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In the United States, policy makers, health professionals, and patient advocacy groups have
promoted the process of advance care planning, that is, planning for future medical care in the
event that a person is unable to make his or her own decisions at the end of life. Advance care
planning allows persons with chronic and ultimately fatal illnesses to convey preferences to
guide decisions when they cannot speak for themselves. However, many people do not engage in
advance care planning discussions, which results in documents such as a living will. A common
reason for this is that they do not perceive advance care planning as sufficiently urgent.
But advance care planning has a plausible value for at least 1 group of persons. Unlike persons
suffering from other chronic diseases of adulthood, patients with dementia experience a period
during which they can participate in decisions followed by several years when they cannot make
decisions, requiring others, often family members, to make decisions for them. These decisions
include difficult end-of-life choices, but for several years before death they will also include day-
to-day decisions about their care and daily living.
One way to achieve patient-centered care and maintain patient autonomy for patients with
dementia is to elicit their health care values and preferences before they lose their ability to state
those preferences. In the early stage of dementia, the patient has a plausible window of time to
talk with family about what goals and values should inform a range of future decisions. Without
these discussions, families are left struggling to make decisions about nursing home placement
and end-of-life care without the guidance of the patients' preferences. The prevalence of this
problem is likely to increase by the year 2050 when the number of persons with dementia in the
United States is estimated to reach 11 to 16 million.
Although, advance care planning is appealing for dementia patients and their family members,
little is known about the strategies that can facilitate advance care planning discussions or about
the reasons why people do not have these discussions. Understanding these strategies and
reasons is crucial to fostering advance care planning.
Solution
In the United States, policy makers, health professionals, and patient advocacy groups have
promoted the process of advance care planning, that is, planning for future medical care in the
event that a person is unable to make his or her own decisions at the end of life. Advance care
planning allows persons with chronic and ultimately fatal illnesses to convey preferences to
guide decisions when they cannot speak for themselves. However, many people do not engage in
advance care planning discussions, which results in documents such as a living will. A common
reason for this is that they do not perceive advance care planning as sufficiently urgent.
But advance care planning has a plausible value for at least 1 group of persons. Unlike persons
suffering from other chronic diseases of adulthood, patients with dementia experience a period
during which they can participate in decisions followed by several years when they cannot make
decisions, requiring others, often family members, to make decisions for them. These decisions
include difficult end-of-life choices, but for several years before death they will also include day-
to-day decisions about their care and daily living.
One way to achieve patient-centered care and maintain patient autonomy for patients with
dementia is to elicit their health care values and preferences before they lose their ability to state
those preferences. In the early stage of dementia, the patient has a plausible window of time to
talk with family about what goals and values should inform a range of future decisions. Without
these discussions, families are left struggling to make decisions about nursing home placement
and end-of-life care without the guidance of the patients' preferences. The prevalence of this
problem is likely to increase by the year 2050 when the number of persons with dementia in the
United States is estimated to reach 11 to 16 million.
Although, advance care planning is appealing for dementia patients and their family members,
little is known about the strategies that can facilitate advance care planning discussions or about
the reasons why people do not have these discussions. Understanding these strategies and
reasons is crucial to fostering advance care planning.

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In the United States, policy makers, health professionals, and patie.pdf

  • 1. In the United States, policy makers, health professionals, and patient advocacy groups have promoted the process of advance care planning, that is, planning for future medical care in the event that a person is unable to make his or her own decisions at the end of life. Advance care planning allows persons with chronic and ultimately fatal illnesses to convey preferences to guide decisions when they cannot speak for themselves. However, many people do not engage in advance care planning discussions, which results in documents such as a living will. A common reason for this is that they do not perceive advance care planning as sufficiently urgent. But advance care planning has a plausible value for at least 1 group of persons. Unlike persons suffering from other chronic diseases of adulthood, patients with dementia experience a period during which they can participate in decisions followed by several years when they cannot make decisions, requiring others, often family members, to make decisions for them. These decisions include difficult end-of-life choices, but for several years before death they will also include day- to-day decisions about their care and daily living. One way to achieve patient-centered care and maintain patient autonomy for patients with dementia is to elicit their health care values and preferences before they lose their ability to state those preferences. In the early stage of dementia, the patient has a plausible window of time to talk with family about what goals and values should inform a range of future decisions. Without these discussions, families are left struggling to make decisions about nursing home placement and end-of-life care without the guidance of the patients' preferences. The prevalence of this problem is likely to increase by the year 2050 when the number of persons with dementia in the United States is estimated to reach 11 to 16 million. Although, advance care planning is appealing for dementia patients and their family members, little is known about the strategies that can facilitate advance care planning discussions or about the reasons why people do not have these discussions. Understanding these strategies and reasons is crucial to fostering advance care planning. Solution In the United States, policy makers, health professionals, and patient advocacy groups have promoted the process of advance care planning, that is, planning for future medical care in the event that a person is unable to make his or her own decisions at the end of life. Advance care planning allows persons with chronic and ultimately fatal illnesses to convey preferences to guide decisions when they cannot speak for themselves. However, many people do not engage in advance care planning discussions, which results in documents such as a living will. A common reason for this is that they do not perceive advance care planning as sufficiently urgent.
  • 2. But advance care planning has a plausible value for at least 1 group of persons. Unlike persons suffering from other chronic diseases of adulthood, patients with dementia experience a period during which they can participate in decisions followed by several years when they cannot make decisions, requiring others, often family members, to make decisions for them. These decisions include difficult end-of-life choices, but for several years before death they will also include day- to-day decisions about their care and daily living. One way to achieve patient-centered care and maintain patient autonomy for patients with dementia is to elicit their health care values and preferences before they lose their ability to state those preferences. In the early stage of dementia, the patient has a plausible window of time to talk with family about what goals and values should inform a range of future decisions. Without these discussions, families are left struggling to make decisions about nursing home placement and end-of-life care without the guidance of the patients' preferences. The prevalence of this problem is likely to increase by the year 2050 when the number of persons with dementia in the United States is estimated to reach 11 to 16 million. Although, advance care planning is appealing for dementia patients and their family members, little is known about the strategies that can facilitate advance care planning discussions or about the reasons why people do not have these discussions. Understanding these strategies and reasons is crucial to fostering advance care planning.