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ESRC/DFID
Poverty Alleviation Research
Bridging the Gap
Examining Disability and Development in four African
Countries (Kenya, Sierra Leone, Uganda, and Zambia)
Professor Nora Groce
Leonard Cheshire Disability and Inclusive Development Centre, UCL
Professor Andrew State
Makerere University
BACKGROUND
 DFID/ESRC Poverty Alleviation Scheme-funded research project.
 Builds on previous research – in particular the DFID-funded Cross-cutting
Disability Research Programme (CCDRP)
 Emergence of a ‘disability and development gap’ (Groce and Kett, 2013) -
when poverty is reduced and access to health care, education, and
employment increased, disabled people may fall behind
 Building on a growing body of evidence around multidimensional poverty
particularly as it applies to persons with disabilities
 (e.g Groce et al, 2011; Mitra et al, 2013: Palmer, 2011; Mizunoya and Mitra, 2013; Eide and
Ingstad, 2013; Munsaka and Charnley, 2013; McConkey, 2012.)
2
PARTNERS
 Kenya: University of Nairobi, School of
Public Health, African Centre for
Science and Technology; United
Disabled Persons Kenya
 Uganda: Makerere University,
Department of Social Work and Social
Administration; National Union of
Disabled Persons of Uganda
 Zambia: Institute of Economic and
Social Research, University of Zambia;
Zambia Agency for Persons with
Disabilities
 Sierra Leone: University of Sierra
Leone, Department of Sociology and
Social Work; Sierra Leone Union of
People with Disabilities
 South Africa: Stellenbosch University
KEY QUESTIONS
1. How do current national policies, programmes and strategies in health, education, labour
market and social protection address poverty, inequality and access to services of disabled
adults and children in the four selected countries?
2.What implementation strategies are currently in place/ being developed to implement these
policies, programmes and strategies? What monitoring and evaluation strategies are currently
in place and how can they become more effective?
3. What information can currently be obtained through the analysis of secondary data to
compare disabled and non-disabled persons in censuses and national surveys in order to
better understand the links between disability, multidimensional poverty and barriers to
accessing initiatives to alleviate poverty?
3. What educational, economic, health and social protection interventions by state and non-
state actors make a difference to persons with disabilities to ensure they benefit equally
compared to their non-disabled peers and how can these be replicated?
4. How can the hypothesised disability and development gap be assessed to understand the
multidimensional poverty and barriers faced by persons with disabilities in comparison to non-
disabled persons?
PROJECT PHASING
RESEARCH PROGRESS TO DATE
 Policy Analysis in each country: What SHOULD Happen:
> First level analysis: review of disability-specific legislation and policy
> Second level analysis: review generic development policies and legislations intended
to reduce poverty (universal education, gender equity etc.) to assess disability
(‘e.g. Education Acts, labour laws, health and social welfare legislation,
 Secondary data analysis: What DOES Happen
> Partners are developing analytical frameworks to analyse existing
data to observe trends across the four domains,
> Working to identify variables that allow for disability status to be
looks at the disaggregation of the data over the four domains and
other aspects of multidimensional poverty measures included by disability
status.
6
KEY OBJECTIVES: KIND OF IMPACT/MEANS TO ACHIEVING IMPACT/RESEARCH
DESIGN THAT FOSTERS IMPACT
FROM PERSPECTIVE OF LEONARD CHESHIRE DISABILITY AND INCLUSIVE DEVELOPMENT CENTRE:
• The production of new evidence leading to sustained awareness of, and interest in,
the project among key stakeholders – persons with disabilities and their families,
policymakers, governments, bilateral/ multilateral donors, DPOs, other researchers
• Policymakers in the four research domains are influenced by key aspects of the
research which ‘bridge the gap’ in their field and incorporate outcomes into poverty
alleviation policies
• A sustained, positive impact, changing attitudes of donors, policy-makers and
development practitioners on disability issues and persons with disabilities;
• South-South dialogue is facilitated and maintained between research partners and
other stakeholders, including DPOs for effective knowledge exchange to promote
inclusive disability policy and practice;
• Effective engagement with the media, at global, regional, national and local levels
to communicate key messages and policy implications from the research
INCLUDING DISABILITY INTO RESEARCH ON POVERTY ALLEVIATION
Perspective of disability inclusive research from a leading African
University:
1. Inclusion of disability into broader research on poverty
alleviation efforts
2. Disability as an area of distinct research
3. Inclusion of disability in curriculum in social sciences,
international development & etc.
Additional Thoughts/ discussion
Thank you!
Nora.groce@ucl.ac.uk
deanfss@chuss.mak.ac.ug
http://gap.leonardcheshire.org/

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1 Bridging the Gap, Nora Groce and Andrew State

  • 1. ESRC/DFID Poverty Alleviation Research Bridging the Gap Examining Disability and Development in four African Countries (Kenya, Sierra Leone, Uganda, and Zambia) Professor Nora Groce Leonard Cheshire Disability and Inclusive Development Centre, UCL Professor Andrew State Makerere University
  • 2. BACKGROUND  DFID/ESRC Poverty Alleviation Scheme-funded research project.  Builds on previous research – in particular the DFID-funded Cross-cutting Disability Research Programme (CCDRP)  Emergence of a ‘disability and development gap’ (Groce and Kett, 2013) - when poverty is reduced and access to health care, education, and employment increased, disabled people may fall behind  Building on a growing body of evidence around multidimensional poverty particularly as it applies to persons with disabilities  (e.g Groce et al, 2011; Mitra et al, 2013: Palmer, 2011; Mizunoya and Mitra, 2013; Eide and Ingstad, 2013; Munsaka and Charnley, 2013; McConkey, 2012.) 2
  • 3. PARTNERS  Kenya: University of Nairobi, School of Public Health, African Centre for Science and Technology; United Disabled Persons Kenya  Uganda: Makerere University, Department of Social Work and Social Administration; National Union of Disabled Persons of Uganda  Zambia: Institute of Economic and Social Research, University of Zambia; Zambia Agency for Persons with Disabilities  Sierra Leone: University of Sierra Leone, Department of Sociology and Social Work; Sierra Leone Union of People with Disabilities  South Africa: Stellenbosch University
  • 4. KEY QUESTIONS 1. How do current national policies, programmes and strategies in health, education, labour market and social protection address poverty, inequality and access to services of disabled adults and children in the four selected countries? 2.What implementation strategies are currently in place/ being developed to implement these policies, programmes and strategies? What monitoring and evaluation strategies are currently in place and how can they become more effective? 3. What information can currently be obtained through the analysis of secondary data to compare disabled and non-disabled persons in censuses and national surveys in order to better understand the links between disability, multidimensional poverty and barriers to accessing initiatives to alleviate poverty? 3. What educational, economic, health and social protection interventions by state and non- state actors make a difference to persons with disabilities to ensure they benefit equally compared to their non-disabled peers and how can these be replicated? 4. How can the hypothesised disability and development gap be assessed to understand the multidimensional poverty and barriers faced by persons with disabilities in comparison to non- disabled persons?
  • 6. RESEARCH PROGRESS TO DATE  Policy Analysis in each country: What SHOULD Happen: > First level analysis: review of disability-specific legislation and policy > Second level analysis: review generic development policies and legislations intended to reduce poverty (universal education, gender equity etc.) to assess disability (‘e.g. Education Acts, labour laws, health and social welfare legislation,  Secondary data analysis: What DOES Happen > Partners are developing analytical frameworks to analyse existing data to observe trends across the four domains, > Working to identify variables that allow for disability status to be looks at the disaggregation of the data over the four domains and other aspects of multidimensional poverty measures included by disability status. 6
  • 7. KEY OBJECTIVES: KIND OF IMPACT/MEANS TO ACHIEVING IMPACT/RESEARCH DESIGN THAT FOSTERS IMPACT FROM PERSPECTIVE OF LEONARD CHESHIRE DISABILITY AND INCLUSIVE DEVELOPMENT CENTRE: • The production of new evidence leading to sustained awareness of, and interest in, the project among key stakeholders – persons with disabilities and their families, policymakers, governments, bilateral/ multilateral donors, DPOs, other researchers • Policymakers in the four research domains are influenced by key aspects of the research which ‘bridge the gap’ in their field and incorporate outcomes into poverty alleviation policies • A sustained, positive impact, changing attitudes of donors, policy-makers and development practitioners on disability issues and persons with disabilities; • South-South dialogue is facilitated and maintained between research partners and other stakeholders, including DPOs for effective knowledge exchange to promote inclusive disability policy and practice; • Effective engagement with the media, at global, regional, national and local levels to communicate key messages and policy implications from the research
  • 8. INCLUDING DISABILITY INTO RESEARCH ON POVERTY ALLEVIATION Perspective of disability inclusive research from a leading African University: 1. Inclusion of disability into broader research on poverty alleviation efforts 2. Disability as an area of distinct research 3. Inclusion of disability in curriculum in social sciences, international development & etc.

Editor's Notes

  1. A partnership between Leonard Cheshire Disability and University College London The Centre is dedicated to generating a body of applied research about disability issues that helps to improve the lives of people with disabilities, and their families and communities, around the world Start date: 1 April 2015; End date: 31 March 2018
  2. Despite attempts to include persons with disabilities in global development and poverty alleviation strategies, these have rarely been done in a systematic or sustainable way (Mwendwa et al, 2009; WHO 2011). The objective of this three-year programme is to identify why barriers to inclusion persist, specifically in the domains of health, education, social protection and labour markets, and to identify ways in which these can be overcome, and the gap ‘bridged’, so that persons with disabilities enjoy the benefits of development on the same basis as others. Central to this proposal is the concept of the ‘disability and development gap’, created by a lack of systematic or sustainable inclusion in development efforts for persons with disabilities. We hypothesise that in many countries the social and economic development of persons with disabilities have remained stationary while international development efforts have allowed millions of their non-disabled peers to live increasingly better and healthier lives (Groce and Kett 2013). This research project builds on current research around the relationship between disability and poverty, which as is discussed below, is increasingly understood to be more complex and nuanced than initially perceived (Groce et al 2011; Hoang al, 2014 Mont and Cuong, 2011). We believe that the ‘disability and development gap’ is a potentially powerful way of framing and addressing the relationship between poverty and disability.
  3. We selected four countries to represent a range of socio-economic levels of development according to the Human Development Index: Dr Daniel Mont (Independent Consultant); Dr Sophie Mitra (Fordham University, USA); Dr Tom Shakespeare (University of East Anglia); Dr Mary Wickenden (University College London) & Ms Lorraine Wapling (Independent Consultant
  4. The Inception Phase of this grant (1st April – 1st September) has provided an opportunity to further discuss and revise the research focus, as well as formally launch the programme in the four countries. The Inception Phase also allowed us time to discuss and agree strategies for addressing structural inequalities that may appear within the data collection and analysis phases of this project. In-country research teams have been continually engaged during the development of the research framework, including during the inception meetings. There were lively discussions and debates around the extent to which disability issues are already included in national development plans; the ways these could be measured; and the gaps in evidence that currently exist. Two workshop activities were also carried out: the first was to begin identification of existing legislation and policy in the four domains (education, labour market, health and social protection), as well as identify key stakeholders; and mapping of existing data sets from national surveys which potentially could be mined for further analysis to identify gaps in the four domains in each of the countries. Teams were then asked to identify potential research questions based on these gaps. Initial discussions around these activities have been reported in the specific country inception meeting reports (see the additional documentation file for the country reports
  5. We anticipate that the responses to this study may reveal complex and nuanced patterns of disability and development concerns and are likely to produce different findings in each country in response to specific in-country policies and practices. Moreover, we are keen not to homogenise the experiences of persons with disabilities in our research, but rather to identify broad models and trends which tell us more about the local experiences of persons with disabilities in comparison to their non-disabled peers, and where the gap can be bridged. These results can be used to support improved inclusive development policy and programmes. We anticipate that our research and continuous dialogue with partners will provide a forum for productive discussion around these issues. In particular, we aim to ensuring that the evidence generated contributes to the evolving dialogue around implementation, monitoring and evaluation of the SDGs.