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Truth and Citizenship
towards an ecology of disability rights
Dr Simon Duffy for the Norah Fry Centre for Disability Studies

and Sue Porter Memorial Lecture 2020
1. Robbed of our illusions - now is a good time to think harder about
how we advance disability rights.

2. Keep the faith - there is no reason to doubt that disability rights is a
foundational value.

3. Rights are not enough - but a focus on rights by themselves is not
enough.

4. The value of rhetoric - we need to find ways to express our
principles that persuades those outside our own group.

5. The ecology of rights - disability rights will only thrive in an ecology
of community, family and citizenship.

6. Citizen Network - so let’s act as if we really believe in what we say.
Multiple campaigns
• Pat’s Petition

• Spartacus Network

• Campaign for a Fair Society

• Learning Disability Alliance

• Learning Disability England

• WOW Petition

• Save the ILF

• Bedroom Tax Campaign

• Rightful Lives

• Disabled People Against the
Cuts (DPAC)

• Reclaim Social Care
Truth
matters
Conceptually, we may call
truth what we cannot
change; metaphorically, it is
the ground on which we
stand and the sky that
stretches above us.
Truth and Politics. Arendt H (1956) Between
Past and Future. New York: Penguin. p. 264
Not all claims are
equally valid
Not all voices
need amplifying
Without trust in truth we
risk our destruction
Compare…
something
matters to
you
Relativists
can’t be
humble
There are three kinds of TRUTH
LOGICAL FACTUAL MORAL
ideology is
not truth
we are not
broken
happiness
robots
“The contradictions the mind
comes up against - these are
the only realities: they are the
criterion of the real.
There is no contradiction in
what is imaginary.
Contradiction is the test of
necessity.”
Simon Weil
Gravity and Grace
Hannah Arendt Arendt H (2013) The Last Interview and Other
Conversations. Brooklyn, Melville House. p. 81
“All our experiences - as distinguished from theories and
ideologies - tell us that the process of expropriation, which
started with the rise of capitalism, does not stop with the
expropriation of the means of production; only legal and political
institutions that are independent of the economic forces and
automatism can control and check the inherently monstrous
potentialities of this process. Such political controls seem to
function best in the so-called welfare states whether they call
themselves socialist or capitalist. What protects freedom is the
division between governmental and economic power, or to put it
in Marxian language, the fact that the state and its constitution
are not superstructures.”
Rights matter
Article 1 of the UN Declaration of Human Rights states:

All human beings are born free and equal in dignity and
rights. They are endowed with reason and conscience
and should act towards one another in a spirit of
brotherhood.

The first principle defined by the UN Convention on the
Rights of Persons with Disabilities (UNCRPD) is:

Respect for inherent dignity, individual autonomy
including the freedom to make one’s own choices, and
independence of persons.
But the language of RIGHTS also has limitations
NEGATIVE LEGALISTIC UNSTABLE
Claims to rights are
powerful but also
provoke anxiety
Do we really
need another
theory?
Rhetoric
matters
Pity is not just
wrong it’s
dangerous
Rhetoric is necessary to communicate truth effectively
ARGUMENT CONTENT STYLE
Rhetoric doesn’t
need to be stupid
Rhetoric
can be good
the inclusion
movement
John O’Brien
Beth MountJean VanierMarsha Forest
Jack Pearpoint
Judith Snow
The three key concepts necessary to disability rights
COMMUNITY LOVE CITIZENSHIP
Community
matters
Rights become
possible when a
community takes
them seriously
But we may need a bigger WE
so everyone feels included.
Love
matters
Love does
the work of
rights without
the sense of
obligation
Families
have
rights
too
Citizenship
matters
Citizens value
their status as
contributing to
the life of the
community
Aristotle explains that a
community is not made out
of equals, but on the
contrary of people who are
different and unequal.
The community comes into
being through equalising,
isathenai.
Hannah Arendt
Someone once told Rabbi
Mendel that a certain person
was greater than another
whom he also mentioned by
name. Rabbi Mendel replied: “If
I am I because I am I, and you
are you because you are you,
then I am I, and you are you.
But if I am I because you are
you, and you are you because I
am I, then I am not I, and you
are not you.
Buber M (1991) Tales of the Hasidim.
New York, Schocken Books. p. 283
We face a triple CITIZENSHIP challenge
EXCLUDED OPPRESSED ASLEEP
We can join with others to achieve:
INCLUSION JUSTICE RESTORATION
To defend human and disability rights
we need to understand the conditions in
which these rights thrive.

We need an ecology of human rights.

The seed of human rights 

in order to flourish 

needs the water of citizenship, 

the earth of community 

and the light of love. 

Law - on its own - does no work.

Rhetoric is not mere rhetoric. 

The ideas that inspire and motivate us
are the ideas upon which must build no
useful theory can afford to reject them.
but it starts within
subscribe
join
@simonjduffy @cforwr @citizen_network @ubilabsheffield

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Truth and Citizenship - towards an ecology of disability rights

  • 1. Truth and Citizenship towards an ecology of disability rights Dr Simon Duffy for the Norah Fry Centre for Disability Studies
 and Sue Porter Memorial Lecture 2020
  • 2. 1. Robbed of our illusions - now is a good time to think harder about how we advance disability rights. 2. Keep the faith - there is no reason to doubt that disability rights is a foundational value. 3. Rights are not enough - but a focus on rights by themselves is not enough. 4. The value of rhetoric - we need to find ways to express our principles that persuades those outside our own group. 5. The ecology of rights - disability rights will only thrive in an ecology of community, family and citizenship. 6. Citizen Network - so let’s act as if we really believe in what we say.
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  • 8. Multiple campaigns • Pat’s Petition • Spartacus Network • Campaign for a Fair Society • Learning Disability Alliance • Learning Disability England • WOW Petition • Save the ILF • Bedroom Tax Campaign • Rightful Lives • Disabled People Against the Cuts (DPAC) • Reclaim Social Care
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  • 12. Conceptually, we may call truth what we cannot change; metaphorically, it is the ground on which we stand and the sky that stretches above us. Truth and Politics. Arendt H (1956) Between Past and Future. New York: Penguin. p. 264
  • 13. Not all claims are equally valid
  • 14. Not all voices need amplifying
  • 15. Without trust in truth we risk our destruction Compare…
  • 18. There are three kinds of TRUTH LOGICAL FACTUAL MORAL
  • 21. “The contradictions the mind comes up against - these are the only realities: they are the criterion of the real. There is no contradiction in what is imaginary. Contradiction is the test of necessity.” Simon Weil Gravity and Grace
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  • 23. Hannah Arendt Arendt H (2013) The Last Interview and Other Conversations. Brooklyn, Melville House. p. 81 “All our experiences - as distinguished from theories and ideologies - tell us that the process of expropriation, which started with the rise of capitalism, does not stop with the expropriation of the means of production; only legal and political institutions that are independent of the economic forces and automatism can control and check the inherently monstrous potentialities of this process. Such political controls seem to function best in the so-called welfare states whether they call themselves socialist or capitalist. What protects freedom is the division between governmental and economic power, or to put it in Marxian language, the fact that the state and its constitution are not superstructures.”
  • 25. Article 1 of the UN Declaration of Human Rights states: All human beings are born free and equal in dignity and rights. They are endowed with reason and conscience and should act towards one another in a spirit of brotherhood. The first principle defined by the UN Convention on the Rights of Persons with Disabilities (UNCRPD) is: Respect for inherent dignity, individual autonomy including the freedom to make one’s own choices, and independence of persons.
  • 26. But the language of RIGHTS also has limitations NEGATIVE LEGALISTIC UNSTABLE
  • 27. Claims to rights are powerful but also provoke anxiety
  • 28. Do we really need another theory?
  • 30. Pity is not just wrong it’s dangerous
  • 31. Rhetoric is necessary to communicate truth effectively ARGUMENT CONTENT STYLE
  • 34. the inclusion movement John O’Brien Beth MountJean VanierMarsha Forest Jack Pearpoint Judith Snow
  • 35. The three key concepts necessary to disability rights COMMUNITY LOVE CITIZENSHIP
  • 36. Community matters Rights become possible when a community takes them seriously
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  • 38. But we may need a bigger WE so everyone feels included.
  • 39. Love matters Love does the work of rights without the sense of obligation
  • 41. Citizenship matters Citizens value their status as contributing to the life of the community
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  • 46. Aristotle explains that a community is not made out of equals, but on the contrary of people who are different and unequal. The community comes into being through equalising, isathenai. Hannah Arendt
  • 47. Someone once told Rabbi Mendel that a certain person was greater than another whom he also mentioned by name. Rabbi Mendel replied: “If I am I because I am I, and you are you because you are you, then I am I, and you are you. But if I am I because you are you, and you are you because I am I, then I am not I, and you are not you. Buber M (1991) Tales of the Hasidim. New York, Schocken Books. p. 283
  • 48. We face a triple CITIZENSHIP challenge EXCLUDED OPPRESSED ASLEEP
  • 49. We can join with others to achieve: INCLUSION JUSTICE RESTORATION
  • 50. To defend human and disability rights we need to understand the conditions in which these rights thrive. We need an ecology of human rights. The seed of human rights 
 in order to flourish 
 needs the water of citizenship, 
 the earth of community 
 and the light of love. 
 Law - on its own - does no work. Rhetoric is not mere rhetoric. 
 The ideas that inspire and motivate us are the ideas upon which must build no useful theory can afford to reject them.
  • 51. but it starts within