Successfully reported this slideshow.
We use your LinkedIn profile and activity data to personalize ads and to show you more relevant ads. You can change your ad preferences anytime. - Ann McPherson


Published on

Published in: News & Politics, Technology
  • Be the first to comment

  • Be the first to like this - Ann McPherson

  1. 3. Objectives of this talk <ul><li>To demonstrate </li></ul><ul><li>Aims of </li></ul><ul><li>How we achieve our aims and why different from ‘standard’ case studies </li></ul><ul><li>Why we present the studies in this way and ooutputs </li></ul>
  2. 4. Aims of . are to…………. <ul><li>identify the questions and problems that matter to patients when they are ill or have a health related problem using ‘case studies’ based on interviews </li></ul><ul><li>provide support and information to patients, their family and carers. </li></ul>
  3. 5. Continued…… <ul><li>be an educational resource for medical students, doctors in training, nurses and other health professionals </li></ul><ul><li>promote a balanced encounter between patients and health professionals </li></ul><ul><li>provide a patient centered perspective to researchers, managers and commissioners </li></ul>
  4. 6. How do we achieve this? <ul><li>Based on qualitative research </li></ul><ul><li>Advisory panel </li></ul><ul><li>For each condition -sample of 40-50 plus patients from all over U.K from different backgrounds and with different experiences (maximum variation sample) </li></ul><ul><li>Keep interviewing until no new themes, ideas, or experiences are voiced using thematic analysis </li></ul>
  5. 7. <ul><li>Patients recruited via GPs, support groups, hospitals, media etc </li></ul><ul><li>Narrative interviews -‘tell us your story’ unstructured and semi-structured interviews rather than ‘tick box questionnaire’ </li></ul><ul><li>Outputs as video, audio and written interviews (to avoid bias) </li></ul><ul><li>Short summaries of main themes are written which include all experiences set with other research context </li></ul>
  6. 8. Presentation of results <ul><li>Research is presented on one website whether you are a patient, carer, doctor, researcher </li></ul><ul><li>Links to other relative information </li></ul><ul><li>Fora for patient feedback </li></ul><ul><li>Freely available </li></ul>
  7. 9. Outputs <ul><li>2000 interviews/patients case studies </li></ul><ul><li>50 different illness and health issues available </li></ul><ul><li>70+ peer reviewed papers </li></ul><ul><li>1million hits a month </li></ul>
  8. 10. <ul><li> </li></ul>