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Person Centered
Planning….
Bonnie Jean Smith

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Introduction
 Person Centered Planning, “The
Early Years”
 Where is it today?
 How is it working ?

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Who am I?
UBUNTU in the Xhosa Culture means: “ I am
because we are”

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Person Centered Planning
the Early Years
Where did this tool/process
originate?

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Person Centered Planning
the Early Years
During the late 1960s and 1970s
we learned about
two social revolutionary items
 Normalization
and
 Social Role Valorization (SRV)

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Bengt Neirje 1924-2006
The Father of Normalization
 Bengt Nirje, Secretary General of the Swedish National
Association for Mentally Retarded – [Intellectually
Disabled], as saying:
 "The key is trying to achieve the same good standard
of life for people with developmental disabilities as we
want for people who live in the general society. Our
aim is to create the conditions of life as similar or the
same as for the rest of the population. You have to do
it for human dignity and human decency."
 Bengt gave a simple solution to finding out what the
young adults with developmental disabilities wanted in
life……………..“Ask Them!”
 http://www.mnddc.org/parallels2/one/018.htm

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Normalization
 “The normalization principle
means making available to all
people with disabilities people
patterns of life and conditions of
everyday living which are as close
as possible to the regular
circumstances and ways of life or
society.”[1]

( The Principle of Normalization: www.mnddc.org}

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 “…including the normal rhythm of a
day, a week, a year, and the life-
cycle itself. It involves the normal
conditions of life – housing,
schooling, employment, exercise,
recreation and freedom of choice.
This includes “the dignity of risk”,
rather than an emphasis on
“protection”.[2]
Normalization, Social Role Valorization (SRV)
and the approach of Person Centered Planning
(PCP)

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Bengt Nirje, Robert Perske,
Wolf Wolfensberger, G. Allan Roehrer
Photos courtesy William Bronston, M.D.
 President's Committee on Mental Retardation –
[Intellectual Disabilities] (PCMR)), recognized
that the Principle of Normalization emerged in
the 1960s as the most important concept shaping
the future of residential services. At the time, is
was defined as "making available to the Mentally
Retarded – [Intellectually Disabled] patterns and
conditions of everyday life which are as close as
possible to the norms and patterns of the
mainstream of society… it essentially refers to
approaching the retarded as much as possible as
if they were normal." (ILSMH, 1969).
 [http://www.mnddc.org/parallels2/one/010.htm]

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1970’S ENCOR -The Eastern Nebraska Community Office of
Retardation and Developmental Disabilities.
 Every person owns a heart, a soul, and
the right to be treated with respect.
ENCOR
Courtesy of Ed Skarnulis
http://www.encor-dd.org/

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1970’S ENCOR
 According to Ed Skarnulis, ENCOR's claim to fame included the following "firsts":
 The first truly comprehensive community based program in the United States,
probably even the world.
 This program was designed to provide the full range of services – from cradle to
grave since this predated P.L. 94-142, the first federal law regarding special
education – that would be needed by all residents, regardless of the severity of
their disabilities, and their families in the five county area.
 The first program to commit to bringing all residents home from the institutions.
 The first program to base all of its service delivery on the over-arching
"Principle of Normalization" which had never before been attempted. This
concept had its genesis in Denmark but had never been applied to an entire
service delivery system.
 ENCOR offers a variety of services to support individuals with developmental
disabilities and their families. We provide a living and working environment where
socialization, self-esteem and personal fulfillment are a way of life.
 .
 http://www.encor-dd.org/
* Gov. Quie
* Hubert Humphrey

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1970’S ENCOR.
CORE VALUES
 Encourage informed choices which afford people
opportunities to enhance their quality of life.
 Normalizing safe environments where each person has
dignity and respect.
 Community participation and social inclusion for each
person.
 Offer individualized services and supports to achieve
desired outcomes.
 Responsive professionals who continuously strive to
meet high standards of performance and
accountability
http://www.encor-dd.org/

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The Community Imperative (1979)

A Refutation of All Arguments in Support of
Institutionalizing Anybody Because of Mental Retardation -Intellectual
Disabilities
 In the Domain of Human Rights:
• All people have fundamental moral and constitutional rights;
• These rights must not be abrogated merely because a person has
a …..mental or physical disability.
• Among these fundamental rights is the right to community living.
 In the Domain of Educational Programming and Human Services:
• All people, as human beings, are inherently valuable;
• All people can grow and develop;
• All people are entitled to conditions which foster their development;
• Such conditions are optimally provided in community settings.
 Therefore:
In fulfillment of fundamental human rights and in securing optimum
developmental opportunities, all people, regardless of the severity of
their disabilities, are entitled to community living.

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PERSON-CENTERED PLANNING AND COMMUNITY ACTION
APPROACHES FOR TRANSITION TO EMPLOYMENT CONCEPT
PAPER AND PROPOSALS FOR POSSIBLE PILOT PROJECTS
 May 31, 1995
 C. Pursue Rule Variances to Promote Person-
Centered Planning 29
 Prepared for the Minnesota Governor's Council on Developmental Disabilities by: Human Services Research
& Development Center 1195 Juno Ave. St. Paul, MN 55116 (612-696-0012) EXECUTIVE SUMMARY
 http://www.mnddc.org/learning/TEXT/GT130.TXT

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Misconceptions
Of Normalization Social Role
Valorization (SRV) and the approach
of Person Centered Planning (PCP)

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Misconceptions
 a) Normalization means making people “normal”
– forcing them to conform to societal norms.
 b) Of Normalization, Social Role Valorization
(SRV) and the approach
of Person Centered Planning (PCP) means
planning for an individual based on your own life
experiences and desires.
~~~remember~~~
"The founding of the institutions was accompanied
by a pride, hope, and euphoria we can scarcely
comprehend."
– Wolf Wolfensberger [http://www.mnddc.org/parallels/four/4b/1.html 2013]

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Misconceptions
 a) Normalization supports
“dumping” people into the
community or into schools without
supports .
b) Person Centered Planning
means making the person choose
what you think is a “realistic" life
outcome for them.

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Misconceptions
 There has been a general belief
that 'special' people are best
served if society keeps them apart,
puts them together with 'their own
kind”, and keep them occupied.

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The principle of normalization
 is intended to refute the idea, of
segregation rather than to deal
with subtlety around the question
of 'what is normal?'

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Social Role Valorization (SRV) and the approach
of Person Centered Planning (PCP)

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Social Role Valorization
(SRV)
 “is a set of approaches designed to enable
devalued people in society to experience the
Good Life. Social Role Valorization
 Social Role Valorization and its framework of
how to assist people to break out of devaluation
and oppression, and move towards the “good
life” are a major focus of education and
leadership development.
 Its concepts have impassioned and informed a
generation of change agents, and supported
much of the best work that has been done in
social change over the years.

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Social Role Valorization (SRV) and the approach
of Person Centered Planning (PCP)
 These approaches are best used
by persons who clearly believe that
devaluation of a person is wrong,
and who are prepared to work to
overcome this.
 meet people where they are at
.”[http://www.socialrolevalorization.com/ -Wolf
Wolfensburger”]

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Social Role Valorization (SRV) and the approach
of Person Centered Planning (PCP)
 SRV's many strategies, derived from
practical experience and from what
research has revealed, is to help
devalued people achieve valued social
roles.
 It finds that this is the most powerful way
to work against devaluation and its
negative effects, and provides a wide
variety of techniques and approaches for
doing so
 .”[http://www.socialrolevalorization.com/ -Wolf
Wolfensburger”]

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Social Role Valorization (SRV) and the approach
of Person Centered Planning (PCP)
 Both SRV and PCP approach ask each of us to
make sure:
 We are not placing our life experiences and
expectations in the place of the people we are
helping to facilitate Person Centered Planning.
 We use person centered thinking as we facilitate.
 Each person going through these process’ are:
 Valued in every aspect of their life planning
process.

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Person Centered Planning
Approach
 Person Centered Planning is a solution-
seeking planning process that brings
people together around a person, family,
team or issue to help create a vision of a
desirable day and future, and develop
concrete steps to move closer to that
vision while building connections within
their community.
 Person Centered Planning works on the
premise that people can and should
state the direction of their own lives.

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Person Centered Planning
Approach
 Person Centered Planning is a
major focus area to offer
education, facilitation and
leadership development. This
tool/approach is used to teach
highly individualized, engaging and
respectful processes of how to
assist people to craft a vision of a
positive future and plan for how to
make that vision a reality.

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Person Centered Planning
Approach
 “Disabled people in the UK and USA
developed the Social model of disability,
arguing for a shift in the balance of
power between people and the services
on which they rely. Person centered
planning is based in the social model of
disability because it places the emphasis
on transforming the options available to
the person, rather than on 'fixing' or
changing the person.”

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Person Centered
Planning ….approach
 When using any tool/approach for
person centered planning it is
imperative that facilitator use
person centered thinking.
 What is the desire of the person?

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PERSON CENTERED THINKING………..
http://www.supportplanning.org/Support_Planning_Downloads/SP44_person%20centred%20thinking%20m
PERSON CENTERED THINKING………..
PERSON CENTERED THINKING………..

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Person Centered
Planning Approach:
Where are we at
today?

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Person Centered Planning
….approach…….NOT!!

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What we should be continually striving
for when using the Person Centered
Planning approach is:
IPSII
 Independence
 Productivity
 Self-Determination
 Integration and Inclusion

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Person Centered Planning
Approach
 Start with Person
Centered
Thinking:
•Mary and the radio
•John and Elvis

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Person Centered Planning
Approach Today…
 Looks different for each individual
 Is being implemented in Public
Schools during the Junior High
school years to help with
transitioning into adulthood.
 This process can be used at any
age depending on the future life
desires of the individual.

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One plan..
only an example…..
remember each plan looks different!

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Miles -13 yrs old
Person Centered Plan
October 19 , 2012
Transition planning

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Mile's –Gathering the baseline information
for his person centered plan!

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Circle of Family
Supports

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Mile's Identified Strengths

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Identified Opportunities For
Improvement [ofi’s] or Identified
Needs

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Identified Opportunities For
Improvement [ofi’s] or
Identified Needs
Depression- suicidal
Repeating aggressive bulling acts that
were perpetrated towards him.

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Citizenship a tool/approach
A way of focusing on
 citizenship as a basis for action
planning.

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Citizenship a tool/approach
How this tool helps:
 Identifies what is working against
or getting in the way of the
individual’s citizenship.
 Identifies what is working for or
supporting the individual’s
citizenship

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Break Time

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MILE’S CIRCLE OF FAMILY &
FRIENDS -Relationship circle
Who is important to the person?

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Road to Miles Future –
from presence to contribution
Opportunity
to : connect
contribute
participate

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A Health Passport was also
needed….
OFI’S identified:
Depression- suicidal
Repeating aggressive bulling acts that were
perpetrated towards him

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RED ALERT - Things you must know
about me
 My name:
……………………………………………………………
………………………………..
 Telephone number:
………………………………………….
 Date of Birth:……………………….. NHS number:
…….……………………
 My religion:
……………………………………………………………
………
 Name of Doctor: Dr………………………………
Practice:……………………………..
 Contact number:
……………………………………………
Health Passport

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RED ALERT - Things you must know about me
 If you need to contact someone who
knows me really well please
 contact:
 Name:
……………………………………………..
Relationship:
…………………………………
 Contact Number:
………………………………………………
Health Passport

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RED ALERT - Things you must know about me
 Heart (heart
problems):
 Breathing
(respiratory
problems):
 Choking:
Allergies:
Current Medication:
Brief Medical History:
Health Passport

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RED ALERT - Things you must know about me
Level of communication/
comprehension:
Medical Interventions – how to
take my blood, give injections,
medication, BP etc.
Health Passport

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Amber : things that are really
important to me…
 Communication/Information
Sharing
How to communicate with me,
how to help me understand things
 Seeing/Hearing
How to communicate with me,
how to help me understand things
 Taking Medication
Crushed tablets, injections, syrup
 Pain
How you know I am in pain
 Not feeling myself
If I am bored, upset, worried,
lonely or need some attention
 Personal care
Dressing, washing, dentures,glasses,
hearing aid etc.
 Level of Support
 Who needs to stay and how often
Health Passport

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GREEN - Things I would like to
happen Likes and Dislikes
THINGS I
LIKE
Please do this
THINGS I DO
NOT LIKE
Don’t do this
Think about - what upsets you, what makes you happy, things
you like to do; i.e. watch TV, reading, listening to music. How
you want people to talk to you (don’t shout). Food likes and
dislikes. Physical touch, restraint, special needs, routines and
things that keep you safe
Health Passport

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1. Check the progress of all parties
who have an Action part of this
Person Centered Plan …in 7
days,14 days and 21 days. Via
email/phone one of the agreed
upon check in tools.
2. * Remember it is not a problem if
you need HELP with a step you
have to fulfill, after all, there is
only one Miles and we did not get
a manual that goes along with
him, right?
Check in Plan

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How is it Working???
 There are cohorts all over the world
using the approach of Person Centered
Planning it is working well in the UK
 There many professionals that are
charging money to train people to use
the person centered approached and
person centered thinking.
 I you are a people person you have the
person centered thinking part.

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What This Means
 There are many tools or processes
like Person Centered Processes
 Do not get locked into one process
every persons needs are different,
hence the processes are just as
different!
* Look at what the person desires
and pick the tool accordingly.

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