: 724-944-6542
Website: www.brainsteps.net
How Common is TBI in Children in
Pennsylvania?


        Each year, approximately
                  26,000
    children in Pennsylvania sustain a
           traumatic brain injury
           (mild, moderate, or severe)

           Source: The Brain Injury Association of Pennsylvania, 2008
In 2006
                  4,000
children & adolescents in
    Pennsylvania were
    HOSPITALIZED with
            TBI
 Source: The Pennsylvania Department of Health, 2006
   DOES NOT INCLUDE EMERGENCY ROOM VISITS.
Pennsylvania Students Receiving
Special Education Services as TBI:


                705
            2010-11 school year
The return to school can be devastating
if the health care facility (hospital or
rehabilitation center) and the child's
home school do not interact as soon as
possible and as frequently as possible
                                               Carter and Savage, 1988;
                                                     Ylvisaker et al., 1991;
                                                             Begali, 1992;
                                                          Mira et al.,1992;
                                                                Lash, 1992
                                             Retrieved Jan. 21, 2013 from
         http://www.tbi.org/library/html/children_and_adolescents.html
The BrainSTEPS Program
Funded by:
   PA Department of Health
   PA Department of Education

Implemented by:
  Brain Injury Association of Pennsylvania since 2007
The BrainSTEPS Program


Brain injury consulting teams available to families and
schools throughout Pennsylvania.

Teams consult with & train local school staff to
develop educational programs specific to individual
student needs.
BrainSTEPS Assists Students with
All Acquired Brain Injuries

   Traumatic Brain Injury
   (includes Concussions)

   Non-Traumatic Brain Injury

 * Any child who has a brain injury that occurs AFTER the birth process can
                          be referred to BrainSTEPS
BrainSTEPS Teams

 30 BrainSTEPS teams cover PA
 27 are based out of the educational
 Intermediate Units & 3 larger districts
 320 active, trained BrainSTEPS team members
  Educational professionals
  Medical professionals
  Rehabilitation professionals
  Staff from community facilities
  Staff from government agencies
  University faculty
  Family members
Special
                              Ed.
                          Supervisor
               TAC                              504
            Consultant                      Coordinator



   Social                                                    OT
   Worker                                                 Therapist


                         BrainSTEPS
Guidance                   Teams                                PT
Counselor                                                    Therapist


                                                      School
      Family                                          Psych/
                                                      Neuro-
      Member
                                                          psych.

                    Speech             School
                   Therapist           Nurse
BrainSTEPS
PA Hospital & Rehab Team Members
Children’s Hospital of Philadelphia The Children’s Institute of
                                    Pittsburgh
Lehigh Valley Hospital              Acadia Rehabilitation, Inc.
St. Christopher’s Hospital for      Nemours/A.I. duPont Hospital
Children                            for Children
Hershey Medical Center              Mainline Rehabilitation
ReMED                               Magee Rehab Hospital
Geisinger Medical Center            Schuylkill Rehabilitation
Good Shepherd Rehabilitation        Reading Hospital

St. Vincent’s Medical Center        The Barber Institute
Beechwood Rehabilitation
Services
BrainSTEPS Team Leaders


  1-2 Team Leaders per team
  Organize monthly team meetings
  Ensure student referrals are assigned & follow up is
   provided
  Conference call together once a month for 1 hour
   with the Program Coordinator for program updates
  Meet with the Program Coordinator for Team
   Leader Regional day long workshops 2x/year
  They are the “glue”
What BrainSTEPS Teams Do:


1. Prepare the student for return to school
2. Communicate with the district & medical, & rehab
   professionals
3. Gather medical, rehab, & educational
   reports/evaluations to assist in making educational
   recommendations
4. Conduct student observations
What BrainSTEPS Teams Do:


5. Provide peer, parent and school training
            Individual to student needs for school teams
            General for district wide in-service trainings
6. Consult on all aspects of the student’s educational
   plan & make recommendations to the district team
7. Assist in transitioning a student from grade to grade
   or school to school by training new teachers
What BrainSTEPS Teams Do:

8. Serve as a consistent point of contact for students
9. Offer families support, education and connections
   to community resources
        BrainSTEPS Student Care Binders
10. Continually update their brain injury expertise by
    attending mandatory BrainSTEPS trainings,
    obtaining CBIS certification, and participate in other
    brain injury training opportunities
11. It is a goal of the BrainSTEPS Teams to
   monitor all referred students annually
                until graduation.
BrainSTEPS Database
BrainSTEPS Frontloads Supports
Short Term Impact = Long Term Impact



BrainSTEPS works to ensure that students who
would have otherwise immediately been placed in
special education upon returning to school after a
brain injury are receiving appropriate supports while
the brain is healing, before school teams make long
term placement decisions
Brain Injury Screening


BrainSTEPS teaches educators and related
professionals to ask PROBING questions
about prior brain injuries so the
appropriate supports can be put
in place.
Post Secondary Team

BrainSTEPS worked with the University of
Pittsburgh to establish the 1st Brain Injury
Committee in May 2012
  – housed in the Disability Support Services office
December 2008,
BrainSTEPS received an
Award of Excellence for
  Programs & Services
   from the national
Brain Injury Association
      of America
BrainSTEPS Concussion Support
  Statewide Return to School & Academics
Concussion Management Team (CMT) Project
Concussions in Pennsylvania:

Annually, approx. 22,000
children ages 0-21 years
sustain concussions.
For students who linger, striking
           a balance
 between the need for rest and
   keeping up with academic
      content is the biggest
            struggle.
Available at:
www.brainsteps.net
Available at:
www.brainsteps.net
Return to School Concussion Management
Team Project (CMT) 2013


  360 CMTs formed & trained by BrainSTEPS
  across the state of PA - Jan. 15, 2013 (40+ on wait list currently)

  CMTs consist of 2 monitors
    Academic Monitor (School Psych, Guidance Counselor)
    Symptom Monitor (School Nurse)

  CMTs follow BrainSTEPS Return to School Concussion
  Protocol
Layered Statewide Infrastructure for
Concussion Return to School




Concussion CMT Monitoring           BrainSTEPS
                                    Intervention– 4 wks
occurs     1-4 wks @ School level   @ IU level



                      1st              2nd
                     layer             layer
CMT Project
BrainSTEPS provided PA schools with:
 1. A structure
   Concussion School Re-Entry Protocol

 2. Information & guidelines
   CMT Training

 3. Methods for gathering data
   CMT Monitoring Tools
Who can be referred
  to BrainSTEPS?
Who can be referred to
BrainSTEPS?

A student who:
1. Has an acquired brain injury
    • At any point in the student’s life


2. Is having difficulty at school as a result of the
   acquired brain injury
• Concussions – referrals taken at 4wks. Post, unless there are “concussion
  modifiers” present
• All other brain injury severities – referrals taken at any point in time. The
  sooner the better
BrainSTEPS Website
  www.brainsteps.net
Available at:
www.brainsteps.net
Available at:
www.brainsteps.net
Contact:


Brenda Eagan Brown, M.S.Ed., CBIS
BrainSTEPS Program Coordinator
Phone: 724-944-6542
Email: eaganbrown@biapa.org
www.brainsteps.net

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BrainSTEPS Program 2013

  • 1. BrainSTEPS: Assists students, schools & families in Pennsylvania following acquired brain injury
  • 2. Brenda Eagan Brown, M.S.Ed., CBIS BrainSTEPS Program Coordinator Email: eaganbrown@biapa.org Phone: 724-944-6542 Website: www.brainsteps.net
  • 3. How Common is TBI in Children in Pennsylvania? Each year, approximately 26,000 children in Pennsylvania sustain a traumatic brain injury (mild, moderate, or severe) Source: The Brain Injury Association of Pennsylvania, 2008
  • 4. In 2006 4,000 children & adolescents in Pennsylvania were HOSPITALIZED with TBI Source: The Pennsylvania Department of Health, 2006 DOES NOT INCLUDE EMERGENCY ROOM VISITS.
  • 5. Pennsylvania Students Receiving Special Education Services as TBI: 705 2010-11 school year
  • 6. The return to school can be devastating if the health care facility (hospital or rehabilitation center) and the child's home school do not interact as soon as possible and as frequently as possible Carter and Savage, 1988; Ylvisaker et al., 1991; Begali, 1992; Mira et al.,1992; Lash, 1992 Retrieved Jan. 21, 2013 from http://www.tbi.org/library/html/children_and_adolescents.html
  • 7. The BrainSTEPS Program Funded by: PA Department of Health PA Department of Education Implemented by: Brain Injury Association of Pennsylvania since 2007
  • 8. The BrainSTEPS Program Brain injury consulting teams available to families and schools throughout Pennsylvania. Teams consult with & train local school staff to develop educational programs specific to individual student needs.
  • 9. BrainSTEPS Assists Students with All Acquired Brain Injuries Traumatic Brain Injury (includes Concussions) Non-Traumatic Brain Injury * Any child who has a brain injury that occurs AFTER the birth process can be referred to BrainSTEPS
  • 10. BrainSTEPS Teams 30 BrainSTEPS teams cover PA 27 are based out of the educational Intermediate Units & 3 larger districts 320 active, trained BrainSTEPS team members Educational professionals Medical professionals Rehabilitation professionals Staff from community facilities Staff from government agencies University faculty Family members
  • 11. Special Ed. Supervisor TAC 504 Consultant Coordinator Social OT Worker Therapist BrainSTEPS Guidance Teams PT Counselor Therapist School Family Psych/ Neuro- Member psych. Speech School Therapist Nurse
  • 12. BrainSTEPS PA Hospital & Rehab Team Members Children’s Hospital of Philadelphia The Children’s Institute of Pittsburgh Lehigh Valley Hospital Acadia Rehabilitation, Inc. St. Christopher’s Hospital for Nemours/A.I. duPont Hospital Children for Children Hershey Medical Center Mainline Rehabilitation ReMED Magee Rehab Hospital Geisinger Medical Center Schuylkill Rehabilitation Good Shepherd Rehabilitation Reading Hospital St. Vincent’s Medical Center The Barber Institute Beechwood Rehabilitation Services
  • 13. BrainSTEPS Team Leaders  1-2 Team Leaders per team  Organize monthly team meetings  Ensure student referrals are assigned & follow up is provided  Conference call together once a month for 1 hour with the Program Coordinator for program updates  Meet with the Program Coordinator for Team Leader Regional day long workshops 2x/year  They are the “glue”
  • 14. What BrainSTEPS Teams Do: 1. Prepare the student for return to school 2. Communicate with the district & medical, & rehab professionals 3. Gather medical, rehab, & educational reports/evaluations to assist in making educational recommendations 4. Conduct student observations
  • 15. What BrainSTEPS Teams Do: 5. Provide peer, parent and school training Individual to student needs for school teams General for district wide in-service trainings 6. Consult on all aspects of the student’s educational plan & make recommendations to the district team 7. Assist in transitioning a student from grade to grade or school to school by training new teachers
  • 16. What BrainSTEPS Teams Do: 8. Serve as a consistent point of contact for students 9. Offer families support, education and connections to community resources BrainSTEPS Student Care Binders 10. Continually update their brain injury expertise by attending mandatory BrainSTEPS trainings, obtaining CBIS certification, and participate in other brain injury training opportunities
  • 17. 11. It is a goal of the BrainSTEPS Teams to monitor all referred students annually until graduation.
  • 19. BrainSTEPS Frontloads Supports Short Term Impact = Long Term Impact BrainSTEPS works to ensure that students who would have otherwise immediately been placed in special education upon returning to school after a brain injury are receiving appropriate supports while the brain is healing, before school teams make long term placement decisions
  • 20. Brain Injury Screening BrainSTEPS teaches educators and related professionals to ask PROBING questions about prior brain injuries so the appropriate supports can be put in place.
  • 21. Post Secondary Team BrainSTEPS worked with the University of Pittsburgh to establish the 1st Brain Injury Committee in May 2012 – housed in the Disability Support Services office
  • 22. December 2008, BrainSTEPS received an Award of Excellence for Programs & Services from the national Brain Injury Association of America
  • 23. BrainSTEPS Concussion Support Statewide Return to School & Academics Concussion Management Team (CMT) Project
  • 24. Concussions in Pennsylvania: Annually, approx. 22,000 children ages 0-21 years sustain concussions.
  • 25. For students who linger, striking a balance between the need for rest and keeping up with academic content is the biggest struggle.
  • 28. Return to School Concussion Management Team Project (CMT) 2013 360 CMTs formed & trained by BrainSTEPS across the state of PA - Jan. 15, 2013 (40+ on wait list currently) CMTs consist of 2 monitors Academic Monitor (School Psych, Guidance Counselor) Symptom Monitor (School Nurse) CMTs follow BrainSTEPS Return to School Concussion Protocol
  • 29. Layered Statewide Infrastructure for Concussion Return to School Concussion CMT Monitoring BrainSTEPS Intervention– 4 wks occurs 1-4 wks @ School level @ IU level 1st 2nd layer layer
  • 30. CMT Project BrainSTEPS provided PA schools with: 1. A structure Concussion School Re-Entry Protocol 2. Information & guidelines CMT Training 3. Methods for gathering data CMT Monitoring Tools
  • 31. Who can be referred to BrainSTEPS?
  • 32. Who can be referred to BrainSTEPS? A student who: 1. Has an acquired brain injury • At any point in the student’s life 2. Is having difficulty at school as a result of the acquired brain injury • Concussions – referrals taken at 4wks. Post, unless there are “concussion modifiers” present • All other brain injury severities – referrals taken at any point in time. The sooner the better
  • 33. BrainSTEPS Website www.brainsteps.net
  • 36. Contact: Brenda Eagan Brown, M.S.Ed., CBIS BrainSTEPS Program Coordinator Phone: 724-944-6542 Email: eaganbrown@biapa.org www.brainsteps.net

Editor's Notes

  1. Injury to the brain AFTER the birth process.
  2. Range in size from 8-20
  3. Although it may appear at first like special ed. is the initial placement, over time as the brain begins to heal and reorganize – the student may begin to not look as “severe” as s/he once appeared.
  4. While still recovering, to pay attention in class, the student’s brain may need to recruit non-injured areas of the brain. Areas that previously focused on filtering side conversations may not be available for that specific job, because they are needed for another task.