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latrobe.edu.au CRICOS Provider 00115M
Dimensions of culture in group homes for
people with severe intellectual disabilities.
Professor Christine Bigby & Dr Julie Beadle-Brown
Living with Disability Research Centre
La Trobe University
Background – importance of group homes
 Group homes have been a major strategy in implementing disability policy
 Support high numbers of people with more severe intellectual disability (17,000 in
Australia)
 Despite calls for innovative models – still being built
 Good quality of life outcomes are possible (Kozma et al., 2009)
 But high level of variability in outcomes – consistently worse for people with more
severe intellectual disability (graph)
 2 factors reliably predict good quality of life outcomes :
 Adaptive behaviour
 Staff practice
0
20
40
60
80
100
Org 1
<151
Org 1
151 +
Org 2
<151
Org 2
151 +
Org 3
<151
Org 3
151 +
Org 4
<151
Org 4
151 +
Org 5
<151
Org 5
151 +
Org 6
<151
Org 6
151 +
Org 7
<151
Org 7
151 +
Org 8
<151
Org 8
151 +
Whole
<151
Whole
151 +
Percentagetimespentengaged
Engagement for people with less severe
disabilities compared to people with more
severe disabilities
151+ Good
Level
Engagement:
Mean = 75
(45 min per
hour)
minutes per hour
<151 = 19.76
151+ = 38.90
<151 Good
Level
Engagement:
Mean = 54
(32.4 min per
hour)
• Mean engagement much less for people with more severe ID
• Most fall below what is possible to achieve
Sig difference
What makes a difference
Complex interactions 5 main elements
Necessary but not
sufficient conditions
• Adequate resources
• Small size, dispersed, homelike
Organisational characteristics focusses on QoL outcomes
Vision – coherent, consistent translation
Policy & Processes, coherent, congruent
• HR processes, job descriptions, recruitment
• Clearly defined procedures to guide work of staff
• Staff training – type, availability and organisation
• Staff characteristics
Culture
• Coherence – formal & informal External environment
• Supportive of QoL outcomes
Frontline staff and managerial working practices
•Staff practice reflect active support
•Staff practice responsive to individuals, compensating for
disadvantageous characteristics
•Front line practice leadership
Culture – important but very little evidence
 Consistently identified as influencing staff practices (Felce et al., 2002; Hastings, Remington, & Hatton,
1995; Mansell, McGill, & Emerson, 1994; Felce & Perry, 2007; Stancliffe, Emerson & Lakin, 2004; Walsh et al., 2010).
 Consistently identified as contributing to abuse (Hutchinson & Stenford Kroese, 2015)
 Slippery concept - conceptualised and investigated in quite different ways only
handful of studies
‘The way we do things around here’
 Schein's definition
‘A pattern of shared basic assumptions…that has worked well enough to be considered
valid and, therefore, to be taught to new members as the correct way to perceive, think,
and feel in relation to those problems” (Schein, 1992, p.12).
6
Culture in group homes - Aims
La Trobe University
 Describe the culture – put value to the variable
 Identify relationship between nature of culture and quality of life outcomes
• Identify generative factors
• And by capturing picture of culture associated with good outcomes to inform
development of strategies to foster this type of culture – thus supporting good staff
practice and good outcomes for people in group homes
Draws from evaluation of closure of Kew - 2004- 2007 - Discovery grant 2009-2012
UK School of Social Care Research – 2015- 2017
 Underperforming group homes (Making Life Good)
̶ low levels of engagement, respect, social participation
 ‘Better’ group homes (Ordinary Life)
‒ rather than ‘good’ could be better re personal development and social
relationships (see Bigby et al., 2015)
Approach & Methods
 Interpretive paradigm – qualitative ethnographic methods to collect in depth
qualitative data
 Prolonged participant observation & detailed field notes on shift
 Staff interviews, observation of staff meetings, document review
 Different times of day – days of week
 Making life good – 5 group homes
 Re analysis of field notes from Kew study
 26 residents with severe intellectual disability
 45 days – total 209 hours
 14 interviews
 Ordinary life – 3 group homes
 Recruited by reputation and advertisement
 17 residents severe or profound intellectual disability and other complex
physical, health or communication needs
 Participant observation 9-12 months, 60 visits average 3 hrs
 35 staff interviews
Analysis
Inductive – coding, category development, constant comparison (Miles & Huberman, 1994)
Analytical lens of culture - staff practices, resident behaviour, interactions between
staff and residents, expressed and inferred values or assumptions concrete
artefacts
Findings 5 Dimensions
Dimension Negative end Descriptor
1. Alignment of
power-holders
vales
Misalignment of power holder values with organisation’s
espoused values
• Power not aligned with formal positions, e.g. power
dispersed among staff or held by a small cliques rather
than resting with the house supervisor.
• Values of those who exercise power does not reflect
those of the organisation, e.g. staff disregard goal of
building inclusive communities and focus on
community presence but not participation.
‘We’re not going
to do it that way’
Alignment of power holder and staff values.
• strong leadership
• shared responsibility and teamwork
‘Vision and
mission is exactly
what we live to’
Hypothesised positive end - Alignment
More Positive end
Descriptor
2. Regard for
residents
Otherness
• Residents seen as fundamentally different from staff,
e.g. as childlike, able to watch activities but too
disabled to participate, having no skills, or worries.
• Residents referred to in derogatory terms, e.g.
‘grabbers or shitters’.
‘Not like us’
Dimension Negative end Descriptor
Hypothesised positive end – the same as other citizens
More Positive end
Descriptor
Positive regard as part of the same diverse humanity.
 humanness
 acknowledging and attending to difference
‘Like us’
3. Perceived
purpose
Doing for
• Staff see their purpose to look after residents, attend
to personal care and get them out into the
community.
• Disconnection of staff work from resident
engagement, sequential and hierarchical view of
purpose, completing domestic chores takes priority
over and is separate from involving residents in these
activities.
‘We look after
them’
Dimension Negative end Descriptor
Hypothesised positive end – doing with
More positive end
Making the life each person wanted it to be.
 recognising and respecting preferences
 including and engaging
 ensuring care, dignity and comfort
‘It’s her choice’
4. Working
practices
Staff-centred
• Task focussed and structured into high and low
intensity periods to allow breaks.
• Staff needs, fair allocation of work and staff
preferences prioritised in things such as composition
of rosters and choice of activities.
• Regular routines tend to support residents as a group
rather than individuals.
‘Get it done so
we can sit
down’
Dimension Negative end Descriptor
Hypothesised positive end – client centred
More positive end
Descriptor
Person-centred.
• attentive
• relationships
• flexible
• momentary fun interactions
‘The guys come
first no matter
what’
5. Orientation to
change and
ideas
Resistance
• Sense of distance from the wider organisation and
senior managerial staff
• Strategies to preserve the status quo and resist
external influences seeking change to practice.
‘Yes but’
Dimension Negative end Descriptor
Dimension Hypothesised positive end – openness
More positive end
Descriptor
Openness to ideas and outsiders.
• Permeable boundaries, part of bigger organisation,
part of community
• Families and outsiders welcome
‘Let’s face it
everyone can
improve’
Overarching Culture in Better Group Homes
Coherent – Respectful- Motivating – Enabling
14
Generative factors
Frontline staff and managerial working practices
•Staff practice reflect active support
•Staff practice responsive to individuals, compensating for
disadvantageous characteristics
•Front line practice leadership
Organisational characteristics focusses on QoL outcomes
Vision – coherent, consistent translation
Policy & Processes, coherent, congruent
• HR processes, job descriptions, recruitment
• Clearly defined procedures to guide work of staff
• Staff training – type, availability and organisation
• Staff characteristics
15
Organisational characteristics
Organisational commitment and HR support to front line leaders – staff management
HR policies regulating entry to organisation
• Recruitment – job descriptions reflect expectations
• Close scrutiny of casual and prospective staff
Organisation of work
• Regulating entry to specific group homes - groups of service users - buddy shifts
• Induction separated from orientation - practice same weight as procedures
• Explicit translation of organisational values – no doubt what’s expected
• Language and communication policies
• First person language plans, communication books
• Artefacts – pictures with family – holidays
• Roster planning –new staff rostered along side more experienced ones
• Skilled staff and supervisors who walk the talk
16
Implications
Not quite at hypothesised positive polar end – long way down the dimension
What’s missing ?
 Does care and warmth temper pushing of boundaries of engagement and choice in
activities at home?
 Do the strong relationships and commitment reduce drive or necessity for external
relationships?
 Overstepping the boundaries of professionalism?
 Does culture look different in houses that have stronger outcomes on personal
development and specifically active support and interpersonal relationships,
specifically external social networks?
 These findings supports the importance of strong practice leadership to outcomes and
preliminary findings from study of organisational factors that influence high levels of
active active support (Beadle-Brown, Bigby, Bould, in press)
Supports strong culture thesis
Gives value and meaning to culture in group homes
17
References
Beadle Brown, J., Bigby, C., Bould, E. (2015). Development of an observational measure of practice
leadership. Journal of Intellectual Disability Research . DOI: 10.1111/jir.12208
Bigby, C., Knox, M., Beadle-Brown, J., Clement, T., Mansell., J (2012). Uncovering dimensions of informal
culture in underperforming group homes for people with severe intellectual disabilities. Intellectual and
Developmental Disabilities 50, 6, 452–467
Bigby, C., Knox, M., Beadle Brown, J., & Bould, E. (2014). Identifying good group homes for people with
severe intellectual disability: Qualitative indicators using a quality of life framework. Intellectual and
Developmental Disability, 52(5), 348-366. doi: 10.1352/1934-9556-.5.348
Bigby, C., Knox, M., Beadle-Brown, J., & Clement. T., (2015). ‘We just call them people’: Positive regard
for people with severe intellectual disability who live in of group homes. Journal of Applied Research
in Intellectual Disability. 28, 283–295
Bigby, C., & Beadle-Brown, J. (in press). Culture in better group homes for people with severe and
profound intellectual disability Intellectual and Developmental Disability
Clement, T. & Bigby, C. (2010). Group homes for people with intellectual disabilities: Encouraging inclusion
and participation. London, Jessica Kingsley
Kozma, A., Mansell, J., & Beadle-Brown, J. (2009).Outcomes in different residential settings for people
with intellectual disability: a systematic review. American Journal on Intellectual and Developmental
Disabilities, 114, 193–222. http://dx.doi.org/10.1352/1944-7558-114.3.193
Felce, D., Lowe, K., & Jones, E. (2002). Staff activity in supported housing services. Journal of Applied
Research in Intellectual Disabilities, 15(4), 388–403.
Felce, D., & Perry, A. (2007). Living with support in the community: Factors associated with quality-of-life
outcome. In S. Odom, R. H. Horner, M. E. Snell & J. Blacher (Eds.), Handbook of developmental
disabilities (pp. 410–428). New York, NY: Guildford Press.
18
Hastings, R. P., Remington, B., & Hatton, C. (1995). Future directions for research on staff performance in
services for people with learning disabilities. Mental Handicap Research, 8(4), 333–339.
Hutchison, A., & Stenfert Kroese, B. (2015). A review of literature exploring the possible causes of abuse
and neglect in adult residential care. The Journal of Adult Protection, 17 (4) 216 - 233
Mansell, J., McGill, P., & Emerson, E. (1994). Conceptualizing service provision. In E. Emerson, P. McGill,
& J. Mansell (Eds.), Severe learning disabilities and challenging behaviour (pp. 69–93).London, England:
Schein, E. H. (1992). Organizational culture and leadership (2nd ed.). San Francisco, CA: Jossey-Bass
Stancliffe, R. J., Emerson, E., & Lakin, K. C. (2004). Residential supports. In E. Emerson, C. Hatton, T.
Thompson, & T. R. Parmenter (Eds.), The international handbook of applied research in intellectual
disabilities (pp. 459–478). Chichester, England: John Wiley & Sons.
Walsh, P. N., Emerson, E., Lobb, C., Hatton, C., Bradley, H., Schalock, R., … Mosely, C. (2010).
Supported accommodation for people with intellectual disabilities and quality of life: An overview. Journal
of Policy and Practice in Intellectual Disabilities, 7(2), 137–142.

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Bigby culture in group homes better and underperforming june 2016

  • 1. latrobe.edu.au CRICOS Provider 00115M Dimensions of culture in group homes for people with severe intellectual disabilities. Professor Christine Bigby & Dr Julie Beadle-Brown Living with Disability Research Centre La Trobe University
  • 2. Background – importance of group homes  Group homes have been a major strategy in implementing disability policy  Support high numbers of people with more severe intellectual disability (17,000 in Australia)  Despite calls for innovative models – still being built  Good quality of life outcomes are possible (Kozma et al., 2009)  But high level of variability in outcomes – consistently worse for people with more severe intellectual disability (graph)  2 factors reliably predict good quality of life outcomes :  Adaptive behaviour  Staff practice
  • 3. 0 20 40 60 80 100 Org 1 <151 Org 1 151 + Org 2 <151 Org 2 151 + Org 3 <151 Org 3 151 + Org 4 <151 Org 4 151 + Org 5 <151 Org 5 151 + Org 6 <151 Org 6 151 + Org 7 <151 Org 7 151 + Org 8 <151 Org 8 151 + Whole <151 Whole 151 + Percentagetimespentengaged Engagement for people with less severe disabilities compared to people with more severe disabilities 151+ Good Level Engagement: Mean = 75 (45 min per hour) minutes per hour <151 = 19.76 151+ = 38.90 <151 Good Level Engagement: Mean = 54 (32.4 min per hour) • Mean engagement much less for people with more severe ID • Most fall below what is possible to achieve Sig difference
  • 4. What makes a difference Complex interactions 5 main elements Necessary but not sufficient conditions • Adequate resources • Small size, dispersed, homelike Organisational characteristics focusses on QoL outcomes Vision – coherent, consistent translation Policy & Processes, coherent, congruent • HR processes, job descriptions, recruitment • Clearly defined procedures to guide work of staff • Staff training – type, availability and organisation • Staff characteristics Culture • Coherence – formal & informal External environment • Supportive of QoL outcomes Frontline staff and managerial working practices •Staff practice reflect active support •Staff practice responsive to individuals, compensating for disadvantageous characteristics •Front line practice leadership
  • 5. Culture – important but very little evidence  Consistently identified as influencing staff practices (Felce et al., 2002; Hastings, Remington, & Hatton, 1995; Mansell, McGill, & Emerson, 1994; Felce & Perry, 2007; Stancliffe, Emerson & Lakin, 2004; Walsh et al., 2010).  Consistently identified as contributing to abuse (Hutchinson & Stenford Kroese, 2015)  Slippery concept - conceptualised and investigated in quite different ways only handful of studies ‘The way we do things around here’  Schein's definition ‘A pattern of shared basic assumptions…that has worked well enough to be considered valid and, therefore, to be taught to new members as the correct way to perceive, think, and feel in relation to those problems” (Schein, 1992, p.12).
  • 6. 6 Culture in group homes - Aims La Trobe University  Describe the culture – put value to the variable  Identify relationship between nature of culture and quality of life outcomes • Identify generative factors • And by capturing picture of culture associated with good outcomes to inform development of strategies to foster this type of culture – thus supporting good staff practice and good outcomes for people in group homes Draws from evaluation of closure of Kew - 2004- 2007 - Discovery grant 2009-2012 UK School of Social Care Research – 2015- 2017  Underperforming group homes (Making Life Good) ̶ low levels of engagement, respect, social participation  ‘Better’ group homes (Ordinary Life) ‒ rather than ‘good’ could be better re personal development and social relationships (see Bigby et al., 2015)
  • 7. Approach & Methods  Interpretive paradigm – qualitative ethnographic methods to collect in depth qualitative data  Prolonged participant observation & detailed field notes on shift  Staff interviews, observation of staff meetings, document review  Different times of day – days of week  Making life good – 5 group homes  Re analysis of field notes from Kew study  26 residents with severe intellectual disability  45 days – total 209 hours  14 interviews  Ordinary life – 3 group homes  Recruited by reputation and advertisement  17 residents severe or profound intellectual disability and other complex physical, health or communication needs  Participant observation 9-12 months, 60 visits average 3 hrs  35 staff interviews
  • 8. Analysis Inductive – coding, category development, constant comparison (Miles & Huberman, 1994) Analytical lens of culture - staff practices, resident behaviour, interactions between staff and residents, expressed and inferred values or assumptions concrete artefacts
  • 9. Findings 5 Dimensions Dimension Negative end Descriptor 1. Alignment of power-holders vales Misalignment of power holder values with organisation’s espoused values • Power not aligned with formal positions, e.g. power dispersed among staff or held by a small cliques rather than resting with the house supervisor. • Values of those who exercise power does not reflect those of the organisation, e.g. staff disregard goal of building inclusive communities and focus on community presence but not participation. ‘We’re not going to do it that way’ Alignment of power holder and staff values. • strong leadership • shared responsibility and teamwork ‘Vision and mission is exactly what we live to’ Hypothesised positive end - Alignment More Positive end Descriptor
  • 10. 2. Regard for residents Otherness • Residents seen as fundamentally different from staff, e.g. as childlike, able to watch activities but too disabled to participate, having no skills, or worries. • Residents referred to in derogatory terms, e.g. ‘grabbers or shitters’. ‘Not like us’ Dimension Negative end Descriptor Hypothesised positive end – the same as other citizens More Positive end Descriptor Positive regard as part of the same diverse humanity.  humanness  acknowledging and attending to difference ‘Like us’
  • 11. 3. Perceived purpose Doing for • Staff see their purpose to look after residents, attend to personal care and get them out into the community. • Disconnection of staff work from resident engagement, sequential and hierarchical view of purpose, completing domestic chores takes priority over and is separate from involving residents in these activities. ‘We look after them’ Dimension Negative end Descriptor Hypothesised positive end – doing with More positive end Making the life each person wanted it to be.  recognising and respecting preferences  including and engaging  ensuring care, dignity and comfort ‘It’s her choice’
  • 12. 4. Working practices Staff-centred • Task focussed and structured into high and low intensity periods to allow breaks. • Staff needs, fair allocation of work and staff preferences prioritised in things such as composition of rosters and choice of activities. • Regular routines tend to support residents as a group rather than individuals. ‘Get it done so we can sit down’ Dimension Negative end Descriptor Hypothesised positive end – client centred More positive end Descriptor Person-centred. • attentive • relationships • flexible • momentary fun interactions ‘The guys come first no matter what’
  • 13. 5. Orientation to change and ideas Resistance • Sense of distance from the wider organisation and senior managerial staff • Strategies to preserve the status quo and resist external influences seeking change to practice. ‘Yes but’ Dimension Negative end Descriptor Dimension Hypothesised positive end – openness More positive end Descriptor Openness to ideas and outsiders. • Permeable boundaries, part of bigger organisation, part of community • Families and outsiders welcome ‘Let’s face it everyone can improve’ Overarching Culture in Better Group Homes Coherent – Respectful- Motivating – Enabling
  • 14. 14 Generative factors Frontline staff and managerial working practices •Staff practice reflect active support •Staff practice responsive to individuals, compensating for disadvantageous characteristics •Front line practice leadership Organisational characteristics focusses on QoL outcomes Vision – coherent, consistent translation Policy & Processes, coherent, congruent • HR processes, job descriptions, recruitment • Clearly defined procedures to guide work of staff • Staff training – type, availability and organisation • Staff characteristics
  • 15. 15 Organisational characteristics Organisational commitment and HR support to front line leaders – staff management HR policies regulating entry to organisation • Recruitment – job descriptions reflect expectations • Close scrutiny of casual and prospective staff Organisation of work • Regulating entry to specific group homes - groups of service users - buddy shifts • Induction separated from orientation - practice same weight as procedures • Explicit translation of organisational values – no doubt what’s expected • Language and communication policies • First person language plans, communication books • Artefacts – pictures with family – holidays • Roster planning –new staff rostered along side more experienced ones • Skilled staff and supervisors who walk the talk
  • 16. 16 Implications Not quite at hypothesised positive polar end – long way down the dimension What’s missing ?  Does care and warmth temper pushing of boundaries of engagement and choice in activities at home?  Do the strong relationships and commitment reduce drive or necessity for external relationships?  Overstepping the boundaries of professionalism?  Does culture look different in houses that have stronger outcomes on personal development and specifically active support and interpersonal relationships, specifically external social networks?  These findings supports the importance of strong practice leadership to outcomes and preliminary findings from study of organisational factors that influence high levels of active active support (Beadle-Brown, Bigby, Bould, in press) Supports strong culture thesis Gives value and meaning to culture in group homes
  • 17. 17 References Beadle Brown, J., Bigby, C., Bould, E. (2015). Development of an observational measure of practice leadership. Journal of Intellectual Disability Research . DOI: 10.1111/jir.12208 Bigby, C., Knox, M., Beadle-Brown, J., Clement, T., Mansell., J (2012). Uncovering dimensions of informal culture in underperforming group homes for people with severe intellectual disabilities. Intellectual and Developmental Disabilities 50, 6, 452–467 Bigby, C., Knox, M., Beadle Brown, J., & Bould, E. (2014). Identifying good group homes for people with severe intellectual disability: Qualitative indicators using a quality of life framework. Intellectual and Developmental Disability, 52(5), 348-366. doi: 10.1352/1934-9556-.5.348 Bigby, C., Knox, M., Beadle-Brown, J., & Clement. T., (2015). ‘We just call them people’: Positive regard for people with severe intellectual disability who live in of group homes. Journal of Applied Research in Intellectual Disability. 28, 283–295 Bigby, C., & Beadle-Brown, J. (in press). Culture in better group homes for people with severe and profound intellectual disability Intellectual and Developmental Disability Clement, T. & Bigby, C. (2010). Group homes for people with intellectual disabilities: Encouraging inclusion and participation. London, Jessica Kingsley Kozma, A., Mansell, J., & Beadle-Brown, J. (2009).Outcomes in different residential settings for people with intellectual disability: a systematic review. American Journal on Intellectual and Developmental Disabilities, 114, 193–222. http://dx.doi.org/10.1352/1944-7558-114.3.193 Felce, D., Lowe, K., & Jones, E. (2002). Staff activity in supported housing services. Journal of Applied Research in Intellectual Disabilities, 15(4), 388–403. Felce, D., & Perry, A. (2007). Living with support in the community: Factors associated with quality-of-life outcome. In S. Odom, R. H. Horner, M. E. Snell & J. Blacher (Eds.), Handbook of developmental disabilities (pp. 410–428). New York, NY: Guildford Press.
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