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Building the HPSR CommunityBuilding HPSR Capacity
KEYSTONE
Inaugural KEYSTONE Course on Health Policy and Systems Research 2015
Health Policy & Systems Research Frameworks – 3
(Knowledge translation, rigour and ethics)
KEYSTONE
Health Policy & Systems Research
Frameworks – 3
(Knowledge translation, rigour and
ethics)
Kabir Sheikh
24 Feb 2015
KEYSTONE
KNOWLEDGE TRANSLATION IN
HPSR
KEYSTONE
The change we want to see
Creation of
useful
knowledge
about the
system
Utilization
of that
knowledge for
real world
improvements
Systems ‘Software’
Ideas and interests,
Relationships and power,
Values and norms
Systems ‘Hardware’
Human Resources,
Finance, Medicines &
technology, Organizations,
Services Information
systems
SOCIAL, POLITICAL, ECONOMIC CONTEXT
Policy decisions
THE HEALTH SYSTEM
KEYSTONE
But how successful is HPSR in
informing real-world change?
Its hard to say… but there are many gaps
Unfortunately, the current understanding of how research influences change
is flawed
• ‘Research to Policy’ implies schism between knowledge and action
• Our thoughts and actions mimic this and reinforce schism
• But, world of knowledge and world of action cannot be neatly separated
KEYSTONE
HPSR can inform health systems change more
effectively, by becoming more people-centred
KEYSTONE
Health Systems: people-centred view
1. Health systems are made up of people, ALL of
whom make decisions that shape its performance
2. People in the health system are both sources and
users of knowledge about the health system
3. Researchers are an integral part of the health
system
KEYSTONE
People constitute systems
THE HEALTH SYSTEM
(People
who are)
sources of
knowledge
about
system
(People
who are)
users of
knowledge
about
system
PLANNERS
FINANCERS,
ADMINISTRATORS
ADVOCATES
SERVICE USERS
FRONTLINE
PROVIDERS
RESEARCHERSINTERCHANGEABLE CATEGORIES
KEYSTONE
A dialogic practice – unlike some other sciences
THE HEALTH SYSTEM
RESEARCHERS
Promote
inclusion of
excluded voices
Promote
reflection
and learning
Stimulate discourse
Inform policy choices
Reframe
debates
Synthesize and
analyze knowledge
KNOWLEDGE UTILIZATION
KNOWLEDGE CREATION
OTHER HEALTH
POLICY / SYSTEM
ACTORS
KEYSTONE
NOTES ON RIGOUR AND ETHICS IN
HPSR
KEYSTONE
• System: a demonstrable system of collecting, analyzing and interpreting
data (RItchie and Spencer 2004)
• Reflexivity: sensitivity to the role of the researcher and the research
process in influencing the way the data is collected or interpreted (Mays
and Pope 2000)
• Fair dealing: ensuring that views of a particular group or groups are not
presented as the sole truth about a situation (Dingwall 1992).
• Credibility: ensuring “the compatibility of the constructed realities that
exist in the minds of respondents, with those that are attributed to
them” (Fischer 2003)
Rigour and ethics in HPSR
KEYSTONE
1Q = Broad View of Quality
• Does my methodology match my question?
• Have I applied parameters appropriate to
methodology?
• Respect for knowledge ecology: What is the existing
knowledge on this issue in the setting? Beyond PUB-
MED? (If poorly explored) Does my research have an
exploratory, open-ended component?
• Policy-mindedness: Have I considered consequences of
application of findings in context? Intended and
unintended? For other priorities / sectors?
KEYSTONE
2Q – Qualifying one’s work and position
Have I discussed my interest in and approach in the
topic?
Have I discussed my value and philosophical base?
Audience: Have I considered who my research is for?
Who has influenced my research? How?
Have I discussed my position and power in the health
system?
Do I have autonomy of ideas and action?
KEYSTONE
Researcher reflexivity
Robson, 2002
• Identify your personal issues in relation to topic
• Clarify your value system
• Identify areas of possible role conflict
• Identify gatekeepers and how they will influence you
• Identify where you are not neutral
KEYSTONE
3Q - Foregrounding Human Qualities
• Does the research advance understanding of specific
human attributes of systems in the setting? Does it
go beyond ‘the machine’?
• Does the research address system complexity?
• Does the research acknowledge, if not address,
equity, justice and power in the system?
• Have I located the subject in its broader social,
political and economic contexts?
KEYSTONE
Ethical concerns in real world research
Robson, 2002
• Involving people without consent
• Coercing them to participate
• Withholding information about true nature of research
• Otherwise deceiving participants
• Inducing participants to commit acts diminishing of their self-esteem
• Violating rights of self-determination
• Exposing participants to physical or mental stress
• Invading privacy
• Withholding benefits from some participants
• Not treating participants fairly or with respect
KEYSTONE
Readings
• Gilson, L. et al., 2011. Building the Field of Health Policy and Systems
Research: Social Science Matters. PLoS Med, 8(8), p.e1001079.
• Sheikh, K., George, A. & Gilson, L., 2014. People-centred science:
strengthening the practice of health policy and systems research. Health
Research Policy and Systems, 12, p.19.
• Gilson, L. ed., 2012. Health policy and systems research: a methodology
reader, Alliance for Health Policy & Systems Research, WHO.
• Introduction to Health Policy and Systems Research, course presentation,
Presentation 5. Copyright CHEPSAA (Consortium for Health Policy &
Systems Analysis in Africa) 2014
• Introduction to Health Policy and Systems Research, course presentation,
Presentation 6. Copyright CHEPSAA (Consortium for Health Policy &
Systems Analysis in Africa) 2014
KEYSTONE
Groupwork
• Facilitated work towards defining health
system problem, and thinking about research
questions
• Collation of finalized health system problems
Open Access Policy
KEYSTONE commits itself to the principle of open access to knowledge. In keeping with this, we strongly support open access and use of materials
that we created for the course. While some of the material is in fact original, we have drawn from the large body of knowledge already available under
open licenses that promote sharing and dissemination. In keeping with this spirit, we hereby provide all our materials (wherever they are already not
copyrighted elsewhere as indicated) under Creative Commons Attribution-NonCommercial 4.0 International License. To view a copy of this license
visit http://creativecommons.org/licenses/by-nc/4.0/
This work is ‘Open Access,’ published under a creative commons license which means that you are free to copy, distribute, display, and use the
materials as long as you clearly attribute the work to the KEYSTONE course (suggested attribution: Copyright KEYSTONE Health Policy & Systems
Research Initiative, Public Health Foundation of India and KEYSTONE Partners, 2015), that you do not use this work for any commercial gain in any
form and that you in no way alter, transform or build on the work outside of its use in normal academic scholarship without express permission of
the author and the publisher of this volume. Furthermore, for any reuse or distribution, you must make clear to others the license terms of this work.
This means that you can:
read and store this document free of charge
distribute it for personal use free of charge
print sections of the work for personal use
read or use parts or whole of the work in a context where no financial transactions take place
gain financially from the work in anyway
sell the work or seek monies in relation to the distribution of the work
use the work in any commercial activity of any kind
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However, you cannot:

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KEYSTONE / Module 4 / Slideshow 3 / Health Policy & System Research Frameworks – 3

  • 1. https://twitter.com/KeystoneHPSR Building the HPSR CommunityBuilding HPSR Capacity KEYSTONE Inaugural KEYSTONE Course on Health Policy and Systems Research 2015 Health Policy & Systems Research Frameworks – 3 (Knowledge translation, rigour and ethics)
  • 2. KEYSTONE Health Policy & Systems Research Frameworks – 3 (Knowledge translation, rigour and ethics) Kabir Sheikh 24 Feb 2015
  • 4. KEYSTONE The change we want to see Creation of useful knowledge about the system Utilization of that knowledge for real world improvements Systems ‘Software’ Ideas and interests, Relationships and power, Values and norms Systems ‘Hardware’ Human Resources, Finance, Medicines & technology, Organizations, Services Information systems SOCIAL, POLITICAL, ECONOMIC CONTEXT Policy decisions THE HEALTH SYSTEM
  • 5. KEYSTONE But how successful is HPSR in informing real-world change? Its hard to say… but there are many gaps Unfortunately, the current understanding of how research influences change is flawed • ‘Research to Policy’ implies schism between knowledge and action • Our thoughts and actions mimic this and reinforce schism • But, world of knowledge and world of action cannot be neatly separated
  • 6. KEYSTONE HPSR can inform health systems change more effectively, by becoming more people-centred
  • 7. KEYSTONE Health Systems: people-centred view 1. Health systems are made up of people, ALL of whom make decisions that shape its performance 2. People in the health system are both sources and users of knowledge about the health system 3. Researchers are an integral part of the health system
  • 8. KEYSTONE People constitute systems THE HEALTH SYSTEM (People who are) sources of knowledge about system (People who are) users of knowledge about system PLANNERS FINANCERS, ADMINISTRATORS ADVOCATES SERVICE USERS FRONTLINE PROVIDERS RESEARCHERSINTERCHANGEABLE CATEGORIES
  • 9. KEYSTONE A dialogic practice – unlike some other sciences THE HEALTH SYSTEM RESEARCHERS Promote inclusion of excluded voices Promote reflection and learning Stimulate discourse Inform policy choices Reframe debates Synthesize and analyze knowledge KNOWLEDGE UTILIZATION KNOWLEDGE CREATION OTHER HEALTH POLICY / SYSTEM ACTORS
  • 10. KEYSTONE NOTES ON RIGOUR AND ETHICS IN HPSR
  • 11. KEYSTONE • System: a demonstrable system of collecting, analyzing and interpreting data (RItchie and Spencer 2004) • Reflexivity: sensitivity to the role of the researcher and the research process in influencing the way the data is collected or interpreted (Mays and Pope 2000) • Fair dealing: ensuring that views of a particular group or groups are not presented as the sole truth about a situation (Dingwall 1992). • Credibility: ensuring “the compatibility of the constructed realities that exist in the minds of respondents, with those that are attributed to them” (Fischer 2003) Rigour and ethics in HPSR
  • 12. KEYSTONE 1Q = Broad View of Quality • Does my methodology match my question? • Have I applied parameters appropriate to methodology? • Respect for knowledge ecology: What is the existing knowledge on this issue in the setting? Beyond PUB- MED? (If poorly explored) Does my research have an exploratory, open-ended component? • Policy-mindedness: Have I considered consequences of application of findings in context? Intended and unintended? For other priorities / sectors?
  • 13. KEYSTONE 2Q – Qualifying one’s work and position Have I discussed my interest in and approach in the topic? Have I discussed my value and philosophical base? Audience: Have I considered who my research is for? Who has influenced my research? How? Have I discussed my position and power in the health system? Do I have autonomy of ideas and action?
  • 14. KEYSTONE Researcher reflexivity Robson, 2002 • Identify your personal issues in relation to topic • Clarify your value system • Identify areas of possible role conflict • Identify gatekeepers and how they will influence you • Identify where you are not neutral
  • 15. KEYSTONE 3Q - Foregrounding Human Qualities • Does the research advance understanding of specific human attributes of systems in the setting? Does it go beyond ‘the machine’? • Does the research address system complexity? • Does the research acknowledge, if not address, equity, justice and power in the system? • Have I located the subject in its broader social, political and economic contexts?
  • 16. KEYSTONE Ethical concerns in real world research Robson, 2002 • Involving people without consent • Coercing them to participate • Withholding information about true nature of research • Otherwise deceiving participants • Inducing participants to commit acts diminishing of their self-esteem • Violating rights of self-determination • Exposing participants to physical or mental stress • Invading privacy • Withholding benefits from some participants • Not treating participants fairly or with respect
  • 17. KEYSTONE Readings • Gilson, L. et al., 2011. Building the Field of Health Policy and Systems Research: Social Science Matters. PLoS Med, 8(8), p.e1001079. • Sheikh, K., George, A. & Gilson, L., 2014. People-centred science: strengthening the practice of health policy and systems research. Health Research Policy and Systems, 12, p.19. • Gilson, L. ed., 2012. Health policy and systems research: a methodology reader, Alliance for Health Policy & Systems Research, WHO. • Introduction to Health Policy and Systems Research, course presentation, Presentation 5. Copyright CHEPSAA (Consortium for Health Policy & Systems Analysis in Africa) 2014 • Introduction to Health Policy and Systems Research, course presentation, Presentation 6. Copyright CHEPSAA (Consortium for Health Policy & Systems Analysis in Africa) 2014
  • 18. KEYSTONE Groupwork • Facilitated work towards defining health system problem, and thinking about research questions • Collation of finalized health system problems
  • 19. Open Access Policy KEYSTONE commits itself to the principle of open access to knowledge. In keeping with this, we strongly support open access and use of materials that we created for the course. While some of the material is in fact original, we have drawn from the large body of knowledge already available under open licenses that promote sharing and dissemination. In keeping with this spirit, we hereby provide all our materials (wherever they are already not copyrighted elsewhere as indicated) under Creative Commons Attribution-NonCommercial 4.0 International License. To view a copy of this license visit http://creativecommons.org/licenses/by-nc/4.0/ This work is ‘Open Access,’ published under a creative commons license which means that you are free to copy, distribute, display, and use the materials as long as you clearly attribute the work to the KEYSTONE course (suggested attribution: Copyright KEYSTONE Health Policy & Systems Research Initiative, Public Health Foundation of India and KEYSTONE Partners, 2015), that you do not use this work for any commercial gain in any form and that you in no way alter, transform or build on the work outside of its use in normal academic scholarship without express permission of the author and the publisher of this volume. Furthermore, for any reuse or distribution, you must make clear to others the license terms of this work. This means that you can: read and store this document free of charge distribute it for personal use free of charge print sections of the work for personal use read or use parts or whole of the work in a context where no financial transactions take place gain financially from the work in anyway sell the work or seek monies in relation to the distribution of the work use the work in any commercial activity of any kind distribute in or through a commercial body (with the exception of academic usage within educational institutions such as schools and universities However, you cannot:

Editor's Notes

  1. People in the health system cant be neatly divided up into sources of information and users of information. Most people are both, at the same time, or at some time or the other
  2. All this happens through dialogue. HPSR is an act and a product of dialogue between researchers and system actors – either acting formally as commissioners, collaborators or participants, or informally as gatekeepers, informants, brokers and users of information All this potentially reflects healthy movement from creation to utilization of knowledge about the system - the whole-system learning loop can mirror individual learning loops