This document summarizes a learning exchange on community-enabled technology for healthcare. It discusses how (1) people can pool their knowledge and resources through technology, (2) the Improving Care Now network aims to improve care for pediatric inflammatory bowel disease, and (3) their solution is a learning system called ICNexchange.org that allows a dispersed community to share knowledge, tools, and learn from each other to improve outcomes for patients.

1. Learning Exchange:
Community-Enabled Technology
Daniel McLinden, EdD (Presenter)
Sarah Myers, RN
Melida Busch, MLIS
David Davis, MFA
Rapid Reports
Sun Apr 23, 2017
12:25 PM - 12:33 PM
LK 101

2. This is technology…

3. These are people…

4. This is sharing by people…
Some people have
knowledge and
resources
Sharing by people* is enabled by technology
*People are messy
Some people need
knowledge and
resources

5. What if…
… we used the web as
a platform for
individuals to pool their
efforts, knowledge, and
resources to create
something astounding
for healthcare.

6. The context
Transform the health, care and costs for all children and
adolescents with Crohn’s disease and ulcerative colitis by
building a sustainable collaborative chronic care network,
enabling patients, families, clinicians and researchers to
work together in a learning health care system to
accelerate innovation, discovery and the application of
new knowledge.
www.improvecarenow.org
@ImproveCareNow

7. Create a learning system that makes it
possible for a geographically dispersed
community of clinicians, scientists,
patients, and parents to pool their
knowledge, learn from each other and
improve outcomes.
The Challenge…

8. The Idea
Aim: Create a learning resource that will radically
change for the better what people know about
how to implement an effective and reliable care
delivery system to treat and manage chronic
disease beginning with pediatric inflammatory
bowel disease.
In other words: “We need a way to share
knowledge, tools, and know-how across a
dispersed community.”

9. • There needs to be a
place to exchange
tools, processes,
stories and learn from
each other.
• There needs to be a
place to collaborate
and co-create new
knowledge.
Beliefs

10. These are people working together to improve healthcare for
pediatric inflammatory bowel disease (IBD)

11. This is technology that supports people working to
improve healthcare: ICNexchange.org

12. “Having the new co-production
change package on the Exchange
has made it really easy to access
and navigate. You don’t have to
worry that you are looking at the
wrong outdated e-mail attachment,
because you know the change
package is being updated in real-
time as the community learns
together!”
-SR, Children’s Mercy
Sharing

13. Building community

14. D.B.
M.L.
Ideate

15. S.M.
Co-production

16. Activism and activists