Seek your medical data, stay healthy

1. Seek your medical data, stay
healthy
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2. Steven Keating's doctors view him as a citizen of the future. A scan of his brain eight
years ago revealed a slight abnormality , nothing to worry about, he was told, but
worth monitoring. And monitor he did, reading up about brain structure, function
and wayward cells, and obtaining a follow-up scan in 2010, which showed no
trouble.But he knew from his research that his abnormality was near the brain's
olfactory centre.So when he started smelling whiffs of vinegar last summer, he
suspected trouble. He made doctors do an MRI; three weeks later, surgeons
removed a cancerous tumour the size of a tennis ball from his brain.At every stage,
Keating, a 26-year-old doctoral student at MIT's Media Lab, has pushed to get his
medical information, collecting about 70 gigabytes of his own patient data by now.
His case points to what medical experts say could be gained if patients had full
access to their medical information. Informed patients, they say , are more likely to
take better care of themselves, comply with drug regimens and even detect early-
warning signals of illness. “Today Keating is a big exception, but he's also a glimpse
of what people will want: more and more information,“ said Dr David W Bates at
Brigham and Women's Hospital, where Keating had his surgery .
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3. Contd..
Some of the most advanced medical centres are starting to make
medical information more available to patients. They are also being
allowed online access to the notes taken by physicians about them. In a
yearlong evaluation project at medical groups, more than two-thirds of
patients reported having a better understanding of their medical
conditions, adopting healthier habits and taking their medications
more regularly .
Still, Keating said he encoun tered a medical culture resistant to sharing
data, owing to tradi tion, business practices and legal concerns. Since
his diagnosis last summer, Keating has become a passionate advocate
for giving patients all the data they ask for.
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4. Contd..
To a hospital, a patient is a revenue-generating asset, said Ben
Shneiderman, a professor at the University of Maryland. Hold onto the
patient's information and you are more likely to keep the patient. “The
problem is that you have institutions whose busi ness models do not
favour shar ing information,“ he said.
Keating says he is a strong believer in privacy , but he person ally
believes that the benefits outweigh the risks -and wheth er to share
data or not should be an individual's choice and an individual
responsibility
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5. This platform has been started by Parveen Kumar Chadha with
the vision that nobody should suffer the way he has suffered
because of lack and improper healthcare facilities in India. We
need lots of funds manpower etc. to make this vision a reality
please contact us. Join us as a member for a noble cause.
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