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  1. 1. Sue WWW.HEALTHTALKONLINE.ORG Ziebland Health Experiences Research GroupA RESOURCE FOR PATIENTS, NICE Dept Primary Health Care AND COMMISSIONING University of Oxford
  2. 2. WHAT DOES GOOD CARE LOOK LIKE FROM THE PATIENTS PERSPECTIVE?Representatives on committees, Walk throughs etcResearch with service users Questionnaire surveys Focus groups Interviews (structured or in-depth) Patients narrativesBlogs and online support groups and chat roomsPatient feedback (big brother booths, PDAs, online ‘reputation sites’)Patients experience websites: www.healthtalkonline.orgSecondary analysis of collections of narrative interviews
  3. 3. WHAT IS HEALTH TALK ONLINE?Award winning multimedia websites www.healthtalkonline.organd www.youthhealthtalk.orgResources for patients and the public, carers, professionals inpractice and training, policy makers, NICE guidelines and QSteamsSites feature 60 (and growing) collections of qualitativeinterviews illustrated with thousands of video and audio clipsfrom interviewson health experiencesCollaboration between DIPEx charity and the HealthExperiences Research group in University of Oxford
  4. 4. ABOUT THE RESEARCH METHODSStand alone qualitative interview studies (40-50 percollection)Narrative methods – unstructured and semistructured sectionsDiverse sample - interviews throughout UKThematic analysis – approx 25 topics and 300 videoaudio and written clips each collectionResearch findings disseminated via HTO and in peerreviewed papers Ziebland S, McPherson A. Making Sense of Qualitative Data Analysis with illustrations from the DIPEx project. Medical Education 2006; 405-414
  5. 5. SECONDARY ANALYSIS OF THE INTERVIEW COLLECTIONSArchive of 60 health conditions each with 30-50 narrative interviews; interviews. Allcopyrighted to U of Oxford for use in research, teaching, broadcasting etc – numeroususes by other academic researchersLearning, teaching and service improvement - (accelerated) Experienced based co-design (with Glenn Robert)Experienced based commissioning (with Georgina Craig Associates)Feb- March 2011 - Laura Griffith secondment to NICE quality standards team to helpinclude patients experiences through her work on experiences of psychosis (nowlaunched on www.healthtalkonline.orgSecondary analysis (& further secondments) planned to use analysis of the full sets ofinterviews to inform patients experiences aspects of 2011- 12 Quality Standards andguidelines development
  6. 6. (Research Director)Phone 01865 (Director of Learning and Teaching)