2. www.sightsavers.org
Front cover photo:
Devilal enjoys learning alongside
sighted friends at his local school in
Rajhasthan
Contents
Foreword 2
Sunit Bagree
Early identification and stimulation as key factors in the
inclusion of visually impaired children in mainstream
schools in Belize 4
Joan Musa, Joan Samuels and Philip Hand
Demonstrating low vision services in Rajasthan 9
Nitin Sharma
Supporting Integrated Education in Sierra Leone 13
Tiangay Gondoe
Child Friendly Inclusive Education in Pakistan 17
Itfaq Khaliq Khan, Leena Ahmed and Ahmed Ghaznavi
The Right to Information: Addressing the reproductive
health needs of visually impaired adolescent girls 20
Jayashree Kumar and Monu Ravindran
Braille champions in Narshingdi district: the
experience of Sightsavers Bangladesh 25
Nusrat Zerin
What lessons can we learn from our experiences? 29
Guy Le Fanu
3. Page 1
From the editor
Claire Jago, Learning Support Officer
Welcome to the fifth
issue of Insight Plus,
Sightsavers’ bi-annual
learning review.
Working with partners across Africa, Asia and the
Caribbean, Sightsavers’ aim is to eliminate avoidable
blindness and promote equality of opportunity for
disabled people. This series collates learning and best
practice from across our programmes, with each issue
focusing on a different thematic area.
In this issue, we focus on education and how
Sightsavers and our partners are working to ensure that
all disabled children have the opportunity to receive
a quality education within a wider education system.
The featured articles cover a diverse range of topics,
such as promoting inclusion through early childhood
intervention in Belize, empowering local Braille
champions to support visually impaired children in
Bangladesh, and educating visually impaired adolescent
girls about their reproductive health needs and rights in
North India.
I hope you find Insight Plus useful, and welcome your
comments and suggestions. Please send your feedback
to learning@sightsavers.org
Sightsavers
Grosvenor Hall
Bolnore Road
Haywards Heath
West Sussex
RH16 4BX
UK
Tel: +44 (0) 1444 446600
Fax: +44 (0) 1444 446688
www.sightsavers.org
Copyright
Any Insight Plus material may be
freely reproduced, provided that
acknowledgement is given to
Sightsavers as the author.
ISSN 2044-4338
5. Page 3
and between the international policies
and practices of donors around inclusive
education’.4
One key problem is that donors do not appear
to consider disabled children (and adults)
as a priority when tackling marginalisation in
education. The main focus of donors is on
improving access and quality for girls and
children in fragile states. While both of these
groups make up a large number of the world’s
children who are not enrolled in school or
learning effectively, they certainly do not
represent all of the excluded. Donors need
to work with national governments to adopt a
more comprehensive - rather than fragmented
- approach to equity and inclusion.
Another major problem is that donors are
failing to dedicate adequate resources to
basic education in general. Donors only
allocate 4.1 percent of their aid to basic
education when the international benchmark
is 10 percent.5
If donors dedicated 0.7 percent
of GNP to aid (in line with an international
agreement dating back to 1970) and met the
10 percent benchmark, an additional US$21
billion would be generated annually.6
As long
as principles of aid effectiveness and policy
coherence for development were respected
and applied, this level of financing would
be sufficient to meet the Education for All
goals and lay a strong platform for achieving
education rights more broadly.
At the global level, Sightsavers is calling on
donors to:7
v
Develop strong targets for including
disabled children in education (in terms of
both access and quality).
v
Dedicate adequate financing to achieving
these targets.
v
Use guidelines/tools for inclusion when
planning and monitoring education
programmes, to improve access and quality
for disabled children.
v
Support disabled people’s organisation
to develop their capacities to genuinely
engage in education sector planning and
reviews.
v
Report on progress in a transparent manner.
Of course, advocacy is central to programme
work. As some of the following articles
demonstrate, this can take different forms:
encouraging the government to scale up and
transfer examples of good practice (e.g. North
West India); building the capacities of civil
society groups to combat discrimination (e.g.
Sierra Leone); and influencing policy change
(e.g. Pakistan). In turn, these activities serve to
strengthen Sightsavers’ legitimacy and profile
at the international level.
1
Filmer, D. (2008) Disability, Poverty, and Schooling in Developing Countries: Results from 14 Household Surveys,
http://siteresources.worldbank.org/DISABILITY/Resources/280658-1239044853210/5995073-1246917324202/
Disability_Poverty_and_Schooling_in_Developing_Countries.pdf, p. 141.
2
UNESCO (2010) EFA Global Monitoring Report 2010, http://www.unesco.org/new/en/education/themes/leading-
the-internationalagenda/efareport/reports/2010-marginalization/, p. 184.
3
See http://www.un.org/disabilities/default.asp?id=150.
4
Lei, P. & Myers, J. (2011) ‘Making the grade? A review of donor commitment and action on inclusive education for
disabled children’, International Journal of Inclusive Education, 15, 1169-1185, p. 1183.
5
Global Campaign for Education (2011) Fund the Future - Education Rights Now, http://www.campaignforeducation.
org/docs/reports/ftf/Fund%20the%20future_education%20rights%20now.pdf, p. 3.
6
Ibid, p. 8.
7
For more detailed recommendations, see: Myers, J. & Bagree, S. (2011) Making inclusive education a reality, http://
www.sightsavers.org/in_depth/policy_and_research/education/16079_Sightsavers%20IE%20Policy%20Paper%20
2011%20-%20FINAL.pdf.
7. Page 5
Introduction
Sightsavers’ partner, BCVI, was established in
1981 and works hard to meet the eye health
needs of the country’s 345,000 inhabitants,
while also advocating for the rights of all
visually impaired people to lead independent
and fulfilling lives.
BCVI believes it is essential to identify a visually
impaired person as early as possible, whether
it is a young child, an adolescent, or an adult
who has experienced recent loss of sight. This
enables children to attain developmental and
educational milestones and, for all individuals,
the early introduction of rehabilitation and
education services contributes greatly to a
higher level of achievement.
BCVI’s approach
BCVI promotes a Life Cycle Approach and
has supported many people who are visually
impaired from birth through school, university
and employment. BCVI supports older people
through initiatives like the Visually Impaired
Club which enables older people to socialise
and be active members of society. BCVI
believes that education is the key to human,
social and economic development and that it is
a fundamental human right. Inclusive education
provides the best opportunities for children
who are visually impaired.
In 1989, the first children to be placed in
mainstream education in Belize were three
students then attending the residential school
for children with disabilities in Belize City.
Two of the students were from outside Belize
district so they continued to reside there while
attending a nearby primary school. After two
years, they returned home to live with their
families and attend their local primary school.
Shortly after, two children with severe low
vision were introduced to a mainstream school
and functioned well with the appropriate aids.
This pattern of inclusion has continued
from there and BCVI’s approach, coverage
and commitment has led to 100 percent
identification and placement of children
who are visually impaired in the mainstream
education system.
How children are found
BCVI’s Comprehensive Eye Care Programme
is structured in a way that greatly improves the
chances of early identification of children with
visual impairment. Identification takes place
through district based primary eye clinics,
outreach activities, involvement with the public
and private school system, public awareness
activities, and continuous engagement with
communities throughout the country.
Each aspect of BCVI’s comprehensive
programme is linked, so no matter where
a child is identified they can be referred,
professionally assessed, and introduced to
the most appropriate service(s). If children
are thought to have vision related problems,
it is only a matter of time before BCVI makes
contact and begins working with children,
parents, teachers, community members and
health professionals to ensure development
and inclusion.
All children are professionally assessed and
those who cannot reach a functional visual
acuity with refraction by an optometrist are
referred to an ophthalmologist for confirmation
of a diagnosis and exploration of treatment
options. This stage also includes a low vision
assessment which is performed by one of
BCVI’s optometrists with specialist training.
The assessment is done in cooperation with
a BCVI Rehabilitation Field Officer (RFO), who
will have made an assessment of the home
and school environment. Children with low
vision are provided with aids and, if they have
sufficient vision to be able to function with print
material, only need occasional support visits
from BCVI’s RFO.
What happens in early
stimulation?
Once a child is introduced as a client to BCVI,
staff members begin to encourage him or her
through activities and play which help build
confidence and an awareness of the world
around them. For children up to five years old,
this takes place as part of the early stimulation
programme which began in 1994 as a
collaboration with Hilton Perkins International.
One of the objectives of the programme is
to prepare babies with the capacities which
will eventually enable them to become
included within the regular school system
at the same age as their sighted peers. The
programme began by carrying out a series
of one week workshops to sensitise and
build the confidence of parents of visually
impaired children under five. The workshops
gave parents an idea of the skills their
children would eventually have to learn (Braille
reading and writing, abacus, cubarithm slate
9. Page 7
From early stimulation to
pre-school and primary
Children in Belize attend pre-school from three
to five years of age. These two years are of
vital importance in acquiring early childhood
learning skills and preparing for primary
school. Early childhood learning is available
nationwide and almost every public school
has a pre-school attached. Children with visual
impairment have full access to this learning
opportunity, but children whose primary
disability is not vision related do not have the
same level of opportunity. Those who cannot
function in the regular pre-school setting are
referred to the National Resource Center for
Inclusive Education (NaRCIE) or CARE Belize
for intervention services.
At pre-school level, the RFO supports
parents to register children in a pre-school
of their choice. The RFO also develops an
Individualised Education Plan (IEP) with
parents and teachers, carries out teacher
training and support visits, and ensures
provision of educational materials and
appropriate technologies.
At primary level, RFOs should ideally provide
Curriculum Plus Skills training to Itinerant
Resource Officers from NaRCIE, to ensure
that they can provide support for teachers with
visually impaired students in the classroom.
While this has happened in the past, NaRCIE’s
current limitations would make this training a
waste of scarce resources.
The role of the Summer Camp
Since its inception in 1997, BCVI has hosted
an annual Summer Camp for children who are
visually impaired and their parents and family
members. The Camp, which lasts two weeks,
provides opportunities for professionals to
assess the progress of children and teach
them special skills, and for all participants to
socialise and have fun.
Up to 30 visually impaired children attend camp,
accompanied by a guardian if they are under
15 years old. In recent years, themes have
included ‘Exploring Technology’, ‘Inclusion’,
and ‘Exploring the World through Reading’.
Camp activities are designed to ensure children
prepare for their new school year and to
introduce new Curriculum Plus Skills.
Children also get the opportunity to enjoy new
experiences like over-nighting at the Tropical
Education Centre, going to the movies and
working with local artists. Children have also
visited Love FM TV and radio studios where
they took the opportunity to show the nation
that nothing is holding them back.
Summer Camp has proven to be a key activity
in the educational and social development of
visually impaired children and their families. In
response to this, BCVI introduced New Year
and Easter Camps in 2012; these are three
days long and focus on introducing technology
to older children.
Overcoming challenges to
delivering and maintaining
services
While BCVI has developed an effective
system for early identification, a quality early
stimulation programme, and access to an
inclusive education system from pre-school
onwards, there are still a number of challenges
to overcome:
v
Education of children with visual impairment
or other disabilities is not a self-sustaining
activity. Government funds and resources
are extremely limited and BCVI continuously
needs to source funding to ensure that
each child has an equal opportunity. In 2011,
BCVI provided support to 11 infants in early
stimulation, 51 students in mainstream pre-
school, primary and secondary education,
and three children with multiple disabilities
in a special education unit. A rough average
cost for BCVI per child per year is BZ$1,445
(US$723).
v
Although NaRCIE are the Government’s
inclusive education coordinating body, BCVI
carries the entire workload of supporting
children who are visually impaired in pre-
schools, except for occasional visits by
NaRCIE’s Itinerant Resource Officers.
BCVI’s advocacy has not been successful
in changing this situation, but they are now
working with parents and families of children
with visual impairment, so that they can lead
on advocating for improved support and
services from the Government.
v
Summer Camp has proven to be a very
successful initiative which provides support
for children and their families as they enter
into new phases in their education. Summer
Camp depends largely on the support of
community organisations and the private
sector. This support has dropped off in
12. www.sightsavers.orgPage 10
with low vision are not identified due to poor
awareness among service providers.
In Rajasthan, Sightsavers is working in close
association with the Government to remedy
this situation. In particular, we are working
through the Government’s Sarve Shiksha
Abhiyan (SSA) programme which promotes
Education for All.
Our approach
Sightsavers North West India has been
supporting the education of visually impaired
children in the state of Rajasthan since 2001.
Over 300 children have been supported and
many of them have successfully completed
their school education. However, Sightsavers’
support was limited to a few districts within the
state. In other districts, the education provision
for children with visual impairment was poor
and in general there were gaps in policy and
implementation at the government level.
In 2008, Sightsavers developed a new five year
strategic framework which placed increased
emphasis on strengthening government
systems. Consequently, Sightsavers North
West India shifted its focus from service
delivery to systems strengthening and
advocacy. A situational analysis of the needs
and priorities for inclusive education was
undertaken in 2008, with the support of the
Blind People’s Association, and this study
strongly highlighted the current gaps and
potential opportunities to strengthen education
systems for a positive change. Building on
this situational analysis, efforts were made
by Sightsavers to establish good rapport with
state level officials in Rajasthan and to support
capacity building initiatives such as the training
of resource teachers. This collaboration
led to increased Government confidence
in Sightsavers and, having increased our
credibility and gained recognition as a
technical resource agency, Sightsavers was
invited by the State Government to enter a
formal partnership around education.
The Government of Rajasthan signed a
Memorandum of Understanding (MOU) with
Sightsavers to run a pilot inclusive education
project in two districts, covering over 600
children. The MOU focused on activities such
as the demonstration of low vision assessment
approaches, state level planning, and support
to capacity building initiatives across all 33
districts within the state. This is the first MOU
between the Government of Rajasthan and any
civil society organisation under a public private
partnership for inclusive education.
The pilot project
The primary objective of organising low
vision assessment camps on a pilot basis
was to give exposure to district level teams
on the importance of low vision services. The
pilot was planned to demonstrate a multi-
stakeholder approach to the development
of low vision services across Rajasthan. The
following organisations participated in the pilot
project; the Government of Rajasthan through
SSA, the Department of Health, civil society
organisations, eye hospitals and Sightsavers,
as the technical support agency. In the first
phase, low vision assessment camps were
held in three districts; Barmer, Jasalmer,
and Bhilwarda. Barmer and Jasalmer were
selected because they are challenging desert
areas in which to work, but also areas in which
our partner, Society to Uplift Rural Economy
(SURE), has a strong field presence. Bhilwada
was selected because this was an area in
which Sightsavers had never worked before.
It was decided that Sightsavers would provide
financial support in all three districts, but would
only provide low vision devices in Barmer
and Jaisalmer districts, where Sightsavers
already has education projects. For Bhilwada,
it was agreed that the Department of Health
would provide assistive devices by making
appropriate budgetary provisions through the
national programme for control of blindness,
funded by the Government of India. The
Department of Education agreed to cover
logistical expenses.
Two civil society partners, SURE for Barmer
and Jaisalmer districts, and Ramsnehi
Chikitsalaya for Bhilwada, were identified to
coordinate activities in the districts. Ramsnehi
Chikitsalaya has a well-developed eye hospital
with a low vision department and so also
provided technical support to the project in
Bhilwada. I-care Noida eye hospital played a
similar role as technical agency in Barmer and
Jaisalmer.
Process
A meeting of all stakeholders was called by
the commissioner of SSA, to discuss the
modus operandi and to clarify the individual
14. www.sightsavers.orgPage 12
received spectacles for uncorrected refractive
error. At the camps, disability certificates were
provided for children who needed them.
For the first time in Rajasthan, various
departments and civil society organisations
worked together to provide low vision services.
The formation of an empowered district-level
committee helped to transfer ownership from
state to district level. The project has also
enhanced the capacity of the district teams of
the Government of Rajasthan to organise low
vision assessment camps.
Challenges
However, challenges were also encountered.
We initially found it difficult to bring all the key
stakeholders together on one single platform.
However, the SSA took the lead in inviting all
departments and eye hospitals for a meeting
to make them aware of the need for low vision
services and the roles that each of them could
play in this project. Receiving this invitation
from the Government appealed to the
stakeholders and encouraged them to attend
the meeting.
There were difficulties in mobilising school
teachers for the pilot project as many were not
interested in receiving training on low vision
issues. To address this, the SSA issued specific
orders to target physical training instructors
(PTIs), as it is their responsibility to ensure
good health among school children.
We also found it difficult to reach many low
vision children who were not attending school,
particularly in Bhilwada district. To combat
this problem, local civil society organisations
were encouraged to reach out to communities,
spreading the message and encouraging
parents to take their children to the nearest
block level camp to have their eyes examined.
Procuring assistive devices within the
government system was an entirely new
experience. It proved a tedious and time-
consuming process and, as a result, children
had to wait a long time before receiving the
necessary devices to support their education.
The SSA has learnt from this pilot project and
decided that devices will be procured by partner
eye hospitals, with costs being reimbursed
by the Government. It was also found that
there were no funds available within SSA and
that the eye health department allocation
for child surgeries was inadequate (only £10
per surgery). Hence partner hospitals had to
mobilise local resource to undertake surgeries.
Furthermore, technical agency staff found
it difficult to communicate with parents
and children due to dialect differences,
and so the assessment took longer than
expected. In general, parents were often
reluctant to cooperate with the project due
to their previous negative experiences with
eye hospitals. The special educators and
Sightsavers’ partners worked as a bridge
between technical staff, parents and children
to provide translation and ensure that the key
messages were delivered and understood.
Learning and way forward
Venturing into a formal partnership with
various stakeholders was a major step in
ensuring the availability of low vision services
in Rajasthan. This is the first partnership of
its kind in the state and it demonstrates that
creating links between the eye health and
education sectors is a key factor in ensuring
good quality education for all. The pilot has
also been successful in demonstrating how the
voluntary sector can complement the efforts of
governments to provide specific needs-based
support to children.
As part of this project, the eye health
department in Rajasthan has, for the first
time, provided support for low vision services.
However, to ensure continuity of services,
various issues need to be addressed. It was
noted during the project that there is a lack of
technical agencies available to undertake low
vision assessments and we therefore believe
it is important that local hospitals should
be persuaded to provide these services in
the future. It was also noted that low vision
assessments could be integrated with existing
routine assessment camps, such as those for
hearing and orthopaedics.
Though this pilot project has achieved
scale in terms of policy influence, the next
challenge will be the effective implementation
of the approach in all 33 districts in Rajasthan.
The Government of Rajhasthan has allocated
INR5,250,000 (£72,500) towards this activity
for the first year, but, given the limited
availability of technical agencies to carry out
low vision assessments, it has set an initial
target of reaching 5000 low vision children.
They are, however, committed to allocating
additional funding if ways are found to reach
more children.
20. www.sightsavers.orgPage 18
pre-service and in-service teachers. This is
because inclusive education cannot become a
reality unless teachers are equipped with the
necessary skills and knowledge.
Approach
Sightsavers believes in working systematically
with other stakeholders to pool efforts and
resources to promote the enrolment and
retention of all children who are currently out
of school, especially children with disabilities.
Sightsavers Pakistan has supported the
development of operational mechanisms and
procedures that facilitate inclusive strategies
within the wider education system, and will
work in close collaboration with the Ministry
of Education and other stakeholders focusing
on various aspects of Child Friendly Inclusive
Education.
Sightsavers supported a national blind school
survey in Pakistan in 2002, revealing that a
substantial number of students could be
enrolled in mainstream schools with some
support and guidance. The Government of
Pakistan’s National Policy for Persons with
Disabilities 20023
emphasised the inclusion of
children with disabilities in mainstream schools
by facilitating accessibility and opportunities for
learning in an inclusive environment. To endorse
this policy commitment, Sightsavers signed
a tripartite agreement with the Directorate
General of Special Education (DGSE) and the
Federal Directorate of Education (FDE) in 2003.
This agreement resulted in a project to pilot
inclusive education in Islamabad, in partnership
with DGSE and FDE.
The project facilitated the implementation of
inclusive education, initially in two schools, with
a special school selected as a midway centre
to prepare children with visual impairment to
move over to mainstream schools. With the
help of this initiative, Sightsavers has played a
key role in supporting FDE’s objectives to pilot
inclusion in mainstream schools.
Sightsavers believes that the onus of
implementing inclusive education rests
with the Ministry of Education (MoE), but
that this requires assistance from special
needs experts to build capacity to absorb
children with various disabilities into regular
schools. Sightsavers has demonstrated that
the inclusion of a significant proportion of
children with disabilities in regular schools is
possible. This project was evaluated in 2006
and, following recommendations to expand
the scope of inclusive education, six more
schools were added to this initiative in 2007.
International Development Partners, Norway
also encouraged and supported inclusive
education in eight schools. The pilot project
is now embedded firmly with the Federal
Directorate of Education.
As part of this pilot to promote Child Friendly
Inclusive Education in Pakistan, Sightsavers
used the following approaches:
v
Increased inter-organisational links between
the Ministry of Education and the Ministry
of Social Welfare and Special Education
(MoSW&SE) to make them realise that the
education of children with disabilities is a
joint responsibility of both ministries.
v
Networking with other like-minded
organisations working on education, which
has resulted in the formation of a National
Inclusive Education Core Group under the
leadership of the MoE.
v
Building capacities of teachers and other
relevant staff of the MoE, FDE and DGSE
in inclusive education strategies to support
students with special educational needs.
v
Ensuring accessibility in terms of school
infrastructure and educational materials.
v
Involving communities and Parent Teacher
Associations and raising their awareness of
their role in education.
v
Working with key stakeholders to advocate
to the Government and policy makers, with
the aim of ensuring endorsement of Child
Friendly Inclusive Education within the
National Education Policy.
Successes and challenges
Sightsavers has played a key role in supporting
the objective to pilot inclusion through the
child friendly schools concept. This role has
been recognised by all stakeholders at national
level and has raised our profile in the field of
inclusive education.
Sightsavers, along with UN agencies, has been
instrumental in establishing a National Core
Group for Child Friendly Inclusive Education
in the Ministry of Education. The core group
consists of key organisations seeking inclusive
3
Government of Pakistan Ministry of Women Development Social Welfare and Special Education (2002), National
Policy for Persons With Disabilities.
23. Page 21
young people are often hindered from actively
seeking counsel for their needs. Adolescents
are therefore identified as an underserved
group with particular health needs, and
for whom reproductive and sexual health
interventions need to be designed.
Girls up to the age of 19 years old comprise
about one quarter of India’s population and
the majority of them are out of school and
therefore do not receive services from school-
based health programmes. Access to, and
provision of, information is key to reducing
inequalities in health and social care for all
adolescents. However, within the family, girls
face a lot of discrimination and often receive
less health care, education and nutrition
than their male siblings. Many girls also have
limited opportunities for future education and
personal development, as they are caught
up in the cycle of early marriage, pregnancy
and childbearing. These young people are
therefore denied the rights guaranteed to them
by the UN Convention on the Rights of the
Child (1989) and the UN Convention on the
Rights of Persons with Disabilities (2006).
Young disabled people are among the most
marginalised and vulnerable of the world’s
young people. It has been estimated that
19 million children worldwide are visually
impaired. Of these, 1.4 million have irreversible
blindness.4
In India, an estimated 236,900
children up to the age of eighteen are visually
impaired, which is around 11 percent of the
total visually impaired population of India.
Of these children, around seven percent are
in the adolescent age group.5
It is widely
acknowledged that the greatest impediments
for young disabled people are prejudice,
social isolation and discrimination. While all
individuals with disability may be affected by
this lifelong cycle of stigma and prejudice,
visually impaired young people, especially girls,
are particularly at risk.
The Government of India has launched an
‘Adolescent Reproductive and Sexual Health
Programme’ under the National Rural Health
Mission6
, as part of the Reproductive and Child
Health Programme. However, the basic health
and reproductive health needs of disabled
young people have not been met effectively
through the programme. In the light of this,
Sightsavers decided to set up a pilot education
programme with a partner organisation
who was implementing a rehabilitation and
education programme. This initiative was later
replicated by five other Sightsavers partners.
The aim of the programme was to provide
adolescent girls with accurate, age appropriate
and culturally relevant information which would
enable them to respond to real life situations
in positive and responsible ways.
Approach
The pilot was initially started in Simga
Block, Raipur, in the state of Chhattisgarh.
Sightsavers’ partner, Grihini, a development
agency, had already identified a number of
visually impaired adolescent girls with health
problems living in the area. It was found that
their poor health was linked to poor nutrition
and a lack of awareness of their health needs
and rights.
Grihini organised meetings with the families of
the adolescents, during which the importance
of health education was emphasised. Initially,
the girls were reluctant to participate in the
programme, but they became more positive
when they recognised the programme’s
importance. Around 25 girls aged between
10 and 19 years of age were identified in the
project area and a programme on adolescent
health was organised for these girls in
consultation with them and their parents. The
programme included the following elements:
v
General health check-ups for participating
girls, combined with a haemoglobin check-
up and nutritional advice.
v
The provision of micro-nutrients, tonics, and
medicines for the girls when necessary.
v
Counselling sessions for the girls and their
mothers.
v
Information on gender discrimination and
physical and sexual abuse.
Various topics were discussed during the
programme, including the physical, mental,
and social changes which occur during
adolescence, the nature of the menstrual
cycle, the importance of good nutrition, health
problems due to unhygienic practices, and
4
http://www.who.int/mediacentre/factsheets/fs282/en/
5
http://mospi.nic.in/rept%20_%20pubn/485_final.pdf
6
Launched in 2005, NRHM seeks to provide universal access to equitable, affordable and quality healthcare to the
rural population throughout the country with special focus on 18 states with weak public health indicators.
24. www.sightsavers.orgPage 22
issues related to physical and sexual abuse.
Staff from the partner organisation also
developed necklaces made of small and big
beads representing days of the month, to
explain the menstrual cycle. Each girl was given
a necklace to gain a better understanding of
the entire process by touching and feeling.
Female field workers from Grihini played key
roles during all stages of the programme and
a gynaecologist contributed to the counselling
sessions. All the girls received a health
examination, which included haemoglobin
levels, blood pressure, height and weight. For
most of the girls, their height and weight were
below average for their age, indicating the lack
of a nutritious diet.
The girls enjoyed participating in the
programme and said they had learned a
great deal. Their mothers were also positive
about the programme and said they would
now be able to provide better support for
their daughters. As a result of the success
of the programme, it was replicated with five
other partners; Raigarh Ambikapur Health
Association (RAHA) and Prerak in Chhattisgarh,
and Samaritans Social Service Society, Tarun
Sanskar and Dalit Sangh in Madhya Pradesh.
A different approach was applied here; with
pre- and post-programme tests being carried
out to assess understanding of the issues and
attitude change among the girls. It was found
that most of them lacked decision making and
communication skills prior to participating in
the programme. In total, 140 girls were covered
by the five partners.
Successes
The programme was successful in various
respects. It raised the self-confidence and
communication skills of the girls, encouraged
them to think more positively about puberty
and impending adulthood, and provided them
with a better understanding of health, hygiene
and rights issues. After the programme,
behavioural changes were observed among
the girls. For instance, they paid more attention
to personal hygiene during menstruation,
shared information with other girls from their
neighborhood and established friendship
groups with one another.
Positive changes were also observed
among the parents. For instance, one
mother observed: “I never thought that my
blind daughter also needed to know such
information. Whenever she has periods, she
would never go to school. Now I understood
that such changes are to be taken positively,
the bodily changes and mood swings etc. I am
very much concerned because of her disability,
how safe she is, and I feel this information on
reproductive health will surely bring changes
in the coming future. It was also good that we
became part of the programme and could
better understand the issues.”
Inclusive education and community-based
rehabilitation staff working for the partner
organisations also became more positive
and more aware of the issues facing visually
impaired adolescents.
Challenges
Although some of the partners were
experienced in implementing health
programmes, they still came across some
challenges.
Community and culture
The topics discussed in the programme were
very sensitive and still considered taboo in
rural India. Therefore, some family members
were initially reluctant to discuss them. To
overcome this, female field workers personally
met with the girls’ mothers and counselled
them on the importance of providing such
education and how it could help their
daughters to cope with challenging situations
in the future. Mothers were able to convince
other family members to allow their daughters
to participate in the programme.
The programme also worked to ensure that the
wider community understood the importance
of such education and services for visually
impaired girls. Community perceptions
were often not very positive and there was
a feeling that giving the girls access to this
information might encourage them to engage
in sexual activity. The programme worked to
combat this belief, and also to address other
misconceptions, such as strong, culturally-
embedded myths about menstrual hygiene.
Another challenge was that girls are often
not allowed to go to school, and are instead
expected to remain at home, looking after their
younger siblings and assisting their mothers.
Consequently, the girls themselves often had
a very limited understanding of the issues we
were attempting to address.