The first effort of the Disability Collaborative was looking at the needs of transition aged youth in a variety of aspects. This powerpoint offers the overview of the findings of this two year long process.

1. The status of transition-age youth and young
adults with intellectual and developmental
disabilities in Santa Clara County
Advancing Our Future
March 24, 2014

2. EDUCATIONEDUCATION

3. What Respondents Want From School
Vocation training leading to work opportunities
Training in community living skills – housing choice
To understand community living & work options as it relates
to “their” situation
Help in planning for their future – beyond the IEP
More options for severely affected I/DD students
Better support for college bound students

4. Education Barriers
Not enough classroom staff to do the job
Not enough help with behavior problems
Classrooms not organized to fit “their” student
Class size - too big
Transportation not available
Medical needs not accommodated
Not enough information

5. Respondents’ Suggestions
PutALL the options into aTransition IEP Exchange
SetupTransition Living Centers
…quicken the pace of creating more services
Classes where people can attend without stress of failure
Better support for college bound students
More programs for adults with severe autism
Community integration programs
More community college classes

6. Success–
Preparation Intersecting Opportunity
School can be a time to learn skills necessary to live and
work in the community.
Transportation, communication, money, time
management housekeeping, hygiene, leisure, healthcare
 School can be time to learn very important “soft skills”
Making choices, self-advocacy, socialization, anger
management self-initiating, and asking for help
Transition is a process best started early
Time is of the essence - don’t wait for the school bus to stop
coming

7. What have you seen that might work?
How might you make a difference?

8. EMPLOYMENTEMPLOYMENT

9. Employment Benefits
Self Esteem / SelfWorth
Satisfaction
Money / Incentive
Contributing Citizens of Society
Good Use ofTime,Abilities

10. Employment Barriers
Medical and Behavioral Challenges
Lack ofTraining / Coaching
Fear of Losing SSI and other Benefits
NoWork Opportunity
NoWork of Interest
Transportation Issues
Fear of Being Bullied,Abused, or Fired

11. Resources for Employment Preparation
Family Members – Referrals to Employers Sensitive to an
Individual’s Abilities
On the JobTraining /Volunteering – GainingWork
Experience
Post Secondary /Workability

12. Call for Action
SB 577 – Funding to Prepare Consumers for Employment
Parents Create Employment Opportunities through their
Own Network
Prepare/Train Consumers at an EarlyAge the Skills, the
Concept, and Desire for Employment
Your Ideas?

13. What have you seen that might work?
How might you make a difference?

14. SOCIAL AND RECREATIONSOCIAL AND RECREATION

15. Benefits of Social Connection
Better physical health
Better mental health
LESS vulnerable
Better access to resources/connections that might improve
their lives

16. Social/Recreational Barriers
Impaired Social and Communication Skills
Transportation Issues
Medical challenges
Behavioral challenges
Parental risk aversion

17. Creating Social Opportunities
Identify natural social environments, sports, church,
community events, volunteering
Create your own in your community or through
Meetup.com or other networking systems
Your ideas?

18. Interested in learning more?
OnApril 4, 2014 –The Interdependency Network is
sponsoring a symposium with Al Condeluci, one of the
nations experts in the value of “Social Capital” for
individuals with disabilities.
http://buildingsocialcapital.org/calendar/2014/4/4/san-jose-symp
Right here in San Jose!

19. What have you seen that might work?
How might you make a difference?

20. HEALTHHEALTH

21. Health Issues Explored with Physician
1. Preventative Health 75%
2. Oral Health 71%
3. IllnessTreatment 45 to 53%
4. Emotional / Mental –
1. 50% Medication
2. 27% counseling
5. Sexual 15%

22. Health Care Barriers
Lack of awareness of behavioral / communication challenges
by providers 59%
To few doctors accept Medi-Cal and/or Medicare
Ineffective visits due to challenging behavior
Copays costs
Sedation dentistry cost prohibitive

23. Health Care Improvements
Educate individuals with I/DD about hygiene and prevention
strategies
Increase available mental health supports
Identify physicians accepting Medi-Cal and available
Create ability for medical/mental health home visits

24. Learn More – Start Here
UCSF Office of Developmental Primary Care
http://odpc.ucsf.edu/
A Blind Spot in the System: Health Care for People with
Developmental Disabilities
http://www.specialhope.org/home/files/blind_spot%20copy.pdf
Women First: Breast Health for Women with Disabilities
http://works.bepress.com/cgi/viewcontent.cgi?
article=1001&context=michelle_armstrong
Risk Reducation Workbook
http://disabilityandabuse.org/books/index.htm

25. What have you seen that might work?
How might you make a difference?

26. HOUSINGHOUSING

27. What is Wanted?What is Wanted?
Healthy and Safe Living Environment
Caring and Professional Staff
Affordability and Availability to all levels of Disability and all
Income levels
Nearby and Complete Services and Supports

28. Housing BarriersHousing Barriers
Residential services (ILS, SLS, & care homes) underfunded
Poor reimbursement rates translates into low wages
BayArea housing market
Limited public transit options

29. Housing OpportunitiesHousing Opportunities
Innovative Residential Models:
Co-Ops
Investment Opportunities (public or private)
Parent Networking
Family HomeAgencies
Self-determination
Leaders are looking to futures thinking constituents. Unique time for coalition
building.

30. Interested in learning more?
Autism Society of the Bay Area: http://www.sfautismsociety.org/
Housing Choices Coalition: http://www.housingchoices.com/
Friends with Children with Special Needs:
http://fcsn1996.org/j25/

31. What have you seen that might work?
How might you make a difference?

32. ­
Thank you to all of the participating agencies who have worked so
hard to gather this data and make this project possible.

35. D. C.

37. Just Today
Write Governor Brown
Train ourselves
Train our community
Biz Model connections for jobs and housing
Local Government
Connect with churches and service groups
Expand Service Directory
Etc.