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Research Proposal
Topic: WHAT IS THE IMPACT OF COMFORT CARE VERSES ALTERNATIVE CARE FOR THE
CHRONIC DYING PATIENT FAMILY AND THE HEALTH CARE TEAM
INTRODUCTION
Background to the study
Comfort care is a type of patient care that focuses on symptom and pain managements
Palliative care is a type of comfort and it aims to prevent suffering throughout the course of an illness.
(Blinderman & Billings, 2015).
Hospice care is a type of comfort care whereby a patient is given at least six months to live
Alternative care is a practice that promotes healing that is not based on evidence from the scientific
approach, example include herbalism, yoga, homeopathy, acupuncture, among others.
Observed in a situation whereby physicians find that they can no longer concentrate on offering curative
treatment.(Zimmermann et al. 2016) .
There is a dilemma when it comes to choosing the appropriate type comfort care.
Research problem
Comfort care gives patients more comforting and peaceful end (Moir et
al.2015)
Alternative care are more comforting and peaceful for patients (Wiener et
al.2015)
The proposed study will therefore look into the problem of palliative care
selection dilemma.
Purpose of the study
The purpose of the study is to:
look into the main determinants that make comfort care and alternative
care effective and desirable for particular patients.
 answer the questions that make patients prefer either comfort care or
alternative care.
Significance of the study
When the right form of palliative care is offered, the idea behind this type of healthcare
of making end-of-life comforting and peaceful will be achieved.
Will help understand the factors that make either comfort care or alternative care
more desirable and effective for patients
The study will be seeking to address a particular problem, which is dilemma on the
part of physicians.
The study will be a guide for physicians on how to address this dilemma by offering
Theoretical model
The Katharine Kolcaba’s Comfort Theory.
A middle range theory, useful for health practice, education and research.
Places comfort as the forefront of healthcare (Kolcaba & Kolcaba, 1991).
Comfort can exist in three major forms, which include relief, ease and
transcendence.
 There are four main contexts that patients can receive comfort, which
include physical, psycho-spiritual, environmental, and sociocultural.
 By inference, regardless of how close a patient is to death, as long as they
are not dead yet, they need to be comforted.
Research questions
What specific benefits associated with comfort care and alternative do
patients mostly desire?
What are the main factors that make either comfort care or alternative
care more desirable by a patient?
How does the use of either comfort care or alternative affect health care
delivery for physicians?
Literature Review
The various studies conducted on the impact of palliative care on patients provides
two main forms of care offered; comfort and alternative care(Muecke et al. 2016)
(Jonge et al., 2017)
 Comfort care focuses on keeping patients as comfortable in their last years as
possible (Drolet et al., 2016)
Not all comfort care constitute alternative care (Coelhoet al. 2018),
comfort care is a form of symptom management but alternative care may be used
to treat actual sickness (Schram et al., 2017).
Literature Review Cont.’
patients benefit from comfort care by answering favorable to a comfort
rating questionnaire prepared for them (Blinderman and Billings (2015),
The most common forms of alternative care that the study investigated
were massage, acupuncture, and animal assisted therapy (de Jonge et
al., 2017)
the dilemma arise largely because of the fact that different palliative
patients have been found to react differently to comfort care and
alternative care (van Soest-Poortvliet et al. (2015)
the ultimate means by which patients can get the kind of comfort and
peace they need towards the last moments of their lives (Schram et al.,
2017; Spice et al., 2016).
Literature Review Cont.’
For palliative care, although the dying patient is the ultimate recipient of
treatment, they are not the only ones who benefit from the outcome of
comfort and peace.
 The immediate relations and friends of patients also benefit when they
can be assured that their loved ones are having a comforting and
peaceful end.
The benefits of the study will therefore expand to include the relatives
and friends who are always close by during palliative care.(Noome et al. 2016), (Drolet et al. 2016)
MethodologyStudy design
The study design will be phenomenology- a qualitative research method
Will seek to explore the lived experience of patients, family members as well as the
health care team on the main social factors that influence the reaction of patients to
comfort care options
It enables in-depth and thorough data collection exercise to be performed(Given
,2008)
Methodology
Study setting and sample
Medical Oncology unit, four of such facilities will be targeted.
Convenience sampling will be used to select five patients
from each facility and four physicians.
Convenience sampling will help to get access to people
whose current medical conditions make it possible for them to
take part in the study (Hunter & Leahey, 2015).
Phenomenon
The phenomenon of study is palliative care options, which will
include comfort care and alternative care.
The phenomenon of study will among other things helps in
ascertaining the factors that cause patients to react differently.
Methodology
Instruments
Data collection will be in the form of an interview using an interview
guide as the main instrument. The study will utilize method
triangulation in collecting data.
well structured and easy to evaluate (Kasim, Alexander & Hudson,
2010).
The interview guide will also make the interview a formal one; all
respondents will answer the same set of questions.
Data collection methods
One-on-one and face to face interview will be used in collecting
data.
Methodology Cont.’
Analysis strategy ( statistical analysis)
The data to be collected will be analyzed through the use of
content analysis method.
A qualitative method of data analysis, whereby the researcher
thoroughly reads through the narrative data to make
deductions and interpretations of findings in relation to themes
set for the study (Moballeghi & Moghaddam, 2016).
The narrative data will be in the form of interview transcripts,
while the themes will be developed using the research
questions
Protection of human subjects
Data collection will be conducted in a way that protect
respondents from emotional and physical harm. Informed
consent will be obtained before participation in the study.
 Physically, it is not expected that participation in the study
will pose any harm or risk to respondents. Emotionally, the
researcher shall put in place measures to ensure data
collection is both confidential and anonymous (Diriwächter &
Valsiner, 2016). Participation will also be highly voluntary.
Limitations
Because the study is going to be a qualitative research, the
researcher will not be able to include as many respondents as
possible.
This situation could possibly impact on the generalization of
research findings as the findings may be only applicable to the
research settings used.
 It was part of approaches to reducing this limitation that the
researcher proposed to select respondents from different
hospice facilities.
REFERENCES
Blinderman, C. D., & Billings, J. A. (2015). Comfort care for patients dying in the hospital. New England Journal of Medicine, 373(26), 2549-
2561.
Ciemins, E. L., Brant, J., Kersten, D., Mullette, E., & Dickerson, D. (2015). A qualitative analysis of patient and family perspectives of palliative
care. Journal of palliative medicine, 18(3), 282-285.
Coelho, A., Parola, V., Sandgren, A., Fernandes, O., Kolcaba, K., & Apóstolo, J. (2018). The Effects of Guided Imagery on Comfort in Palliative
Care. Journal of Hospice & Palliative Nursing, 20(4), 392-399.
de Jonge, P., Wardenaar, K. J., Hoenders, H. R., Evans-Lacko, S., Kovess-Masfety, V., Aguilar-Gaxiola, S., ... & Bromet, E. J. (2017).
Complementary and alternative medicine contacts by persons with mental disorders in 25 countries: results from the World Mental Health
Surveys. Epidemiology and psychiatric sciences, 1-16.
Diriwächter, R. & Valsiner, J. (2016) “Qualitative Developmental Research Methods in Their Historical and Epistemological Contexts” FQS. Vol
7, No. 1, Art. 8
REFERENCES
Drolet, C., Roy, H., Laflamme, J., & Marcotte, M. E. (2016). Feasibility of a comfort care protocol using
oral transmucosal medication delivery in a palliative neonatal population. Journal of palliative medicine,
19(4), 442-450.
Fox, S., Cashell, A., Kernohan, W. G., Lynch, M., McGlade, C., O’Brien, T., ... & Timmons, S. (2016). Interviews with
Irish healthcare workers from different disciplines about palliative care for people with Parkinson’s disease: a definite role
but uncertainty around terminology and timing. BMC palliative care, 15(1), 15.
Given, L. M. (2008). The Sage encyclopedia of qualitative research methods. Los Angeles, Calif.: Sage Publications.
Hart, C. (2008). Literature Reviewing and Argumentation. United Kingdom. London: Sage
REFERENCES Cont.’
Hunter, L. & Leahey, E. (2015). "Collaborative Research in Sociology: Trends and Contributing Factors". The American Sociologist 39 (4): 290.
Kasim, R., Alexander, K. & Hudson, J. (2010). A choice of research strategy for identifying community-based action skill requirements in the
process of delivering housing market renewal. Research Institute for the Built and Human Environment, University of Salford, UK.
Kolcaba, K. Y., & Kolcaba, R. J. (1991). An analysis of the concept of comfort. Journal of Advanced Nursing, 16(11), 1301-1310.
Moballeghi, M. & Moghaddam, G.G. (2008). "How Do We Measure Use of Scientific Journals? A Note on Research Methodologies".
Scientometrics (1): 125–133.
Moir, C., Roberts, R., Martz, K., Perry, J., & Tivis, L. (2015). Communicating with patients and their families about palliative and end-of-life
care: comfort and educational needs of nurses. International journal of palliative nursing, 21(3), 109-112.
Muecke, R., Paul, M., Conrad, C., Stoll, C., Muenstedt, K., Micke, O., ... & PRIO (Working Group Prevention and Integrative Oncology of the
German Cancer Society). (2016). Complementary and alternative medicine in palliative care: a comparison of data from surveys among patients
and professionals. Integrative cancer therapies, 15(1), 10-16.
Noome, M., Beneken genaamd Kolmer, D. M., van Leeuwen, E., Dijkstra, B. M., & Vloet, L. C. (2016). The nursing role during end‐of‐life care
in the intensive care unit related to the interaction between patient, family and professional: an integrative review. Scandinavian journal of caring
sciences, 30(4), 645-661.
REFERENCES Cont.’
Schram, A. W., Hougham, G. W., Meltzer, D. O., & Ruhnke, G. W. (2017). Palliative care in critical care settings: a systematic
review of communication-based competencies essential for patient and family satisfaction. American Journal of Hospice and Palliative
Medicine®, 34(9), 887-895.
Spice, R., Lau, M., Perez, G., Turley, N., & Turin, T. C. (2016). Hospice care in Calgary: Survey of family physicians on their knowledge,
experience, and attitudes. Canadian Family Physician, 62(8), e484-e494.
van Soest-Poortvliet, M. C., van der Steen, J. T., de Vet, H. C., Hertogh, C. M., Deliens, L., & Onwuteaka-Philipsen, B. D. (2015). Comfort goal of
care and end-of-life outcomes in dementia: A prospective study. Palliative Medicine, 29(6), 538-546.
Wiener, L., Weaver, M. S., Bell, C. J., & Sansom-Daly, U. M. (2015). Threading the cloak: palliative care education for care providers of
adolescents and young adults with cancer. Clinical oncology in adolescents and young adults, 5, 1.
Zimmermann, C., Swami, N., Krzyzanowska, M., Leighl, N., Rydall, A., Rodin, G., ... & Hannon, B. (2016). Perceptions of palliative care among
patients with advanced cancer and their caregivers. Canadian Medical Association Journal, cmaj-151171.
Zwicker, J., Martineau, I., Walsh, S., Lavoie, J., Weger, E., & Scott, J. (2017). Improving the comfort of nurses caring for stroke
patients at the end of life. International journal of palliative nursing, 23(5), 248-254.

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Research proposal

  • 1. Research Proposal Topic: WHAT IS THE IMPACT OF COMFORT CARE VERSES ALTERNATIVE CARE FOR THE CHRONIC DYING PATIENT FAMILY AND THE HEALTH CARE TEAM
  • 2. INTRODUCTION Background to the study Comfort care is a type of patient care that focuses on symptom and pain managements Palliative care is a type of comfort and it aims to prevent suffering throughout the course of an illness. (Blinderman & Billings, 2015). Hospice care is a type of comfort care whereby a patient is given at least six months to live Alternative care is a practice that promotes healing that is not based on evidence from the scientific approach, example include herbalism, yoga, homeopathy, acupuncture, among others. Observed in a situation whereby physicians find that they can no longer concentrate on offering curative treatment.(Zimmermann et al. 2016) . There is a dilemma when it comes to choosing the appropriate type comfort care.
  • 3. Research problem Comfort care gives patients more comforting and peaceful end (Moir et al.2015) Alternative care are more comforting and peaceful for patients (Wiener et al.2015) The proposed study will therefore look into the problem of palliative care selection dilemma.
  • 4. Purpose of the study The purpose of the study is to: look into the main determinants that make comfort care and alternative care effective and desirable for particular patients.  answer the questions that make patients prefer either comfort care or alternative care.
  • 5. Significance of the study When the right form of palliative care is offered, the idea behind this type of healthcare of making end-of-life comforting and peaceful will be achieved. Will help understand the factors that make either comfort care or alternative care more desirable and effective for patients The study will be seeking to address a particular problem, which is dilemma on the part of physicians. The study will be a guide for physicians on how to address this dilemma by offering
  • 6. Theoretical model The Katharine Kolcaba’s Comfort Theory. A middle range theory, useful for health practice, education and research. Places comfort as the forefront of healthcare (Kolcaba & Kolcaba, 1991). Comfort can exist in three major forms, which include relief, ease and transcendence.  There are four main contexts that patients can receive comfort, which include physical, psycho-spiritual, environmental, and sociocultural.  By inference, regardless of how close a patient is to death, as long as they are not dead yet, they need to be comforted.
  • 7. Research questions What specific benefits associated with comfort care and alternative do patients mostly desire? What are the main factors that make either comfort care or alternative care more desirable by a patient? How does the use of either comfort care or alternative affect health care delivery for physicians?
  • 8. Literature Review The various studies conducted on the impact of palliative care on patients provides two main forms of care offered; comfort and alternative care(Muecke et al. 2016) (Jonge et al., 2017)  Comfort care focuses on keeping patients as comfortable in their last years as possible (Drolet et al., 2016) Not all comfort care constitute alternative care (Coelhoet al. 2018), comfort care is a form of symptom management but alternative care may be used to treat actual sickness (Schram et al., 2017).
  • 9. Literature Review Cont.’ patients benefit from comfort care by answering favorable to a comfort rating questionnaire prepared for them (Blinderman and Billings (2015), The most common forms of alternative care that the study investigated were massage, acupuncture, and animal assisted therapy (de Jonge et al., 2017) the dilemma arise largely because of the fact that different palliative patients have been found to react differently to comfort care and alternative care (van Soest-Poortvliet et al. (2015) the ultimate means by which patients can get the kind of comfort and peace they need towards the last moments of their lives (Schram et al., 2017; Spice et al., 2016).
  • 10. Literature Review Cont.’ For palliative care, although the dying patient is the ultimate recipient of treatment, they are not the only ones who benefit from the outcome of comfort and peace.  The immediate relations and friends of patients also benefit when they can be assured that their loved ones are having a comforting and peaceful end. The benefits of the study will therefore expand to include the relatives and friends who are always close by during palliative care.(Noome et al. 2016), (Drolet et al. 2016)
  • 11. MethodologyStudy design The study design will be phenomenology- a qualitative research method Will seek to explore the lived experience of patients, family members as well as the health care team on the main social factors that influence the reaction of patients to comfort care options It enables in-depth and thorough data collection exercise to be performed(Given ,2008)
  • 12. Methodology Study setting and sample Medical Oncology unit, four of such facilities will be targeted. Convenience sampling will be used to select five patients from each facility and four physicians. Convenience sampling will help to get access to people whose current medical conditions make it possible for them to take part in the study (Hunter & Leahey, 2015).
  • 13. Phenomenon The phenomenon of study is palliative care options, which will include comfort care and alternative care. The phenomenon of study will among other things helps in ascertaining the factors that cause patients to react differently.
  • 14. Methodology Instruments Data collection will be in the form of an interview using an interview guide as the main instrument. The study will utilize method triangulation in collecting data. well structured and easy to evaluate (Kasim, Alexander & Hudson, 2010). The interview guide will also make the interview a formal one; all respondents will answer the same set of questions. Data collection methods One-on-one and face to face interview will be used in collecting data.
  • 15. Methodology Cont.’ Analysis strategy ( statistical analysis) The data to be collected will be analyzed through the use of content analysis method. A qualitative method of data analysis, whereby the researcher thoroughly reads through the narrative data to make deductions and interpretations of findings in relation to themes set for the study (Moballeghi & Moghaddam, 2016). The narrative data will be in the form of interview transcripts, while the themes will be developed using the research questions
  • 16. Protection of human subjects Data collection will be conducted in a way that protect respondents from emotional and physical harm. Informed consent will be obtained before participation in the study.  Physically, it is not expected that participation in the study will pose any harm or risk to respondents. Emotionally, the researcher shall put in place measures to ensure data collection is both confidential and anonymous (Diriwächter & Valsiner, 2016). Participation will also be highly voluntary.
  • 17. Limitations Because the study is going to be a qualitative research, the researcher will not be able to include as many respondents as possible. This situation could possibly impact on the generalization of research findings as the findings may be only applicable to the research settings used.  It was part of approaches to reducing this limitation that the researcher proposed to select respondents from different hospice facilities.
  • 18. REFERENCES Blinderman, C. D., & Billings, J. A. (2015). Comfort care for patients dying in the hospital. New England Journal of Medicine, 373(26), 2549- 2561. Ciemins, E. L., Brant, J., Kersten, D., Mullette, E., & Dickerson, D. (2015). A qualitative analysis of patient and family perspectives of palliative care. Journal of palliative medicine, 18(3), 282-285. Coelho, A., Parola, V., Sandgren, A., Fernandes, O., Kolcaba, K., & Apóstolo, J. (2018). The Effects of Guided Imagery on Comfort in Palliative Care. Journal of Hospice & Palliative Nursing, 20(4), 392-399. de Jonge, P., Wardenaar, K. J., Hoenders, H. R., Evans-Lacko, S., Kovess-Masfety, V., Aguilar-Gaxiola, S., ... & Bromet, E. J. (2017). Complementary and alternative medicine contacts by persons with mental disorders in 25 countries: results from the World Mental Health Surveys. Epidemiology and psychiatric sciences, 1-16. Diriwächter, R. & Valsiner, J. (2016) “Qualitative Developmental Research Methods in Their Historical and Epistemological Contexts” FQS. Vol 7, No. 1, Art. 8
  • 19. REFERENCES Drolet, C., Roy, H., Laflamme, J., & Marcotte, M. E. (2016). Feasibility of a comfort care protocol using oral transmucosal medication delivery in a palliative neonatal population. Journal of palliative medicine, 19(4), 442-450. Fox, S., Cashell, A., Kernohan, W. G., Lynch, M., McGlade, C., O’Brien, T., ... & Timmons, S. (2016). Interviews with Irish healthcare workers from different disciplines about palliative care for people with Parkinson’s disease: a definite role but uncertainty around terminology and timing. BMC palliative care, 15(1), 15. Given, L. M. (2008). The Sage encyclopedia of qualitative research methods. Los Angeles, Calif.: Sage Publications. Hart, C. (2008). Literature Reviewing and Argumentation. United Kingdom. London: Sage
  • 20. REFERENCES Cont.’ Hunter, L. & Leahey, E. (2015). "Collaborative Research in Sociology: Trends and Contributing Factors". The American Sociologist 39 (4): 290. Kasim, R., Alexander, K. & Hudson, J. (2010). A choice of research strategy for identifying community-based action skill requirements in the process of delivering housing market renewal. Research Institute for the Built and Human Environment, University of Salford, UK. Kolcaba, K. Y., & Kolcaba, R. J. (1991). An analysis of the concept of comfort. Journal of Advanced Nursing, 16(11), 1301-1310. Moballeghi, M. & Moghaddam, G.G. (2008). "How Do We Measure Use of Scientific Journals? A Note on Research Methodologies". Scientometrics (1): 125–133. Moir, C., Roberts, R., Martz, K., Perry, J., & Tivis, L. (2015). Communicating with patients and their families about palliative and end-of-life care: comfort and educational needs of nurses. International journal of palliative nursing, 21(3), 109-112. Muecke, R., Paul, M., Conrad, C., Stoll, C., Muenstedt, K., Micke, O., ... & PRIO (Working Group Prevention and Integrative Oncology of the German Cancer Society). (2016). Complementary and alternative medicine in palliative care: a comparison of data from surveys among patients and professionals. Integrative cancer therapies, 15(1), 10-16. Noome, M., Beneken genaamd Kolmer, D. M., van Leeuwen, E., Dijkstra, B. M., & Vloet, L. C. (2016). The nursing role during end‐of‐life care in the intensive care unit related to the interaction between patient, family and professional: an integrative review. Scandinavian journal of caring sciences, 30(4), 645-661.
  • 21. REFERENCES Cont.’ Schram, A. W., Hougham, G. W., Meltzer, D. O., & Ruhnke, G. W. (2017). Palliative care in critical care settings: a systematic review of communication-based competencies essential for patient and family satisfaction. American Journal of Hospice and Palliative Medicine®, 34(9), 887-895. Spice, R., Lau, M., Perez, G., Turley, N., & Turin, T. C. (2016). Hospice care in Calgary: Survey of family physicians on their knowledge, experience, and attitudes. Canadian Family Physician, 62(8), e484-e494. van Soest-Poortvliet, M. C., van der Steen, J. T., de Vet, H. C., Hertogh, C. M., Deliens, L., & Onwuteaka-Philipsen, B. D. (2015). Comfort goal of care and end-of-life outcomes in dementia: A prospective study. Palliative Medicine, 29(6), 538-546. Wiener, L., Weaver, M. S., Bell, C. J., & Sansom-Daly, U. M. (2015). Threading the cloak: palliative care education for care providers of adolescents and young adults with cancer. Clinical oncology in adolescents and young adults, 5, 1. Zimmermann, C., Swami, N., Krzyzanowska, M., Leighl, N., Rydall, A., Rodin, G., ... & Hannon, B. (2016). Perceptions of palliative care among patients with advanced cancer and their caregivers. Canadian Medical Association Journal, cmaj-151171.
  • 22. Zwicker, J., Martineau, I., Walsh, S., Lavoie, J., Weger, E., & Scott, J. (2017). Improving the comfort of nurses caring for stroke patients at the end of life. International journal of palliative nursing, 23(5), 248-254.