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Annual General Meeting
21 April 2015
Purpose of presentation
To demonstrate what we have achieved in
2014-2015
To recognise the challenges we face today
To consider our aims for 2015-2016 & the ways
in which our supporters can help us
To ask for your feedback
Parent Carer Forums
We represent 0-25yrs, pan-disability, Surrey-wide
We work to connect families and decision-makers,
improve services, gain an overview across LA/Health
We don’t advocate for individual families or
campaign/lobby
Our remit
Flexible membership
Basic membership Ambassador/parent rep
Associate/partner Steering Committee
Steering Committee
Helen Andrea
Nicky Sally Fran
New ambassadors
HelenNicky
Benedicte
Abby
Mandy Chris
Surrey
11
boroughs
81
wards
6
Clinical Commissioning
Groups (CCGs)
11th
(out of 86) county by
population
4th
(out of 151)
Local Authorities in terms of
number of Statements, and a
relatively high % of all pupils
6th
(out of 151)
Local Authorities in terms of pupils
with SEND but no Statement, but a
relatively low % of all pupils
48 miles
27 miles
642 sq miles
Surrey
Achievements
Raising our profile
Facebook
Membership up by
338% since October
2014, and counting!
Increasing our membership
parents
49%
parent in an
organisation
3%
parent in a school
1%
schools
18%
organisations
14%
LA
3%
unknown
12%
Connecting with schools
Partnering with associates
A successful annual event
Two part-time employees
Claire Candy
Relationships with families
Relationships with families
Social care &
respite
18%
health and
therapies
16%
support in
school
16%
camhs
16%
post 16
14%
out of school
10%
tribunals
6%
transport
4%
social
care/respite
21%
health
10%
support in
school
27%
CAMHS
16%
post 16
19%
out of school
5%
tribunals
2%
All issues that apply Most important issues
Relationships with families
SEND
Governance
Board
SEND
Operational
Group
Equipment &
Adaptations
(Sally Allen)
FutureGov
review
(Julie Fisher)
Our involvement
Parent
surgeries
(Sally
Grimstone)
Local Offer
website
(Peter
Schnabel)
CAMHS
Procurement
Group
(Karina Ajayi)
SEN
Processes
(Beverley
Clarke)
Arrangement
Forums
(Gabi Close)
Residential
Review
(Susie
Campbell)
Beeches
(Caroline
Budden/
Fiona
Edwards)
Hearing
impairment
consultation
(Pam Todd)
Transition
Strategy
Group
(Sheila Jones)
EHCP
revisions
(Susie
Campbell)
SaLT
consultation
(Zarah
Lowe)
Early Years
& PSN
(Susan Harris)
Looked After
Children
(Shung'u
M'gadzah)
SEND
Governance
Board
SEND
Operational
Group
Equipment &
Adaptations
(Sally Allen)
FutureGov
review
(Julie Fisher)
Our involvement
Parent
surgeries
(Sally
Grimstone)
Local Offer
website
(Peter
Schnabel)
CAMHS
Procurement
Group
(Karina Ajayi)
SEN
Processes
(Beverley
Clarke)
Arrangement
Forums
(Gabi Close)
Residential
Review
(Susie
Campbell)
Beeches
(Caroline
Budden/
Fiona
Edwards)
Hearing
impairment
consultation
(Pam Todd)
Transition
Strategy
Group
(Sheila Jones)
EHCP
revisions
(Susie
Campbell)
SaLT
consultation
(Zarah
Lowe)
Early Years
& PSN
(Susan Harris)
Looked After
Children
(Shung'u
M'gadzah)
Walton-on-Thames
Guildford
Woking
Redhill
The challenge!
Requests
On average
20-30 weekly requests:
- FYI
- please promote/circulate
- please attend a meeting – no prep
- please attend a meeting – lots of prep
- please respond
Requests
Requests
On average
- 7-10 meetings a week, around Surrey
- 10-20 hours pw each in addition, dealing
with emails, preparing for meetings,
responding to requests, ensuring Family
Voice Surrey runs smoothly!
True co-production
Co-production and not consultation
True co-production
Accessible meetings
More accessible meetings that allow us
to contribute:
- sufficient briefing/background info
- minutes & agendas in good time
- between 9.30am & 2.00pm
- minimal jargon/acronyms
Accessible meetings
Honesty & transparency
“In West Sussex the impact is that some children’s and
young people’s plans will not be completed in the
timescale set down by the new legislation….
It also has a knock-on effect on the timing of new
assessments so that some of them will also not be
completed within the timescale we usually work to….
We appreciate that this may cause upset and anxiety
to families and apologise for any delays.”
Funding
Help to secure additional funding for 2016+
Plans for 2015-2016
Four main aspirations
1. Better services within current funding
2. True co-production
3. A flagship LA & PCF partnership
4. Increase satisfaction amongst SEND families
Q1
Monthly plan
Q2
Q4Q3
How can you help?
Spread the word and encourage families to sign
up and get more involved
Encourage organisations to become Associates
Help us demonstrate what true co-production
looks like
Suggest funding opportunities and ideas
Family Voice Surrey AGM April 2015

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Family Voice Surrey AGM April 2015

Editor's Notes

  1. Thanks for coming today. Helen has already referred to some of the things we are going to show you in this presentation. It’s based on a presentation we gave to Nick Wilson a week ago.
  2. We’re hoping that this presentation will give you a flavour of what we have been up to this last year, the challenges we are currently facing, and our plans for next year. We’re also keen to hear your feedback, so please feel free to ask questions as we go along.
  3. We are not new to Surrey, but we thought it might be useful to recap on the remit of a Parent Carer Forum like Family Voice Surrey.
  4. We are part of the National Network of Parent Carer Forums. There are 150+ in total around the country, supported by a Central Government grant of £15,000 (via Contact A Family, who also provide training/other support). Prior to 2014, Parent Carer Forums were involved in helping to shape local policies relating to the SEND reforms. Since 1 September 2014 Parent Carer Forums have been involved in local implementation. Part of our role at Family Voice Surrey is to liaise with and learn from best practice within other Parent Carer Forums.
  5. We deliberately offer families lots of different ways to get involved: from basic membership (receive newsletter, take part in surveys), to becoming a parent rep (possibly attending meetings, an ‘on-the-ground’ networking role, or a skills-based role such as training). Associates are partner organisations (eg. Challengers, Barnardo’s). For those who want to be more involved in the running of FVS, there is also the Steering Committee.
  6. This is our current Steering Committee of 5 (all parents of children with additional needs, and volunteers). Our cumulative skills/experience include a detective, 5 languages, branding/marketing/design expertise and finance/admin skills.
  7. As well as our two existing reps, Della and Jackie, who were previously Steering Committee members, we have recently recruited additional parents reps: Abby and Benedicte are here today, Nicky is supporting another Mum and Mandy and Chris both have appts.
  8. So that’s our current small but growing network, and we need to grow it much bigger. Here are just a few statistics about Surrey: 11 boroughs, 81 wards, 6 CCGs, the 11th largest county by number of people, and perhaps most interestingly the 4th out of 151 LAs in terms of Statemented pupils, and 6th in terms of pupils with SEN but no Statement.
  9. Not the biggest geographical county by any means (probably in top third) but 640 sq miles nevertheless which is a key factor for us in terms of how we engage with more families. More about this later….
  10. Looking back at this last financial year….
  11. In terms of funding, we receive a statutory £15K grant from central Government via Contact A Family. This has been topped up this year by Surrey CC to the tune of £30K. Without this top up we would not have been able to get involved in local policies and implementation. Roughly speaking, requests from the LA/Health are funded by the SEND grant, whilst our parent participation is funded by the CAF grant. Both grants took 4 months to reach the bank, hence our need for a cashflow buffer which we’ll come to later on.
  12. This shows how the grants have been used over the last year. It includes the cashflow buffer already mentioned. We ran one major annual event (in March) and took on an office at the beginning of December. We have started gathering parent stories on film (more later).
  13. We were grateful for Surrey CC’s financial support last year; without which we would have been unable to respond to the many and varied requests that come into us. This is a quick snapshot of what we have achieved from 1 April 2014 to 31 March 2015.
  14. What have achieved with this money? We updated our identity as part of a wider plan to raise our profile…..
  15. …created a new, more user-friendly website and brochure (with pre-paid reply card to encourage to families to sign up). These are our key marketing tools. We are not complacent – we have sent out 5,000 brochures and are about to reprint so we are using this as an opportunity to ask families what would work better. We also want to develop the website to be more interactive.
  16. We produced a set of new banners that would speak to different audiences, make our remit clear and offer different levels of membership
  17. We also produced a set of marketing tools: badges, stickers, trolley keyrings to help us spread the word
  18. Our Facebook page has really taken off this year…
  19. Our database membership has increased from 247 (Oct 2014) to 834 (today) by 332%: 49% parents, 18% schools, 14% associates/partner organisations. We are getting several new memberships every week and we expect this to grow at an increasing rate as we do more outreach (more on that later).
  20. We have strengthened our relationships with schools through the SENCO training workshops, SEND annual conference (where Helen was a speaker) and the Home-School Link Worker conference. We also have growing relationships with colleges.
  21. We have strengthened our relationships with partner organisations: NAS, Barnardo’s, Challengers, White Lodge, The Children’s Trust, YMCA, Carer Support groups around Surrey, Voluntary Action groups around Surrey, SPP, Core Assets (it’s great to see some of you here today)
  22. We held our annual event on 5 March, with 37 stallholders, 180 attended, 6 speakers, 10 speed-daters/ 47 speed-dating sessions with practitioners and a Coping with Stress workshop
  23. Two part-time staff: Candy (finances) and Claire (admin/co-ordination)
  24. Our recent parent survey was completed by 240 families.
  25. We are in the process of summarising the key findings to present to decision-makers and share with the families that took part. Key issues are: social care & respite, health & therapies, support in school & CAMHS, closed followed by post 16 transition and then out of school (surprisingly high). When you look at most important issues skew changes slightly with emphasis on Support in school, social care & respite and post 16 transition, closely followed by CAMHS.
  26. We have started to film some parent stories and are finding these a very direct and valuable way to help parents get their voices heard – quite literally! This is a 5 min mash up of some of the stories we have edited already.
  27. We are on the SEND Governance Board and the SEND Operational Group, and are currently involved in 15 other workstreams/consultations. Some of these are large projects
  28. We are on the SEND Governance Board and the SEND Operational Group, and are currently involved in 12 ongoing workstreams/consultations.
  29. Whilst we are delighted…..the workload for a small team of volunteer parents presents a real challenge.
  30. Requests, meetings, hours worked
  31. This is a busy, but not untypical week. Meeting requests have risen dramatically (because there’s more going on? Because our profile is raised? Because our input is more valued?)
  32. Requests, meetings, hours worked
  33. The idea of a ‘kitemark’ was raised at a National Network meeting. It is fraught with problems about how judgements are made but the spirit of a kitemark seems a good one to aspire towards
  34. Contact A Family have produced a brilliant film showing what Co-production should look like
  35. Senior management can help us by encouraging others to: Make meetings more accessible to us Promote coproduction not a tick-box exercise Sharing iformation Financial stability beyond 2016
  36. This was part of an SEN Processes meeting recently. It was too brief to those who had not attended the meeting. There was no explanation of the terms being used.
  37. One of the biggest and most regular criticisms of the authorities is a lack of transparency: about eligibility criteria, process, decision-making – just about everything. We would like to see the barriers start to come down when we are working together in coproduction. We recognise that this requires absolute trust, but it also seems an essential component. Remember that it’s increasingly harder to hide information, so better to share and manage it.
  38. Senior management can help us by encouraging others to: Make meetings more accessible to us Promote coproduction not a tick-box exercise Sharing iformation Financial stability beyond 2016
  39. We have BIG plans for the coming year! We want to help Surrey regain credibility with the parents of SEND children.
  40. We want to help create better services for less money! Resolve the NMI overspend problem Be a flagship partnership for other LAs and their PCFs help Surrey regain credibility with the parents of SEND children
  41. We are on the SEND Governance Board and the SEND Operational Group, are actively involved in several consultations and asked to attend XX ongoing workstreams…
  42. We are on the SEND Governance Board and the SEND Operational Group, are actively involved in several consultations and asked to attend XX ongoing workstreams…
  43. We are on the SEND Governance Board and the SEND Operational Group, are actively involved in several consultations and asked to attend XX ongoing workstreams…
  44. We are on the SEND Governance Board and the SEND Operational Group, are actively involved in several consultations and asked to attend XX ongoing workstreams…
  45. We are on the SEND Governance Board and the SEND Operational Group, are actively involved in several consultations and asked to attend XX ongoing workstreams…
  46. This shows the budget we need to continue with our work, and the way this has been calculated. Based on total spend of 47K (split between XAF, SEND and any other?)
  47. Senior management can help us by encouraging others to: Make meetings more accessible to us Promote coproduction not a tick-box exercise Sharing iformation Financial stability beyond 2016