Successfully reported this slideshow.
We use your LinkedIn profile and activity data to personalize ads and to show you more relevant ads. You can change your ad preferences anytime.
Finding Reliable Patient Education Information  on the Internet Mary J. Markland SE Clinical Campus Librarian University o...
Pretest <ul><li>T  F  All health information on the web is  accurate and reliable. </li></ul><ul><li>T  F  Reference libra...
Pew Internet & American Life Results <ul><li>U.S. adults living with chronic disease are significantly less likely than he...
More Results <ul><li>When asked, &quot;Now thinking about all the sources you turn to when you need information or assista...
And More…. <ul><li>52% of all online health inquiries are on behalf of someone else </li></ul><ul><li>Two-thirds of e-pati...
What do patients want to know? <ul><li>Is it cancer? </li></ul><ul><li>If I’m going to die, how will I die and will it hur...
What are they looking at and is it any good?
Types of Web sites <ul><li>What is the  purpose  of the Web page? </li></ul><ul><li>Advocacy (American Heart Association) ...
ABCs of Evaluation <ul><li>Accuracy </li></ul><ul><li>Authority </li></ul><ul><li>Bias </li></ul><ul><li>Currency </li></u...
5 ABCs <ul><li>Each of these alone is meaningless. </li></ul><ul><li>Together they create solid guidelines for evaluation....
Accuracy <ul><li>Is the information accurate?  </li></ul><ul><li>Remember: </li></ul><ul><ul><li>Anyone can publish on the...
Accuracy example http://www.malepregnancy.com/
Authority <ul><li>Is the author an authority on the subject?  </li></ul><ul><li>Remember: </li></ul><ul><ul><li>It is ofte...
What can you tell from the URL? <ul><li>The Tilde  </li></ul><ul><ul><li>~ </li></ul></ul><ul><li>The Domain </li></ul><ul...
Authority example http://members.tripod.com/~tourette13/
Disclaimer
Bias <ul><li>Does the author bring any biases in posting the information?  </li></ul><ul><li>Remember: </li></ul><ul><ul><...
Bias Examples http://www.bolenreport.net/ http://martinlutherking.org   Hosted by Stormfront Center for Consumer Freedom I...
Reliability Check <ul><li>Variety of information </li></ul><ul><ul><li>Health Conditions </li></ul></ul><ul><ul><li>Living...
What’s Wrong with Sponsors?
 
Currency <ul><li>Is the information current and timely?  </li></ul><ul><li>Remember: </li></ul><ul><ul><li>Dates are not a...
Currency example http://www.pslgroup.com/dg950925.htm
Coverage <ul><li>Many health sites are not comprehensive. </li></ul><ul><li>The information may be accurate but </li></ul>...
Coverage example http://www.medical-library.net/
Privacy <ul><li>What kinds of data does the site collect? </li></ul><ul><li>What does it do with the data? </li></ul><ul><...
Mayo Clinic
 
 
Evaluation of Health Resources
Finding Reliable Health Resources
Tips <ul><li>Put your phrase in quotation marks </li></ul><ul><ul><li>“ lung cancer”, “heart attack” </li></ul></ul><ul><l...
Google Health
 
Google Directory
 
MedlinePlus http://medlineplus.gov <ul><ul><li>No Advertisements! </li></ul></ul><ul><ul><li>No Sponsors! </li></ul></ul><...
MedlinePlus Resources <ul><ul><li>Links to reliable, understandable  health websites </li></ul></ul><ul><ul><li>Health Top...
 
 
 
 
Drugs & Supplements
Encyclopedia Dictionary
Directories
News
Interactive Tutorials
Multiple Languages
NIH MedlinePlus Magazine <ul><li>Free subscription </li></ul>
Senior Health
ClinicalTrials.gov
CAPHIS/MLA Top 100 List http://www.caphis.mlanet.org/consumer/index.html
AAFP FamilyDoctor.org
Mayo Clinic.org
Healthfinder.gov
MedHelp
AMA Physician Finder
 
American Board of Medical Specialties
 
<ul><li>http://druginfo.nlm.nih.gov </li></ul>
 
 
Oncolink
Upcoming SlideShare
Loading in …5
×

Finding reliable patient education information on the internet

2,236 views

Published on

Internal Medicine Noon Conference 5/5/2010

  • Be the first to comment

Finding reliable patient education information on the internet

  1. 1. Finding Reliable Patient Education Information on the Internet Mary J. Markland SE Clinical Campus Librarian University of North Dakota School of Medicine & Health Sciences [email_address] May 5, 2010
  2. 2. Pretest <ul><li>T F All health information on the web is accurate and reliable. </li></ul><ul><li>T F Reference librarians can provide advice about health information. </li></ul><ul><li>T F About half of Internet health seekers thoroughly check the source and timeliness of information, and are vigilant about verifying a site’s information every time they search for health information. </li></ul><ul><li>Name three criteria for evaluating a web site. </li></ul>
  3. 3. Pew Internet & American Life Results <ul><li>U.S. adults living with chronic disease are significantly less likely than healthy adults to have access to the internet (62% vs. 81%). </li></ul><ul><li>Once online, having a chronic disease increases the probability that someone will take advantage of social media to share what they know and learn from their peers. </li></ul>
  4. 4. More Results <ul><li>When asked, &quot;Now thinking about all the sources you turn to when you need information or assistance in dealing with health or medical issues, please tell me if you use any of the following sources...&quot; </li></ul><ul><ul><li>86% of all adults ask a health professional, such as a doctor. </li></ul></ul><ul><ul><li>68% of all adults ask a friend or family member. </li></ul></ul><ul><ul><li>57% of all adults use the internet. </li></ul></ul><ul><ul><li>54% use books or other printed reference material. </li></ul></ul><ul><ul><li>33% contact their insurance provider. </li></ul></ul><ul><ul><li>5% use another source not mentioned in the list.  </li></ul></ul>
  5. 5. And More…. <ul><li>52% of all online health inquiries are on behalf of someone else </li></ul><ul><li>Two-thirds of e-patients talk with someone else about what they find online, most often a friend or spouse. </li></ul><ul><li>41% of e-patients have read someone else's commentary or experience about health or medical issues on an online news group, website, or blog. </li></ul><ul><li>24% of e-patients have consulted rankings or reviews online of doctors or other providers. </li></ul><ul><li>24% of e-patients have consulted rankings or reviews online of hospitals or other medical facilities. </li></ul><ul><li>19% of e-patients have signed up to receive updates about health or medical issues. </li></ul>
  6. 6. What do patients want to know? <ul><li>Is it cancer? </li></ul><ul><li>If I’m going to die, how will I die and will it hurt? </li></ul><ul><li>Why do I have this disease? </li></ul><ul><li>Will other people in my family get this disease? </li></ul><ul><li>How can I maintain my lifestyle and not be a burden to my family? </li></ul><ul><li>Where is my doctor from/went to school? </li></ul>
  7. 7. What are they looking at and is it any good?
  8. 8. Types of Web sites <ul><li>What is the purpose of the Web page? </li></ul><ul><li>Advocacy (American Heart Association) </li></ul><ul><li>Business/marketing (Pfizer) </li></ul><ul><li>Informational (National Center for Health Statistics) </li></ul><ul><li>News (CNN) </li></ul><ul><li>Entertainment (Official Star Wars Fan Club) </li></ul>
  9. 9. ABCs of Evaluation <ul><li>Accuracy </li></ul><ul><li>Authority </li></ul><ul><li>Bias </li></ul><ul><li>Currency </li></ul><ul><li>Coverage </li></ul>
  10. 10. 5 ABCs <ul><li>Each of these alone is meaningless. </li></ul><ul><li>Together they create solid guidelines for evaluation. </li></ul><ul><li>If you cannot answer the following questions, the web site you’re looking at is suspect! </li></ul>Cartoon by Peter Steiner. The New Yorker , July 5, 1993 issue (Vol.69 no. 20) page 61
  11. 11. Accuracy <ul><li>Is the information accurate? </li></ul><ul><li>Remember: </li></ul><ul><ul><li>Anyone can publish on the web </li></ul></ul><ul><ul><li>Many web pages are not reviewed or verified by editors or peers </li></ul></ul><ul><ul><li>Web standards to ensure accuracy don’t exist. </li></ul></ul>
  12. 12. Accuracy example http://www.malepregnancy.com/
  13. 13. Authority <ul><li>Is the author an authority on the subject? </li></ul><ul><li>Remember: </li></ul><ul><ul><li>It is often difficult to determine the authorship of Web pages. </li></ul></ul><ul><ul><li>If a name is listed, his/her qualifications are frequently absent. </li></ul></ul><ul><ul><li>Check if the Web page has the backing of a well-established organization, institution, or agency. </li></ul></ul>
  14. 14. What can you tell from the URL? <ul><li>The Tilde </li></ul><ul><ul><li>~ </li></ul></ul><ul><li>The Domain </li></ul><ul><ul><li>“ Dot coms” </li></ul></ul><ul><li>Contact Information </li></ul><ul><li>About Us </li></ul>
  15. 15. Authority example http://members.tripod.com/~tourette13/
  16. 16. Disclaimer
  17. 17. Bias <ul><li>Does the author bring any biases in posting the information? </li></ul><ul><li>Remember: </li></ul><ul><ul><li>Web pages often are “soapboxes” </li></ul></ul><ul><ul><li>Goals of the author aren’t clearly stated </li></ul></ul><ul><ul><li>Watch out for the emotional “kick”…photographs, exclamation points, huge fonts </li></ul></ul>
  18. 18. Bias Examples http://www.bolenreport.net/ http://martinlutherking.org Hosted by Stormfront Center for Consumer Freedom Indoor Tanning Association
  19. 19. Reliability Check <ul><li>Variety of information </li></ul><ul><ul><li>Health Conditions </li></ul></ul><ul><ul><li>Living Better </li></ul></ul><ul><li>Meets HON Code standards </li></ul><ul><li>Advertisements </li></ul><ul><li>Sponsored Pages </li></ul><ul><li>Polls that collect data </li></ul><ul><li>Quizzes from drug companies </li></ul>
  20. 20. What’s Wrong with Sponsors?
  21. 22. Currency <ul><li>Is the information current and timely? </li></ul><ul><li>Remember: </li></ul><ul><ul><li>Dates are not always included </li></ul></ul><ul><ul><li>If dates are included </li></ul></ul><ul><ul><ul><li>Date created </li></ul></ul></ul><ul><ul><ul><li>Date revised </li></ul></ul></ul><ul><ul><ul><li>Date the page was placed on the Web </li></ul></ul></ul>
  22. 23. Currency example http://www.pslgroup.com/dg950925.htm
  23. 24. Coverage <ul><li>Many health sites are not comprehensive. </li></ul><ul><li>The information may be accurate but </li></ul><ul><li>important information may be left out. </li></ul><ul><li>Remember: </li></ul><ul><ul><li>How does this information compare with other sources on the same topic? </li></ul></ul><ul><ul><li>Is a better source available? </li></ul></ul><ul><ul><li>Does the site have a disclaimer? </li></ul></ul>
  24. 25. Coverage example http://www.medical-library.net/
  25. 26. Privacy <ul><li>What kinds of data does the site collect? </li></ul><ul><li>What does it do with the data? </li></ul><ul><li>Does it use Cookies? </li></ul><ul><li>Can you opt-out? </li></ul>
  26. 27. Mayo Clinic
  27. 30. Evaluation of Health Resources
  28. 31. Finding Reliable Health Resources
  29. 32. Tips <ul><li>Put your phrase in quotation marks </li></ul><ul><ul><li>“ lung cancer”, “heart attack” </li></ul></ul><ul><li>Use medical terms if possible and be specific </li></ul><ul><li>Use Google Health rather than Google </li></ul><ul><ul><li>http://www.google.com/health/ref </li></ul></ul><ul><li>Use Google Directory </li></ul><ul><ul><li>http://www.google.com/Top/Health/ </li></ul></ul>
  30. 33. Google Health
  31. 35. Google Directory
  32. 37. MedlinePlus http://medlineplus.gov <ul><ul><li>No Advertisements! </li></ul></ul><ul><ul><li>No Sponsors! </li></ul></ul><ul><ul><li>Little use of Cookies and data isn’t saved on your computer </li></ul></ul><ul><ul><li>Don’t sell your information to 3 rd parties </li></ul></ul>
  33. 38. MedlinePlus Resources <ul><ul><li>Links to reliable, understandable health websites </li></ul></ul><ul><ul><li>Health Topics for Seniors </li></ul></ul><ul><ul><li>Easy-to-read articles </li></ul></ul><ul><ul><li>Slideshows that have sound and contrast </li></ul></ul><ul><ul><li>Medical dictionary </li></ul></ul><ul><ul><li>Medical encyclopedia with large illustrations </li></ul></ul><ul><ul><li>Links to local services </li></ul></ul><ul><ul><li>English, Spanish and other languages </li></ul></ul>
  34. 43. Drugs & Supplements
  35. 44. Encyclopedia Dictionary
  36. 45. Directories
  37. 46. News
  38. 47. Interactive Tutorials
  39. 48. Multiple Languages
  40. 49. NIH MedlinePlus Magazine <ul><li>Free subscription </li></ul>
  41. 50. Senior Health
  42. 51. ClinicalTrials.gov
  43. 52. CAPHIS/MLA Top 100 List http://www.caphis.mlanet.org/consumer/index.html
  44. 53. AAFP FamilyDoctor.org
  45. 54. Mayo Clinic.org
  46. 55. Healthfinder.gov
  47. 56. MedHelp
  48. 57. AMA Physician Finder
  49. 59. American Board of Medical Specialties
  50. 61. <ul><li>http://druginfo.nlm.nih.gov </li></ul>
  51. 64. Oncolink

×