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Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.
2 - page 37
Ethnicity, Values, and Value Conflicts of African
American and White Social Service Professionals
Andrew Edwards, MSW, Ph.D.
Cleveland State University, Emeritus
[email protected]
Mamadou M. Seck, Ph.D.
Cleveland State University
[email protected]
Journal of Social Work Values and Ethics, Volume 15, Number
2 (2018)
Copyright 2018, ASWB
This text may be freely shared among individuals, but it may
not be republished in any medium without
express written consent from the authors and advance
notification of ASWB.
Abstract
This aspect of a broader study included 110 (68
White/European American and 42 Black/African
American) social service professionals. The primary
focus of this aspect of the study was to verify the
value orientation or core beliefs of the practitioners
who deliver services to clients through social service
agencies and programs. The conceptualization
of the core beliefs explored the values and value
conflicts in relation to professional practice. The
participants were employed in a Midwestern
metropolitan region. They responded to a survey
instrument that included vignettes, closed-ended
items, scaled responses, as well as either-or type
items. Major categories of the exploration included:
life and death issues, lifestyle, domestic and
social perspectives, value conflicts with the social
work profession, and personal responses to value
conflicts. Specific items measuring values related
to abortion, homosexuality, religiosity, euthanasia,
and corporal punishment were included. Study
results showed statistical significance on 26 issues
as African American participants were compared
with White participants.
Keywords: value conflicts, social work, ethical
dilemmas, ethnicity, professional relationship
Introduction
The complexity of American society (Jarrett,
2000), specifically due to its historic, economic,
social, and ethnic makeup, requires that social
work professionals take their clients’ ethnicity,
values, and professional-client value conflicts
into consideration. Historical dynamics, such as
unproductive treatment, have contributed to the
reluctance of various population groups to engage
with professional service providers. This history
(Barker, 2014) has influenced the adoption of
guidelines that require social workers to be culturally
aware during interventions and recognizing that
diversity-related characteristics have influence upon
an individual’s thoughts, feelings, and behaviors.
Barker (2014) further noted that the concept of
values is influenced by one’s perceptions of what
comprises appropriate principles, practices, and
behaviors. An individual’s personal values are often
considered as a representation of one’s core beliefs
and what an individual may perceive as right.
Therefore, these beliefs do not require supporting
evidence for those who embrace them and may
result in behavioral and attitudinal guidelines. The
expression of values helps individuals to verify
and/or maintain their integrity and self-worth.
Therefore, for the purpose of this study, values were
categorized according to the following: (1) social,
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Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.
2 - page 38
Ethnicity, Values, and Value Conflicts of African American and
White Social Service Professionals
(2) cultural, (3) religious, (4) professional, and
(5) personal values.
Literature Review
The National Association of Social
Workers (NASW) Code of Ethics outlines specific
values and standards for professional practice. As
professionals, it is critical to abide by the standards
of the profession in addition to engaging in efforts
to promote self-awareness. The awareness of one’s
own personal values will allow the social worker
to recognize and confront value dilemmas that may
impede professional practice. As noted, for the
purposes of this study, values were identified across
five categories. The social values category (Barboza,
1998; Sears & Osten, 2005) includes principles,
customs, and beliefs that are generally accepted
as norms of a particular society. These types of
values are regulated by social pressures rather than
public policy. For example, appreciation of loyalty,
honesty, and a work ethic represent social values.
Specific ethnic codes of conduct are expressions
of social values because they are embraced by a
major segment of society and regarded as correct
ways of thinking and behaving. In contrast, cultural
values (Edwards, 2014) is a category that represents
norms and standards integrated into public policy.
In other words, cultural values are institutionalized
as standards for the American culture. For example,
education and equality (Clay, Lingwall, & Stephens,
2012; Imber & VanGeel, 2000) are addressed
through laws that require some form of educational
activity for American youth.
The religious values category (Edwards,
2014; Edwards 2000) reflects behavioral guidelines
for those who identify as members of specific
faith communities. These values are typically
written in doctrinal statements and refer to a type
of holy reference book as the foundation for the
principles. Examples of religious values relate to
sexual behavior, interpersonal behavior, dietary
restrictions, and childrearing methods.
The professional values category consists
of standards and principles designed to regulate the
behavior of those who practice within a specific
profession. For example, the National Association
of Social Workers (NASW, 2017) Code of Ethics
identifies social work values including respecting
the dignity and worth of an individual and one’s
right to self-determination. In contrast, the personal
values category (Edwards, 2014) reflects when
individuals adopt aspects of the previous four value
categories as guiding principles for their lives.
In relation to professional social work
practice, a practitioner may experience an internal
struggle (Edwards, 2014) when compelled to engage
in behaviors or tasks that are contradictory to one
or more aspects of one’s core belief system. As a
result, a value conflict may occur which refers to a
disagreement between one’s core belief system and
that of a group, organization, or society (Edwards
& Allen, 2008). Consequently, some professionals
who face value conflicts when providing services
become perplexed or even omit some tasks
associated with completing their professional
obligation. As a result, value conflicts may hinder
the social worker-client relationship necessary for
appropriate service provision.
Zastro and Kirst-Ashman (2010) suggested
that many decisions, both personal and professional,
are influenced by one’s beliefs about life, freedom,
and protective standards. Furthermore, social work
competence (Segal, Gerdes, & Steiner, 2016)
requires self-awareness and a commitment to
social justice, which supports the need to explore
personal values. As a result, the current study
sought to examine the experiences of Black/African
American and White/European American social
service providers based on their ethnicity, values,
and value conflicts in relation to their personal
beliefs.
Behaviors are an important manifestation
of values particularly when there are conflicts
pertaining to values such as equality and economic
security. However, there may be occasions when
a person must choose one of these values based
upon what it means in relation to a specific
social or economic circumstance. Jacoby (2006)
suggested that values have a hierarchy and may
reorder themselves based upon specific situations.
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.
2 - page 39
Ethnicity, Values, and Value Conflicts of African American and
White Social Service Professionals
Other researchers noted that individuals respond
to complex value-related issues such as abortion
(Alvarez & Brehm, 1995) and homosexuality
(Craig et al., 2005) with ambivalence due to their
underlying beliefs. Therefore, conflicts between
core beliefs and values of an individual may exist
at a personal level yet, at the same time, conflict
with prevailing public perceptions. For example, a
person may hold contradictory perspectives toward
homosexuality such as it is either morally wrong
and/or it could be a result of genetic inheritance
versus choice (Craig et al., 2005).
The research literature provides multiple
examples of value conflicts social service
professionals may experience. Paprocki (2014)
explored when the personal beliefs of psychology
graduate students lead to complications in their
attempts to provide therapy to patients. For example,
certain program administrators expressed challenges
with students who sought to abstain from providing
services to clients in same-sex relationships based
upon religious beliefs. Pertaining to physician-
assisted suicide and euthanasia, Himchak (2011)
suggested that this has a cultural component that is
important when providing services. For example,
reportedly African American, Hispanic, and Asian
populations value respect toward elders resulting in
resistance to physician-assisted suicide. In addition,
regarding the issue of abortion, Denbow (2013)
suggested that welfare and healthcare systems may
have instances of encouraging pregnant women
to engage in abortion. This researcher further
noted that women experiencing poverty encounter
substantially greater difficulties than their more
affluent counterparts in giving birth. Denbow (2013)
also pinpointed that women experiencing abuse,
poverty, and pregnancy could face a multitude
of challenges if they opted to bring pregnancies
to term. Millner and Hanks (2002), discussed the
possibility of value conflicts that clinical providers
could encounter when engaging with clients who
were considering abortion.
However, this current study examines a
comparison of Black/African American and White/
European American social service professionals on
their adherence to several family-related values,
domestic relationship issues, social preferences, and
their experiences with value conflicts in relation to
professional practice.
Method
Participant and data collection
The primary researchers received approval
from the required institutional review board to
conduct a survey of social service professionals.
Combined lists of social service agencies and
programs were used to develop a composite list
of 342 agencies and programs of which 185 were
selected for study participation. The social service
settings included: child welfare and adoptions,
disabilities and rehabilitation services, substance
abuse treatment, family service/counseling, juvenile
corrections, adult corrections, schools, mental health
settings, community development/planning, crisis
intervention, community organization/advocacy,
medical settings, and nursing homes/services for
older adults. The social service administrators as
well as the selected respondents returned, via mail,
the signed participation agreement in a separate
envelope without the questionnaire. Sixty-nine
social service agencies and programs agreed to
participate in this study.
The data collection instrument included
multiple choice, closed-ended, scaled-response, and
a series of one-paragraph value conflict case scenario
items. The value-related variables were generated
from a classroom exercise that undergraduate and
graduate social work students participated in for four
years. This tool was used to examine diversity in
values, the reality of value conflicts, and realization
of issues central to one’s core belief system. The
reoccurring value-related themes generated from
the classroom exercise became the foundation for
constructing the survey instrument for the purpose of
this study. To enhance the validity of the instrument,
it was implemented with two graduate level social
work students and three social workers who were
employed by a community child development center.
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.
2 - page 40
Ethnicity, Values, and Value Conflicts of African American and
White Social Service Professionals
Results
Personal value related to fidelity in
marriage
In response to this issue, there was a
significant difference between African American
participants (71.4%) and White (88.2%) social
service professionals with a chi square result of
χ 2 (1, N = 110) = 4.93, p<.05. This means that the
White respondents were more likely to agree that
their personal values support fidelity in marriage.
Personal value about abstaining from
sexual intercourse prior to marriage
In response to this issue, there was a
significant difference between African American
(31%) and White survey participants (5.9%) with
a chi square of χ 2 (1, N = 110) = 12.49, p<.05
indicating that significantly more African American
respondents adhered to the personal value to abstain
from sexual intercourse prior to marriage.
Personal value about maintaining a
meaningful and personal relationship
with God
In response to this issue, there was a
significant difference between African American
(92.9%) and White (54.4%) social service
professionals with a chi square of χ 2 (1, N = 110)
= 17.97, p<.05, indicating that African American
survey respondents identified a personal relationship
with God was one of their personal values.
Personal value about attending a church,
mosque, synagogue
In response to this issue, there was a
significant difference between African American
survey respondents (71.4%) and White (30.9%)
survey participants with a chi square of χ 2(1, N =
110) = 17.16, p<.05 indicating that significantly
more African American participants agreed that
attending churches, mosques, or synagogues was
one of their personal values.
Personal value about monetary and
financial wealth
In response to this issue, there was a
significant difference in responses between African
American (31%) and White (10.3%) respondents
with a chi square result of χ 2(1, N = 110) = 7.45,
p<.05 indicating that for African American survey
participants, money and wealth were very important.
Support for homosexual ideology and
lifestyle
In response to this issue, 70.6% of White
participants in the sample agreed to this variable,
compared to 11.9% of African American participants
with a chi square of χ 2(1, N = 110) = 35.81, p<.05,
indicating that significantly more White survey
participants support homosexual ideology and
lifestyle.
Having a belief in salvation or a positive
after-life in eternity
In response to this issue, there was a
significant difference between African American and
White participants as 88.1% of African Americans
agreed to this variable, compared to 48.5% of White
respondents with a chi square of χ 2 (1, N = 110) =
17.56, p<.05. This indicates that significantly more
African American participants believe in salvation or
a positive after-life in eternity.
Mercy killing, euthanasia, right to
terminate one’s own life, or to assist
others in the act
In response to this issue, there was a significant
difference between White (42.6%) and African
American participants (11.9%) with a chi square of
χ 2 (1, N = 110) = 11.49, p<.05. This indicates that
significantly more White survey respondents support
mercy killing, euthanasia, right to terminate one’s
own life, or to assist others in the act.
Outside of value system to accept or
support abortion as a response to rape
or incest
In response to this issue, there was a
significant difference between African American
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.
2 - page 41
Ethnicity, Values, and Value Conflicts of African American and
White Social Service Professionals
(36.6%) and White (15.2%) survey participants
with a chi square of χ 2(2, N = 110) = 6.53, p<.05.
This indicates that African American respondents
believe that abortion in situations of rape or incest
is outside of their value system.
Outside of core value system for a
man to allow a woman to support him
financially
In response to this issue, there was a
significant difference between African American
(69%) and White (18.2%) respondents with a
χ 2(2, N = 110) = 29.65, p<.05. This indicates
that significantly more African American survey
participants believe that men should not allow
women to support them financially.
Acceptance of interracial marriage
In response to this issue, there was a
significant difference between African American
(14.3%) and White (1.5%) survey participants with
a chi square of χ 2(2, N = 110) = 8.21, p<.05. This
indicates that significantly more African American
survey participants agree with interracial marriage.
Healthy women who refuse to work
outside of the home is outside of core
value system
In response to this issue, there was a
significant difference between African American and
White respondents, as 26.2% of African Americans
agreed to this variable, compared to 4.5% of White
participants, with a chi square of χ 2(2, N = 110) =
11.99, p<.05. This indicates that significantly more
African American survey participants believe that
healthy women who refuse to work outside of the
home is outside of their core value system.
Having multiple children without ever
being married is outside of core value
system
In response to this issue, there was a
significant difference between respondents as 61.9%
of African American respondents in the sample
agreed to this variable, compared to 31.8% of White
respondents with a chi square of χ 2(2, N = 110) =
10.78, p<.05. This indicates that significantly more
African American survey participants believe that
having children without ever being married would
be outside of their core value system.
Supportive of homosexual ideology and
lifestyle is outside of core value system
In response to this issue, there was a
significant difference between the two groups as
83.3% of African American participants agreed
to this variable, compared to 16.7% of White
participants with a chi square of χ 2(2, N = 110) =
48.23, p<.05. This indicates that significantly more
African American survey participants believe that
being supportive of homosexual ideologies and
lifestyles would be outside of their core value
system when compared to White respondents.
Frequently using cuss words and vulgar
language is outside of core value system
In response to this issue, there was a
significant difference between the two groups as
45.2% of African American participants agreed
to this variable compared to 22.7% of White
participants with a chi square of χ 2(2, N = 110) =
7.33, p<.05 showing that significantly more African
Americans believe that the frequent use of cuss
words and vulgar language in a professional setting
is outside of their core value system.
Some of my core beliefs regarding
human sexuality are not embraced by
the social work profession
In response to this issue, there was a
significant difference between the two groups as
26.8% of African American participants responded
with ‘not at all’ compared to 54.7% of White
participants with a chi square of χ 2(4, N = 110)
= 15.94, p<.05. This indicates that significantly
more White participants believe their core beliefs
regarding sexuality are embraced by the social
work profession.
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.
2 - page 42
Ethnicity, Values, and Value Conflicts of African American and
White Social Service Professionals
Some of my cultural beliefs are in
opposition to what is embraced by the
social work profession
In response to this issue, there was a
significant difference between the two groups as
47.4% of the African American group responded
with ‘not at all’ to this variable, compared to 75% of
White respondents with a chi square of χ 2(4, N = 110)
= 12.31, p<.05. This indicates that significantly more
White survey respondents believe that their cultural
beliefs are embraced by the social work profession as
compared to the African American group.
My beliefs regarding race are not
embraced by my family of origin (or
those who raised me)
In response to this issue, there was a
significant difference between the two groups as
60% of African American participants felt their
beliefs regarding race were ‘not at all’ opposed to
their family of origin in comparison to 47.9% of
White participants with a chi square of χ 2(4, N =
110) = 14.32, p<.05. This indicates that significantly
more African American participants feel that their
beliefs regarding race are not in conflict with the
beliefs of their family of origin as compared to
White participants.
My beliefs regarding religion/spirituality
are not embraced by my family of origin
(or those who raised me)
In response to this issue, there was a
significant difference between African American and
White professionals as 53.8% of African Americans
responded with ‘not at all’ to the question compared
to 29.5% of White participants with a chi square
of χ 2(4, N = 110) = 19.03, p<.05. This indicates
that significantly more African American survey
respondents feel their beliefs regarding religion/
spirituality are embraced by their family of origin.
My beliefs (acceptance of) regarding
corporal punishment/spanking children is
not embraced by the social work profession
In response to this issue, there was a
significant difference between African American
and White survey participants, as 20.5% of African
Americans responded with ‘not at all’ and 37.5%
of White participants with a chi square of χ 2(5, N =
110) = 14.90, p<.05. This indicates that more White
participants feel their beliefs regarding corporal
punishment/spanking children are embraced by the
social work profession.
My beliefs regarding what is appropriate
language and my rejection of cussing and/
or vulgar language are not embraced by
most of the people at the social services
agency where I work (or do my field work)
In response to this issue, there was a
significant difference between African American
and White professionals as 30.3% of African
Americans responded with ‘not at all’ compared to
60.9% of White participants with a chi square of
χ 2(4, N = 110) = 13.72, p<.05. This indicates that
significantly more White respondents feel their
beliefs regarding appropriate language and their
rejection of cussing and/or vulgar language in a
professional setting are embraced by the majority
where they work.
Agree to refer clients to religious
organization as a support system
In response to this issue, as described in
a case vignette, there was a significant difference
between African American and White participants as
13.2% of African Americans responded with ‘not at
all’ to this variable in comparison to 39.5% of White
respondents with a chi square of χ 2(4, N = 110) =
17.93, p<.05. This indicates that significantly more
African American respondents would agree to refer
individuals to religious organizations as a support
system when compared to White colleagues.
Agree to urge sexual responsibility to
their clients
In response to this issue as described in a case
vignette, there was a significant difference between
African American and White research participants
as 35.3% of African Americans responded with ‘not
at all’ compared to 47.1% of White participants
with a chi square of χ 2(4, N = 110) = 12.91, p<.05.
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.
2 - page 43
Ethnicity, Values, and Value Conflicts of African American and
White Social Service Professionals
This indicates that significantly more African
American respondents would agree at some level to
urge sexual responsibility to their clients than their
White colleagues.
Agree with the advice to client to resist
same-sex affection in public
In response to this issue, as described in
a case vignette, there was a significant difference
between the two groups as 33.3% of African
Americans responded with ‘not at all’ compared
to 46.7% of White colleagues with a chi square of
χ 2(4, N = 110) = 20.99, p<.05. This indicates that
significantly more White research participants
would disagree with advising a client to resist
same-sex affection in public.
When a client chooses an option
contrary to my beliefs I feel loss of
integrity
In response to this issue, there was a
significant difference between the two (ethnic)
groups as 10.3% of White participants agreed
with this variable as compared to 0% of African
Americans with a chi square of χ 2(1, N = 110)
= 4.62, p<.05. This indicates that significantly
more White participants feel a loss of integrity
when a client chooses an option contrary to their
own beliefs.
When a client chooses an option
contrary to my beliefs I feel angry
In response to this issue, there was a
significant difference between the two groups as
2.4% of African American participants agreed to
this variable in comparison to 14.7% of White
participants with a chi square of χ 2(1, N = 110)
= 4.38, p<.05. This indicates that significantly
more White research participants feel angry when
a client chooses an option contrary to their beliefs.
Discussion
Throughout this study, a key focus was the
verification that value-related dilemmas may evoke
emotional responses from the professional. The
emotional feeling may influence decision-making
as well as what may represent the perception of
what is identified as normal behavior exhibited
by clients. As a result, this discussion section is
organized around headings that are associated with
value-related issues that are common to professional
social service practice.
Issues related to life and death
The issue of abortion is a multifaceted,
value-related dilemma where there are underlying
causes as well as consequences related to the
decision to accept or reject abortion as an option.
If the response is based upon a fixed moral rule,
then it is referred to as ethical absolutism; if various
situations impact one’s response or behavior, then
the dilemma is referred to as ethical relativism
(Dolgoff, Harrington, & Loewenberg, 2012) which
may suggest that morality is relative to the norms
of one’s culture. Therefore, in the study survey, the
issue of abortion was divided into multiple items:
abortion to save the life of the mother, abortion as a
form of birth control, and abortion as a response to
rape or incest.
There was no statistically significant
difference between African American and White
survey participants regarding their acceptance of
abortion as a method to save the life of the mother
as well as for birth control. Both groups agreed that
abortion was acceptable under lifesaving and birth
control conditions. However, there was a statistically
significant difference between the groups regarding
abortion as a response to rape and incest. African
Americans in the sample suggested that abortion
in response to incest and rape was outside of their
value system. White survey participants suggested
that abortion was acceptable in the context of each of
the three conditions. African American respondents
indicated more of an ethical relativist view since
they chose abortion as the option to save the life of
the mother but also chose to reject abortion as an
option in the case of incest or rape.
Study results show that White survey
participants were more accepting of mercy killing,
euthanasia, and the right to terminate one’s own life
and to assist others in the act of terminating their
lives. Most African American respondents rejected
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.
2 - page 44
Ethnicity, Values, and Value Conflicts of African American and
White Social Service Professionals
mercy killing, euthanasia, and an individual’s
right to assist others in terminating a life. The
issue of African American respondents rejecting
such a practice corresponds with the results that
indicated a high percentage (92.9%) embraced a
value about maintaining a meaningful and personal
relationship with God. They also indicated that they
embraced a value that required attending church,
mosque, or synagogue. This also corresponds with
African American respondents embracing a belief
in salvation or a positive afterlife in eternity. The
concept of religiosity as expressed in the response
to the three survey items may explain the rejection
of mercy killing, euthanasia, and the right to
terminate one’s own life, and to assist others in the
act of terminating their lives. These values related
to religious beliefs may have an impact on their
attitudes toward various lifestyle and domestic
issues and the general social perspective (Ladner,
1998, Boyd-Franklin 2003, Edwards, 2014).
Issues related to lifestyle, domestic, and
social perspectives
Although …
Contents lists available at ScienceDirect
Social Science & Medicine
journal homepage: www.elsevier.com/locate/socscimed
Review article
Trajectories of women's abortion-related care: A conceptual
framework
Ernestina Coasta,∗ , Alison H. Norrisb, Ann M. Moorec, Emily
Freemand
a Dept. of International Development, London School of
Economics and Political Science, Houghton Street, London,
WC2A 2AE, UK
bOhio State University, United States
cGuttmacher Institute, United States
d PSSRU, London School of Economics and Political Science,
UK
A R T I C L E I N F O
Keywords:
Induced abortion
Conceptual framework
Systematic mapping
A B S T R A C T
We present a new conceptual framework for studying
trajectories to obtaining abortion-related care. It assembles
for the first time all of the known factors influencing a
trajectory and encourages readers to consider the ways
these macro- and micro-level factors operate in multiple and
sometimes conflicting ways. Based on presentation
to and feedback from abortion experts (researchers, providers,
funders, policymakers and advisors, advocates)
(n=325) between 03/06/2014 and 22/08/2015, and a systematic
mapping of peer-reviewed literature
(n=424) published between 01/01/2011 and 30/10/2017, our
framework synthesises the factors shaping
abortion trajectories, grouped into three domains: abortion-
specific experiences, individual contexts, and (inter)
national and sub-national contexts. Our framework includes
time-dependent processes involved in an individual
trajectory, starting with timing of pregnancy awareness. This
framework can be used to guide testable hy-
potheses about enabling and inhibiting influences on care-
seeking behaviour and consideration about how
abortion trajectories might be influenced by policy or practice.
Research based on understanding of trajectories
has the potential to improve women's experiences and outcomes
of abortion-related care.
1. Introduction
Abortion is a common feature of people's reproductive lives. An
estimated 56 million induced abortions occur annually (Sedgh et
al.,
2016), of which 54.9% (49.9%–59.4%, 90% C.I.) are unsafe
(Ganatra
et al., 2017). Unsafe abortion is a major public health problem,
espe-
cially in contexts where access to legal abortion is highly
restricted. An
estimated 7.9% (4.7%–13.2%, 95% C.I.) of maternal deaths are
due to
unsafe abortion (Say et al., 2014); unsafe abortion is also a
leading
cause of maternal morbidity. While medical procedures for
inducing
safe abortion are straightforward, whether or not an abortion is
avail-
able or safe or unsafe is influenced by a complex mix of
politics, access,
social attitudes and individual experiences. Up to 40% of
women who
experience abortion complications do not receive sufficient care
(Singh
et al., 2009). Understanding the complexity around obtaining
abortion-
related care is urgently needed, especially in light of the intense
policy
attention abortion receives. Abortion care is a landscape in flux,
with
rapid increases in access to and use of pharmaceuticals to
induce
abortion (Kapp et al., 2017), and shifting national and
international
laws, policies, treaties, protocols and funding provision (Barot,
2017a,
b).
In recent years, research has helped elucidate abortion-related
practices. There is increased recognition of the scale and
consequences
of unsafe abortion, including the costs for both women and
health
systems, in a range of legal settings (Singh et al., 2014).
Inequalities in
accessing abortion-related care have been identified in many
settings,
associated with multiple individual characteristics including,
but not
limited to, age (Shah and Ahman, 2012), marital status
(Andersen et al.,
2015), ethnicity (Dehlendorf and Weitz, 2011), geographic
location
(Jones and Jerman, 2013) and economic circumstances (Ostrach
and
Cheyney, 2014). Women experience multiple, intersecting
inequalities
in access to abortion-related care (Becker et al., 2011). The
critical role
of delays in abortion-related care-seeking (Foster et al., 2008;
Sowmini,
2013) and of what happens when women are denied services are
better
understood (DePiñeres et al., 2017; Gerdts et al., 2014). We
know much
more about attitudes and stigma around abortion (Faúndes et al.,
2013;
Hanschmidt et al., 2016). Making sense of this body of research
so that
it can inform effective policy and help identify salient gaps in
knowl-
edge is a substantial endeavour. We lack synthesis of the known
time-
and context-specific influences on trajectories to abortion-
related care.
Conceptual frameworks of abortion-related care have dealt only
with
discrete aspects of women's experiences, such as determinants
of use of
a safe abortion programme (Benson, 2005) or decisions which
lead
women to experience post-abortion complications (Banerjee and
https://doi.org/10.1016/j.socscimed.2018.01.035
Received 29 August 2017; Received in revised form 23 January
2018; Accepted 24 January 2018
∗ Corresponding author.
E-mail address: [email protected] (E. Coast).
Social Science & Medicine 200 (2018) 199–210
Available online 31 January 2018
0277-9536/ © 2018 The Author(s). Published by Elsevier Ltd.
This is an open access article under the CC BY license
(http://creativecommons.org/licenses/BY/4.0/).
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Andersen, 2012).
The conceptual framework we propose considers all the factors
in-
fluencing a woman's trajectory to obtaining abortion-related
care (safe
abortion, unsafe abortion and/or post-abortion care). Obtaining
abor-
tion-related care can involve many steps and be non-linear
(Marecek
et al., 2017). We define an abortion trajectory as the processes
and
transitions occurring over time for a pregnancy that ends in
abortion.
We use ‘trajectory’ because it incorporates the concept of time
– critical
for understanding abortion-related care-seeking since safe
abortion
ceases to be an option as pregnancy progresses (the exact limit
varies
depending on context). We use the shorthand descriptor
‘women’ but
acknowledge adolescents and transgender men within that.
Abortion is distinct from other healthcare-seeking behaviour
since:
i) legality and understanding of legal rights overlay an
individual's
pathway to care, ii) women's abortion options are determined by
the
gestational age of the pregnancy, iii) abortion is episodic, not
chronic,
iv) abortion is stigmatised, and v) only women receive abortion-
related
care. Three main groups of health-related theories might be
employed
to understand and explain abortion-related care-seeking:
determinant,
socio-ecological, and pathway. These theories have rarely been
used to
frame research on obtaining abortion-related care.
Theoretically-in-
formed research on abortion has tended to employ explanatory
fra-
meworks related to other domains including stigma (Lipp,
2011), policy
(Aniteye and Mayhew, 2013), lifecourse (Edmeades et al.,
2010), re-
productive agency (Cleeve et al., 2017), reproductive justice
(Katz,
2017), post-colonial feminism (Chiweshe et al., 2017) and
social psy-
chological frameworks (Cockrill and Nack, 2013).
Determinant health-related theories are models that elucidate a
set
of explanatory factors for the use of healthcare (Ajzen and
Fishbein,
1980; Ajzen and Madden, 1986; Andersen, 1995; Bandura,
1977;
Becker, 1974; Rosenstock, 1966). They remain influential in the
framing of research on health care-seeking, health service use
and
health behaviour change (Babitsch et al., 2012; Ricketts and
Goldsmith,
2005). Determinant theories have been criticised for their
underlying
individual rational actor orientation, focusing on characteristics
of
users versus non-users of care but providing little insight into
dynamic
care-seeking processes (Mackian et al., 2004; Pescosolido,
1992). Socio-
ecological models (McLeroy et al., 1988; Stokols, 1996)
consider mul-
tiple levels (e.g.: structural, community, individual) of
influence on
behaviour, and reciprocal causation between behaviour and
social en-
vironments, unlike determinant models that largely
conceptualise
healthcare decision-making and use as an individual-level
process.
However, simple socio-ecological models are limited in their re-
presentation of time-dependent processes and events. Pathway-
based
models, which disaggregate healthcare decision-making into
con-
stituent steps, challenge frameworks that conceive each health
care-
seeking event in isolation (Mackian et al., 2004; Pescosolido,
1992).
Understanding abortion-related care-seeking requires dynamic
process-
oriented perspectives; the circumstances of a pregnancy leading
to an
abortion unfold in the space of a few weeks and can be highly
un-
predictable. Abortion-related care-seeking cannot be understood
only
through a linear course of action; it is a process that responds to
changing circumstances and experiences. The conceptual
framework
we present is a mechanism for showing interrelatedness across
the
various temporal and spatial dimensions that influence and
shape
abortion-related care-seeking for one pregnancy. In this paper
we i)
review all influences on obtaining abortion-related care, ii)
organise
these into a conceptual framework, and iii) discuss how our
framework
can facilitate new research to better understand obtaining
abortion-
related care.
2. Methods
We used an inductive two-step approach to build this conceptual
framework: initial drafting based on expert research and
practice
knowledge, and subsequent systematic evidence mapping of
peer-re-
viewed literature.
We originally conceived the conceptual framework at an
interna-
tional seminar (IUSSP, 2014). Thematic analysis of issues
reported in
the papers presented at the seminar, which included studies
from
Africa, Asia, Latin America and Europe (n=24), along with
authors'
practice knowledge, were used to draft a first iteration of the
frame-
work based on a thematic analysis of issues reported in the
seminar
papers. The first draft of the framework, which was also
informed by
the authors’ practice knowledge, was presented and discussed at
the
end of the seminar. Subsequent iterations of the framework were
in-
tensively discussed among the authors over several months and
pre-
sented to specialist audiences at national and international
meetings
(Table 1) and continually revised following their feedback. This
process
introduced additional components to our framework, such as the
im-
portance of national policies not directly related to health (e.g.
edu-
cation and welfare policies), and elaborated specific
components (e.g.
relief as an impact of abortion on mental health; the addition of
caste-
based inequalities among those shaping social positions on
fertility and
abortion). In addition to individual components, presentation
and
feedback to specialist audiences shaped the structure of the
conceptual
framework, informing our distinction between this framework
and
socio-ecological models and our efforts to present the
framework vi-
sually so as to maximise its utility.
To confirm that the conceptual framework comprehensively cap-
tured all documented influences on obtaining abortion care we
con-
ducted a systematic evidence mapping of English-language
peer-re-
viewed literature. Evidence mapping is an evidence synthesis
methodology that is a variant of the systematic review (Miake-
Lye
et al., 2016); it is a systematic search of a broad field that
describes as
widely as possible all of the literature relating to the topic
without
limiting to studies that assess the strength or direction of
relationships.
It methodically identifies and develops a map of the literature
(Clapton
et al., 2009) and is increasingly used in a range of social
sciences
(Miake-Lye et al., 2016). Evidence mapping can be much more
in-
clusive than a systematic review: our only quality criterion was
that the
study should be published in a peer-reviewed journal. Multiple
refer-
ences based on the same sample were not excluded (as would be
the
case in a systematic review) since data generated from one
study po-
pulation might investigate different issues of relevance.
Three electronic databases [PubMed, ScienceDirect, JSTOR] of
peer-
reviewed literature were searched for items published in English
be-
tween 01/01/2011 and 30/10/2017. These databases were
selected for
their coverage of biomedical and social science research.
Combinations
of relevant search terms were developed and tested for
sensitivity. The
Table 1
Presentations of the conceptual framework to expert audiences
during its development.
Event Participants (N)
International Seminar on Decision-making regarding abortion-
determinants and consequences. Nanyuki, Kenya. 3–5 June
2014.
Abortion researchers (31)
[email protected]: an e-conference. 8–9 June 2015. Abortion
researchers, activists and providers (156)
Ipas. Chapel Hill, NC. June 26, 2015 Abortion researchers and
community advisors (8)
Psychosocial workshop. San Diego, CA. April 29, 2015
Abortion-specific researchers (70)
Population Association of America (2015) Annual Meeting. San
Diego, CA. April 30-May 2, 2015 Social science researchers
(52)
E. Coast et al. Social Science & Medicine 200 (2018) 199–210
200
final combinations of search terms were: (abortion* OR
termination*
OR (menstru* AND regul*)) AND (Deci* OR Pathw* OR
Passage* OR
Rout* OR Course* OR Traject* OR Trail* OR Track* OR
Direction*).
Fig. 1 illustrates the process.
After removing duplicates, all items identified by the search
were
screened on their title and abstract to determine inclusion. Items
were
included if: published in full text in English in a peer-reviewed
journal
between 01/01/2011 and 30/10/2017, and the abstract included
any
factor that either influenced, or was mentioned as potentially
influen-
cing, obtaining abortion care. Non-peer-reviewed items (e.g.
comment,
book review, letters) were excluded. Where inclusion or
exclusion could
not be determined on the basis of title and abstract, the full text
was
screened. Articles were included if they considered trajectories,
or in-
fluences on trajectories, to abortion-related care. Details of
included
items are available [Appendix A Supplementary Data]. We
compared
the full text of each included item (n=424) to the draft
conceptual
framework. Components we identified to be inadequately
captured by
the draft framework were incorporated in subsequent iterations.
These
included both an additional component ‘quality of care’, which
super-
seded a previous inclusion of ‘health workforce treatment of
women’, as
well as amendments to components, such as broadening
‘perception of
provider care’ to ‘perception or experience of provider care’.
All deci-
sions about changes to framework components were made as a
team,
drawing on our reading, expertise and the discussions we had
about the
framework with experts during its development.
Our search methodology has limitations. Language and date re-
strictions mean that including additional languages or years
might have
yielded additional information; however, our search did yield
evidence
from all geographic regions, including research conducted in
non-
English languages but published in English. By focusing on
more re-
cently published evidence (post-2010), our framework reflects a
con-
temporary summary of the field of abortion-related care-seeking
evidence. We searched only three databases, selected for their
range
(biomedical and social science); additional databases might
include
additional evidence, although the number of duplicates
(n=1027)
yielded by our search suggests that our strategy is robust. Our
search
only included abortion-related terms (abortion, termination,
menstrual
regulation); our search will not have yielded articles that
discuss
pregnancy decision making without reference to abortion. Our
mapping
approach means that the relative weight and rigour of evidence
on the
factors identified remain unknown. The final conceptual
framework
represents all aspects of trajectories to abortion-related care as
illumi-
nated by expert researchers, practice knowledge, and in 424
articles.
3. Conceptual framework of trajectories to abortion-related care
A conceptual framework is a set of ideas, presented in a
structured
way to help understand a phenomenon (Reichel and Ramey,
1987). Our
framework (Fig. 2) represents “the main things to be studied”
(Miles
and Huberman, 1994 p.18) with regard to trajectories to
obtaining
abortion-related care. It synthesises influences shaping these
trajec-
tories, grouped in three domains to highlight the individual- and
macro-
contexts shaping abortion-related care:
1. Time-oriented abortion-specific experiences: beginning with
preg-
nancy awareness, events that women may experience in seeking
abortion-related care.
2. Individual contexts: characteristics that influence whether a
woman
obtains abortion-related care, including interpersonal networks.
3. (Inter)national and sub-national contexts: the context within
which
an individual – and her abortion – are situated.
To understand the trajectory of a pregnancy that ends in
abortion, it
must be situated within individual- and macro-contexts; all
three
Fig. 1. Systematic evidence mapping process.
E. Coast et al. Social Science & Medicine 200 (2018) 199–210
201
domains are interrelated. For example, access to pregnancy
testing
(abortion-specific experiences) might be influenced by a
woman's
wealth (individual context) and the health system (inter/national
con-
text). The framework is globally applicable, capturing concepts
that are
relevant across time and space. For readability, our framework
includes
brief phrases or single words for each component. This
comprehensive
visual overview is the primary contribution of our article. To
illustrate
its relevance across settings, in the following sections we
explicate the
framework's components using examples.
We begin at the individual level – a woman's abortion-specific
ex-
periences, her context and characteristics, and then discuss the
macro-
level influences on trajectories to obtaining abortion-related
care.
Unlike the conceptual framework itself (Fig. 2), this requires us
to
present the three domains in some order. We start with
experiences of a
specific abortion since a woman may have more than one
abortion in
her lifetime, and a single trajectory to obtaining care might be
com-
posed of more than one abortion attempt. Our evidence-based
illus-
tration of each component is preceded by bullet points that
provides
further examples.
4. Abortion-specific experiences
The actions women take on their trajectories to (attempt to) ter-
minate a pregnancy are shaped by factors in their individual
contexts
and by their macro-environments. We consider in this section
the
multiple events that women may experience in obtaining an
abortion.
The trajectory begins with becoming aware of a pregnancy and
ends
with abortion-related care; in between there may be (non-)
disclosure
and negotiation about abortion, seeking resources to obtain the
abortion, and more than one attempt to terminate the pregnancy,
with
sequelae of those attempts. These events may not be linear; for
ex-
ample, a woman may disclose to an individual who provides
informa-
tion that the woman acts upon; this information may not lead to
an
abortion, so the woman might disclose to a different person in
order to
seek different or additional information or resources to procure
an
abortion (Moore et al., 2011b). Emotions about pregnancy,
abortion
and parenting influence all steps of abortion-specific
experience. Each
step is embedded in contexts both micro (individual) and macro;
we
address the importance of these contexts in subsequent sections.
4.1. Awareness of pregnancy
• Timing of awareness (e.g. knowledge of pregnancy symptoms
or
pregnancy testing, denial of pregnancy)
• Access to/use of pregnancy testing (e.g. cost, availability,
source)
• Access to/use of pregnancy diagnostics (e.g. foetal
abnormality, sex
determination)
Decision making around abortion-related care is highly time-
sensi-
tive. Abortion at earlier gestations is safer than later gestations
and laws
and guidelines vary about the maximum gestation at which
abortion is
permitted, under which conditions and with which method. Time
be-
tween conception and awareness of pregnancy is inversely
related to
how much time a woman has to decide about abortion. In many
set-
tings, pregnancy tests are unavailable or unaffordable (Stanback
et al.,
2013) and women's estimation of gestational age – particularly
for
younger and/or nulliparous women - can be incorrect (Foster
and
Kimport, 2013; Janiak et al., 2014).
Fig. 2. A conceptual framework for understanding women's
trajectories in seeking abortion-related care.
E. Coast et al. Social Science & Medicine 200 (2018) 199–210
202
The timing of action to confirm a pregnancy can be linked to
the
social risks of pregnancy. When a pregnancy is undesirable a
woman
may avoid acknowledging the pregnancy to herself (Sowmini,
2013).
For example, young unmarried women in an Indian study were
less
likely to recognise (or acknowledge) their pregnancy than their
married
counterparts, and unmarried women had higher levels of second
tri-
mester abortions (Jejeebhoy et al., 2010). In addition, the
gestational
age at which diagnostic testing (if available or used) for foetal
ab-
normality and/or sex - factors that may influence whether the
woman
wants an abortion - varies by context (Gawron et al., 2013).
4.2. Disclosure
• Ability to disclose, to whom (e.g. family, friend, partner,
health
professional, provider, acquaintance) and the implications of
that
(e.g. the confidant's knowledge, experience, advice, reaction)
• Negotiation around abortion with (any) others involved in the
de-
cision (e.g. partner, relatives, (potential) abortion providers)
• Reasons for disclosure or non-disclosure (e.g. policies around
partner or parental notification)
• Timing of (any) disclosure(s)
• Emotions about disclosure (e.g. fear of reactions, shame,
stigma,
relief)
Some women do not disclose their pregnancy and take abortion
decisions alone (Bowes and Macleod, 2006). For women who do
dis-
close their pregnancy, the person(s) to whom they disclose may
influ-
ence abortion decisions, be a source of (mis-)information,
and/or pro-
vide access to resources for abortion-related care. Disclosure
may lead
to negotiation about whether or how to abort. Decisions about
dis-
closure are influenced by wider social norms and belief
systems. For
example, both the choice of confidant(s) and their influence are
em-
bedded in the woman's larger context of relationships and
ability to
access resources (Nyanzi et al., 2005). In a study among young
women
in urban Cameroon, disclosure to male partners was influenced
by the
need for financial support for the abortion (Calvès, 2002).
Disclosure
discussions are enmeshed in the macro-context; more limited
abortion
options may necessitate more disclosure in order to seek
information
about care (Rossier, 2007), or disclosure may be enforced due
to
partner or parental notification protocols. Disclosure may lead
to
emotional support around an abortion decision or pressure to
abort or
not abort (Schwandt et al., 2013). Disclosure of pregnancy may
lead to
a range of negative outcomes, including condemnation and
abandon-
ment (Tangmunkongvorakul et al., 2005) or punishment
(Umuhoza
et al., 2013). Fears about the implications of disclosure of the
preg-
nancy or the desire to abort may delay initiating the abortion
(Labandera et al., 2016) or compel a woman to seek a less safe
abortion
(Schuster, 2005).
4.3. Ability to access resources for abortion
• Social/emotional support for/against abortion (e.g. from
partners,
relatives, friends, providers, doula)
• Material/physical resources (e.g. transport, money, childcare,
ability to miss education or work, insurance, commodities, in-
formation)
• Access to abortion provider/method (e.g. border crossing,
journey
time, face-to-face versus web-based provider)
Women's ability to access resources to procure an abortion is
im-
portant in every setting. Social and emotional support for or
against
abortion-related care is linked to whether, and to whom, the
pregnancy
is disclosed. A friend or partner providing support may
influence the
location and type of abortion (Conkling et al., 2015). Access to
financial
resources, frequently linked to social support, may be critical to
a wo-
man's ability to access abortion information and services. In
Latin
American countries where abortion is illegal, access to
economic re-
sources and emotional support were critical for accessing a
medically
supervised medical abortion in a clandestine clinic (Zamberlin
et al.,
2012). One quarter of urban Mozambican women who sought a
first
trimester termination at a public hospital delayed care in order
to have
sufficient funds to pay user fees (Mitchell et al., 2010).
Women's sources
of information extend beyond their social networks to include
adver-
tising, agents, the internet and other clients of abortion
providers
(Gerdts et al., 2017; Osur et al., 2015). The difference between
a safe or
unsafe abortion may be whether someone can pay for a safer
procedure
(Moore et al., 2011b) or whether she can travel to avoid more
re-
strictive laws to locations with more permissive laws (Foster et
al.,
2012). Accessibility of abortion services is multidimensional
and closely
linked to macro-environmental factors including legality,
distance and
cost (Sethna and Doull, 2013) and individual contextual factors
such as
mobility (Azmat et al., 2012).
4.4. Abortion attempt(s)
• Gestational age
• Counseling (e.g. (non-)directed, (un)supportive, waiting
period, re-
ferrals)
• Location abortion sought or conducted (e.g. home,
(un)regulated
facility)
• Type of abortion (e.g. (un)safe, (il)legal, medical, surgical,
self- or
provider-initiated)
• Perception or experience of provider care (e.g. (dis)respectful,
judgmental, confidential, private, pain management, exposure to
protests/harassment)
The complexity and length of abortion trajectories is
heterogeneous,
influenced not only by a woman's context, but also her
experiences
relating to that specific pregnancy, and may range from a legal,
straightforwardly-accessed safe process, to multiple unsafe
attempts
(Coast and Murray, 2016). In some settings, women may have
options
about what kind of abortion to access; in others, women may not
(perceive themselves to) have any choices (Banerjee and
Andersen,
2012). Gestational age at the time of the abortion may have
implica-
tions for the woman's health and affect the type of abortion
provided; if
women present beyond a gestational limit, they can be denied a
legal
abortion (Harries et al., 2015). Especially, but not only, in
contexts
where abortion is stigmatised and/or illegal (or perceived to be
illegal)
in general or at advanced gestational age, women self-induce
using
household objects, traditional methods, and abortion
medications
(Rasch et al., 2014; Vallely et al., 2015).
Abortion trajectories may also be influenced by professional
advice.
Provision of counselling may differ depending upon a woman's
cir-
cumstances (Ramachandar and Pelto, 2002), policies including
man-
dated waiting periods, and the socio-legal (Gerdts and Hudaya,
2016)
and funding (discussed below) context of abortion. Although
good
counselling should be non-directive, this does not necessarily
happen
(Vincent, 2011). Counselling may play an important role in
women's
choice of abortion method (Tamang et al., 2012), however not
all
women who seek abortion want counselling (Cameron and
Glasier,
2013) or the counselling that is provided (Moore et al., 2011a).
A
woman who expects judgemental or disrespectful advice or
counselling
from one provider may seek care elsewhere. The perception and
ex-
perience of negative responses from health practitioners against
women
seeking abortion are widely reported (e.g. Ghana (Schwandt et
al.,
2013), Brazil (Diniz et al., 2012), Vietnam (Nguyễn et al.,
2007)).
When women have a choice about abortion type, their decision
may
be informed by their understandings of abortion-related care
and its
quality, including comfort, pain (Allen et al., 2012), flexibility
of when
the abortion can occur, (perceived) confidentiality, provider
attitudes
towards privacy, and stigmatising provider behaviours
(Labandera
et al., 2016). In some settings, anti-abortion protests outside
abortion
E. Coast et al. Social Science & Medicine 200 (2018) 199–210
203
providers may affect abortion care-seeking by encouraging
women to
avoid providers where they may have to confront them (Kimport
et al.,
2012a).
4.5. Perceived and experienced outcomes from (attempted)
abortion
• Physical health (e.g. pain, side effects, future fertility,
resulting or
avoidance of morbidity or mortality)
• Mental health (e.g. depression, relief, guilt, shame)
• Socio-economic effects (e.g. out of pocket payments,
legal/penal
consequences, maintaining a relationship, education or
occupation)
Once a woman has …
Sociology Compass 9/5 (2015): 365–378, 10.1111/soc4.12256
Abortion Counselling in Britain: Understanding the
Controversy
Lesley Hoggart*
Health and Social Care, The Open University
Abstract
This article reviews literature from a number of disciplines in
order to provide an explanation of the
political controversy attached to the provision of abortion
counselling. It will show how this is an area
of health policy debate in which women’s reproductive bodies
have become a setting for political strug-
gle. The issue of abortion counselling in Britain has undergone
a number of discursive shifts in response to
political manoeuvring and changing socio-legal framing of
abortion. In particular, the article shows how
much of the controversial reframing of abortion counselling was
a tactical shift by political actors opposed
to abortion per se, and this work is critiqued for not
contextualising abortion. The article then focuses on
women’s abortion experiences and discusses research that
shows how women’s decision-making
processes, and responses to an abortion, are related to gendered
socio-cultural contexts: the extent to
which women having an abortion feel they have transgressed
societal norms and values, for example, is
likely to affect their abortion experiences. Finally, it is
suggested that providing a non-judgemental
context, and challenging negative discourses on abortion, may
be the most effective way of minimising
the possibility of negative emotions.
Introduction
This article examines the issue of abortion counselling as a site
of policy debate, in which
women’s reproductive bodies have become a setting of political
struggle. In seeking to
understand why a seemingly straightforward subject –whether
women undergoing an abortion
should have access to counselling services – has become so
contentious, it is necessary to con-
sider a wide range of other issues. An over-arching requirement
is to consider how the debate
is socio-culturally located. This means understanding that
policy debates on abortion counsel-
ling are conceptualised differently within different socio-legal
frameworks; within gendered
social norms; and within contentious political discourses. Even
the phrase itself – abortion
counselling – has been subject to a number of discursive shifts
and invested with multiple mean-
ings which are complex and malleable. Above all, as this paper
will show, different strands of
academic debate around abortion counselling customarily
proceed from particular political
positioning, and with an eye to the political implications of
research interpretations. There is
an undeniable relationship between political beliefs on abortion
and intellectual framing on
the issue of abortion counselling. These broader sociological
issues frame this paper, which
focuses on Britain1 as a case study explicating the relationship
between socio-cultural contexts
and different politics, policies and practices.
Britain, in recent years, has experienced repeated f lurries of
political debate and activity
around the issue of pre-abortion counselling. Between October
2006 and June 2007, two
Ten Minute Rule Bills that proposed mandatory counselling
were rejected by the British
Parliament, and in 2012, the MPs Frank Field and Nadine
Dorries proposed amendments to
the National Health Service (NHS) and Social Care Bill 2011
which would have removed
© 2015 John Wiley & Sons Ltd.
counselling services from abortion providers and obliged
women to receive counselling from
‘independent’ bodies before an abortion.2
Abortion counselling as an issue is worthy of exploration
because, as the paper also sets out,
developments in this area affect abortion provision and thus
have an effect upon women under-
going an abortion. Although a straightforward policy question
would address what provision
should look like in this area, such questions have always been
bound up in wider political
debates about the morality of abortion and views on its legal
status. In academia, important
contributions to the debate, from sociology, have come from
Ellie Lee, who has consistently
shown how sociological constructions – of women, of abortion
and of abortion providers –
have informed the legal regulation of abortion in Britain (Lee
1998, 2003a,b, 2004). Kristin
Luker (1984, 1996) and Rosalind Petchesky (1986) have
pioneered sociological work in this
area internationally. Although fundamentally an issue of
concern to political sociologists, many
more disciplines are involved in contributing towards literature
of relevance to the issue of
abortion counselling, including important contributions from
psychology (Boyle 1997;
MacLeod 2011); law ( Jackson 2001; Sheldon 1997); and policy
research (Allen 1985; Hoggart
2003, 2012; Rowlands 2008). This paper reviews three areas of
literature, all of which straddle
these disciplines. Firstly, it considers how policy and health-
focused literature contributes
towards understandings about what is meant by counselling in
the context of abortion.
Secondly, it looks at literature that has sought to explain, and
engage with, why counselling
came to feature as part of what Rickie Solinger (1998) has
termed ‘Abortion Wars’. Finally, it
will look at a body of literature that sheds light on the provision
of abortion counselling, from
the perspectives of women who have abortions.
What is meant by counselling?
The legal framework for abortion in Britain is the 1967
Abortion Act. This Act, as amended by
the Human Fertilisation and Embryology Act 1990, permits
abortion up to 24weeks in specific
circumstances (when two doctors agree that continuing with the
pregnancy would be more
harmful to the physical or mental health of the pregnant woman
or any existing children of
her family than if the pregnancy was aborted). After 24weeks,
an abortion is permitted if it is
necessary to save the woman’s life; it will prevent grave,
permanent injury to the physical or
mental health of the pregnant woman; or there is a substantial
risk that if the child were born,
it would suffer from serious physical or mental anomalies.3 In
law, at no gestational point do
women have the right to an abortion on request. However, as
Lee (2003b) has noted, a
‘socio-legal gap’ gradually emerged between law and practice
such that the wishes of women
came to be prioritised. This is evident by reviewing the British
government’s health information
website, NHSChoices, which simply lists one of the reasons that
a womanmight decide to have
an abortion as ‘personal circumstances’.4 This unresolved
tension between law and practice,
though, means that abortion practice as it has developed does
not have a firm legal foundation
and may be vulnerable to changing political circumstances. It
also legitimises the attempts by
those interest groups who are opposed to abortion to claim that
the law is f louted (Lee 2003b).
In Britain, abortion counselling is an area of abortion practice
that has been developed as part
of abortion services. It is not required by law and is not legally
regulated. There is, accordingly,
significant room for disparate and shifting definitions of
abortion counselling. Nevertheless, a
body of research has studied these issues and clarified both
what women should expect with
respect to abortion counselling and how to define and develop
these services.
Following the 1967 Abortion Act, a Committee on the Working
of the Abortion Act (the
Lane Committee) was set up by the government in order to
examine the workings of the
Act. The conclusions of the Lane Committee (Lane 1974), as
well as a paper authored by
366 Abortion Counselling
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365–378, 10.1111/soc4.12256
one Lane commissioner (Cheetham 1977), revealed considerable
confusion around what was
meant by abortion counselling. The report noted uncertainties
about the objectives and pur-
poses of counselling, and then offered a broad definition:
counselling was described as the pro-
vision of an opportunity for women to discuss their situation
and to obtain information,
explanations and advice. The literature has noted that the Lane
Committee was particularly
concerned to ensure that every effort should be made to provide
women equality of access to
abortion within the NHS, at a time when some women were
being turned away arbitrarily
(Wivel 1998). As abortion services were being developed in the
1970s, abortion counselling
was thus primarily envisaged in the context of ensuring that all
women who are considering
an abortion are provided with enough information with which to
make an informed decision,
that this should be free from pressure from other people, and
that equality of access should be
ensured (Lee 2003b).
In the 1980s, the Department of Health and Social Security
commissioned a national evalu-
ation ofCounselling services for sterilisation, vasectomy, and
termination of pregnancy. To date, the only
study solely on these issues, it was a large multi-stranded
project with a clear focus on the expe-
riences of service users on the counselling they had received,
and the extent to which they felt
they required counselling (Allen 1985). This focus marked a
shift towards a multifaceted under-
standing of counselling that moved beyond the Lane-based
consensus of ensuring informed
consent and equality of access. The research found considerable
variance about what was meant
by counselling as a specific activity and pointed to an important
distinction between the role of
abortion providers in ensuring that women were making an
‘informed decision’ to proceed, or
otherwise, with an abortion; and therapeutic counselling which
may be necessary for women
who are ambivalent about their decision. The first discussion is
always necessary, whilst thera-
peutic counselling may, or may not, be needed or appreciated.
Indeed, Allen also reported:
‘Many women thought that abortion should be easier and
quicker to get, and that counselling
should be available for those who wanted it but not overdone’
(Allen 1985: 342). Allen is here
drawing attention to one of the most notable findings in the
study: that many women felt they
were being over-counselled about a decision they had already
made. A large number of women
talked about making their own decision after considering their
own circumstances and not
needing to talk to anyone in the process.
There have been no further large scale studies of abortion
counselling provision in the UK,
though other studies and policy developments have led to
further refinement of what is
understood by counselling. Myra Hunter presented a model of
counselling for obstetrics and
gynaecology (including abortion) in which she distinguished
between providing information
and emotional support to all women and providing specific
support to women who are
distressed for any reason (Hunter 1994). Similarly, Jane Read
(1995) considered different types
of counselling in abortion: information counselling,
implications counselling, support counsel-
ling and therapeutic counselling; and also suggested similar
needs for women undergoing
abortion to those seeking assisted conception. Neither of these
important books, written
primarily for practitioners by practicing therapists, single out
women who have an abortion as
being in particular need of counselling. What they are clear
about is that if some women need
therapeutic counselling, this is a distinctive need that should not
be confused with information
and general support that all women should expect from all these
services, and this ref lected a
more nuanced understanding than the Lane consensus.
With respect to abortion research more generally, this has
simultaneously helped shape, and
responded to, shifts in understandings, and practices, of
abortion counselling. In a review of
relevant literature from 1967 onwards, Rowlands (2008) sought
to identify research studies
(internationally) with some findings of relevance to the issue of
abortion counselling. In his
systematic review, he noted that the term ‘counselling’ is used
widely and indiscriminately
Abortion Counselling 367
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365–378, 10.1111/soc4.12256
and is frequently used to describe the activity of simply
providing information. He drew
attention to the need to distinguish between different types of
counselling ranging from general
support and information (as proposed by Lane) through to
therapeutic counselling. He also
noted, however, that much of the research focuses on what has
been described as ‘decision
counselling’, which has often been proposed as counselling in a
more therapeutic sense. Many
of the papers in the review introduced the notion of
ambivalence to studies on abortion
decision-making, a concept that will be further explored later in
this paper. Noting that whilst
‘hard evidence’ for the beneficial effects of such decision
counselling is rare, and that there was
no evidence that this should be a mandatory service for all
women, Rowlands also observed that
a general agreement emerged from the 1970s onwards that this
service, seeking to assist those
with difficulties making decision about the outcome of a
pregnancy, should be provided. This
is indeed the direction in which abortion policy and provision
has moved, in Britain, a direction
which illustrates a sometimes fraught, but nonetheless
significant, relationship between research
and policy developments.
The policy approach is evident in guidelines that have been
generated specifically for
abortion service provision. The RCOG (Royal College of
Obstetricians & Gynaecologists)
collates evidence and sets standards for care in abortion
(including counselling requirements).
The RCOG’s Guidelines, first published in 2000, (RCOG 2011)
distinguish between three
domains: the first is information needs as discussed earlier (the
need for clinicians to have
accurate knowledge about medical complications associated
with abortion, to ensure that dis-
cussion with woman can allow for valid consent to be given by
them); the second is to state that
all women should be offered the opportunity to discuss their
decision with a non-directive
counsellor, and/or clinician; and thirdly, it recommended that
additional counselling be made
available for women who request it.
The Department of Health regulates counselling provision in all
abortion units through
Required Standard Operating Principles (RSOPs) for
termination of pregnancy services
(DoH 2013a). These draw on the RCOG Guidelines and state (p.
20) that, ‘All women
requesting an abortion should be offered the opportunity to
discuss their options and choices
with a trained counsellor and this offer should be repeated at
every stage of the care pathway.
Post abortion counselling should also be available for those
women who require it’. Indepen-
dent sector agencies, primarily the British Pregnancy Advisory
Service (bpas) and Marie Stopes
International (MSI), have increasingly provided the majority of
NHS funded procedures
(Lee 2005; Lee and Ingham 2010). At both these agencies, two
types of counselling are
available: all women are offered ‘decision counselling’ (either
by telephone or in-person)
as part of their advice and information session, and therapeutic
counselling is made available
for any woman who may request it. This sector has developed a
particular category of staff,
the ‘admin counsellor’who (together withmedical personnel) has
responsibility for information
provision and ‘decision counselling’. Women who need it have
access to staff trained and
specialised in therapeutic counselling (Lee 2003b).
This overview has shown that (apart from those opposed to
abortion) a policy consensus has
emerged, and that this consensus does inform abortion
providers: therapeutic counselling for
women considering an abortion should be available for those
women who may need it, but this
should not to be confused with discussions that facilitate
informed consent, or with discussions
designed to establish women’s comfort with their decision
(sometimes called options, or
decision, counselling). Although these latter discussions may be
facilitated by a trained counsel-
lor, this is not essential, and they do not constitute therapeutic
counselling. Decision counselling
is potentially confusing, as for the most part, it will not involve
therapeutic counselling; but, if
women are experiencing difficulties with abortion decision-
making, for any of a number of
what could be complex reasons, then therapeutic counselling
should be available. As will be
368 Abortion Counselling
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365–378, 10.1111/soc4.12256
shown later, the research on women’s abortion decision-making
suggests that such counselling
would almost certainly not be needed by the majority of women.
Why did abortion counselling emerge as a controversial issue?
Given that the purpose and scope of abortion counselling has
been both expanded and clarified
since the Lane Committee, and detailed guidance exists, why
does it regularly emerge in Britain
as a controversial issue? An exploration of the literature on the
politics of abortion and on
debates around ‘Post-Abortion Syndrome’ (PAS) can shed light
on this conundrum. Although
these are international issues, and this literature is not confined
to Britain, this paper will
continue to apply the research to the British case study.
Following the 1967 Abortion Act, anti-abortion organisations
began campaigning against
abortion provision in Britain, at first concentrating on
campaigns supporting legislation drafted
to restrict existing provision. A series of PrivateMembers Bills,
all of which would have seriously
curtailed women’s right to an abortion in one way or another,
were introduced in the 1970s and
1980s. All prompted vociferous and confrontational political
campaigns for and against the
legislation; all were defeated (Hoggart 2000). During this
period, organisations opposed to
abortion, such as SPUC (Society for the Protection for the
Unborn Child) and then LIFE, very
much focused on the right to life of what they conceptualised as
the ‘innocent baby’, and
abortion politics was dominated by a discourse of competing
rights, with campaigners in favour
of retaining abortion rights campaigning in favour of ‘a
woman’s right to choose’ (Himmelweit
1988; Hoggart 2003). The oppositional viewpoints in this conf
lict are generally referred to in
academic literature on abortion as pro-choice and anti-choice
(Cannold 2002).
A number of academics have analysed how anti-choice activists
were obliged to rethink their
strategy when it became clear that the (‘innocent baby’) foetal
discourse was not effective
(Cannold 2002; Lee 2001, 2003a,b). Throughout the 1970s and
into the 1980s, opinion polls
had indicated that a majority of the population supported liberal
abortion law, and it became
increasingly clear that large numbers of people were not going
to be persuaded by appeals based
on positioning women seeking an abortion as immoral
murderers. So, from the mid-1980s, a
new anti-choice strategy, characterised by Leslie Cannold as a
‘women-centred strategy’, was
developed: ‘a key task of the anti-choice women-centred
strategy is to replace the fetus with
the guilt-ridden, self-hating, grief-stricken, victimised and
finger-pointing “woman hurt by
abortion” as the summarising image of what is wrong with
abortion’ (Cannold 2002, p. 173).
This strategy not only constructed abortion as an innately
traumatic event that may cause
psychological damage, but portrayed women seeking an
abortion as inherently vulnerable
and susceptible to duress. This was a conscious and significant
tactical and discursive shift
amongst activists campaigning to restrict abortion. Recent
debates on abortion counselling need
to be understood in the light of these political developments.
The research evidence on these
issues will now be examined in a little more detail.
The argument for PAS, and its diagnostic criteria, has been
traced by Ellie Lee (2001) to the
work of an American, Vincent Rue, who proposed it as a form
of post-traumatic stress disorder
(PTSD) (Rue 1995). More recently, the mantle has been taken
up by Priscilla Coleman.
Coleman’s claims that quantitative research has shown an
increased risk of mental health prob-
lems after abortion were published in The British Journal of
Psychiatry (Coleman 2011) but have
since been widely discredited.5 These discussions are relevant
to the pre-abortion counselling
debate because, as noted earlier, some anti-choice activists
made a discursive shift to focus on
the possibility of post-abortion psychological distress, and this
incorporated the argument that
women will suffer if they have been insufficiently ‘counselled’
about the negative impact of
abortion. Indeed, Coleman’s paper was explicitly referred to by
Nadine Dorries in the House
Abortion Counselling 369
© 2015 John Wiley & Sons Ltd. Sociology Compass 9/5 (2015):
365–378, 10.1111/soc4.12256
of Commons when shewas seeking to introduce additional
abortion counselling requirements.6
This conceptualisation of counselling is quite different from the
decision counselling proposed
in the health service research discussed earlier, in which there
is a strong emphasis on the need
for the counselling to be non-judgemental. An extra stimulus for
anti-choice activists in Britain
to adopt this strategy is that suggesting that abortion causes
psychological damage also challenges
one of the main criteria for abortion: continuing with the
pregnancy would involve a greater
risk to the woman’s physical or mental health than ending the
pregnancy.
There is now a large amount of international literature
discussing the possible negative
psychological consequences of abortion in which pro-choice
academics have devoted a
significant amount of energy to critically analysing the claims
that abortion causes mental health
problems (Steinberg and Finer 2011). There are two main issues
to note about this discussion.
First, there is a lack of robust research evidence supporting the
concept of PAS. As noted by a
panel commissioned by the American Psychological Association
to investigate the psychological
consequences of abortion, the majority of studies suffer from
methodological problems (Major
et al. 2009). This is because it is virtually impossible to
compare a cohort of womenwho have an
abortion to a valid comparison group (Steinberg and Russo
2008).7 Second, the research that
purportedly demonstrates PAS has been widely discredited for
not taking into consideration
the social, cultural and health care contexts within which an
abortion takes place, as well as
events confounded with abortion (sexual abuse, for example)
that may themselves be associated
with negative mental health outcomes (Dagg 1991; Lee 2003a;
Steinberg and Russo 2008). In
2008, a review of the literature (Charles et al. 2008) concluded
that the claim that abortion leads
to mental health problems had been discredited by high quality
research. More recently, the
research on abortion and mental health has also been
systematically reviewed for the Academy
of Medical Royal Colleges, which concluded that there was no
difference in mental health
problems between women with unwanted pregnancies who gave
birth and those who had
an abortion (AMRC 2011).
Although this may appear to be a purely academic debate,
critiques of PAS have demon-
strated how anti-abortion bias has affected the way in which
data are interpreted. Dervious
and Russo (2000) show how in research that claims to identify
PAS, any negative mental health
outcomes that may be identified in women following an
abortion are: firstly, mis-labelled as
psychological sequelae when they are correlates; secondly,
attributed to the abortion, rather
than an unwanted pregnancy; and, thirdly, taken out of context.
In addition, the anti-choice call
for abortion counselling, drawing on the concepts ‘post-abortion
syndrome’ and ‘abortion
trauma’, not only elides pre- and post-abortion counselling, but
also blurs the distinction
between information provision and obtaining informed consent,
and counselling.
This particular focus of much pro-choice research and
scholarship has thus been reactive,
making it difficult for researchers to focus on what women
actually want. Further, there is a
notable absence of a clear consensus on the most appropriate
framework to deploy when
researching women’s abortion experiences. As Mary Boyle
(2000) has pointed out, the heated
debates that take place about abortion, often from polarised
positions, make it politically diffi-
cult for researchers to explore the complexity of women’s
abortion emotions, behaviour and
needs. Indeed, she cautions against research that is focused
upon whether women do, or do
not, experience negative outcomes following an abortion or
whether or not women seeking
an abortion could be described as vulnerable, on the grounds
that this keeps research within
an agenda which focuses on abortion’s intrinsic potential to
harm women (Boyle 2002). In
Britain, this is an especially pertinent point because, as Lee
(2003b) has pointed out, the justifi-
cation of legal abortion enshrined in the 1967 Act is very much
based on the construction of
women as psychologically vulnerable victims. So there are a
number of factors that discourage
pro-choice researchers from dwelling on abortion and emotions.
Others, however, have
370 Abortion Counselling
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365–378, 10.1111/soc4.12256
pointed out that the polarisation can cause pro-choice
researchers to deny any possibility of
negative or ambivalent emotions following an abortion,
suggesting that such a denial of some
women’s feelings may not be welcomed bywomen themselves
(Cannold 2002). More recently,
there has been greater willingness to tackle such issues, often
within the context of theorising
abortion-related stigma, and with an underlying assumption that
an exploration of the full range
of post-abortion emotions does not, of necessity, lead to an anti-
choice interpretation of the
research (Cockrill and Nack 2013; Hoggart 2012; Quinn and
Chaudoir 2009).
Although such considerations have made research challenging,
there has been interest
amongst pro-choice researchers and abortion providers in
examining women’s abortion
experiences. From this research, it is possible to analyse the
issue of abortion counselling from
the perspectives of women who have abortions.
Women’s abortion experiences: who needs counselling?
Although few research studies have focused specifically on
counselling, there is a body of
research that has considered women’s abortion decision-making,
abortion experiences and their
expressed needs. The socio-legal context outlined above, in
which understandings of abortion
counselling have become more nuanced over the years, and yet
are still not legally defined or
regulated, forms the backdrop to the research in Britain.
A particularly important theme in research on women’s abortion
experiences is the value
women place on providers being clearly non-judgemental. In
particular, information provision
and staff attitudes (kindliness and acting in a manner that
reduces women’s feelings of anxiety
and isolation) feature in women’s reports (Harden and Ogden
1999; Lee et al. 2004). Rowlands
(2008) also points out that the research indicates that women
value being given clear
information about abortion procedures at the pre-abortion
consultation, and a recent study
has shown that women value an uncomplicated referral process
(Brown 2013).
Research on abortion decision-making has shown that women
take a range of issues into
consideration and generally make their decision based on their
own individual circumstances
at a particular moment in time (Purcell et al. 2014; Rowlands
2008). It has been noted also that
the most usual experience is where women discuss their
situation with friends, parents and
family members and have already made their decision, before
they approach a medical
professional, or abortion provider (Brown 2013; Kumar et al.
2004). It has been argued that
the research evidence indicates that whilst women may be
distressed when faced with an
unwanted pregnancy, more are comfortable with their decision
that is often assumed in public
debate (Boyle 2000; Hadley 1996), thus echoing findings of
Allen’s (1985) counselling study.
Another area where there is some agreement is in the
recognition that it is women who may
be ambivalent about their decision who are most likely to
express a need for therapeutic
counselling. Research has shown that ambivalent women are at
higher risk of poor psycholog-
ical outcomes than non-ambivalent women (Ashton 1980;
Cameron 2010; Hare andHeywood
1981). AndRowlands’ (2008) international review points out
that most studies have shown that
ambivalence has been shown to be a predictor of poor outcomes,
but he is careful to point out
that ‘feelings of ambivalence are an indication that abortion has
a price, which implies that it is a
more or less painful solution to an unwanted pregnancy’
(Rowlands 2008: 176). As we have
seen, this does not mean that the abortion itself has caused poor
psychological outcomes: abor-
tion …
lable at ScienceDirect
Social Science & Medicine 191 (2017) 109e116
Contents lists avai
Social Science & Medicine
journal homepage: www.elsevier .com/locate/socscimed
A good abortion experience: A qualitative exploration of
women's
needs and preferences in clinical care
Anna L. Altshuler a, *, Alison Ojanen-Goldsmith b, Paul D.
Blumenthal a, Lori R. Freedman c
a Stanford University School of Medicine, Dept. Ob/Gyn, 300
Pasteur Dr. HG332, Stanford, CA 94305, USA
b Full Spectrum Doulas, Seattle, WA, USA
c Advancing New Standards in Reproductive Health/University
of California, San Francisco, 1330 Broadway, Suite 1100,
Oakland, CA 94612, USA
a r t i c l e i n f o
Article history:
Received 20 January 2017
Received in revised form
2 September 2017
Accepted 7 September 2017
Available online 8 September 2017
Keywords:
United States
Abortion experience
Abortion stigma
Abortion services
Reproductive justice
Abortion access
Patient-centered care
Abortion normalization
* Corresponding author. Present address: Californ
475 Brannan St #220, San Francisco, CA 94107, USA.
E-mail addresses: [email protected] (A.
com (A. Ojanen-Goldsmith), [email protected][email protected]
(L.R. Freedman).
http://dx.doi.org/10.1016/j.socscimed.2017.09.010
0277-9536/© 2017 The Authors. Published by Elsevier
a b s t r a c t
What do women ending their pregnancies want and need to have
a good clinical abortion experience?
Since birth experiences are better studied, birth stories are more
readily shared and many women who
have had an abortion have also given birth, we sought to
compare women's needs and preferences in
abortion to those in birth. We conducted semi-structured
intensive interviews with women who had
both experiences in the United States and analyzed their
intrapartum and abortion care narratives using
grounded theory, identifying needs and preferences in abortion
that were distinct from birth. Based on
interviews with twenty women, three themes emerged: to be
affirmed as moral decision-makers, to be
able to determine their degree of awareness during the abortion,
and to have care provided in a discreet
manner to avoid being judged by others for having an abortion.
These findings suggest that some women
have distinctive emotional needs and preferences during
abortion care, likely due to different circum-
stances and sociopolitical context of abortion. Tailoring
services and responding to individual needs may
contribute to a good abortion experience.
© 2017 The Authors. Published by Elsevier Ltd. This is an open
access article under the CC BY-NC-ND
license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
1. Introduction
Many women experience both abortion and birth over the
course of their reproductive lives. In the United States, an
estimated
30% of women have an induced abortion by age 45 (Jones and
Kavanaugh, 2011) and of those women who have had an abor-
tion, 59% have previously given birth (Jerman et al., 2016).
Abortion
represents a transition for pregnant women, moving from the
possibility of bearing that child to proceeding with one's life as
is.
As with birth, how abortion happens matters to women, their
families and communities (Lie et al., 2008; Lyerly, 2013;
Simkin,
1991). However, unlike with birth, researchers and policy
makers
have given less attention to what constitutes a good abortion
experience. This reality may be due to a greater focus on
defending
access to abortion by creating a body of evidence demonstrating
that it does not harmwomen physically or mentally and
improving
ia Pacific Research Institute,
L. Altshuler), [email protected]
u (P.D. Blumenthal), Lori.
Ltd. This is an open access article u
its technical aspects. Fortunately, undergoing an abortion in the
U.S.
is extremely safe (Biggs et al., 2017; Jatlaoui et al., 2016) and
the
process is effective (Ireland et al., 2015), permitting a shift in
focus
to improving other aspects of care quality, namely patient-
centeredness, which encompasses care guided by a patient's
values (Institute of Medicine, 2001). Prior studies suggest that
most
women tend to be satisfied with their care (Taylor et al., 2013;
Tilles
et al., 2016) but some women have challenging experiences
(Kimport et al., 2012; Weitz and Cockrill, 2010), implying that
there
is room for improvement. Accordingly, we must learn
fromwomen
who have sought abortion services about their experiences and
how they would like their care to be.
A qualitative investigation of women's needs and preferences to
improve care has been performed for maternity services and it
offers a preliminary framework for studying abortion due to
their
commonalitiesdboth birth and abortion affect pregnant women
and are two among other reproductive health services that
women's health clinicians provide. Bioethicist and obstetrician
Anne Lyerly examined what constitutes a good birth experience
by
learning from childbearing women about what they valued,
amounting to one of the most comprehensive efforts to date on
this
subject (Lyerly, 2013). She found that the five core domains for
a
nder the CC BY-NC-ND license
(http://creativecommons.org/licenses/by-nc-nd/4.0/).
http://creativecommons.org/licenses/by-nc-nd/4.0/
mailto:[email protected]
mailto:[email protected]
mailto:[email protected]
mailto:[email protected]
mailto:[email protected]
mailto:[email protected]
http://crossmark.crossref.org/dialog/?doi=10.1016/j.socscimed.2
017.09.010&domain=pdf
www.sciencedirect.com/science/journal/02779536
http://www.elsevier.com/locate/socscimed
http://dx.doi.org/10.1016/j.socscimed.2017.09.010
http://creativecommons.org/licenses/by-nc-nd/4.0/
http://dx.doi.org/10.1016/j.socscimed.2017.09.010
http://dx.doi.org/10.1016/j.socscimed.2017.09.010
A.L. Altshuler et al. / Social Science & Medicine 191 (2017)
109e116110
good birth entail being the principal decider and actively wit-
nessing the birth process (agency); trusting the health provider
and
feeling safe from physical harm in the face of risk, being free
from
unwanted intrusions and feeling at ease (personal security);
having
the birth experience respected as a significant event, being
treated
with dignity and possessing self-respect (respect); maintaining
clear communication and access to information throughout the
birthing process (knowledge); and feeling emotionally
connected
to the baby, loved ones, health professionals and other women
(connectedness) (Lyerly, 2013).
Lyerly found that these domains for a good birth generally
correspond to dimensions needed for individual wellbeing theo-
rized by Powers et al. in their framework for social justice in
health
policy (Powers and Faden, 2006), implying that they are
potentially
broad enough to apply to other areas of healthcare. Moreover,
previous studies on abortion suggest that there are parallels be-
tweenwomen's needs in maternity and abortion care. With
respect
to Lyerly's domain “agency,” researchers have found that
women
value being able to decide to have an abortion to plan their lives
(Andrews and Boyle, 2003; Fielding et al., 2002) and to
determine
how the abortion happens (Elul et al., 2000; Fielding et al.,
2002;
Kerns et al., 2012; Simonds et al., 1998). Elements of “personal
se-
curity” emerged in women's narratives in Kimport et al., in
which
women described a need to feel physically safewhile obtaining
care
in abortion clinics that operated in hostile anti-abortion
environ-
ments (Kimport et al., 2012). Findings from Castle et al. under-
scored the importance that women ascribe to having information
to prepare for an abortion (Castle et al., 1995), consistent with
the
domain “knowledge.” “Connectedness” and “respect” were also
important to women, demonstrated as an appreciation for
compassionate behavior from providers (Kimport et al., 2012;
McLemore et al., 2014; Taylor et al., 2013) and having a sense
of
dignity upheld during abortion care (McLemore et al., 2014;
Weitz
and Cockrill, 2010).
Despite these commonalities in childbirth and abortion, there
are also notable differences, such as women's circumstances at
the
time of pregnancy and the sociopolitical context within which
these reproductive experiences occur. Birth tends to be viewed
as
joyous and physiological (Gaskin, 2011; Lyerly, 2013) and
intra-
partum services arewell-integrated into healthcare: they are
linked
to antepartum and postpartum services, have private and public
insurance coverage, and are accessible to most women (Kaiser
Family Foundation, 2013; Rayburn et al., 2012). By contrast,
abor-
tion is politicized and stigmatized (Joffe, 2013; Norris et al.,
2011).
Services tend to be provided separately from other medical care
in
limited supply at specialized abortion facilities, requiring
amajority
of women to travel far and to pay out of pocket for care (Jerman
et al., 2016; Jones and Jerman, 2014). Given these different
con-
texts for birth and abortion, we sought to examine ways in
which
women's needs and preferences in abortion care differ from
intrapartum care.
2. Methods
The study was conducted in Northern California through semi-
structured intensive interviews from April to December 2014
with women who had individually experienced both birth and
abortion. Participants were recruited through advertisements on
Craigslist, at community colleges and at public libraries that
tar-
geted women residing in a geographical area with multiple birth
and abortion facilities to choose from. We recruited women
from
the community rather than specific medical facilities to solicit
variation in women's clinical experiences and to identify
underly-
ing patterns that were not influenced by a particular medical
setting. We predicted this recruitment strategy would
underrepresent women who had abortions for fetal or maternal
indications given they account for less than 5% of all abortions
(Jatlaoui et al., 2016). We did not view it as a limitation as
those
experiences have been studied (Lafarge et al., 2014). Inclusion
criteria were age 18e49 years, had an abortion in the last 5 years
and a prior birth at any time point in the United States, and not
pregnant at the time of interview. These timeframes were
selected
because it has been demonstrated that women remember their
births accurately and vividly as many as 10e20 years later
(Simkin,
1992) but this information is unknown for abortion. All women
gave informed consent prior to participating and received a $40
gift
card as compensation for their time.
An obstetrician/gynecologist-researcher (AA) who had prior
interview experience and did not know the participants
personally
or professionally conducted interviews in English over the
phone
and in-person in a nonmedical setting. Phone interviews allowed
us to expand recruitment and to accommodate women who had
childcare or transportation difficulties. AA did not identify
herself
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx
Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx

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Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No.docx

  • 1. Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No. 2 - page 37 Ethnicity, Values, and Value Conflicts of African American and White Social Service Professionals Andrew Edwards, MSW, Ph.D. Cleveland State University, Emeritus [email protected] Mamadou M. Seck, Ph.D. Cleveland State University [email protected] Journal of Social Work Values and Ethics, Volume 15, Number 2 (2018) Copyright 2018, ASWB This text may be freely shared among individuals, but it may not be republished in any medium without express written consent from the authors and advance notification of ASWB. Abstract This aspect of a broader study included 110 (68 White/European American and 42 Black/African American) social service professionals. The primary focus of this aspect of the study was to verify the value orientation or core beliefs of the practitioners who deliver services to clients through social service agencies and programs. The conceptualization of the core beliefs explored the values and value conflicts in relation to professional practice. The participants were employed in a Midwestern
  • 2. metropolitan region. They responded to a survey instrument that included vignettes, closed-ended items, scaled responses, as well as either-or type items. Major categories of the exploration included: life and death issues, lifestyle, domestic and social perspectives, value conflicts with the social work profession, and personal responses to value conflicts. Specific items measuring values related to abortion, homosexuality, religiosity, euthanasia, and corporal punishment were included. Study results showed statistical significance on 26 issues as African American participants were compared with White participants. Keywords: value conflicts, social work, ethical dilemmas, ethnicity, professional relationship Introduction The complexity of American society (Jarrett, 2000), specifically due to its historic, economic, social, and ethnic makeup, requires that social work professionals take their clients’ ethnicity, values, and professional-client value conflicts into consideration. Historical dynamics, such as unproductive treatment, have contributed to the reluctance of various population groups to engage with professional service providers. This history (Barker, 2014) has influenced the adoption of guidelines that require social workers to be culturally aware during interventions and recognizing that diversity-related characteristics have influence upon an individual’s thoughts, feelings, and behaviors. Barker (2014) further noted that the concept of values is influenced by one’s perceptions of what comprises appropriate principles, practices, and
  • 3. behaviors. An individual’s personal values are often considered as a representation of one’s core beliefs and what an individual may perceive as right. Therefore, these beliefs do not require supporting evidence for those who embrace them and may result in behavioral and attitudinal guidelines. The expression of values helps individuals to verify and/or maintain their integrity and self-worth. Therefore, for the purpose of this study, values were categorized according to the following: (1) social, C:UsersRevaedwAppDataLocalMicrosoftWindowsINetCac heContent.OutlookDownloads[email protected] mailto:[email protected] Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No. 2 - page 38 Ethnicity, Values, and Value Conflicts of African American and White Social Service Professionals (2) cultural, (3) religious, (4) professional, and (5) personal values. Literature Review The National Association of Social Workers (NASW) Code of Ethics outlines specific values and standards for professional practice. As professionals, it is critical to abide by the standards of the profession in addition to engaging in efforts to promote self-awareness. The awareness of one’s own personal values will allow the social worker to recognize and confront value dilemmas that may impede professional practice. As noted, for the
  • 4. purposes of this study, values were identified across five categories. The social values category (Barboza, 1998; Sears & Osten, 2005) includes principles, customs, and beliefs that are generally accepted as norms of a particular society. These types of values are regulated by social pressures rather than public policy. For example, appreciation of loyalty, honesty, and a work ethic represent social values. Specific ethnic codes of conduct are expressions of social values because they are embraced by a major segment of society and regarded as correct ways of thinking and behaving. In contrast, cultural values (Edwards, 2014) is a category that represents norms and standards integrated into public policy. In other words, cultural values are institutionalized as standards for the American culture. For example, education and equality (Clay, Lingwall, & Stephens, 2012; Imber & VanGeel, 2000) are addressed through laws that require some form of educational activity for American youth. The religious values category (Edwards, 2014; Edwards 2000) reflects behavioral guidelines for those who identify as members of specific faith communities. These values are typically written in doctrinal statements and refer to a type of holy reference book as the foundation for the principles. Examples of religious values relate to sexual behavior, interpersonal behavior, dietary restrictions, and childrearing methods. The professional values category consists of standards and principles designed to regulate the behavior of those who practice within a specific profession. For example, the National Association
  • 5. of Social Workers (NASW, 2017) Code of Ethics identifies social work values including respecting the dignity and worth of an individual and one’s right to self-determination. In contrast, the personal values category (Edwards, 2014) reflects when individuals adopt aspects of the previous four value categories as guiding principles for their lives. In relation to professional social work practice, a practitioner may experience an internal struggle (Edwards, 2014) when compelled to engage in behaviors or tasks that are contradictory to one or more aspects of one’s core belief system. As a result, a value conflict may occur which refers to a disagreement between one’s core belief system and that of a group, organization, or society (Edwards & Allen, 2008). Consequently, some professionals who face value conflicts when providing services become perplexed or even omit some tasks associated with completing their professional obligation. As a result, value conflicts may hinder the social worker-client relationship necessary for appropriate service provision. Zastro and Kirst-Ashman (2010) suggested that many decisions, both personal and professional, are influenced by one’s beliefs about life, freedom, and protective standards. Furthermore, social work competence (Segal, Gerdes, & Steiner, 2016) requires self-awareness and a commitment to social justice, which supports the need to explore personal values. As a result, the current study sought to examine the experiences of Black/African American and White/European American social service providers based on their ethnicity, values, and value conflicts in relation to their personal
  • 6. beliefs. Behaviors are an important manifestation of values particularly when there are conflicts pertaining to values such as equality and economic security. However, there may be occasions when a person must choose one of these values based upon what it means in relation to a specific social or economic circumstance. Jacoby (2006) suggested that values have a hierarchy and may reorder themselves based upon specific situations. Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No. 2 - page 39 Ethnicity, Values, and Value Conflicts of African American and White Social Service Professionals Other researchers noted that individuals respond to complex value-related issues such as abortion (Alvarez & Brehm, 1995) and homosexuality (Craig et al., 2005) with ambivalence due to their underlying beliefs. Therefore, conflicts between core beliefs and values of an individual may exist at a personal level yet, at the same time, conflict with prevailing public perceptions. For example, a person may hold contradictory perspectives toward homosexuality such as it is either morally wrong and/or it could be a result of genetic inheritance versus choice (Craig et al., 2005). The research literature provides multiple examples of value conflicts social service professionals may experience. Paprocki (2014)
  • 7. explored when the personal beliefs of psychology graduate students lead to complications in their attempts to provide therapy to patients. For example, certain program administrators expressed challenges with students who sought to abstain from providing services to clients in same-sex relationships based upon religious beliefs. Pertaining to physician- assisted suicide and euthanasia, Himchak (2011) suggested that this has a cultural component that is important when providing services. For example, reportedly African American, Hispanic, and Asian populations value respect toward elders resulting in resistance to physician-assisted suicide. In addition, regarding the issue of abortion, Denbow (2013) suggested that welfare and healthcare systems may have instances of encouraging pregnant women to engage in abortion. This researcher further noted that women experiencing poverty encounter substantially greater difficulties than their more affluent counterparts in giving birth. Denbow (2013) also pinpointed that women experiencing abuse, poverty, and pregnancy could face a multitude of challenges if they opted to bring pregnancies to term. Millner and Hanks (2002), discussed the possibility of value conflicts that clinical providers could encounter when engaging with clients who were considering abortion. However, this current study examines a comparison of Black/African American and White/ European American social service professionals on their adherence to several family-related values, domestic relationship issues, social preferences, and their experiences with value conflicts in relation to professional practice.
  • 8. Method Participant and data collection The primary researchers received approval from the required institutional review board to conduct a survey of social service professionals. Combined lists of social service agencies and programs were used to develop a composite list of 342 agencies and programs of which 185 were selected for study participation. The social service settings included: child welfare and adoptions, disabilities and rehabilitation services, substance abuse treatment, family service/counseling, juvenile corrections, adult corrections, schools, mental health settings, community development/planning, crisis intervention, community organization/advocacy, medical settings, and nursing homes/services for older adults. The social service administrators as well as the selected respondents returned, via mail, the signed participation agreement in a separate envelope without the questionnaire. Sixty-nine social service agencies and programs agreed to participate in this study. The data collection instrument included multiple choice, closed-ended, scaled-response, and a series of one-paragraph value conflict case scenario items. The value-related variables were generated from a classroom exercise that undergraduate and graduate social work students participated in for four years. This tool was used to examine diversity in values, the reality of value conflicts, and realization of issues central to one’s core belief system. The reoccurring value-related themes generated from the classroom exercise became the foundation for
  • 9. constructing the survey instrument for the purpose of this study. To enhance the validity of the instrument, it was implemented with two graduate level social work students and three social workers who were employed by a community child development center. Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No. 2 - page 40 Ethnicity, Values, and Value Conflicts of African American and White Social Service Professionals Results Personal value related to fidelity in marriage In response to this issue, there was a significant difference between African American participants (71.4%) and White (88.2%) social service professionals with a chi square result of χ 2 (1, N = 110) = 4.93, p<.05. This means that the White respondents were more likely to agree that their personal values support fidelity in marriage. Personal value about abstaining from sexual intercourse prior to marriage In response to this issue, there was a significant difference between African American (31%) and White survey participants (5.9%) with a chi square of χ 2 (1, N = 110) = 12.49, p<.05 indicating that significantly more African American respondents adhered to the personal value to abstain
  • 10. from sexual intercourse prior to marriage. Personal value about maintaining a meaningful and personal relationship with God In response to this issue, there was a significant difference between African American (92.9%) and White (54.4%) social service professionals with a chi square of χ 2 (1, N = 110) = 17.97, p<.05, indicating that African American survey respondents identified a personal relationship with God was one of their personal values. Personal value about attending a church, mosque, synagogue In response to this issue, there was a significant difference between African American survey respondents (71.4%) and White (30.9%) survey participants with a chi square of χ 2(1, N = 110) = 17.16, p<.05 indicating that significantly more African American participants agreed that attending churches, mosques, or synagogues was one of their personal values. Personal value about monetary and financial wealth In response to this issue, there was a significant difference in responses between African American (31%) and White (10.3%) respondents with a chi square result of χ 2(1, N = 110) = 7.45, p<.05 indicating that for African American survey participants, money and wealth were very important.
  • 11. Support for homosexual ideology and lifestyle In response to this issue, 70.6% of White participants in the sample agreed to this variable, compared to 11.9% of African American participants with a chi square of χ 2(1, N = 110) = 35.81, p<.05, indicating that significantly more White survey participants support homosexual ideology and lifestyle. Having a belief in salvation or a positive after-life in eternity In response to this issue, there was a significant difference between African American and White participants as 88.1% of African Americans agreed to this variable, compared to 48.5% of White respondents with a chi square of χ 2 (1, N = 110) = 17.56, p<.05. This indicates that significantly more African American participants believe in salvation or a positive after-life in eternity. Mercy killing, euthanasia, right to terminate one’s own life, or to assist others in the act In response to this issue, there was a significant difference between White (42.6%) and African American participants (11.9%) with a chi square of χ 2 (1, N = 110) = 11.49, p<.05. This indicates that significantly more White survey respondents support mercy killing, euthanasia, right to terminate one’s own life, or to assist others in the act. Outside of value system to accept or
  • 12. support abortion as a response to rape or incest In response to this issue, there was a significant difference between African American Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No. 2 - page 41 Ethnicity, Values, and Value Conflicts of African American and White Social Service Professionals (36.6%) and White (15.2%) survey participants with a chi square of χ 2(2, N = 110) = 6.53, p<.05. This indicates that African American respondents believe that abortion in situations of rape or incest is outside of their value system. Outside of core value system for a man to allow a woman to support him financially In response to this issue, there was a significant difference between African American (69%) and White (18.2%) respondents with a χ 2(2, N = 110) = 29.65, p<.05. This indicates that significantly more African American survey participants believe that men should not allow women to support them financially. Acceptance of interracial marriage In response to this issue, there was a significant difference between African American
  • 13. (14.3%) and White (1.5%) survey participants with a chi square of χ 2(2, N = 110) = 8.21, p<.05. This indicates that significantly more African American survey participants agree with interracial marriage. Healthy women who refuse to work outside of the home is outside of core value system In response to this issue, there was a significant difference between African American and White respondents, as 26.2% of African Americans agreed to this variable, compared to 4.5% of White participants, with a chi square of χ 2(2, N = 110) = 11.99, p<.05. This indicates that significantly more African American survey participants believe that healthy women who refuse to work outside of the home is outside of their core value system. Having multiple children without ever being married is outside of core value system In response to this issue, there was a significant difference between respondents as 61.9% of African American respondents in the sample agreed to this variable, compared to 31.8% of White respondents with a chi square of χ 2(2, N = 110) = 10.78, p<.05. This indicates that significantly more African American survey participants believe that having children without ever being married would be outside of their core value system. Supportive of homosexual ideology and lifestyle is outside of core value system
  • 14. In response to this issue, there was a significant difference between the two groups as 83.3% of African American participants agreed to this variable, compared to 16.7% of White participants with a chi square of χ 2(2, N = 110) = 48.23, p<.05. This indicates that significantly more African American survey participants believe that being supportive of homosexual ideologies and lifestyles would be outside of their core value system when compared to White respondents. Frequently using cuss words and vulgar language is outside of core value system In response to this issue, there was a significant difference between the two groups as 45.2% of African American participants agreed to this variable compared to 22.7% of White participants with a chi square of χ 2(2, N = 110) = 7.33, p<.05 showing that significantly more African Americans believe that the frequent use of cuss words and vulgar language in a professional setting is outside of their core value system. Some of my core beliefs regarding human sexuality are not embraced by the social work profession In response to this issue, there was a significant difference between the two groups as 26.8% of African American participants responded with ‘not at all’ compared to 54.7% of White participants with a chi square of χ 2(4, N = 110) = 15.94, p<.05. This indicates that significantly more White participants believe their core beliefs
  • 15. regarding sexuality are embraced by the social work profession. Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No. 2 - page 42 Ethnicity, Values, and Value Conflicts of African American and White Social Service Professionals Some of my cultural beliefs are in opposition to what is embraced by the social work profession In response to this issue, there was a significant difference between the two groups as 47.4% of the African American group responded with ‘not at all’ to this variable, compared to 75% of White respondents with a chi square of χ 2(4, N = 110) = 12.31, p<.05. This indicates that significantly more White survey respondents believe that their cultural beliefs are embraced by the social work profession as compared to the African American group. My beliefs regarding race are not embraced by my family of origin (or those who raised me) In response to this issue, there was a significant difference between the two groups as 60% of African American participants felt their beliefs regarding race were ‘not at all’ opposed to their family of origin in comparison to 47.9% of White participants with a chi square of χ 2(4, N = 110) = 14.32, p<.05. This indicates that significantly
  • 16. more African American participants feel that their beliefs regarding race are not in conflict with the beliefs of their family of origin as compared to White participants. My beliefs regarding religion/spirituality are not embraced by my family of origin (or those who raised me) In response to this issue, there was a significant difference between African American and White professionals as 53.8% of African Americans responded with ‘not at all’ to the question compared to 29.5% of White participants with a chi square of χ 2(4, N = 110) = 19.03, p<.05. This indicates that significantly more African American survey respondents feel their beliefs regarding religion/ spirituality are embraced by their family of origin. My beliefs (acceptance of) regarding corporal punishment/spanking children is not embraced by the social work profession In response to this issue, there was a significant difference between African American and White survey participants, as 20.5% of African Americans responded with ‘not at all’ and 37.5% of White participants with a chi square of χ 2(5, N = 110) = 14.90, p<.05. This indicates that more White participants feel their beliefs regarding corporal punishment/spanking children are embraced by the social work profession. My beliefs regarding what is appropriate language and my rejection of cussing and/
  • 17. or vulgar language are not embraced by most of the people at the social services agency where I work (or do my field work) In response to this issue, there was a significant difference between African American and White professionals as 30.3% of African Americans responded with ‘not at all’ compared to 60.9% of White participants with a chi square of χ 2(4, N = 110) = 13.72, p<.05. This indicates that significantly more White respondents feel their beliefs regarding appropriate language and their rejection of cussing and/or vulgar language in a professional setting are embraced by the majority where they work. Agree to refer clients to religious organization as a support system In response to this issue, as described in a case vignette, there was a significant difference between African American and White participants as 13.2% of African Americans responded with ‘not at all’ to this variable in comparison to 39.5% of White respondents with a chi square of χ 2(4, N = 110) = 17.93, p<.05. This indicates that significantly more African American respondents would agree to refer individuals to religious organizations as a support system when compared to White colleagues. Agree to urge sexual responsibility to their clients In response to this issue as described in a case vignette, there was a significant difference between African American and White research participants
  • 18. as 35.3% of African Americans responded with ‘not at all’ compared to 47.1% of White participants with a chi square of χ 2(4, N = 110) = 12.91, p<.05. Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No. 2 - page 43 Ethnicity, Values, and Value Conflicts of African American and White Social Service Professionals This indicates that significantly more African American respondents would agree at some level to urge sexual responsibility to their clients than their White colleagues. Agree with the advice to client to resist same-sex affection in public In response to this issue, as described in a case vignette, there was a significant difference between the two groups as 33.3% of African Americans responded with ‘not at all’ compared to 46.7% of White colleagues with a chi square of χ 2(4, N = 110) = 20.99, p<.05. This indicates that significantly more White research participants would disagree with advising a client to resist same-sex affection in public. When a client chooses an option contrary to my beliefs I feel loss of integrity In response to this issue, there was a significant difference between the two (ethnic)
  • 19. groups as 10.3% of White participants agreed with this variable as compared to 0% of African Americans with a chi square of χ 2(1, N = 110) = 4.62, p<.05. This indicates that significantly more White participants feel a loss of integrity when a client chooses an option contrary to their own beliefs. When a client chooses an option contrary to my beliefs I feel angry In response to this issue, there was a significant difference between the two groups as 2.4% of African American participants agreed to this variable in comparison to 14.7% of White participants with a chi square of χ 2(1, N = 110) = 4.38, p<.05. This indicates that significantly more White research participants feel angry when a client chooses an option contrary to their beliefs. Discussion Throughout this study, a key focus was the verification that value-related dilemmas may evoke emotional responses from the professional. The emotional feeling may influence decision-making as well as what may represent the perception of what is identified as normal behavior exhibited by clients. As a result, this discussion section is organized around headings that are associated with value-related issues that are common to professional social service practice. Issues related to life and death The issue of abortion is a multifaceted,
  • 20. value-related dilemma where there are underlying causes as well as consequences related to the decision to accept or reject abortion as an option. If the response is based upon a fixed moral rule, then it is referred to as ethical absolutism; if various situations impact one’s response or behavior, then the dilemma is referred to as ethical relativism (Dolgoff, Harrington, & Loewenberg, 2012) which may suggest that morality is relative to the norms of one’s culture. Therefore, in the study survey, the issue of abortion was divided into multiple items: abortion to save the life of the mother, abortion as a form of birth control, and abortion as a response to rape or incest. There was no statistically significant difference between African American and White survey participants regarding their acceptance of abortion as a method to save the life of the mother as well as for birth control. Both groups agreed that abortion was acceptable under lifesaving and birth control conditions. However, there was a statistically significant difference between the groups regarding abortion as a response to rape and incest. African Americans in the sample suggested that abortion in response to incest and rape was outside of their value system. White survey participants suggested that abortion was acceptable in the context of each of the three conditions. African American respondents indicated more of an ethical relativist view since they chose abortion as the option to save the life of the mother but also chose to reject abortion as an option in the case of incest or rape. Study results show that White survey
  • 21. participants were more accepting of mercy killing, euthanasia, and the right to terminate one’s own life and to assist others in the act of terminating their lives. Most African American respondents rejected Journal of Social Work Values & Ethics, Fall 2018, Vol. 15, No. 2 - page 44 Ethnicity, Values, and Value Conflicts of African American and White Social Service Professionals mercy killing, euthanasia, and an individual’s right to assist others in terminating a life. The issue of African American respondents rejecting such a practice corresponds with the results that indicated a high percentage (92.9%) embraced a value about maintaining a meaningful and personal relationship with God. They also indicated that they embraced a value that required attending church, mosque, or synagogue. This also corresponds with African American respondents embracing a belief in salvation or a positive afterlife in eternity. The concept of religiosity as expressed in the response to the three survey items may explain the rejection of mercy killing, euthanasia, and the right to terminate one’s own life, and to assist others in the act of terminating their lives. These values related to religious beliefs may have an impact on their attitudes toward various lifestyle and domestic issues and the general social perspective (Ladner, 1998, Boyd-Franklin 2003, Edwards, 2014). Issues related to lifestyle, domestic, and social perspectives
  • 22. Although … Contents lists available at ScienceDirect Social Science & Medicine journal homepage: www.elsevier.com/locate/socscimed Review article Trajectories of women's abortion-related care: A conceptual framework Ernestina Coasta,∗ , Alison H. Norrisb, Ann M. Moorec, Emily Freemand a Dept. of International Development, London School of Economics and Political Science, Houghton Street, London, WC2A 2AE, UK bOhio State University, United States cGuttmacher Institute, United States d PSSRU, London School of Economics and Political Science, UK A R T I C L E I N F O Keywords: Induced abortion Conceptual framework Systematic mapping A B S T R A C T We present a new conceptual framework for studying
  • 23. trajectories to obtaining abortion-related care. It assembles for the first time all of the known factors influencing a trajectory and encourages readers to consider the ways these macro- and micro-level factors operate in multiple and sometimes conflicting ways. Based on presentation to and feedback from abortion experts (researchers, providers, funders, policymakers and advisors, advocates) (n=325) between 03/06/2014 and 22/08/2015, and a systematic mapping of peer-reviewed literature (n=424) published between 01/01/2011 and 30/10/2017, our framework synthesises the factors shaping abortion trajectories, grouped into three domains: abortion- specific experiences, individual contexts, and (inter) national and sub-national contexts. Our framework includes time-dependent processes involved in an individual trajectory, starting with timing of pregnancy awareness. This framework can be used to guide testable hy- potheses about enabling and inhibiting influences on care- seeking behaviour and consideration about how abortion trajectories might be influenced by policy or practice. Research based on understanding of trajectories has the potential to improve women's experiences and outcomes of abortion-related care. 1. Introduction Abortion is a common feature of people's reproductive lives. An estimated 56 million induced abortions occur annually (Sedgh et al., 2016), of which 54.9% (49.9%–59.4%, 90% C.I.) are unsafe (Ganatra et al., 2017). Unsafe abortion is a major public health problem, espe- cially in contexts where access to legal abortion is highly restricted. An estimated 7.9% (4.7%–13.2%, 95% C.I.) of maternal deaths are
  • 24. due to unsafe abortion (Say et al., 2014); unsafe abortion is also a leading cause of maternal morbidity. While medical procedures for inducing safe abortion are straightforward, whether or not an abortion is avail- able or safe or unsafe is influenced by a complex mix of politics, access, social attitudes and individual experiences. Up to 40% of women who experience abortion complications do not receive sufficient care (Singh et al., 2009). Understanding the complexity around obtaining abortion- related care is urgently needed, especially in light of the intense policy attention abortion receives. Abortion care is a landscape in flux, with rapid increases in access to and use of pharmaceuticals to induce abortion (Kapp et al., 2017), and shifting national and international laws, policies, treaties, protocols and funding provision (Barot, 2017a, b). In recent years, research has helped elucidate abortion-related practices. There is increased recognition of the scale and consequences of unsafe abortion, including the costs for both women and health systems, in a range of legal settings (Singh et al., 2014). Inequalities in accessing abortion-related care have been identified in many
  • 25. settings, associated with multiple individual characteristics including, but not limited to, age (Shah and Ahman, 2012), marital status (Andersen et al., 2015), ethnicity (Dehlendorf and Weitz, 2011), geographic location (Jones and Jerman, 2013) and economic circumstances (Ostrach and Cheyney, 2014). Women experience multiple, intersecting inequalities in access to abortion-related care (Becker et al., 2011). The critical role of delays in abortion-related care-seeking (Foster et al., 2008; Sowmini, 2013) and of what happens when women are denied services are better understood (DePiñeres et al., 2017; Gerdts et al., 2014). We know much more about attitudes and stigma around abortion (Faúndes et al., 2013; Hanschmidt et al., 2016). Making sense of this body of research so that it can inform effective policy and help identify salient gaps in knowl- edge is a substantial endeavour. We lack synthesis of the known time- and context-specific influences on trajectories to abortion- related care. Conceptual frameworks of abortion-related care have dealt only with discrete aspects of women's experiences, such as determinants of use of a safe abortion programme (Benson, 2005) or decisions which lead women to experience post-abortion complications (Banerjee and
  • 26. https://doi.org/10.1016/j.socscimed.2018.01.035 Received 29 August 2017; Received in revised form 23 January 2018; Accepted 24 January 2018 ∗ Corresponding author. E-mail address: [email protected] (E. Coast). Social Science & Medicine 200 (2018) 199–210 Available online 31 January 2018 0277-9536/ © 2018 The Author(s). Published by Elsevier Ltd. This is an open access article under the CC BY license (http://creativecommons.org/licenses/BY/4.0/). T http://www.sciencedirect.com/science/journal/02779536 https://www.elsevier.com/locate/socscimed https://doi.org/10.1016/j.socscimed.2018.01.035 https://doi.org/10.1016/j.socscimed.2018.01.035 mailto:[email protected] https://doi.org/10.1016/j.socscimed.2018.01.035 http://crossmark.crossref.org/dialog/?doi=10.1016/j.socscimed.2 018.01.035&domain=pdf Andersen, 2012). The conceptual framework we propose considers all the factors in- fluencing a woman's trajectory to obtaining abortion-related care (safe abortion, unsafe abortion and/or post-abortion care). Obtaining abor- tion-related care can involve many steps and be non-linear
  • 27. (Marecek et al., 2017). We define an abortion trajectory as the processes and transitions occurring over time for a pregnancy that ends in abortion. We use ‘trajectory’ because it incorporates the concept of time – critical for understanding abortion-related care-seeking since safe abortion ceases to be an option as pregnancy progresses (the exact limit varies depending on context). We use the shorthand descriptor ‘women’ but acknowledge adolescents and transgender men within that. Abortion is distinct from other healthcare-seeking behaviour since: i) legality and understanding of legal rights overlay an individual's pathway to care, ii) women's abortion options are determined by the gestational age of the pregnancy, iii) abortion is episodic, not chronic, iv) abortion is stigmatised, and v) only women receive abortion- related care. Three main groups of health-related theories might be employed to understand and explain abortion-related care-seeking: determinant, socio-ecological, and pathway. These theories have rarely been used to frame research on obtaining abortion-related care. Theoretically-in- formed research on abortion has tended to employ explanatory fra- meworks related to other domains including stigma (Lipp,
  • 28. 2011), policy (Aniteye and Mayhew, 2013), lifecourse (Edmeades et al., 2010), re- productive agency (Cleeve et al., 2017), reproductive justice (Katz, 2017), post-colonial feminism (Chiweshe et al., 2017) and social psy- chological frameworks (Cockrill and Nack, 2013). Determinant health-related theories are models that elucidate a set of explanatory factors for the use of healthcare (Ajzen and Fishbein, 1980; Ajzen and Madden, 1986; Andersen, 1995; Bandura, 1977; Becker, 1974; Rosenstock, 1966). They remain influential in the framing of research on health care-seeking, health service use and health behaviour change (Babitsch et al., 2012; Ricketts and Goldsmith, 2005). Determinant theories have been criticised for their underlying individual rational actor orientation, focusing on characteristics of users versus non-users of care but providing little insight into dynamic care-seeking processes (Mackian et al., 2004; Pescosolido, 1992). Socio- ecological models (McLeroy et al., 1988; Stokols, 1996) consider mul- tiple levels (e.g.: structural, community, individual) of influence on behaviour, and reciprocal causation between behaviour and social en- vironments, unlike determinant models that largely conceptualise
  • 29. healthcare decision-making and use as an individual-level process. However, simple socio-ecological models are limited in their re- presentation of time-dependent processes and events. Pathway- based models, which disaggregate healthcare decision-making into con- stituent steps, challenge frameworks that conceive each health care- seeking event in isolation (Mackian et al., 2004; Pescosolido, 1992). Understanding abortion-related care-seeking requires dynamic process- oriented perspectives; the circumstances of a pregnancy leading to an abortion unfold in the space of a few weeks and can be highly un- predictable. Abortion-related care-seeking cannot be understood only through a linear course of action; it is a process that responds to changing circumstances and experiences. The conceptual framework we present is a mechanism for showing interrelatedness across the various temporal and spatial dimensions that influence and shape abortion-related care-seeking for one pregnancy. In this paper we i) review all influences on obtaining abortion-related care, ii) organise these into a conceptual framework, and iii) discuss how our framework can facilitate new research to better understand obtaining abortion- related care.
  • 30. 2. Methods We used an inductive two-step approach to build this conceptual framework: initial drafting based on expert research and practice knowledge, and subsequent systematic evidence mapping of peer-re- viewed literature. We originally conceived the conceptual framework at an interna- tional seminar (IUSSP, 2014). Thematic analysis of issues reported in the papers presented at the seminar, which included studies from Africa, Asia, Latin America and Europe (n=24), along with authors' practice knowledge, were used to draft a first iteration of the frame- work based on a thematic analysis of issues reported in the seminar papers. The first draft of the framework, which was also informed by the authors’ practice knowledge, was presented and discussed at the end of the seminar. Subsequent iterations of the framework were in- tensively discussed among the authors over several months and pre- sented to specialist audiences at national and international meetings (Table 1) and continually revised following their feedback. This process introduced additional components to our framework, such as the im-
  • 31. portance of national policies not directly related to health (e.g. edu- cation and welfare policies), and elaborated specific components (e.g. relief as an impact of abortion on mental health; the addition of caste- based inequalities among those shaping social positions on fertility and abortion). In addition to individual components, presentation and feedback to specialist audiences shaped the structure of the conceptual framework, informing our distinction between this framework and socio-ecological models and our efforts to present the framework vi- sually so as to maximise its utility. To confirm that the conceptual framework comprehensively cap- tured all documented influences on obtaining abortion care we con- ducted a systematic evidence mapping of English-language peer-re- viewed literature. Evidence mapping is an evidence synthesis methodology that is a variant of the systematic review (Miake- Lye et al., 2016); it is a systematic search of a broad field that describes as widely as possible all of the literature relating to the topic without limiting to studies that assess the strength or direction of relationships. It methodically identifies and develops a map of the literature (Clapton et al., 2009) and is increasingly used in a range of social sciences
  • 32. (Miake-Lye et al., 2016). Evidence mapping can be much more in- clusive than a systematic review: our only quality criterion was that the study should be published in a peer-reviewed journal. Multiple refer- ences based on the same sample were not excluded (as would be the case in a systematic review) since data generated from one study po- pulation might investigate different issues of relevance. Three electronic databases [PubMed, ScienceDirect, JSTOR] of peer- reviewed literature were searched for items published in English be- tween 01/01/2011 and 30/10/2017. These databases were selected for their coverage of biomedical and social science research. Combinations of relevant search terms were developed and tested for sensitivity. The Table 1 Presentations of the conceptual framework to expert audiences during its development. Event Participants (N) International Seminar on Decision-making regarding abortion- determinants and consequences. Nanyuki, Kenya. 3–5 June 2014. Abortion researchers (31) [email protected]: an e-conference. 8–9 June 2015. Abortion
  • 33. researchers, activists and providers (156) Ipas. Chapel Hill, NC. June 26, 2015 Abortion researchers and community advisors (8) Psychosocial workshop. San Diego, CA. April 29, 2015 Abortion-specific researchers (70) Population Association of America (2015) Annual Meeting. San Diego, CA. April 30-May 2, 2015 Social science researchers (52) E. Coast et al. Social Science & Medicine 200 (2018) 199–210 200 final combinations of search terms were: (abortion* OR termination* OR (menstru* AND regul*)) AND (Deci* OR Pathw* OR Passage* OR Rout* OR Course* OR Traject* OR Trail* OR Track* OR Direction*). Fig. 1 illustrates the process. After removing duplicates, all items identified by the search were screened on their title and abstract to determine inclusion. Items were included if: published in full text in English in a peer-reviewed journal between 01/01/2011 and 30/10/2017, and the abstract included any factor that either influenced, or was mentioned as potentially influen- cing, obtaining abortion care. Non-peer-reviewed items (e.g. comment, book review, letters) were excluded. Where inclusion or
  • 34. exclusion could not be determined on the basis of title and abstract, the full text was screened. Articles were included if they considered trajectories, or in- fluences on trajectories, to abortion-related care. Details of included items are available [Appendix A Supplementary Data]. We compared the full text of each included item (n=424) to the draft conceptual framework. Components we identified to be inadequately captured by the draft framework were incorporated in subsequent iterations. These included both an additional component ‘quality of care’, which super- seded a previous inclusion of ‘health workforce treatment of women’, as well as amendments to components, such as broadening ‘perception of provider care’ to ‘perception or experience of provider care’. All deci- sions about changes to framework components were made as a team, drawing on our reading, expertise and the discussions we had about the framework with experts during its development. Our search methodology has limitations. Language and date re- strictions mean that including additional languages or years might have yielded additional information; however, our search did yield evidence from all geographic regions, including research conducted in non-
  • 35. English languages but published in English. By focusing on more re- cently published evidence (post-2010), our framework reflects a con- temporary summary of the field of abortion-related care-seeking evidence. We searched only three databases, selected for their range (biomedical and social science); additional databases might include additional evidence, although the number of duplicates (n=1027) yielded by our search suggests that our strategy is robust. Our search only included abortion-related terms (abortion, termination, menstrual regulation); our search will not have yielded articles that discuss pregnancy decision making without reference to abortion. Our mapping approach means that the relative weight and rigour of evidence on the factors identified remain unknown. The final conceptual framework represents all aspects of trajectories to abortion-related care as illumi- nated by expert researchers, practice knowledge, and in 424 articles. 3. Conceptual framework of trajectories to abortion-related care A conceptual framework is a set of ideas, presented in a structured way to help understand a phenomenon (Reichel and Ramey, 1987). Our framework (Fig. 2) represents “the main things to be studied”
  • 36. (Miles and Huberman, 1994 p.18) with regard to trajectories to obtaining abortion-related care. It synthesises influences shaping these trajec- tories, grouped in three domains to highlight the individual- and macro- contexts shaping abortion-related care: 1. Time-oriented abortion-specific experiences: beginning with preg- nancy awareness, events that women may experience in seeking abortion-related care. 2. Individual contexts: characteristics that influence whether a woman obtains abortion-related care, including interpersonal networks. 3. (Inter)national and sub-national contexts: the context within which an individual – and her abortion – are situated. To understand the trajectory of a pregnancy that ends in abortion, it must be situated within individual- and macro-contexts; all three Fig. 1. Systematic evidence mapping process. E. Coast et al. Social Science & Medicine 200 (2018) 199–210 201 domains are interrelated. For example, access to pregnancy
  • 37. testing (abortion-specific experiences) might be influenced by a woman's wealth (individual context) and the health system (inter/national con- text). The framework is globally applicable, capturing concepts that are relevant across time and space. For readability, our framework includes brief phrases or single words for each component. This comprehensive visual overview is the primary contribution of our article. To illustrate its relevance across settings, in the following sections we explicate the framework's components using examples. We begin at the individual level – a woman's abortion-specific ex- periences, her context and characteristics, and then discuss the macro- level influences on trajectories to obtaining abortion-related care. Unlike the conceptual framework itself (Fig. 2), this requires us to present the three domains in some order. We start with experiences of a specific abortion since a woman may have more than one abortion in her lifetime, and a single trajectory to obtaining care might be com- posed of more than one abortion attempt. Our evidence-based illus- tration of each component is preceded by bullet points that provides further examples.
  • 38. 4. Abortion-specific experiences The actions women take on their trajectories to (attempt to) ter- minate a pregnancy are shaped by factors in their individual contexts and by their macro-environments. We consider in this section the multiple events that women may experience in obtaining an abortion. The trajectory begins with becoming aware of a pregnancy and ends with abortion-related care; in between there may be (non-) disclosure and negotiation about abortion, seeking resources to obtain the abortion, and more than one attempt to terminate the pregnancy, with sequelae of those attempts. These events may not be linear; for ex- ample, a woman may disclose to an individual who provides informa- tion that the woman acts upon; this information may not lead to an abortion, so the woman might disclose to a different person in order to seek different or additional information or resources to procure an abortion (Moore et al., 2011b). Emotions about pregnancy, abortion and parenting influence all steps of abortion-specific experience. Each step is embedded in contexts both micro (individual) and macro; we address the importance of these contexts in subsequent sections.
  • 39. 4.1. Awareness of pregnancy • Timing of awareness (e.g. knowledge of pregnancy symptoms or pregnancy testing, denial of pregnancy) • Access to/use of pregnancy testing (e.g. cost, availability, source) • Access to/use of pregnancy diagnostics (e.g. foetal abnormality, sex determination) Decision making around abortion-related care is highly time- sensi- tive. Abortion at earlier gestations is safer than later gestations and laws and guidelines vary about the maximum gestation at which abortion is permitted, under which conditions and with which method. Time be- tween conception and awareness of pregnancy is inversely related to how much time a woman has to decide about abortion. In many set- tings, pregnancy tests are unavailable or unaffordable (Stanback et al., 2013) and women's estimation of gestational age – particularly for younger and/or nulliparous women - can be incorrect (Foster and Kimport, 2013; Janiak et al., 2014). Fig. 2. A conceptual framework for understanding women's trajectories in seeking abortion-related care. E. Coast et al. Social Science & Medicine 200 (2018) 199–210
  • 40. 202 The timing of action to confirm a pregnancy can be linked to the social risks of pregnancy. When a pregnancy is undesirable a woman may avoid acknowledging the pregnancy to herself (Sowmini, 2013). For example, young unmarried women in an Indian study were less likely to recognise (or acknowledge) their pregnancy than their married counterparts, and unmarried women had higher levels of second tri- mester abortions (Jejeebhoy et al., 2010). In addition, the gestational age at which diagnostic testing (if available or used) for foetal ab- normality and/or sex - factors that may influence whether the woman wants an abortion - varies by context (Gawron et al., 2013). 4.2. Disclosure • Ability to disclose, to whom (e.g. family, friend, partner, health professional, provider, acquaintance) and the implications of that (e.g. the confidant's knowledge, experience, advice, reaction) • Negotiation around abortion with (any) others involved in the de- cision (e.g. partner, relatives, (potential) abortion providers)
  • 41. • Reasons for disclosure or non-disclosure (e.g. policies around partner or parental notification) • Timing of (any) disclosure(s) • Emotions about disclosure (e.g. fear of reactions, shame, stigma, relief) Some women do not disclose their pregnancy and take abortion decisions alone (Bowes and Macleod, 2006). For women who do dis- close their pregnancy, the person(s) to whom they disclose may influ- ence abortion decisions, be a source of (mis-)information, and/or pro- vide access to resources for abortion-related care. Disclosure may lead to negotiation about whether or how to abort. Decisions about dis- closure are influenced by wider social norms and belief systems. For example, both the choice of confidant(s) and their influence are em- bedded in the woman's larger context of relationships and ability to access resources (Nyanzi et al., 2005). In a study among young women in urban Cameroon, disclosure to male partners was influenced by the need for financial support for the abortion (Calvès, 2002). Disclosure discussions are enmeshed in the macro-context; more limited abortion options may necessitate more disclosure in order to seek information
  • 42. about care (Rossier, 2007), or disclosure may be enforced due to partner or parental notification protocols. Disclosure may lead to emotional support around an abortion decision or pressure to abort or not abort (Schwandt et al., 2013). Disclosure of pregnancy may lead to a range of negative outcomes, including condemnation and abandon- ment (Tangmunkongvorakul et al., 2005) or punishment (Umuhoza et al., 2013). Fears about the implications of disclosure of the preg- nancy or the desire to abort may delay initiating the abortion (Labandera et al., 2016) or compel a woman to seek a less safe abortion (Schuster, 2005). 4.3. Ability to access resources for abortion • Social/emotional support for/against abortion (e.g. from partners, relatives, friends, providers, doula) • Material/physical resources (e.g. transport, money, childcare, ability to miss education or work, insurance, commodities, in- formation) • Access to abortion provider/method (e.g. border crossing, journey time, face-to-face versus web-based provider) Women's ability to access resources to procure an abortion is im- portant in every setting. Social and emotional support for or
  • 43. against abortion-related care is linked to whether, and to whom, the pregnancy is disclosed. A friend or partner providing support may influence the location and type of abortion (Conkling et al., 2015). Access to financial resources, frequently linked to social support, may be critical to a wo- man's ability to access abortion information and services. In Latin American countries where abortion is illegal, access to economic re- sources and emotional support were critical for accessing a medically supervised medical abortion in a clandestine clinic (Zamberlin et al., 2012). One quarter of urban Mozambican women who sought a first trimester termination at a public hospital delayed care in order to have sufficient funds to pay user fees (Mitchell et al., 2010). Women's sources of information extend beyond their social networks to include adver- tising, agents, the internet and other clients of abortion providers (Gerdts et al., 2017; Osur et al., 2015). The difference between a safe or unsafe abortion may be whether someone can pay for a safer procedure (Moore et al., 2011b) or whether she can travel to avoid more re- strictive laws to locations with more permissive laws (Foster et al.,
  • 44. 2012). Accessibility of abortion services is multidimensional and closely linked to macro-environmental factors including legality, distance and cost (Sethna and Doull, 2013) and individual contextual factors such as mobility (Azmat et al., 2012). 4.4. Abortion attempt(s) • Gestational age • Counseling (e.g. (non-)directed, (un)supportive, waiting period, re- ferrals) • Location abortion sought or conducted (e.g. home, (un)regulated facility) • Type of abortion (e.g. (un)safe, (il)legal, medical, surgical, self- or provider-initiated) • Perception or experience of provider care (e.g. (dis)respectful, judgmental, confidential, private, pain management, exposure to protests/harassment) The complexity and length of abortion trajectories is heterogeneous, influenced not only by a woman's context, but also her experiences relating to that specific pregnancy, and may range from a legal, straightforwardly-accessed safe process, to multiple unsafe attempts (Coast and Murray, 2016). In some settings, women may have options
  • 45. about what kind of abortion to access; in others, women may not (perceive themselves to) have any choices (Banerjee and Andersen, 2012). Gestational age at the time of the abortion may have implica- tions for the woman's health and affect the type of abortion provided; if women present beyond a gestational limit, they can be denied a legal abortion (Harries et al., 2015). Especially, but not only, in contexts where abortion is stigmatised and/or illegal (or perceived to be illegal) in general or at advanced gestational age, women self-induce using household objects, traditional methods, and abortion medications (Rasch et al., 2014; Vallely et al., 2015). Abortion trajectories may also be influenced by professional advice. Provision of counselling may differ depending upon a woman's cir- cumstances (Ramachandar and Pelto, 2002), policies including man- dated waiting periods, and the socio-legal (Gerdts and Hudaya, 2016) and funding (discussed below) context of abortion. Although good counselling should be non-directive, this does not necessarily happen (Vincent, 2011). Counselling may play an important role in women's choice of abortion method (Tamang et al., 2012), however not all women who seek abortion want counselling (Cameron and
  • 46. Glasier, 2013) or the counselling that is provided (Moore et al., 2011a). A woman who expects judgemental or disrespectful advice or counselling from one provider may seek care elsewhere. The perception and ex- perience of negative responses from health practitioners against women seeking abortion are widely reported (e.g. Ghana (Schwandt et al., 2013), Brazil (Diniz et al., 2012), Vietnam (Nguyễn et al., 2007)). When women have a choice about abortion type, their decision may be informed by their understandings of abortion-related care and its quality, including comfort, pain (Allen et al., 2012), flexibility of when the abortion can occur, (perceived) confidentiality, provider attitudes towards privacy, and stigmatising provider behaviours (Labandera et al., 2016). In some settings, anti-abortion protests outside abortion E. Coast et al. Social Science & Medicine 200 (2018) 199–210 203 providers may affect abortion care-seeking by encouraging women to avoid providers where they may have to confront them (Kimport
  • 47. et al., 2012a). 4.5. Perceived and experienced outcomes from (attempted) abortion • Physical health (e.g. pain, side effects, future fertility, resulting or avoidance of morbidity or mortality) • Mental health (e.g. depression, relief, guilt, shame) • Socio-economic effects (e.g. out of pocket payments, legal/penal consequences, maintaining a relationship, education or occupation) Once a woman has … Sociology Compass 9/5 (2015): 365–378, 10.1111/soc4.12256 Abortion Counselling in Britain: Understanding the Controversy Lesley Hoggart* Health and Social Care, The Open University Abstract This article reviews literature from a number of disciplines in order to provide an explanation of the political controversy attached to the provision of abortion counselling. It will show how this is an area of health policy debate in which women’s reproductive bodies have become a setting for political strug- gle. The issue of abortion counselling in Britain has undergone
  • 48. a number of discursive shifts in response to political manoeuvring and changing socio-legal framing of abortion. In particular, the article shows how much of the controversial reframing of abortion counselling was a tactical shift by political actors opposed to abortion per se, and this work is critiqued for not contextualising abortion. The article then focuses on women’s abortion experiences and discusses research that shows how women’s decision-making processes, and responses to an abortion, are related to gendered socio-cultural contexts: the extent to which women having an abortion feel they have transgressed societal norms and values, for example, is likely to affect their abortion experiences. Finally, it is suggested that providing a non-judgemental context, and challenging negative discourses on abortion, may be the most effective way of minimising the possibility of negative emotions. Introduction This article examines the issue of abortion counselling as a site of policy debate, in which women’s reproductive bodies have become a setting of political struggle. In seeking to understand why a seemingly straightforward subject –whether women undergoing an abortion should have access to counselling services – has become so contentious, it is necessary to con- sider a wide range of other issues. An over-arching requirement is to consider how the debate is socio-culturally located. This means understanding that policy debates on abortion counsel- ling are conceptualised differently within different socio-legal frameworks; within gendered social norms; and within contentious political discourses. Even
  • 49. the phrase itself – abortion counselling – has been subject to a number of discursive shifts and invested with multiple mean- ings which are complex and malleable. Above all, as this paper will show, different strands of academic debate around abortion counselling customarily proceed from particular political positioning, and with an eye to the political implications of research interpretations. There is an undeniable relationship between political beliefs on abortion and intellectual framing on the issue of abortion counselling. These broader sociological issues frame this paper, which focuses on Britain1 as a case study explicating the relationship between socio-cultural contexts and different politics, policies and practices. Britain, in recent years, has experienced repeated f lurries of political debate and activity around the issue of pre-abortion counselling. Between October 2006 and June 2007, two Ten Minute Rule Bills that proposed mandatory counselling were rejected by the British Parliament, and in 2012, the MPs Frank Field and Nadine Dorries proposed amendments to the National Health Service (NHS) and Social Care Bill 2011 which would have removed © 2015 John Wiley & Sons Ltd. counselling services from abortion providers and obliged women to receive counselling from ‘independent’ bodies before an abortion.2
  • 50. Abortion counselling as an issue is worthy of exploration because, as the paper also sets out, developments in this area affect abortion provision and thus have an effect upon women under- going an abortion. Although a straightforward policy question would address what provision should look like in this area, such questions have always been bound up in wider political debates about the morality of abortion and views on its legal status. In academia, important contributions to the debate, from sociology, have come from Ellie Lee, who has consistently shown how sociological constructions – of women, of abortion and of abortion providers – have informed the legal regulation of abortion in Britain (Lee 1998, 2003a,b, 2004). Kristin Luker (1984, 1996) and Rosalind Petchesky (1986) have pioneered sociological work in this area internationally. Although fundamentally an issue of concern to political sociologists, many more disciplines are involved in contributing towards literature of relevance to the issue of abortion counselling, including important contributions from psychology (Boyle 1997; MacLeod 2011); law ( Jackson 2001; Sheldon 1997); and policy research (Allen 1985; Hoggart 2003, 2012; Rowlands 2008). This paper reviews three areas of literature, all of which straddle these disciplines. Firstly, it considers how policy and health- focused literature contributes towards understandings about what is meant by counselling in the context of abortion. Secondly, it looks at literature that has sought to explain, and engage with, why counselling came to feature as part of what Rickie Solinger (1998) has termed ‘Abortion Wars’. Finally, it
  • 51. will look at a body of literature that sheds light on the provision of abortion counselling, from the perspectives of women who have abortions. What is meant by counselling? The legal framework for abortion in Britain is the 1967 Abortion Act. This Act, as amended by the Human Fertilisation and Embryology Act 1990, permits abortion up to 24weeks in specific circumstances (when two doctors agree that continuing with the pregnancy would be more harmful to the physical or mental health of the pregnant woman or any existing children of her family than if the pregnancy was aborted). After 24weeks, an abortion is permitted if it is necessary to save the woman’s life; it will prevent grave, permanent injury to the physical or mental health of the pregnant woman; or there is a substantial risk that if the child were born, it would suffer from serious physical or mental anomalies.3 In law, at no gestational point do women have the right to an abortion on request. However, as Lee (2003b) has noted, a ‘socio-legal gap’ gradually emerged between law and practice such that the wishes of women came to be prioritised. This is evident by reviewing the British government’s health information website, NHSChoices, which simply lists one of the reasons that a womanmight decide to have an abortion as ‘personal circumstances’.4 This unresolved tension between law and practice, though, means that abortion practice as it has developed does not have a firm legal foundation and may be vulnerable to changing political circumstances. It also legitimises the attempts by
  • 52. those interest groups who are opposed to abortion to claim that the law is f louted (Lee 2003b). In Britain, abortion counselling is an area of abortion practice that has been developed as part of abortion services. It is not required by law and is not legally regulated. There is, accordingly, significant room for disparate and shifting definitions of abortion counselling. Nevertheless, a body of research has studied these issues and clarified both what women should expect with respect to abortion counselling and how to define and develop these services. Following the 1967 Abortion Act, a Committee on the Working of the Abortion Act (the Lane Committee) was set up by the government in order to examine the workings of the Act. The conclusions of the Lane Committee (Lane 1974), as well as a paper authored by 366 Abortion Counselling © 2015 John Wiley & Sons Ltd. Sociology Compass 9/5 (2015): 365–378, 10.1111/soc4.12256 one Lane commissioner (Cheetham 1977), revealed considerable confusion around what was meant by abortion counselling. The report noted uncertainties about the objectives and pur- poses of counselling, and then offered a broad definition: counselling was described as the pro- vision of an opportunity for women to discuss their situation and to obtain information,
  • 53. explanations and advice. The literature has noted that the Lane Committee was particularly concerned to ensure that every effort should be made to provide women equality of access to abortion within the NHS, at a time when some women were being turned away arbitrarily (Wivel 1998). As abortion services were being developed in the 1970s, abortion counselling was thus primarily envisaged in the context of ensuring that all women who are considering an abortion are provided with enough information with which to make an informed decision, that this should be free from pressure from other people, and that equality of access should be ensured (Lee 2003b). In the 1980s, the Department of Health and Social Security commissioned a national evalu- ation ofCounselling services for sterilisation, vasectomy, and termination of pregnancy. To date, the only study solely on these issues, it was a large multi-stranded project with a clear focus on the expe- riences of service users on the counselling they had received, and the extent to which they felt they required counselling (Allen 1985). This focus marked a shift towards a multifaceted under- standing of counselling that moved beyond the Lane-based consensus of ensuring informed consent and equality of access. The research found considerable variance about what was meant by counselling as a specific activity and pointed to an important distinction between the role of abortion providers in ensuring that women were making an ‘informed decision’ to proceed, or otherwise, with an abortion; and therapeutic counselling which may be necessary for women
  • 54. who are ambivalent about their decision. The first discussion is always necessary, whilst thera- peutic counselling may, or may not, be needed or appreciated. Indeed, Allen also reported: ‘Many women thought that abortion should be easier and quicker to get, and that counselling should be available for those who wanted it but not overdone’ (Allen 1985: 342). Allen is here drawing attention to one of the most notable findings in the study: that many women felt they were being over-counselled about a decision they had already made. A large number of women talked about making their own decision after considering their own circumstances and not needing to talk to anyone in the process. There have been no further large scale studies of abortion counselling provision in the UK, though other studies and policy developments have led to further refinement of what is understood by counselling. Myra Hunter presented a model of counselling for obstetrics and gynaecology (including abortion) in which she distinguished between providing information and emotional support to all women and providing specific support to women who are distressed for any reason (Hunter 1994). Similarly, Jane Read (1995) considered different types of counselling in abortion: information counselling, implications counselling, support counsel- ling and therapeutic counselling; and also suggested similar needs for women undergoing abortion to those seeking assisted conception. Neither of these important books, written primarily for practitioners by practicing therapists, single out women who have an abortion as
  • 55. being in particular need of counselling. What they are clear about is that if some women need therapeutic counselling, this is a distinctive need that should not be confused with information and general support that all women should expect from all these services, and this ref lected a more nuanced understanding than the Lane consensus. With respect to abortion research more generally, this has simultaneously helped shape, and responded to, shifts in understandings, and practices, of abortion counselling. In a review of relevant literature from 1967 onwards, Rowlands (2008) sought to identify research studies (internationally) with some findings of relevance to the issue of abortion counselling. In his systematic review, he noted that the term ‘counselling’ is used widely and indiscriminately Abortion Counselling 367 © 2015 John Wiley & Sons Ltd. Sociology Compass 9/5 (2015): 365–378, 10.1111/soc4.12256 and is frequently used to describe the activity of simply providing information. He drew attention to the need to distinguish between different types of counselling ranging from general support and information (as proposed by Lane) through to therapeutic counselling. He also noted, however, that much of the research focuses on what has been described as ‘decision counselling’, which has often been proposed as counselling in a more therapeutic sense. Many
  • 56. of the papers in the review introduced the notion of ambivalence to studies on abortion decision-making, a concept that will be further explored later in this paper. Noting that whilst ‘hard evidence’ for the beneficial effects of such decision counselling is rare, and that there was no evidence that this should be a mandatory service for all women, Rowlands also observed that a general agreement emerged from the 1970s onwards that this service, seeking to assist those with difficulties making decision about the outcome of a pregnancy, should be provided. This is indeed the direction in which abortion policy and provision has moved, in Britain, a direction which illustrates a sometimes fraught, but nonetheless significant, relationship between research and policy developments. The policy approach is evident in guidelines that have been generated specifically for abortion service provision. The RCOG (Royal College of Obstetricians & Gynaecologists) collates evidence and sets standards for care in abortion (including counselling requirements). The RCOG’s Guidelines, first published in 2000, (RCOG 2011) distinguish between three domains: the first is information needs as discussed earlier (the need for clinicians to have accurate knowledge about medical complications associated with abortion, to ensure that dis- cussion with woman can allow for valid consent to be given by them); the second is to state that all women should be offered the opportunity to discuss their decision with a non-directive counsellor, and/or clinician; and thirdly, it recommended that additional counselling be made
  • 57. available for women who request it. The Department of Health regulates counselling provision in all abortion units through Required Standard Operating Principles (RSOPs) for termination of pregnancy services (DoH 2013a). These draw on the RCOG Guidelines and state (p. 20) that, ‘All women requesting an abortion should be offered the opportunity to discuss their options and choices with a trained counsellor and this offer should be repeated at every stage of the care pathway. Post abortion counselling should also be available for those women who require it’. Indepen- dent sector agencies, primarily the British Pregnancy Advisory Service (bpas) and Marie Stopes International (MSI), have increasingly provided the majority of NHS funded procedures (Lee 2005; Lee and Ingham 2010). At both these agencies, two types of counselling are available: all women are offered ‘decision counselling’ (either by telephone or in-person) as part of their advice and information session, and therapeutic counselling is made available for any woman who may request it. This sector has developed a particular category of staff, the ‘admin counsellor’who (together withmedical personnel) has responsibility for information provision and ‘decision counselling’. Women who need it have access to staff trained and specialised in therapeutic counselling (Lee 2003b). This overview has shown that (apart from those opposed to abortion) a policy consensus has emerged, and that this consensus does inform abortion providers: therapeutic counselling for
  • 58. women considering an abortion should be available for those women who may need it, but this should not to be confused with discussions that facilitate informed consent, or with discussions designed to establish women’s comfort with their decision (sometimes called options, or decision, counselling). Although these latter discussions may be facilitated by a trained counsel- lor, this is not essential, and they do not constitute therapeutic counselling. Decision counselling is potentially confusing, as for the most part, it will not involve therapeutic counselling; but, if women are experiencing difficulties with abortion decision- making, for any of a number of what could be complex reasons, then therapeutic counselling should be available. As will be 368 Abortion Counselling © 2015 John Wiley & Sons Ltd. Sociology Compass 9/5 (2015): 365–378, 10.1111/soc4.12256 shown later, the research on women’s abortion decision-making suggests that such counselling would almost certainly not be needed by the majority of women. Why did abortion counselling emerge as a controversial issue? Given that the purpose and scope of abortion counselling has been both expanded and clarified since the Lane Committee, and detailed guidance exists, why does it regularly emerge in Britain as a controversial issue? An exploration of the literature on the politics of abortion and on
  • 59. debates around ‘Post-Abortion Syndrome’ (PAS) can shed light on this conundrum. Although these are international issues, and this literature is not confined to Britain, this paper will continue to apply the research to the British case study. Following the 1967 Abortion Act, anti-abortion organisations began campaigning against abortion provision in Britain, at first concentrating on campaigns supporting legislation drafted to restrict existing provision. A series of PrivateMembers Bills, all of which would have seriously curtailed women’s right to an abortion in one way or another, were introduced in the 1970s and 1980s. All prompted vociferous and confrontational political campaigns for and against the legislation; all were defeated (Hoggart 2000). During this period, organisations opposed to abortion, such as SPUC (Society for the Protection for the Unborn Child) and then LIFE, very much focused on the right to life of what they conceptualised as the ‘innocent baby’, and abortion politics was dominated by a discourse of competing rights, with campaigners in favour of retaining abortion rights campaigning in favour of ‘a woman’s right to choose’ (Himmelweit 1988; Hoggart 2003). The oppositional viewpoints in this conf lict are generally referred to in academic literature on abortion as pro-choice and anti-choice (Cannold 2002). A number of academics have analysed how anti-choice activists were obliged to rethink their strategy when it became clear that the (‘innocent baby’) foetal discourse was not effective (Cannold 2002; Lee 2001, 2003a,b). Throughout the 1970s and
  • 60. into the 1980s, opinion polls had indicated that a majority of the population supported liberal abortion law, and it became increasingly clear that large numbers of people were not going to be persuaded by appeals based on positioning women seeking an abortion as immoral murderers. So, from the mid-1980s, a new anti-choice strategy, characterised by Leslie Cannold as a ‘women-centred strategy’, was developed: ‘a key task of the anti-choice women-centred strategy is to replace the fetus with the guilt-ridden, self-hating, grief-stricken, victimised and finger-pointing “woman hurt by abortion” as the summarising image of what is wrong with abortion’ (Cannold 2002, p. 173). This strategy not only constructed abortion as an innately traumatic event that may cause psychological damage, but portrayed women seeking an abortion as inherently vulnerable and susceptible to duress. This was a conscious and significant tactical and discursive shift amongst activists campaigning to restrict abortion. Recent debates on abortion counselling need to be understood in the light of these political developments. The research evidence on these issues will now be examined in a little more detail. The argument for PAS, and its diagnostic criteria, has been traced by Ellie Lee (2001) to the work of an American, Vincent Rue, who proposed it as a form of post-traumatic stress disorder (PTSD) (Rue 1995). More recently, the mantle has been taken up by Priscilla Coleman. Coleman’s claims that quantitative research has shown an increased risk of mental health prob- lems after abortion were published in The British Journal of
  • 61. Psychiatry (Coleman 2011) but have since been widely discredited.5 These discussions are relevant to the pre-abortion counselling debate because, as noted earlier, some anti-choice activists made a discursive shift to focus on the possibility of post-abortion psychological distress, and this incorporated the argument that women will suffer if they have been insufficiently ‘counselled’ about the negative impact of abortion. Indeed, Coleman’s paper was explicitly referred to by Nadine Dorries in the House Abortion Counselling 369 © 2015 John Wiley & Sons Ltd. Sociology Compass 9/5 (2015): 365–378, 10.1111/soc4.12256 of Commons when shewas seeking to introduce additional abortion counselling requirements.6 This conceptualisation of counselling is quite different from the decision counselling proposed in the health service research discussed earlier, in which there is a strong emphasis on the need for the counselling to be non-judgemental. An extra stimulus for anti-choice activists in Britain to adopt this strategy is that suggesting that abortion causes psychological damage also challenges one of the main criteria for abortion: continuing with the pregnancy would involve a greater risk to the woman’s physical or mental health than ending the pregnancy. There is now a large amount of international literature discussing the possible negative
  • 62. psychological consequences of abortion in which pro-choice academics have devoted a significant amount of energy to critically analysing the claims that abortion causes mental health problems (Steinberg and Finer 2011). There are two main issues to note about this discussion. First, there is a lack of robust research evidence supporting the concept of PAS. As noted by a panel commissioned by the American Psychological Association to investigate the psychological consequences of abortion, the majority of studies suffer from methodological problems (Major et al. 2009). This is because it is virtually impossible to compare a cohort of womenwho have an abortion to a valid comparison group (Steinberg and Russo 2008).7 Second, the research that purportedly demonstrates PAS has been widely discredited for not taking into consideration the social, cultural and health care contexts within which an abortion takes place, as well as events confounded with abortion (sexual abuse, for example) that may themselves be associated with negative mental health outcomes (Dagg 1991; Lee 2003a; Steinberg and Russo 2008). In 2008, a review of the literature (Charles et al. 2008) concluded that the claim that abortion leads to mental health problems had been discredited by high quality research. More recently, the research on abortion and mental health has also been systematically reviewed for the Academy of Medical Royal Colleges, which concluded that there was no difference in mental health problems between women with unwanted pregnancies who gave birth and those who had an abortion (AMRC 2011).
  • 63. Although this may appear to be a purely academic debate, critiques of PAS have demon- strated how anti-abortion bias has affected the way in which data are interpreted. Dervious and Russo (2000) show how in research that claims to identify PAS, any negative mental health outcomes that may be identified in women following an abortion are: firstly, mis-labelled as psychological sequelae when they are correlates; secondly, attributed to the abortion, rather than an unwanted pregnancy; and, thirdly, taken out of context. In addition, the anti-choice call for abortion counselling, drawing on the concepts ‘post-abortion syndrome’ and ‘abortion trauma’, not only elides pre- and post-abortion counselling, but also blurs the distinction between information provision and obtaining informed consent, and counselling. This particular focus of much pro-choice research and scholarship has thus been reactive, making it difficult for researchers to focus on what women actually want. Further, there is a notable absence of a clear consensus on the most appropriate framework to deploy when researching women’s abortion experiences. As Mary Boyle (2000) has pointed out, the heated debates that take place about abortion, often from polarised positions, make it politically diffi- cult for researchers to explore the complexity of women’s abortion emotions, behaviour and needs. Indeed, she cautions against research that is focused upon whether women do, or do not, experience negative outcomes following an abortion or whether or not women seeking
  • 64. an abortion could be described as vulnerable, on the grounds that this keeps research within an agenda which focuses on abortion’s intrinsic potential to harm women (Boyle 2002). In Britain, this is an especially pertinent point because, as Lee (2003b) has pointed out, the justifi- cation of legal abortion enshrined in the 1967 Act is very much based on the construction of women as psychologically vulnerable victims. So there are a number of factors that discourage pro-choice researchers from dwelling on abortion and emotions. Others, however, have 370 Abortion Counselling © 2015 John Wiley & Sons Ltd. Sociology Compass 9/5 (2015): 365–378, 10.1111/soc4.12256 pointed out that the polarisation can cause pro-choice researchers to deny any possibility of negative or ambivalent emotions following an abortion, suggesting that such a denial of some women’s feelings may not be welcomed bywomen themselves (Cannold 2002). More recently, there has been greater willingness to tackle such issues, often within the context of theorising abortion-related stigma, and with an underlying assumption that an exploration of the full range of post-abortion emotions does not, of necessity, lead to an anti- choice interpretation of the research (Cockrill and Nack 2013; Hoggart 2012; Quinn and Chaudoir 2009). Although such considerations have made research challenging, there has been interest
  • 65. amongst pro-choice researchers and abortion providers in examining women’s abortion experiences. From this research, it is possible to analyse the issue of abortion counselling from the perspectives of women who have abortions. Women’s abortion experiences: who needs counselling? Although few research studies have focused specifically on counselling, there is a body of research that has considered women’s abortion decision-making, abortion experiences and their expressed needs. The socio-legal context outlined above, in which understandings of abortion counselling have become more nuanced over the years, and yet are still not legally defined or regulated, forms the backdrop to the research in Britain. A particularly important theme in research on women’s abortion experiences is the value women place on providers being clearly non-judgemental. In particular, information provision and staff attitudes (kindliness and acting in a manner that reduces women’s feelings of anxiety and isolation) feature in women’s reports (Harden and Ogden 1999; Lee et al. 2004). Rowlands (2008) also points out that the research indicates that women value being given clear information about abortion procedures at the pre-abortion consultation, and a recent study has shown that women value an uncomplicated referral process (Brown 2013). Research on abortion decision-making has shown that women take a range of issues into
  • 66. consideration and generally make their decision based on their own individual circumstances at a particular moment in time (Purcell et al. 2014; Rowlands 2008). It has been noted also that the most usual experience is where women discuss their situation with friends, parents and family members and have already made their decision, before they approach a medical professional, or abortion provider (Brown 2013; Kumar et al. 2004). It has been argued that the research evidence indicates that whilst women may be distressed when faced with an unwanted pregnancy, more are comfortable with their decision that is often assumed in public debate (Boyle 2000; Hadley 1996), thus echoing findings of Allen’s (1985) counselling study. Another area where there is some agreement is in the recognition that it is women who may be ambivalent about their decision who are most likely to express a need for therapeutic counselling. Research has shown that ambivalent women are at higher risk of poor psycholog- ical outcomes than non-ambivalent women (Ashton 1980; Cameron 2010; Hare andHeywood 1981). AndRowlands’ (2008) international review points out that most studies have shown that ambivalence has been shown to be a predictor of poor outcomes, but he is careful to point out that ‘feelings of ambivalence are an indication that abortion has a price, which implies that it is a more or less painful solution to an unwanted pregnancy’ (Rowlands 2008: 176). As we have seen, this does not mean that the abortion itself has caused poor psychological outcomes: abor- tion …
  • 67. lable at ScienceDirect Social Science & Medicine 191 (2017) 109e116 Contents lists avai Social Science & Medicine journal homepage: www.elsevier .com/locate/socscimed A good abortion experience: A qualitative exploration of women's needs and preferences in clinical care Anna L. Altshuler a, *, Alison Ojanen-Goldsmith b, Paul D. Blumenthal a, Lori R. Freedman c a Stanford University School of Medicine, Dept. Ob/Gyn, 300 Pasteur Dr. HG332, Stanford, CA 94305, USA b Full Spectrum Doulas, Seattle, WA, USA c Advancing New Standards in Reproductive Health/University of California, San Francisco, 1330 Broadway, Suite 1100, Oakland, CA 94612, USA a r t i c l e i n f o Article history: Received 20 January 2017 Received in revised form 2 September 2017 Accepted 7 September 2017 Available online 8 September 2017 Keywords: United States Abortion experience Abortion stigma
  • 68. Abortion services Reproductive justice Abortion access Patient-centered care Abortion normalization * Corresponding author. Present address: Californ 475 Brannan St #220, San Francisco, CA 94107, USA. E-mail addresses: [email protected] (A. com (A. Ojanen-Goldsmith), [email protected][email protected] (L.R. Freedman). http://dx.doi.org/10.1016/j.socscimed.2017.09.010 0277-9536/© 2017 The Authors. Published by Elsevier a b s t r a c t What do women ending their pregnancies want and need to have a good clinical abortion experience? Since birth experiences are better studied, birth stories are more readily shared and many women who have had an abortion have also given birth, we sought to compare women's needs and preferences in abortion to those in birth. We conducted semi-structured intensive interviews with women who had both experiences in the United States and analyzed their intrapartum and abortion care narratives using grounded theory, identifying needs and preferences in abortion that were distinct from birth. Based on interviews with twenty women, three themes emerged: to be affirmed as moral decision-makers, to be able to determine their degree of awareness during the abortion, and to have care provided in a discreet manner to avoid being judged by others for having an abortion. These findings suggest that some women have distinctive emotional needs and preferences during abortion care, likely due to different circum-
  • 69. stances and sociopolitical context of abortion. Tailoring services and responding to individual needs may contribute to a good abortion experience. © 2017 The Authors. Published by Elsevier Ltd. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). 1. Introduction Many women experience both abortion and birth over the course of their reproductive lives. In the United States, an estimated 30% of women have an induced abortion by age 45 (Jones and Kavanaugh, 2011) and of those women who have had an abor- tion, 59% have previously given birth (Jerman et al., 2016). Abortion represents a transition for pregnant women, moving from the possibility of bearing that child to proceeding with one's life as is. As with birth, how abortion happens matters to women, their families and communities (Lie et al., 2008; Lyerly, 2013; Simkin, 1991). However, unlike with birth, researchers and policy makers have given less attention to what constitutes a good abortion experience. This reality may be due to a greater focus on defending access to abortion by creating a body of evidence demonstrating that it does not harmwomen physically or mentally and improving ia Pacific Research Institute, L. Altshuler), [email protected] u (P.D. Blumenthal), Lori. Ltd. This is an open access article u
  • 70. its technical aspects. Fortunately, undergoing an abortion in the U.S. is extremely safe (Biggs et al., 2017; Jatlaoui et al., 2016) and the process is effective (Ireland et al., 2015), permitting a shift in focus to improving other aspects of care quality, namely patient- centeredness, which encompasses care guided by a patient's values (Institute of Medicine, 2001). Prior studies suggest that most women tend to be satisfied with their care (Taylor et al., 2013; Tilles et al., 2016) but some women have challenging experiences (Kimport et al., 2012; Weitz and Cockrill, 2010), implying that there is room for improvement. Accordingly, we must learn fromwomen who have sought abortion services about their experiences and how they would like their care to be. A qualitative investigation of women's needs and preferences to improve care has been performed for maternity services and it offers a preliminary framework for studying abortion due to their commonalitiesdboth birth and abortion affect pregnant women and are two among other reproductive health services that women's health clinicians provide. Bioethicist and obstetrician Anne Lyerly examined what constitutes a good birth experience by learning from childbearing women about what they valued, amounting to one of the most comprehensive efforts to date on this subject (Lyerly, 2013). She found that the five core domains for a nder the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
  • 71. http://creativecommons.org/licenses/by-nc-nd/4.0/ mailto:[email protected] mailto:[email protected] mailto:[email protected] mailto:[email protected] mailto:[email protected] mailto:[email protected] http://crossmark.crossref.org/dialog/?doi=10.1016/j.socscimed.2 017.09.010&domain=pdf www.sciencedirect.com/science/journal/02779536 http://www.elsevier.com/locate/socscimed http://dx.doi.org/10.1016/j.socscimed.2017.09.010 http://creativecommons.org/licenses/by-nc-nd/4.0/ http://dx.doi.org/10.1016/j.socscimed.2017.09.010 http://dx.doi.org/10.1016/j.socscimed.2017.09.010 A.L. Altshuler et al. / Social Science & Medicine 191 (2017) 109e116110 good birth entail being the principal decider and actively wit- nessing the birth process (agency); trusting the health provider and feeling safe from physical harm in the face of risk, being free from unwanted intrusions and feeling at ease (personal security); having the birth experience respected as a significant event, being treated with dignity and possessing self-respect (respect); maintaining clear communication and access to information throughout the birthing process (knowledge); and feeling emotionally connected to the baby, loved ones, health professionals and other women (connectedness) (Lyerly, 2013).
  • 72. Lyerly found that these domains for a good birth generally correspond to dimensions needed for individual wellbeing theo- rized by Powers et al. in their framework for social justice in health policy (Powers and Faden, 2006), implying that they are potentially broad enough to apply to other areas of healthcare. Moreover, previous studies on abortion suggest that there are parallels be- tweenwomen's needs in maternity and abortion care. With respect to Lyerly's domain “agency,” researchers have found that women value being able to decide to have an abortion to plan their lives (Andrews and Boyle, 2003; Fielding et al., 2002) and to determine how the abortion happens (Elul et al., 2000; Fielding et al., 2002; Kerns et al., 2012; Simonds et al., 1998). Elements of “personal se- curity” emerged in women's narratives in Kimport et al., in which women described a need to feel physically safewhile obtaining care in abortion clinics that operated in hostile anti-abortion environ- ments (Kimport et al., 2012). Findings from Castle et al. under- scored the importance that women ascribe to having information to prepare for an abortion (Castle et al., 1995), consistent with the domain “knowledge.” “Connectedness” and “respect” were also important to women, demonstrated as an appreciation for compassionate behavior from providers (Kimport et al., 2012; McLemore et al., 2014; Taylor et al., 2013) and having a sense of dignity upheld during abortion care (McLemore et al., 2014; Weitz
  • 73. and Cockrill, 2010). Despite these commonalities in childbirth and abortion, there are also notable differences, such as women's circumstances at the time of pregnancy and the sociopolitical context within which these reproductive experiences occur. Birth tends to be viewed as joyous and physiological (Gaskin, 2011; Lyerly, 2013) and intra- partum services arewell-integrated into healthcare: they are linked to antepartum and postpartum services, have private and public insurance coverage, and are accessible to most women (Kaiser Family Foundation, 2013; Rayburn et al., 2012). By contrast, abor- tion is politicized and stigmatized (Joffe, 2013; Norris et al., 2011). Services tend to be provided separately from other medical care in limited supply at specialized abortion facilities, requiring amajority of women to travel far and to pay out of pocket for care (Jerman et al., 2016; Jones and Jerman, 2014). Given these different con- texts for birth and abortion, we sought to examine ways in which women's needs and preferences in abortion care differ from intrapartum care. 2. Methods The study was conducted in Northern California through semi- structured intensive interviews from April to December 2014 with women who had individually experienced both birth and abortion. Participants were recruited through advertisements on
  • 74. Craigslist, at community colleges and at public libraries that tar- geted women residing in a geographical area with multiple birth and abortion facilities to choose from. We recruited women from the community rather than specific medical facilities to solicit variation in women's clinical experiences and to identify underly- ing patterns that were not influenced by a particular medical setting. We predicted this recruitment strategy would underrepresent women who had abortions for fetal or maternal indications given they account for less than 5% of all abortions (Jatlaoui et al., 2016). We did not view it as a limitation as those experiences have been studied (Lafarge et al., 2014). Inclusion criteria were age 18e49 years, had an abortion in the last 5 years and a prior birth at any time point in the United States, and not pregnant at the time of interview. These timeframes were selected because it has been demonstrated that women remember their births accurately and vividly as many as 10e20 years later (Simkin, 1992) but this information is unknown for abortion. All women gave informed consent prior to participating and received a $40 gift card as compensation for their time. An obstetrician/gynecologist-researcher (AA) who had prior interview experience and did not know the participants personally or professionally conducted interviews in English over the phone and in-person in a nonmedical setting. Phone interviews allowed us to expand recruitment and to accommodate women who had childcare or transportation difficulties. AA did not identify herself