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EARLY SUPPORT FOR CHILDREN WITH DISABILITY ROSEMARY MARKS DEVELOPMENTAL PAEDIATRICS STARSHIP CHILDREN'S HOSPITAL
Overview ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Early Diagnosis - Why is it important? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Early Diagnosis  ,[object Object],[object Object],[object Object]
Early Correct Diagnosis ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
BARRIERS TO EARLY DIAGNOSIS ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
BARRIERS TO EARLY DIAGNOSIS ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
BUT…ITS GETTING BETTER ,[object Object],[object Object],[object Object],[object Object],[object Object]
Early Supports ,[object Object],[object Object],[object Object],[object Object],[object Object]
Educational and Intervention Services – under 5s ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Educational Services – 5+ ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Educational Strategies ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Goals – Early and Sustained Support  ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
In the forest of disability support – finding the path ROSEMARY MARKS DEVELOPMENTAL PAEDIATRICS STARSHIP CHILDREN'S HOSPITAL
Clear as Mud Developmental Services and Referrals Jutta van den Boom, 2008
 
LOST IN THE FOREST - A GUIDE TO FINDING THE CANDY HOUSE   SUPPORT FOR FAMILIES WHO HAVE A CHILD WITH CHRONIC ILLNESS OR DISABILITY
Is there a common theme here?? And if health professionals find the system difficult to negotiate – how hard is it for users of the system?
Parents and families ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
 
 
 
Parents and families ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Costs to Families ,[object Object],[object Object],[object Object],[object Object],[object Object]
Costs to Families: Additional Costs of Disability and/or Illness ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Costs to Families: Loss of Earnings ,[object Object],[object Object],[object Object],[object Object],[object Object]
FUNDING STREAMS MOH ACC PERSONAL HEALTH MENTAL HEALTH DISABILITY   SUPPORT DHBs JOE NASC
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object]
What support do the family have? ,[object Object],[object Object],[object Object]
State-funded Support and Resources  ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
State-funded Support and Resources   ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
RESPITE ,[object Object],[object Object],[object Object]
RESPITE ,[object Object],[object Object],[object Object],[object Object]
MOH disability definition ,[object Object],[object Object],[object Object],[object Object]
NASC – Problems  ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
QUOTES FROM FAMILIES ,[object Object],[object Object],[object Object]
Discharge Planning ,[object Object],[object Object],[object Object],[object Object],[object Object]
Parents and families ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
 
 
THE MESSAGE ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Maslow’s hierarchy of needs
SUMMARY & SOLUTIONS ,[object Object],[object Object],[object Object],[object Object],[object Object]
FURTHER INFORMATION ,[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object]
ANY QUESTIONS?

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Early support seminar Rosemary Marks

  • 1. EARLY SUPPORT FOR CHILDREN WITH DISABILITY ROSEMARY MARKS DEVELOPMENTAL PAEDIATRICS STARSHIP CHILDREN'S HOSPITAL
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  • 15. In the forest of disability support – finding the path ROSEMARY MARKS DEVELOPMENTAL PAEDIATRICS STARSHIP CHILDREN'S HOSPITAL
  • 16. Clear as Mud Developmental Services and Referrals Jutta van den Boom, 2008
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  • 18. LOST IN THE FOREST - A GUIDE TO FINDING THE CANDY HOUSE   SUPPORT FOR FAMILIES WHO HAVE A CHILD WITH CHRONIC ILLNESS OR DISABILITY
  • 19. Is there a common theme here?? And if health professionals find the system difficult to negotiate – how hard is it for users of the system?
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  • 28. FUNDING STREAMS MOH ACC PERSONAL HEALTH MENTAL HEALTH DISABILITY SUPPORT DHBs JOE NASC
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Editor's Notes

  1. 25-30% clients with SLD have ASD 75% of ASD have SLD
  2. This presentation came about when I was working as a developmental fellow last year, and still at the end of the year I was confused about all the different services that exist. It doesn’t come naturally, and similar to computers, once who think you understand the system, they start changing names of agencies, or new services or programmes become available. This presentation is by no means complete, and I welcome any suggestions and corrections. It is meant as a guideline and reference point for registrars and fellows coming to work with the developmental team here at Auckland, and although the services described in this presentation have the same function in other DHBs, they might have different names.
  3. When I started looking into the all the different referral and services pathway, I tried to put them all onto one big flow chart, and it soon became obvious, this would be clear as mud!